5....» .VL). . 5‘ ' '.x. .u 1 Bo...‘ I‘\aPI-‘.I . . 31p. . ....1.r.v . . .0. APIQI . 0). 5%.... .2T .. “. 1...... In. . ”WI-.179 1 I. It, . vv v lul‘: 1217‘... L 7. .u 1‘15 :1!!c4..e:\3:vlfiv.)1uv vtxtll EC: litl I u . 72...; v {I . o .17 0V... L..V .1! I, 6 f .. .3. . u..|ou.f. O- ‘xt ‘utl .c. I [Io~' C , TOT. I .. Av... : 11'! V II}. '1‘)... u‘tuMqum‘megg a. . If: 1. 0.1-; TAT RS Illllllll lil’llllllllll’lll L 1293 00787 5242 L'B’iii1i‘t.! {Mlchlgan State l University if; Vt This is to certify that the dissertation entitled PHYSICAL THERAPY AS COMMUNICATION: MICROANALYSIS OF TREATMENT SITUATIONS presented by Kerstin Margareta Ek has been accepted towards fulfillment l of the requirements for Ph. D. Education degree in Major professor Date Sept. 20, 1990 MS U is an Affirmative Action/Equal Opportunity Institution 0« 12771 PLACE IN RETURN BOX to remove this checkout from your record. TO AVOID FINES return on or before date due. DATE DUE DATE DUE DATE DUE —_l==l MSU Is An Affirmative Action/Equal Opportunity Institution cmmm: -fi. PHYSICAL THERAPY AS COMMUNICATION: MICROANALYSIS OF TREATMENT SITUATIONS BY Kerstin Margareta Ek A DISSERTATION Submitted to Michigan State University in partial fulfillment of the requirements for the degree of DOCTOR OF PHILOSOPHY Department of Teacher Education 1990 _ r70 4 n, «9 ABSTRACT PHYSICAL THERAPY AS COMMUNICATION: MICROANALYSIS OF TREATMENT SITUATIONS BY Kerstin Margareta Ek A microethnographic case study was carried out to learn about how patients and physical therapists interact. A patient with a "frozen shoulder" was followed through treatments at an outpatient clinic. Data collection included participant observation, videorecordings of treatments, viewing sessions with participants, and interviews. Videorecorded material was analyzed to answer the questions "What do a patient and a therapist do and say during treatment? How do they talk with one another? What psychological and pedagogical aspects can be inferred from a content analysis of their talk and actions?" Phases of "hands-on" and "hands-off" alternated as a "treatment dialogue" was interwoven with "conversations." "Treatment dialogue" consisted of the therapist's verbal and physical instructions and feedback and the patient's inaudible physical responses and vocal comments. "Conversations" were primarily initiated by the patient. With the two dialogues happening simultaneously, the use of different styles of talk, and of different interpretations of what was going on, accounts were given for why moments of confusion occurred in spite of the patient and therapist Kerstin Margareta Ek being familiar with one another and the treatment routine. Patient’s talk about her dilemma, was interpreted by me to be important for recovery. Her talk turned the therapist into a listener, and therapy into the act of listening. Aspects of teaching and learning were explored. Instances of non-learning illuminated the different perspectives the patient and therapist reasoned from. This study questions the relationship between a patient and a therapist, what is therapeutic about treatments, and how knowledge is gained. It argues that treatment situations need to be conceptualized as jointly co-produced by the patient and therapist moment by moment in real time, and as occasions where knowledge is created. ACKNOWLEDGMENTS Many people have been helpful during the course of this study. The members on my dissertation committee, Drs. Charles Blackman, Doug Campbell, Frederick Erickson, and Susan Florio-Ruane have, at different points in time and in different ways, provided professional advice as well as personal support. This is deeply appreciated and will always be remembered. My friend and colleague Gunn Engelsrud I thank for the interest she has shown, for the challenging discussions we have had, and for her friendship. Raija Tyni-Lenne and Lena Nilsson-Wikmar, my colleagues at the Department of Physical Therapy Education, Karolinska Institute, Stockholm provided support at critical moments. My friends Gun Steneroth, Kerstin and Jan Nordstrom, Kim and Joe Andrejzcuk, my brother Mats Ek and his family, I thank for their trust, encouragement, and hospitality. My mother, Marta Pettersson, has been significant to my work in her listening, in questioning, in never losing her dignity in spite of serious illness. My daughter, Gabriella, has been just as important. I thank her for reading parts of the manuscript and commenting upon it, for iv telling me when it was time to finish, and for bearing with me. Finally, I offer words of appreciation to the patient and the physical therapist of this study, who enabled me to learn about research, to discover essential features of therapeutic encounters, and to begin to understand the dynamics of face to face interaction. All my knowledge of the world, even my scientific knowledge, is gained from my own particular point of view, or from some experience of the world without which the symbols would be meaningless. The whole universe of science is built upon the world as directly experienced, and if we want to subject science itself to a rigorous scrutiny and arrive at a precise assessment of its meaning and scope, we must begin by reawakening the basic experience of the world of which science is the second order expression. Science has not and will not have, by its nature, the same significance qua form of being as the world we perceive, for the simple reason that it is a rationale or explanation of that world. (Merleau-Ponty, 1962, p. viii) vi TABLE OF CONTENTS List of Tables List of Figures List of Appendices EEQIIQN_I= INIELLEQIHAL_BQQI§_QE_IHE_§IHDX CHAPTER ONE: THEORETICAL FRAMEWORK Assumptions about Physical Therapy Views of Physical Therapy Definition of Experience and Reflection Concepts of Communication Shared Communicative Competence Context Analysis Contextualization Cues Conversation Analysis Communication as an Overriding Principle in the Study of Physical Therapy Practice The Purpose of the Study The Organization of the Thesis CHAPTER TWO: REVIEW OF THE LITERATURE Part I: Overview of the Physical Therapy Profession Background of the Physical Therapy Profession Models of Physical Therapy Practice The Hislop Model of Pathokinesiology The Psychobiological Adaptation Model The Physiotherapy Model Similarities and Differences between the Psychobiological Adaptation Model and vii Page xi xii xiii [.0 P'Htfl osmcooamcnuiw 17 19 21 23 24 24 30 30 32 33 the Physiotherapy Model 33 The Need for Empirical Studies 35 Psychosocial Aspects of Physical Therapy Practice 37 Communication as a Treatment Technique 44 An Existentialist View of Physical Therapy 46 Summary 47 Part II: The Shoulder Joint 52 The Architecture of a Joint 52 The Scapulohumeral Joint 53 The Movements of the Arm 54 Classification of Movements 56 The Muscles 56 Function of Muscles 57 Part III: The Diagnosis of Frozen Shoulder 58 Symptoms of the Idiopathic Frozen Shoulder 60 What Causes a Shoulder to lose its Mobility? 61 Personlity Studies 63 What is the Most Effective Treatment? 65 What is the Effect of Physical Therapy Treatment? 66 Summary 69 CHAPTER THREE: THE STUDY: ITS QUESTIONS AND METHODS 72 Questions of the Study 72 Justification for the Study 73 Restatement of Purpose 74 Original Research Questions 75 Research Questions that Emerged During the Study and During Analysis 77 Methods of the Study 80 Choice of Physical Therapist 82 Choice of Setting 83 Choice of Patient 84 Data Collection Procedures 84 Categories of Patients 88 The Patient in the Study 91 The Physical Therapist in the Study 94 The Medical Center 95 The Physical Therapy Setting 96 The Purpose of Videorecording Treatment Sessions 98 How the Videotapes Were Made 102 Viewing Sessions with the Participants 106 viii Phenomenological Approach to Data Analysis 108 Analytic Viewings of the Tapes 110 Transcriptions 114 Analysis of the Transcriptions 120 Videotapes Selected for Detailed Analysis 122 Issues of Trustworthiness 125 Summary 129 EEQIIQN_II= DE§QBIEIIQN_AND_ANALX§I§_QE THE_EINDIN§§ CHAPTER FOUR: DOINGS AND TALK DURING MANUAL TREATMENT 1 3 1 Part I: The Doings of the Patient and the Therapist 131 Phases of Stretching ("Hands-On") and Phases of Recovery ("Hands-Off") 133 Stretching as a Therapeutic Technique 137 The Critical Moment During the Stretch 142 Characteristics of a Hands-On Phase 145 Characteristics of a Hands-Off Phase 145 How a Session Comes to be Organized Around a Specific Treatment 146 Part II: Talk During Manual Treatment 150 Time of Talk and Silence 151 Categorization of Styles of Talk 154 Therapist Talk: Its Styles and Functions 159 The Form of the Therapist's Talk 165 Patient Talk: Its Style and Form 169 What Does the Patient say About her Shoulder? 170 Conclusions about Therapist Talk and Patient Talk 173 The Theme Brought up most Frequently by the Patient 177 Different Interpretations of What is Going on 186 Summary ‘ 190 CHAPTER FIVE: EPISODES OF CONFUSION 193 How Participants Arrive at Endings and Beginnings of Hands-On Phases 193 How Episodes Have Been Selected 197 ix Criteria for Inclusion 199 Description and Analysis of the Episodes 201 Episode 5:1/Analysis E 5:1 201 Episode 6:1/Analysis E 6:1 205 Episode 6:2/Analysis E 6:2 211 Episode 7:1/Analysis E 7:1 215 Episode 7:2/Analysis E 7:2 219 Episode 7:3/Analysis E 7:3 222 Summary 224 CHAPTER SIX: PHYSICAL THERAPY SESSIONS AS EDUCATIONAL EVENTS 230 Psychological Aspects of Physical Therapy Sessions 232 Aspects of Teaching and Learning in the Physical Therapy Session 236 What the Therapist Needs to Learn and Wants to Teach 240 What the Patient Wants to Learn and Tries to Teach 241 Summary of Teaching and Learning Aspects of the Physical Therapy Session 246 Instances of Non-Learning 247 Questioning the Goals of Physical Therapy 253 EEQIIQN_III: QQNQLQEIQNE CHAPTER SEVEN: CONCLUSIONS AND IMPLICATIONS FOR THERAPY, RESEARCH AND EDUCATION 255 Summary of Findings 256 Issues Illuminated in This Study 263 A Second Analysis of the Physical Therapy Literature 270 Implications for Therapy 274 Implications for Research 278 Implications for Education 281 Epilogue 285 REFERENCES 287 APPENDICES 296 Table LIST OF TABLES Appointment Times and Mode of Recording Date for Viewing Sessions, Videotape Being Analyzed, and Participant Distribution of the Number of Turns Occurring in all Hands-Off and Hands- On Phases Distribution of the Number of Functional Units Occurring in all Hands-Off and Hands-On Phases Categories of Styles of Therapist Talk and Patient Talk Locations of the Utterances by the Patient Regarding the Present Condition of her Shoulder and the Page 87 88 152 152 156 Therapist’s Responses 180-182 Estimated Amounts of Comments by the Patient and the Therapist that are of Positive or Negative Character Distribution of who Takes the Initiative to Start a Hands-On Phase and the Type of Initiative Overview of Episodes of Confusion. Identification of who Displays Readiness to Work and the Issue of Disagreement that Contributes to the Confusion xi 189 196 199 Figure 3.1 LIST OF FIGURES Treatment Area, Physical Therapy Unit Distribution and Duration of all Phases During Manual Treatment 5/3/84 (Video X) Style of Talk and Type of Activity and Their Occurrencies. Locations of Episodes of Confusion According to Phase Working Position, External Rotation (Video X, Hands-on III, 5/3/84) Working Position, Forward Flexion (Video X, Hands-on I, 5/3/84) xii Page 97 135 158 209 209 APPENDICES Appendix A Date and Number of "Steps on Ladder" B Physical Therapist Consent Form C Physical Therapist Consent Form for Video and Audiotaping D Patient Consent Form for Observation and/or Video and Audiotaping E _Amount of Phases and Stretchings per Hands-on Phase on Three Different Occasions F Transcript: Hands-on VI (Forward Flexion) G Transcript: E 6:1 H Transcript: Transition Hands-on V/Hands-off VI I Date and Measurement of Shoulder Mobility in Degrees xiii Page 296 297 299 301 303 304 306 309 310 SECTION I INTELLECTUAL ROOTS OF THE STUDY CHAPTER ONE THEORETICAL FRAMEWORK Qualitative research has its philosophical roots in phenomenology (Merriam, 1988). This micro-ethnographic case study of physical therapy sessions is guided by existential phenomenology, which serves both as a theoretical foundation and as a mode of inquiry. It takes the living world of the patient and the physical therapist, as it is expressed in treatment situations, as a point of departure. The philosophical concepts of "being-in-the-world," of "experience," and of "reflection" are thought about as being firmly rooted in any situation and as phenomena that can be studied. In other words, the emphasis upon physical, bodily matters in treatment situations lends itself to examination of what bodily experiences there are: how they are expressed: and how a treatment situation turns into a different experience for the patient and for the therapist. Physical therapy treatment is not something that is part of the everyday life of people. It occurs mostly when an injury or a disease has done some damage to one’s body and a "restoration" is required. For a physical therapist, treatment situations constitute her working day. There is 2 ground to assume that treatment situations are approached differently by the patient and by the therapist. The reason for the patient’s and the therapist's being together, the physical trauma the patient suffers from and the treatment modality the therapist offers, are central for understanding what is talked about, perceived, and acted upon during the session. Assumptions about Physical Therapy The following assumptions are held regarding physical therapy. The therapy involves longterm and repeated contact between a therapist and a patient: in the course of treatment physical contact is often needed with the therapist’s "laying on of hands" being very much part of her work: the living body and movements are in focus when delivering physical therapy. During treatment the patient and the therapist are present to each other moment by moment and they take account of each other's actions. Both of them are acting and reflecting human beings. Both of them have intentions and knowledge, although of different kinds. Both of them teach and learn. This study approaches teaching and learning from a social constructivist's perspective and assumes that knowledge can be inferred in the doings and the talk of the patient and the therapist. The assumptions also encompass 3 the idea that the patient’s knowledge and the therapist's knowledge are of little value when isolated from each other, but when they intermingle during the course of treatment they are of the utmost importance in leading to the creation of new knowledge. Views of Physical Therapy In a traditional view of physical therapy, the therapist is considered the teacher and the patient the learner. The therapist is educated to "help restore motion homeostasis" (Hislop, 1975). The patient is the person whose mobility has been impaired. This implies an asymmetrical relation, if we look at the distribution of specialized knowledge. It is the therapist who determines what treatment should be carried out, what movement a patient should practice, when to introduce, for instance, strengthening exercises. All that is required of the patient is to do as instructed, to comply. Such a description can easily be translated into a context or a relationship of already set rules. If a treatment situation were perceived by both participants in this way and accepted as such, there would be no need for negotiations to occur, for discussions to arise, for difficulties to appear and be resolved. But a therapy situation may be viewed in other ways by the participants. 4 For example, it can be viewed as a service-like encounter where the therapist is expected to serve the patient’s needs. Alternately, it may be viewed as a teaching/learning encounter where both the patient and the therapist have something to learn and something to teach. What will be taught and learned will also change over time. It may also be viewed as an encounter in which bodily knowledge, reformulated and expressed in words, both by the patient and the therapist, alters or enriches one's understanding of a particular physical condition. This study refutes the notion of a "causal relationship" or causal linkage between a health professional and a patient or between therapeutic interventions and patient outcomes (Jensen, Shepard, & Hack, 1990) which is implicit in many specialized/ professional service organizations. But this does not mean we lack ideas about how the encounter is or could be construed. Being a naturalistic study it assumes that "All entities are in a state of mutual simultaneous shaping, so that it is impossible to distinguish causes from effects" (Lincoln & Guba, 1985, p. 38). One means of thinking about physical therapy sessions is to adopt a social constructivist’s perspective. This influences one's view of treatment situations and encourages application of the concept of communication to their study. Philosophers and social scientists holding a 5 social constructivist view stress how human beings are actively creating their own worlds, their own realities. They stress the continous effort we engage in to make sense of what is happening around us, of our attempts to understand. One research tradition that builds upon these philosophical assumptions is ethnography and particularly constitutive ethnography. The premise of constitutive ethnography is that "social structures are interactional accomplishments which are mutually constructed by the participants in them" (McCollum, 1989, p. 136). Within this framework, treatment situations are seen as being socially organized by the patient and the therapist. Definition of Experience and Reflection One of the intentions of this study is to illuminate a patient’s and a therapist's concrete experience of treatment situations as being potentially physico- therapeutic, psychotherapeutic, and pedagogical teaching and learning encounters, and that this is expressed by the participants during the session itself. To begin that task, it is useful to define "experience" in a way that guides the study’s questions and methods as well as its theorizing. 6 Schutz' definition of experience is explained by Wagner (1970) in the following way: The basic starting point of all phenomenological considerations is the essential actual, or immediatel¥__ixid experience. that is. the subjective, spontaneously flowing st ream 2f exp_;igpgg in which the individual lives and which, as a stream of consciousness, carries with it spontaneous linkages, memory traces, etc., of other, prior, experiences. Experience becomes only by an act of reflection in which an essentially actual experience, in retrospect, is consciously apprehended and cognitively constituted. In the course of his life, a person compiles a stggk_gf e ° , which enables him to define the situations in which he finds himself and to guide his conduct in them. (p. 318: emphasis in original) Langer (1989) interprets existential philosophy in the following way: ... for an understanding of our being-in-the- world, existentialist philosophy seeks to awaken us to an awareness of our fundamental involvement in a natural-cultural-historical milieu. It stresses that we are not neutral observers but rather, situated participants in an ongoing, open-ended, socio-historical drama. It claims that truth comes into being in our concrete co- existence with others and cannot be severed from language and history. The existentialists declare that a non-situated human being is inconceivable. (p- iV) Merleau-Ponty (1962), influenced by Husserl, stresses that it is through perception we are able to experience the world. He argues that the perceiver is not a pure thinker, 7 but a body-subject and that "intentionality of consciousness is first and foremost a bodily intentionality” (Langer, 1989, p. xiv). The subject, to Merleau-Ponty, is the living body, and consciousness is defined as an "active meaning-giving operation" (Merleau- Ponty, 1961, p. xi). He says "Because we are in the world, we are condemned to meaning, and we cannot do or say anything without its acquiring a name in history" (1961, p. xiv). In physical therapy, the focus is upon the body and its movements. By adding the word "living," so we get the "living body," we can remind ourselves, again, that the people we see, the patients, are not only bodies composed of parts. By thinking of them as being just as involved in the ongoing situation, the ongoing treatment, as we ourselves are, we can begin to appreciate how both of us shape the situation at hand. By reflecting consciously upon what happens in treatment situations, we can begin to understand who the patient and the therapist become during that particular encounter. The application of certain concepts from the field of communication to treatment situations is one way of illuminating how the participants themselves define and shape each session. However a treatment turns out, it is accomplished in interaction. In communicative terms there is no longer a difference between the patient and the 8 therapist, since both possess interactional competence. This is based on communicative knowledge that is "institutionalized" as well as "emergent," to use Erickson’s terms (1986a). Concepts of Communication When thinking about a patient and a therapist as interacting successfully in face to face situations, one fundamental issue to stress is the communicative competence they share. Shared Communicative Competence Institutionalized knowledge is the ability to use linguistically proper ways of speaking, such as correct syntax and lexicon. Also taken for granted are "culturally learned patterns for the use of speech" (Erickson, 1986a, p. 295). These are, among other things, to know how to speak appropriately in different situations: what patterns of sequencing to expect in ordinary activities: to know and be able to apply principles that organize discourse, for example, an answer follows a question. Institutionalized communicative knowledge represents "general systems of rules or operating principles for the conduct of talk" (Erickson, 1986a, p. 296). Emergent communicative knowledge is another dimension: 9 It is the domain of praxis in reasoning, the capacity to create sense in addition to following rules, to go beyond what is culturally learned and, in the midst of the fortuitous contingency of the moment, to play interaction by ear. (p. 296) Communication in a general sense can be defined in a variety of ways and it can be studied from different perspectives. Some consider all behavior to be communicative in nature (Ruesch & Bateson, 1951), others that behavior is only considered "communicative" if the person providing it intends to convey some message, regardless of whether anyone else receives the message (Ekman & Friesen, 1981). This last proposition is challenged by Kendon (1981) who argues "The question of intentionality is irrelevant because ... to witness a behavioral event is to receive information" (p. 9). When looking at how those different conceptions of communication relate to the basic components of communication--the sender, the message, and the receiver-- one finds that they are based on different assumptions regarding responsibility for whether something has been communicated or not. For example, Ruesch and Bateson, and Kendon, assume that the "burden" of communication lies on the receiver, while Ekman and Friesen place it upon the sender. Depending on what researchers tend to focus upon, be it the relationship between the sender and the message 10 or the receiver and the message, different properties of communication come to be accentuated. Central to constitutive ethnography is the study of speech. Forms of speech and prosody, and their relevance for participants, all merit attention. It is equally important to incorporate how speakers and listeners gesture, alter their facial expressions, and orient themselves toward each other in face to face encounters in order better to understand how interaction is accomplished. About the significance of interpretation of speech, prosody, and gesture in conversation, Paget (1983) has written: Talk, when it is serious rather than casual, is as much as is anything at all a labor of understanding, of listening and interpreting, of clarifying and acknowledging what has been said, and responding. It is an interactionally constituted activity sustained by conversationalists. (p. 72) The multimodal nature of communication assists, through its redundancy across verbal and non-verbal channels, the interpretive work of participants. W One group of researchers claim that one cannot separate the three entities--the sender, the message, and the receiver--from each other if one is to learn about the 11 collaborative work participants employ. They study the relationship between all three using audio-visual records (Erickson & Shultz, 1982: Florio, 1978: Kendon, 1981: McDermott, 1976: Shultz, Florio, & Erickson, 1982). While the speaker is saying something, the listener (receiver) reacts to what is being said, affecting both the speaker and the message. This dialectical way of thinking about communication is radically different from focusing upon either the sending end or the receiving end of the continuum, because it places the "burden" of communication as much on the receiver as it does on the sender and the message itself. McDermott (1976) is particularly concerned with "how people establish environments for each other and for themselves, and how these environments constrain their next activities" (p. 28). This group of researchers follows an approach called context analysis (or "microethnography" or "constitutive ethnography"), which originated in the work of Ruesch and Bateson (1951), Birdwhistell (1952), and Scheflen (1973). They worked with films and were therefore able to look at the "simultaneous cooccurrence of what all interactional partners were doing together in constructing a communicative ecosystem in real time" (Erickson, 1986a, p. 297). With the development of kinesics, the study of communication came to include gestures, posture, and facial 12 expressions, among others. This group of researchers treat communication as problematic. In other words they assume that intentionality is not a simple concept, that it takes work to understand what people say and mean, that it takes effort to interpret the meaning of a message both for analysts and for participants. A message does not carry one particular meaning but several, and it serves multiple functions. The sender and the receiver collaborate in giving cues for how a message is to be interpreted. The approach to communication taken by these researchers is to assume that inherent in every message there are two kinds of meanings. There is the literal, referential meaning and there is the social meaning. The latter means that while two people talk about something, they also address or talk about the relation between themselves. Bateson (1972) says, As mammals, we are familiar with, though largely unconscious of, the habit of communication about our relationships. Like other terrestrial mammals, we do most of our communicating on this subject by means of kinesic and paralinguistic signal, such as bodily movements, involuntary tensions of voluntary muscles, changes of facial expression, hesitations, shifts in tempo of speech or movement, overtones of the voice and irregularities of respiration. (p. 371) At the same time as something is being talked about and implicit references made about the relationship between those engaged in talking, the participants tell each other what is going on. This might seem a strange proposition to 13 make. It might seem as if we do not know what we are doing. If one is having breakfast, one is having breakfast. If one is taking a course, one is taking a course. The issue is not about the official label of an event, but rather the different sequences or chunks of which each event is built. What is called "worktime" in a classroom is sequences or segments of "getting ready: focused worktime activity: wind up: clean up" (Florio, 1978, p. 69). Each sequence is seen in the behavioral displays of the participants, that is, in their postures, their gaze, their words. These behaviors serve reflexively to create and to cue the definition of situation and hence the rights and duties of participation (as well as the range of improvisatory options) at any point in time. Within each sequence the participants occupy certain communicative roles. According to Erickson and Shultz (1982): In communicative terms, a :91; is the set of rights and obligations regarding ways of acting and ways of being acted toward which is possessed by an individual occupying a particular social identity. As performed social identity can change from moment to moment during face-to-face interaction, so can communicative rights and obligations of the individual change from one moment to the next. Participatigg_§§;ugture can be thought of as the complete set of communicative rights and obligations in the roles of all those engaged in interaction at any moment. (pp. 17-18) 14 The transition from one sequence to another is not explicitly stated, "Now we have finished the ‘getting ready' phase and we are focusing on the worktime activity." Rather this is said implictly by various linguistic, kinesic and prosodic cues whose meanings are negotiated verbally and non-verbally by the participants. The purpose of talking about an event as consisting of various sequences is to illustrate the term contgx . It is important to stress that context is not meant here to be what surrounds actions or events, but rather the actions themselves, the actions taken by the participants at a particular place, during a particular time, which constitute the event. The word context is derived from the Latin verb ggnggxtere which means "to weave together separate strands" (Erickson, 1986c, p. 19). In other words, each event is socially organized by the participants in that they continuously take account of each others' actions. This is not to be confused with the traditional understanding of the concept of equality. It rather means that all involved contribute equally to the event at hand, but do so in different ways. For instance, when one person i has selected to speak, and the other stops what she is doing and shows that she is paying attention to what she hears and sees, she "enables" the speaker to have the 15 floor. The shift from one context to another is also jointly accomplished. 'za '0 es Gumperz’(1977) notion of contextualization cues is important to understand how meaning is negotiated in a situation. It points to the interpretive work of both speakers and listeners. Erickson and Shultz (1982) state that we continuously tell each other what is going on, what context is in play for the moment: People of varying ages and cultural backgrounds all seem to be actively engaged while they interact, in telling one another what is happening as it is happening. This can be called the W by means of ‘contextualization cues'... what signals are used and how the signals are employed and interpreted by the interactional partners ... may vary ... But some ways of telling the context seem to be present in all instances of face-to-face interaction among humans. People seem to use these ways to keep one another on the track, to maintain in the conduct of interaction, what musicians call ‘ensemble' in the play of music. (p. 71) By asking the practical and methodological question "When is a context?" Erickson and Shultz (1981, 1982) describe how people in face to face situations create and move in and out of different contexts through changes in postures, tone of voice and gaze. The cues that Erickson and Shultz refer to consist of changes in the rhythmic 16 organization of speech and body motion (Erickson & Shultz, 1982), speech prosody (Gumperz, 1977), postural positioning (Scheflen, 1973), and proxemics or interpersonal distance (Hall, 1966). genxersatien_Analxsis Another school of microanalysis of interaction has contributed different but complementary insights into the collaborative work by participants in face to face encounters. Sociologists developed a method called "conversation analysis" (Sachs, Schegloff, & Jefferson, 1974) to understand how and why conversations are or become organized the way they do. They worked with audiotapes and focused their attention on the vocal reactions of listeners to speakers and vice versa. Among their contributions are the formulation of principles governing who gets to talk, that is, principles of turntaking, and the notion of adjacency pairs as an organizational device used in conversation (Sacks, Schegloff, & Jefferson, 1974). Certain types of utterances have been found to occur in ordered pairs: a question leads to an answer, a greeting to a greeting. These findings arose largely from work with audiotapes, not videotapes. This might have led, in Erickson's (1986a) view, to their theoretical emphasis on adjacency relationships of cooccurrence across real time - 17 on pairings of antecedent and consequent utterances by interlocutors who exchange turns at speaking. (p. 298) Conversation analysts stress vocal communication. But Goffman (1981) points out that "there are lots of circumstances in which someone giving verbal orders or suggestions expects something nonlinguistic as a response" (p. 40), and calls physical doings "nonlinguistic deeds" (p. 37). This is a notion important in the study of physical therapy as the purpose there is to instruct, make, or help a patient do some physical movement. Communication as an Overriding Principle in the Study of Physical Therapy Practice By stressing the similarities between the patient and the therapist in communicative terms, one is likely to find a shift from context to context. One is likely to find that at one moment the therapist leads, at another the patient. The treatment situation might therefore be depicted in a different way. We will then expect to see actors actively engaged in each session, actors whose speech is meaningful and situated, that is, spatially and temporally located. This "meaningfulness" as a feature of interaction is something that is "actively and continually negotiated, not merely the programmed communication of already established meanings" (Giddens, 1986, p. 105). 18 By locating the treatment situation in its proper space and time we will see how the anticipations of the responses of others mediate the activity of each actor at any one moment in time, and what has gone before is subject to revision in the light of subsequent experience. (Giddens, 1986, p.105) We also see that a lot of what is happening is interpreted and defined quite differently. We see that the actors judge the ongoing treatment differently. What the therapist considers a good trial, is not good enough for the patient. Moments of disagreement, moments of confusion and the untangling of them are therefore to be expected. The title "Physical Therapy as Communication" indicates a particular way of thinking about physical therapy and communication. Communication is here conceptualized as carrying multiple meanings, expressed both explicitly and implicitly, vocally and non-vocally. Considering communication as concrete allows for its accessibility to examination. In fact, because of its physical nature, kinesics may be even more important in a physical therapy session than they might be in some other sorts of face to face interaction, as carriers of both social and referential meaning. Consequently, any observable action by a patient or a therapist merits investigation. Talk is one form of communication, but the 19 use of hands as part of the treatment is also part of the communication. Gaze, postural configurations, movements, gestures, and facial expressions are all part of communication in the therapeutic session. In other words, the use of a particular treatment technique represents one form of discourse. The "ordinary" conversation the patient and the therapist engage in represents another. Finally, and most importantly, according to Bateson's (1972) view of understanding behavior or actions, it is necessary to assume that participants communicate something. This implies a focus on relationships and not on isolated factors. In other words, when looking at treatment situations what the therapist says cannot be isolated from what the patient does or says and vice versa. The Purpose of the Study The purposes of this study are to uncover what goes on in treatment situations, to examine how the patient and the therapist jointly construct sessions, and to discover how the two experience and interpret what is going on within the sessions. Little is known about what constitutes a treatment session, about what happens between a patient and a therapist, and some researchers tend to refer to the physical therapy session or the therapeutic intervention as a "black box" (Jensen, Shepard, & Hack, 1990, p. 315). The 20 same is true for doctor-patient encounters. When talking about future research in doctor-patient relations Korsch (1989) states that, Clearly the ultimate goal will be to arrive at a body of knowledge that deals with the essential features of what goes on between physicians and patients, and that applies to clinical practice. (p. 251) This explorative study aims to arrive at some features that are essential to the field of physical therapy. It therefore considers the patient’s diagnosis as equally important as the therapist’s treatment technique; the patient's perceptions of what is going on as equally important as the therapist’s: what the patient says as equally important as what the therapist says. By staying close to the ordinary doings in clinics and by using a language which is familiar to practitioners, the hope is to provide a new description of physical therapy practice that is still recognizable in terms of current research and practice. For instance, the calling of the therapist by her first name but the patient by her last, as is done at the research site, is also done in this thesis. The word "patient" for the woman who is seen in physical therapy is not something she calls herself. However, it is customary at this particular clinic and therefore adopted here. 21 MW: The thesis is organized into three sections. The first two sections contain three chapters each. Here, the content of each section and its chapters is briefly summarized. The first section describes the intellectual roots of the study. Chapter one outlines the theoretical framework for the study, and chapter two reviews two fields of literature. One pertains to the physical therapy profession, the other the medical diagnosis of frozen shoulder. Chapter three restates the purposes of the study and reports its questions, original as well as emergent, and its methods. The second section describes and analyzes the findings of the study. Chapter four reports on how a session comes to be organized around a specific diagnosis and a specific treatment technique. Chapter five gives a detailed account and an analysis of six brief episodes during which the patient and the therapist suddenly seemed quite confused about how to proceed. This chapter ends with identifying some of the rules that organize the treatment and that the patient and the therapist adhere to most of the time. Chapter six approaches the same talk that had been analyzed previously, but looks upon it from other perspectives. By assuming that physical therapy sessions serve multiple functions and can be beneficial from a psychological as 22 well as a pedagogical point of view, evidence of both were found and are discussed. Section III, which contains only chapter seven, summarizes the findings, draws conclusions from them, and outlines recommendations for how practicing physical therapists and researchers alike might, in their work, use elements from both the research methods that have been used in this study and the findings themselves. The benefit of adopting a social constructivist's view in their work is argued. CHAPTER TWO REVIEW OF THE LITERATURE This literature review is divided into three major parts, each with a separate focus. The reason for this is that physical therapy is strongly influenced by the two disciplines, medicine and psychology. Scientific findings from one usually exclude findings from the other. In other words, when referring to the field of physical therapy, the patient's medical diagnosis is often given a subordinate role in the more psychologically oriented literature. The clinical research concerning the diagnosis itself gives, on the other hand, little attention to the person who is the "carrier" of the condition and her/his relationship with the therapist. As the purposes with the research differs, this separation is a natural consequence. In order to give due credit to the knowledge available concerning psychological issues as well as medical matters, the first part provides a background of the physical therapy profession and discusses present concerns such as models of practice, psychosocial aspects of practice, and the role of communication. The second part is a description of the shoulder joint, and the third part has as its focus 23 24 medical findings regarding the diagnosis of frozen shoulder. Part I Overview of the Physical Therapy Profession In order to contextualize the present study of everyday practice of physical therapy in the United States, this part is introduced by a brief description of the profession, its background, development, and goals. As the profession is in the midst of changes, three major trends that have been distinguished are discussed. Briefly, these trends concern striving toward full professional status, striving toward establishing physical therapy as a clinical science, and striving to improve patient care by arguing for the incorporation of communication skills courses into the curriculum. In addition to these trends, this review has been guided by two meta-questions: How is the social "reality" of physical therapy practice conceptualized and described? How are the patient and the therapist portrayed in medical and psychological literature? a s 1 Physical therapy received its professional status in the United States in the beginning of the 20th century. Advances in bacteriology, immunology, and surgery led to 25 the need for more medical personnel. Particularly, the physical therapy profession was founded to "provide restorative services to persons who suffer physically handicapping conditions" (Hislop, 1975, p. 1075). The first physical therapists assisted orthopedic surgeons. Many were also engaged in treating patients with poliomyelitis. During and after World War I traning programs were developed both at Harvard University and at military hospitals. The first formal curriculum in physical therapy, a four month long program, was offered in 1918 (Yarbrough, 1986). By the early 19205 the American Physical Therapy Association (APTA) was founded (May, Bing, Ballard, Luckhardt, & Barney, 1982). The same association stated in 1979 the competence to be expected by a physical therapist in a Model Definition of Physical Therapy for State Practice Acts: Physical therapy means the examination, treatment, and instruction of human beings to detect, assess, prevent, correct, alleviate, and limit physical disability, bodily malfunction, and pain from injury, disease, and any other bodily and mental condition, and includes the administration, interpretation, and evaluation of tests and measurements of bodily functions and structures: the planning, administration, evaluation and modification of treatment and instruction, including the use of physical measures, activities, and devices, for preventative and therapeutic purposes: and the provision of consultative, educational, and other advisory services for the purpose of reducing the incidence and severity of physical disability, bodily malfunction, and pain. (Yarbrough, 1986, pp. 142-143) 26 The emphasis upon restoring somebody else's physical function is also to be found in the writings by May et al. (1982). They state that physical therapy is concerned with the prevention or management of human dysfunctions or abnormalities arising primarily from deficits in motor, sensory, and physiologically support systems. Practice is directed toward preventing disability, relieving pain, developing, improving, or restoring function. (p. 222) In addition to providing appropriate service to patients, claims are raised that research needs to be carried out to prove the benefits of physical therapy. Another reason for the call for extensive research activities is to establish physical therapy as a clinicei ccience (Currier, 1984: Dean, 1985: Peat, 1981). During the last 20 years, there has been increased emphasis upon defining the unique DQQX_Q£_KDQE1§QQQ that physical therapy as a whole encompasses (Dean, 1985). In 1977, APTA received status as an independent accrediting agency for physcial therapy programs from the United States Office of Education and the Council on Post- Secondary Accreditation. The collaboration with the American Medical Association from 1956 regarding accreditation was over. This is considered an important step away from the domination the medical profession 27 traditionally has held over physical therapy practice (Yarbrough, 1986). The number of physical therapists has grown rapidly. In the United States there were 1,160 physical therapists registered in 1940: 6,242 in 1960: 10,919 in 1970: and 25,000 in 1980 (Peat, 1981, p. 171). In 1984 the number had increased to 40,200, with the educational program averaging four and a half years. By 1990, all programs will be converted to graduate programs (Yarbrough, 1986). Traditionally, a referral must be obtaind from a physician before a physical therapist may legally treat a patient. The therapist is also required to report back to the physician the results of the treatment. In spite of the fact that physical therapists today belong to a group of health professionals who maintain relatively complete control over their own pace of work and selection of treatments, they remain "subordinate" to or limited by the medical profession (Miles-Tapping, 1985). However, Miles-Tapping (1985) does not consider physical therapists to be representative of so-called "paramedical" workers or "paraprofessional" occupations that lack autonomy: she claims that the work physical therapists do supports this since Most physiotherapists think their jobs are moderately autonomous. They accept referrals from physicians, but perform their own assessment of the patient’s problems, plan and execute their 28 treatments, and evaluate the outcomes themselves. (p. 290) The actual practice of physical therapy has been dominated by the medical profession in that physicians have always viewed physical therapy as an adjunct to medicine, much like nursing (Yarbrough, 1986; Thornquist, 1988). Increased autonomy, that is, increased degrees of independence or discretion, is an important goal to obtain for physical therapists working in the modern health care system (Yarbrough, 1986), in order to utilize the growth of knowledge and of treatment techniques specific to the professional domain. This striving toward full professionalism in the United States led to a proposal that physical therapists should be allowed to treat patients without the mandatory physician referral. This proposal was passed by the House of Delegates of the APTA in June 1979. Still, most patients seen by therapists are referred by physicians. Another measure of professional autonomy is, however, the extent to which physical therapists are directly and personally responsible to their patients (Yarbrough, 1986). Sim (1985) states that in the working situation it is natural that the therapist is the judge of the needs of the patient. This is a delicate issue that has not received much attention in the literature. .1. _ 29 Medicine continues to exert influence upon the profession, in that the "medical model" still dominates the physical therapist’s view of what counts as disease and as knowledge (Miles-Tapping, 1985). The medical model, according to her, describes a way of looking at the world and at illness that identifies deviance as a disease and as potentially treatable or curable by drugs, surgery, or other forms of individually applied medically sanctioned therapy. (p. 291) Medical science influences also physical therapy education since it is centered around physical, physiological, and biomechanic aspects of human health and illness (Lewis & Schaefer, 1986). Physical therapists thus have good knowledge of basic sciences and treatment techniques (Yarbrough, 1986), but are less versed in the behavioral sciences. To summarize, medicine has influenced the profession in several ways. It has affected the curriculum, where the basic sciences dominate. It has led to therapists' acceptance of the biomedical way of viewing disorders and diseases. Within practice, therapists have adopted the procedures physicians use when seeing patients. These ‘procedures include taking a case history, doing examinations, treating and evaluating patients. In research, as in medicine, only quantitative methods are 30 considered scientific. Administratively, patients are still referred to the therapist by a physician. u2dels_2f_2hxsical_1heraex_£raetiee Being a profession that lies between "the caring model of nursing and the curative role of medicine" (Sim, 1985, p. 21), several authorities in the field are concerned with identifying what physical therapy "is:" what the essence or general character of the profession is; how to best describe its uniqueness. Attempts to define the physical therapy profession vary from providing models (Dean, 1985: Hislop, 1975: Tyni-Lenné, 1983), to emphasizing certain issues in the field (Davis, 1986: Payton, 1986: Ramsden, 1986: Shepard, 1986), to giving fictive examples of practice along with theoretical considerations (Purtilo, 1978). Ih2_Hi§l22_MQQQl.QI.2QLhQBiD§§inQQ¥ Hislop (1975), one of the first to articulate the need for a common conceptualization of the profession, states: Physical therapy is knowledge. Physical therapy is clinical science. Physical therapy is reasoned application of science to warm and needing human beings. Or it is nothing. The precise role of science in physical therapy is not often understood and no coherent philosophical overview exists to guide the growth of the profession. (p. 1071) 31 Hislop bases her model of physical therapy primarily on pathokinesiology or "faulty" movements as the distinguishing clinical science of the profession and secondarily on the skill of therapists to place exercise on its proper scientific foundation. Motion is thus considered an important concept. By looking at man as a natural system, where motion occurs and can be disrupted, the following hierarchical levels or subsystems are identified as related to physical therapy. There are'the levels of cells, tissues, organs, systems (as the nervous system), persons, and families. Motion can be disrupted on any level. Physical therapists can influence the upper and the lower levels, but possess tools for intervention only at the middle levels, according to Hislop. By some form of controlled exercise or stimulus to induce movements, physical therapists aim to restore motion homeostasis or to "enhance the adaptive capacities of the organism to permanent impairment of loss" (p. 1073). Hislop defines physical therapy as a health profession that emphasizes the sciences of pathokinesiology and the application of therapeutic exercise for the prevention, evaluation, and treatment of disorders of human motion. (p. 1076) Along with the intervention tools a therapist uses in treatment situations, Hislop adds humanism as an intrinsic 32 attribute of therapy. Building upon Hislop’s notion of treatment as being the essence of physical therapy, Dean (1985) adds another factor, optimal treatment outcome, when presenting a psychobiological adaptation model for physical therapy practice. WWW Treatment outcome is supposed to reflect "the interaction of factors relating to the patient and the therapist" (Dean, 1985, p. 1061). Psychobiological factors are defined as primary factors and psychosocial factors as secondary ones with respect to the patient profile. Primary and secondary factors relating to the therapist are clinical factors and educational and professional factors. Of the primary psychobiological factors, three are related to the patient’s condition and include the anatomy, the physiology, and the pathology of the condition. The fourth one, psychology, refers to the patient's psychological traits. For each of these, there is a matching therapeutic intervention such as physical modalities, patient education, therapeutic techniques, and prevention strategies. This "fit" is essential for arriving at an optimal treatment outcome. One of Dean's goals is to include a biopsychosocial perspective of the patient with the clinical one and this is covered in the model. However, the therapist is only 33 portrayed as a professional being, armed with treatment strategies. The therapist has all the knowledge, the patient none. Ih£_2h¥§iQLh£I§P¥_MQQ§l Tyni-Lenné’s model (1983) also takes Hislop’s original writings about physical therapy from 1975 as a starting point when describing a physiotherapy model. Physical therapy is here seen as a process, with the interaction between the patient and the therapist as the central theme. The process involves several choices. Problems continually have to be resolved. The actions that are carried out by the therapist during the physiotherapy process are all purposeful or intentional. Using a systems theory approach, the process is described with principles from problem solving and decision making theories. The patient and the therapist are primarily portrayed as two subsystems that influence each other. All kinds of behavior are displayed in this process, including cognitive, affective, and psychomotor, with psychomotor behavior being considered particularly complicated. goal. oer 31 There are several similarities in Dean's and Tyni- Lenné's models. Logic, rationality, and intentionality are 34 seen as fundamental to physical therapy practice. Nothing is left to chance. Both stress treatment outcome as being of central importance. Dean proposes that for each problem or element a patient brings, there is a corresponding therapeutic intervention available. Tyni-Lenné "guarantees" proper outcome through adherence to a step by step sequence of decision makings. Implicitly, there is an assumption that every patient will perceive the therapist's actions as meaningful. Although both try to describe the patient and the therapist as "people," Dean talks about them as factors, Tyni-Lenné as subsystems. Both portray the patient as bringing only problems, the therapist as providing all the solutions. Thus, we see that intentionality and knowledge belong to the therapist, but not to the patient. While Dean and Tyni-Lenné talk about treatment as being constituted by two people, the interaction as such is only given minor attention. Their models are based strictly on theoretical studies. No empirical findings support them. The models by Tyni-Lenné (1983) and Dean (1985) point to physical therapy as intentional actions, assuming that they are perceived as such by each patient. Built into each model is the implicit promise that if the appropriate steps are taken, positive outcome is guaranteed. This way of looking at physical therapy is yet another attempt to arrange all the different factors that can 35 influence the outcome of a treatment into one single conceptual model. Both state that their intentions with the proposed models are to improve the profession, both theoretically and practically. For this to be accomplished, therapists are recommended to start thinking and acting in terms of their proposed models. However, questions must be raised as to whether these idealized models of physical therapy are useful in actual practice. ee ' 'ca ' 5 Recent work by Jensen et a1. (1990) stresses the necessity for observing treatment sessions in order to understand the practice of physical therapy. They report on an observational study, the purpose of which was to "develop a conceptual framework and a data collection tool to begin a systematic analysis of the work of the physical therapist" (p. 314). They present a conceptual framework that is divided into three levels. Level I consists of the physical therapist's professional characteristics, the patient's characteristics, and organizational factors such as type of setting, payment system, geographic location, other personnel, and time constraints. On Level II there are the tools the therapist has available. These are communications techniques, manual techniques, and modalities. At the third level is 36 the dynamic intervention, or ‘black box' or filter, that all of the identified Level I and Level II factors are filtered through. At the end of this filtration process is the patient outcome. (p. 315) This framework suggests that the therapist, the patient, the setting itself, and the circumstances during which treatment occur are all factors that affect the final patient outcome, but this is dismissed in the discussion. What is focused upon is rather the more or less effective ways of working with patients that the therapists they studied displayed. Eight physical therapists with varying degrees of experience, working at four different adult outpatient orthopedic settings, were observed by two researchers. Written fieldnotes and transcribed audiotapes of treatment sessions were the data from which coding categories of the patients' and the therapists' verbal communication were developed. Five themes emerged that the researchers found to be present in all sessions and within which they could see a differenc between the novice and the experienced therapist in the study. The themes concerned how treatment time was allocated: the type of information gathered from the patient and the therapist’s use of it: the impact of the therapeutic environment upon the therapist’s work, such as handling interruptions and tasks outside of direct treatment: the degree of responsive therapeutic 37 interaction, that is, to what extent therapists integrated "verbal encouragements and tactile cues" (p. 321): and the therapist's integration of nontherapeutic interaction with therapeutic interaction. Social interaction is considered nontherapeutic. This study of naturally occurring treatment sessions refrains from attributing patient outcome to the treatment technique being used and seeks to uncover the complex interactions that constitute treatment sessions. Psycnoscciei Aspeccs cf Enysicel Inezeny Eneccice In developing an integrated model that provides a place for the role of therapist-patient interaction, one volume of the research series, ciinics in Physical Therapy, devoted to psychosocial aspects of clinical practice (Payton, 1986), is worthy of special review. It pays particular attention to the concepts of purposefulness or intentionality, the portrayal of the patient and the therapist, and, to some extent, the distribution of knowledge. Payton (1986), when writing about the acquisition of communication skills, states from the outset that intentionality is the key concept for turning ordinary communication skills into professional communication skills. Communication skills, he argues, ought to be part of the therapist’s overall technical competence. The 38 therapist should be able to choose deliberately choose when to use certain kinds of listening skills and when to use influencing skills. These skills, along with the category "focus," refer to the Ivey Taxonomy of Communication Skills. A microskill model has also been developed, tested, and found useful in the fields of counseling, nursing, and business management (Payton, 1986). Payton's chapter is based upon this model and its relation to and usefulness in physical therapy practice. Payton argues that, Just as each element in a treatment program is evaluated for its effectiveness so each statement or question in a communication is evaluated for its effectiveness in achieving the purpose for which it was chosen. (p. 2) Payton goes on to stress the conscious intentions of the therapist's sayings and doings. For instance, the therapist's non-verbal behaviors are important in encouraging the patient to "speak openly and freely and to stay on relevant topic" (p. 5). And reflective skills are used to assist the patient to "see his own thoughts, feelings, or meanings more clearly" and through this patients might be able to "clarify and refine their own thinking, feeling, and valuing" (p. 7). Throughout Payton's chapter, we see the therapist as actively being able to utilize a variety of skills in order 39 that the patient might understand himself more clearly. The therapist is also portrayed as shifting between the roles of a physical therapist and a modified version of a psychotherapist. For example, Payton asserts that "Instruction is at the heart of much physical therapy. From his professional knowledge base, the therapist tells the patient and his family what to do and how to do it" (p. 19). Confrontation skills can be used to help the patient "to clarify his own thoughts, feelings, and meanings so that his behavior is consistent" (p. 15). We see a therapist who knows exactly what a patient should do and how to do just that. The therapist also knows how to help the patient clarify his feelings and meanings. From this we can infer that the patient has no knowledge of what "to do" before seeing a therapist: the patient's behavior is many times inconsistent. Granted that Payton does not explicitly state the fictive patient’s condition, nor claim that all patients' behavior is "inconsistent," nonetheless we see the therapist as knowledgeable and the patient as "having problems." Ramsden (1986) portrays the therapist in a similar way: It is standard behavior for health professionals treating patients to observe patient behavior, make judgments about that behavior, decide on a course of action, then note the results and evaluate them. (pp. 58-59) 40 Ramsden also mentions another dimension of physical therapy. "Often in treatment what we are doing or what we are saying may cause the patient discomfort" (p. 69). She reports on a discussion with a group of therapists, which revealed their serious concern about the legitimacy of their own particular way of interacting with patients. By using case studies to illustrate how therapists can draw on various theories, such as Erik Erickson's Psychosocial Theory of Development and Maslow’s Needs Hierarchy, Ramsden suggests how a patient’s motivation pattern and his or her level of psychosocial development can be judged. It is clear who is in charge. The therapist is "the expert and in control of the environment" (p. 38). A slightly troublesome treatment situation involving a young man and a young female therapist is commented upon in the following way. "Ms. Morgan (the therapist) seems to be defensive, protecting her turf and her control--for what? It is her turf and she is in control" (p. 58), while the patient is assertive in a subculture that expects passivity. He wants control where others want him to be passive. He appears to have a strong need for achievement and quick results when the situation calls for careful pacing and slow progress in step with healing. (p. 58) 41 This sequence informs us that the therapist should control the situation: the patient, who seems strongly motivated, should be passive. Shepard (1986) alludes to the same concept. She talks about the therapist as being in an optimal position to "offset deleterious effects" of the hospital environment because, among other things, "Conversations can be turned away from specific bodily concerns as the therapist encourages the patient to talk about functioning in home and work environment" (p. 78). Earlier Shepard states that the focus of most physical therapy treatments is on increased independent functioning and mobility, and that to achieve this therapists work with patients’ bodies. However, there is a possibility that such use of conscious strategies to make the patient not talk about the body while actually using it in concrete treatment situations might be counterproductive to achieving these goals, an issue raised by this dissertation in chapter seven. Davis (1986) states the following when talking about health care delivery: Health care professionals often discover what is wrong with a patient after careful and cooperative examination. Clinicians can explain causes of symptoms, referred pain, trigger points, arthritis, spasticity, reflex bound behavior, etc. They understand, to a great extent, what causes many symptoms and know various ways to treat problems. Most of the therapists' efforts are rewarded with predictable outcomes, such as relief of pain, correction of —— 42 posture, or gain in endurance, strength, or agility. This is reassuring to our patients who do not understand what is happening to them. Their symptoms are, to a great extent, beyond their knowing or control. In sum, health care workers provide patients with the reassurance that what is happening to them is not part of the unknown, nor beyond control or influence, but part of the rational world. Their explanations connect the unknown and seemingly uncontrolled phenomena a patient feels with the remainder of the patient’s experience. (p. 124) Although Davis’ main focus is on how values influence the care of patients, in the above section she describes patients as understanding and knowing little about their own bodies. In summary, the book is intended to shed light upon issues that are, by their very nature, difficult to grasp. Although the writers alternate between giving concrete advice about how to behave in a "humanistic way" (Davis) and talking about the patient and the therapist in general terms, there are no contradictory statements about the therapist’s good intentions, purposeful actions, and professional knowledge. The patient is pictured as bringing problems, both physical and psychological, to the scene. The authors claim the patient lacks knowledge, but this can also be interpreted to mean that the patient lacks the cneznniec;e_kncnlecge. The patient is often "not motivated" (Ramsden), or "has a strong need for achievement when the situation calls for careful pacing" (Ramsden, 1986, p.58), 43 or can be helped in clarifying his feelings and thoughts (Payton, 1986). Another book in the same field, Heci§n_£;cfe§§icnel Recient_1n§ezeccicn, by Purtilo (1978), is directed to health professionals with the purpose of describing premises and methods for achieving effective interaction with patients. Facts from studies in biomedicine and the behavioral sciences are illustrated with examples of different situations, where staff interact with patients. Instances of both good and problematic encounters are provided, adopting both the patient’s and the therapist’s perspectives. Explanations for their behavior are given, and, when needed, suggestions for appropriate behavior and effective communication. By referring to the patient and the therapist not only as roles, but, equally frequently, as human beings, the examples sound true to life. However, as stated in the preface of the book, all the examples are fictive. Not one of them is based on any empirical study. And by providing recommendations for appropriate behavior an illusion is conveyed, namely that treatment situations should be and can be free from conflicts. It all depends on how the therapist handles the situation. Other researchers address issues similar to those brought up in the above reviewed books. This body of literature can be divided into three groups. One discusses concepts considered pertinent to physical therapy, such as 44 psychotherapy (Stewart, 1977), psychological theory (Davis & Kenyon, 1981: Goldin, Leventhal, & Luzzi, 1974), and basic relationship skills (Hamilton-Duckett & Kidd, 1985). Another group describes the content of training programs in social skills (Dickson & Maxwell, 1985) and in microcounseling (Saunders & Maxwell, 1988). A third group reports successful outcomes of courses aimed at improving counseling and therapeutic skills mainly among physical therapy students (Levin & Riley, 1984: Payton, 1983: Schultz, Wellard, & Swerissen, 1988). o ' as a t Common to those who argue for improvement of communication as a whole, as well as improvement of counseling skills is that the talk they are concerned with does not include the instructions that accompany any treatment. These are to be found in textbooks regarding specific treatment techniques, for example, the book written by Knott and Voss (1968). Instead they discuss the talk that "surrounds" the physical treatment itself. They define talk either as interviewing skills, communication skills, social skills, interpersonal helping skills, or counseling skills. Talk is thus considered a tool to receive appropriate information from the patient and a technique to help the patient on a psychological level. There are few, if any, conflicting opinions of what needs 45 to be improved by physical therapists, such as interviewing skills, or how those skills should be taught. Characteristically, talk is placed in the domain of psychology. In doing so and, at the same time, eliminating the ”instructional talk," the authors indirectly state the following. First, physical therapists are in a position such that while helping patients recover from physical traumas, they can also help the patients accept and deal with the associated psychological traumas. Second, the talk that is part of the instrumental or technical aspects of the profession (that is, the talk that is closely but implicitly connected with the patient’s medical diagnosis) is separate from other forms of talk. Third, the impact of this "instructional talk" upon the patient is discounted or reduced. This body of literature thus extends physical therapy situations to being therapeutic in more than one sense. But the portrayals of the patient and the therapist remain unchanged. The therapist, in learning communication skills, is even more in control of what goes on. The patient, who remains a problem, is still depicted as having little to contribute to the treatment itself and the recovery process. 46 Wm A contrast to this dominant way of looking at physical therapy situations is present in the work by Engelsrud (1985, 1990). First, she claims the essence of physical therapy to be the living body and its movement. Second, it is through them the therapist gains access to the patient’s world. Third, in looking at physical therapy from a philosophical perspective, the assumptions or definitions of human beings are that they are living, acting, and experiencing subjects. As a consequence, they cannot be directed, manipulated, or predicted. If human beings are looked upon as objects, they are already defined, unchangeable, and mechanic. This existential perspective points also to people’s ability to reflect upon their experience. We are not passive recipients, nor in the hands of external demands and conditions. We are able to reflect upon the experience of our bodies. In a dualistic perspective, the body, a non- living object, is separate from our experience of it. Engelsrud cautions us: To learn about the ‘dead body,’ and to accept research findings based on studies of the same ‘dead body,’ without making references to the body as it is lived and active, might bring about an objectification of physical therapy. Through this both the therapist and the patient are presumably turned into objects, which can be standardized. (p. 51, my translation) 47 Engelsrud refers to the work of Merleau-Ponty and Sartre. According to Merleau-Ponty (1962), the condition for a human being to be in the world as a subject is that the body must "be lived" and acknowledged frankly and immediately. Sartre’s concept of the body as "being-for- itself" implies that human existence is a condition, characterized as being and experiencing each moment. These notions are important to consider since the participants in a physical therapy relationship interact through the body and the movements (Engelsrud, 1990). In a previous study, Engelsrud (1985) examined the assumptions therapists hold regarding one particular aspect of therapy, namely, what working with a living body means. By closely analyzing three books in the field of physical therapy, she found that physical therapists clearly prefer seeing the body as separate from the mind. Thus a perception of body and mind as separate entities prevails in the field of physical therapy, in spite of the fact that psychology is the discipline, apart from medicine, that has always exerted a strong influence upon the profession (Engelsrud, 1985). EBEEEZY Those researchers who explicitly address psychosocial aspects of the profession indirectly claim that they want to move away from identifying the therapist with her 48 treatment technique and the patient with her diagnosis. They want to talk about the two as human beings. They proceed in the following way. After first establishing the humanity of the patient and the therapist, in other words bringing up their silimarities, they move on to make distinctions between them. Clearly, but indirectly, they define the different roles of the two. This is found in the case studies they provide, selected to exemplify something else. They portray the therapist as having expert knowledge, as having the right to tell a patient what to do, as being the one who is in control of the treatment situation. Thus, the therapist has intentions. She acts rationally. This emphasis upon the therapist’s purposeful activities and control is not to be confused with professional responsibility. But the ways the terms "purpose", "intention," and "control" are used here imply more than what therapy alone demands. The patient is portrayed as a carrier of problems. The patient is assumed to understand little of what has happened to her/him or what is happening. The patient is depicted as either a passive recipient of treatment, that is, not motivated, or someone who wants to do too much. The patient has, in a sense, nothing to offer to the recovery process except information about the problems. 49 The patient’s body and mind are talked about as separate entities. The patient brings first of all bodily problems to the therapist for rehabilitation. Eventual negative psychological consequences, brought on by the injury itself, should also be treated. Accordingly, therapists are recommended to learn various psychological models to help in evaluating the patient’s dilemma. Along with this, counseling skills are deemed necessary. Various forms of communications skills, referred to as "technical competence" should also be mastered. The kind of communication that is discussed and recommended is mostly vocal in nature. It is considered something deliberate. It is dominantly and implicitly referred to as going from the therapist to the patient, the message never being ambiguous, the patient accepting whatever the therapist says. What is stressed most of all, with respect to the patient and the therapist, is the diffenence between them. Even if this is what caused the two to meet in the first place, the similarities between them have received minimal attention. That the patient also is someone who has intentions, knowledge, and competence, albeit of different kind from the therapist, is not mentioned. Also left out is the fact that the patient does possess something important, namely bodily knowledge of her condition. 50 By talking about the therapist’s knowledge and control and the patient’s problems means focusing upon the static roles of the two. By using fictive examples of treatment situations the patient and the therapist are portrayed as stereotypes. In this lies a danger. When statements about what goes on in treatment situations are not grounded upon empirical studies, and assumptions are made about what might go on, it becomes too easy to prescribe how a therapist should act toward a patient. It becomes too easy to say what is right and wrong in treatment situations, and to discount the patient’s participation in the recovery process. Now, the goal behind these recommendations is to provide best possible care. However, such descriptions of idealized situations are quite removed from the "lived world,“ although they prevail in the literature. What takes place in treatment situations is not solely the result of conscious deliberation. Spontaneous and immediate reactions also play a part. Therefore questions of validity need to be raised. When turning to authentic situations, one must ask whether patients present themselves as problems to be solved. One must ask whether the knowledge and competence of the patient is attended to or not. One must ask about the patient’s contribution to the treatment and the recovery process. 51 The kind of research that is presently carried out tells us about the assumptions regarding physical therapy. It is a clinical profession based on the natural sciences. It is a profession that involves working with people and where psychology is put to use. It is a profession that defines communication as technology. The treatment situations are depicted as highly rational with the therapist assuming lots of responsibility. The purpose of it many studies is prescriptive, in the sense that they aim at describing how to facilitate carrying out the work of the therapist, that is, to make the patient do things while at the same time paying due respect to the patient. This is not to say that what is recommended is wrong. But the discrepancy between the writings about treatment situations as being well organized and controlled by the therapist and the way treatment situations look when observed is striking. There is a need to study physical therapy practice closely to capture or stress other features that will influence the profession eventually. As mentioned in the introduction to this chapter, there is a tendency to underestimate or to discuss in general terms how the physical injury or condition itself influences the patient, the therapist, and the process of treatment in the psychologically oriented literature. After describing the shoulder joint (part II), a review of the literature concerning the diagnosis of frozen shoulder, a 52 problem from which the patient in this study suffers, is therefore reported in part III. This review includes mainly studies that aim to identify the cause of the condition, its symptoms, the structures that are affected, and treatments to be offered. The latter include treatments that can be provided by physicians and by physical therapists. Part II The Shoulder Joint As an introduction, a general description of how a joint is build is given. The structures surrounding the shoulder and the movements they allow the arm to do are prerequisites to understanding the symtoms caused by a frozen shoulder. tu 'n The junction of two bones is called an articulation or a joint. Each joint is a functional unit formed by a number of different tissues such as bones, a capsule, a joint cavity with synovial fluid, ligaments, muscles, tendons and bursae. The articulate surfaces of the bones are covered with cartilage, which ensures a better fit between the bones, protects them, and absorbs shocks. Cartilage lacks its own 53 nerve and blood supply. It receives nourishment from the synovial fluid, which is produced from a thin layer or membrane of the capsule. The outer membrane of the capsule is in some areas reinforced by thickenings, very much similar to ligaments. In addition, separate ligaments help hold the bones together. The capsule encloses the joint completely. It is rich in sensory nerve endings, reacting to tension and pressure (Petrén, 1960, p. 176). The capsule and the ligaments prevent dislocations of the bones and limit possible ranges of motion. Other stabilizing forces are muscles as they contract and tendons that cross most joints. Other structures of a joint are tendon sheaths and bursae. Their function is to minimize friction between tendons or muscles and bones. In the case of a frozen shoulder, all of the tissues that are mentioned, except the bony structures, can be affected. e o m J The joint commonly considered the shoulder joint refers to the joint between the shoulderblade (scapula) and the upper arm (humerus). The medical term for this joint is the scapulohumeral or the glenohumeral joint. But the shoulder is not a single joint. It is only one of the seven joints that form the shoulder girdle or the shoulder complex (Cailliet, 1981). Any smooth movement of the arm 54 requires well synchronized actions of all seven joints and their muscles. Dysfunction of any of these joints can inhibit arm movement. The purpose of all shoulder movements is to increase the area through which the hand can move. Therefore the scapulohumeral joint, which from now on will be referred to as the shoulder joint, has a wide and lax capsule with few ligaments. The stabilizing function of the capsule is diminished. This in turn is compensated for by muscles that surround the capsule almost entirely. Only the lower or inferior part of the capsule lacks this protection. Here an axillary fold or recess is formed due to the looseness of the capsule. With the arm by the side, the upper part of the capsule is taut and the inferior part is slack. When the arm is lifted our to the side the recess is taut and the upper part of the capsule slack (Cailliet, 1981, p.8). WW Many daily activities, such as taking dishes from a cupboard, tying an apron behind the back, combing the hair, putting on a coat, or reaching into a hip pocket for a wallet, require, apart from lifting the arm, the ability to rotate it. Being a ball and socket joint, although incongruent, the shoulder joint allows the arm to move in all directions. Starting from the anatomical position where the arm is resting at the side of the body, palm turned 55 forward, the arm can be elevated forward, backward and sideward. It can be rotated inward and outward. In medical terminology forward elevation is called flexion, the return movement extension. Backward elevation is called hyperextension. Sideways elevation is called abduction and the return movement is called adduction. Rotation inward is called internal rotation, outward is called external rotation. By bringing the arm out to the side up to shoulder level, and there rotating the arm externally and continuing to lift the arm, one can reach the same extreme terminal position as when doing a full forward flexion. With the arm at shoulder height (flexed to 90 degrees) it can be brought horizontally in front of the body (horizontal adduction) and away from the body (horizontal abduction). The arm can be elevated in the diagonal planes between flexion and abduction on the one hand, and extension and abduction of the other hand. For those movements there is no standard terminology. Not considered a pure movement but a combination of movements in the shoulder joint is the circumduction. If one puts one’s fingertips on the same side’s shoulder and draws a circle in the air with the elbow, a circumduction is performed. 56 W In physical therapy, movements are classified as active or passive (Cailliet, 1981). Active movements are carried out by the patient herself, while passive movements are those where the therapist moves, for instance, a patient’s arm, which has to be relaxed. In addition, the therapist can assist the patient in carrying out an active movement, which is called an active assistive movement. When the therapist applies resistance to a movement, it is called an active resistive movement. When the patient and the therapist work to achieve an elongation of the muscular and capsular fibers, all these movements are used in different parts of the stretching process. MM Five of the nine muscles related to the shoulder joint are considered prime movers (Cailliet, 1981). Four of these five muscles are known as the musculotendinous cuff muscles, m. teres minor, infraspinatus, supraspinatus, and subscapularis. They act as rotators. They all originate from the shoulderblade and insert upon the upper arm. The fifth muscle is m. deltoideus, which belongs to the utmost layer of muscles and is seen in the rounded shape of the upper arm. Its insertion is located on the outer upper third part of the humerus. This is one of the areas or spots that patients with frozen shoulder find extremely 57 painful. The pain is not caused by any inflammatory reaction of the deltoid tendon, but is "referred" from the shoulder joint. This was perplexing to the patient in this study who said, Intellectually I understand referred pain, but I don’t understand it in my heart. Why it hurts down here (touches her right upper arm), when it actually is up here (puts hand over shoulderjoint). (Video I, 1/18/84) The logic in locating pain to its proper origin is thus gone, and it seems incomprehensible to the patient. Apart from having pain, flexion, abduction, and external rotation are the movements which are particularly difficult to perform when the shoulder is "frozen." t'on sc 3 A muscle can do two things: develop tension within itself (contract) or relax (Rasch & Burke, 1971). Movements will be performed smoothly and automatically, if nothing prevents muscles from either contracting or relaxing. Muscles that work actively to perform a movement are called prime movers or agonists (Rasch & Burke, 1971). An example is the biceps muscle that, when activated, bends at the elbow. Muscles that work the opposite direction are called antagonists, in this example the muscles that extend the elbow. If they are activated they can prevent the flexion 58 from occurring. In order to carry out a full flexion at the elbow, the antagonists need to be relaxed and not shortened. Throughout this study the patient’s forward flexion remains incomplete. One reason for this, apart from the effect of a contracted capsule, can be a shortening of the muscles that bring about the extension. What is desired then is a treatment where the extensors will be elongated and will stop preventing full forward flexion from occurring. The purpose of this technique, which is called stretching, is thus to work with the muscles that are shortened, not the muscles that perform the movement that is restricted. Part III The Diagnosis of Frozen Shoulder As the shoulder joint permits excessive mobility but not enough stability, it provides a basis for pain, degeneration and dysfunction (Cailliet, 1981). One of the most common conditions that middle-aged people seek help for in general practice is, accordingly, a painful and stiff shoulder (Neviaser, 1980). The particular condition, frozen shoulder, was first described in 1872 by the French surgeon Duplay, who labeled it "periartherite scapulo- humerale" (Bruckner & Nye, 1981). Several other terms have 59 been used since then, such as frozen shoulder, adhesive capsulitis, periarthritis, pericapsulitis, obliterative bursitis, and "stiff shoulder" (Cailliet, 1981). This variety of diagnoses suggests a lack of consensus regarding the etiology of the condition. In his classical book about the shoulder (published in 1934), Codman writes about the frozen shoulder as a class of cases he finds "difficult to define, difficult to treat and difficult to explain from the point of view of pathology" (Weiser, 1977, p.408). Many of the published reports, if not all of them, confirm Codman’s impressions. The frozen shoulder remains a rheumatologic enigma (Bulgen, Binder, Hazleman, Dutton, & Roberts, 1984). In spite of this several studies have been undertaken to understand the etiology of the condition: to more accurately arrive at an appropriate diagnosis: to be able to provide optimal treatment: and to learn about the prognosis of the condition. Frozen shoulder is a frustrating condition, both for the patient and the physician, writes Neviaser (1981). The condition takes an extremely long time from which to recover. Symptoms may last for up to three or four years, claim some researchers. Others say that it can leave up to 70% of patients with slight but permanent restriction of motion. 60 W The frozen shoulder syndrom, defined by Reeves (1975, p.193), is "an idiopathic condition of the shoulder, characterized by spontaneous onset of pain in the shoulder with restriction of movement in every direction. Pain is often severe and, characteristically, disturbs sleep." The long term study of the natural history of frozen shoulder (Reeves, 1975) is important here because patients were followed up for 5-10 years or until their greatest recovery. Patients were only given analgesics to relieve pain and were recommended to rest the arm in a sling. No physical therapy was given during the recovery period, apart from instructions to exercise to regain external rotation and abduction. Reeves found the condition to follow three consecutive stages, one of pain, one of stiffness, and one of recovery. Ine_peinfinl_penicc lasted for 10-36 weeks: MW. that is, the time when no improvement took place, lasted for 4-12 months. After this, spontaneous recovery of movement followed. Inc zeccye;y_ne;icg took 5-26 months. The total duration of the symptom was an average of 30.1 months. The longer the stiffness stage, the longer it took to recover. The total time from onset to greatest recovery was between one and four years. Reeves reports that 40% of the patients recovered completely, 54% were left with clinical limitations of 61 movement, and the remaining 6% suffered from functional limitations that interfered either with their hobbies or work. Reeves defines clinical limitation as a loss of movement compared to the unaffected side. This limitation does not inhibit the patients’ normal functional activities, including work and hobbies. Binder, Bulgen, Hazleman, and Roberts (1984a) also found, at a review 40- 48 months after onset, clinical restrictions without functional impairments. Pain occurs with no prior trauma. It can involve the whole shoulder and is many times referred to the insertion of the deltoid muscle on the upper arm. During night, pain wakes patients up when rolling over on the affected shoulder. The movements which are especially painful are abduction and external rotation. The only way to relieve pain is not to move the arm. This leads to less mobility and increased stiffness. Thus a vicious circle is created (Roy & Oldham, 1976). t b t ? There is general agreement among researchers that most cases of frozen shoulder are idiopathic, that is, of unknown origin. But frozen shoulder can be caused by trauma: it can be associated with diseases such as diabetes: it can occur after myocardial infarction (Rizk & 62 Pinals, 1984) and in connection with neurosurgery (Bruckner & Nye, 1981). Early studies by Simmonds (1949) and Neviaser (1945), reviewed by Bulgen, Hazleman, Ward, and McCallum (1978), suggested frozen shoulder to be precipitated by degeneration of the supraspinatus tendon and to be associated with chronic inflammation of the shoulder capsule and of the subacromial bursa. Neviaser found at autopsy and at surgery the capsule to be "avascular, tense and markedly adherent to the head of the humerus," and that there were adhesions between the two synovial surfaces of the axillary recess, which limited abduction. He drew the conclusion that the thickened capsule was a result of a chronic inflammation (Neviaser, 1980). Later arthroscopic studies (Ha’eri & Maitland, 1981) found the joint capsule to be contracted in 60% of the patients they studied, but no adhesions. They concluded that causes for frozen shoulder are to be found in structures outside of the capsule, such as adhesions of the subscapularis bursa. The vulnerability of the supraspinatus tendon has been explained because of its passively supporting the humerus in a person standing or sitting and actively participating in abduction of the arm and in external rotation (Cailliet, 1981). Microvascular studies also show a constant relative 63 avascular area close to the insertion of this tendon (Bulgen et al., 1978). This last finding prompted researchers to investigate whether frozen shoulder was a localized autoimmune reaction to the damaged supraspinatus tendon. This is also what Bulgen et al. (1978) found, but it has later been disconfirmed by Rizk and Pinals (1984). There are conflicting opinions as well regarding what methods to use to confirm the diagnosis. Rizk, Christopher, Pinals, Higgins, and Frix (1983) and Neviaser (1980), among others, claim arthrography to be the only reliable method, while Binder, Bulgen, Hazleman, Tudor, and Wraight (1984b) do not consider it to be of any prognostic or therapeutic importance. Bruckner and Nye (1981) report results from other studies. No degenerations of the bony structures were to be seen in X-rays of the shoulder joint, while X-rays of the neck showed an increased incidence of disc degeneration C 5-6 and C 6-7, that is, the discs between the fifth and the sixth and between the sixth and seventh cervical vertabrae. Bersenaliwies When no conclusive results are to be found regarding physiological causes of certain conditions, some researchers turn to personality studies. The assumption is that the cause can be found in a patient’s personality. An early study by Coventry (1953) continues to be cited by 64 many. Coventry describes a "periarthritic personality" as somebody who is displaying deep-seated anxiety and apathy (Cailliet, 1981). But, according to Caillet, low pain threshold and disuse of the affected arm have to be combined with such a personality for a frozen shoulder to develop. Fleming, Dodman, Beer, and Crown (1976) investigated the personality profiles of 56 patients by means of a self- administered assessment of psychoneurosis, the Middlesex Hospital Questionnaire. The total score measures general neuroticism, of which there are six sub-categories: free- floating anxiety, obsessionality, depression, phobic anxiety, somatic anxiety, and hysterical traits. They found only that women showed significantly increased somatic anxiety in comparison to a control group. Somatic anxiety is defined as "a measure of the increased tendency of patients to focus anxiety symptoms to bodily structures and functions" (Fleming et al., 1976, p. 456). Based upon this finding, the authors claim it to be an important factor to consider both with respect to etiology and treatment. They do mention, however, that Codman (1934) argued that the personality changes seen in patients with frozen shoulder were the result of pain rather than the cause of the condition. Bruckner and Nye (1981) wanted to evaluate risk factors among neurosurgical patients, who are predisposed 65 to develop frozen shoulder. Among other tests they included the Middlesex Hospital Questionnaire with an assessment of the patient’s pain threshold. They found no correlation between the development of the condition and low tolerance for pain. They also found the sub-category depression to correlate significantly with a frozen shoulder condition, thus contradicting the Fleming study. The authors caution that pain itself could have led to the condition. nna; Ie tne Most Effective Treacnenc? There have been numerous attempts to compare different treatments, but there is no general agreement as to the most effective one (Thomas, Williams, & Smith, 1980). The treatments that have been evaluated include the use of local or oral steroids, manipulation under anaesthesia, ultrasonic therapy, various forms of physical therapy, and radiotherapy, to mention only a few (Bulgen et al., 1984; Hazleman, 1972: Thomas et al., 1980). But Hazleman (1972) seriously questions whether any therapy alters the natural history of the condition at all. Many researchers report favorable results from manipulation under anaesthesia (Haines & Hargadon, 1982: Helbig, Wagner, & Dohler, 1983: Thomas et al. 1980: Weiser, 1977). However, it is difficult to draw conclusions from these studies since none of them use the same diagnostic criteria. For instance, when some studies include patients 66 who have suffered from shoulder pain for only one month (Bulgen et al., 1984), one must question whether such cases are "true” frozen shoulders. Binder et al. (1984a) state that the prognosis for recovery and effectiveness of therapy remains uncertain. They assume that the conflicting results that are reported are signs of discrepancies regarding selection of patients, criteria for diagnosis, and criteria used for recovery. With respect to degree of recovery, findings vary from prolonged disability, to restriction of range of motion but with little functional impairment, to complete recovery in patients with "untreated" frozen shoulder followed up for two years, to favorable outcomes of those treated (Bulgen et al., 1984). Conflicting results are also reported regarding the effect of physical therapy treatments. End! IS the Effect 91 EDXSiQQJ Theranx TIEQIEQDI’ A comparable trial of ice and ultrasonic therapy demonstrated no significient advantage of one treatment over the other, as both treatment groups improved in terms of arm movement and pain relief (Hamer & Kirk, 1976). The long term prospective study carried out by Binder et al. (1984a) found that mobilization physical therapy was associated with a less satisfactory outcome compared to 67 either group receiving local injections, ice, or no treatment. Lee, Lee, Haq, Longton, and Wright (1974) compared the effect of three different treatments with a control group who received only analgesics. All treatments consisted of exercises combined with heat, or with hydrocortisone to the joint, or with hydrocortison to the bicipital tendon. Those who received analgesics regained least mobility. Among the other groups there was no difference. In a study by Bulgen et al. (1984), all patients were taught pendicular exercises and then divided into four treatment groups. One group was given intraarticular steroids, another mobilizations (developed by Maitland), and a third group ice followed by proprioceptive neuromuscular facilitation (PNF). The fourth group received nothing. The treatment lasted for six weeks. The group that received steroid injections suffered less from pain and regained mobility faster than the others during the first three weeks, but at a follow up six months after the treatment there was no difference with respect to :mobility between the four groups. The conclusion is that "there appears to be little place for physiotherapy alone, and, if used, it should not be continued for more than four weeks" (Bulgen et al., 1984, p. 360). Hazleman (1972) assessed the response to treatment in a retrospective study of 130 patients. The treatments given 68 were either steroid injections, physical therapy, or manipulation under anaesthesia. All patients were also instructed to perform exercises. No treatment was superior in reducing total duration of the condition. Physical therapy was found to exacerbate pain in 28% of the patients. One study by Rizk et al. (1983) makes a comparison between different physical therapy treatments only. The result is that prolonged pulley traction accompanied by transcutaneous nerve stimulation gave better results compared to a combination of heating modalities, therapeutic exercises, and gentle rhythmic stabilization manipulation. Mobility was increased in both groups but range of motion was regained more rapidly in the group that got pulley traction. The method of treatment with pulley traction is based on the premise that connective tissue shows plastic elongation when subjected to mild tension (Rizk et al., 1983). To conclude, frozen shoulder is a condition which in most cases has a spontaneous onset. Pain in the shoulder region leads to disturbed sleep at night, ordinary movements with the arm become painful, and the shoulder becomes stiff. Improvement occurs spontaneously, but the symptoms can last for up to four years, many times with permanent, albeit slight, limitation of the shoulder mobility. 69 In addition, there are conflicting theories as to the cause of the condition. Histological studies, immunological examinations, arthroscopy, and arthrography show different structures to be affected. Regarding therapy, some researchers argue strongly for manipulation under anaesthesia, while others are more cautious. Physical therapy has proven to aggravate pain in some studies. There is not even one name for the condition but several - stiff and painful shoulder, frozen shoulder, periarthritis, capsulitis, adhesive capsulitis. The only consensus that has been reached is that there is a chronic inflammation of the joint capsule. EEEEQEI The upshot of this review concerning a frozen shoulder has been to demonstrate how problematic the condition "idiopatic frozen shoulder" is. It is pnobiemetic fer ., -' ans as ,;e g. - 10 co 'm. r-. -, . . _-r. They cannot point to any particular reason for the development of the condition. They cannot guarantee the outcome of any treatment or that recovery will be complete. However, they can say with confidence that, given time, functional mobility will be restored. They can provide medication to suppress the pain and the inflammatory reaction of the joint capsule. Finally, they can refer the patient to a Physical therapist for help in reducing the pain and 7O regaining mobility eventually faster than if the shoulder had gone untreated. Although no studies document how many patients are being treated by physicians and by physical therapists, there is cause to assume that most patients are seen in physical therapy. The reason is that physical therapists have a variety of physical modalities and therapeutic techniques to offer, not as a cure but as support during recovery and an eventual hastening of it. s o e 's r blema ' o e 's . Prescriptions never say anything about hurting a patient, but rather to reduce the patient’s pain. However, In the non-acute condition there are also occasions when it may be necessary to hurt our patients. Examples are many and include stretching out of shoulder capsules and the application of transverse frictions. (Paris, 1985, p. 165) s s m t t' t. Apart from the pain and the inability to use the arm in a natural way, it is stressful not to know what caused the condition, not to know if full mobility of the arm will be restored or not. Even if it is comforting for health professionals to inform patients that the condition is reversible, it is of little comfort to the patients to hear that this will happen within approximately 30 months (Reeves, 1975). Besides, any treatment that aims at 71 restoring mobility is, in this case, painful. It is also unclear to whom or to what progress, or lack of it, should be attributed once treatment is initiated. Is it the therapist’s way of delivering treatment, the treatment technique itself, or the patient’s doings and her ability to endure pain that causes improvement or not? Or is the combination of all these factor most important? What is the role of the talk that the patient and the therapist engage in? The literature stresses the psychological value and impact of the therapist’s communication but excludes the talk that accompanies any particular treatment. It also pays minor consideration to the impact of the treatment technique upon the patient, and the patient’s experiences of the condition. Those studies that have focused upon the condition and its clinical treatments eliminate, on the other hand, the patient’s contribution to the result. This study focuses upon the everyday practice of physical therapy. The treatment technique that is being used, the therapist’s instructions in connection with the treatment, and what is said about the condition both by the patient and the therapist have been documented and analyzed. The following chapter will describe in detail how this study was carried out. CHAPTER THREE THE STUDY: ITS QUESTIONS AND METHODS Questions of the Study A micro-ethnographic case study was carried out to learn more about how physical therapists and patients approach the problem of frozen shoulder. The patient, who suffered from frozen shoulder, was followed through her treatments at an outpatient clinic. The following questions guided the study: "What constitutes the treatment situation? What do the patient and the therapist say and do when working together? What are the social, educational and interpersonal problems for the therapist and patient to work out in the therapy sessions? In particular, what makes a treatment session turn out the way it does? Who do the patient and the therapist become when working with each other?" Treatment situations were documented through participant observations in fieldnotes, on audiotapes, and on videotapes. Besides transcribed interviews, documents such as referrals, the therapist’s evaluations and progress notes were collected. Considering the importance of the 72 73 patient’s and the therapist’s accounts of what was going on, the three videotapes were the subject of viewing sessions and were also analyzed in detail by the researcher. One of them, a videotape made three weeks before the series of treatments was over (Video X), was selected to be reported. Details of its selection are presented as part of the data analysis. u ' ' t' o e ud The first part of the literature review revealed that few of the models of physical therapy practice that were given were founded on empirical studies. Rather, various theories and assumptions about practice were applied to treatment situations, to highlight certain aspects of treatment. This approach, in combination with the authors’ experiences as physical therapists, teachers, and researchers, then led to recommendations for how patient care should be improved. In spite of the authors’ good intentions, one can doubt the applicability of the recommendations since they were based on a particularly narrow or idealized view of the relationship between the therapist and the patient which was never questioned. The tendency to move quickly from certain assumptions of practice to idealized versions of it should be avoided. Otherwise one could claim that everything has already been said about the profession and that all practitioners need 74 to do is to follow the recommendations. But the idealized versions can easily become norms and if therapists try to live up to them, they manifest the particular relationship that presupposed them. The norms might also serve as criteria against which both patients and therapists can be judged. It is therefore important to stay close to naturally occurring treatment situations and to study them in detail, to focus upon the therapist’s doings in relation to the patient’s, to see and to accept that difficult and confusing episodes arise even in routine sessions, and thus refrain from categorizing professional practice as either good or bad. "Back to the things themselves," says Edmund Husserl, "the primary ‘inventor’ of phenomenology" (Ihde, 1979, p. 15). It is an imperative that must be taken seriously when the ultimate goal of a study is to gain insight into what constitutes therapeutic encounters. W This study is an attempt to describe, in detail, how physical therapy sessions, organized around the diagnosis of frozen shoulder, are carried out. By attending to the treatment procedure per se, the instructions accompanying it, the talk between the patient and the therapist, and the "sounds" of the therapist’s hands and the patient’s arm, the study shows how different forms of discourse evolve. By 75 analyzing the forms of talk the patient and the therapist use most frequently, a particular therapeutic relationship is uncovered. By paying attention to everyday clinical practice, the hope is to give a nuanced picture of the patient and the therapist as they create and sustain a working relationship that proves to last for a long period of time: to show how the two make sense of what is happening moment by moment: and to describe how misunderstandings of each other lead to episodes of confusion. The purpose is also to take seriously the patient’s active participation, both verbal and physical, in the treatment sessions, particularly since it "looks" as if the patient’s shoulder simply is manipulated by the therapist. Thus it will be possible to avoid reducing the patient to someone who is solely at a disadvantage: to someone who does not know what goes on in her body: to someone who has nothing to contribute to the treatment but information about her medical problem. eniginal Reeeerch Quescicns This study is guided by an interest in treatment situations and a curiosity about what makes sessions turn out the way they do. Recognizing the role of kinesics and the centrality of movement in physical therapy encounters, both talk and movement are focal and are analyzed in detail 76 for information about contextualization cueing and negotiation of social roles. Three basic questions were formulated prior to data collection. The fine; one concerned the fininge of the patient and the therapist. What do they physically do during treatment? Or more specifically, how do the patient and her physical injury and the therapist and the application of a specific treatment technique affect one another and come to organize a session in a particular way? Assuming that any treatment is mediated in part through talk, the eeccnc basic question focused specifically on the £213 between the patient and the therapist. What language is used in a therapeutic setting? How is this language used? How do the patient and the therapist talk with one another? What do they talk about? By looking at the treatment session as a whole and acknowledging that it is primarily oriented towards a patient’s physical problem, but assuming that this does not rule out or exclude the simultaneity of other aspects of healing, the third question saw the treatment session as an opportunity for the participants to ventilate concerns about the medical condition and to learn more about it. It approached the talk between the patient and the therapist from a psychological perspective, then from a pedagogical perspective. 77 s e e nd W Apart from these original, basic questions, additional and more specific questions emerged during the study. The viewing sessions proved to be highly important in this respect, but so did the videotapes themselves. The richness of information each videotaped event contained compelled or challenged the analyst to apply a variety of questions to the material itself. After the initial analytic viewings of the tapes described later on in this chapter were finished, certain general phenomena became salient. These were first formulated as strong, simplified assertions, such as, "The therapist does most of the talking," or "The patient only moves her arm as long as the therapist has her eyes on her." The assertions were then rephrased as questions and thus asked of the material. Regarding the gcinge or movements of the patient and the therapist, the following questions were asked: What treatment technique is being used? Exactly how is the treatment (the stretching) carried out? When is the stretching most effective or when does the "critical moment" occur? What is characteristic for the phase when stretching occurs and for the subsequent phase of recovery? What should be achieved during treatment and what is achieved? How does the session come to be organized around the specific diagnosis and the specific treatment? 78 With respect to the second basic question, the ccik between the patient and the therapist is considered important to study in detail, since inferences can be made and evidence found for what the patient and the therapist pay attention to, how they interpret what goes on, and who they become when working together. The following assumptions were therefore formulated and tested: The one who has the floor or takes a turn at talk exerts a certain amount of control and requires being listened to. The therapist, who is responsible for carrying out the treatment, talks most of the time during the phase of stretching. The patient talks most of the time during the phase of recovery. Three questions were asked, using some notions from conversation analysis: How much time is spent talking and how much time is spent in silence? Who has the floor most of the time? How many turns are uttered by the patient and by the therapist? Looking then at the fic;n_nnc_fnnc;icn of the patient’s and the therapist’s speech, and finding that the patient and the therapist did talk in different ways at certain times, the following questions emerged: What are the patient’s and the therapist’s primary modes of speaking? 79 What is characteristic for the patient’s and the therapist’s talk? Regarding the ccncenc of the talk: What topics are brought up? When do different topics come up? Who brings up which topic? What does the patient tell about her shoulder? What theme does the patient keep bringing up and how does the therapist respond? How do they talk about what happens during today’s treatment? Learning that the therapist was bothered by the patient "wanting to run the show," om ete ne es ons arose: What grounds can the therapist have for perceiving the patient in this way? Does the patient do or say anything in particular that makes the therapist feel this way? Being also struck by seeing moments in the videotapes where the patient and the therapist, late in the series of treatments, seemed uncertain about how to proceed, those episodes were analyzed in detail. It proved, for instance, 80 that when the patient was ready to work, the therapist kept on talking and vice versa. How do such misinterpretations come about? What causes the confusion? Why, all of a sudden, do the two misinterpret one another? What larger issues do these brief confusing moments point to? The last basic question, regarding eche; espects of neeling, was approached in the following way: What evidence is there of psychological benefits for the patient in seeing a physical therapist? What of the therapist’s doings might be signs of psychological thinking? Considering the session as an educational event, what forms of teaching and learning can be found at the beginning of the series of treatments and towards the end? What instances of "non-learning" can be inferred from the data and what does this tell about the patient’s and the therapist’s assumptions regarding what is important in physical therapy? Methods of the Study Ethnographic theories of culture and communication offer one useful way to proceed to study treatment 81 situations. Erickson, Florio, and Buschman (1980) claim that.fieldwork methods of ethnographic research are appropriate when one wants to find out what is happening in social action in a particular place, what these actions mean to the people engaged in them, and how the actors are serving as environments for each other. Asking what is happening in a specific place is important for three reasons (Erickson & Wilson, 1982): First, everyday life (because of its familiarity and because of its contradictions) is largely invisible to us--we do not realize the patterns in it. Second, everyday life is organized in slightly differing ways from one setting to the next. Often these objectively small differences of pattern and meaning can make a big difference in the subjective reality and qualitative character of social relations in the setting ... Third, because many of the pattern are outside of conscious awareness for the actors in the setting and because many of the patterns are constructed around distinctions of meaning attached to slight differences in amount (such as the measurable difference between ‘not too loud’ and ‘too loud’), description and analysis of specific local details is necessary. (p. 40) In this study, participant observations along with fieldnotes, formal and informal interviews, and collection of documents, that is, traditional methods in the social sciences (Schatzman & Strauss, 1973), were used to get as complete a picture as possible of physical therapy sessions. Several sessions were videotaped or audiotaped. In addition, three of the vidotapes were looked at with the patient and the therapist, on separate occasions and not 82 simultaneously, to elicit additional information. These viewing sessions are discussed under "Viewing Sessions with the.Participants" in this chapter. Besides, less formal ways of learning about the two participants occurred during casual conversations before and after the treatments, over a cup of coffee or when having lunch together. 0 s' e a A decision was made early to do an in-depth study of one patient and one therapist and to follow the two throughout a course of treatment. This decision was formulated after having completed a pilot study of physical therapist-patient interaction at a physical therapy department located in a hospital (Bk, 1983). That department served both inpatients and outpatients, and there was a rapid turnover of patients. Several of the eleven therapists who worked there worked part-time. Depending on the time of the day, the same patient might therefore be treated by one therapist in the morning and another in the afternoon. The study came to focus more upon different styles some of the therapists used when working with patients, irrespective of whether it was the first, the third, or the last session in a series of treatments that was observed, rather than providing detailed accounts of a complete treatment. 83 I chose to study a single therapist experienced in her field. Assuming that years of professional practice makes a therapist feel confident about her work, it was hoped that this would make her less affected by the recording equipment and my presence, enabling me, in turn, to capture what I aimed for, namely ordinary or routine treatment sessions. c e n Anticipating that my own previous experience of working at Swedish outpatient clinics would facilitate my understanding of how an American outpatient clinic is organized, I made an appointment with Kathy Davis,1 a physical therapist at such a clinic, in the summer of 1983. The purpose was to find out whether Kathy was the experienced therapist I was looking for and if she would be interested in allowing me to observe her work with patients. Kathy had actually worked many years as a physical therapist, she was the only therapist who worked at this clinic, and she was willing to be a participant in the study. The clinic itself was small enough so that others, like the assistant and the patients, would not be bothered by my presence. At the time of this inquiry, no patient was selected. lAll names of people, places, and institutions are pseudonyms. 84 £h212§.21.2§£i§n£ The only criteria for a prospective patient were that she or he should not suffer from a chronic condition or disability, that the diagnosis should be common in an outpatient clinic, and that amounts of treatments were limited. The diagnosis itself was of minor importance at this point. No search for a patient had yet taken place when, in the middle of January 1984, one of the professors “ teaching a class I attended mentioned that she had just started going to the Medical Center for physical therapy for her sore shoulder. Realizing that a prospective patient had presented herself, I seized the opportunity and asked if I could make observations and videorecord the remaining treatment sessions. Dr. Strauss and Kathy Davis agreed, and the data collection process started. new The process of collecting data about the participants parallels, in this study, that of the patient going to physical therapy. This means that as a patient one does not know how many treatments will be needed before recovery is complete, even if the prescription is restricted to a certain number of weeks. The patient starts out with an initial referral that, apart from the diagnosis, prescribes a treatment and sets a time limit. In this case, the 85 diagnosis is a right frozen shoulder, the physical therapy services requested are "Hot packs, ROM (range of motion), massage, ultrasound," the number of treatments to be carried out are "3 x wk x 4 wks" (Referral, 1/6/84). If the patient had gotten well in due time, the treatments would have been terminated after four weeks. But neither the patient, the therapist, nor the referring physician was pleased with the result. Progress did occur, but slowly. A second referral was issued. It stated "Continue P.T. for 1 month as written. Then call for further orders" (Referral, 2/10/84). It proved difficult to predict when the patient would be completely rehabilitated. The treatments continued without further written referrals through agreements over the phone. It took almost five months before the patient had regained close to full mobility of her shoulder. The patient made 42 visits to the physical therapy clinic from January 9 until May 31, 1984 (see Table 3.1). The first treatment was given by Kathy Davis, the following three by a male therapist as Kathy had one week’s vacation. On January 18, 1984 Kathy was back again. The treatments were given three times per week during January, February, and March, and twice a week during April. In the first week of May an attempt was made to give treatment daily for a full week, but only three of these were carried out. During the last four weeks of May, the patient was seen only once 86 a week. The recording of the treatments began on January 18 , 1984, the patient’s fifth visit. Out of the remaining 38 visits, 28 were observed. Ten of these treatments were videotaped, ten were audiotaped and eight were documented in fieldnotes (see Table 3.1). Data collection was adapted to what actually happened. 81): sessions were videotaped and two were audiotaped during the first month of treatments. I had assumed, like the Patient, that the stipulated time on the first referral was an indication of when rehabilitation was to be completed. Later on two sessions were videotaped in March, one in April, and one in May. After the patient had terminated her treatments, participant observations were continued throughout the year of 1984. My status as a student as well as a licensed physical therapist made possible particular opportunities to study bcth the patient and the therapist outside the treatment sessions. As a student I was able to observe the patient while attending some of her courses at the university. As a physical therapist I worked as a substitute during five weeks in 1984. This occurred after the patient on whom this s'tudy is focused had terminated her treatments. 87 Table 3.1 Appointment Times and Mode of Recording W Weeding 12:32 Time .1/09/84 ? None 1/11/84 ? None 1/13/84 ? None 1/ 16/84 ? None 1/18/84 11:30 AM Videorecording I Study begins 1/20/84 10:00 AM Videorecording II 1/23/84 01:45 PM Audiorecording 1/25/84 11:00 AM Videorecording III 1/27/84 11:00 AM Videorecording IV 1/30/84 01:00 PM No observations allowed 2/01/84 11:00 AM Videorecording V 2/ 03/84 11:00 AM Videorecording VI 2/ 06/84 02:00 PM Audiorecording :5 08/84 02:00 PM -- 10/84 08:45 AM -- 2/ 13/84 01:00 PM Fieldnotes 2/15/84 09:00 PM Fieldnotes 2/ 17/84 Cancelled by P -- 2/20/84 Cancelled by P -- 2/27/84 01:00 PM Audiorecording 2/29/84 01:00 PM Audiorecording 3/02/84 09:00 AM Videorecording VII 3; 05/84 01:00 PM Audiorecording 07/84 01:00 PM -— 3/09/84 01:00 PM Videorecording VIII 3/12/84 09:00 AM Audiorecording 3/14/84 09:00 AM -- 3/ 3.6/84 10:00 AM -- 3; 19/84 09:00 AM -- 26/84 ? -- 3/ 29/84 08:15 AM Audiorecording 4/ 03/84 08:15 AM Audiorecording 4/ 05/84 08:15 AM Fieldnotes 4/ 10/84 08:15 AM Audiorecording :/ 12/84 08:15 AM Fieldnotes 4;; 5.7/84 08:15 AM Videorecording Ix 9/84 08:15 AM -- g/30/84 Cancelled by T -- s/()1/84 08:00 AM Fieldnotes s/ 02/84 08:00 AM Audiorecording S/ 03/84 08:00 AM Videorecording X 8/08/84 08:00 AM -- 3/14/84 08:00 AM Fieldnotes 8/22/84 08:00 AM Fieldnotes / 31/84 08:00 AM Fieldnotes 88 One viewing session and two brief interviews were also held with the patient in 1985, and three viewing sessions with the therapist (see Table 3.2) . Table 3.2 Date for Viewing Sessions, Videotape Being Analyzed, and Participant Ease 11.09.918.29 Ween: 03/08/84 V The physical therapist 10/25/84 I The physical therapist 11/01/84 I The physical therapist 11/08/84 X The physical therapist 08/01/85 I The patient ‘ The opportunity to serve as a therapist provided certain insights about how the therapist in the study looked upon her patients and their predicaments. For instance, in addition to receiving information about the patients’ diagnosis I also was informed about "what kind of people" they were . 28W When Kathy talked about the patients she categorized them using three different criteria. One was a rough d3~agnosis, another was their different scheduling pI‘eferences, a third was whether patients were demanding or I“Qt. When the therapist talked about the patients’ diagnoses, they were either labelled "chronic pain Da‘tzients," "rehab patients," or "sports medicine patients." 89 When she talked about what time of the day the patients were scheduled, there were "professors from campus" who came early in the morning, at lunch, or late in the afternoon. Between 10 and 12 noon and 1 and 2 PM "those on ‘vweajlfare" came. "College kids" showed up between 3 and 4 PM (Viewing session, 11/1/84) . An average of 13 patients per day were seen at the physical therapy department. The third way the therapist talked about the patients was either as " easy" or "hard." For example, during one viewing session, the therapist explained that, The easy patients are the patients that are very self-motivated. They have a goal in mind already and all I do is give them the tools to achieve that goal. Then there are the hard patients, that don’t have a goal in mind. They suffer. They don’t see the end yet and they don’t see how to reach it. And I have to find out, to communicate well enough with them so I can point those things out to them.... Those are my hard patients. Well, there is a major difference. Just look at the department, sports medicine versus rehab medicine. Sports medicine is a simple injury. They can relate to the injury that happened. They are aware of it. There are no other conflicting things interfering with the problem they are having. They know they want to get better and they know what to do to get better. And here I am, helping them get better. But with the rehab patients, other things are involved. (Viewing session, 11/1/84) In the therapist’s description of the "easy" patients, there is no doubt about what was the cause of the injury, :"<> doubt about the effectiveness of the treatment, no other problems that interfere with the rehabilitation, and the 90 patients want to get well. They do not question the 't:1:¢eatment the therapist provides. Being athletes, they are tassted to being told what to do. This might facilitate following the therapist’ s instructions. However, "easy" patients can turn into "hard" patients. In the therapist’s \rjlcsw, Sometimes they are looking for drugs or they are addicted or what not to running for example. Then they turn into hard patients and you have to do more. You have to teach them about preventive medicine and it is a little harder for them to accept. (Viewing session, 11/1/84) Patients can also be "hard" because it is unclear what 'tllieeir problem really is: I have to find out what is bothering them, so I know what I am treating. Whether I am just treating the back, a plain injury, or whether there are other things that at least I need to be aware of. (Viewing session, 11/1/84) Another group of "hard" patients are those that have other Opinions of what should be done. Of these the therapist says, I want him to do one thing that I know will help him, which he refuses. He wants to do something that is not getting him any better.... My challenge would be to get him to go for what is best for him. But if he doesn’t want to do that, there is nothing I can do. (Viewing session, 11/1/84) 91 The way the therapist categorizes her patients <:<>rresponds to the amount and kind of work required of her ‘t:c> treat them. Consideration has to be taken of the injury the patient suffers from (simple or complex): the cause of tztaezinjury (known or unknown): eventual other problems that jgrrterfere with the rehabilitation: the patients’ attitudes t:c> or understanding of the treatment: and their willingness t:c> get well. The therapist summarized the discussion in the 15c>llowing way: "Betty (the assistant) and I like a couple ()1? sports medicine patients in between our hard patients, lbeeceuse they are easy and they are very positive" (Viewing assession, 11/1/84). I] E !' ! . ll 5! 2 Dr. Strauss, the woman who in this study is being treated for a painful shoulder, belongs to the category "hard" patients (Viewing session, 3/8/84). This is dllscussed in detail in the section "Viewing Sessions with the Participants" in this chapter. Dr. Strauss reports her sl’lnptoms as follows in an early interview: Actually almost a year ago (January) I began to have pain in my right shoulder when I carried my briefcase.... It must have been around May, there was sort of a cold wet spell, I noticed when I woke up in the morning my right arm would hurt. But I couldn’t figure out why, I hadn’t done anything to injure it. And I thought it would get better by itself, but by, I would say June, I could no longer lift my arm up like when you rest it on a car window. I couldn’t lift it like that. Iifcaaxr Said 92 Or I couldn’t lean on it on a table having lunch. By that time, I was less and less able to lift my arm or use it at all and it was very stiff. There seemed to be no cause whatsoever for my shoulder to hurt and not get better.... I am also left handed so I don’t use my right arm very much and it just seemed like it got that way all by itself.... There was certainly no reason to wake up in the morning and find my arm hurting. For a while it was hurting all the time so that my whole right side, upper right quadrant was painful and ached. My whole shoulder ached, muscles, this muscle bundle here between my shoulder and my neck was painful.... I probably did it to myself by not moving it. But the more it hurt, the more I didn’t use it and the more I didn’t use it, the worse it got and so on. Now I am all frozen up and I must have done it to myself.... Well, I’m not responsible for initiating it, but maybe for the frozen part of it, from just not using it. (Interview with the patient, 1/20/84) This description is reiterated in a viewing session a after the treatment was finished, when the patient the following: All I knew was that it her; and I couldn’t dc anything. And I couldn’t eleep at night. Then you wake up and you’re EIIQQ and then you still have to kind of plod on with your day.... I couldn’t lift it, I couldn’t turn it, I couldn’t pull it over this way (across the chest). (Viewing session, 8/1/85) Dr. Strauss’ description of how the problem started, it‘cmw "unbelievable" it was to get severe pain without a 93 known cause of it, how restricted the use of her arm was, is typical for an idiopathic frozen shoulder. What also puzzles her is whether she herself might have caused "the frozen part" of it, something never intended. Dr. Strauss is a 50-year-old woman. She was born in Kansas, but has lived the last 13 years in Lindesberg. She is a social scientist and holds a position as a full professor at the university. Before going into academics, Dr. Strauss worked as a lab technician. Dr. Strauss had been referred to the Medical Center by her primary care physician, Dr. Brown. Originally the diagnosis was tendinitis of m. supraspinatus, for which Shots were given. The pain ceased only temporarily. Physical therapy treatment at a local hospital in November 1983 helped initially, but after one session pain increased tremendously and Dr. Strauss never went back to that clinic (Video I, 1/18/84) . Troubled by the gradual worsening of her shoulder pain, Dr. Strauss had gone through several e1 inical examinations in order to find out why the problem Occurred. A car accident in 1979 could potentially have acne some damage to her neck. Insurance covered all the e>€penses for medical matters eventually related to the heczident. X-rays were taken of her neck, an EMG was carried Qut, and an appointment with a neurosurgeon was made to Qiscuss the findings. Dr. Strauss reported these findings 94 to the therapist during an early therapy session as follows: There are posterior and anterior osteophytes on the fifth and sixth cervical vertebrae, a central osteophyte in the fifth vertebrae and a defect in the area of the fifth vertabrae. That’s from the myelogram. So she (Dr. Brown) said then that it was one of those things pushing on the spinal cord. Must be the central one. I don’t know. She (Dr. Brown) said it (the EMG) was abnormal but not specifically abnormal. Anyway I didn’t have all the symptoms that she would expect, if the nerve was entrapped. What she (another physician) said in the hospital was that there was a large spur pushing on the spinal cord and that she thought it ought to come off. That’s why they sent me to the neurosurgeon and then he said he didn’t think, that he thought that might or might not bring relief. So he and Dr. Hall and Dr. Brown decided to be conservative. (Video I, 1/18/84) The conservative treatment was to try physical therapy zigzain and in January 1984 Dr. Strauss started seeing Kathy IDatvis, registered physical therapist, at the Medical center. 1] El . J Tl l ! . !l E! 3 Kathy Davis is 40 years old. She was born in Europe, where she also received a bachelor of science degree in physical therapy. However, she never practiced her pZI'—"<:>fession while in Europe. She moved to the United States 2 0 years ago and she has worked as a physical therapist for ‘t:}he last 12 years. Before accepting her present position at 95 the Medical Center, she worked for six years at a pain clinic in a hospital in Hallsberg. since the opening of the physical therapy unit at the Medical Center in 1983, Kathy Davis has been the only physical therapist working there. To help her she has an assistant. Dr. Strauss and Kathy Davis live very close to each other north of the university campus, but had never met until the treatments started. Ine Medical Cence; A market study of the Medical Center (Health Systems, :1984) reports the following. The Medical Center opened in 21976. It is located in Lindesberg between major freeways, .krut.on a low traffic road. It was designed for two IPIIrposes. One, to provide complete outpatient health care Eseervices the general public, the university faculty, and ‘lee staff. Two, to serve as a clinical setting for the Inedical programs at the university. The Medical Center offers eleven different major programs and is staffed by both allopathic and osteopathic physicians. The Health Institute (HI) is one of the programs. It, 45%?! turn, consists of two separate clinical entities. One sE>ecializes in sports injuries, the other in medical 3‘?ssible. This provides an easy way for the patient to do liter own evaluation, to get a sense of her progress. The l=tes, but are frequently referred to in my fieldnotes (see AI>pendix A) . C es Treatment situations are very complex. Roughly, one <=iin.say that they involve two people, a diagnosis, 8 i‘llbeatment technique, and a location. The complexity lies in <3