This is to certify that the thesis entitled SHARED SPIRITUAL BELIEFS IN MUSIC THERAPY AND EMOTIONAL RESPONSES OF A MOTHER WHO HAS A CHILD WITH MENTAL RETARDATION presented by Jee-Sun Lee has been accepted towards fulfillment of the requirements for the Master of degree in School of Music Music Music Therapy W 71..., Major Professor’s Signature AUG-v.3" 22/ 29°? Date MSU is an affirmative-action. equal-opportunity employer PLACE IN RETURN BOX to remove this checkout from your record. TO AVOID FINES return on or before date due. MAY BE RECALLED with earlier due date if requested. DATE DUE DATE DUE DATE DUE 5/08 Kt/Prq/AchrelelRC/DateDue.Indd SHARED SPIRITUAL BELIEFS IN MUSIC THERAPY AND EMOTIONAL RESPONSES OF A MOTHER WHO HAS A CHILD WITH MENTAL RETARDATION By J ee-Sun Lee A THESIS Submitted to Michigan State University in partial fulfillment of the requirements for the degree of MASTER OF MUSIC MUSIC THERAPY 2007 ABSTRACT SHARED SPIRITUAL BELIEFS IN MUSIC THERAPY AND EMOTIONAL RESPONSES OF A MOTHER WHO HAS A CHILD WITH MENTAL RETARDATION By lee-Sun Lee With the intent of improving the quality of life of parents who have a child with a disability, the purpose of this study is how shared spiritual beliefs in music therapy affect the positive emotional responses in parents’ images of themselves and emotional relationships with their child, their spouse, and the external enviromnent. A case study was designed to gain an in-depth understanding of the Korean Christian parents of an elementary school student with mental retardation. The parents were asked to write personal journal entries and to have one-to-one interview. As a primary participant, the mother participated in the one-hour interventions based on shared spiritual beliefs for 10 weeks, and the verbal discussion and music products were analyzed. The benefits of the intervention for the mother were found to be as follows: increasing the personal awareness of the inner-self, improving the mother’s self-esteem by establishing a positive self-image and achieving simple tasks, and supporting expressive skills of her child in productive ways, which are accepted in her culture. TABLE OF CONTENTS LIST OF TABLES .................................................................................. vi LIST OF FIGURE .................................................................................. vii CHAPTER 1 INTRODUCTION ................................................................................... 1 Prevalence of Disability ....................................................................... 1 Family reactions to the disability ............................................................ l Parents-Child Relationship ................................................................... 2 Husband-Wife Relationship ................................................................... 4 Sibling Relationship ........................................................................... 5 CHAPTER 2 RELATED RESEARCH ............................................................................ 7 Current Programs and Studies ................................................................. 7 Parents’ emotions ................................................................................ 7 Parents’ self-esteem/self-efficacy ........................................... 7 Emotions toward the child and the spouse ................................. 8 Parents’ optimism ............................................................. 9 Spirituality ..................................................................................... 10 Definition of spirituality ..................................................... 10 Needs of spirituality for caregivers of people with disabilities. . . . . 11 Music Therapy ................................................................................ 12 Definition of music therapy .................................................. 12 Emotions and music therapy ................................................. 12 Interpersonal relationships and music therapy ............................ 13 Spirituality and Music Therapy ............................................................. 13 Purpose and Research Problems .............................................................. 14 CHAPTER 3 RESEARCH STANCE & METHODOLOGY ................................................. l6 Researcher’s lens ............................................................................ 16 Participants .................................................................................. 17 Design ........................................................................................ 18 Procedure .................................................................................. 18 Music in therapy vs. music as therapy ....................................... 21 Data Collection ............................................................................... 21 Journal entries .................................................................. 21 One-on-one interview .......................................................... 22 Transcripts ...................................................................... 23 Observations .................................................................... 23 Documents of the songwriting products .................................... 23 Data Analysis ................................................................................ 23 iii Trustworthiness .............................................................................. 24 CHAPTER 4 CASE STUDY .................................................................................... 26 Background history ......................................................................... 26 Session description ......................................................................... 27 Initial meeting (May 20, 2006) ............................................. 27 lSt session (May 29, 2006) ................................................... 27 2Ind session (June 5, 2006) .................................................... 29 3rd session (June 12, 2006)31 4th session (June 19, 2006) ................................................... 32 5‘h session (June 26, 2006) ................................................... 34 6‘h session (July 3, 2006) ..................................................... 36 7‘h session (July 10, 2006) .................................................... 37 8‘h session (July 24, 2006) .................................................... 38 9th session (July 31, 2006) .................................................... 40 10th session (August 7, 2006) ................................................. 40 CHAPTER 5 RESULTS & DISCUSSION ...................................................................... 42 The mother (Primary participant) ...................................................... 42 Low self-esteem .................................................................. 42 Resistance ......................................................................... 47 Feelings toward the child with a disability ................................... 50 Feelings toward the spouse ..................................................... 52 Feelings toward parentsein-law ................................................. 53 Feelings toward other people .................................................. 55 Spirituality ......................................................................... 56 Evaluation of Jessica’s music therapy goals ................................. 61 The therapist (The researcher) ........................................................ 62 The father (The secondary participant) ............................................... 65 CHAPTER 6 CONCLUSION ...................................................................................... 69 Benefits of the interventions ............................................................. 70 Increasing self-awareness .................................................... 70 Finding solutions for self-regulation ....................................... 71 Improving and/or maintaining optimism .................................... 72 Providing physical separation from the child with a disability ......... 72 The social conditions for the population .............................................. 72 The uniqueness of the intervention .................................................... 73 Limitations ................................................................................ 74 Future recommendation ................................................................. 74 APPENDICES ........................................................................................ 77 iv Suggestions for Writing the Personal Journal Entries ......................... 77 Interview Questions ................................................................ 79 Example of Coded Response from the participant ............................. 80 Example of Category Formation .................................................. 81 Example of a Thematic DeveIOpment ............................................ 82 L“l Pl 1:: 7&6] 9.101 (Be still) .................................................... 83 '55qu g" 5815325} 31 “—‘I (Confession to God) ...................................... 84 Eli ‘3 (The chosen person) .......................................................... 85 REFERENCES ..................................................................................... 88 LIST OF TABLES TABLE 1 ............................................................................................ 29 TABLE 2 ............................................................................................ 33 TABLE 3 ............................................................................................ 35 TABLE 4 ............................................................................................ 40 TABLE 5.. .......................................................................................... 41 TABLE 6 ............................................................................................ 44 TABLE 7 ............................................................................................ 45 TABLE 8 ............................................................................................ 45 TABLE 9 ............................................................................................ 46 TABLE 10 .......................................................................................... 58 TABLE 11 .......................................................................................... 59 vi FIGURE FIGURE 1 .......................................................................................... 61 vii CHAPTER ONE Introduction Prevalence of disability The World Health Organization (2006) reported, “an estimated 10 percent of the world’s population - approximately 600 million people, of which 200 million are children - experience some form of physical, mental, or intellectual disability.” In addition, according to estimates of the United Nations, about 10% of the world’s population is disabled. Looking only at developing countries, the numbers are expected to be much higher (The World Bank, 2004). Based the huge number of affected people, we should study how to meet their needs. Family reactions to the disability A family of a child with physical, intellectual, or behavioral disabilities may have unique and diverse challenges (Sherman, 1988). Hardman, Drew, Egan, and Wolf (1990) stated that the child may lead the family into crisis and conflicts. Moreover, unexpected physical, emotional, and financial stress may weaken family relationships. From another point of view, “family members may see the child with disabilities as a source of unity that bonds them together and actually strengthens relationships (p. 458).” Carmichael, Pembre, Turner, and Bamicoat (1999) reported that most families feel that having a diagnosis is an advantage rather than disadvantage. The initial reactions of families to diagnoses of disabilities with family members are diverse. Many factors influence the responses of family members, including socioeconomic status, the emotional stability of each family member, religious values and beliefs, type of child’s disability, and severity Ofthe disability (Hardman, et al. 1990). Shontz (1965) suggests that general parental responses can be separated into four stages: 1) shock, 2) realization, 3) defensive retreat, and 4) acknowledgement. In addition, the parents’ emotional responses to their child’s disability can be negative and unproductive emotions, including shock, disbelief, denial, anger, helplessness, depression, and discouragement. Seligman (1979) described a developmental cycle that families go through in responding to the needs of caring for a child with a disability. The cycle includes the following phases: “1) the time at which parents learn about a disability with their child, 2) the period in which the parents determine what action to take regarding the child’s education, 3) the point at which the disabled individual has completed his or her education, and 4) the time when the parents become older and may be unable to care for their adult offspring.” Parents-Child Relationship “NO one plans to have a handicapped child” (Hardman, et al., 1990). This citation sounds harsh to people who have disabilities, but, frankly speaking, parents do not expect to have a child with a disability. Many studies have demonstrated that parents of a child with an intellectual disability (Rodrigue, Morgan, & Geffken, 1990; Dyson, 1997; Roach, Orsmond, & Barratt, 1999), Down syndrome (Roach, et al., 1999), and autism (Bromley, Hare, Davison, & Emerson, 2004) are likely to experience significantly higher levels of parenting stress and more care-giving difficulties than are parents of non-disabled children. Some studies about parents’ stress have shown that there was not much difference between mothers’ stress and fathers’ stress concerning the child with disabilities (Dyson, 1997). In contrast, other studies have shown there was a [\J difference between mothers’ and father’s stress levels (Roach, et al., 1999). Generally, a mother is the primary caregiver of a child with a disability (Hassall, Rose, & McDonald, 2005). Compared to the father, Hardman, et al. (1990) reported that it is Often the mother becomes the “primary responsible” for relating to the child if a child’s disability is congenital. In addition, according to Cleveland (1980), the mother usually becomes the “guardian of affective needs.” She has the role of the primary responsibility fornurturing the child’s emotional adjustment, and then she becomes the child’s personal representative or interpreter. In this role, the mother is the bridge of communicating the child’s needs and desires to other family members. Roach, et al. (1999) found, “mothers’ stress was associated with children’s care-giving difficulties, and mothers reported more responsibility for childcare, and perceived more difficulties with health, role restriction, and spousal support.” Without at least minimal levels of appropriate support from other adults or professionals, many mothers of children with disabilities become alienated from their children and difficult to begin the caring process (Cleveland, 1980). According to the literature, fathers’ reactions to the birth of a child with a disability are generally more reserved than those of other family members (Lamb, 1983). Fathers are more disposed to respond with coping mechanisms, such as intellectualization, withdrawal, and sublimation. They are more likely to internalize their feelings rather than to express them openly (Hardman, et al., 1990). For instance, fathers of children with mental retardation are typically more concerned than mothers about their children’s capacity to develop socially adequate behavior, particularly if the child is a son (Lamb, 1983). Compared to mothers, fathers were found to have more difficulty accepting a son with a mental handicap (Price-Bonham & Addison, 1978) or physical disabilities (Tavormina, Boll, Dunn, Luscomb, & Taylor, 1981). Fathers cared more about their children’s ultimate educational and social status. Likewise, the visiability of their children’s retardation affected fathers more than mothers (Lamb, 1983). According to Roach, et al. (1999), fathers who have a child with Down syndrome reponed more responsibility for childcare, and they perceived fewer difficulties with attachment and parental competence. Husband— Wife Relationship Dyson (1997) found that fathers’ and mothers’ stress was related to their special perspectives of family functioning. According to Hardman’s (1990) descriptions of husband-wife relationships of parents who have a child with a disability, a mother pays attention to the life of the child who requires more intensive, immediate, and prolonged focus from the mother for treatment and general cares. As a result, the balance between being a mother and a wife is absent. A wife tends to lean to a mother’s role by caring for the child with the disability, while the intensity and quality of other relationships may be changed. Similarly, a husband may also become desperately associated with his child’s lives. Cleveland (1980) studied the adaptation made by seventeen families Of youths with spinal cord injury shortly after the accident and after on year later in order to find changes in family functioning and relationships between family. She identified several sources of irritation and distress in marital filnctioning. Wives in the families of youths with the disabilities are in the major charge of caring the youths as mothers. Husbands reported feeling of angry toward their wives due to the excessive involvement with the youths. Most husbands felt that their wives were overly concerned and protecting in their care—giving activities. On the other hand, wives reported feelings of hostility to spouses because of the husbands’ lack of empathy and understanding. In addition, the mothers’ “over-protectiveness” for the youths with disabilities was identified as a major cause of conflicts in marital relationship. Sibling Relationship The responses of siblings to their sister or brother with a disability are diverse. Farber (1962) identified several factors that may be predictive in family and sibling adjustment to a brother or sister with a cognitive disability. These include the quality of the interpersonal relationship between the child’s parents, the gender of the child with a disability, the social status of the family, and the interaction patterns. Siblings who learn that they have a brother or sister with a disability are often concerned with many different kinds of issues. Sometimes siblings play a critical role in fostering the intellectual, social, and affective development of a brother or sister with a disability. However, like their parents, siblings frequently want to know and understand as much as they can about the condition of their siblings with disabilities. The attitude of the parents toward a child with a disability is an important factor that can influence on the attitudes of the child’s siblings (Love, 1973), because children . show the tendency to imitate the values and attitudes of their parents. If the parents’ view toward the child with a disability is optimistic and realistic, other children without disabilities are likely to follow these attitude values. According to Hardman (1990), anger is one of the many feelings that children without disabilities may express or response to siblings with disabilities. In addition, feelings of loneliness can be shown in children who expected a brother or sister with whom they could play. Anxiety may be present in children who wonders who will care for siblings with disabilities when parents are no longer capable or alive. Children without disabilities may be obligated to care for the siblings with disabilities. However, in their minds, failure to provide the care can make them immoral. Similarly, they may feel guilty about the true thoughts and feelings they have about their siblings. These feelings may be associated with frustration, resentment, and even hate. Many parents would not respond positively and optimistically to the expression of such heavy feelings; therefore, some children without disabilities keep them in their mind for a long time and express them later like an emotional explosion. 6 CHAPTER TWO Related Research Current Programs and studies Blatt (1987) reported that, since 1970, over eighty percent of the litigation for rights and service has been decided in favor of children with disabilities and their families. However, subsequent improvement in opportunities and programs still has not much accomplished legally for their specific needs. Some research has touched the general needs of children with disabilities and their families. Hileman, Lackey, and Hassanein (1992) reported that, like people with disabilities, caregivers also have their own needs—including psychological, patient care, informational, personal, household, and spiritual. However, most studies about children with disabilities and their families were focused on only parents’ coping skills (Beresford, 1994), their parenting and stress (Hassall, et al., 2005), and/or the relationship between parents and the child (Baker, Blacher, & Olsson, 2005). Therefore, this study will be focused on the parents’ own emotional issues under the conditions of a child’s disability. Parents ' emotions Parents ' sey-esteen'z/self-efficacy. Studies of parents’ self-esteem and efficacy have been conducted with parents of hyperactive children (Johnston & Patenaude, 1994) and parents of children with diabetes (Rodrigue, Defflcen, Clark, Hunt, & Fishel, 1994). Hastings and Brown (2002) reported that self-efficac y reconciles the relationship between behavioral problems of children with autism and mothers’ anxiety and depression. According to Hardman, et al., (1990), parents who have a child with a disability may experience assaults on their own self-value. They may blame themselves for the presence Of disabilities in their children, and they may seriously question about their perceptions toward themselves. They may be easily irritated or upset. In addition, the parents may be anxious or wondered about their abilities and adaptations to face on the demands of caring for a child with unique needs. They may spend some time to consider about self-accusation, self-pity, or self-hate. Hassall, Rose, and McDonald (2005) studied parenting stress in mothers of children with intellectual disabilities. They investigated the relationships between parental cognition—which is related to parenting self-esteem including efficacy and satisfaction—and parental locus of control, child characteristics, family support, and parenting stress. Forty-six mothers of children with intellectual disabilities participated in this study through completing questionnaires and interviews. The results indicated that parental locus of control, parenting satisfaction and child behavior difficulties showed the influences on the relationships. In addition, it was found that parental locus of control mediates the strength of relationship between family support and parenting stress. Emotions toward the Child and the spouse. “1 can distinctively remember the first thoughts that I had as I spoke to my husband after I had my brief visit with the pediatrician. I wanted to throw my new son out the window . . . not literally, but somehow I didn’t want to deal with this immensely new and complex problem.” “A million thoughts raced through my groggy mind: Can I handle this? Why did this happen to us? What could I have done to have this happen to our family? Bill must be very disappointed in me!” (Hardman, et al., 1990) Like these mothers, parents who have a child with a disability may have not many positive images of their child. In fact, they may have grievances toward their child, even though they feel guilt at the same time. Unfortunately, despite of the need for research about parents’ unhealthy feelings, few researchers have studied mothers’ emotions about their child with a disability. Cleveland (1980) briefly mentioned the emotions between husbands and wives who have a child with a disability. Husbands express feeling angry toward their wives because of their over—protection and obsessive involvement with their children. However, wives express hostility toward their husbands for a lack of empathy and understanding about the care they provided. Parents ’ optimism. Scheier and Carver (1985) stated, “Optimism and pessimism, defined as generalized positive and negative outcome expectancies, represent relatively stable individual difference variables that promote or abate psychological well-being.” Optimists have a favorable outlook on life. Therefore, they believe that good things will happen to them rather than bad things (Olason & Roger, 2001 ). Researchers have considered many pathways by which optimism may function to affect healthier outcomes, invoking effects on the immune system, cognition, emotions, social relationships, and health-promoting behavior (Aspinwall & Brunhart, 2000; Peters, 2000). Clarke and Beck (1999) reported that, according to the optimism literature, mother’s optimism may lead to less distress as a result of challenging child behaviors. Moreover, cognitively, less optimistic thinking is linked to vulnerability in experiencing negative feelings and emotions. Baker, Blacher, and Olsson (2005) investigated the relationship between parents’ optimism/well-being and the behavioral problems of their children with and without developmental delay. It was found that optimism moderated the parents-child relationship, especially for mothers. Mothers who were less optimistic reported lower scores on measures of well-being than mothers who were more optimistic when child’s behavioral problems were high. Moreover, Greenberg, Seltzer, Krauss, Chou, and Hong (2004) found that by the effect of optimism mediated totally or partially, mothers of adults with schizophrenia and autism had better psychological well-being when the mother/adult child relationship was positive. Therefore, optimism was related to better mental and physical health. Spirituality Definition of Spirituality. Hiatt (1986) defined spirituality as “that noncorporeal and nonmental dimension of the person that is the source of unity and meaning, and spirituality refers to the concepts, attitudes, and behaviors that derive from one’s experience of that dimension. Spirit can be addressed only indirectly and inferentially, while spirituality can be understood and worked with in psychological terms.” (P. 742) Emblen (1992) wrote, “Definitions of spirituality referred to a dynamic, principle, or an aspect of a person that related to God or god, other persons, or aspects of personal being or material nature. The spiritual dimension was used to refer to a quality beyond religious affiliation that is used to inspire or harmonize answers to questions regarding 10 infinite subjects, e. g., meaning and purpose of life and one’s relation to the universe.” (P. 43) Needs of Spirituality for caregivers of people with disabilities. Spiritual factors are also important for the caregivers of people with disabilities. Zigmond (1987) mentioned, “On our own, or in our most intimate groups, we devise more personal and idiosyncratic beliefs, rituals and protocols to ward off the potential storms or deserts of uncertainty.” (p. 69) Aldridge (2004) added, “The spiritual dimension, while perhaps not warding off uncertainty, Offers a satisfactory strategy by which uncertainty may be understood and coped with.” (p. 127) Rukholm, Bailey, P., Coutu-Wakulczyk, and Bailey, W. (1991) studied 166 adult family members of intensive care unit (ICU) patients to examine their perceived needs and anxiety levels, and found that family needs and situational anxiety were significantly related. Thirty-eight percent of the variation of situational anxiety was related to worries, trait anxiety, age and family needs. Spiritual needs and situational anxiety accounted for thirty-three percent of the variation of family needs. Additionally, Chang, Noonan, and Tennstedt (1998) examined how religious/spiritual coping relate with specific conditions of caregiving and psychological distress. Informal caregivers to community-residing disabled elders participated in this study. They found that, to improve the quality of the relationship between caregivers and care recipients, spiritual coping skills indirectly influence caregivers’ distress. Caregivers who practiced religious/spiritual beliefs experienced lower levels of depression and an increased dedication to the role of caring, resulting in a better relationship quality. ll Music Therapy Definition of music therapy. According to the American Music Therapy Association (AMTA), music therapy may be defined as “a planned, goal-directed process of interaction and intervention, based on assessment and evaluation of individual client’s specific needs, strengths, and weaknesses, in which music or music-based experiences are specifically prescribed to be used by specially trained personnel to influence positive changes in an individual’s condition, skills, thoughts, feelings, and behaviors” (Peters, 2000). Goldman (1988) believed that in holistic healing processes, the mind, body, and spirit are interdependent on each other in order to maintain health and well-being. As both the mind and the body affect all aspects of a person—physical, mental, emotional, and spiritual aspects—music can help the mind-body interaction and promote the holistic methods of healing. Holistic practices facilitate individual’s potential, self—awareness, and growth by finding answers within one’s self (Bonny, 1986). Moreover, the holistic approach for health has generated interest not only in ancient healing practices using music, but also in contemporary ways to use music to facilitate healing, relaxation, centering, stress reduction, emotional release, consciousness expansion, and the highest possible state of well-being (Bonny, 1986; Goldman, 1988). Emotions and music therapy. Different types of music have varying effects on listeners’ moods, emotional, and affective responses (Abeles & Chung, 1996; Radocy & Boyle, 1988). Luetje (1989) found that structured experiences involving lyric analysis, song writing, improvisation, and music-assisted guided imagery may 1) support cognitive and emotional processing of the crisis, 2) assist individuals to find alternative 12 and productive solutions or responses, 3) help individuals find new way of adaptation, 4) help to be aware of potential Strengths, and 5) facilitate the internal affirmative messages within individuals. Many music therapy techniques and approaches can be used with individuals or groups to help enhance cognitive functioning, expand consciousness, increase creativity and self-expression, improve life satisfaction, facilitate self- awareness, and promote personal growth and optimum health (Peters, 2000). Gabrielsson (2001) mentioned, “Music may arouse strong emotional experiences as it interacts with listener aspects such as physical well-being, memories, and personality, and with situational aspects such as location, acoustic conditions, and social aspects of an audience.” Interpersonal relationships and music therapylPeters (2000) noted that, through music’s ability for structure and organization and its ability to carry and affect on ideas and feelings, music has powerful effects on interpersonal interactions. Sorel (2005) used Nordoff-Robbins music therapy, which is a creative music therapy technique using instrumental and vocal improvisation, as a mean of improving the relationship between a mother and a son with autism. This case study showed the effects of the music therapy as an example for improving interpersonal relationships. Spirituality and Music Therapy Mussulman (1974) notes that “music has functioned more consistently and positively in religious ritual than in any other area of life in Western civilization, even to the extent that religious music comprises one of Western music’s longest and richest traditions (p. 129).” In the field of music therapy, Bonny and Pahnke (1972) identified 13 the importance of spiritual considerations in the early work of Helen Bonny'. Munro and Mount (1978) also note the need for spiritual consideration in palliative care work. Aldridge (2004) introduced Lucanne Magill’s responses concerning music therapy in spirituality at the last World Congress in Oxford (Magill 2002). She said, “ So much of what we do is beyond words and it is really because of this transcendental nature of music that important healing in music therapy can and does occur.” She proposed four functions of music in spirituality: 1) music creates interpersonal relationships, 2) music supports recalling the past experiences and remembrances, 3) music gives a voice to prayer, and 4) music instills peace. She concluded, “To the presence of music when transformation begins to occur and healing begins, that it is the lived moments of music therapy that the essence of our work—music therapy, spirituality and healing—is experienced and known.” (p. 107) Aldridge (2004) emphasized that these considerations of spirituality are not unique to music therapy. The need for spiritual considerations in health care still is in debate; however, be strongly proclaimed that the discussion of spirituality is “a legitimate topic in music therapy.” (p. 108) Purpose and Research Problems Most studies about children with disabilities and their family are focused only on parents’ coping skills (Beresford, 1994), parenting skills and stress (Hassall, et al., 2005), and/or the relationship between parents and the child (Baker, et al., 2005). Few studies were found concerning the effects of a music therapy intervention for parents who have a child with a disability. Therefore a major focus of this study was identifying 1 Helen Lindquist Bonny : a courageous pioneer in the uncharted territories of music and consciousness, and an inspiration to all who travel there through the method she created: Guided Imagery and Music (Bruscia & Groke, 2002; p. V). I4 and working through emotional and spiritual problems within a family of a child with a disability. With the intent of improving the quality of life of parents who have a child with a disability, the purpose of this study is to examine the effects of a music therapy intervention using spiritual beliefs—which are shared by client’ and therapist’ own spirituality with in trust-based relationship—on the parents’ positive emotional responses, including images of themselves and emotional relationships with their child, spouse, and their external environment. The research problems are as follows: 1) to determine how shared spiritual beliefs in music therapy interventions affect the self- image of a mother who has a child with a disability, 2) to determine how shared spiritual beliefs in music therapy interventions affect a mother’s emotional responses toward her child with a disability, 3) to determine how shared spiritual beliefs in music therapy interventions affect a mother’s emotional responses toward a spouse, 4) to determine how shared spiritual beliefs in music therapy interventions affect the mother’s emotional responses toward the external environment, and 5) to determine how music affects the participant’s spirituality, facilitating the maintenance of health. 15 CHAPTER THREE Research Stance & Methodology Researcher '3 lens The reason I chose this topic, the effects of songwriting on a mother who has a child with autism, is related to the reason why I started to study music therapy. In 1996, when I was preparing for university admissions, my high school music teacher introduced me to a private composition teacher (Lim, S. D.) who was a part—time instructor in a couple of universities. I took private lessons from her, and our relationship was built on trust and honesty. Both of us have a strong belief in God, so our conversation was usually based on religious topics, such as faith, love, and respect of God. After a couple of composition lessons, she shared with me that she has two daughters, and the older daughter had Down syndrome. At that time, I was shocked, and wondered why God gave this traumatic event to someone who had a strong faith. While I was thinking this, the teacher told me that she also wondered why God had done this to her, but now she thanks God for giving her a beautiful daughter. The teacher honestly shared with me her emotions toward her daughter and about herself. Before my university auditions, I visited the teacher’s house to take composition lessons, and sometimes I played with her daughters. I observed the dynamics between the daughters. One has Down syndrome and the other has no disability. After I was admitted to Yonsei University in Korea, my teacher had an opportunity to teach music students in the university in a part-time position. In continuing to build a relationship with her, I decided to study music therapy in response to her suggestion. After I left Korea to study music therapy in the US, the teacher’s 16 daughter who had Down syndrome died. When I visited Korea during a summer vacation, I could have a chance to talk with the teacher. She shared that she and her family had an extremely hard time right before and after her daughter’s death. At that time that I met the teacher, she and her family went through almost at the end of the emotional tornado. Since that moment, I have wondered how I could help other parents who are like my teacher in that they have a child with a disability. Currently, as a music therapist and graduate‘student, I am a piano tutor for a 7- year-old girl with autism. Even though I started private piano tutoring with confidence, because I was a music therapist who could accept exceptionality more easily than other piano tutors, I am struggling to communicate and interact with this child. Whenever I struggle with the child, I feel empathy for her mother, and I recall the conversation that I had with my teacher. Because I realized that I must be able to help the mother with my talents as a music therapist, I designed this study to focus on releasing the mother’s negative feelings and emotions and constructing positive emotions about herself, her child, and her husband, and on being optimistic about her external environment. Participants A mother with a 9-year old elementary school child with mental retardation served as the primary participant. In fact, her youngest son who is an infant (age 1) also has a disability. Even though she has two children with disabilities, to the goal was to examine emotional changes in a mother who has an elementary school student; therefore, the participant met the selection criteria for participants. Her husband was a secondary participant for this study. The researcher built a rapport with the primary and secondary participants through a meeting and personal interviews before the music therapy 17 interventions in order to provide them with a more supportive and comfortable environment in which to share their emotions. Design Smeijsters (1997) mentioned qualitative research is focused on “meaning” rather than “truth.” According to Merriam (1998), “a descriptive case study is an examination, intense analysis, and description of a single unit or bounded system.” Moreover, Yin (1993) mentioned that a case study is designed “to gain an in-depth understanding of a situation and meaning for those involved in the study; to explore questions, programs, populations, issues, or concerns in order to determine appropriate research questions; and to explain linkages between causes and effects.” Hilliard (1993) also defined single- case research as intra-personal research that emphasizes on the individual’s internal changes. In quantitative research, the essence of music therapy—“identified as that which is experienced by the music therapy and the client during music therapy”—is often lost (Smeijsters, 1997). The use of a case study design can provide a detailed description and analysis of therapeutic processes in a music therapy setting. In music therapy settings, the case study design is popular because of its flexibility and adaptability. The data in this study is a detailed narrative of a mother’s emotional changes during songwriting activities. Procedure A rapport was built with the primary participant through a meeting before the interventions. The brief official contact with two participants—the mother and the father—was by phone and occurred in the early part of May 2006, and the first meeting 18 with them was on May 20, 2006. The purpose and research problems for this study were explained, and the process of the music therapy sessions. Each participant voluntarily signed a consent form for their participation in the study. The music therapy intervention in spiritualin was in a one-to-one setting, including the researcher and the mother of a child with a disability. The intervention took place every week for 10 weeks in Korea. The 10 sessions were approximately one- hour in length. Music listening, singing, songwriting, and improvisation were used for warming up for or wrapping up the sessions. Among those music therapy techniques, the process-oriented songwriting intervention was emphasized more than other techniques. Baker and Wigram (2005) offered a definition of songwriting in music therapy as: “The process of creating, notating, and/or recording lyrics and music by the client or clients and therapist within a therapeutic relationship to address psychosocial, emotional, cognitive, and communication needs of the client.(p. 16)” According to Gfeller (1987) and Peters (2000), song lyric discussion and personal/ group song writing intervention can stimulate increased personal awareness, help clients see other points of view or other possible solutions, and. support emotional expression and interaction. Studies of song writing have showed it is a powerful tool with psychiatric clients for aiding self-expression (Ficken, 1976), children who are reluctant to disclose their feelings (Miles, 1993), and abused adolescents in order to promote communication and trust, to develop group cohesiveness, to enhance self-expression, to increase self- esteem, to develop insight into feelings and needs (Edgerton, 1990; Lindberg, 1995; I9 Clendenon-Wallen, 1991). Ficken (1976) mentioned that the composed song acts as a source of immediate feedback, since it can be written down or tape-recorded. Based on Brunk’s (2003) suggestion for songwriting, the sessions developed from recreating pro-composed songs, such as fill-in-the—blank songs and piggyback songs, to composing the mother’s own songs. The process of songwriting intervention mostly followed Baker and Wigram’s (2005) the Therapeutic Lyric Creation which contains 9 steps to creating a song: 1) finding topics, 2) selecting, 3) brainstorming ideas, 4) identifying principal idea, 5) developing the ideas identified as central to the topic, 6) grouping the points together, 7) discard irrelevant ideas, 8) constructing outline, 9) writing lyrics. As mentioned, the discussion parts for the actual songwriting process are a significantly important portion to identify and develop ideas for songwriting. Therefore, discussions were valued just as important as the music making. During the discussion, my role was to be an active listener, stimulating the role of a therapist in person-centered therapy approach. No significant suggestions were offered to the participant, but an effort to make the relationship include genuincness, warmth, empathy, unconditional acceptance, and caring were the primary focus. For the effectiveness of the intervention, each session had a routine sequence of phases. This included a greeting, brief discussion or conversation about current feelings or events, songwriting activity, discussion about lyrics and/or harmony of the song, and closing. The sessions were conducted in Korean, including the interviews, discussions, and the lyrics of songs. This helped to establish a better rapport between the participants and the therapist in a culture boundary. 20 Music in therapy vs. Music as therapy. Bruscia (1998) mentioned that one of the unique characteristics of music therapy intervention is the involvement of both music and the therapist as interactive partners. Music can take place as the primary role or the secondary role in a music therapy session. Music as therapy means that music takes the primary role in the intervention while music in therapy means that music takes the secondary role (Bruscia 1998). Specifically, the most primary music therapy technique for the primary participant’s music therapy sessions was process-oriented songwriting intervention in sipirituatlity. According to Baker and Wigram (2005), “Compared to writing song for clients, writing song with clients serves a different purpose and is akin to the concept of music as therapy (p. 12).” They also emphasized, the process and product of songwriting as the “therapeutic intervention.” In Jessica’s music therapy sessions, the verbal discussion took a big portion even more than the time spent actually creating music. However, like Baker and Wigram’s emphasis, the verbal discussion was the bridge between identifying innate emotional responses and expressing them in a constructive way. Data Collection Journal entries. Alford, Malouff, and Osland (2005) stated, “combining concepts of emotional disclosure and intelligence suggests that expressing positive emotions in words may also have psychological benefits.” It can help a person (a) extend the emotion, (b) harness the emotion to produce positive behavior, and (c) find ways to recreate the emotion by experiencing in a certain way or by reentering the same situation. Studies have shown that writing about strong emotions leads to health benefits 21 (e.g., Petrie, F ontanilla, Thomas, Booth, & Pennebaker, 2004). Written disclosure studies that have examined psychological health have shown reductions in distress, negative moods, and depression (e. g., Sloan & Marx, 2004). During the music therapy interventions, the primary participant (the mother of a child with mental retardation) and the secondary participant (the father of a child with mental retardation) were asked to write personal journals that were be a part of the collected data for this study. The participants maintained a journal one day before the treatment, immediately following the treatment day, and a day between the two journal entries. The participants focused on writing about their emotions and feelings about themselves, the child, the spouse, and the external environment, such as interacting with others, and perception of the world (Appendix A). One—on-one interview. In Case Study Designs in Music Therapy (edited by Aldridge, 2005), Aasgaard stated that interview can provide “spontaneous conversation with the people encountered—not totally by chance and aimlessly—but in order to shed new light on the song’s lives. Both researcher and the interviewee might actually be led into new knowledge, self-understanding, and reflections through theses encounters (p. 73).” The purpose of an audio-recorded interview was to remind the participants of the purpose and problems of this study, to clarify their questions or concerns about the study, and to check the participants’ adjustment or feedback about the music therapy sessions. The interview questions were open-ended and focused on the participant’s emotional changes (Appendix B). The primary participant was interviewed briefly before and afier each session, and the secondary participant was interviewed twice—before and after the period of the intervention. Transcripts. Afler each session, the researcher made a transcript of the sessions by reviewing the audio tape. The transcripts were saved in the password-protected computer as a word file for further analysis. Observations. The researcher wrote field notes after every music therapy session. They included descriptions of activities used in music therapy sessions, the participants’ emotional or behavioral responses, facial expressions, and interaction with the researcher. Documents of the songwriting products. The lyrics and songs that were composed by the primary participant were analyzed according to the use of emotional words and musical elements, including choice of mode, rhythm, melodic texture, and range of pitch based on the participant’s current situations and responses. Data Analysis According to Strauss and Corbin (1990), grounded theory is, “inductively designed from the study of the phenomenon it represents . . . It is discovered, developed, and provisionally verified through systematic data collection and analysis of data pertaining to that phenomenon”i( p. 23). For this study, I also followed inductive data analysis, which means that I does not predetermine the verification of data for coding. During repeated reviews of the data, the codes merge into categories, the groups of relative codes. The data in each of the categories were gathering in several contexts. Therefore, constant and repeated comparative analysis is required (Glaser & Strauss, 1967) I highlighted words, that I thought were significant. These words were classified into categories by “a classification of concepts, developed by comparing concepts and grouping them together as they appear to pertain to a similar phenomenon” (Strauss & 23 Corbin, 1990, p. 61). After the brief classification, I combined the words from previous sessions and all categories and developed themes. A theme is “a statement of meaning that runs through all or most of the pertinent data by linking data in and across categories” (Ely, Anzul, Friedman, Garner, & Steinmetz, 1995, p. 150-151). The analysis for this study contained the following steps. 1. Data. All data from personal journal entries, one-on-one interviews, observations, and transcripts retyped as Microsoft Word files by the therapist- researcher after each session. Coding. The labels were inductively derived by the therapist-researcher to indicate the characteristics of the participant’s responses. An example of coded data transcribed from a participant in music therapy session is in Appendix C. Categories. The codes were compared and contrasted several times. The Similar codes were grouped into categories, inductively created by the therapist-researcher. An example of a category’s codes representing a participant’s responses is in Appendix D. Themes. The codes under verified categories were compared and contrasted. The relative categories were grouped into descriptive thematic labels (Appendix E). Trustworthiness Trustworthiness was established by using several methods specific methods. For the validation of subjectivity in qualitative research, Smeijster (1997) states, “Repeated analysis involves researchers regularly comparing old data with new, thus checking their previous hypotheses. They can also check whether the old data corroborate their latest interpretations, whether previous interpretations need to be changed, or whether previous interpretations can be used for old data, but new data require new interpretation (p. 18).” The data for this study were reviewed repeatedly several times after each session and during the process of the data analysis. Smeijster (1997) suggested that the triangulation methods, which entail the use of several observers, various techniques of collecting data, or diverse theoretical models, improve “reliability.” It consequently allows checking “whether the phenomena are verbally represented as adequately as possible” (p. 32). The triangulation methods are 1) data source triangulation, which is to use multiple sources for obtaining data on the research topic, 2) methods triangulation, which is to collect data by multiple methods, and 3) researcher triangulation, which is to form a research team, with each member of the team participating in the collection and analysis of data (Patten, 2005). For this study, data source triangulation was addressed through the rapport with and data collected from the mother, the father, and the researcher. Methods triangulation was achieved through the variety of data collection tools, including personal joumaling of the primary participant and the secondary participant, one-on-one interviews with both participants, the researcher’s field notes, and the songwriting products from the music therapy sessions. Researcher triangulation was established through reviewing data with each participant and another professional music therapist. For the accuracy of the Korean-English translation, a Korean doctoral music therapy student reviewed the briefly analyzed Korean data and English translation. CHAPTER FOUR Case Study Background history Jessica (pseudonym) is a mother of four children (two daughters: aged 11 and 3; two sons: aged 9 and l). The second child, David (pseudonym), who is an elementary school student, has been diagnosed with mental retardation. Jessica took a cold medicine during the pregnancy before she knew that She was pregnant. Her parents suggested that she should have an abortion, but she decided to keep the baby after the discussion with her husband, Paul (pseudonym). The baby was born without any problems; however, he showed very delayed physical development, compared with other children. David could not control his neck even though he was 4 months old. One day David got a cold, so Jessica and Paul took him to see a physician. The doctor noticed David’s disability and suggested that the parents to visit a rehabilitation service system. Jessica and Paul had lived with Paul’s parents since they got married. The parents had exercised strong control over them, including a job, a placement, financial, and even religious issues. Paul’s mother allowed Jessica to go to church only on Sunday, and prohibited her participation in a small group for bible study or fellowship. Because Jessica and Paul depended on the parents due to financial issues, they could not even consider living apart from them. After the disclosure of David’s disability, Jessica and Paul made the difficult decision to move out of the parents’ home. They became more active in their Christian faith. When David started to go to an elementary school, Jessica was pregnant again with the forth child. Six months later, a doctor diagnosed the baby with Tuberous Sclerosis. After the birth, John (pseudonym) displayed the characteristics 26 of epilepsy a number of times. Moreover, the doctor told her that no remedy existed for John’s disability at that time. Session Description Initial meeting (May 20, 2006) To select participants for this research, I verbally presented a brief description of the research to my church community. I got the phone number of a mother who had a child with a mental retardation and was interested in participating in music therapy. I called her to provide more specific details of the study. The prospective participant seemed to need some time to think more carefully about participation, so I gave her a week to consider her participation. After a week, I called the prospective participant again. She and her husband decided to be the participants for this study, and I made an appointment with her for the initial meeting. During the initial meeting, I explained the purpose of the study, research questions, and the procedures. Since confidentiality and signing a consent form for research participation are not familiar in the Korean culture, I explained them to the participants. In addition, I also mentioned that participation in this experiment is voluntary, so they had right to quit or stop their participation at any time. 1" session (May 29, 2006): Assessment I provided a brief second orientation for this research project, including the purpose of the study, research questions, the planned procedures, and the research regulations that were not familiar to Koreans. Also, I mentioned that they could withdraw from the study whenever they felt uncomfortable. 27 Jessica started to share her personal history briefly, including the marriage, the children’s disabilities, and social relationships. According to the assessment, she preferred to sing rather than to perform on instruments. However, she also liked to play the piano. She could read music notes and understood basic chords. She liked gospel music. She also liked Korean pop ballad music; however, she disliked rock music. She was talkative and shared life events specifically, but did not share much deep self-insight. She reported that she had low self-esteem, and she is somewhat exhausted caring for the children with disabilities. Sometimes she wanted to give up the children, and she needed more support from the husband and her children who had no disabilities. She also mentioned that she expected and needed the warmth and support from other people. Jessica has a strong faith in God. Her beliefs have helped her to deal with the'children. She avoids or hates unreasonable sympathy towards her sons, but generally has good relationships with other people. Based on the assessment and interview, I developed the following goals for music therapy: I. To identify emotions related to life events and family relationships - Feelings toward herself - Feelings toward the child with a disability - Feelings toward her spouse - Feelings toward the world around her 2. To express those feelings in constructive ways 3. To rationalize the feelings about the events and find solutions by herself 28 4. To build positive feelings about herself, the child with a disability, the spouse, and others As mentioned, she felt that were focused toward herself, the child with a disability, the spouse, and external environment, including other relationships. I did not plan to suggest specific ways to release her negative feelings or stress, but I wanted to encourage her to construct ways of expressing her feelings. 2"“ session (June 5, 2006) The session started with choosing and singing gospel songs. Jessica chose some songs without much hesitance: “2F?“ 7I_C2_Li (The power of love),” “Zr“El %%61*1E (If God says),” “EB-I Ll §I E T3 94 ”$31 (See! Don’t be afraid)” etc. Immediately she joined in singing the songs. According to the observation notes, it was described: “She sang with a beautiful voice. She smiled a lot during singing. She showed the ability to read notes, and sing in tune.” She also shared her feelings and personal history that is related to the chosen songs. The meanings of the songs were related to her emotional responses about her child’s disability and her relationships with other people. Before writing lyrics about herself, I asked her to share her self-image. She mentioned she has low self—esteem. She shared her experiences in her childhood that she thought could have affected the building the self-esteem for her. She also mentioned that she realized God’s love and she could be confident about herself with God’s image. Her faith in God seemed to be a powerful positive stimulus in improving her self-esteem. Based on the discussion, I asked her to write lyrics about herself (Table 1). Table 1 29 Lyrics of " PT i L701 girl) .. Korean EEEEz¢EEEeeEEEEEEE "EEwwEEEEEEMEEEEE ,z’x L7M 014;: L/ C} 57-2;- 0/ 33 57 353—85 0 c4071.: 12.3 5' 273; 3237;: u- weenn 3‘33 7/ if 10 51/07 ('3‘ i; =3 ‘3‘ 17 “El-.117 EEEEEEEEE EEEEveeeEEEEEEEEE7 of 37 0 F: at gym/E 2412. .2. 15,13} aslaj/ EEEEE :13“! (ii/X7 33f. EEEEEEEEEEEEEEEEE E {9:} f: g!” -7 5: L7 £5- 9??? KM! {fol ~71 353391’ {Ml (is? L/ El. .EEEEEEEEEEEEEEu 5’/.§?_ ”’1 O/L/iglfl EL? 57/ Ll/xflg- {lg}; o/{rj .74 0/04 in M 0’7/ 37/ /EEENEEEEEE3EMW7 EEEEE :EEEEEE- iEEEEEowuzenessuo Ja/L/ o}O/7} 3330/ otglg-L/E/W #WErE"“’E%%SEEW filfi’t E;- 3/ El. -212“)? 071-37, EH1 57m 331. JET/L} =3 OI/Ki-r 7 Eliot 57.2.1.9 flat/g?- 5727/ 3;; sot-7.3:- E7 E EEE 3.3 Eta-7277 Eat—sue. AHREEEHVEEW :EEEEEEEEEE-EEEEEEEE C_. 0/74/41E L’l’iTZ 7f 17 will?! 7// 57/11:; (Z; 333:1 "HS—z..— 7735! $33 30 {—33 0 e L777 3:73/3/57- -3] 0/ 0/” it Q '21.} X/L} z/ 7/10 01-- 3;: 9- «,2 97 .3 37 3:7 E n/ Eel v:/ 67 37 37 77/ 37 3’3 .37 37/212 7.367 1? 334’ 3273/ 37. English Translation There is a girl who is shy and introverted The girl is demure to have as a nickname, "unripe bean " The girl repressed her friends ’ injustice and kept this to herself The girl was changing after she met God in her teenage dreams. The girl spent time with God 's love and passion, that she did not understand exactly However, There was a feeling that something was missing in her latent personality... . The girl always needed more self-confidence. The girl felt inferior about her self Not only the outlook but also nothing to proud of herself The girl could not be confident in front of people The girl was maturing... The girl was married and has children But, a child was very sick... Through the child, the girl experienced Sorrow, pain, discouragement, fear... On the other hand, The girl found the meaning through the relationship with God Love, faith, hope, grace... These findings in God are amazing! As far as the girl with God, She is not the girl who is shy and is narrow minded. The girl cannot ignore the pains from people The girl confesses that God gives her the fullness of the heart to accept them 30 Table l (cont’d) 37L} 3531’} 2%? E5735: 9:3 574 37 9.3077 373333.333? 37 3330/ £79717 As far as the girl with God, The girl becomes the girl who receives God ’3 love 7 The girl becomes confident in front of people even though the life is an exhausting and challenging environment #0/ 12' El 3,152 I27 .1? .4??- 5’ 23’ 13/875 A} 535;: 9107/ 23* ‘5" 31‘ i: :31 E X} 33’0/ El?! 33‘- 37 El. rearwnawEo EE33EE 7‘9 7/o (”—17— The girl is dignified rather than shrunk anymore 13/17 E} 3" 01—57": 331:: 7/ "(fol £1733" L/L} The girl has smilesjrnfldlyalways 7351,]? iii/L} :’//// Kt}? bib? 53’3“? The girl is... ”if: Li (3)” L/ C} - Mysel who receives love from God After writing the lyrics, Jessica said to me, “Don’t make homework like this again!” and giggled. Before the songwriting session, she needed to build a close rapport with me by expressing her emotions and sharing experiences. 3rd session (June 12, 2006) Jessica mentioned that she talked with her husband about this study. Both of them felt burdened and responsible, especially after they signed the consent forms. However, they decided to participate in this study in order to help people who have the same or similar situations. AS people of faith, they could convey their thinking to people who were suffering. The session started with singing two gospel songs that Jessica chose. I asked her to read the lyrics that she wrote last session, and then, the song was complete by choosing accompanying music from gospel songs, a voice type, an instrument, and tempo. Jessica chose a Korean gospel song called “LI 9i "1 7P1 '5I 0‘ MOI (Be still), ” which featured female voice, piano solo, and a slow tempo. I played the piano, and Jessica read the lyrics. Afier reading, she had tears in her eyes. During the perfomlance, she recalled the suffering when David’s disability was discovered. She seemed to be 31 connected with her emotions at that moment. She mentioned that she wanted to keep her current positive emotions given by God. I suggested free improvisation on the piano to express her feelings. She played repeated chords and arpeggio (C-Am-Dm—G) with limited variations. Even though she did not have much hesitation about piano performance, she showed strong resistance to the improvisation. As a result, I changed the improvisation from an unstructured improvisation to a one-note improvisation on “C.” From the observation notes, it was described: “Jessica showed the strong resistance to perform and played the piano. She played for about just thirty seconds. She seemed to be bothered and showed extremely flat affect.” I finished the session by introducing some tips for performing chords on the piano. Jessica said she would like to try them on the piano by herself. 4:}: session (June 19, 2006) During the week, Jessica disclosed her feelings about the study to other people. This was understandable because keeping confidentiality was not familiar to Korean people. Since I had observed Jessica’s resistance to improvisation in the previous session, I planned the session to start with a discussion about the issue of “taking a risk or challenge.” Because, at this time, Jessica mentioned that she was feeling more comfortable talking rather than performing musically, I suggested we discuss the topic verbally. She mentioned that her resistance to take a risk or challenge could be related to the condition of her child, but she emphasized that the resistance was not related to personal feelings about music therapy or the therapist. She mentioned that she liked to 32 play the piano, but she felt very uncomfortable improvising something on the piano without adequate direction and structure. Jessica gradually opened up and shared her life events and family relationships. She shared her relationship with the mother-in-law. She mentioned that her mother-in- law does not have a close relationship with her own husband, so the mother-in-law vented her wrath on Jessica. Moreover, her father-in-law encouraged Jessica to attend church with him. He currently mentioned that, if Jessica chose to attend another church, he would ask her to move out. Jessica said that she changed churches due to her children with disabilities. She thought the previous church was not able to accept her wound. She felt that her church family was not supportive at the previous church. She believed that her mother-in-law understood some parts of her thinking. However, the mother-in-law also persuaded Jessica that she should not to object to the father-in-law’s intention. As mentioned earlier, Jessica’s husband, Paul, is dependent on his parents due to the financial support they provide; therefore, it is hard to act against the parents’ wishes. I gave her a fill-in—the-blank sheet to look at for the next session so that she could feel more comfortable in participating in the music task (Table 2). To reduce her difficulty in the sessions, I emphasized that she should not fill in the blanks until the next session. Table 2 Blank sheet for a fill-in-the-blank song Korean English Translation 77151 ___ Title: Ell/El 7} Li 9/ 9;" [fl/"ll. Someday when I . 1%" f? if 07-3. to Inc/for me/me/my 59 17/7} 9707 _ _ , l7- ? ”ll. And, when [feel 33 Table 2 (cont’d). :Q/ E Ll/F/l/ 17:7; _. to Inc/for me/me/my _ LIL §13t_____g_§3 357% ”/71: When I always feel tired due to , 04/7} Ll” 7” Ll 73‘ ______- to me/for me/me/my __ Ll/7l‘ Kl *7/17 ____- g} ”/7 5. When I am tired, so , 0l/7l ”l ’ll/ Ll 73“ _____« to me/for me/me/ my _ We sang some songs to wrap up the session. Singing was a good tool to help Jessica to be comfortable and to have soothing feelings in the music therapy session. 5'” session (June 26, 2006) “I feel bad today” were the first words I heard from Jessica this session. She seemed to have had an argument with Paul. She said: “I want to exchange my personality with Paul’s. He is irresolute. .. I can understand Paul’s mind, but I want to be separated from his parents... I need 3 people on my side. Today I am very upset.” She poured out her feelings toward the husband. During the interview, she stated, “He often does not put his stuff in the proper place. I gave up expecting him to fix the behavior because I want to be more emotionally comfortable. He helped me when we had only two children, but now he does not help me. He helps me only when I feel bad or extremely tired. What I want from him is to spend time with his children and replacing his stuff on the proper place... But, now I am filled with spirituality, so I can do all.” However, Jessica mentioned that her husband was one of her best supporters when she had difficulties dealing with her children with disabilities. Recently, when she found out about the forth child’s disability, she thought, “Did I marry the wrong guy? Or 34 did he marry the wrong girl?” She mentioned she cried everyday. She talked only to herself and did not express her feelings, but they burst out one day. She felt sad when some people said to her that it would be good after the kids were raised- She said, “How can they know my mind, my suffering, and my wounds?” She showed a strong aversion to people who do not know her well and just still give advices. She expects people to look at or experience her life situations from both sides—positive and negative— and then, to give advice, encouragement, and suggestions based on their understanding of the conditions. During the post-session interview, I asked her how she wanted to respond to the situation. She said: “I am waiting until Paul understands me. I can do whatever God wants me to do. I want to obey God unconditionally. But, he seems not to obey God... I think it is necessary to be patient. I will keep some distance from the in-laws, because I feel bad for them.” I prepared a fill-in-the-blank song in order to make a piggyback song based on Jessica’s current emotions. The melody to the song was “T he Londonderry Air. " Jessica showed some nervousness at first, but got more comfortable and focused on the songwriting task as we continued(Table 3). She mentioned, “I like it because I can do everything by myself.” After Jessica completed the lyrics, I performed the song on the piano. Then, Jessica also sang the song. She said, “I’ve got MY song!” and smiled. Table 3 Lyrics of " 67 L} 15'5- EE .2 ‘17 (Confession to God) " Korean English Translation. 23.7 7// Ll Ll 9/ ‘EE’ '3'- ?! ‘3" E} ”l/ Oil. Always when my faith is weaken, 5'} L7 5’ :5; £757 {’2 K/J'Z, God is waitingfor me ELI, L// 77- ,.fszI/ .99/{71731/ f: {13/ 11/7 And, when I feel Ling/y, Table 3 (cont’d). 9:71,} Lat—3. 1,} 9,1 .3: .3. 22%;; fig 17/ God holds my hands Ll $57 3" ;;-I_’_‘r’l—_9f (Pl :5 ”6’ "ll. When [feel always (Wham. 371 1,} 3310/ L} g; 27 #1 K/jz, God isfilling me 17/7} 2/ 274/ —’r7-tr/ X/e/ <3} III/£7, When I am tired and upset. M 0/ 45 W God makes me standflrmlfiy. I notated the song for her in order to encourage her to sing this song when she does not feel happy and healthy. 6111 session (July 3, 2006) When I entered the room, Jessica said, “Could you send me a text message in order to remind to me write in my journal?” She was worried that she rarely kept journals. So, since that day, I sent text messages as a reminder for her to write the journal entries. I asked her whether during the week she sang the song that she had written in the last session. Jessica said that she boasted to her husband and was very proud of herself. To touch Jessica’s feelings in different ways, I provided three different compositions as tools for her to explore her feelings: 1) Beethoven: Moonlight Sonata No. 14, In C# minor, op. 27/2 mov.l, 2) Strauss: Tritsch-Tratsch-polka op. 214, and 3) Tchaikovsky: Piano Concerto No. 1. After listening a composition, Jessica shared her imagination and feelings evoked by the music. I supported and encouraged Jessica to share her feelings in depth. She was more insightful, but still only self-disclosed surface matters. She reported that the Beethoven made her feel down and heavy. The Strauss was powerful and light, so she felt she needed to move forward with God. When she listened to the Tchaikovsky, she imagined being at the seashore. She said, “I imagined... I was dancing at the seashore... and I walked with Jesus... I felt very peaceful and calm.” 36 I also asked which composition matched her current feelings. She mentioned that the Strauss composition was matched with her current emotions because she needed to move forward. Moreover, the Tchaikovsky matched her ideal feelings. She wanted to walk with Jesus in her mind. Jessica spontaneously shared her emotions and events. She seemed to be under stress during the week. We talked about the piggyback song that she wrote at the previous session. 7th session (July [0, 2006) We started to talk about being optimistic. She recalled the moment when she watched an animated movie with her children: Totoroz, the cartoon character, moves into a very old house. The pillars in the house seemed to be almost collapsed. However, the children in the movie smiled and said with excitement, “Wow~ It is old! !” Jessica mentioned that, if she had been there, she could not have smiled and said those words. Rather than, she would be disappointed. When she saw the movie, she thought she would be like the children, being optimistic! In addition, she shared one more story about being optimistic. She mentioned the Sunday sermon about the principles of the faith: 1) the faith through salvation, 2) blessing through living of God’s words, and 3) problem solving through prayer. Jacob}, who was a God’s servant described in the Genesis from the Bible, had a hard time due to his greediness. Moreover, due to Esau", who was Jacob’s older brother, Jacob prayed for a long time to God in order to be blessed. Therefore, Jacob met God. For our life, God sends Esau to us in order to discipline us. Jessica said that we could feel burdened and 2 . . . . . Totoro: a main character in a Japanese animation movre, The Camphor Tree. 3 Jacob: the son of Isaac and Rebeccah, and the youger twin brother of Esau from the Genesis of the Bible. He traded Esau’s birthright for the paternal blessing with soup. As a result, Jacob fled to the uncle, Laban, to avoid Esau’s rage. 4 Esau: the older twin brother of Jacob. 37 bear a grudge against God about Esau. On the other hand, through the appearance Esau in our life, we could be disciplined and could have a chance to experience God. She added that we should thank God for sending us Esau and should pray to have power in order to win the journey. After listening to the story in the sermon, I asked, “Who is your Esau?” Jessica replied, “My children. David and the baby.” She continued: “Because I was not fulfilled by having David, God gave me one more Esau... (laugh). . .When I listened to the Strauss composition, I felt I wanted to move forward actively. I will pray more. I will seek God more and more. It helps me to challenge myself. (From the transcripts)” I suggested that this coming week, she thinks how she could improve herself through the discipline with “her” Esau in God and asked her to share her accomplishments and experience in the next session. 8’" session (July 24, 2006) To warm up, Jessica and I started with singing. She sang with a very soft voice compared to the previous sessions. Then, I checked her current feelings and events. Jessica shared more specific feelings about the situation and her relationships with family members. She showed more insight about her core emotion, which was anger about her laziness. The laziness affected her spirituality, and she described a “spiritual depression” during the past week. For Jessica, the main symptom of being “spiritually depressed” was embodied in the feeling of extreme tiredness. She could accept her children’s demands easily when she was refreshed with spirituality. However, when she faced to spiritual depression, she was easily angered and irritated by the children, 38 especially the first child. Jessica also mentioned that she could not pray when she felt spiritual depression. She could not go to the daily early morning services.5 Moreover, the repetition of this inability to pray also made the situation worse. Jessica mentioned: “I had a hard time with the first child during this week. I yelled at her. I expected her to change her behaviors, so I told her to do this many times. But she did not change. I really feel bad for her.” (From the transcripts) She mentioned that she knew that changing behavior is hard, but she cannot be tolerate the first child’s tendency, especially in her current condition. She expects much of her first child—who is a middle school student and does not have a disability. She seeks this child’s support, both emotionally and physically. Unfortunately, the first child cannot meet Jessica’s expectations. I asked her, “Do you think ‘mind follows behavior’ or ‘behavior follows mind’?” She replied: “I think behavior follows mind, but doing something also calls mind. If I am doing nothing, my mind was not followed. I have a longing to do something... God must have given me the mind, but I need to do something with it. Then, the mind will follow my behaviors.” I suggested that she try to “do” something during this week and to share her experiences in the next session. For songwriting, I asked her to think about her own purpose for creating the final song. Jessica mentioned that she did not know how to approach writing the lyrics at this time, but the purpose of writing this song would be to encourage herself to keep in mind the current decision for the future events. 5 . . . _ _- —- . . . . . Daily early morning servrces ( laud; 7““ ”I ]I Ir. 9] ): In Korea, it 15 common for Christians to go to church early in the morning for services. It happens everyday at dawn, commonly at 5:00 am. 39 9m session (July 31, 2006) Jessica looked pale and had little energy. She did not feel good enough to do much, but she was willing to participate in the session. Because only two more sessions were left, I planned to touch deeper emotions and discuss them with Jessica. The session started with verbal discussion about current feelings and events. Jessica shared feelings about the previous session: joy, energetic, and expectation for both the previous and this session. After the discussion, I asked her to write the lyrics for the final composed song, based on her needs (Table 4). Table 4 Lyrics for the final composed song Korean English Translation If 571 L} git/27 1:1,! 2;} 233,3 .4} g} 0/ £71.77 1 am a chosen person of God. 57 77;?— I’7’/ 215- .X/ EIE 'rI LI/ E/ 27% If) 17/AI He never abandons me even though I am L7- 571,71“ 14,71 51 1,11%}- 9 7L5) EL 72 010/ a sinner. 77.- u (3):on u} x/ U] 7H} ”L07 iii/o] L 7,2 5727/ I am not capable of carrying out His amazing love, So I give thanks to God whenever I stand in front of Him. 0/ Llu ” r0 Ll-Q/ 1.7 23: 557-57 1‘] r3215" God hears my moaning in suffering. £52 1‘] CI 17/ He wants to accomplish his intention through the Ill #9/ .7- H44 0/23: O 5 all 7‘ ’z’ 5’ 1' sorrow and pain in my life. 0/ $— A/ Z/ file/715717 I want to move on with only obedience. HI 0 37 25—31“ 67 0 52’ L} O} 7} Z] {I 6‘} 17/ [ am happy if [ would be used for God ’5 purpose. 272210 ..__5_ e "/o/Oi—éle’é/ ages/(y 519%? If 7/1IECIII/ Ill 97;; 3 £6,77— 2 I”IV/3 OI O’IE '3 F O’CIIfl Through my life, if I can glorifi/ God, ICIO OI {3] 67 ,3 I;I-§« g: 77 0/3717 II 72 fl £17177 [ want to live with the joy of God forever. 10m session (August 7, 2006) & interviews for both participants Using the lyrics that were composed in the previous session, Jessica and I rhymed the lyrics rhythmically (Table 5). 4O Table 5 Lyrics of" I” (If! (The Chosen Per son)” Korean English Translation l. L} 57L ft: '1/7// L-‘II )I Ill-T0 -x/u LII '2/7/C)[//OIOX/7}L 'IH/IIII’I17‘7L7] L/~ 5/L’1L107- IA/IEZI- lit/oi f. (Ho/2/ 7’5 5.1-I0I/ .1I {II/BI J? "I 5.” - )U/OT—(I) riéZA/‘llf _;Z_L‘:/ ”(t/LT 2LI 2. IIB/ 115 i675;- LE.EEEEE£E72”0H 533 21 4': sew oi ”L707 7} 2] 0/67177 E" :2 E 9/ new/E ELIE... <5E> EEEEEEEEEE zIEEEEEEEEEEEEEE- II 27/ 11’ CI 17/ If .7!!! Lil- I-I/ If ‘3" f! 31 +5? :4? 7I 70/ til-III {IEII/l 1. I am the person who is chosen by God He never abandons me even though I am a sinner I am not capable of carrying out His amazing love I can only confess and thank Him 2. God hears my sorrows and pains He accomplishes His plan through the sorrow and pains in my life I would like to obey in order to be close to Him If I would be used for His intention. I am happy, I am happy If I can glorifii God through giving my life I am happy, I am happy I live to rejoice God forever I had observed Jessica’s ability to compose a melody with her voice in past sessions, so I suggested that she sing and create the melody. By listening, I made notes on the staff paper. She hesitated to sing and created a melody for a short time; however, with verbal encouragement and supports, she enthusiastically completed the melodies of the song. She modified one melody after humming it by herself and suggested a new melody and rhythms to me. After the session, I had interviews with both Jessica and Paul. They both agreed with the need for this kind of intervention for parents of children with disabilities. 41 CHAPTER FIVE Results & Discussion Based on the session description which was described in the previous chapter, specific responses and events of each participant, including the therapist were described in this chapter: 1) The primary participant’s self-esteem issue, resistance, feelings toward family and other people, spirituality, 2) The therapist’s feelings of the intervention and the participants, 3) The secondary participant’s aspect about the family and other people. The Mother (Primary Participant) Low self-esteem. During the interview, Jessica reported that she had low self- esteem. “I was excluded from play with peers when l was an elementary school student. I don’t know the reasons why they did that to me. Because of that, I lost confidence... Also... I was not satisfied with my appearance... The low self- esteem has affected on my relationships with others.” Her low self-esteem was related not only to the mother’s actions in the past, but also to her parents—in-law. It was difficult for her to express her opinions to them. They expected her to obey them like a typical traditional model of a daughter-in-law. She mentioned that, especially after giving a birth to David, she was withering. She thought that she could accept a child with a disability, but it was hard to accept her son’s disability, even though she had an abundant of love, sympathy, and tolerance for him. Her son’s disability affected her identity about herself. However, she was improving her self-esteem through looking for her image in God’s sight. 42 During an interview, I asked questions to check her current thinking about her self-esteem: Sunny: Do you still have the low self-esteem that you had in the past? Do you think your self-esteem is improved? Jessica: You know what? . . . I can reveal myself and even my weakness to God. He was the only true supporter and listener to me. I can be confident because God is always with me. My own negative thinking need to be gone and changed. . . I can smile now. . . because I have my image from the heaven. I don’t understand why I had strong negative image. . . I was pretty when I was young. . . (laugh). . . I thank for God everything. As she mentioned, she currently wants to recognize herself as an image of God, so she tries to be view herself positively. However, she questioned herself: June 11, 2006 . . (omission). . . I think that I was loved enough by my parents and especially by my grandmother. But, I often see myself as withered and with no confidence. Is there something wrong with my personality?. . .(omission). . . I wish that the aroma of Jesus Christ is revealed through me. The source of Jessica’s positive self-esteem building seemed to be identified. However, it was a challenge to keep her positive self-esteem as she faced the everyday life challenges. Based on one of Jessica’s music therapy goals—To express the feelings in constructive ways, the session was planned to create lyrics about her emotional feelings. For the first step for songwriting intervention, Jessica was asked to write lyrics about 43 herself. The written lyrics represented her from the past to the present, including events in her childhood, the disclosure of her child’s disability, and her confession of faith. The lyrics that were related to her childhood experiences convey how her low self-esteem was constructed through natural characteristics, peer groups, and negative self-image. Counteracting that, the significance of her relationship with God represents a possible means to improve self-esteem (Table 6). Table 6 Lyrics of " {5:} i Li (A girl) ": part 1 Korean English Translation Ll/éy’ 3,’ 0/,2 75531.9 {#591 L77} 5053,75: LI 5}. There is a girl who is shy and introverted ” fills—"I" 0/ r3} ’5‘! I515? 7/ {92’ I312?“ All ‘é/DCI The girl is demure to have as a :1: L7,. "’—— ”‘ L/ 1:}. nickname, "unripe bean " {171:5 0/, ’1 CI (321—0 510/1115: 5315‘} Z/E {15/11 The girl repressed her friends ' injustice 4:95! {I}, 11 5,1 235!!! 1g— * 21,1 2;}; A 177} and kept this to herself {12:3 275/ [0 17/01] 0,7: ,L-j g at '1 H TE] A 1,145] The girl was changing after she met 35/157! 7/ A] {,1 2311,}: L/ 1;,1 God in her teenage dreams. Egg; 8/ 7:}; *1/11 17 :3 5/17} 7 Tun/.7 AL] 5,1 35;} The girl spent time with God 's love 951 z»; o ._ 2.71 355/3213? 7 L1 3,1 557/” and passion, that she did not understand £13313; L/L-,1_ exactly 5‘} 27, D} However, 25 ”/51 51 g ,5}: 7k?- E// (:5 W} 0/ El 7} -715; .31. I: 53:]. There was afeeling that something was LL: g1.“ missing in her latent personality... 1 3, 175—6 --1. ,4; 1,115] [7350/ 3537353115115 The girl always needed more self— confidence. 31; L/ L} The girl felt inferior about her self: 9/3: 0// 10,.) ‘l- E 0/3331; III/7} {35' (231—, Not only the outlook but also nothing to proud 9/3, u 5,5 oiL/ .75-, E :557 15/5/3 0 :255} ,7. 0/57 0f/70rself :1, 0 / .1‘2’1717/0” The girl could not be confident in front of .1 5A 51/ 55 55:55- 2/ 5 «:5 15/75 555 5:5. PIOP’I Jessica expressed a little about her emotions that were related to the discovery of David’s disability. Even though the situation pulled her into the crisis, she could move forward with positive emotions from God (Table 7). 44 Table 7. Lyrics of “ {I} 5.5 if (A girl) ": part 2 Korean English Translation -1 .1“. L—77I E/ XI BI... The girl was maturing... {If—‘32.: 6‘IJZ 0/0/55 '5—I.'/// 5/ 1’.’ .3 17/ CI. The girl was married and has children .mh5555mwefiIwe 55575w9555555555 £555 LIA] - (gr/[(3’- "71:1.I L/ 5,1 :ZE/L} :5 — 3-01/4/ 2L1..,1 CI .755? 7u+w17eeeweewe ,(f'II' nl._. 0 ADI (lei/f”. 77. 0501/5; til-{:75} .7—I 31.3.3 11.1 II/ .5- 6‘} /// £1 53?, E} 17/ 5} 555-75555 But, a child was very sick... Through the child, the girl experienced Sorrow, pain, discouragement, fear... On the other hand, The girl found the meaning through the relationship with God Love, faith, hope, grace... These findings in God are amazing! Finally, she developed a positive self-image from God’s perspective. She tried to develop and improve her self-esteem through strong connections between not only God and herself, but also herself and other people (Table 8). Table 8. Lyrics of “ {I .4: L7 (A girl) "2 part 3 Korean Old/illi- +‘- ’E’iI (EM/l 6I—'_-.- {I} ”0- ”I” 7Ii/1AH" —‘-.’- ”‘3’ *1/7/ OI IL/L‘I. 3,39, 0/131?" 1% ZlL-I lA/ta "'4’ 555.3 .7: 211‘: III—7 {I "I 5177/ 2/ 5555555525525555 555555555 15‘}le 3,4 9501/ #1351153 L- 5} 350/ 5.734] 32,,‘0/ J'g 37,15,747] arr/TE 31-10 71 01 x/ -_1}-__1- - ,1} 331-33. .7110” CW2}? - 0’: ‘ 5171.5 EA. 3111-; () 0 English Translation As far as the girl in God, The girl is not the girl who is shy and has narrow mind. The girl cannot pass by the pains around people The girl confesses that God gives her the fullness of the heart to accept them As far as the girl in God, The girl becomes the girl who receives God's love The girl becomes confident in front of people even though the life is the exhausting and challenging environment 45 Table 8 (eont’d) 1 5":— LI i; OIAII L‘I 0/ ”(3‘ 5r) 315: Al {355} f The girl is dignified rather than shrunk 15¢ gt gr 1,; 1:) anymore :1 E/JZ, Eff-3‘ :f‘ :3 5'75 ,5?" i 7/ if,” 0/ 5].? LI CI. The girl hasjoy to smile always .1 5’: L75 ZS‘ILI 'E,l//// KI 53-1-541- ”7 94’5” The girl is.... HIE LI (.3,’ L/ CI. Myself who receives love from God This song would be her reminder to look back on the past and move forward. In addition, she expressed her inner prayer as the song lyrics. To enhance and support for the expressed prayer, she chose a song called, “L1 '97] E 7l‘i} 5i (Idol (Be still)” as the slow background music for the lyrics she wrote. It is a slow song in A major composed by Stephen Hah, who is a famous Korean pastor (Appendix B). The lyrics were based on the Bible, Psalm 46 (Table 9). Table 9. Lyrics of “ L797? 7I E} 5‘ 5310/ (Be still) ” Korean English Translation 5} LI big. 70— 13/ 9,1 .317 til-.577 7]- sip/1:)” God is our refuge and strength, ,5ng55) -70— E/Q/ £513} 3.: .3- o/ x/ e/ And ever—present help in trouble “Be still, and know that I am God," LIiIIL—LE 7I {I (II 210/, *7“ 7I (III/551%] ELI/"I LI I will be exalted among the nations, 9! IéII’I AI/ VII 7/‘27? "II. 5757/“ 33:" 17% {#2 HI LII I will be exalted in the earth. ” ”I 53* ‘3 LI IJI LII "I “I II I love you, my Father {II ‘3"??? LI EI LII :9 3‘ ' 5I‘1I l worship you with all my heart ”5.735 {5‘ LI EI “II-‘7: SJ 8/: .E I declare you, Jesus Christ 77: ‘E/ 53 15’ :9“ 7/ EI£7I ”I I am expecting you coming back These lyrics are the confession of the Israelites that God is their God. Jessica wanted to confess like that. She expected God to be her personal God in the life. She chose the slow tempo, only one instrument—piano—and a female voice to perform it. I suggested that I would play the piano and Jessica would read the lyrics. When she read “But, a child was very sick,” she took a deep breath. After the performance, she immediately 46 showed her satisfaction with smiles, but also showed the impact of the lyrics with tears. This song was the first brick in building her “new” resolution and finding the “different” aspects of herself during the treatment period. During the intervention, she said her self-esteem was affected by her achievement. She was proud of herself that she could create lyrics and music. In the post-session interview, she mentioned, “I felt somewhat reluctant to participate, but I was really proud of myself. I’ve got my song. I’ve had my confession.” Moreover, she said that having a listener who tries to understand her without judgment makes her feels more comfortable and safe. The songwriting intervention helped her to remember and be reminded of God’s support in her life. In God’s grace, she could find herself. The songs that Jessica composed were a tool for improving her self-esteem and keeping the positive self-image. Resistance. During the early sessions, she showed strong resistance to participation. The resistance was observed from instant verbal responses to non-verbal— physical—refusal to keep participating in the piano improvisation activity. Some verbal responses were followed as: Session 2: During writing the lyrics, “I don’t know how to write.” “I cannot do this.” “I am not comfortable doing this.” “No homework, please.” Session 3: During participating in the piano improvisation 47 “It’s very embarrassing.” “No. . Even though she expressed her discomfort for the activities, she completed the lyrics for the first song and attempted to participate in the piano improvisation It was necessary to discuss her resistance since it was identified on the surface level and to see she could recognize her resistance. During the pre-intervention interview, I asked Jessica about taking a risk and challenge. Sunny: What did you feel when you were asked to play the piano improvisation in the last session? Jessica: (giggled) . . . It was very hard for me . . . I liked to play the piano, but I felt very uncomfortable improvising something on the piano without direction and structure. Sunny: Did only “no direction and structure” bother you? Or anything else? Jessica: (thinking); . Nope. . . nothing else. . . Sunny: Let me, ask you one more question. Was your feeling related to the music activity itself, or your personal innate feeling about something or someone? Jessica: Someone? Sunny: It can be me, your husband, David, your children, or other people. Jessica: Um . . . (pause) . . . THAT can be related to the condition of David . . . I might want to avoid additional feelings of burden. . . Maybe. . . (thinking). . . Sunny: The condition of David? 48 Jessica: Do you know? . . . Um. . . In my mind. . . there is no space to penetrate something. . . [don’t know. Sunny: . . . In fact, I was concerning about your responses. If you felt that much burden about the sessions or me, I needed to decide whether I keep doing this. Jessica: Oh, no. It is not be related to music therapy or you. Sunny: That sounds good to me. (smile) . . . So, how do you want me to approach you in the music therapy session? Jessica: Honestly . . . I am feeling more comfortable talking rather than performing musically. Sunny: I am happy to hear that. You said several times, “I cannot do this,” I am not comfortable doing this” . . . But, one interesting thing is. . . you have completed the tasks even though you kept saying that. Jessica: Did I? (Laugh) Sunny: (Laugh). . . Please let me know if you feel too uncomfortable to participate in a task. Jessica: O.K. (Laugh). As she mentioned, her resistance could be related to the condition of her child, and her strong responses seemed to be associated with transferenceé process. Therefore, her resistance might be wired with the condition of her children, some degree of a struggle feeling burdened by the music therapy task, to her habit of saying negative verbal expression, or to feelings toward me. Based on her replies, the other possible reason for 6 Transference: the way of unconscious shifting that a client projects relationships with feelings and fantasies directly to a therapist (Hanser, 1999). 49 her resistance may be the style of Korean education. Kim (2004) discussed the Korean education system in his book, Camouflaged School. The Korean education did not vest the value of developing individual autonomy and personality and improving the appropriate fields and majors based on an individual’s abilities. Compared to the style of US. education, which emphasizes group discussion or free talking, most Korean education follows specific guidelines and usually teachers have high authority. So, the information flowing is from the teachers to students. Generally, teachers provide specific directions or “absolute” ways for a task. Therefore, Jessica was not comfortable in expressing her feelings in an “unstructured” environments, or with the improvisation. Feelings toward the child with a disability. Jessica mentioned She had a difficult time after learning about David’s disability. She reported she could not even describe her feelings in words. She considered leaving David’s care to a professional service for those with disabilities. She thought about giving David up. However, she did not do that because she was concerned about other people’s judgments. Currently, she often feels the limit of accepting the child’s repetitive words and behaviors. Sometimes she yelled at him. She shared that she was very happy when David went to a school camp for 3 days. She mentioned it was the special “vacation” for her. She has a desire to enjoy the private time and silence in the house. She had considered suicide due to the destroyed relationship with the parents-in-law and her feeling of heaviness. During the sessions, she tried to find David’s abilities rather than disabilities. One day, when she was sleeping, David took care of answering phones by himself. She felt that this was praiseworthy. 50 During the period of the study, all of Jessica’s children had a summer vacation. Because she spent time with the children at home everyday, she felt lack of sufficient energy to handle the kids. She expressed her feelings on the journal entry. July, 18, 2006 David wants to sleep with his grandfather (Jessica’s father-in~law), so he goes to the grandparents’ house. My house without David is so quiet. Instead of David, I have a struggle with my first child who does not have a disability. Do I expect too much of her? It seemed that I needed to do many things for my family, so it makes me struggle. Yesterday, I spent with family at home for the holiday, but I was the only one who was very busy. I want to escape from the children and all situations. Today. . . She was seemed clinically depressed. She expected the first child to help her by taking care of the sister and the brothers. However, this child could not meet her expectation. For the summer break, she felt a heavier burden on her shoulders and wanted to escape from the environment. The music therapy sessions provided a special time that Jessica could enjoy away from her children. I encouraged her to look at David positively. Jessica also tried to endure her feelings toward the child with spirituality and to consider the challenges as the positive ones. Depending on the child’s behavioral problems, her feelings fluctuated. The possible reason for the fluctuation might be the Korean social norm, which is focused on normality and collective. She sought to look at David as a person who God made rather than to focus on David’s disability and behavioral problems. 51 Feelings toward the spouse. Jessica admired how Paul was able to face David’s disability. She thanked God for his being a normal person and serving David with gratitude. However, Jessica sometimes struggled with Paul’s indecisiveness, which he said was influenced by his parents’ stubbornness and their personalities. Jessica’s negative feelings toward Paul’s indeterrnination seemed to be bothering to her during the study period, due to the conflicts she was having with the parents-in-law. The journal entry showed her feelings. June 18, 2006 After the Sunday that was challenging, the atmosphere in my family became calm. I was disappointed at Paul who cannot decide something with confidence. However, it is obvious that victory is ours who God always be with. In addition, during the post-intervention interview, she mentioned that Paul would save his mother if both Jessica and her mother-in-law would be drowning. After having the third child, Jessica asked Paul to have a vasectomy, but he refused. A few months later, she got pregnant with the forth child. Even though for most of struggle, Paul was with Jessica, she bore a grudge against her husband for this. She poured out her feelings toward the husband. During the interview, she mentioned, “He often does not put his stuff in the proper place. I gave up expecting him to fix the behavior because I want to be more emotionally comfortable. He helped me when we had only two children, but now he does not help me. He helps me only when I feel bad or extremely tired. What I want from him is to spend time with his children and replacing his stuff on the proper place... But, now I am filled with spirituality, so I can do all.” 52 Paul did not put the “stuff” back where he got it. Jessica expected him to help her, such as playing with children and putting things back. Jessica complained about Paul’s introverted personality and his deliberate care in speaking. She expected him to more clearly express his feelings and what he was thinking. As the religious issue related to the parents-in-law arise, Jessica’s feelings toward Paul was expressed more directly. During the verbal discussion in a session, she said: “I want to exchange my personality with Paul’s. He is irresolute. .. I can understand Paul’s mind, but I want to be separated from his parents... I need people on my side. Today I am very upset.” Overall, the music therapy activities did not influence directly the emotional changes of Jessica’s relationship with her spouse, Paul. However, either the conflicted situation with her parents-in-Iaw or the rational verbal discussion about the spouse during the intervention might have had an affect on Jessica’s feelings or her tendency to keeping feelings inside, only revealing them on surface level. During the post-session interview, she mentioned: “During the session, I was realized that I need to talk with Paul. We spent a long time to talk about my and his feelings and issues.” It also provided Jessica a chance to communicate with Paul verbally in order to express her feelings about the situations and Paul. Feelings toward the parents-in-law. Jessica could understand her mother-in- law’s behavior rationally, but not emotionally. She spent quiet a long time under her mother-in-law’s restricted authority. When David was born, her mother-in-law visited a female shaman to ask about him. The shaman told her that he would be fine as a normal 53 kid when he became the age 10. The mother-in—law believed the words, even though she is also a Christian. Recently, her mother-in-law observed that David went to the restroom by himself, and then told Jessica about the connection between the shaman’s words and David’s behaviors. Jessica was really disappointing her mother-in-law’s faithlessness toward God. However, her mother-in-law functions as a bridge and buffer in the relationship between the father-in-law and Jessica’s family. She advised Jessica to obey the father-in-law’s words, even though she understood what Jessica was thinking. To Jessica, her father-in-law focuses on his own honor and authority rather than his grandson. He strongly insists on attending the same church with Jessica’s family. Finally, he almost threatened that Jessica would have to move out unless she attended his church. Jessica could not be emotionally connected with him. Her feelings toward her father-in-law were expressed by this personal journal entry. June 15, 2006 There is a spiritual conflict in families. It is hard to deal with the father-— in-law who thinks his own prestige and authority first rather than his grandson. As the conflict worsened, Jessica showed significant distress over the situation. Moreover, at that time, all her children started the summer vacation, so Jessica’s stress was getting higher. She tried to find solutions through her spirituality and to be able to distinguish conflicts toward her own family in a rational way. She decided to speak up about the issue to express her viewpoint and to support the needs of the family. The composed songs were the “reminder” of Jessica’s decision and basic motivation for living even though the lyrics were not exactly describing the solutions for the issue. During the post-intervention interview, the mentioned them to be like a close supporter. 54 When she sang the songs, she could get clear about situations and how to respond to them. Feelings toward other people. Jessica showed a different tendency when thinking about other people, including 1) people in the similar or same condition with her, 2) people who have unreasonable sympathy for her, and 3) people who sincerely support her. She believed that God called her as a helper for people in the similar or same conditions as hers. This was the biggest reason why she participated in this study. She wants to let them know how God uses her with His will. Jessica showed strong discomfort around people who have the “unreasonable sympathy” for David and her. During the post-session interview, I asked Jessica about the view point of other people around her. Sunny: How do you view the way other people view your situation? Jessica: I do not like other people’s unreasonable sympathy for me and my child. They just feel sorry for us even though they do not know whether I feel fine about the condition. I often cannot appreciate their true and deep sympathy.” However, she tried to change their viewpoint. She believed that they talked about the disabilities, even though they did not know exactly what they wanted to say. Jessica feels thankful for people who support her and truly care about her. These people pray for her and the family. Especially the people in church are very supportive and helpful. They take care of David with unconditional love from God. They sometimes encourage her to keep her faith in God. She is often touched due to their true love and care. 55 During the verbal discussion, she identified her true supporters who she had not previously noticed at the same degree. Sunny: What or who is the positive supporter to you? Jessica: My faith... family... good relationships... I am very supported by the pastor, deacons, other church members. She listed some who she feels free to ask advices or counsel. Therefore, she expressed her emotions not only to God in heaven, but also to those supporters on the earth. Spirituality Jessica’s spirituality significantly influenced her emotional changes and resolution. At the beginning of the intervention period, I tried to avoid talking about or sharing spirituality; I preferred to focus on music itself. However, gradually I realized that the spirituality was the most important aspect for Jessica, because almost all of her perceptions related to children’s disabilities and relationships were based on spirituality. I thought that, if appropriate services cannot be provided for Jessica, it is important to support her source for energy to live. Therefore, the direction of the songwriting intervention aimed to facilitate her spirituality for improving her emotional and social relationships. According to the literature, spirituality positively supports the quality of life for families of people with disabilities (Poston & Tumbull, 2004; Aldridge, 2004). Zea, Quezada, and Bel grave (1994) mentioned that faith in God supports the positive understanding and acceptance of disabilities. In addition, Sevensky (1981) stated that, for people who have disabilities, religion provides three benefits: “a framework to make meaning of illness, practical resources, and hope (p. 745).” Poston and Tumbull (2004) 56 mentioned that families of children with disabilities expect the religious community to meet their three needs: I) socially accepting their children, 2) supporting their spirituality and emotions, and 3) supporting the spiritual growth of both their children and themselves by participating in religious activities, including services. These benefits and needs of the family of children with disabilities also can be applied to Jessica’s family. She was looking for the meaning of life with David’s disability in the family, and she had a longing for hOpe consciously and unconsciously. She developed her practical resources to deal with David and his disability through prayer. Magaletta and Brawer (1998) mentioned, “Prayer may be the client’s ongoing effort to seek healing from emotional and/or physical distress, or it may occur as the result of a prescriptive or encouraging suggestion given by the therapist (p. 323).” Through the music therapy sessions, she had a chance to pull out her inner prayers in order to create the constructed lyrics for her own sake. Then, the prayer became an expressive form (Aldridge, 2004). The music supported the meaning of the lyrics to create mood and atmosphere and evoke deeper emotions. After I read the support in the literature, it was clear to me why Jessica wanted to attend the “new” church, even though the parents—in-law were strongly opposed to it. She needed an environment for acceptance of her child without judgments or prejudices. She also needed spiritual and emotional support her from the pastor and deacons in church. Moreover, she wanted to participate in religious activities not only for her spiritual growth to handle the condition, but also for David’s spiritual growth. Therefore, spirituality can play an important role in the quality of life for families of children with disabilities. During the difficult times, practical resources in religion bring meaning and 57 strength, as well as emotional and practical support, for the family. Based on her current spirituality, two songs were created: “Confession to God” and “The Chosen Person.” “Confession to God” is a piggyback song. I prepared two different kinds of songs so that Jessica could have a chance to choose. One was an exciting and upbeat song, and the other was a serene and slow song. Jessica chose the sedate song for creating the piggyback song. The original song was called, “the Londonderry Air, " which is an anthem of Northern Ireland. When I played this melody on the piano, Jessica liked the touching melody. She emotionally related to the mood created by the melodies and harmonies. When she wrote the lyrics, she struggled to complete the task and to express her emotions. However, after a couple of minutes, she filled in the blanks without much difficulty (Table 10). Table 10. Lyrics of“ 5‘} blip L :9 93E _ L7H” (Confession to God)" Korean English Translation 07 11/ L} 149/ t; F" {3 ‘3] 0‘ 9:} [fl/0”. Always when myfaith is weaken, 25/ ___L__}U L’ 3’: 7/ __E/l£____ 4734/41! God is waiting for me 55 i// 7}- .jfihy/ s7___/-,‘, Eli] -: Z! [05’ And, when I feel lonelv, 0/ _L__} 513 L49]- 4: <3 5!— C “177, God holds my hands L} gal—3‘ {147. a"? 0. 5’ 251-; 5"- II// 0//, When I feel always exhausted 67h ,l__._L-_’0/ 14-5 - :2__‘____//—,—’— K/jz, God is filling me Ll/ 7} x/ x/ A/—§~ L-f