PLACE IN RETURN BOX to remove this checkout from your record. TO AVOID FINES return on or before duo duo. _________1 DATE DUE DATE DUE DATE DUE # O r" - 8 - 1L 1 ’ uy , § In . . 5 fl — (L: E] Jl :H J :jll -—J MSU Is An Affirmative Action/Equal Opportunity Institution ammo-m AIDS EDUCATION FOR MIGRANT WORKERS: AN EXPERIMENTAL EVALUATION OF CHANGES IN KNOWLEDGE, ATI'ITUDES AND BH-IAVIORS by Milagritos Gonzalez Rivera A DISSERTATION Submitted to Michigan State University in partial fulfillment of the requirements for the degree of DOCI'OR OF PHILOSOPHY Department of Psychology 1992 c/~//— 5/4: 7 ABSTRACT AIDS EDUCATION FOR MIGRANT WORKERS: AN EXPERIMENTAL EVALUATION OF CHANGES IN KNOWLEDGE, ATTITUDES AND BEHAVIORS By Milagritos Gonzalez Rivera This research designed, implemented and evaluated two HIV/AIDS educational interventions for the Hispanic migrant community in Michigan. The main objectives of the educational effort were : (a) to increase knowledge about AIDS in Hispanic migrant communities, (b) to promote the subjects exploration of their attitudes towards people with AIDS (PWAs), (c) to motivate more openness to receive information about AIDS, and (d) to increase awareness of the importance of AIDS education for the Hispanic community. A participatory learning meeting was chosen as the preferred educational strategy for the migrant families. A field experiment was conducted comparing this approach to didactic learning meetings and control condition meetings. Family units on six migrant camps were randomly assigned to one of these three conditions. Two non- equivalent control camps were studied. Quantitative data on knowledge about AIDS and attitudes toward PWAs, homosexuals, and injection drug users was gathered with a post-test survey. Qualitative observations were recorded about elements of the culture and social conditions, and receptiveness and understanding of the HIV/AIDS prevention messages. There was a follow-up on behaviors related to openness and awareness. The study found (a) high scores on general knowledge about AIDS across all groups, (b) significantly higher scores on knowledge about prevention in the participatory learning group than the didactic or control groups, (c) significant positive correlations between attitudes towards homosexuals, drug users and PWAs and the scores on general knowledge about AIDS, ((1) positive correlations between attitudes toward homosexuals and drug users, and attitudes towards PWAs. There were no significant differences between groups in the variables openness and awareness. Still, the encouragement of openness to information about AIDS and the display of awareness of the nwd to learn about the topic were captured in qualitative observations. Qualitative observations are discussed about interaction between the cultural beliefs and the implementation of the educational program. Copyright by MILAGRITOS GONZALEZ RIVERA 1992 ACKNOWLEDGEMENTS First I want to express my gratitude to the sponsors of this research, Cristo Rey Community Center, the Mid-Michigan Chapter of the American Red Cross, the HIV/AIDS Prevention and Intervention Section (MDPH) and the Department of Psychology at Michigan State University, because of their faith in this project and their interest in the Hispanic community. Next I need to thank my advisor, Dr. William Davidson and committee members, Dr. Anne Millard, Dr. Galen Bodenhausen, and Dr. Marilyn Rothert for their advice, support, and patience during this fast pace process and for their willingness to teach me what I needed, and to learn with me from this research. I need to mention the "victims” of this project, my family and friends: my friend, boss and companion during the visits to the camps, Robert Patifio, and his family who all participated in this project in ways they never expected to be involved; my parents Orlando and Vivian, and my sisters, Chaqui and Lourdes who did their best to support me and to ”panic" with me when there were problems; and my friends Olga Hernandez and Waded Cruzado who have always been there for me and never lost their faith in this project. Having this team of people supporting and pressuring me to achieve, is probably one of God's ways to more directly say when He wants me to do something. But more than to anyone else I owed this project to the migrant families who let me interrupt their lives and routines visiting them, setting up a tent in their yards and inviting them to come to help me learn if I could be of help. What I am reporting in this dissertation belongs to them and it was their decision to let me see it and record it. I will show my appreciation of what they did for me communicating what they teach me to people that can work and provide services to Hispanic migrant families. TABLE OF CONTENTS CHAPTER I: INTRODUCTION CHAPTER II: AIDS AND THE GENERAL PUBLIC AIDS: Origin and Development The HIV/AIDS Epidemics Knowledge and Attitudes about AIDS CHAPTER III: AIDS AND THE HISPANIC COMMUNITY Knowledge, Attitudes and Behaviors of Hispanics about AIDS Special Issues on AIDS Education for the Hispanic Population Attitudes Toward Homosexuals Cultural Values HIV/AIDS Prevention HIV/AIDS Prevention Programs Theories of Prevention Summary and the Need for Further Research An HIV/AIDS Prevention Program for Hispanic Migrant Families CHAPTER IV: METHOD Setting Research Participants Sample Research Design Procedure Participatory taming group Didactic Learning Group iv \O\)\) 20 20 27 28 31 38 38 43 53 7O 7O 72 75 78 79 82 87 Control Group 87 Measures 88 The Questionnaire 88 The Qualitative Observations 95 CHAPTER V: RESULTS 97 Quantitative Findings . 97 Knowledge about AIDS 97 Attitudes Towards People with AIDS 102 Knowledge about AIDS and Attitudes Towards People with AIDS 103 Attitudes towards People with AIDS and Behaviors Related to 103 Openness and Awareness Attitudes Towards Homosexuals and Drug Users 105 Openness to Information about AIDS, and Awareness of the 108 Relevance of Educating the Community Summary of Quantitative Findings 109 Exploratory Analysis 109 Age, Education, and Knowledge about AIDS 110 Age, Education, and Attitudes 110 Number of Previous Sources of Information about AIDS 11 1 Relationship Between Responses about Behaviors and the 11 1 Actual Behaviors Relationship Between the Behavioral Cards and the Actual Behaviors 112 Regression of Independent Variables into Knowledge about AIDS 113 Summary of Exploratory Analysis 114 Qualitative Observations 116 Satisfaction with the Educational experience 116 Sex Roles 119 Women's Reactions and Behaviors Men's Reactions and Behaviors Young Couples (17 to 25 years old) Older Couples (26 years old or more) Cultural Beliefs General Health Values Frequently Asked Questions Summary of Qualitative Observations CHAPTER VI: DISCUSSION Research Questions Summary of Findings Limitations of the Study Issues for Further Research Conclusions and Recommendations Bibliography Appendix A: Format and Content of the Invitation Appendix B: Key Messages Provided in the Presentations Appendix C: Summary of Content of Public Service Advertisements Appendix D: Consent Forms Appendix B: English and Spanish Versions of the Questionnaire Appendix F: Examples of the Color Coded Cards Appendix G: Tables 120 122 123 124 124 126 127 128 131 131 143 149 150 152 157 162 163 164 165 167 175 178 LIST OF TABLES AND FIGURES Figure 1: Elements of the Health Beliefs Model affected by social influences and information about HIV/AIDS. Figure 2: Elements of the Theory of Reasoned Action affected by social influences and information about HIV /AIDS. Figure 3: A model of health behavior through the promotion of openness and awareness. Figme 4: Model for the prevention program implemented. Figure 5: Research Design. Figure 6: Relationship Between Variables. Table 1: Number of Migrants Invited, and Attendance by Gender and Condition. Table 2: Mean Age and Education by Conditions. Table 3: Distribution of Responses on Demographic Characteristics by Condition. Table 4: Purpose of the Visits to the Camps. Table 5: Variables and Sections of the Questionnaire. Table 6: Item-total Correlation for Scores on Knowledge about Prevention. Table 7: Item-total Correlation for Score on Attitudes Towards People with AIDS. Table 8: Item-total Correlation for Score on Attitudes Towards Homosexuals. Table 9: Item-total Correlation for score on Attitudes Towards Drug Users. Table 10: Average Score on Knowledge about AIDS on each group. Table l 1: ANOVA of knowledge about Prevention by Condition. Table 12: ANOVA of score on Attitudes Towards People with AIDS. 55 56 58 65 78 146 75 76 76 80 89 9O 92 93 100 102 13bit Tabb Tabi Tab! Tab Tab Table 13: Table 14: Table 15: Table 16: Table 17: Table 18: Frequencies on openness and awareness. Mean Group Score on Attitudes Towards Homosexuals and Drug Users. Relationship Between Age and Education, and Attitudes. Regression on General Knowledge about AIDS. Regression on Knowledge about Prevention. Sex Role Behavior During the Presentations. 104 105 110 114 114 129 CHAPTER I INTRODUCTION De la Cancela (1989), Singer, Flores, Davison, Burke, Castillo, Scanlon and Rivera (1990), and Marin and VanOss Marin, (1991) advocate for research on the social issues faced by Hispanics living in the United States. Marin and VanOss Marin, (1991) identify "Prejudice, discrimination, institutional racism, low academic achievement, health problems, lack of access to public services, poor housing, underemployment and unemployment" (p.2) among the unresolved topics that the limited number of social researchers focusing in the Hispanic community have to study. Recently, an even more critical and frightening concem—related to all the other social issues-~has been added to the list. It is the high rate of Human Immunodeficiency Virus (HIV) in the Hispanic population in the United States; twice as high as among whites non-Hispanics (Centers for Disease Control, 1989). Singer and his colleagues (1990) reported that in 1988, even thought Hispanics constituted about 8% of the U.S. population, they accounted for 15% of Acquired Immunodeficiency Syndrome (AIDS) eases reported to the Centers for Disease Control. Moreover, Selik, Castro and Pappaioanou (1988) found out that the risk of AIDS is higha in African Amerieans and Hispanics than in whites. The Center From Disease Control reports that 108,788 of the cases of HIV infection reported were whites, 58,791 were Black and 33,204 Hispanics (Michigan Department of Public Health, J an. 1992). In Michigan the cumulative rates of HIV (cases per 100,000 of the population in that group) are 16.5, 105.9 and 39.4 in whites, blacks and Hispanics respectively (Michigan Department of Public Health, Jan.1992). Even though the data shows that people of color (specifically blacks and Hispanics) have been disproportionately affected by the epidemic, there is neither enough research on the reasons for these high rates of infection , nor enough information regarding the preventive interventions that will work best in Hispanic or non-Hispanic communities. The characteristics of the HIV (Human Immunodeficiency Virus) and AIDS (Acquired Immunodeficiency Syndrome) epidemic are so different from those of any other venereal disease (e.g., syphilis) that the research community has not identified the most effective psychological, educational, social or medical intervention to control the spread of the HIV infection. Some of these characteristics of the HIV epidemic are: (3) AIDS is a fatal disease which could induce great fear among those who correctly or incorrectly perceived themselves to be at risk; (b) the long latency period from initial infection to development of symptoms—sometimes more than five years—(Des Jarlais, & Stepherson, 1991) which makes it impossible for the general public to identify who is infected; (c) HIV is transmitted through behaviors such as unprotected receptive anal intercourse, sharing of needles between drug users, or unprotected vaginal intercourse (Morin, 1988) which produce pleasurable and have been part of most society's sexual practices ; (d) the need for immediate prevention initiatives (and services) appears to outweigh the need for research on effectiveness, and consequartly, many different programs are taking place, but there is little evaluation research being conducted (on lack of funding for experimental research on the educational methods to change risk behaviors see,Watkins, 1988) ; and (c) all the HIV prevention messages are controversial, making it difficult to obtain government and public support for the implementation of HIV/AIDS prevention programs. Otha' obstacles limiting the effectiveness of prevention strategies are: (a) lack of knowledge about the attitudes and behaviors of specific populations, which makes it difficult to design programs for them (Bakeman, McCray, Lumb, Jackson, & Whitley, 1987; Stall, Coates, & Hoff, 1988; Singer, Flores, Davison, Burke, Castillo, Scanlon, & Rivera, 1990;Marin & VanOss Marin, 1991); (b) the ethical dilemmas faced by the government and health educators because of the potential conflict of some programs with commonly accepted principles of biomedical ethics--beneficence, justice and respect for autonomy (Walters, 1988)-,the explicit presentation of information about AIDS risk behaviors, and with mandatory HIV testing (Eisenberg, 1989); and, (d) the stigmas attached to AIDS because of its evocation of death and illness-the "fundamental anxiety" we repress, according to Schutz (cited in Herek and Glunt, 1988)-and especially when linked with the groups that have been identified at highest risk of developing AIDS: homosexuals, drug users, blacks and Hispanics (Herek & Glunt, 1988; Sabatier, 1988). The moderate success of preventive efforts due to the barriers listed above, supports the logic of Batchelor' s (1988) statement about the causes of the spread of the disease, "AIDS is caused by a virus, but clearly it is indirectly being spread by fear, denial, and prejudice” (p. 853). It is expected that fear, denial and prejudice could be in some ways diminished by educational efforts which are the main strategies in prevention of illness like AIDS. Some of these reactions are probably relawd to the confusing information about what AIDS is, its origin and its ways of transmission. Unfortrmately, the lack of information about AIDS is more common among blacks (Hardy, 1990) and particularly Hispanics (Dawson and Hardy, 1989), whom also show higher cumulative incidence of AIDS than the White non-Hispanic adults (Bakeman, McCray, Lumb, Jackson, & Whitley, 1987; Torres, R. E., 1990). Given the characteristics of the HIV epidemic, and the barriers to prevention programs many researchers suggests that, in the absence of a vaccine to prevent the HIV, the only way to control the epidemic will be educating the population about the risk factors (Fisher, 1988; Eisenberg, 1989; Sabatier, 1988; Baum & Nesselhof, 1988; Crawford, Jason, & Salina, 1990; Peterson, & Marin, 1988; Ostrow, 1989). Thee is a large Hispanic community in Michigan (mostly migrant workers). In a recent report, providers of services to this community identified health as the second most important problem of Hispanic migrant workers (Rochin, R.I., Santiago, A.M., & Dickey, K.S., 1989). Reports about health of Hispanics in the Midwest also show that the cumulative incidence of AIDS is much higher than the cumulative incidence for white non-Hispanics in Michigan: 20.3 vs. 9.9 per 100,000 (Torres, R., 1990a, 1990b) and 39.4 vs. 16.5 per 100,000 (Michigan Department of Public Health, January, 1992). Lafferty (1991) interviewed a convenience sample of 411 eastern stream migrant farm workers and found that : (a) 36.8% of the men had two or more sexual partners during the previous year, (b) 25% reported having multiple partners without the use of a condom, (c) anal intercourse was present at insignificant levels, (d) 18% reported having intercourse with women who sell sex, (e) 2.9% said they used illegal drugs, and (f) 20.3% reported self-injecting antibiotics and vitaminsufrom which 3.5% reported having injected those with a shared needle. Also, Selik (1989) reported that the risk of AIDS for Hispanics in the Midwest was three times higher than the risk for non- Hispanic Whites. If education is a key to AIDS prevention, it is critical to note thata survey about knowledge, attitudes and behaviors of Hispanics served by the Cristo Rey Community Center in Lansing (Special Office on AIDS prevention and Cristo Rey Community Center, 1990), showed high percentages of people answering incorrectly to questions about AIDS and about ways to prevent it. Intaestingly, different studies have found that the Hispanics get their information about AIDS mainly from the television and that a large proportion of the samples reported having heard about AIDS (Dawson, D.A., & Hardy, A.M., 1989). Why is theresuchadifference intheknowledgeandattitudesaboutAIDSintheI-Iispanic community when compared to other groups? Stipp and Kerr (1989) suggested that negative attitudes toward homosexuals constrain the ability of the media to communicate is It imp Sun the meSs information about AIDS to the general public. More specific to the Hispanic community, it has been hypothesized that the culture and beliefs of this group have not been taken into consideration in the design of educational efforts and therefore, it is difficult for Hispanics to relate with the information and/or to follow the advice (Mays, V.M. & Cochran, SD, 1988). Some elements of the Hispanic culture and beliefs that have been suggested for consideration in the design of programs are: religiosity, sexuality, "familismo', "simpatia" script, "respeto"--also discussed as ”power distance” by Marin and VanOss Marin, 1991", ”machismo", and "marianismo". Also, it has been suggested that AIDS education efforts should not be limited to passive dissemination of information techniques, and that participatory approaches could be more effective (Crawford, Jason, & Salina, 1990). The lack of information on the sexual behaviors of Hispanics and other people of color as well as a lack of information regarding their attitudes toward prevention behaviors makes the design of prevention programs for these communities very uncertain. Howeve, the high and fast rate of HIV contagion among people of color does not allow researchers to conduct the studies on attitudes, cultural values, socioeconomic influences, and other social conditions while waiting to, proceed to design and implement prevertion programs. The research presented in this dissertation is the result of an exploratory field comparison of two HIV/AIDS education methods implemented with Hispanic (Mexican) migrant communities in Michigan during the Summe' of 1991. Quantitative data on knowledge about AIDS and attitudes toward people with AIDS (PW A), homosexuals, and injection drug users was gathered to test the effectiveness of educational interventions. Further, qualitative observations wee recorded to study possible relationships between elemerts of the culture and social conditions, and receptiveness and understanding of the HIV/AIDS prevention messages. Chapter 11 (AIDS and the general public) will discuss: the origin and devek genes howl AIDS ration; Michig comps the Cor renew III] dex Piblic development of AIDS and knowledge, attitudes and behaviors about AIDS in the gereral population. Chapter III (AIDS in the Hispanic population) will discuss (a) knowledge, attitudes and behavior of Hispanics concerning AIDS, (b) special issues on AIDS education for the Hispanic population, (c) HIV/AIDS prevention, and (d) the rationale for an HIV/AIDS prevention program for Hispanic migrant families in Michigan. Chapter IV describes the method used in the implementation of a field comparison of two education programs about AIDS. Chapter V describes the results of the comparison and chapter VI discusses the results and proposes questions for further remix. The literature review covers the peiod since 1971 until 1991. The sources reviewed during the literature search were mainly, the PsyInf compute database, the ”Index to Health Information: A Guide to Statistical and Congressional Publications on Public Health”, a computer search of the "Index Medicus" (last 10 years), a computer search on "Health" (last five years), and the ”Social Sciences Index". atti cha syn. imp the inn Whi: SYDd Cilia abn0] “the Many CHAPTER II AIDS AND THE GENERAL PUBLIC This chapte provides background information on the AIDS epidemic and knowledge, attitudes and behaviors of the general public about AIDS. The following sections of this chapter discuss: (a) the origin and developmert of the HIV/AIDS epidemics, and; (b) knowledge and attitudes of the general public about AIDS. AIDS: Origin and Development Sabatier (1988) provided a definition of AIDS, "AIDS is not really a disease, but a syndrome of opportunistic infections which strike when immune functioning has been impaired by HIV" (p. 35). Batchelor (1988) provided a very simple explanation of what the AIDS virus does to the organism. He explained that HIV does not destroy the immune system, but rather damages it by infecting and killing the T4 "helper/induce” white blood cells, which are supposed to notify the B-cells (the ones in charge of attacking viruses) when they should attack a virus present in the body and wher they can cease the attack Theefore, the body becomes susceptible to infections and canoes; these infections are the so called ”opportunistic infections,” because they develop in a body contaminated with HIV. In addition to the physical symptoms that each of the infections associated with the syndrome would cause in the person with AIDS (PWA), a neurological syndrome called AIDS—dementia has been identified. Price, Brew, Sidtis, Rosenbaum, Scheck and Clearly (1988) described the characteistics of AIDS-dementia as including abnormalities in cognition, motor performance and behavior. This syndrome is thought tobetheoutcomeofthedirecteffectoftheviruson thebrain. Also, sincePWAs face many sources of stress, AIDS has beer found to affects psychosocial variables such as vocational and social functioning, self-esteem, mood states, physical abilities, family and other relationships, and sexual function (Narnir, Wolcott, Faozy & Alumhaugh, 1987). Howeve, it is also known that people infected by the HIV could be entirely asymptomatic, only a fraction have the more serious syndrome of AIDS, and it is a virus very difficult to contract (Watkins, 1988). This observation is true since AIDS is only transnritted through direct contact with contaminated blood, vaginal cervical secretions or semen (Osborn, 1986). Research is currently being conducted identifying possible co—factors or variables that could precipitate the development of AIDS in subjectsinfected with theHIVorofvariablesthat will makea subject morevulnerable to develop HIV infection. Among the factors already identified are othe' non-HIV infections that will increase the likelihood of infection following exposure, or increase HIV virulency among those people who are already HIV infected (Koop, 1986). Also, environrrrental factors such as malnutrition, are also being hypothesized as potential co- factors (Bakeman, McCray, Lumb, Jackson, & Whitley, 1987). In spite of the great inteest and effort of the research community, there has not been success in the identification of the origin of the HIV. In his book, Sabatier (1988) described three theories about the possible origin of the virus. First, that it may develop from an old human disease previously found only in an isolated group having immunity; when the virus was transmitted to someone from another ethnic group, it became a disease of deathly consequences. The second theory is that the virus developed from a virus in monkeys. The third theory is that it was developed purposely or accidentally in a laboratory. Sabatier explained that there is some evidence for the first theory, since thee are still some very isolated groups-«especially in Central Africa. Sabatie thwghtthatthesewndtheoryisnottooprobableanymorebecausethe scientists who identified a virus similar to the HIV in monkeys, reported in 1988 that theyhadmadea mistake. Thethirdtheoryisdifficulttoconfirmordiscorrfirmusing scientific methods. Even though the origin of the syndrome has not been identified, the efforts to find it has lead to the discovey ofpossible AIDS cases in patients as early as 1959 (Sabatie, 1988). Part of the early history of the disease lead to the unfortunate stigmatimtion of Afiican blacks and Haitians, as potential original disseminates of the HIV virus. I] III]! IEIESE 'l . Cases of AIDS began to be noticed in the late 1970's and early 1980's in different locations, such as, Belgium, France, Haiti, the U.S., Zaire and Zambia (Sabatier, 1988). Seveal articles (Morin, 1988; Eisenberg, 1989) identified the onset of AIDS according to the Center for Disease Control's report of the first case in June, 1981. It has been also argued that press coveage for AIDS was inadequate until heterosexual membes of the society started to suffer the syndrome (Herek & Glunt, 1988). Researches have presented eviderce that this pheromenon could be attributed to prejudice against homosexuals (Herek & Glunt, 1988). Mann (1988) explained that AIDS evolved in three distinctly separated epidenrics: an epidenic of HIV infection beginning in the mid-1970's, the epidemic involving the case surveillance definition of AIDS, and a third one involving the social, cultural, economic and political reactions to AIDS—the latte being studied recently. Three diffeert pattens of HIV infection have beer identified according to geographic locations, as described by Eiserberg (1989): 1. The pattern of transmission in North Ameica, Western Europe, Australia, New Zealand, and urban areas of Latin America, which is basically transmission among homosexual and bisexual men, and through blood among injection drug users (IDUs). 2. The pattern of transmission of HIV found in Sub-Saharan Africa and the Caribbean which consists mainly of heterosexual transmission through blood transfusions. 10 3. The patten of transmission found in North Afiica, the Middle East, Easten Europe, Asia and the Pacific, which is characteized by low rates of infection and primarily through exposure to imported blood products, or through sexual contact with travelles from areas with patterns I and 11. Crawford, Jason and Salina (1990) reported estimates of more than 1.5 million people in the United States infected with the HIV virus (seopositive) who are probably asymptomatic, but capable of transmitting the virus to others. It has been suggested that people of color (blacks and Hispanics) have a higher rate of AIDS than the whites, but still have the same rate of HIV infections. It is further suggested that environmental conditions make them more vulnerable to develop the syndrome. Nevertheless, Bakeman, McCray, Lumb, Jackson & Whitley (1987) reported that higher rates of HIV have been found among blacks and Hispanics than among whites. In terns of patients idertified suffeing the development of AIDS, Eiserberg (1989) reported that in July 1988, 100,000 cases of AIDS had been reported to the World Health Organimtion, which at that time estimated the actual cumulative total as probably of about 250,000 cases. In the United States, homosexuals were the first group identified as suffering of AIDS-especially in New York, Los Angeles and San Francisco (Batchelor, 1988). After 1982, othe concerns regarding AIDS started to emerge because heteosexual contact and shared needle use were also identified as sources of transmission (Morin, 1988). On the other hand, the discovery of high rates of AIDS among Haitian imnrigrants to the United States was intepreted by some researchers and policy makers as an increased potential for spreading AIDS among the heterosexual community (Batchelor, 1988). Bakeman, McCray, Lumb, Jackson, and Whitley (1987) analyzed a data set fiom the Center of Disease Control (CDC) on 33,720 cases of AIDS (as of 1986). They foundthatwhitemenaccountedfor64% oftheadultmalecasesofAIDS reportedto 11 CDC and black , Hispanic, and other racial/ethnic groups, accounted for 21%, 14% and 1% of AIDS cases, respectively. In 1988, Siegel reported that, as of 1987, 70% of the AIDS cases in heterosexual males wee accounted for by blacks and Hispanics. In the United States 108,788 cases of AIDS in whites, 58,791 in blacks and 33,204 in Hispanics, have been reported to the Certer for Disease Control (Michigan departmert of Public Health, January 1992). In 1987, Bakeman and his colleagues reported the transmission groups for males and females of three diffeent racial/ethnic groups. The largest transmission group for whites, blacks and Hispanics was that of homosexual or bisexual men (83% of white men with AIDS, 50% of black men, and 53% of Hispanic men). The second largest transmission group for black (34%) and Hispanic (34%) males includes the heterosexual men who used injection drugs (IDs). The white males contaminated through IDs constitute a 4% of the adult, white male population with AIDS. Also, 8.5%, 8.7% and 7.6% of white, black and Hispanic males with AIDS were identified as both, IDUs and homosexuals or bisexuals. More recertly, Singer and his colleagues (1990) reported that the percentages of cases of HIV infection among Hispanics were almost the same in the IDU category as in the homosexual/bisexual contact category. They also reported that the pecentages of cases of exposure through heteosexual contact are similar for Hispanics and whites and far below the percentages for blacks, and that fewe' Hispanics have been exposed to HIV through blood transfusions. Researchers (Bakeman et.al., 1987) identified a strong correlation between the numbe of male heterosexual IDUs with AIDS and the number of AIDS cases among women in the three racial/ethnic groups (the correlation was .95). Moreove, when they computed the correlation betweer female and male cases of AIDS, in geneal, the correlation was just .389. The study found that black, white and Hispanic women accounted for 49%, 30%, and 21%-of the female—cases ofAIDS reported to CDC. 12 The major source of transmission for all three racial/ethnic groups of womer was ID use (61% blacks, 41% whites and 55% Hispanics) and, the second one, heterosexual contact with IDUs. Wher Bakeman, McCray, Lumb, Jackson & Whitley (1987) compared the cumulative incidence of the disease in whites, blacks and Hispanics-the cumulative index is the number of cases reported to CDC since 1981 per million relevant population— they found that AIDS has affected blacks and Hispanics disproportionately. The CI index for black and Hispanic men were 2.6 and 2.5 times higher than the rate for white men, and the C1s for black and Hispanic women were, respectively, 12.2 and 8.5 times higher than the CI for White females. Interestingly, Selik, Castro, Papaioanou and Buchler (1989) found variations in the HIV risk factors betweer different Hispanic groups in the United States--deperding on the country of origin. In each region of the United States, the cumulative index of AIDS in heterosexual intravenous drug users/abuses in Puerto Rican born persons was higher than in any other Hispanic group. Also Puerto Rican-born pesons were the only Hispanic group in whom most of the cases of AIDS were reported from heterosexual intraverous drug uses/abuses as opposed to the highe percentages of infection in the Cuban community who are classified in the homosexual/bisexual category of exposure. Bakeman, McCray, Lumb, Jackson & Whitley (1987) analyzed variables that have been hypothesized as related to the higher rates of inciderce in the black and Hispanic population compared to the whites; the argumerts are listed and their criticisms of each one are summarized: 1. More IV drug users among blacks and Hispanics: This argument was not supported by their analysis because when they discounted the IV drug users and computed the C13 for the three groups, the incidence of AIDS was still 1.7 times higher for black and Hispanic men than for white men. Nevertheless, needle sharing is a 13 major factor for the high incidence of AIDS in people of color (43% and 42% of AIDS cases in black and Hispanic men, respectively, resulted from nwdle sharing). 2. Undercounting of people of color in the census: This argument was not supported by their analysis and, even if it were true, for the black CI to equal the white C1 the number of black rrren in the population would have risen to 21.7 million instead of the actual 8.3 million: an unlikely miscalculation. 3. Undercounting of AIDS cases in whites: Again, the argument was not supported by the data because, if the AIDS cases in whites were undecounted, there would have to be 50,359 cases of AIDS in this group—instead of the identified 19, 483-- in order to have the CI of AIDS cases that blacks have, another unlikely error of undercourrting. 4. AIDS is more prevalent in large cities and people of color are more likely to live in large cities: Researchers compared the CIs of whites and peopleofcolorseparately forurbanandotherareasandratesofAIDS werehigher for the people of color in both situations. Theefore, the argument that the highe' rate of AIDS cases-Wher compared to the rates for whites-was due to the fact that people of color tend to live in cities wee the conditions promote the spread of the disease, was not supported. 5. Sexual behavior: The number of homosexual or bisexual cases of AIDS in black and Hispanic men was 1.7 times higher than for white men. In this regard, the authors discussed that little is known about the sexual behavior of blacks and Hispanics, and that it is possible that members of these groups engage in unprotected sexual behaviors, and/or that some men who engage in homosexual behavior fail to think of themselves as homosexual (theefcre at risk, according to the media), if they have the active role during inte'course. 14 6. Environmental factors that increase stress are more prevalent among people of color: The authors suggest that it could be that differences in nutritional pattens and coping skills make the people of color more likely to develop HIV infections or AIDS, if the subject has beer exposed to HIV. This happens because anything that weakers the immunological system (co-factors) makes the individual more prone to progress from the HIV infection to AIDS, and nutritional patterns, as well as stress, alcohol, and other infections are consideed co-factors (Bakeman, McCray, Lumb, Jackson, & Whitley, 1987). Knowledge and Attitudes About AIDS If Bakeman, McCray, Lumb, Jackson & Whitley ( 1987) would have posited in their article the expected trend for the incidence of AIDS in the next years, they probably would have mentioned that it is expected that the diffeence in rates of AIDS cases between racial/ethnic groups and whites is likely to increase. One of the hypothesized reasons for such an increase in the already large difference, is that maybe the educational efforts with whites are been more effective than the ones targeted at people of color. This appears to be because there is more knowledge about whites' attitudes, knowledge and behaviors,which facilitates the design of programs. Moreover, the cultural beliefs of Hispanics and blacks are not well undestcod by policy makers in the United States and have not been considered in the design of some public campaigns for AIDS prevention (Mays, & Cochran, 1988; Singer, et.al., 1990). Studies of attitudes, knowledge and behaviors about AIDS in the general population and in Hispanics provide information on elements that should be considered while educating Hispanics about AIDS. It is also apparent that some segmerts of the population have been receiving more education about AIDS than others. 15 In 1987, Singer, Rogers and Corcoran reported that since the first poll about AIDS (1983) until 1986 there wee 23 surveys—almost all of them nationwide. The summary of these 23 polls is organized according to six dimensions: (a) awareness of the disease; (b) concen about AIDS, both as a medical problem in gereral and as a problem for one's own health; (0) perceptions about the likelihood of its spread; (d) beliefs about methods of transmission; (e) attitudes toward measures for protecting the public; and, (t) reported changes in ones' own behavior to avoid exposure. The authors identified that between 1983 and 1986 the numbe' of people who said that they had heard about AIDS increased from 77% to 99%. Thee was just a slight difference in the percentages of awareness about AIDS as a function of education. Even though those with least amormt of education wee found to be least likely to be informed about AIDS, the diffeences were not large. It was found that those at greater risk are most likely to express concern about AIDS. Some of the groups that showed greater than average concen about AIDS were: young people, those under 30 years old, single people, people living in urban areas, and blacks (who wee also most likely to have changed their behavior). The polls revealed that people could accurately identify the extreme modes of transmission of HIV (semen, blood and vaginal cervical secretions), but were confused about intermediate behaviors (tears, saliva). The confusion was especially evidert arrrong people of color (in this case the researcher reported data on all non-white groups combined), since a large number of them thought that AIDS could be transmitted through kissing, sharing a drink glass, and/or eating food prepared by someone who has AIDS. Unfortunately, an increase in accuracy overtime is not reflected in the data from the polls analyzed. When the attitudes about government regulation regarding AIDS and attitudes toward people with AIDS wee evaluated the following wee found, 1) a decrease in the mm m .w 16 percertages of people indicating that they will fight to have a child with AIDS removed from the school, and 2) increases in the number of people reporting that school employees with AIDS should be taken off the job. later, this issue will be revisited because it could be related to attitudes toward homosexuals and drug uses and the possible relation of these attitudes with attitudes towards people with AIDS. Only a slight increase in the number of people reporting changes in their behavior as a result of AIDS was captured in the data from polls between 1983 and 1986. Another main finding reported by Singer, Roger and Corcoran (1987) was a small but steady increase in the percent in the people saying that they avoided homosexuals, stayed away from places where homosexuals might be present, and refused elective surgery that would require blood transfusions. Anothe major source of information on knowledge and attitudes about AIDS in the general population is the report by Hardy (1990), based on a set of questions included in the National Health Interview Survey (NHIS) of the National Certer for Health Statistics. Hardy's report is based on data of the period from October 1989 until December 1989. The information about AIDS gathered in the NHIS is classified in six areas: (a) sources of AIDS information; (b) self-assessed levels of AIDS knowledge; (c) basic facts about the AIDS virus and how it is transmitted; (d) blood donation and testing expeierce; (e) awareness of and experience of the blood test for HIV; (t) personal acquaintancewitlrpersons with AIDSorHIV; and, (g) willingnessto takepartina proposed national seoprevalence survey. Clearly, the most common source of information about AIDS is television: 80% of the sample reported that they saw public service advertisements (PSA's) about AIDS on television during the month before the survey, as opposed to 45% who reported having heard information on the radio. Also, the proportion of people who had seen or heard the information about AIDS, increased with years of education. In terms of other Clem havi duri AII adu bl 17 demographic characteristics, black adults were more likely than white adults to report having heard radio PSA's (51% compared to 44%) and read brochures (29% vs. 19%) during the last month. For all groups, the proportion who reported over having read AIDS brochures was very similar and low. In addition, females wee identified as more likely than males to have read the AIDS brochures. Sixty-three percert (63%) of the parents said their children received information about AIDS in school, and 61% of the adults said that they had eve discussed AIDS with a friend or relative. Changes in the levels of self-assessed knowledge about AIDS were not found in the data from 1989 (68% claimed to know at least something about AIDS). The proportion of white and black adults that reported that they knew a lot about AIDS was similar (25 and 23%, respectively), but the proportion of black adults which reported that they knew little or nothing about AIDS was higher than in white adults (41% vs. 30%). Education and age of the subjects also had an effect in the levels of self-assessed knowledge, with people with less than 12 years of education and people 50 years of age or more claiming little or no knowledge about AIDS. The assessment of knowledge showed that accurate information about the three major modes of transmission was high in all demographic groups. In gereral, AIDS knowledge increased with education, and was higher for people less than 50 years old than for those 50 years or over. Hardy also reported a small differerce in the frequercy of correct responses about AIDS between black and white adults. The proportion ofpeople who had heard about the blood test for the AIDS virus was high and remained unchanged throughout 1989 (74%). Once again, the proportion of people who have more information about AIDS—in this case, those who had heard about blood testing--was highe' for: white than for black adults; among people with 12 or more years of education; and, among adults younge' than 50 years old. In regard to blood testing for AIDS, only 21% reported that they had beer tested for AIDS; the 18 majority of them as part of blood donation (67%) and only 19% sought the testing voluntarily. Using condoms and keeping monogamous relationships were consideed effective prevention methods by all subgroups (71% or greater, and 74% or greater respectively). The proportion who identified monogamy as an effective prevention method, was greate among black adults (from 70% to 79%). The researchers did not report if this difference is statistieally signifieant. The proportions of people reporting that they felt that they had no chance of having HIV infection (83%) and of people reporting that they felt that they had no chance of getting AIDS (77%), did not show too much change over the data collection period (Octobe 1989 to Decembr 1989). Females wee more likely than males to report no chances of having or getting AIDS, anduprobably related to less knowledge about AIDS--peop1e 50 years or over and those with 12 or fewer years of education wee also more likely to report no chance of infection than younger and more educated persons. As it can be expected during epidemics, the number of adults which reported knowing someone with AIDS was found to increase steadily since the NHIS started to ask the question in 1987 until 1989, but Hardy (1990) does not report the numbers. Summarizing what have been learned about the knowledge and attitudes of the gereral public regarding AIDS, researches have found: (a) a steady increase in the number of people who say they have heard about AIDS; (b) accuracy in idertification of the three major modes of transmission of HIV and confusion regarding intermediate behaviors; (c) increases in the numbe' of people agreeing with more regulation and isolation of adults infected with HIV; (d) that television seems to be the most common source of information about AIDS; (e) small percentages of people saying that they know a lot about AIDS; (f) a small number of people requesting the HIV blood test volrmtarily; (g) large percentages of people identifying the use of condoms as effective 19 prevertion methods; and, (h) small percentages of people feeling at risk of having or getting HIV. Both studies reviewed above (Singer, Rogers, & Corcoran, 1987; Hardy, 1990) found repeatedly that educational levels and age of the subjects were related to most of the variables about AIDS, with the more educated and younger membes of the sample having more information about the disease. None of the studies reported information on Hispanics. Some data on black adults and people of color (non-whites) was mentioned in the articles, and it showed that eithe' black or people of color in gereral or olde' adults were in disadvantage in some aspect regarding AIDS (such as knowledge, misconceptions, andlor preventive behaviors). 1h. CHAPTER III AIDS AND THE HISPANIC COMMUNITY This chapter will discuss: (a) the knowledge, attitudes, and behaviors of Hispanics about AIDS; (b) special issues on AIDS education for the Hispanic population, including attitudes towards homosexuals, and cultural values; (c) HIV/AIDS prevention, including theories of prevention, and HIV/AIDS prevertion programs, and (d) the rationale for the design of the program and the research in the section titled ”AN HIV/AIDS prevention program for Hispanic migrant families in Michigan.” Knowledge Attitudes and Behaviors of Hispanics about AIDS Dawson and Hardy (1989) published a special report on Hispanics' knowledge and attitudes about AIDS, gathered during the National Health Interview Survey from May to October, 1988. The authors specified that the sample of Hispanics was very small and full of sampling erors, and therefore, only large differences were considered statistically significant. However, they did not provide information about the types of sampling erors. The analysis of these data on Hispanics showed: 1. Similar changes in knowledge between Hispanic and non-Hispanic adults and similar patterns of knowledge and attitudes about AIDS and HIV within the Hispanic population, as for the U.S. population as a whole (during the period from May to chbe 1988). Still, when compared to the group of non-Hispanic, those of Hispanic origin wee found to be less lmowledgeable about many aspects of AIDS and HIV. The relationship between education and age with more knowledge about AIDS discuswd in the previous section was also identified in Hispanics in Dawson and Hardy's (1989) sample. 20 21 2. A large percentage of Hispanics (84%) watched PSA's about AIDS on television the month before the survey and 56% of them had heard ads on the radio. It is important to note that the proportion of Hispanic adults who received the information from television was also related to age and education: 87% on those 18-29 years, 78% of those 50 years or older; and 73% of those with less than 12 years of education and 53% of those with 12 or more years of education and over, received the information from television. Hispanic men heard the radio advertisement in a higher proportion than Hispanic women (61% vs. 51%). This proportion of people getting the information from the radio was also higher for people with more education than for those with less than 12 years of education. Fifty-one percent (51%) of the Hispanic people reported ever having read brochures or parrrphlets about AIDS (36% reported having done so during the previous month). Only 45% of people with Mexiean ancestry reported ever having read brochures or pamphlets about AIDS, compared with 57% of other Hispanics. Once again, age and education were related to the proportions of people who had ever read mate'ials on AIDS: 59% of those age 18-29 years , 32% of those 50 years of age and over, 34% of those with less than 12 years of education , and 63% ofthose with 12 or more years of education. 3. The experiences of the Hispanic families in sharing information about AIDS-- especially communicating information to the children about AIDS-was studied. Fifty peeent (50%) of Hispanic adults reported having discussed AIDS with their children age 10 to 17 years and 60% stated that their children received information about AIDS at their schools. It was also identified that Hispanic met (39%) were less likely than Hispanic women (56%) to have discussed AIDS with their children. Subjects of Mexiean ancestry wee less likely than other Hispanics to have talked about AIDS with their children (42% vs. 57%, respectively). 22 4. Only a small number of Hispanic adults reported that they brew a lot about AIDS (21%), and 36% said that they brew some information, 31% that they knew a little, and 13% that they brew nothing about AIDS. Subjects of Mexican ancestry were more likely than othe Hispanic adults to feel that they didn't know anything about AIDS (16% vs. 9%, respectively) and less likely to report that they brew a lot than other Hispanics (44% vs. 33%). The proportion of Hispanic adults who claimed to brow a lot about AIDS was highe among those having 12 years of school or more than in those with less education, those 50 years of age or over were less likely to report that they brew a lot about AIDS than younger members of the sample (14% vs. 22%, respectively). 5. The misconceptions about AIDS in Hispanics decrease with edueation. Still, Mexieans reported nrisconceptions in a highe proportion than othe Hispanics. 6. Regarding HIV blood tests, Hispanics wee less likely than non-Hispanics to have heard about the HIV blood test when they had less than 12 years of education, and equally likely to have heard about the test wher they had 12 years or more of education. 7. With respect to the proportions of Hispanics that thought that using condoms and/or keeping monogamous relationships with people not infected with HIV wee effective methods of protection against getting infected with HIV: 28% said that condoms were very effective (compared to 83% of non-Hispanic adults), and 77% thought that monogamy was very effective. 8. Only one percent ofthe Hispanic adults reported that thee was a high chance that they wee already infected with HIV. Severty-six pecent (76%) of the Hispanic adults felt thee was no chance of them beconring infected, and 13% said that their chance of becoming infected was low. Variations on peceived risk wee found to be related to age (perception of risk decreased), but the variables of sex and education did not seem to be related to that peception. 3162 how in gc Mex hem Hisp How char. subje milk: “1310 abou Mex Rey ; and: 23 9. The proportion of Hispanics that trusted information about AIDS provided by the govenment, and the proportion that said they trusted advice from the governmert on how to avoid AIDS were 69% and 77% , respectively. Howeve, it was found that trust in govenment information and advice decreased with age and increased with education. Mexicans wee more skeptieal than the non-Hispanics or othe Hispanics. Dawson and Hardy (1989) did not report the significance of the diffeences between Hispanics and non-Hispanics in many areas, but the proportions and values for Hispanics were always lower—especially for Mexicans. A rrrain concern with their report is the statemert that the data collection on Hispanics was full of sampling errors. However, neither these erors nor information about income and other demographic characteistics of the Hispanics surveyed—except age, sex, education, and whethe the subject is Mexican American or ”Othe-I-Iisparric"-appear listed in the report. This makes it difficult to hypothesize what areas ofthe data could not be descriptive ofthe majority of the Hispanic population. A survey of browledge, attitudes and behaviors about AIDS conducted with the Hispanic clients of Cristo Rey Community Certer in lensing, Michigan, provides information about poor and underprivileged Hispanics-- Mexiean or with Mexican ancestry. Some main diffeences betweer the data from Cristo Rey and that of Dawson and Hardy will be highlighted. The survey at Cristo Rey was conducted in the peiod of May-June 1989 as a randomized survey assessing browledge, attitudes, beliefs, and behaviors of Hispanic clients at Cristo Rey. It was administered to 145 clients by the Special Office on AIDS Prevention (as of Decembe, 1991 ealled HIV [AIDS Prevention and Intervention Section) and Cristo Rey Community Center. Inteestingly, in most of the variables thee were major differences between the Hispanics who answered the instrument in Spanish andthosewhopreferedtodoitin English: .Mw mum rm.- % 24 1. In regard to browledge about AIDS: (a) seventy-three percent (73%) of those who preferred to answe in Spanish answered incorrectly or did not brow the answer to the item regarding if condoms and jelly are effective against HIV infection (compared to 17% of those who answered in English); (b) only 5% of those answering in Spanish reportedthattheybrewagreatdealaboutAIDS (asopposedto25% ofthosewho answeed in English); and, (c) 68% of the Spanish speaking and 27% of those who answeed in English reported that they brew very little about AIDS. The only knowledge-related area where the Spanish speaking subjects seem to have a slight advantage was in terms of the proportion of those who have heard about AIDS (30% of Spanish speaking vs. 14% of English speakers). Howeve, this could be a mistake in the report or in the subjects' interpretation of the question, beeause it is not clear if it is possible to reconcile the fact that Spanish speaking subjects brew much less about AIDS than English speaking subjects with the fact tint they have heard about it more often than the English speaking subjects. If there are no mistakes in the report or in the data, it suggests that, even though the Spanish speaking subjects received information more often, they do not understand it as well as the English speaking subjects. Also, Marin and VanOss Marin, 1989) found a strong positive correlation between acculturation and browledge about HIV transmission, and acculturation in the ease of the Hispanics in the United States, usually includes browledge of the English language. Keith Bletzer, (1991) also found in a sample of migrant workers in Michigan that from the respondents who answeed eight or nrore of ten questions about HIV/AIDS correctly, 55% answered in English and 44% answered in Spanish. The age of the subjects was related to knowledge about AIDS, since those under 40 years ofage or those with more education or both (under 40 years old and with more education) were more likely to identify correctly the potential routes of transmission of HIV, than older subjects-especially those 50 years of age or more. Also, age was 25 positively correlated with misconceptions about HIV/AIDS. The education level of the respondents was positively correlated to a ”Summary Knowledge Index” and negatively correlated to the number of misconceptions about AIDS. 2. When the subjects were asked if AIDS patierts should be forced to live away, many of them (53% of the Spanish speaking and 13% of the English speaking), reported that they didn't brow. 3. Thee was a large diffeence in the proportions of Hispanics reporting correctly that women can get AIDS, in Spanish and English speaking subjects (50% vs. 80%, respectively). 4. It was identified that single respondents were less likely to respond correctly to questions on browledge, attitudes and beliefs: (a) 80% of single respondents didn't believe AIDS was a problem, (b) 38% didn't think it was dangerous, (c) 50% didn't brow that AIDS was transmitted in sexual intecourse, (d) 41% brew very little about AIDS or had never heard of it. 5. The information about the sources of information about AIDS reflected the findings of previous studies cited above. Television continued to be the main source of information about AIDS (52% of the subjects). 6. Three items included in the survey dealt with the subjects' interest in the education about AIDS for their family: (a) 55% wanted their family to get information about AIDS, (b) 96% wanted their children to get information about AIDS, and (c) 39% answered that a Community Center was the place to go for information. 7. The study included the computation of an ”Effective Prevention Summary Index” and the variables: education, "Knowledge Index", and perception of oneself as at risk of developing AIDS, showed to be positively correlated to the prevention index. Othe studies of AIDS knowledge, attitudes and behaviors among Hispanics found: (a) replication of the finding of highe misconceptions about AIDS in Hispanic 26 and black communities than in white communities (De la Cancela, 1989); (b) that browledge about AIDS is negatively associated with perceived risk of infection , and peeeived risk is positively correlated with prevalence of misconceptions (Di Clemerte, et.al.,l988); (c) that only 15% of Hispanic respondents answeed correctly to the item, "AIDS is common among Hispanics" (Marin & VanOss Marin, 1989); (d) that approximately one-third of the Hispanics in the sample were unaware that there is no cure for AIDS (AIDS Community Research Group, 1989); (d) that 36% of Hispanic respondents compared to 80% of black and non-Hispanic white respondents were aware that using a condom is an effective way to prevent HIV transmission; and (e) that Hispanics are more likely to fear that they or someone they brow will get AIDS, than blacks and non-Hispanic whites (AIDS Community Research Group, 1988). Currently, there is no conclussive information about Hispanics' browledge, attitudes and behaviors about AIDS ( a large scale randomized survey has not been conducted), but some main points have been presented in the data described above: (a) those of Hispanic origin are less browledgeable about AIDS than the group of non- Hispanics; (b) the main source of infornration about AIDS for the Hispanics seems to be the television; (c) moderately high percentages of Hispanics reported eve having read AIDS brochures or pamphlets about AIDS; (d) Hispanic men are less likely than the women to have discussed information about AIDS with their children; (e) a small number of Hispanic adults identified condoms as an effective prevention method and a high number of then thought that monogamy was an effective prevention method; (f) perception of risk of HIV infection is not found frequently among the Hispanics and when it is found it is negatively correlated with browledge about AIDS and positively correlated with misconceptions about AIDS. ; (g) knowledge of Hispanics about prevention nrethods is very limited; (h) single subjects wee less likely to answer correctly to questions about AIDS, to believe that AIDS is a problem, and/or to have 27 heard about AIDS; (i) that a small number of Hispanics identified AIDS as problem in the Hispanic community and brew that there is no cure for AIDS; and (i) that Hispanics weremorelikelytobelievethattheyorsomeonethey browcouldgetAIDS thantlre non-Hispanic whites and blacks. Also, another main finding was that when Mexican- Arrrericans or Mexicans were compared to a group of ”other Hispanics", the Mexicans or those with Mexican ancestry showed to be in disadvantage regarding many variables, such as: (a) browledge about AIDS and prevention behaviors; (b) talking to the children about AIDS; (c) number of misconceptions about AIDS; and, (d) skepticism regarding govenment advice about AIDS. Special Issues on HIV [AIDS Education for the Hispanic Population Several reasons havebeen suggestedtoaccount forthe failureofthe mediain communicating information about AIDS to the gereal public and specifically to the Hispanic community (stigma towards homosexuals and cultural beliefs). B.V. Marin, (1990) stated that there is data showing that mass-media-based changes in attitudes and behaviors could be obtained, but that saturation is necessary for an effect. It could be that the public sevice advetisemerts about AIDS-developed with the Hispanic community in mind—- are not presented frequently erough. Also, Siegel (1988) has stated that sometimes the media advetisemerts about AIDS have used ambiguous language—such as "multiple partners", and ”sexually active"-and that the focus should be on communicating only one or two clear messages consistently. This is recommended becausethe subjectwillchoosetlrebehaviorthatiseasieforhim/herto follow. For example, men who have sex with other men could reduce the numbe' of sexual partrres totwoduringa montlrorayearand considerthat heispreventing his infection with AIDS, while in fact, this behavior alone is not going to have a strong effect in reducing the individual's risk of getting infected. Another alternative is that 28 presented by Stipp and Ker in 1989. Suggests that negative attitudes toward homosexuals stand between media information and public browledge and public opinion, limiting the potential effectiveness of the media. Stipp and Kerr's (1989) study will be discuswd in more detailed because thee is evidence of progressive and conservative attitudes toward homosexual rights among the Hispanic community (Singe, et.al., 1990) and it is important to explore if that is in some way related to browledge about AIDS. Animdesl‘matdflnmnmalt It has been found that Hispanics are more likely to support government funding for AIDS research and government restrictions of homosexual behavior (Friedman et.al., 1987) and that two thirds of the respondents in a Chicago sample opposed the quarantine of people with AIDS (PWAs). Yet, 75% of that sample also believed that contact with homosexual individuals should be avoided. For the purpose of their research, Stipp and Kerr (1989) combined six items about beliefs regarding the transmission of AIDS into a scale of attitudes toward contact with people with AIDS (Alpha: .85). The highe the score on the scale, the greater the willingness to have contact with people with AIDS (the index ranged from 0 to 6, with a mean of 1.9 and SD. of 2.1). The researchers evaluated how much of the values on the scale could be predicted by educational attainment, media exposure, age and attitudes toward homosexual rights. Even though education was found to be a significant predictor of browledge about AIDS transmission, it accounted for considerably less variance in the index than attitudes toward homosexual rights. Stipp and Kerr (1989) discussed three alternative explanations for their findings. First, they said that maybe the scale that they developed was one of perception of risks, and that this perception was the one affecting the subjects' attitudes toward homosexual 29 rights (instead of the other way around). However, they suggest that if this explanation wee adequate, the attitudes toward homosexual rights should have become more negative since the discovey of AIDS. Instead, the public opinion is slightly more pro- homosexual rights (according to Stipp and Ker). Another altenative explanation was that the relationship between attitudes toward homosexual rights and peceived risks stem from the variable of educational attainmert. The authors expected that since bette educated people are more likely to be tolerant toward homosexual rights and to be exposed to, and interpret correctly the information about AIDS transnrission, the association between the attitudes toward homosexual rights and peceived risks was going to attenuate when education was controlled. However, that was not the case. The third alternative explanation that Skipp and Ker evaluated used education as an indicator of media exposure, and hypothesized that media exposure would be less strongly related to perceived risks among people with negative attitudes toward homosexual rights than among those with positive attitudes. It was found that among those with positive attitudes toward homosexual rights, each additional year of education adds an average of .12 to the index but it makes less difference among those who hold negative attitudes toward homosexual rights (each additional year of education adds .03). This indicated that people with anti-gay attitudes are less responsive to information about AIDS, which is a critical finding for the design of education campaigns about the disease. Stipp and Kerr suggested that future studies should look at awareness, beliefs about transmission, media exposure, and opinions about HIV testing and treatment, addressing relevant attitudinal factors regarding homosexuals, drugs users and people of color. They also suggested that a field study should be conducted where people with differert prior atu'tudes toward homosexual rights are exposed to AIDS information campaigns. su; at of . (PE 30 Another interesting study about the relationship of the stigma toward homosexuals and AIDS was the one conducted by Lawrence, Husfeldt, Kelly, Hood, and Smith (1990). These researches compared the attitudes of the public toward people with leukemia and people with AIDS (with descriptions of patients of both illness that varied in that sometimes the person with AIDS was portrayed as an homosexual) and found that people with AIDS wee viewed as: (a) more deseving and responsible for their disease, (b) more deserving to die, (c) more dangerous and deseving to be quarantined, (d) less entitled to work, and (e) of less intrinsic worth. Also, the subjects in the study indicated less willingness to interact with a peson with AIDS in casual eveyday contexts. These attitudes were very similar to the attitudes toward ill people wher the only information provided to the subjects described the individual as homosexual. The authors suggested that the stigma toward homosexuals could be responsible of some of the irrational fears and avoidance behaviors in the communities with regard to AIDS. In othe words, that PWAs might experience negative attitudes towards them in the community because they are labeled as homosexuals and thee are negative attitudes towards homosexuals. Following Stipp and Kerr' and Lawrence et.al.'s findings and hypothesis it is possible to believe that negative attitudes toward homosexuality might be a We to AIDS education in the Hispanic community. The lack of browledge about AIDS among Hispanics and the early label of homosexuals as one of the groups at risk (by the media) might have effected already negative attitudes toward homosexuals, with the consequence of Hispanics neglecting the information about AIDS. One example which suggests that stigma toward homosexuality could be related to the Hispanics' fear and avoidancebehaviorsaboutAIDS istlratpostesinforming Donrinican nrenabouttheuse of condoms wee ineffective because mer were reluctant to be seen reading them (Peterson & Marin 1988, refering to a personal communication with A. Moya in 1987). M: Sim Sim Ma “11h 31 Also, regarding Hispanics' attitudes toward homosexuals, Marin, B.V. (1990) stated, ”...Hispanic culture includes a very powerful homophobic component" (p. 38). Still, thee is not enough data and information on Hispanics' beliefs and behaviors regarding homosexuality and no information about the relationship of these beliefs and behaviors to receptiveness of information about AIDS. Howeve, a negative impact of attitudes towards homosexuals on receptiveness of information about AIDS could be expected. Crrltrualxalues In talking about othe issues found in educating Hispanics about AIDS, or in the conduction of research with Hispanics, Marin (1990), Peterson and Marin ( 1988), Mays and Cochran (1988), Marin and VanOss Marin (1991) analyzed cultrual elements that should be taken into consideration in planning educational inteventions for this population. Even though it is well brown that there are many diffeences between Hispanics depending on their countries of origin, Marin and VanOss Marin (1991) specifiedthattherearevalues shared by mostHispanicsandthattherearemore similarities than differerces between the Latino groups. The following paragraphs summarize the shared cultural elements among Hispanic groups and their possible relation with AIDS education efforts. 1. ”Familismo": The familismo refers to the Hispanics' emphasis on the family as the main source of support, to their need to consult their family menbes before making important decisions, and to help family membes economically and emotionally (Peterson & Marin, 1988; Marin, 1990). Marin, B.V. ( 1988) also explained how the relevance of the family- and especially the children-- for the Hispanic women could make her continue with a pregnancy, after being identified as infected with AIDS. Moreove, Mays and Cochran (1988) specified how the suggestion of abortion and use ofbirth control nrethods are not accepted by some Hispanic women illne indir orfc if sh “Rd: 50h Mm 32 because of beliefs about family and religion. Howeve, all three articles suggested that family beliefs should be used in education campaigns by presenting the AIDS issue as an illness from which the individual has to protect his/her family, instead of as individualistic self-protection behaviors and concens. 2. ”Simpatia": Triandis, Marin, Lisansky, and Betancourt (1984) described the ”simpatia" as a cultural scriptm-pattern of social interacfion--of Hispanics. The authors conducted a study and found that Hispanics were more likely to expect high frequencies of positive social behaviors and low frequercies of negative social behaviors. The ”simpatia" script also refes to certain levels of conformity and the strive for harmony in intepersonal relations--which implies that direct confrontation and/or interpersonal conflicts are avoided (Triandis, Marin, Lisansky, & Betancourt, 1984). B.V. Marin, (1990) idertified three implications of this script for AIDS education: (a) that AIDS prevertion activities that could promote confrontation regarding condom use or for partners to share information about previous sexual behavior, could be seen as inappropriate; (b) that the Hispanic listere may appear to agree with the message, even if she/he has no intention of following the advice or did not understand it, and; (e) that taboo topics will be avoided in the conversation, making inteventiorrs that require discussion of sexual behavior and/or drug abuse, more difficult. It is suggested that polite ways to discuss topics such as condoms and previous sexual behavior need to be taught to the subjects, and that questions or other ways to assure that the subjects understood the inforrrration should be used during educational interventions (Marin, 1990). The "simpatia" script could also be related to AIDS in terms of the behavior of sharing needles among Hispanic drug uses. Peterson and Marin (1988) mentioned that sometimes immigrants reuse needles for vitamin and medication sharing this equipmert with their neighbors. Between injection drug uses the act of sharing a 'wash"-a 33 recently used syringe filled with water (Mays, & Cochran, l988)«or just the equipmert, with a ”running partne" (the individual who shares the drugs in a syringe) is an act of friendship and social bonding. Theefore, we could expect that in both cases, for drug uses that have been sharing needles and for families who share needles with their neighbors, changing these behaviors could mean that they are not going to be "simpatico' to others, and/or it will mean that they will not trust others. As a consequence, different ways to still show concen for othe's—in the case of the families- -and ways to still show trust in other drug users will have to be explained as part of the educational efforts. 3. "Respeto": The ”respeto" refers to Hispanics' attitude towards others in their social group who are considered authority figures (such as, older people, parents, or those with more money, more education, or who are mirristes or priests). In all of these cases, the subject will try to be respected by the authority figures, and at the same time may not question the authority figure, even if they do not understand him/her (Marin, 1990). The implications of the ”respeto" are that treatments for drug abuse, as well as suggestions on AIDS prevention behaviors, will be rejected if the individual does not feel respected, and also, that the subjects could have a very good relationship with the educators, even if they are not understanding what is been said (Marin, B.V., 1990). 4. Sexuality: In the Hispanic community, sexual matters sometimes are not even discussed between sexual partners. There are cultural pressures on Hispanic women toward female naiveté, and sex only within the context of marriage. Theefore, it would seem inappropriate for a womer to suggest to a man the use of condoms or to inquire about previous sexual behavior (Mays & Cochran, 1988). Even further, Mays and Cochran reported that a small proportion of black and Hispanic women had reported experiercing physical and/or ve'bal abuse from their partrres in response to a request to use a condom. Form (1987) reported an estimate of 25% of Hispanic husbands as being against any form of birth control. In terms of homosexual behavior, it is suspected that many Hispanic men having sex with othe men will not consider themselves as homosexuals if they are the active partner during intercourse (Marin, 1990). Peterson and Marin (1988) suggested that ethnic/racial minority homosexuals (not specifically Hispanics) may not consider thenselves at risk of getting infected with HIV, if they are the active partne and/or if they are not having sexual relationships with white homosexuals. Theefore, the messages targeted to homosexuals will need to be targeted at specific risk behaviors instead of risk groups, but it also needs to be clarified that the risk behavior takes place within the context of heterosexual and homosexual relationships. 5. Religiosity: Rochin, Santiago and Dickey (1989) mentioned that one of the most effective and frequently used source of health education and services for the migrant workes in the Midwest are the community organizations—especially those related to the church—because the Hispanic migrant workers terd to go first to the church when they need help. This situation presents the problem that, when the church is the channel for AIDS education, the subjects may not get erough information about condoms (Mays, and Cochran, 1988). However, the United States Catholic Conference (1987) declared that in church based AIDS prevention messages, condoms can be mentioned, but in a limited way. The rationale for a limited mention of condoms in education intevertions sponsored by the chru'ch is that they appear to be a necessity (Marin B.V., 1987, mentioned that Hispanic men felt that not having sex would be nmrly impossible and unhealthy for them), that individuals will also receive information about condoms from other sources in the community, and that the Church prefered prevertion methods are abstinerce or morrogarnic relationships. Another implication of the religiosity of subjects for the receptiveness of AIDS education campaigns is that messages like ”play it safe” may not get enough attention, 35 because for many religious groups sexual intercourse is only licit for procreation and should not be seen as a game (Mays & Cochran, 1988). More attention should be given to show respect for the religious beliefs of individuals, and still communicate the information about preventive behaviors. A major controvesy that would probably continue to be discussed in the next years is the situation whee even though most religions reject homosexuality, pastoral ministries and values ercourage the religious groups to be involved with helping PWAs. Some examples of problems that diffeent churches have faced with AIDS and homosexuals included: (a) Mays and Cochran (1988) reported that a pesonal communication from G. Gallup said that thee is data showing that evangelicals are more likely to believe that AIDS is trarrsrrritted casually—and it has been reported that many protestant leaders refer to AIDS as a ”punishment from God” (Nugent & Granrick, 1989); (b) Pope John Paul H's reaction to the AIDS epidemic, in one of his messages to the United States, was that the church was concened with the moral background of AIDS and with offering care and hope for the suffeing and those caring for them (Nugent & Grarnick, 1989). Even though the religious position toward homosexuality could make it difficult to deal with the stigma toward this group and toward PWAs, appeals to the religious principles of compassion, forgiveness and love for human kind, could be of help when presenting information about AIDS. 6. "Machismo": Medina (1987) summarized the ”machismo" as a combination of behaviors through which mer, by virtue of their gender exercise authority over women. Some of the behaviors of men traditionally attributed to the ”machismo" are extramarital sexual activity, heavy drinking, endurance of pain, to be the only provider of economic supportforthefamilyandtoberesponsiblefortlrewellbeenofthe family. Thereisno current data on the prevalelce of this trait in the Hispanic community. However, some researches (Singe' et.al., 1990) suggest that the high numbe of Hispanic families 36 whee women and men provide income to the house could have modified the characteistics of the "machismo." It is possible that mer who adhee to the traditional role prescribed by the ”machismo" might find it harde to limit extramarital sexual activity, and that also the consumption of alcohol can become a risk of HIV because of its effect on the immunologic system and because the individual might not take adequate precautions during sexual behavior. Still, Singer and his colleagues (1990) provided examples of cases were appeals to the sense of responsibility for the well been of the family wee effective in getting mm inteested in learning about HIV/AIDS prevention. Other examples of cases that Singe et.al., (1990) described showed mer getting into risk behaviors because of frustration with themselves in the fulfillment of their role expectations. For instance, they described a young Hispanic man who lost his job and joined the army -as a way to have an income to send to his family—where he started to have psychological problems being away from his family and began to use drugs and share syringes. The researchers probably did not intend to show that Hispanics have good reasons to incur in the high risk behaviors, but that socioeconomic pressures might affect the social life of individuals in such a way that makes them more vulnerable to high risk behaviors. It is possible to believe-and it will be necessary to study--that economic conditions of the Hispanics could have a higher impact on HIV IAIDS prevertion than the trait of ”machismo". 7. "Marianismo" . The "marianismo" prescribes a role to Hispanic women in which she is supposed to be morally supeior to the mer-rernain virgin until marriage—and to endure any type of pain or suffering with stoicism (Singer et.al., 1990). This role is related to HIV/AIDS through its impact on women sexuality (as explained earlier) because women might not be able to communicate openly about sexual topics with their partnes. On the othe side, Singer and his colleagues (1990) discuss that Hispanic women usuallytakecareof theirmalepartneswhen they find outthattheyareinfected. 37 A role for Hispanic women that is sometimes regarded as opposite to the ”marianismo" is the ”hembrismo"or 'femaleness". This role implies that the women should be obedient, make sacrifices for the family and work hard--just like the ”marianismo"-but that she is supposed to strive and achieve despite any cultural and sociopolitical barries (Singe et.al.,1990). Researches comment that it must be difficult for women to have to submit themselves to the men but to also be assertive and successful. Singe et.aL (1990) provided examples of the way Pueto Rican women in the United States balance both roles. For example, a woman might stay with a man that is using drugs expecting him to quit, or might stay with a man who abuses her, believing that he will change. But usually these womer also decide wher they are going to abandon the rrran or ask him to leave. According to the authors, it could happen when the man begins to steal from the family or if the individual abuses the children. Singer and his colleagues found out that Pueto Rican women will sacrifice themselves but not their children. Also, the researchers reported cases wee women were successful negotiating with men and promoting behavioral change. For instance some wonren specify to the men that they have to quit having extramarital affairs and/or quit using drugs before they can come back to stay in the house. This dual role of Hispanic women could be vey useful to consider in the design of HIV/AIDS prevertion programs. Women should be targeted almost as ifthey were going to be the educators of their families. Also, once again it is found that the economic and sociopolitical conditions could have highe impact on AIDS prevertion than the gender role, because the expression of behaviors and attitudes attributed to the ”marianismo" or "hernbrismo" seem to vary deperding on the particular economic and sociopolitical situation at a particular time. HIV/AIDS Preveltion The HIV/AIDS prevention programs can be classified as primary or secondary prevention programs. Primary prevention programs are directed to the gereal population and secondary prevention programs are directed to populations at highest risk of infection. The most common primary prevention method is education (e.g., public service advertisements, brochures, group discussions, lectures or one—on-one education). The most frequently irnplemerted secondary prevertion programs for HIV/AIDS, are: (a) needle exchange or distribution (Magma, Grossman, Lipton, Siddigi, Shapiro, Marion & Amann, 1989; Guydish, Clark, Garcia, Downing, Cass, & Sorensen, 1991), (b) HIV screening and testing (Cates, 1988; Fehrs, Hill, Kerndt, Rose, & Henneman, 1991), and (c) condom use promotion (Solomon & Dejong, 1989; Schechter, Craib, Willoughby, Douglas, McLead, Maynard, Constance, & O'Shaughnessy, 1989). It is important to keep in mind that all the HIV/AIDS secondary prevertion programs include educational componerts. Unfortunately, evaluations of HIV/AIDS prevention programs are scarce. Also, these programs are not implemelted expeimertally testing a theory or explicit model of health behavior. The next two subsections on HIV Prevention discuss the most common examples of HIV/AIDS prevention programs evaluated in the literature, and theories related to prevention reviewed for the design of the program of HIV/AIDS education for migrant workes. W The most frequeltly implemerted prevention programs for HIV/AIDS, are: (a) needle exchange (Magura et.al., 1989; Guydish et.al., 1991), (b) HIV screening and testing (Cates, 1988; Fehrs, Hill, Kerndt, Rose, & Helneman, 1991), and (c) condom use promotion (Solomon, & Dejong, 1989; Schechter et.al., 1989). 38 Magma and his colleagues (1989) gathered data from a sample of injection drug users (IDUs) in methadone treatments to study the determinants of needle sharing. The data showed that sharing needles was directly related to peer group behavior, attitudes conducive to sharing, economic motivation to share, not owning injection equipment and fatalism about developing AIDS or perceived utility of risk avoidance. The following variables were not found to be related to needle sharing: browledge of AIDS risks, blowing people with AIDS/ARC, gende, age, ethnicity, marital status, and time in methadone treatmert. The finding of peceived utility of risk avoidance as one of the deterninants suggested that educational intervertions based on the health beliefs model should be successful if the programs also Uy to develop skills and work with the attitudes of the drug users. One of the most controvesial programs to prevent the spread of HIV infection among IDUs is the needle exchange program. Opponents to these programs argue that exchange or distribution of needles increases intravenous illegal drug use. Guydish etal. (1991) used capture-recapture methods to evaluate needle exchange. They marked needles distributed by the exchange at two time periods. Half of the marked needles (2,068l4239) returned within two weeks, and 61% (2,593/4,239) returned during the study period. The rate of return for stationary exchange sites (63%) was greater than that for roving/mobile sites (51%, X2 = 28.6, p<.001). Since a large number of needles came back to the exchange sites, the researchers argumelt that needle exchange programs did not increase the use of drugs. This type of intervention is based on the effect that changes in public policy could have on health behavior. Nevetheless, Guydish et.al.'s (1991) did not evaluate if the needle exchange program actually slowed the spread of HIV or reduced needle sharing behavior. There was no data showing that 39 the individuals who used the needle exchange would have use intravenous drugs at the same rate without the exchanged needles. Another type of program which included needles distribution but was mainly an educational intevention was that of Stephens, Feucht, and Roman (1991). They implemented a one-on-one education program with four modules and reported that high risk behaviors were significantly reduced—compared to a pro-intervention assessment. The pecentage of people who reported using injection drugs decreased from 92.2 to 70.5, and the percentage of people who reported sharing syringes decreased from 67.4 to 24.3. There was also an increase in the number of people who reported cleaning works with bleach. Some of the limitations of the study included the use of a non— equivalent control group, a group of individuals interviewed for the pre-test at the time that the experimental subjects were interviewed for the post-test, and the use of self- reportdata. IE I S . l I . Willard Cates (1988) review if counseling and testing fe' HIV antibodies to promote prevertive behaviors. He explained that public health authorities suggested voluntary HIV antibody test as a preventive intervention based on previous experience with sexually transnritted diseases. This approach argues that seropositive persons aware of their infections, wee going to be more likely to modify their behavior. Cates (1988) reported mixed findings regarding behavioral changes after testing. He discussed two major studies. The Vancouve study included gay men refered by geneal practitioners. This study found that those who wee seopositive decreased the mean numbe of sexual partnes similarly to those who were seonegative. Significantly more seopositive individuals changed to less risky sexual practices than the serorregatives who in turn changed more than those who wee not tested. The Boston study of gay 41 mer did not find a reduction in the numbe of sexual partners. It did report a positive impact on risk behaviors such as unprotected insertive anal intecourse among infected men. Cates ( 1988) described the limitations of most of the evaluations of testing and counseling programs. They included the fact that studies are conducted in samples of homosexual men who were aware of their high-risk status, rely on self-reported behavioral change, equate the decision to learn one's results with the decision to undego testing and counseling, and the fact that the methodology itself could have inflrrenced the impact of prevention messages. One example of HIV testing in a population othe than the homosexual is a blinded HIV seoprevalence study at a public prenatal and family planning certer seving mostly Hispanic women. The blood drawn from the women coming to the cente for tests other than the HIV test was tested for HIV. HIV testing was selectively offeed to women who reported risk factors for HIV infection and 14% of clielts offeed testing chose to do it. Only 28% of clients classified as being at highest risk of infection agreed to be tested and none of the four women who tested positive by blinded HIV testing chose testing. Theefore, the targeted screening program did not prove to be effective in persuading women. More information on the effect of counseling and testing on behavior change is reported from a study in which 615 seropositive and 694 seonegative clients returned to a testing site for their test results and received post-test counseling. Unfortunately, 3.9% of the seropositive and 10.2% of the seonegative clients who received post-test counseling returned to the STD clinic with probable STDs. This may mean that the one- on-one education about risk reduction provided during the post-test is not having an strong impact on reduction of sexually transmitted diseases-or high risk sexual behavior (Zenilman, J.M., Erickson, 8., Fox, R., Reichart, C.A., & Hook, E.W., 1992). germanium One of the most important preventive behaviors beer promoted is condom use. Schechte and their colleagues (1989) studied the patterns of condom use in a cohort of homosexual men. The subjects were recruited through private physicians. Questionnaire responses from April 1984 to March 1985 wee compared to responses from October 1986 to September 1987. The researches found that seronegative subjects reported no condom use with regular partners more frequently than the seopositives (55.7% vs. 23.4%). Among subjects with the most contact, 33.3% of the seronegatives, and 29.2% of seopositives did not report usual condom use during receptive anal intercourse. Usually condom use is promoted through educational interventions. Solomon and Dejong (1989) assessed the impact ofa soap-opera style videotape on inner city STD clients' browledge and attitudes about condom use and willingness to redeem coupons for free condoms. Subjects who agreed to participate in the research were randomly assigned to watch the videotape. Two studies were conducted from these data: one assessed attitudes toward condom use and the second one used cards that the subjects could exchange for condoms. Each subject had two cards, one that they could redeem in peson and another that could only be redeemed by mail. The first study found more browledge about AIDS and more accepting attitudes among those who saw the videotape. The intevention was most effective among the less educated, among those who reported less frequent use of condoms, and those involved with fewer sex partners. The second study found that subjects who saw the videotape wee more likely to redeem coupons for condoms—ever though both groups redeemed a high numbe of cards. Interestingly, the highest number of condoms redeemed was at the clinic (60%) as opposed to by mail 1.1% (13.7% redeemed coupons at the clinic and by mail). Regression analysis showed that three background characteristics interacted with the 42 Vic 1111 m. mkmhh the 43 videotape to predict browledge about AIDS, education, previous used of condoms and numbe of sexual partners; subjects with less formal education, subjects who had never used condoms, and subjects with only one sexual partner in the previous month learned more about AIDS. The variables interacting with the intervertiorr in the prediction of more accepting attitudes about condoms wee education—those with less education-and birthplace-those subjects who were not native born. MW Iaura Leviton (1989) classified the theories used in the prevertion area as: (a) cognitive decision-making (including theories of risk communication, the health beliefs model and the theory of reasoned action); (b) learning theories,(i.e., operant conditioning, and social learning; (0) theories of motivation and emotional arousal, (i.e., fear and fear arousing communication); and (d) persuasion and communication. As will be discussed in the following sections two of the theories classified as cognitive decision making theories--health beliefs model and theory of reasoned action- propose models that combine attitudes and beliefs to get to the health behavior. Programs designed to promote health behavior based on these models md to provide information-because thee is a browledge comporren -- and to promote conditions in the social environmert that could facilitate subjective norms, perception of less barries to undetake the health behavior, peception that the berefits exceeds the expenses, and general health values conductive to the health behaviors. learning and motivation theory provide alternative frameworks for the organization of information and the type of message that could be transmitted. The communication and pesuasion theories provide frameworks on how the browledge could be disseminated to the people but also, on diffeent ways through which the adquisition of browledge could affect and be affected by the social mis envrronnren' t and theefore have an impact on the individual variables vulnerable to social influerces in the health beliefs and reasoned action models. Q ”DH-111' 1] . Cognitive decision-making theories assume that people will make choices they believe will increase their likelihood of obtaining valued goods or expeierces, and it is just ignorance regarding the health behaviors or biases in thinking, that prevent people from healthy behaviors (Ieviton, 1989). Most educational interventions are based on these theories. Leviton (1989) identified one of the problems in the application of these theories to HIV/AIDS prevention is that the theories rely on people weighting consequences. With the long dorrrrancy period of HIV the individual faces too many conditions of uncertainty, such as whether or not the potential sexual partrre is infected, and whethe to delay gratification based on a probability, or take the chance of getting infected. Another problem in the application of these theories to HIV/AIDS prevention is that ofter times there are social and economic conditions propitiating the high risk behaviors and individuals -in addition to lack of knowledge-and individuals nad resources and skills to counteract those influences. One example of cognitive decision-making theories is the theory of risk communication. According to Ieviton (1989) this theory suggests that people perceive grater danger when a risk is both unbrown and dreaded. It is the situation with AIDS because among other things, the risks are unbrown—not observable—and dreaded, since the risks are not controllable and the consequerces are fatal Inteestingly, Ieviton (1989) proposed that the search for control over draded risk could explain the many mistaken beliefs about HIV transmission. This could be one of the reasons why misconceptions about HIV transmission were found among adolescents with high browledge about AIDS (discussed arlier in this chapter). Also, DiClemente et.al.'s (1988) finding a negative correlation between perceived risk of HIV infection and 45 knowledge about AIDS, and a positive correlation between peceived risk of HIV and misconceptions about AIDS support the assumption regarding a sarch for control over draded risk. Still, the authors do not provide any hypothesis about why sometimes people have browledge about accurate prevention behaviors and continue to have nrisconceptiorrs about transnrission and the effects of the need to reduce draded risk on behavioral changes. Another example of cognitive decision-making theories is the halth beliefs model. This is a causal model hypothesizing the elements that make a person assume cetain halth behaviors. The model explains that the main elemerts that could make a peson behave in cetain way regarding halth issues, are: (a) the belief that thee is a risk, and (b) the belief that there is a specific health behavior that will reduce the risk. At the same time, these two elements are influenced by other elements. The belief that there exists a risk is influenced by: (a) gereral health values, (b) beliefs regarding vulnerability, and (c) beliefs regarding the seveity of the disordes. The belief that a specific health behavior reduces risk is influenced by: (a) the belief that the masure will be effective, (b) the belief that the benefits exceed the expenses, and (c) the perceived barries to undertake the halth promoting or preventive behavior. Ieviton (1989) provided an example of the adaptation of the halth belief model to HIV/AIDS prevention; " the likelihood of condom use as a means of preventing HIV infection, will be grate when people perceive themselves as susceptible to HIV infection, perceive the consequences of HIV infection as vey sevee, peceive protective action as very effective, see few costs or barriers to self-protection, have a cue to action and are enabled to protect themselves” (p.51). Among the main criticisms to the health beliefs model are that nothing is said about how external factors affect the specific halth beliefs and behaviors of the individual and that different questions are used to masure the same variables. Therefore, it is difficult to compare the results of the application of the model. Also, 46 this model does not specify what type of behavior could be expected wher one of the conditions is absent -e.g., the perception of protective action as vey effective. looking again at Ieviton's example, social influences, cultural factors and economic conditions could have a strong impact on the individuals' peception of costs or barries to protection and therefore the ability to protect themselves. Moreover, Janz and Becker (1984) reviewed 46 investigations related to the halth beliefs model, computing a ”significant ratio”-the result of dividing the numbe of positive statistically significant findings for a dimersion of the halth beliefs model by the total numbe of studies reporting significance levels for that dimension-and organizing the studies according to the topics examined and if they wee prospective or retrospective. Janz and Becker's (1984) analysis found: (a) that the peceived barriers proved to be the most poweful of the health beliefs model dimersions in explaining preventive halth behaviors, (b) that the perceived seveity of the disorde was the one with the lowest significance ratio, but still strongly related to sick role behaviors; and (c) that the peceived susceptibility was a good predictor of both, preventive halth behavior and sick role behavior. Specific examples of how this model explains the AIDS related behavior of Hispanics are not found in the literature, however some hypothesis could be mentioned. Mays and Cochran (1988) explained the situation regarding the AIDS threat to black and Hispanic women mainly in terns of: (a) women not peceiving themselves at risk, (b) women underestimating the risks involved in AIDS as compared to the risks that poor women faad eveyday, and (c) women thinking that the benefits of not engaging in the preventive halth behaviors—the economic berefits of drug daling and selling sex as well as the social and emotional "benefits” of having a male partrre, which is supposed to bring them status even if it is a drug user-outweight the risk of changing their behavior. Clearly, Mays and Cochran are talking about the perception of 47 susceptibility, the comparison of the berefits vesus the expenses of ergaging into the health behaviors and the perceived barries to health behavior. Research evaluating the halth beliefs model in regard to black and Hispanic womer behavior is necessary and will probably show a need for inteventions at levels othe than the individual cognitive level in order to promote halth behavior. A third example of a cognitive decision-making theory is the theory of reasoned action (Fishbein & Ajzen, 1975). This theory suggests that the person's intention to act is the immediate deterninant of behavior and that four pesonal variables affect the intertion to behave: (a) the attitudes toward the behavior, (b) the beliefs about the behavior, (c) the perception of subjective norms, (d) and the value that the person places on approval by othes. The rrrain advantage of this theory over the halth beliefs theory is that it recognizes the influence of subjective norms (Ieviton, 1989). One example of an application of this theory to HIV/AIDS prevertion is: " a gay man who values the approval of his peers, believes that they endorse safer sex, and also believes that safe sex can be enjoyable, would be more likely to engage in safe sex compared to men who do not have these beliefs” (Ieviton, 1989, p. 53). I . I] . Learning theories, instead of emphasizing behavioral change as the outcome of an individual cognitive rational process, emphasize the identification of environmental cues and reinforcements promoting the adquisition and maintenance of behavior. One of the basic learning theories is that of operant conditioning (Ferster & Skinne, 1957), which states that it is mainly elements of the environmert that act as reinforcers for individual behavior. It follows that individuals will get control ove their behavior if they manage their reinforcements (Leviton, 1989). The operant conditioning theory could be appliable to the design of secondary prevention programs for intravenous drug uses, 48 whee reinforces and contingencies of reinforcements can be identified. For instance the reinforcers could be the state of physical arousal, elemerts of the environment whee the individual uses the drugs and/or the avoidance of stressful life situations. Another learning theory used in the design of prevertion programs is Bandura‘s (1977) social learning approach. This approach differs from the operant conditioning approach in that it assumes that individuals do not need to expeierce reinforcements directly to larn about contingercies, but can learn from what they see that happel to other people-modeling. This could be the basic theory underneath videotapes and movies for AIDS education which present the story of a family, couple or individual. Anothe example of social learning in HIV IAIDS prevention is through the basketball player Magic Johnson who is infected with HIV. It is possible that he already had a vey strong impact in prevention behaviors because the numbe of phone calls to the AIDS information lines and the number of HIV antibodies test performed in Michigan was much higher the days following the news about his infection with HIV (Bruni, 1991). I I . . 1] A third category of theories used by Leviton (1989) is motivation. The main characteristic of the approaches classified on this category is the assumption that interral individual's processes cause the behaviors. Leviton chose to discuss fear as a motivation and described it as a drive, and as a set of responses. Far as a drive becomes an aversive internal state to be reduced and avoided. In the same way as with the risk reduction theory, if the information about AIDS produces far because of the peception of been at high risk of infection, it could be expected that people will eithe do something to reduce the fear--not to be at risk of HIV—or to avoid baring information about AIDS. €11 he mu. mimhrm % 49 Leviton (1989) reported that the grate the fear generated in a person or group, the more self-protective behavior results, but that sometimes regardless of the fear aroused, people show grate acceptance of the halth behavior when they perceived it as effective. For example, thee is evidence that individuals at high risk of HIV infection are afraid of antibody testing. From this point of view it is argued that the consequerces of a positive test result will negatively affect social relationships, employment, and psychological states and there is nothing that can be done that will help them if they are found to be seropositive in the HIV antibodies test. ' n ' Th 'es Communication and persuasion theories are used as a basis of hwm education programs. In addition, approaches such as social marketing, and community organization have been used in the design of prevertive programs because of the potential for involvement of the community and because it has beer identified that the social ervironmert influelce critical individual variables that could be related to halth behaviors. McGuire (1985) identified the elements included in a complex communication as input and output variables. The input variables are the source, message, channel, receive, and target characteristics. The output variables are steps mediating attitude or behavioral change: (a) exposure to the message, (b) attention to the it, (c) liking the message, (d) understanding the content, (e) geneation of thoughts about the message, (i) acquisition of relevant skills, (g) agreerrrent with the communication, (h) storing of the content in memory, (i) using the information to make decisions, 0) acting in agreemert with the decisions made and reappraisal of new pattern of action. One rrrain disadvantage of this process is that the individual might fail at any of the steps. Further, it is necessary to detemine the specific conditions that will move individuals from one step to the other successfully (Ieviton, 1989). Some of the characteristics of 50 information appals that have been found to erhance the effectiveness of the messages are: (a) colorfulness and attractiveness of the presentation, (b) discussion of both sides or one side of the issue depending on the predonrinant attitudes, (c) mertion of the most important arguments at the beginning and at the end of the message, (d) brevity, clarity and directness of the message, (e) conclusions should be said or written explicitly, and (0 messages should not reflect only extreme positions. Valdiseri (1989) discussed the social marketing strategy as it is used in the halth education and prevention aras. The social marketing approach uses the traditional marketing strategies of market resarch, product development, use of incentives to increased the desirability of the behavior or idea promoted, and facilitation. The main characteristic is that in social marketing, the product is a behavior, sevice or social ida. One of the basic assumptions of social marketing theory is as Valdiserri said that : ”the 'product 'should be acceptable to the target group" (p.95). Earlier in this chapter barries to prevention programs were mentioned, one of which is that the prevention behaviors are highly controversial for many communities. It is in dealing with groups that might have difficulties accepting the prevertive behaviors that educational programs providing basic information about a halth issue will need to be supplemented. This will necessarily include elemerts that will increase their incorporation into the range of culturally accepted behaviors for that particular community. The diffusion of innovation theory assumes that necessary innovations move through a natural diffusion process and that the goal of the researcher, marketer or designer of a program is to speed-up the process. The diflusion process includes the same stages if it is toward the adoption and implementation of new programs in organizations as if it is about the adoption and acceptance of new ideas. Thee are three main fatures of the diffusion processucurve»: (a) the characteistics and distribution of individuals or organizations according to their relative time of adoption, (b) the lag time 51 between awareness and adoption, and (c) the forces pushing the diffusion process forward and those holding it back at each stage (Rogers, 1983). Two main vmiables affect the diffusion process significantly, the satisfaction of the early adopters and the timing and placing of the inteveltion. As mentioned earlier in this chapte ,the HIV [AIDS epidemic is more complex than any othe disease. In terms of the diffusion of innovation theory, one of the prevention behaviors is not new to many groups in the population and has been rejected by the public dming many years-use of condoms. In a situation like this, we would not expect that the innovation--the use of condoms to prevent the sprad of HIV—will progress through the natural diffusion of innovation process the same way as other innovations, even though the browledge about AIDS will probably progress according to the diffusion of innovation curve. Anothe approach that Leviton (1989) classified within the communication and persuasion approaches was, community organization. Community organizers see individual behavior as a reflection of community behavior and in order to change unhealthy behaviors the approach is to change the behavior in the social setting. This is similar to social marketing but requires more involvement -and decision making--from the community. Carlaw (1982) said that the common some of change to organize a community for halth are dissatisfaction and aspiration. Dissatisfaction that could arise fiom an assessmert of the community health that will promote reflection on needs or problems, and aspiration that may come from emulation of the example set by anotlre community or from a local lade. The three rrrain strategies of social change appliable to halth education are: (a) The Collaborative Strategy, assumes that the educators and the community share the same values and is basically an educational intervertion at the community level; (b) The Campaign Strategy, assumes that the values are not too diffeent. It suggests that the deteminants of success are tradition, apathy, or 52 ignorance; and (c) The Conflict Strategy, consists of the use of social protest, civil disobedience, and strikes. These approaches are necessary because changes in the distribution of power and decision making are required for change (Warren, 1975). Solomon and Dejong (1986) reported that the gay community organized its support for AIDS action in a vey effective way, providing services for persons diagnosed with HIV and supporting prevention activities. A method of community organization not mentioned by Leviton (1989) or Warren (1975) is Paulo Freire's method of education. Freire's method was originally developed for the purpose of literacy training. It is a process of problem solving, dialogue, reflection and action (Freire, 1970). Pruitt (1980) said: "Freire viewed the act of acquiring browledge as a mans through which people can analyze critically the culture which has shaped them and move toward reflection and positive action upon their world” (p.3). Freire's method uses symbols or codes to be uncoded by the group through idertification with a particular situation which at the same time promotes understanding of community problems. This type of approach could be successful with communities that are not used to traditional educational methods, do not peceive their membes at high risk of HIV infection, could perceive the preventive behaviors as opposite their beliefs, or valued community support and respect. A study that used an approach similar to Paulo Freire's is discussed by Marrow (1969). Marrow discussed Kurt Lewin's experiment to compare the effectiveness of authoritarian and democratic styles of leadership in pesuading housewives to serve organ meats to their families. Some groups of womer hard a lectru'e by an expert on the subject, others took part in group discussions in which women expressed their own opinions about the need to change food habits and took over the responsibility for doing something about the problem. The group discussions proved to influence more the housewives' decisions than the expert lecture Ieviton (1989) identified characteristics 53 that favor group situations for the promotion of changes in health behaviors: (a) when the relationship between the lader and the group members is good, (b) when the task is clear, (c) wher the lader has some type of power ove the group, and (d) wher the group has the ability and motivation to geneate relevant information. Moreove, many resarches (Friedman, Des Jarlais, & Sothean, 1986; Baldwin & Baldwin, 1988; Siegel, 1988; Crawford, Jason & Salina, 1990) have stated that passive didactic approaches alone are not as effective as participatory (democratic) approaches in promoting prevertive behaviors. One example of a participatory approach is a program directed to promote family discussion of AIDS (Crawford, Jason, & Salina, 1990). This project presented information about AIDS and conducted execises to promote communication about AIDS, sexuality, drugs, and decision making. All the activities were conducted within the family context. The behavioral execises included: AIDS family IQ test, role playing, imaging one's heroes and/or heoines responding to pee pressure situations, discussing how information about the number of individuals diagnosed with AIDS makes one feel, and drawing pictures of germs, viruses and diseases. Siegel (1988) also emphasized, that the participatory approaches were important because they represent a way to exploit the potential of social norms and sanctions to constrain or promote halth behaviors. Summary and The Need for Furthe Research The programs described above target individuals identified as performing certain high risk behaviors. These type of programs are just beginning to be evaluated but the data suggests that reductions on risk behaviors are been obtained. Still, there is the disadvantage that these programs have been designed for people with brown risk and not for the geneal population, and that nothing is reported regarding how and if the 54 programs will have to be implemented in diffeent ways depending on the ethnicity or culture of the cliertele. It will be important to brow-for the purpose of HIV/AIDS prevertion—if the individual's attitudes and behaviors will be more affected by his/her identification with a group that is at high risk because of the pe'formance of high risk behaviors, or by his/he identification as a member of an ethnic group. A review of the theories related to prevention-learning theories, motivation theory, communication and persuasion approaches-to follow eithe the halth beliefs model or the theory of rasoned action they also depend on the population that is going to be targeted, on the way the risk behavior is defined for the specific population and on the variables that one wants to affect— information about HIV/AIDS, social influences, or both-in order to promote health behavior. Figures 1 and 2 show the different elements of the halth beliefs model and the rasoned action theory that could be consideed to be affected by browledge or social influences. 55 Social influences Information about HIV/AIDS General Health values , Beliefs about Beliefs severity of disorder about ulnerability / D Belief that a risk exist Health behaviors Belief that the specific health behavior reduces risk / \ Perceived Belief that barriers to the benefits undertake exceed the behavior expenses Belief that the measure will be effective lnfonnation about HIV/AIDS Social influences m1. Elements of the Health Beliefs Model affected by information and social ln uences 56 Prevention programs testing the assumptions of the Health Belief Model should include didactic components regarding the severity of the disorder and the beliefs about vulnerability as well as information to promote the belief that the measure will be effective in preventing the disease. But the programs should also include elements to promote conditions in the social environment that will facilitate the individual's perception of less barriers to undertake the preventive behavior, beliefs that the benefits excwd the expenses and general health values. lnforrnation about HIV/AIDS Social influences Evaluation of results of the Normative beliefs behavior Beliefs regarding Motivation to the rims press Attitudes towards action Subjective norms \ / Behavior Intention Emmi Elements of the theory of reasoned action affected by Social influences and information about HIV/AIDS In the design of programs based on the reasoned action theory ,the didactic component should provide information helpful in the evaluation of results of the behavior in terms of facts and beliefs about consequences, but should also work with the elements of the social environment that could promote normative beliefs in the direction of the health behaviors or the motivation to please when pleasing others will mean performing the health behaviors. 57 Looking at the previous figures, it could be argued that including the specific information indicated by each model (either following learning or motivation theories), designing the program in a way that involves the community (Paulo Freire, collaborative strategy), or altering the social environment (conflict strategy, eampaign strategy), the models should achieve their goals. However, there are some major areas of uncertainty that need to be addressed. First of all, there is neither enough data indicating the specific elements of the social environment that influence normative beliefs, motivation to please, general health values, beliefs about vulnerability, the perception of barriers and the belief that benefits exceed expenses, nor information on how to affect the elements of the social environment to promote all the things mentioned above. The other major problem is that one time educational interventions might not be enough to obtain behavioral change. It could be added that one time interventions might not be enough to promote social influence in the positive direction. Maybe the major area of uncertainty that makes these theories extremely difficult to test is the fact that the time that it will take for the health beliefs, perceptions or attitudes to develop is not specified. Since these are the results of information and social influences it is reasonable to believe that all the necessary conditions might not be happening at the same time. The models do not propose how the beliefs, attitudes and perceptions are weighted by the individual in order for him/her to be able to still do some health behavior when some of the elements of the model are not positive (e.g., normative beliefs, or general health values may not be present). The process to obtain behavioral change in terms of prevention of risk behaviors seems to take time for the repen'tion of the information in different ways and for the social environment to be affected positively—e.g.,public policies, education--and negatively--high numbers of people affected physically, economieally and emotionally by the consequences of a behavior. It is proposed that short term or one-time prevention 58 programs include as their outcome variables elements that will show disposition to receive more information about the disease and its prevention and that will show a potential effect on the social environment. The outcome variables for these programs could be openness to information about the disease and its prevention and awareness of the importance of learning about the topic for the specific community. In this sense, it could be expected that a program that provides information about HIV/AIDS in a community environment should promote openness and awareness. Openness to information facilitates the future-and continuous in the ease of HIV/AIDS—education of the individual, and the awareness of the relevance of the topic for the community should facilitate the acceptance of prevention behaviors in the social environment and the integration of the behaviors into the life of the community. The following figure shows the model discussed. Knowledge about AIDS Openness Awareness More T'me Somal knowledge influences Behavior" intention Health behavior Em}, A model of health behavior through the promotion of openness and awareness. 59 Depending on the type of knowledge that continues to be communicated and the way that the social environment is affected by the information and the disease, the behavior intention and the health behavior will develop in the individual following the theory of reasoned action and/or the health beliefs model. If a short term or one-time intervention program is going to be implemented and the promotion of openness and awareness becomes part of the objectives of the program, it is necessary to identify methods that will promote those two variables. The review of the methods commonly used in prevention programs and of typieal interventions for HIV IAIDS prevention, showed that no one single method seems to fit best for the design of all HIV/AIDS prevention programs. The critical variable for selecting which method should be followed in the implementation of a programs—even more critieal than some of the objectives-4s the specific population. For instance, the issues that might represent a barrier to openness to information about AIDS could be different for different populafions--e.g., language, values, economic conditions, access or patterns of utilization of health care services. N ilken (1987) said that AIDS prevention requires the application of theories about human behavior depending on the culture and special circumstances of individuals. It was discussed earlier that this is necessary in order for the individuals to integrate the information and new behavior into the range of accepted and desirable behaviors for his/her culture. The next section discusses the rationale for the design and experimental evaluation of a one-time HIV/AIDS prevention program for Hispanic migrant families that includes the promotion of openness to information about AIDS and awareness of the importance of learning about AIDS for the Hispanic community as the two behavioral goals. Leviton (1989) identified three steps in the design of prevention programs: (a) identification of aspects of high risk behavior that really pose the risk, (b) characterimtion or description of the behaviors, and (c) determination of the theories that fit the behaviors ["as opposed to making the behaviors fit the theories” (Leviton, 1989, p.46)]. This section used the information discussed earlier in this chapter to introduce the design of the prevention program for migrant workers-mainly Mexiean or Mexiean American—implemented in Michigan. A. Identification of aspects of high risk behaviors that really pose risk The cumulative incidence of AIDS among Hispanics in the Midwest is much higher than the cumulative incidence for white non-Hispanics in Michigan (Torres, R., l990a, l990b;Michigan Department of Public Health, January, 1992). The risk of AIDS for Hispanics was three times higher than the risk for non-Hispanic whites (Selik, 1989). Iafferty (1991) identified risk behaviors in a sample of migrants-mainly Iatinos—z (a) 36.8% of the adults having two or more sexual partners during the previous year, (b) 25% having multiple partners without the use of condoms, (c) 13% reported intercourse with women who sell sex, and (d) 20.3% having used self- injecting antibiotics and vitamins-from which 3.5% reported having injected antibiotics and vitamins with a shared needle. The main risk behaviors are therefore: unprotected sex and use of needles for self-injection of antibiotics and vitamins. B. Characterization of risk behaviors Both risk behaviors are greatly affected by social norms and expectations. The cultural values discussed earlier that could be related to HIV/AIDS prevention are: sexuality, religiosity, ”familismo”, "simpa ", ”respeto", ”machismo", and 60 w' w .9 -7 . . ._. _ . -._.———o-" u.._ ., .. 61 ”marianismo". Also, the hypotheses that the attitudes toward homosexuality and that elements of the socioeconomic environment could be related to knowledge about AIDS were discussed. The unprotected sex could be supported by the: (a) "familismo", in talus of the desire to have children; (b) ”machismo", in terms of the idea that men will have sex with women who sell sex (even though there is no data about the use of condoms in these situations); (c) "marianismo", in terms of the submissiveness and naivete expected in the women, and ; (d) the sexuality, in terms of the patterns of communication about sexual matters. Still, in the previous discussion of cultural values, I discussed how each of the values could also have a positive influence in AIDS prevention. For example, menandwomen couldbemoremotivatedtoteachtotheirchildrenandtolearnabout HIV/AIDS prevention for the sake of their families (”familismo"), men could be motivated to use protection when having sex also as part of their role to defend the family (”machismo") , and women could take action and promote the use of condoms and other prevention behaviors as part of the other face of the "marianismo", the ”hembrismo". The behavior of sharing needles for antibiotics and vitamins could be relamd to the ”simpatia" script and to socioeconomic conditions such as the lack of access to health services. None of the two risk behaviors identified in the migrant population could be classified as gambling behavior, instead these behaviors could be considered habits strongly affected by these elements of the social environment. Moreover these social influences could interfere with the openness to information about AIDS and with the way the information is interpreted by the individual. C. Theories that fit the behaviors It is important to note that since the risk behaviors are social behaviors, and migrantsathigherriskarenottobe identified,theinta'vention wasdesignedtobe 62 implemented in a social groups—meetings with several families. The section on Hispanics' knowledge and attitudes about AIDS identified some areas of concern and opportunity for prevention programs. These included the observations that: (a) subjects of Hispanic origin are less knowledgeable about AIDS than non-Hispanics; (b) a high percentage of Hispanics reporting having read AIDS brochures; (c) a small number of Hispanic adults identified condoms as an effective prevention method, and a high number of them thought that monogamy is an effective prevention method; (d) that the perception of risk of HIV was not found frequently among Hispanics and when it was found it was negatively correlated with knowledge about AIDS and positively correlated with misconceptions about AIDS; (e) very limited knowledge about prevention methods existed among Hispanics , and (f) a small number of Hispanics identified AIDS as a problem in the Hispanic community and knowing that there is no cure for AIDS. Other critieal findings were the areas in which Mexican Americans showed disadvantaged when compared to other Hispanic groups: (a) knowledge about AIDS and prevention behavior, (b) talking to children about AIDS, (c) number of misconceptions about AIDS, and (d) skepticism regarding government advice about AIDS (AIDS Community Research Group, 1988; Cristo Rey and SOAP, 1989; Dawson & Hardy, 1989; De la Cancela, 1989; Marin & VanOss Marin, 1989; Bletzer, 1991). A need for education about HIV and AIDS was identified from the literature and next, it was necessary to find out the best way to provide education. Since social factors that could influence openness to the information and the interpretation of the information were also identified it was necessary to develop an intervention method to provide knowledge and also work with the social values and potential influences on behavior. Siegel's (1988) suggested that, ”If we are to induce and maintain change... in any social group, we must find some way to tie the desired change into the group's own value and belief system”(p. 643). The theories of communication and persuasion, .m— 63 specially in the area of community organization with the Paulo Freire's theory, provided the background for the design of the educational method. The Freire approach has been recommended for populations that are not used to traditional educational environments. It provided opportunities for the community to discover the issues and present them to themselves from their own perspective. This approach was considered a method of empowerment. Since it is known that most migrant workers do not have a traditional educational background and that there are many social issues related to the issue of AIDS it is better to propitiate an environment where those issues can be brought up. It was also thought to be helpful for the community to discover the facts throughout the recognition of their experiences and feelings about the different aspects of the AIDS epidemic. Before further elaboration on how the intervention was implemented, it is critical to discuss the method and problems reported in the only published study of AIDS and migrant workers in Michigan (Bletzer, K., 1991). The study aimed at the assessment of migrants’ knowledge about AIDS. The researcher distributed a one-page questionnaire (ten yes-no items) at the start of educational sessions to 297 migrant workers at 21 camps. The instrument was read aloud in English and Spanish to help those who wanted to follow the order of the questions. Thirty-five of the instruments were returned with only demographic data, 76 completely unmarked, and 186 contained answers to all or some of the knowledge questions. Obviously, this is a very low response rate. There was no post-test because different types of interventions were used, and because the researcher indicated that sometimes the presentations lasted close to two hours and it was not feasible to administer the instrument. Keith Bletzer discussed the difficulties in getting the participants to attend the meetings. When they did come, they often came late or were coming in and out of the presentation and could not complete the questionnaire. Besides the specific findings about migrants' knowledge about AIDS, Bletzers study shows how there might not be openness to information about AIDS or awareness of the need to learn about it. As further learned measures will be extremely difficult to administer in a presentation, and that even very short instruments asking general information about knowledge might not be accepted by the community. Unfortunately, Bletzer’s (1991) did not describe the recruitment technique for the presentations nor details about the activity that could have make it more or less attractive for the people at the camps. Consequently, the participatory educational technique that was going to be designed and implemented at migrants camps faced the following challenges: (a) the meetings needed to be attractive to the people; (b) it was necessary to be able to compare the findings without the reliance on pro-post test administration (due to the inconveniences that Bletzer identified, and because of the high mobility of migrant families); and (c) the instruments needed to be perceived as non-threatening and easy to respond to--it was not going to be possible to gather data on individual risk behaviors. But the intervention also needed to provide adequate information effectively and to propitiate an environment for the exploration of individual's attitudes towards AIDS related topics--i.e., homosexuality, drug use, people with AIDS—and for the discussion of social norms that could be related to preventive behaviors. The information should also produce comfort with the discussion of the topic and therefore, openness to further information and awareness of the nwd to learn about it. Figure 4 summarizes the potential influences on knowledge about AIDS identified or hypothesized for the Hispanic population . Social influences ‘ General health values * Cultural beliefs 'simpatia" 'respeto' sex roles religiosity Openness Knowledge about AIDS / 65 Individual variables " Attitudes toward: Homosexuals PWAs Dnlg users * Ace * Education / \ Awareness / Social influences Elm. Model for the prevertion program implemented Behavior intention Health behaviors Finally, with these challenges in mind, and due to the high incidence of AIDS among Hispanics, their low scores on attitudes and knowledge about AIDS, and the poor success of current educational efforts the following objectives were chosen for the program: (a) to increase knowledge about AIDS, (b) to promote the subjects exploration of their attitudes toward people with AIDS, homosexuals and drug uses, (c) to motivate more openness to receive information about AIDS, and (d) to increase awareness of the importance of AIDS education for the Hispanic community. In order to evaluate the participatory edueational intevention another educational method was used-a lecture type presentation~, and both methods wee implemented in migrants' eamps in Michigan as an experimental field evaluation. The recruitment process included an initial visit (no AIDS discussion) between the educator and the migrant families, and a second visit to invite the families to an entertainmelt activity that was going to include a 20 minute presentation about a critical health issue. Each housing unit on the expeimental eamps was randomly assigned to one of three groups: participatory learning group, didactic learning group-lecture type edueation—or control group—just the entertainment activity and data collection. Two camps were included in the design as non-equivalent control camps. In the participatory learning group the participants guided the discussion of the information through their interpretation of AIDS related issues shown to them in posters developed by the American Red Cross known as the "talking posters”. Immediately afterwards, a variety show was played with the interruptions for public service advertisements about AIDS. The didactic learning group was a passive approach, very similar to the current AIDS education to which Hispanics have more access, because it comprises a brief discussion of AIDS and the presentation of a variety show with interruptions for the presentation of four public service advertisements about basic information regarding AIDS issues. A week after the group's meetings the researcher went back to the camps and the subjects had the opportunity to display behaviors showing openness to AIDS information and awareness of the need to learn about AIDS, in exchange for entries into a raffle. The original proposal mentioned that gender differences wee going to be evaluated. The analysis showed that gender was not a significant factor on any of the relationships studied. As a result gender was dropped from this dissertation. The following questions and hypotheses wee examined in the study : 1. What do migrant workers know about AIDS (transmission, preventive behaviors, prevalence among Hispanics and other ethnic and/or minority groups)? 67 H1. Thee will be a significant diffeence between the rrrigrant workes' knowledge about HIV/AIDS after the educational experience in the two experimental conditions as compared to the control groups. H2. Migrant workers in participatory learning group will show higher knowledge than those participating in the didactic learning group which will also be higher than subjects in the control group. 2. What attitudes do migrant workes have towards people with AIDS? H3. Thee will be a significant difference between migrant workers' attitudes towards people with AIDS after the educational experiences, compared to the participants in the control conditions. H4. Thee will be a positive significant relationship between knowledge and attitudes toward people with AIDS and the knowledge about AIDS. H5. There will be a significant relationship betweer attitudes towards people with AIDS and the behaviors of: requesting of written materials about AIDS, volunteering to distribute written rmterials to other people, bringing someone to receive information about AIDS, and requesting more information about condoms and spermicides. 3. What attitudes do migrant workers' have towards homosexuals and drug users in relation to AIDS ? H6. There will be a significant difference between attitudes towards homosexuals of migrant workers in the experimental conditions, and the attitudes towards homosexuals in the control groups. H7. Thee will be a significant difference between the attitudes of migrant workers towards drug users in the expeimental conditions, and the attitudes toward drug users of migrant workers in the control groups. H8. There will be a positive significant relationship betweer migrant workers' attitudes towards homosexuals and their knowledge about HIV /AIDS. H9. There will be a significant relationship between rrrigrant workes attitudes toward drug uses and their knowledge about HIV/AIDS. H10. There will be a signifieant relationship betweer migrant workers' attitudes toward drug users and their attitudes toward people with AIDS. H11. There will be a positive significant relationship between migrant workers' attitudes toward homosexuals and their attitudes toward people with AIDS. 5. Would the participation in the participatory or didactic learning groups increase migrant workers' openness to AIDS information as measured by their behavior? H12. There will be a significant difference in the number of subjects requesting more written information about AIDS, and the number of subjects requesting more 69 information about condoms and spermicides between the experimental education conditions, and the experimental control group. 6. Would the participation in the participatory or didactic learning groups increase the migrant workers‘ awareness of the importance of education about AIDS? H13. There will be a significant difference between the migrant workers' report of interest in distributing information to other people, and disposition to bring someone they know to receive information at the end of the intervention in all conditions, and the difference will be higher for the experimental education groups. Qualitative information about the participants' satisfaction with the edueational experience, their sex roles behaviors related to the project, and the questions that were asked more frequently during the educational experiences was gathered and analyzed The next chapter describes the method followed in conducting this field experiment. CHAPTER IV METHODS This project was supported by the AIDS Awareness Office from Cristo Rey Community Center, the Iansing Chapter of the American Red Cross, the Special Office on AIDS Prevention from the Michigan Department of Public Health and the Psychology Department from Michigan State University. All the lectures and or participatory meetings were conducted in Spanish by this researcher (female). The AIDS Awareness Coordinator, a man, attended to all activities and was a resource when younger men wanted specific information and preferred to ask a man. In the following pages I will refer to both ofus as the educators and use the words researcher or AIDS coordinator when it is necessary to be more specific describing sorrre of the interactions. Setting All the activities were conducted at eight migrants camps in Michigan. A nrigrant camp is a small area on a farm with small housing units (mobile homes, wood houses or large warehouse constructions divided for different families) occupied by seasonal agricultural workers. Six of these camps were included as experimental camps, and two as control camps. The decision of whether a camp was included as an experimental or control condition was based on its location and the eamp similarity in terms of situational and environmental characteristics. Camps that wee too close to each other wee not included. The two eamps that are farthest from the other eamps were assigned to the control conditions (one other camp was chosen for the pilot test of the whole procedure). The housing units are often arranged in the ramp in the shape of a rectangle or circle and the space in the center is used for showers or washing machines. Most 70 71 farmers receive money fiom the government to provide housing to their workers during the summer. However, sometimes the migrant families have to pay rent to the farmers to stay in the housing units. Moreover, on some farms, people are not hired if they are not going to live in the housing units owned by the farmer. The camps included in the study had between seven and sixteen housing units. In two of the camps the housing units had just one room with one or two mattresses on the floor, a table, some chairs and an old stove and refrigerator. In most of the other camps the housing units were still very small but had one or two rooms--sometimes without doors, and separated with curtains. Half of the camps visited (three) did not have showers inside the housing units, and only three or four water-closets for the community. Only one of the camps had specific areas which were clean and prepared for the children to play. One of the camps visited had much better housing units than any other camp-~made out of bricks, larger, painted and with sidewalks—this is the camp that also had areas for the children to play and a basketball court. With the exception of two camps (working on lettuce and onions) all camps worked in pickles. Usually one of the members of the family is contracted by the farmer who pays the worker according to the number of pounds of the crops picked daily. Therefore, it is convenient for the families to have many members going to work at the fields. None of the families live permanently in Michigan: they spend half of the year working and living in either Texas or Florida--just two families had come directly from Mexico. All families drove to Michigan and moved into the housing units during the first few weeks of May (especially those working on pickle farms). The crops are ready to be picked during the last weeks of June or the first week of July. Meanwhile, the workers could be eithe hired to help cultivate the crops, or unemployed until the crops are ready to be picked. 72 No people of non-Mexican ancestry were found working in any of the camps. Most of the families have been coming to work in Michiganuwith the same farmer-- consecutively during many years and in most of the camps, many families were related. The type of family living in the same housing unit was either nuclear—just the parents and children--or extended-including grandparents, nieces, nephews, etc.. Nuclear families were found more often in individual housing units when other nuclear families related to them were also living at the same camp. When extended families wee found living in the same housing unit, usually the families living in the othe' housing units at that camp were not related. Still, it was clear that the families travel to Michigan in extenmd families and usually worked for the same farme'. It was not necessary to request permission from the farmers to conduct the activities at the camps—the activities were not going to interfere with the farm work and it was up to the migrants to refuse to have the activities near their housing units. Still, all the farmers were notified about the program a month before it started, and had the opportunity to ask questions and meet with the educators. Only one farmer contacted the educators requesting an interview with us before any contact with the migrants living at his camp. This research will not identify the camps assigned to each condition or identify the results from particular camps. Research Participants The first visit to each camp had the following objectives: (a) to meet migrant families, (b) to establish contact persons, (c) to determine the number of families in the camps, (d) to determine the location for the tent, (e) to obtain a camp phone number, (f) to find out when the workers were going to start working at the farms, (g) to identify if the people wee interested in the project activities, and (h) to discuss any objections that poteltial participants had. 73 The first visit usually lasted between one and two hours (from 6:00PM. to 8:00PM.) and the interaction was mainly with women and children because they were the ones at the camp. Still, all the adults present at the camp wee met during this initial visit. It was common to find groups of women sitting in front of a housing unit or playing Bingo. During the time that I was talking to the women, the AIDS coordinator often was able to distribute candies to the children. When the men were at the camp they were found usually near a truck listening to music in Spanish or doing some work fixing one of the vehicles. They usually heard the information that was given to the women. Usually a men was invited to be the contact personnthe oldest or one related to different families living at the camp--; in their absence, a woman was invited to be the contact person. The men was approached first because recalls of experiences from people who have done migrant AIDS education in the past, informed me that getting the men to participate was a very difficult and that if they do not agree with the conduction of the activity the participation of their farrrilies or peers was also difficult. The role of the contact person was to introduce the educators to other families (sometimes walking with me door to door) and to express any concerns about the activity or presentations that he/she perceived that the people had. The contact person also provided information on any change in plans that required a rescheduling of the meetings. The people contacted in all the ramps showed a lot of interest in the activity- specifieally in the videotapes of Tex-Mex bands-and suggested days and times for the meetings. The activity sounded ve'y appealing because in most of the camps the first visits were conducted during the second and third week of June and at that time the migrants had not started working. They did not have many options for entertainment. Even though most of them had television, they didn't have any Spanish channels. The 74 videotapes that were offered for the meetings included a musical show that most of them watched daily while in Texas or Florida. Within three days after the first visit, each housing unit at the eamp was visited again. This time I talked with the adults about the activity and gave them an invitation. At the same time, records wee kept of the number of men and women older than thirteen years old living on each housing unit, of the surname of the family, and of the color of the invitation left. On each of the experimental camps, three colors of invitations were distributed. The color coded invitations were used to randomly assign housing units to the control group, participatory learning group, or didactic learning group. Only one color of invitation was distributed in the control camps—because there was going to be one type of meeting. Everyone at the camps was assigned to the meeting that his/her housing unit was included in. It was specified that the size of the tent used for the presentations dictated the number of people that could be invited. It is important to note that complete families could show-up for the presentations but only subjects 13 years old or older participated in data collection activities. The invitations for the experimental groups specified that during the meeting a critical health issue and information about a study that was gathering information to benefit migrant workers were going to be discussed briefly. The invitation also described the names of the bands included in the videotapes, the date of the presentation, the fact that refreshments were going to be provided, and the affiliation and names of the educators. Interestingly, nobody ever asked what health issue was going to be discussed. Appendix A displays the format and content of the invitations. Sample The participants in this experiment wee Mexican Ameican migrant workes in Michigan. Migrants tlrirteer years and older wee invited to participate in either the education (182 invited to educational conditions didactic or participatory, of whom 84 came to the activities) or control meetings (131 migrants invited and 68 participated). In total, the project approached 313 migrant workers and received the collaboration of 139 subjects (89 females, 50 males). The following table (1) displays the number of people invited to each group (N) and the males and females who attended and the percentage of participants from each camps. The camps are designated by letters. Table 1. , ' fmi . ' Groups Exp. camps Control Didactic learning Participatory learning N F M % N F M % N F M % A 226 445 3517357 293 528 B 213119 132554 133131 C 145357 111118 102020 D 164238 92356 115155 E 125475 62150 125475 F 104 040 131223 205130 Totals 9.51m 87 25 14 45 W Group totals: 42 39 35 Non-equivalent N F M % control group G 22 8 5 59 H 14 5 5 29 TotalsailLJJJZ Group Totals: 24 More females than males attended the meetings: (a) in the control group,74% of the womer and 25 % of the men invited to the meetings attended; (b) in the didactic learning condition, 71% of the women and 31% of the men invited to the meeting 75 76 attended; and, (c) in the participatory learning condition, 52% of the women and 24% of the men invited to the meeting attended. The demographic characteristics of the sample were: (a) age, X: 27.8 years (S.D.=14.2, min.=13, max.=76); (b) education , X=8.13 years (S.D.=3.59, min.=no education, max.=4 years of university); (c) marital status, married=77, single=52, living together=4, widow/widower=2; (d) cultural/ethnic group, Mexican=76, Mexican- American=57 and Chieano=2; and, (e) preferred language, English=8, Spanish=61, English and Spanish=68. Table 2 displays the means for age and education for each of the conditions and Table 3 displays the distribution of responses on language, marital status and cultural and ethnic identity. Table 2. WWW. Conditions Variables PL DL CG NBC Age 25 .69 28.28 26.12 32.52 Education 7.91 8.32 8.21 8.00 Note. PL= participatory learning group, DL=didactic learning group, C: control group, and NBC= non—equivalent control group. Table 3. Distribution of remngs on nggraphic characg’stics by group. Conditions Variables PL DL CG NEC language preferred English 3 l 2 2 Spanish 15 16 14 16 Both 2 22 25 6 Marital status Married 19 20 25 13 Single l2 17 14 9 living together 1 1 - 2 Widow/widower 1 1 - - 77 Table 3 (cont'd.) Cultural and ethnic identity Mexican 22 23 2O 1 1 Mexican-American l 1 15 19 12 Chieano - 1 - 3 Note. PL: participatory learning group, Die-didactic learning group, C: control group, and NEC= non-equivalent control group. The migrants discussed many of their needs with the educators and since there were consistencies in the things that they reported, the subjects' needs were considered important situational variables. The main needs mentioned wee: (a) furniture, especially cradles, chairs and mattresses; (b) medical services--sometimes thee were conflicts between the schedule of the clinics available, and migrants' work hours, also, some clinics that visit the camps during the Summer were not announcing their visits; (c) food- especially during the month of June when many of the migrants wee not been paid; (d) televisions or radios; (e) toys; (1) kitchen appliances; and (g) a washing machine for the camp. Also, even though it was not mentioned by the workers, we observed during the visits that the electricity generators in some camps wee very old and frequently stopped working and that three camps sometimes did not have water running inside the housing units. The Chi-square test of independence is used to study the null hypothesis that the categorical variables: education, gender, preferred language , marital status, age, and cultural and ethnic identity, and number of previous sources of information about AIDS are independent of the conditions (groups) in the study. None of the Pearson Chi-square coefficients computed was significant. Research Design The evaluation of the two AIDS education processes was done as a field experiment with four conditions. The housing units on each of six migrant camps were randomly assigned to the control group or to one of two learning groups. All the housing units in two other camps were assigned to a non-equivalent control group. The non-equivalent control group is a condition were only the entertainment activity and the post-test were conducted. It is named non-equivalent beeause the participants in these groups wee not randomly assigned to the condition. The dependent variables, knowledge about AIDS and behaviors showing openness to information about AIDS and awareness of relevance of educating the community about AIDS, wee assessed after the inte'ventions in the experimental edueational conditions A and B and after the meetings in the control conditions. Hence, the research design was a post only design. Figure 1 displays the experimental design. Groups .. . . Non-equivalent Partlcrpatory Drdactlc Control control «:1:ng Timon!!!) figure; Research design. 78 Procedure One of the two educational methods consisted of a lecture and the presentation of public service advertisements about AIDS (in Spanish) inserted in a videotape of entertainment, which was presented after the lecture. The key messages provided in the lecture are outlined in appendix B and the information about the public service advertisements is displayed in appendix C. The second educational method consisted of a modification of the Paulo Freire model, where the participants watch symbols that are meaningful to them and that help them to relate to the information that the educator wants them to discover. The implementation of this type of educational intervention in this research relies on a participatory approach to the presentation of the information prompted by ”talking posters" (developed by the American Red Cross). For descriptions of these posters, see appendix D. Participants in the second learning group were also exposed to the entertainment videotape with the public service advertisements about AIDS. Each of the conditions on each eamp met on a different day and had education (participatory or didactic format) and entertainment (the videotapes), or just the videotapes (the control conditions). All participants answered the same questionnaire at the end of the meeting. Five to six visits to each of the experimental camps and four visits to the control camps necessary. The purpose of the first two visits was discussed earlier in this chapter. The following table (4) indicates the purpose of each of these visits. 79 80 Table 4. WWW Visit Purpose III - Meet migrant families. — Establish contact persons. - Determine number of families in the camp. - Determine location for tent. - Attain camp phone number. - Find out the date when the workers will start picking-up the crops. - Identify if the people are interested in the activities planned. - Meet or get re-acquainted with migrant families. - Handout color coded invitation to housing units recording the number of people older than 13 years old on each housing unit, their surname and the color of the invitation distributed to them. - Confirm tent site, contact person, & number at site. - Conduct AIDS presentation for control group. - Provide AIDS information materials. - Conduct AIDS presentation for participatory or didactic conditions. - Provide AIDS information materials. - Conduct AIDS presentation for corresponding participatory or didactic condition. - Provide AIDS information materials. - Hold raffle—to provide an incentive for migrants to return behavioral change cards. - Provide AIDS information materials. The first meeting on each experimental camp was the one with the control group. The order of the meetings for the other two conditions varied: in three of the camps the meeting of the didactic learning group was the second one, and in the other three camps the meeting of the participatory learning group was the second one. The number of planned visits to the camps was 44 (20 visits for the meetings of the different conditions). However, sometimes meetings had to be rescheduled due to unexpected 81 circumstances such as: (a) a birthday party going on at the day and time of the meeting; (b) a baseball game between all the men in the camp and a neighbor eamp; (c) the decision of the farmer to request the migrants to work until late in the evening; (d) all the women at a camp going out together to buy groceries--on the same night; (e) failure of the video equipment and the television; (0 severe rain, or : (g) simply not finding anyone at the camp. For instance, in one camp two meetings had to be done in the same day. The following paragraphs describe each group. As soon as we (researcher and AIDS coordinator) arrived at the camp the children came to us and started to help unloading the truck. Before we set up the tent, I went to each of the housing units assigned to the meeting-escorted by the children-- and checked if the family was at the camp. The families wee told that the presentation was going to start in 25 minutes. Most of the time we had to start much later than the scheduled time, waiting for families assigned to the meeting who were either grading the crops or out of the camp doing some errands, but had specified that they were coming back for the presentation. The children were very excited about the activity --specially about the refreshments and the tent-and we waited for their parents playing baseball or soccer with them or watching some additional videotapes on the television that we brought to the camps. It was difficult to convince the children that they needed to come to the meeting to which their housing unit received the invitation. Therefore, wherever we had enough space children under 13 years old were allowed inside the tent to watch the videotapes and have some refreshments. We did not allow children of those ages inside the tent during the brief discussions about AIDS, unless an adult from their housing units decided that the child could listen to the information. The people invited to each meeting usually sat on the carpet inside the tent or brought chairs from their houses. They received refreshments as they came into the tent 82 and the first five or ten minutes wee dedicated to informal conversation and jokes. In order for the subjects to be fully informed of their rights before they choose to provide data, they were informed that the presentations were also part of a study of methods of AIDS education for Hispanic families and that at the end of the meeting they we'e going to be given the option to participate in the study. The rest of the procedure varied depending on the type of meeting (control or participatory or didactic education). The meeting officially started with an introduction of the activities that were going to take place and their purpose (i.e., information about AIDS, presentation of the show and data collection). At this time, I specified that someone who did not wish to hear the information about AIDS could wait 10 to 15 minutes outside the tent and come back for the presentation of the television shows. The adults attending the meeting had the chance to decide if they wanted any of their children to stay outside while the information about AIDS was discussed-—if that was the option, we provided drawings and crayons for them to color while they waited to get back into the tent. None of the adults chose not to listen to the information about AIDS, but most of the time they asked the little children--under ten years old--to stay outside until the discussion about AIDS was ended. The discussion was introduced saying that the presentation was going to be done by going through a set of posters. It was evident that some people felt nevous about the type of posters that were going to be used, and smiled and showed their relief when they saw the first poster of two children playing. The discussion of each poster started by asking the participants to create a story based on the picture. Since the subjects knew that the topic of the presentation was AIDS, they always try to create stories related to this topic, even when that was not part of the instructions for the development of the stories. Most of the posters had four boxes and there is not a correct sequence to read the boxes and develop the stories. There was a lot of participation in the discussion of the posters and since the task was easy--to create a story or just to name the people in the story—everybody felt entitled to an opinion and sometimes the stories were very elaborate. The following topics were discussed throughout the posters: 1. Poster of a Mexican boy and a girl playing with marbles. This poster was used to present: (a) the responsibility to learn about AIDS as something everyone should do for the future of the Hispanic community; (b) the duty to protect and teach the children; (c) epiderrriology of AIDS in the Hispanic community; and, (d) clarification of myths about groups that some participants regarded as the only ones getting infected with HIV. 2. Poster of a Mexican family in a party with a pifiata. This poster helps in the discussion of the supportive role of the Mexiean family whenever there is an illness in the family and of how that could be the same if the relative has HIV infection. Also, the characteristics and differences between HIV and AIDS were discussed. 3. Poster of two arms and a syringe. This poster guides the discussion of: (a) intravenous drug use and syringe sharing; (b) sharing of syringes for medicines or vitamins; (c) stereotypes about drug users; and (d) methods to clean the syringes. 83 4. Poster of a couple going out. The other main method of transmission of the AIDS virus was discussed in the stories developed for this poster: unprotected sexual intercourse. The safe and unsafe sexual practices were identified as well as the reasons that will make someone engage in any of these type of behaviors. It was very interesting to see how much women and men coincided in the type of conversation that they said that the couple in the story was having. Almost everybody mentioned that the man was suggesting or asking the woman to have sex with him and that since she was not sure that she wanted to do that, he tried to get her to drink a lot and make her more vulnerable to agree to his request. This was one of the posters that prompted the longest discussion because of the many different elements that it included, such as alcohol, cigarettes, a couple that could have had sexual intercourse and a woman that seemed worried. 5. Poster with a big monster, a little monster and a teddy bear. This poster was used to ask the participants to mention different types of behaviors related to sexual relationships and drug use and to classify the behaviors as no risk, moderate risk or safe behaviors in regard to possibilities for HIV infection. 6. Poster of the people in the park. The subjects started by making a list of everything that is happening in the poster. When everything had been mentioned, they began to realize all the activities mentioned had something in common, and that it is that all the activities mentioned are casual contacts throughout which HIV had not been found to be transmitted. The reasons why it is difficult to get HIV from these type of interpersonal behaviors were explained. The participants asked a lot of questions regarding this poster. 85 At the end of the discussion of these posters, the children came back into the tent and the presentation of the videotapes started. After the first 15 minutes of the show two consecutive public service advertisements (20 seconds each) about AIDS were shown. When the public service advertisements were shown the participants paid a lot of attention and sometimes made comments about them and asked questions even though they were not prompted by me to watch the advertisements. Appendix C describes the content of the public service advertisements. After the next 15 minutes of the show a second pair of public service advertisements about AIDS was presented and the participants were asked if they would like to pause and complete the questionnaires and then continue with the videotapes. The consent forms were distributed--read in Spanish and English-and the subjects rights were explained (confidentiality, anonymity, possibility to receive information about the results of the study and, opportunity to withdraw from the study at any time without any penalty). Appendix D displays the English and Spanish versions of the consent forms. The consent form for children under 18 years old needed to be signed by the parent and the child--these forms are also shown on appendix D. All the participants signed the forms, but some of them asked the person siting next to them to write their name in the form because they did not know how to write. After the consent forms were collected, the questionnaires with the corresponding behavioral cards were distributed in either English or Spanish—according to the subject's preference (appendix E). The questionnaire was read in Spanish for those who wanted to follow the order of the items, and the instructions of each section were read and explained aloud to the whole group. If someone needed the questionnaire to be read to him/her in English, the AIDS coordinator read the items and explained the instructions to them outside of the tent. 86 Some older subjects asked if I could write their responses for them. In those cases, the subject had the alternative of completing the questionnaire later, privately, as an interview. If they did not care about other people hearing their responses, I wrote their responses while I was reading the questionnaire to the whole group. When the subjects were done answering the questionnaire, they heard the explanation of the five color-coded cards (See Appendix F for a sample of the cards). It was explained that one week after the third group meeting at the camp, the educators wee coming again «at an specific day and time—to visit each housing unit and that those who completed the questionnaire had the option to do one or more of the behaviors mentioned in the cards, and would receive one ticket for the raffle of a fan for each color coded card that they bring-each behavior they chose to do. There was also one card which said that the subject was not interested in any of the behaviors mentioned in the other cards, but would like to receive a ticket for the raffle of the fan. The raffle was held during that visit to the camp, after all the housing units were visited. The behaviors mentioned in the cards were the following: 1. Green card: "I want to receive more written information about AIDS for me." 2. Yellow card: "I will like to receive copies of written materials about AIDS to distribute among people I know." 3. Gray card: "I will bring someone I know on the day of the raffle to receive information about AIDS from the educators" (if the worker chooses to do that, the additional persons would also have a chance to participate in the raffle). 4. Red card: "I will like to receive more information about condoms or spermicides." 5. Blue card: "I am not interested on doing any of the behaviors suggested in the othe' four cards, but 1 will like to receive a ticket to participate in the raffle of the fan. 87 Each card was explained in Spanish and in English and it had a drawing of the behavior on the back . Warmth There was a main difference between the procedure followed with the groups assigned to participatory learning group and the procedure followed with groups assigned to didactic learning group. The didactic learning group listened to educational information on the same topics covered with the participatory learning group, but instead of using posters the presentation was done as a brief lecture before the presentation of the videotape, without any participatory exercises. The subjects in the didactic learning group watched the same videotape of shows--with public serviCe announcements "PSAs" inserted--presented to participatory learning groups. The didactic learning groups were also very attentive to the public service advertisements and asked questions or made comments about those messages. After the second interruption for PSAs, the subjects were invited to pause and complete the consent forms and questionnaires. They completed the consent forms and the questionnaire and receive five cards throughthe same procedure used in the adrrrinistration of these forms to the experimental groups A. maximum At the beginning of their meeting, the control groups listened to the same information about their opportunities and rights to provide or not data for the study discussed with the experimental groups A and B. The videotape presented to the control groups did not have the PSAs inserted. The consent forms, questionnaires and the cards were administered in the same way that it is done with groups A and B, but instead of after the second interruption for PSA's--since the PSA's were not shown to 88 control conditions-the forms wee administered afier the first half hour of the videotape. Measures Quantitative and qualitative data was gathered during this research. The quantitative data was gathered in questionnaires administered to the participants in all the conditions, and throughout the study the subjects had the opportunity to bring back the behavioral eards during the follow-up--while doing the behavior written on the card. The qualitative data was gathered in field notes of every visit to a camp, dictated to a recorder and later classified in different categories of information. The following sections provide more specific information on each of the data collection instruments. Th . . A two-page, two sided questionnaire was developed for the study (see appendix F for the Spanish and English versions of the questionnaire). The instrument was developed in Spanish and an English translation--not directly equivalent because of lack of correspondence between the two languages for some words and phrases--was prepared and offered to subjects that preferred to read English. This questionnaire gathered information on: (a) knowledge about AIDS, (b) attitudes towards AIDS patients, (c) attitudes towards homosexuals, (e) attitudes towards drugs users, (1) awareness of the relevance for the Hispanic community of learning about AIDS, (g) interest in receiving information about AIDS, (h) sources of previous information about AIDS, and (i) demographic information. The following table displays the main sections included in the instrument and the numbers corresponding to the items used to assess the different variables. 89 Table 5. WWW Sections Item number Type of response General knowledge about AIDS I 1 , 12, I3a-i Knowledge about prevention In 1-5 Attitudes towards AIDS patients Ill-118 Attitudes towards homosexuals V1, V2, V3, V4, V10 Attitudes towards drugs uses V5, V6, V7, V8, V9 Awareness of the relevance for the Hispanic community of learning about AIDS V12. V14 Interest in receiving information about AIDS VI 1 , V13 Sources of previous information about AIDS V15, V16, V17, V18 Dichotomous (yes-no) 1-3 Likert scale (never effective to very effective) 1-4 Likert scale (strongly disagree to strongly agree) 1-4 Likert scale (strongly disagree to strongly agree) 1-4 Likert scale (strongly disagree to strongly agree) Dichotomous (yes-no) Dichotomous (yes-no) Dichotomous (yes-no) Demographic information Categorical information IVl-IV6 gleam; knowledge smut AIDS. The items to assess knowledge about AIDS assess general knowledge about AIDS and misconceptions about AIDS transmission. Some of these items were from the survey developed by the Michigan Department of Public Health and the Hispanic Community. Even though information on the reliability of the scales was not reported, the instrument was used during 1989 and 1990 with Hispanics at Cristo Rey and showed that they were able to understand the language. The scores on general knowledge about AIDS were coded as one when the subject answered "yes", and two if the subject answered "no." A highest score indicated more correct responses about AIDS (three items were eliminated beeause of their low item -total correlation: 11,12 and 131). The table in appendix H displays the item -total correlation of each of the items included in the score on general browledge about AIDS—the mean inter- item correlation for the scale is .19. With items 11, 12 and 13f eliminated, the scale‘s Alpha coefficient was .65. The mean score on the scale was 15.13, with a standard deviation of 1.33. The maximum and minimum possible scores were 8 and 16. Table G-l displays the responses on knowledge about AIDS. WW1; Five behaviors were included on the section on knowledge about prevention. The instructions were to circle the number that best indicated the subject's perception of the effectiveness of each of the methods in regard to prevention of HIV infection. The coding of the responses to these items was done assigning a value of two to the best response, a value of one to the next best response, and a value of zero to the option that is a wrong response to the item. Item number five was eliminated from the seale due to its low item-total correlation and it should also be reported that the item was not clear enough for the subjects while they were answering. The scale's coefficient Alpha is .54. The mean score is 4.70 with a standard deviation of 1.91. The minimum and maximum possible scores were zero and eight, respectively. The following table displays item-total correlations. The mean inter-item correlation is .23. Table6.l m— latin fr nknwl Items Item-total correlation 1111. Not to have sexual relationships .31 1112. To use a condom .31 1113. To clean needles with clorox before injecting drugs .33 1114. To use an spermicide .36 91 A ' s l wi AID Items regarding attitudes about AIDS and attitudes toward people with AIDS were studied in the same section. Attitudes towards AIDS were assessed with three items answered on a 1-4 Likert scale (strongly disagree to strongly agree). Attitudes towards people with AIDS were assessed with seven items answered on a Likert scale (strongly disagree to strongly agree) and based on Larsen, Serra, and Long's (1990) "Attitudes Towards AIDS Victims Scale" (ATAV). The original scale (ATAV) comprised 20 items and the coefficient Alpha reported by the authors was .91 (p < .001). Since the Alpha coefficient of the whole scale was high and the part-whole correlations of the items were almost all higher than .70, only a selection of the items was included in this instrument. The items with the highest part- whole correlations in the ATAV scale were chosen and the wording changed slightly when the items were written in Spanish. The score on attitudes towards people with AIDS combined the responses on items about attitudes about AIDS and attitudes towards people with AIDS. Only one of the eight items was eliminated from the computation of the score (item 116) because of its low item-total correlation. The mean score on the scale was 18.94 with a standard deviation of 3.86. The mean inter-item correlation was .13, and the coefficient Alpha for the seale was .50. The following table displays the item total correlations of the items in this scale. 92 Table 7. I m- 1a ' n f r n ' de towar 1e wi AID . Items Item-total correlation 111. People with AIDS should be isolated from the community. .46 112. AIDS is not a common disease among the Hispanics . 13 113. AIDS is a punishment from God. .36 114. Needles should be provided to drug users to prevent spread of the infection .07 115. If someone gets infected with the AIDS virus it is because she/he have been .1 1 behaving immorally 117. I would open my house to someone infected with the AIDS virus .08 118. I would not want a person with AIDS to touch me. .41 W. The attitudes towards homosexuals were studied with items developed after the review of several studies (Aguero, J.E., Bloch, L., & Byrne, D., 1984; Herek, G.M., 1984; Larsen, K.S, Serra, M., & Long, E., 1990). These items were answered in a 1-4 Likert scale (strongly disagree to strongly agree). The mean score on the scale was 11.97 with a standard deviation of 3.59. The maximum and minimum possible scores were 5 and 20, respectively . The mean inter-item correlation was .29, and the Alpha coefficient was .67. The following table displays the item-total correlation for the score on attitudes towards homosexuals. Table 8. Item-total melagms fgr scare on attitudes towards homosexuals. Items Item-total correlation V1. I would feel uncomfortable if I were in the bathroom and a .39 homosexual were there too V2. I would not like to have a homosexual as my neighbor .67 V3. Homosexuals are born that way .32 V4. The police should arrest homosexuals .42 V 10. A homosexual person should not be allowed to take care of his children .35 Attitudes toward; drug users. No measures of attitudes towards drug users were found in the literature. Therefore, information about how this group is stigmatized was used to develop a set of items to assess those attitudes. The mean score on attitudes towards drug users was 10.93 and the standard deviation was 3.68. The maximum and 93 minimum possible scores are 20 and 5 respectively. The mean item-total correlation was .35, and the coefficient Alpha for the scale was .73. The following table displays the item-total correlations for the scale on attitudes towards drug users. Table 9. I m- o 1 'on for n ' des to Items Item-total correlation V5. Drug users are persons that do not know how to handle their problems .44 V6. Drugusersare criminals .59 V7. It is impossible to be a friend of a drug addict .52 V8. The government should separate the children of drug users from their .5 7 parents V9. A drug user cannot stop his/her addiction . 35 mm: sources Qf informgg’gn my; AIDS. Four items were included to assess the number of different types of previous sources of information about AIDS. The items asked if the subject had heard information about AIDS on the radio, watched advertisements about AIDS on the television or read brochures of information about AIDS. A fourth question asked the subjects to circle other sources fiom which they might have received information about AIDS. The options were friends, clinics, school, clinical laboratories, pharmacists or other. f l f 'n mm ' ut AID . The awareness of the relevance for the Hispanic community of AIDS education was assessed in two ways: with two items in the questionnaire, and with two behavioral cards during the follow- up. The items in the questionnaire asked if the respondent was interested in introducing someone to the educators to be informed about AIDS and if the respondent was interested in distributing copies of written information about AIDS to people that they know. During the follow-up, the subjects had the opportunity to do one or both of the 94 behaviors. In both cases (items and cards), the responses were gathered as dichotomous variables. The following chapter describes how the tetrachoric correlation coefficient was computed for each card;its corresponding item in the questionnaire and the correlations were very low. For interest in distributing information about AIDS to other people and the request of copies of information about AIDS to distribute to people that they know the rt: .14. For the interest in introducing someone to the educators to receive information about AIDS and the actual behavior of introducing someone to the educators to receive information about AIDS the rt=.01. aness to infgrmag’gn 3mg; AIDS. The subjects' openness to information about AIDS was assessed in two ways, with two items in the questionnaire and with two behavioral cards. The items in the questionnaire were dichotomous (yes-no) and asked if the subject was interested in more written information about AIDS for him/herself and if the subject wanted more information about condoms or spermicides. The behavioral cards gave the option to the subject to request more written information about AIDS (by returning the green card)or request more information about condoms or spermicides (the red card). If the subject returned the red card he/she was given the option of listening privately to information or to receive a sealed envelope with samples of condoms and spermicides with written instructions on how to use them. Since the relationship between the items in the questionnaire and their corresponding cards dining the follow- up were low (.28 for the card and items about condoms, and .10 the item about more written information for the individual and the request of written information), the information from the items in the questionnaire and the information from the cards was used separately in further analysis presented in the results chapter. pr: am ch als sh. nig du dis The ' tive servations The researcher carried a rnicro-cassette recorder to the camps and on the way back dictated main observations. The observations were about the objectives of the visit (if they wee accomplished or not), any problems encountered, conversations with the migrants, specific events taking place during the visit, sex roles and health and possible cultural beliefs. The day and the time when each visit started and the time when we left the camp were recorded. Special attention was paid to record any information that could possibly be related later to attendance to the meetings. It was assumed that sex roles and health beliefs could have an effect on the implementation of the program and for this reason the researcher was attentive to any information related to sex roles and health beliefs. Since it was discovered during the follow-up that people's dissatisfaction with previous AIDS education programs could become a barrier to future AIDS education, and since it is known that one-time interventions are not likely to achieve behavioral changes, it became critieal for me to leave the subjects at the camps with a positive attitude towards AIDS prevention and AIDS edueation. Therefore, observations wee also made on the subjects' satisfaction with the intervention. For example, any anecdote showing satisfaction or dissatisfaction of the subjects with the activities were recorded. The process of dictating observations lasted between 15 and 20 minutes. That same night or the next day , I typed the notes and elaborated more on the observations made during the visit. Typing the notes and elaborating on them lasted between 15 and 45 minutes depending on the type of visit (if there was a meeting or if it was just to distribute invitations, etc.). At the end of the project, the notes were classified into major topics and situations that happened at least once in each of three or more camps. There were situations when 95 96 that could affect the interpretation of the results of the study, it was not classified. If the same situation did not happen at least once in two more camps, it was not reported in the section of qualitative observations. After the observations matching the requirements in terms of frequency were identified, I looked into the notes for experiences that could reject the possible interpretations of the observations. Even if the experience contrary to the observations classified as major topics happened only once, and in one camp, it was reported and interpreted. CHAPTER V RESULTS This research provides a combination of qualitative and quantitative data. The data reported on the section titled ”Quantitative findings," involves parametric statistical analysis. The section titled ”Exploratory analysis" displays analysis of additional quantitative data; and, the section titled "Qualitative observations," describes satisfaction with the educational interventions, sex roles behaviors, and questions about HIV and AIDS and comments on othe" cultural beliefs and general health values. Quantitative Findings Kngwlmge mat AIDS Two sections in the questionnaire assessed knowledge about AIDS. One was a section on general knowledge about AIDS which asked about main characteristics of the syndrome, routes of contagion, and myths. The other section was about knowledge of the effectiveness of different prevention behaviors. No significant effect due to gender was found on general knowledge about AIDS or geneal knowledge about prevention. The score on general knowledge was computed adding the responses to dichotomous (Yes-No) items . Table G-2 in the appendix displays the percentage of correct and incorrect responses on each item from each group . With the exception of one item (31‘), the percentages were higher for the correct responses. The maximum and minimum possible scores were 8 and 16. Table 11 displays the average score on gereral knowledge about AIDS for each group. 97 98 done assigning a value of two to the best alternative, a score of one to the next best response and a score of zero to the option that was not adequate. Table GB in the appendix displays the values assigned to each item. Table 10 displays the distribution of responses given by each group to each of the items on prevention of AIDS. It is important to note that item #5 (" Having sexual relationships only with someone you know well") was clarified during the administration of the instrument. It was specified that it refers to having sexual relationships with someone that you know well and whom you do not suspect that may be incurring in any of the risk behaviors. Still, this item was eliminated from the scale when the score was calculated because of its low correlation with the other items. The following table displays the average scores on knowledge about AIDS on each of the four conditions in the study. Table 10. Avmge 3cm: m knowledge a_bgut AIDS gm each my Groups PL DL CG NBC General knowledge 15.47 15.25 14.81 14.91 Knowledge about prevention 5.36 5.18 3.55 4.76 1191;. PL: Participatory learning group, DIP-Didactic learning group, CG=Control group, NEC=Non-equivalent control group. This research evaluates two hypothesis about differences between conditions on knowledge about AIDS. H 1: There will be a significant difference between the migrant workers' knowledge about AIDS after the edueational experience in the two experimental conditions as compared to the control groups. The evaluation of this hypotheses requires the computation of different tests, some using the score on general knowledge about AIDS and others regarding the knowledge othe four C011 sub; of V the test was about prevertion methods (there was a very low correlation—.07--between the two sets of scores). The analysis of general knowledge about AIDS by groups starts with the Kruskal-Wallis one-way analysis of variance by ranks. This non-parametric test was used beeause the Barlett-Box test showed that the homogeneity of variance was violated (F=2.28, p=.08). The null hypothesis in this analysis was that there is not going to be any association between the scores on knowledge about AIDS and the different conditions. The assumptions of this non-parametric uncorrelated statistic are that the samples have similar distributions, are drawn at random, and are independent from each other. The value of the Kruskal-Wallis statistic (H) is 6.8 (p>.05). A ceiling effect is found in the scores on general knowledge about AIDS, because even the non-equivalent control group had a very high score (14.91). The knowledge about prevention behaviors was studied separately. Each subject's responses to each item were added to form the subject's score and the analysis of variance procedure was used to evaluate the hypothesis that there was no difference in the mean scores on knowledge about prevention between conditions . The Barlett-Box test of homogeneity of variance suggested that the homogeneity of variance assumption was not violated (2.05, p=.105). The following table displays the means on knowledge about prevention and the summary Anova table. 100 Table 11. AN VA f kn wled e about evention Groups PL DL CG NEC Means 5.36 5.18 3.56 4.76 Sources D.F. SS MS F ratio P Eta2 Between groups 3 70.67 23.56 7.16 .0002 .15 Within groups 124 408.05 3.29 Total 127 478.72 m. PL: Participatory learning group, DL=Didactic learning group, CG=Control group, NEC=Non-equivalent control group. A main effect from groups was identified. Therefore, the results of the analysis of variance supported the rejection of the hypothesis that there is no difference in the i mean scores on knowledge about prevention methods in the different conditions. The contrast of the two experimental conditions with the two control conditions on the score of knowledge about prevention yields the following results: Contrast=2.23, standard error=.66, T=3.38, degrees of freedom=124, and T probability=.001. Therefore, the null hypothesis that there is no difference in means on prevention about AIDS between the experimental and control conditions was rejected. The mean score on knowledge about prevention was higher for the experimental conditions than for the control conditions, and this difference was significant (p<.05). The Scheffé procedure was used to study all possible pairs of comparisons between conditions on knowledge about prevention, and significant differences are found at less than .05 probability between the control group and the participatory learning group, and between the control group and the didactic learning group. In both 101 comparisons the scores for the learning groups were higher than the score for the control group. H2: Migrant workers in participatory learning groups will show higher knowledge than those in the didactic learning group and the subjects in the control group. The data on general knowledge about AIDS was evaluated with the Jonckheere trend test which is used as an extension of the Kruskal-Wallis one way analysis of variance. The Jonckheere trend test evaluates the predicted trend across the scores of different conditions. The predicted trend in this case is specified in hypothesis 2, which suggests an increase in scores on knowledge in the following order: non-equivalent control group, control group, didactic learning group and participatory learning group. The null hypothesis for this test is that in the scores on general knowledge about AIDS differences among the four conditions are random. The value of the S statistic is 975, which results in a Z score of 2.39. The probability table for the Z scores shows that a value of 2.39 has probabilities smaller than .05, at .01 and .05 one-tailed tests of . significance respectively. Therefore, the null hypothesis was rejected and it is concluded that the score on general knowledge about AIDS is associated with the conditions. The analysis of the difference in knowledge about prevention between conditions was significant. The two pairs of conditions found to be significantly different at a probability of less than .05 were: (a) control group and participatory learning group , and (b) didactic learning group and control group. Therefore, this test on knowledge about prevention-and our previous description of the groups with higher scores on each pairnindieates that the expeimental conditions did bette than the control group, but no evidence was found that participatory learning group did better than the didactic learning group or that the learning groups did better than the control group in knowledge about prevention. 102 MW H3: There will be a significant difference between migrant workers' attitudes towards AIDS patients after the educational experiences, and the participants in the control conditions. The following table displays the means and the analysis of variance summary table. Table G-5 in appendix G displays the responses to each item about attitudes towards people with AIDS. Table 12. AN VA of re on ttitude war 1 wi A DS b o . Groups PL DL CG NBC X n X n X n X n 14.45 33 17.00 36 16.34 35 16.50 20 DR 33 MS Fratio P Etaz Between 3 123.54 41.18 2.89 .04 .07 Within 120 1711.07 14.26 Total 123 1834.60 ME X= Mean on attitudes towards people with AIDS, n=group size. PL: Participatory learning group, DL=Didactic learning group, CG=Control group, =Non-equivalent control group. The null hypothesis that there is no significant difference in the mean scores on attitudes towards people with AIDS between groups is rejected because a significant main effect is found. When the Scheffé analysis was conducted on the one-way analysis of variance of the scores on attitudes towards AIDS patients and groups, none of the pairs of groups was significantly different at less than .05. When the scores on attitudes towards people with AIDS of participatory and didactic learning groups wee contrasted with the scores of the two control conditions, the T value and T probability for the pooled variance procedure were -.995 and .322, respectively. Therefore, using this test, the null hypothesis for the contrast between the mean scores on attitudes towards AIDS victims between the experimental groups—participatory and didactic—, and the two control groups-control group and non-equivalent control group-- was not significant. However, when the scores of experimental groups participatory and didactic 103 were compared, the T value and T probability were 2.80 and .006, respectively. Thus,a significant difference is found in attitudes towards people with AIDS between participatory and didactic learning groups with the participatory learning group having the lowest scores on attitudes towards people with AIDS. Knowl bout AID and a itudes towards 1e with AID H4: There will be a positive signifieant relationship between attitudes towards people with AIDS and knowledge about AIDS. The Pearson correlation coefficient was computed with scores on general knowledge about AIDS and attitudes towards people with AIDS and the coefficient was .46 (p<.05). The higher the score on general knowledge about AIDS (meaning more knowledge) the higher the score on attitudes towards people with AIDS (more positive attitudes), which supports the relationship hypothesized. The Pearson correlation coefficient was also calculated for the scores on knowledge about prevention and the scores on attitudes towards AIDS patients and was . 10 and non-significant. A ' estowars lewithAIDS dbehvir r1 nn 53 w n 5 H5: There will be a signifieant relationship between attitudes towards AIDS patients and the behaviors of: requesting written materials about AIDS, volunteering to distribute written mateials to other people, bringing someone to receive information about AIDS, and requesting more information about condoms and spermicides. Two of these behaviors were regarded as displays of openness to information about AIDS: the request of written materials about AIDS, and the request of more information about condoms and spermicides. The other two behaviors were considered indicators of awareness of relevance of educating the community about AIDS. These 104 behaviors were: the request of written information about AIDS to distribute to others, and the behavior of bringing someone to talk to and receive information about AIDS from the educator. The following table displays the number of people returning the cards related to openness and awareness. Table 13. Frmuencies on anness and awgeness, Responses Frequencies % Openness No cards returned (or all cards missing) 75 54 Only one card returned 25 18 Two cards returned 39 28 Awareness No cards returned (or all cards missing) 89 64 Only one card returned 41 30 Two cards returned 9 7 The data about each behavior performed by the subjects was recorded as a dichotomous categorical variable. Four analyses of variance were conducted, one between attitudes towards people with AIDS and each of the behaviors associated with openness or awareness--no analysis of variance was conducted with the blue card. On each analysis the null hypothesis evaluated was that there was no difference between people who perform the behavior and people who did not perform the behavior in their mean scores on attitudes towards people with AIDS. No significant differences were found on any of the four analyses of variance. Therefore, the null hypothesis studied as an evaluation of hypothesis 5 , was not rejected. Also the correlation between attitudes towards people with AIDS and the variables openness and awareness (each variable HD ~ NaD Tr 0° N. V3 Sig 105 comprising two items) was studied and the attitudes toward people with AIDS were significantly correlated with awareness of need to learn about AIDS for the Hispanic community (r.=20, p<.05) Attitudes mwgds homosexgls and d_rgg usgs Table 14 displays the mean scores on attitudes towards homosexuals and drugs users on each group. Tables G-6 and G7 display the responses to the items about attitudes toward homosexuals and drug users. Table 14. Mean group score on attitudes towgds homosexuals and flag um . Groups Attitudes towards PL DL CG NEC Homosexuals 11.64 13.45 13.70 13.14 Drug users 13.48 14.83 13.72 14.29 Egg. The scales are worded in the positive direction. PL: participatory learning group, DL=didactic learning group, CG=control group, and NEC=Non—equivalent control group. A possible difference in the attitudes towards homosexuals and attitudes towards drug users due to gender of the subjects was evaluated with analysis of variance. Neither of the two analyses reflected a significant variance among groups due to gender. Also the correlations between attitudes towards drug users and homosexuals and the variables openness and awareness were studied and found to be very low and non- significant. H6: There will be a significant difference between attitudes towards homosexuals of migrant workers in the experimental conditions, and the attitudes towards homosexuals of migrant workers in the control groups. 106 First, the one-way analysis of variance procedure was used to study the null hypothesis that the mean scores on attitudes towards homosexuals are similar for the four groups. The between-groups variance on this analysis was not significant. H7: There will be a significant difference between the attitudes of migrant workers towards drug users in the experimental conditions, and the attitudes towards drug users of migrant workers in the control groups. The one-way analysis of variance was used to study if there was a significant difference between the four conditions in the study and their scores on attitudes towards drug addicts. The between groups variance was not significant. H 8: There will be a positive significant relationship between migrant workers’ attitudes towards homosexuals and their knowledge about AIDS. The Pearson correlation coefficient was computed for the scores on attitudes towards homosexuals and general knowledge about AIDS. The coefficient was .21 (p<.05). Higher scores on general knowledge about AIDS were related to higher scores on attitudes towards homosexuals (more positive attitudes). Therefore, the null hypothesis was rejected and hypothesis 8 is supported by the correlation coefficient. A similar positive correlation was found between attitudes towards homosexuals and the knowledge about prevention (Pearson=.23, p.<.05) indicating that the higher the knowledge about prevention methods the more positive the attitude towards homosexuals. Therefore, hypothesis 8 was also supported by the analysis of knowledge about prevention and attitudes towards homosexuals. 107 H9: Thee will be a significant relationship betweer migrant workers attitudes towards drug users and their knowledge about AIDS. The Pearson correlation coefficient is calculated for the score on attitudes towards drug users and the score on geneal knowledge about AIDS; Pearson: .38, p<.05. The coefficiert indicates that more knowledge will be related to more positive attitudes towards drug users. Therefore, the null hypothesis is rejected and the data from geneal knowledge about AIDS supports hypothesis 9. A positive correlation was not found between knowledge about prevention and attitudes towards drug users (r=.074). H10: Thee will be a significant relationship between migrant workers' attitudes towards drug uses and their attitudes towards people with AIDS. This hypothesis is supported by the Pearson correlation coefficient calculated with the scores on attitudes towards drug users and attitudes towards AIDS victims. This coefficient is .38 (p<.05). This suggests that the more positive the attitude towards drug uses, the more positive the attitude towards people with AIDS. H11: Thee will be a positive significant relationship between migrant workers' attitudes towards homosexuals and their attitudes towards people with AIDS. The direction and strength of the association between the scores on attitudes towards people with AIDS and attitudes towards homosexuals was studied with the Pearson correlation coefficient. The hypothesis was supported by the data with a correlation coefficient of .32 (p<.05). The more positive the attitudes towards AIDS patients, the more positive the attitudes towards homosexuals. nn inf ' n t AID and w ness f the relevance of tin mmuni As described earlie in this chapter two pairs of behaviors were regarded as displays of either operness to information about AIDS or awareness of the relevance of educating the community about AIDS. Two variables were created (openness and awareress), each one including the number of occurrences of the value l—meaning the behavior was displayed-on each of the two behaviors corresponding to the new variables. These two new variables are used in the analysis of the following two hypothesis. Table G-4 in the appendix displays the values and frequencies for the variables openness and awareness. H12: There will be a significant difference in the number of subjects requesting more information about AIDS and the number of subjects requesting more information about condoms and spermicides, between expeimental the participatory learning group, the didactic learning group and the experimental control. A Chi-square test is used to study the independence of the two variables. The Chi-square value is 1.57 with 3 degrees of freedom and it is not significant (p>.05). Since a difference between groups on openness is not supported, no further analysis is conducted to evaluate hypothesis 12. H13: There will be a significant difference between the migrant workers' report of inteest in distributing information to other people, and disposition to bring someone they know to receive information at the end of the intervention in all conditions, and the diffeerce will be highe for the expeimental groups. The Chi-square test of independence on awareness by groups identified a Chi- square value of 3.92 with 3 degrees of freedom and it is not significant (p>.05). 108 Summag 9f guang'tative fingfings Through the analysis of the research hypotheses the following results were found to be signifieant: (a) migrant workers' knowledge about prevention differed between the experimental and control conditions--the experimental groups showed higher knowledge about prevention—; (b) the difference in knowledge about prevention between the participatory learning group and the control group--the participatory learning group having the higher scores on knowledge about prevention-and also between the didactic learning group, and the control group--the didactic learning group having highest scores than the control group-; (c) a main effect between groups on attitudes towards people with AIDS--the participatory learning group having the lowest score on attitudes towards people with AIDS--; (d) a positive relationship betweer attitudes towards people with AIDS and general knowledge about AIDS; (e) a positive relationship between attitudes towards homosexuals and general knowledge about AIDS; (f) a positive relation ship between attitudes towards homosexuals and browledge about prevertion; (g) a positive relationship between attitudes towards drug users and general knowledge about AIDS; (h) a positive relationship between attitudes towards drug users and attitudes towards people with AIDS; and, (i) a positive relationship between attitudes towards homosexuals and attitudes towards people with AIDS. Exploratory Analysis The data from this research allowed for the study of other relationships. Of special interest are the relationships between: (a) age, education, and knowledge about AIDS; (b) age, education and attitudes towards AIDS patients, homosexuals, and drug uses; (c) the number of previous sources of information about AIDS and knowledge about AIDS; (d) the items about interest in doing the awareness and openness related behaviors and the cards used in doing the behaviors; (e) the behavioral cards and gereal 109 110 knowledge about AIDS and knowledge about prevertion; and, (f) the regression analysis of independent variables into general knowledge about AIDS and knowledge about prevention. W The Pearson correlation coefficients were -.34 (p<.05) and -. 18 (p<.05) for age and general knowledge about AIDS, and age and knowledge about prevention, respectively. The older the subject, the lowe' the score on geneal knowledge about AIDS. Older subjects had lower scores on knowledge about prevention. The correlation coefficients for the relationship betweer gereal knowledge about AIDS and education was .35 (p<.05), meaning that the higher the number of years of education the higher the score on geneal knowledge about AIDS. The relationship betweer knowledge about prevertion and education was non-significant. ! I . l . l The relationships between age and education and attitudes towards AIDS patients, attitudes towards homosexuals and attitudes towards drug users are displayed in the following table. Attitudes Homosexuals Drug users People with AIDS Age -.28 (p<.05) -.38 (p<.05) -.35 (p<.05) Education .29 (p<.05) .32 (p<.05) .44 (p<.05) The correlations of attitudes with age show that the higher the age the less positive the attitudes towards homosexuals, drug was and AIDS patients. The correlations of 111 attitudes and education indicate that the higher the numbe of years of education the more positive the attitudes towards homosexuals, drug users and AIDS patients. One item of the questionnaire asked the subject to circle the sources from which helshe had received information about AIDS. later, a variable is calculated counting the number of different types of sources indicated by each subject. The correlation between diffeent types of previous sources of information about AIDS and general knowledge about AIDS was non-significant . However, the relationships between the number of diffeert types of previous sources of information about AIDS and knowledge about prevention is .18 (p<.05) and the relationship between attitudes towards homosexuals and the number of different types of previous sources of information about AIDS is .34 (p<.05). This indicates that the higher the number of different types of previous sources of information about AIDS, the higher the score on knowledge about prevention, and that the higher the number of different types of previous sources of information about AIDS, the higher—more positive-the score on attitudes towards homosexuals. The relationships between the number of different types of previous somces of information about AIDS and attitudes towards drug users and people with AIDS were studied and both relationships are non-significant. The questionnaire had four dichotomous items (Yes-No), each one asking the subject if she/he was interested in doing the following behaviors: (a) request more written information about AIDS for him/herself, (b) distribute copies of written information about AIDS to others, (c) receive more information about condoms orspermicides, and (d) introduce someone he/she knows to the educators to listen to the 112 information about AIDS. A week after the subjects completed the questionnaires, they had an Opportunity to do any or all of the four behaviors. The Tetrachoric correlation coefficient is used to study the relationship betweer each of the four questions about behaviors in the questionnaire and their corresponding follow-up behaviors. The correlation coefficient was ve-y low and non-significant for the following relationships: (a) interest in receiving more information about AIDS and the request of more written information about AIDS (r=-. 10); (b) interest in introducing someone to the educates and the behavior of introducing someone to the educators to be instructed about AIDS (r=.01); and, (c) interest in receiving copies of writter information about AIDS to distribute to others and the actual request of writter information about AIDS to be distributed (r=.14). The correlation between the inteest in getting more information about condoms or spermicides and the request of information on condoms or spermicides was significant (r=.28). This suggests a relationship between interest in information about condoms or spermicides and request of information about those topics. 1' ' or .1." u; 5. -.~ 1 I; or 0m v.1 r. ._ . tartan, m w acg- rlm - In!) The Point-biserial correlation was used to study the relationship betweer the return of behavioral cards (the performance of behaviors) and the scores on knowledge about AIDS. Only two relationships were significant. One was the relationship between the behavior of requesting copies of information about AIDS to distribute and the score on knowledge about prevention (X ret. card=5.22, X=did not ret. card=3.45, rpb=.51, T=5.53, Tm,=l.99). The group of people who returned the card had higher scores on knowledge about prevention. The null hypothesis saying that the return of the card 113 requesting written information about AIDS to distribute to others was not related to the score on knowledge about prevention was therefore rejected. The other relationship that was significant is between the behavior of introducing someone to the instructors and knowledge about prevention. The mean is 5.75 for those who did not return the card, and 5.44 for those who did return the card. The correlation coefficient was .56, the T observed was 6.29 and the T crit.=l.99. The null hypothesis about absence of a relationship between introducing other people to the instructors to be educated about AIDS, and the score on knowledge about prevention was rejected. General knowledge about AIDS was studied as the dependent variable and attitudes towards homosexuals, attitudes towards drug users, age and education were introduced into the regression equation as the independent variables (stepwise method). Two independent variables can be used to predict the scores on geneal knowledge about AIDS and are significant at less than .05 probability: attitudes towards peeple with AIDS and education. The multiple regression coefficient was .41 and the adjusted R square was .16 when attitudes towards people with AIDS were introduced. The multiple regression coefficient was .47 and the adjusted R square was .20 when education was introduced into the equation. The following table displays the analysis of variance and statistics for the independent variables. 114 Table 16. W5. ANQYA ATTPWA SS Df MS F sig.F Regression 22.75 1 22.75 19.85 .0000 Residual 113.48 98 1.15 ANQXA Education SS DF MS F sig.F Regression 28.98 2 14.48 12.97 .0000 Residual 104.94 96 l .12 B SE T sig.T ATI'PWA .097 .029 3.40 .001 Education .089 .036 2.49 .015 Note. ATTPWA refers to attitudes towards people with AIDS. When krnowledge about prevention is studied as the dependent variable and the variables, attitudes towards homosexuals, attitudes towards AIDS patients, attitudes towards drug users, age, education and geneal krnowledge about AIDS were included in the regression equation as the independent variables—~using the stepwise method-~the only variable that can be used to predict the scores on knowledge about prevention is attitudes towards homosexuals. The multiple regression coefficient was .22 and R square was .05. The following table shows the analysis of variance for the regression and the statistics for the independent variable. Table 17. WW Analysis of variance 85 Df MS F sig. F Regression 16.82 1 16.82 4.62 .034 Residual 345.83 95 3.64 Attitudes B SE 'r sig.T towards homosexuals .11 .051 2.15 . 34 WW Dnning the exploratory analysis the following relationships were found to be significant: (a) negative relationships between age and geneal krnowledge about AIDS, 115 and between age and krnowledge about prevention; (b) a positive relationship between geneal krnowledge about AIDS and education; (c) negative relationships between age and attitudes towards homosexuals, attitudes towards drug users and attitudes towards AIDS patients; (d) positive relationships between education and attitudes towards homosexuals, attitudes towards drug uses, and attitudes towards AIDS patients; (e) a positive relationship between krnowledge about prevention and the number of previous sum of informatiorn about AIDS; (0 a significant positive relationship between attitudes towards homosexuals and the number of types of previous sources of information about AIDS; (g) a positive relationship between the interest in receiving more information about condoms or spermicides and the behavior of requesting more information about condoms or spe'micides; (h) a sigrnificant positive relationship between the request of copies of information about AIDS and the score on krnowledge about prevention—those who requested mateials had higher scores on krnowledge about preventio --; (i) a positive significant relatiornship between awareness of the need to learn about HIV/AIDS for the Hispanic commurnity and the atittudes toward people with AIDS; and, (j) a relationship between introducing someone to the educator and the score on knowledge about prevention—the ones with higher scores on krnowledge about prevention were the ornes who more often did not return and introduce anyone to the educator. Also regression analysis was conducted for geneal krnowledge about AIDS and krnowledge about prevention. The significant predictors of geneal krnowledge about AIDS were the scores on attitudes towards AIDS patients and attitudes towards drug users. The only sigrnificarnt predictor of knowledge about prevention was the score on attitudes towards homosexuals. Qualitative Observations I could not reach a full understanding of this research and educational intervention without the critical analysis of the field experiences with members of migrant families. Qualitative observations provided information about the participants' satisfaction with the educational expeience, their sex role behaviors related to the project, and the questions that were asked more frequently during the educational experiences. These observations are also the basis for comments regarding the cultural ’fl" beliefs of ”simpatra , respeto" and religiosity. '3 ° n wi ca ' x 'en Baltimore and Wolff (1986) stated that it is unrealistic to believe that the spread of HIV infection is likely to be stopped by simple one time education efforts, but that still, these efforts needed to be undetaken with hope and conviction because the most effective measures to reduce the spread of HIV infection are education and voluntary behavioral changes, and we krnow that the chances of achieving voluntary behavioral changes without education are minimum. Nevertheless, since the public is receiving information about AIDS continuously from the media, it is assumed that a one time intervention could be helpful if at least it clarifies the information to community members and helps them to relate the infornnation to their lifestyles. When this happens, and the participants walk out of the presentation feeling satisfied with the way the information was presented, they might also be more open, interested and able to understand information about AIDS in the future and to participate in further AIDS education programs. For instance, while doing this research the resistance and negative attitude of migrants in one camp—the pilot camp—due to negative previous expeiences with AIDS education presentations was a strong barrier 116 117 to attendance at meetings. For this reason, the researcher observed the participants' reactions to the presentations-and the presente--to assess their satisfaction. It is thought that the participants in this research wee satisfied with the educational experiences because: (a) thee wee no complaints about the presentation and people did not leave early; (b) sometimes people watched the presentations twice; (c) there wee no reports of a man prohibiting children or women to attend the second educatiornal meetingineachcamp—in fact,morewomenthan menattended the meetings--; and, (d) at the end of the meetings, the participants showed their appreciation of the activity. Some of my major concerns dnning the project were to avoid making arnyorne feel uncomfortable during the educatiornal activities and to promote openness and acceptance of the discussion of the topic of AIDS. Moreover, it was intended to leave the participants with a good attitude towards future AIDS education efforts. There are seveal experiences which suggests that those objectives were accomplished. 1. There were no people leaving the presentation early or feeling upset. The participants told the educators about previous educational activities that they disliked. They identified the elements that they found offensive on prior presentations and none of those elements was part of the educational inteventions in this project. The participants mentioned their discomfort with educational presentations including : (a) the use of rubber models of the penis and vagina, (b) the use of sexually explicit vocabulary and information about how to "have fun with safe sex” in fiont of a mixed audience of men and women, (c) the distribution of condoms to everybody-—including children-and (d) a lack of discussion of alterrnatives to condoms for women. Therefore, the lack of complaints regarding the style of presentation or any othe aspect of the presentatiorn is not attributed to the ”simpatia" script of "respeto" but to satisfaction with the expeience. 118 2. In most of the camps (five of the six expeimental camps) the people kept coming to talk to the educators, and ofien stayed dining the presentations about AIDS and musical videotapes (for a second time) after having gone through their assigned meetings. It was common for people who had seen the presentation previously to watch the activities for a secornd time, either sitting inside the tent or watching through the tent's windows . It can be hypothesized that the incentive of watching the musical videotapes was strong enough to counterbalance for any possible discomfort with the topic. Still, if that was the case, the fact that the information about AIDS was accepted can't be denied. In fact, it suggests that the combination of elements—entertainment and education-4n this intervention was adequate and propitiated the environment for the discussion of HIV/AIDS. 3. Thee was very good attendance of children and women at the second educational meetings on each camp. This fact was an important achievement because afte' the first educational meeting it was evident that information was disseminated through the camp and most adults knew that the health topic that was going to be discussed was AIDS. If they had received negative information about the activity, it is probable that children and women would not have attended the meetings. This could have been expected in the event of negative reports of the activity, because women indicated that in previous educational presentations about AIDS (in Texas, Michigan and Florida) the men felt upset with the corntent and methods used and forbade the women and children to interact with the educators. For this reason, it is thought that people assigned to the second educational meeting wee probably informed that there was going to be inforrrnation about AIDS, but did not hear negative comments about the way the information was presented. Also, 119 during the first two visits to the camps many men indicated to the women (irn front of the educators) that they wanted them to attend the meetings. 4. At the end of the meetings the participants showed their appreciation of the activity and of the effort that was made in bringing all the things that wee necessary for the presentation. Even though Hispanics have been regarded as displaying the ”simpatia" script, if the participants would have felt offended, they would not have been so grateful, or would not have said anything about the activity; in contrast, the participants even provided food, asked if it was possible to come again, and helped to load our truck. Finally, a comment by one of the participants regarding the combination of the variety show (videotape of Tex-Mex bands) provides an illustration on a possible reason why the intervention was accepted and appreciated by the community. She said, ”gracias por traemos las peliculas y esruw buena la pmsentacién se ve que la preparamn para que nos dindniemmothhanks for bringing the movies and the presentation was good, it was evident that you wanted us to enjoy it]." This suggests that maybe the fact that it was evident that this was a complicated activity to conduct (in terns of all the equipment and the number of visits to the cannps) made them feel that they should participate in the activity and be grateful. Same: Women differed fionn men in some behaviors, comments and reactions. This information is useful for understanding characteristics of sex roles in migrant families that need to be considered in designing AIDS education programs for Hispanic migrarnt families. The following are behaviors or comrrnents found among womer, men or couples of diffeent ages in at least three diffeent camps : W n' ' n h vi 1. Women but not men described the nwds of the families and asked for help. Many needs were reported to me in each camp (the needs were discussed in the methods chapter), but there was not one case of a man coming forward with this information, even when sometimes the nwds were completely related to the man. For instance, a woman came and discussed her husband's need for a referral to be seen by an ophthalmologist, and her son's need for a cast for a twisted finger. It might be thought that the women came and discussed their needs because most of the inte'action was with myself. Still, this explanation is not too plausible because often times when I did not know the answer or a resource to refer them to, the women talked with the AIDS coordinator (a man). 2. Women between the ages of 26 and 45 years sometimes reacted to the information with feelings of helplessness regarding opportunities to protect themselves fiom HIV infection, and with anger about the possibility of been at risk because of their partners' behaviors. Comments such as "esto del SIDA esrd canijo, quién sabe si ya a uno Io enfermaron y ahora ya ni cuidarse [this thing about AIDS is bad, who knows if one has already gotten the illness, and now not even the precautions will help] ," showed helplessness. Comments such as, "el hombre puede hacer lo que quiera por ahi y no importa lo bueno que uno se pone se puede enfermar y morir de eso también [the man can do what he wants and it does not matter how well you behave, you can also get it and die of this]" showed anger and concern. I tried to emphasize the concept that prevention is the responsibility of both individuals engaging in sexual behaviors, but that the woman should not feel helpless if the man does not want to prevent HIV because there are things that women can do to 120 121 protect themselves and decrease their probabilities of HIV infection—such as using spermicides or lubricants with nonoxynol 9. Sometimes since most of the participants were women I also had the opportunity to discuss with the women ways to communicate with their partners about HIV prevention. These views will be discussed We in the next chapter, but it is worth noting here that worrnen feel helpless and angry regarding the possibility of AIDS infection. 3. Older women (more than 45 years old) wee ve'y interested in learning all the information arnd often mentioned that they needed to learn in order to be able to teach children how to prevent the HIV infection. I perceived that even though it was not easy for some women to ask questions about sexual behaviors arnd condoms, they followed all the explanations mindfully, and felt that it was their responsibility to do so. For instance, once the educators went to a housing unit for the follow-up visit, and the only person thee was the grandmother. She expressed concern that her daughter and granddaughter wee not there to get the information. She asked me to explain everything about condoms and to review the information on prevention with her. She also requested c0pies of brochures and samples of condoms and spe'micides for the two women who were not tlnere. Since she showed interest in learning what to say to the other two women, I helped her to practice the information to make sure that she understood and krnew what she was going to tell them. Similarly, during the educational meetings, the oldest women (60 years of age or more) geneally participated a good deal by making comments about the informatiorn being presented—especially in support of prevention behaviors. These interventions wee highly valued by us educators, because they continuously related the information to situations in the camps or in the areas where they live in the winter-Florida, Texas- 122 even providing examples of situations that put people that they krnow at risk of HIV infection and other diseases. This type of participation made the communication much easier because the message was even more real for the participants. 1. In mostofthecampsthecontactpersonwasa man. It was more difficult to convince women to be contact persons and to introduce us to the other families. Women who agreed to be contact persons were much less expressive than men in introducing us educators-«usually they just said that the we worked at Cristo Rey Community Cente and wanted to talk to them. Whenamenwasthecontactperson he introducedustothediffeentfarniliesina very supportive way, encorn'aging the youngsters and women to come to the meetings- as though he had krnown the educators for a long time. It was also easier to get other men to participate when the contact person was a man, instead of a woman. 2. When men were the only ones at the meetings, they responded to the information with denial, resignation, and jokes. Dming the meetings, men reacted diffeently when there wee no women in the audience than when they attended mixed meetings. They teased each other, guessing which one of them was more at risk of having been infected with HIV, and while doing this, they named women which they thought were at risk, and accused each other of being either alcohol abuses or homosexuals. I did not try to stop the jokes. But instead used them to clarify myths and to provide information about the behaviors that were being brought up. For instance, I discussed alcohol as a factor that can increase theprobabilityofunsafe sex and drug use, and thath alsodecreasetlne strength ofthe immune system. 123 Efforts to make the participants realize that it is not just the individual who is at risk but that he might also be risking the life of his current or future wife or permanent partner did not clearly show success. Some representative reactions to the appeal to guilt wee: (a) if that is what God decides, thee is not much that you can do to avoid it; and, (b) the couple is married until death separates them, and that if the man is going to die, it is reasonable for the woman to share his fate. The way in which the statements wee made, in a boastful manne, and the negation of them by other men, indicated that they did not whole-heartly accept the statements. It was apparent that the comments were made partially to challenge me as a woman. MW: 1. Young couples (men and women 17 to 25 years old) usually came to the meetings togethe—often with their babies—and participated by asking questions and making jokes. The couples answered together during the follow-up visits, and both the woman and man often brought the red cards (the ornes requesting more information about condoms or spermicides). In those cases, the subjects answered that they did not want or need to listen to the information on how to use the condoms and spermicides, separately. Neither women nor men showed that the decision about which cards to return was affected by the presence of the spouse, for instance, spouses often brought different cards. l u l 2 1 m r ' 1. Older couples (men and women 26 years old and over) came together to the meetings less frequently. In those instances, the men asked more questions than the women and were usually the ones participating more. Frequently, women from these older couples came alone or with the children to the educational meetings. On the other side, sometimes men from these couples came to the meetings when their spouses were not coming to the meetings (happened less often than with the women). When these older couples had to bring back the behavioral cards--during the follow-up—they wee not comfortable bringing the red card in front of their respective partrners. Consequently, the educators had to find opportunities to interview the participants regarding their behavioral cards privately, and under these conditions, some women went back to their spouses asking them which card to retum--those cards were marked as missing data. 1 1i f In chapter III some cultural traits that have been hypothesized as related to AIDS prevention were identified ("simpatia", "respeto" and religiosity). Some of the observations about satisfaction with the intervention and sex roles were discussed in the previous section in their relationship to ”simpatia" and "respeto". Still, it is pertinent to make more general comments here on how these two beliefs and the religiosity could have been related to the implementation of the AIDS education project. W. The members of migrant families were vey helpful and friendly with us. Also, the avoidance of direct conflict was observed twice; once when it was evident that a woman was very shy and undecided about attending to the presentation, but there was no way to engage her into a discussion of the reasons why this had been a 124 125 difficult decision for her, and anothe time at a diffeent camp when the same situation was faced with a group of three men who said that they did not know if they were coming to the presentation and when I asked them why, I got many smiles and people looking down or telling me: "bueno quiet: vayamos ahon‘ra ", [well, maybe we will go in a while]. W. We wee treated as people with a diffeent status. We did not made any particular efforts to be peceived as peers but we avoided the use of any symbols that could imply that we haddiffeent status due to education, socioeconomic conditions or jobs. Some examples of this were: (a) people asking us to provide advice to youngsters about the relevance of studying in order to get good jobs in the futnne or about how is the life of a college student; (b) people listening to the information discussed never saying or displaying non-verbal behaviors reflecting distrust in the information presented-even though sometimes my age, gender, or the erroneous information about AIDS sometimes presenmd in the media could have made someone have doubts about the accuracy of the information presented—; (c) the fact that most of the time the participants dress up to come to the meetings—including the children—, and; (d) the fact that when were invited to come into any of the houses we wee always offered the best chairs and when we wee invited to share food with any of the families we always had the best plates and cups. It is suspected that the difference in status was probably related to our job as educators, because I remember being krnown in diffeent camps as "la nnaestrita puertorriquefia" [the Puertorican teacher]. W. Most of the families considered themselves affiliated with religious groups. This was obsve in: (a) the presence of small crosses in some houses, (b) the participation of many women and children in a religious ritual in one of the camps at the 126 time of one of 0m visits, (c) a request that a Spanish-speaking priest visit a camp, (d) requests of inforrnatiorn about the closest churches with Spanish-speaking priests by people in different camps, and (e) the behavior displayed toward a priest who visited the camps. Still, it is very interesting that we never had any comments during the presentations or follow—up visits regarding religious beliefs opposed the information discussed about HIV prevention. This could be interpreted in terms of religiosity not being a factor (or banie) to HIV education or prevention. An alternative explanation is that since the educational program was sponsored by Cristo Rey Community Center the participants might have thought that all the content presented was acceptable at least to the Catholic church. Warm There wee not enough comments about health values to allow identification of healtln values. However, some observations should be discussed. I was interested in identifying folk healers to see if they have particular opinions about HIV. None of the camps visited had someone whom the people identified as a healer except that in one camp there was an olde' woman that some women identified as the person they go to first when any of the children get sick, but these women also specified that when the child's illness seems serious or the person with the illness is an adult, they go to a clinic. It was observed that access to medical care was difficult for the migrant families. As it was discussed in the section about needs reported, often times the clinics visiting the camps did not announce the visits in advance. Other problems were that sometimes migrant workers requiring follow-up care had difficulties getting prescriptions or referal to specialists because their medical files wee lost—from visits to the clinics the previous year-and then often they had to drive long distances to the clinics during work hours. 127 Therewasnoevidenceofalackoftrustin western medicineoralackofconcern about health issues. Wrestlers It is important to review the questions that participants of diffeent genders and age groups asked. The following questions were asked by participants in at least two camps. 1. Is it really true that Hispanics can get AIDS? This was asked more frequently by men (all ages) and older women (more than 45 years old). 2. Is AIDS also a problem in Mexico? Some older women mentioned not having heard about AIDS when they wee growing up in Mexico; they were the ones asking this more often. 3. Is AIDS only a problem of the black community arnd will Hispanics only get it through sexual relationships with a black person? This was asked by some men and women, and there was not a particular age group asking this question more often. 4. Could someone get AIDS from a dentist's work? There was a lot of curiosity about the case of a dentist in Florida who died of AIDS and had eight of his clients infected with HIV. People of all ages and both genders asked about this. 5. Could someone get AIDS from mosquito bites? This question was very typical of the children attending to the meetings. Only oncearnadultaskedabouttlfisanditwasaman talkingaboutasmalltowninFlorida that was said to had a high number of people infected with HIV throughout mosquito bites. 128 6. Whee does AIDS come from? People all ages and gendes were interested in krnowing if AIDS developed fionn Haitians, monkeys, or African tribes. 7. Could someone get AIDS drinking fiom the sanne water fountain at school? Children wee par1icularly interested in this information arnd wee the only ones asking about this way of contagion. 8. At what age should children start learning about AIDS, and what is being done at schools to teach them about prevention? Men and women asked about this regardless of the gender or age of the othe participarnts in the meetings-~wether the participants were a mixed group of women and men or wether tlney were in a single sex meeting. 9. Is it correct to assume that sonneone is not infected if the individual was tested as part of the procedures for his/her legalization of imrrnigrant status and was not corntacted by a government agency or denied permission to stay in the United States. A group of women mentioned having gone through HIV testing to legalize their status in the U.S., that they never went back for the results, and that they assume that they were not infected because they were not contacted or thrown out of the country. The behavioral observations provided information about the participants' satisfactiorn with the educational expeience, their sex roles behaviors, some cultural beliefs, health beliefs and the questions asked more frequently. Theparticiparntsweefoundtobe satisfied with tlneeducational expeienceon the basis of several consistent characteistics including: (a) no complaints about the presentation; (b) no people leaving early; (c) sometimes people watched the presentations twice; (d) thee wee no reports of men prohibiting children or women to attend to the 129 second educatiornal meeting on each camp—more women than men attended to the meetings»; and, (e) at the end of the meeting, the participants showed their appreciation of the activity. The following table lists the main roles played by women and men during the presentations. Table 18. WW Observations Women 1. The women wee the ones describing the needs of the families and asking for resources. 2. Older women wee vey interested in the infornnation and help to teach about AIDS and prevention behaviors. 3. Women between 26 and 45 years old sometimes reacted to the information with feelings of helplessness. Men 1. In mostofthecampstlnecontactperson wasaman,becausemenagreedtobe contact persons much more easily than women. 2. When both wee attending to the same meeting, older men asked more questions than women. 3. When men were the only ones in the meeting, they reacted to the information with denial, resigrnatiorn and jokes. An interesting diffeence was found between the participation and reactiorns of younger and older couples. The younger couples came together to the meetings and often requested more information about corndorrns in front of each other, while the older couples came togethe' to the meetings less frequently, and showed discomfort requesting information about condoms in front of their partrners. Examples of the traits 'simpatia" and "respeto" wee found and discussed in relation to the implementation of the inteventiorn. Religious beliefs wee not discussed 130 at any tinne in relation to HIV/AIDS prevention, sexual behavior, and evidence of difficulties in accessing health care were identified. The questions asked frequently during the meetings can be classified as: (a) geneal information about the epidenniology of AIDS; if Hispanics can get AIDS, if AIDS is a problem in Mexico and if AIDS is just a problem of the black community; (b) myths about ways of contagion: if you can get AIDS from a dentist's work, if you can get AIDS from mosquitoes' bites, and if one can get AIDS drinking from the water cooler at school; (c) geneal information about AIDS: where does AIDS comes from; and, (d) government measures regarding AIDS: at what age children should start learrning about AIDS; what is being done at schools to teach them about AIDS, and if it is possible to assume that someone is not infected because the individual was tested as part of the immigration procedures and was neither contacted nor denied the permission to stay in the United States. CHAPTER VI DISCUSSION This chapte discusses and summarizes the answers to the research questions and hypotheses found in quantitative and qualitative data. Limitations and questions for furthe research are presented and finally information from each of the diffeent data scenes is used to analyze if the four objectives of the prevention program wee accomplished. Research Questions What do migrant workes krnow about AIDS? Similar to Dawson and Hardy (1989), and Cristo Rey and HAPIS survey in 1989, the participants in this study obtained very high scores on geneal knowledge about AIDS, and lower scores on knowledge about prevention. The first hypothesis stated that there was going to be a significant difference between the migrant workers' krnowledge about AIDS after the educational experience in the two experimental conditions as compared to the control groups. The results showed no significant diffeences on general krnowledge about AIDS between conditions, and a sigrnificant difference in krnowledge about prevention between conditions. Significant differences were identified in krnowledge about prevention between the expeimental educational conditions and the control conditions. The analysis of the score on geneal krnowledge about AIDS between conditions did not support the first hypothesis because the scores on that scale were very high among all the subjects, and the potential impact of the educational inteventions was diminished. However, a trend analysis of the score on general krnowledge about AIDS between conditions was significant, meaning that the scores for the different 131 132 conditions followed a predicted order: participatory learning group, didactic learning group, control group and non-equivalent control group. The trend arnalysis supported the second hypothesis which proposed that nnigrant workers in the participatory learning group wee going to have highe scores on knowledge about AIDS than the subjects in the didactic learrning group and the control group. The analysis of knowledge about prevention identified significant differences in two pairs of combirnations: (a) participatory learrning group and the control group, and (b) didactic learning group and the control group. There was no evidence that the participatory learning group knew more about AIDS prevention than the didactic learning group. The finding of high scores on general knowledge about AIDS and lower scores on knowledge about prevention suggests that different variables or processes might be interfering with the adquisition of knowledge about AIDS, depending on wethe the inforrrnation was general or preventive. Psychosocial factors could be interfering with the understanding, perception or receptiveness of information about the preventive behaviors. This study also looked at the relationship of some of the psychosocial factors with knowledge of preventive behaviors: ideas about sexuality (sex roles) and the use of condoms, attitudes towards homosexuals and attitudes towards drug users. However, the qualitative observations of sex roles did not show the avoidance of sex topics and lack of communication between mm as a general characteristic-it was found in older couples-that is often mentioned in the liteature. Also, a positive significant correlation was found between the number of people saying that they wanted more inforrrnation about condoms and the numbe of people requesting condoms. The only attitudinal variable that was significantly and positively related to knowledge about prevention, was the attitudes towards homosexuals (also the only 133 predictor of knowledge about prevention in the regression analysis). It is interesting to note that thee was also a positive significant correlation between attitudes towards homosexuals and geneal knowledge about AIDS. These two findings support the research hypothesis (H3) which proposed a significant relationship between knowledge about AIDS and attitudes towards homosexuals, and does not contradict Stipp and Kerr's (1989) finding of people with anti-gay attitudes being less responsive to information about AIDS. It is possible that if the subjects thought of HIV/AIDS as a disease of people labeled as homosexuals, their perception of their own vulneability to the infection is not high enough to realize a need to learn about prevention behaviors. Also, exploratory analysis identified that the attitudes towards homosexuals were sigrnificantly correlated to the number of previous sources of information about AIDS. . Cristo Rey and HAPIS survey (1989) found a positive correlation between peceived risk of developing AIDS and knowledge about prevention. This research found support for the statement that the perceived vulnerability might be related to knowledge about prevention behaviors since one of the items more frequently answeed incorrectly was: " AIDS is a problem for the Hispanic community " (this replicated the finding of Marin and VanOss Marin, 1989). It might well be that increasing the knowledge about AIDS, specifically clarifying the subjects' vulnerability to the infection, makes it more relevant for them to learn about prevention, and for this reason significant diffeences were found between the experimental and control conditions on knowledge about prevention. Another alternative explanation for these findings is a lack of trust of the sources of information regarding prevention behaviors, or simply not enough previous and clear information about prevention behaviors. The late could be supported by the finding of a positive sigrnificant correlation between knowledge about prevention and 134 the number of types of previous sources of infornnation about AIDS and of a very low correlation between the general knowledge about AIDS and the number of types of previous sources of information about AIDS. It was also mentioned earlier that Mays and Cochran (1988) stated that the culture and beliefs of Hispanics have not been considered in the design of most educational campaigns and that it is therefore, vey difficult for them to relate to the information. It is important that the participants in the experimental educational conditions showed higher scores on knowledge about prevention, because since this study lacks a pretest, the fact that the scores on knowledge about prevention were lower in the control conditions suggests that the educational inteventions clarified or taught tlnese critical information to the participants. Also, the fact that the scores on general knowledge about AIDS followed the expected trend—with highe scores on expeimental educational conditions-suggests that maybe a larger sample would have shown sigrnificant differences between conditions. Still, it is necessary to remember that a significant trend was identified between the conditiorns in geneal knowledge about AIDS, but that a non-parametric test was used to test the diffeence between the conditions (because of violation of the homogeneity of variance). The mean score on attitudes towards peOple with AIDS was 18.94 (the highe the score the more positive the attitude) and the maximum possible score was 28. The third research hypothesis proposed that there was going to be a sigrnificant difference in the attitudes towards PWAs between experimental and control conditions. This hypothesis was not supported by the data. The attitudes towards PWAs of subjects in the participatory learning group were significantly different from the attitudes of subjects in the didactic learning group with the later group having the highest scores. Even though a significant diffeence in scores on attitudes towards people with AIDS was found, thee wee no significant differences between experimental and control 135 conditions, and the group that was expected to have the highest score, the participatory learning group, was in fact the group with the lowest scores. The reason why it was expected that this group was going to have the highest scores was because it was hypothesized that there was going to be a positive relationship between knowledge about AIDS and attitudes towards PWAs and the participatory condition was designed to be more effective increasing the participants' knowledge about AIDS. Moreover, a sigrnificant positive correlation (.46) between general knowledge about AIDS and attitudes towards PWAs was found, and this variable was one of the two predictors of general knowledge about AIDS in the regression analysis. Theefore, the unexpected finding can not be attributed to discomfirnnation of the fourth hypothesis about a relationship between knowledge about the topic and attitudes towards PWAs. It is furtlner explained late how the elements of the participatory intervention related to attitudes towards people with AIDS did not work as expected in propitiating the environment for the discussion of the topic. The discussion of attitudes towards people with AIDS in this group depended on the subjects' mention of comments related to the topic and it usually did not happen. This lack of interventiorn to work on attitudes could be in part responsible for disconfirrnation of the expectatiorn of higher scores on attitudes towards people with AIDS in the participatory learning group. However, the finding of significatively lower scores on attitudes towards people with AIDS in the group that was identified with highest scores on general knowledge about AIDS-~in a trend- and in knowledge about prevention, is difficult to explain with the data available. Furtlne research should explore the possibility of an irnitial decrease in positive attitudes-or increase in negative attitudes—towards people with AIDS, homosexuals and drug users as a result of exposure to information about AIDS and large improvements in knowledge about AIDS. Changes over time or the amount of change in the general knowledge about 136 AIDS could account for the still positive correlation between knowledge about AIDS and attitudes towards people with AIDS. Othe- variables that wee found to be positively and sigrnifieantly correlated with attitudes towards PWAs were the attitudes towards drug addicts (.38) and the attitudes towards homosexuals (.32). However, since none of the two experimental edueational conditions included a module or specific exercises to change or support positive attitudes towards PW As, homosexuals or drug use's (othe' than the sections in the questionnaire, that subjects in all conditions completed) and, there wee not many comments showing attitudes towards PWAs during the sections (it was expected that the participants were going to show their attitudes towards PWAs more often and that it was going to be the opportunity to talk about some myths and promote more accepting attitudes) there was almost no intervention regarding attitudes. This is probably the main reason why significant diffeences wee not found between the conditions on attitudes towards PWAs. A fifth hypothesis expected to find a signifieant relationship between attitudes towards PWAs and the behaviors of: requesting written materials about AIDS, volunteering to distribute written mateials to other people, bringing someone to receive information about AIDS and requesting more infornnation about condoms arnd spermicides. None of the relationships was found to be significant, probably beeause the intervention was not strong regarding attitudes towards PWAs and because of the reduction of the sample due to missing data in the cards from the follow-up. What attitudes do nnigrant workers have towards homosexuals and drug users in relation to AIDS? The attitudes towards homosexuals and drug users wee found to be moderately positive: attitudes towards homosexuals X=13, attitudes towards drug users, X=14. 137 The maximum possible score on both scales was 20. The hypotheses that tlnee were going to be signifieant diffeences between conditions on attitudes towards homosexuals and drug uses wee botln rejected. The diffeences wee not found probably for the same reason that sigrnifieant differences wee not found between conditions on attitudes towards PWAs. Still, the finding of modeately positive attitudes towards homosexuals agrees with Stipp and Ker (1989) assertions regarding the existence of conservative and progressive attitudes towards homosexuals in the Hispanic community and Marin (1990) statement regarding the existence of an homophobic component in the Hispanic culture. Unfortunately, the possibility of a response bias in subjects answering the way they thought that the educators would like then to respond was not tested. This is particularly critieal with controvesial issues such as homosexuality and drug use: specially, because it has been discussed that some of the characteistics of the Hispanics could make them more motivated to please other people (e.g., ”simpatia" script and ”respeto"). There is no way to know if the attitudes towards homosexuals and drug users are really more negative but were attenuated by a response bias. It could have been that the subjects in the participatory learning group felt less pressure to develop a response bias when answering the questionnaire because they talked more and it was easie for them to peceive acceptance and inteest in their own opinionns from us educators, tlmn the othe groups which did not have the experience of discussing many of their point of views with us, before the completion of the questionnaire. It was discussed earlier that attitudes towards homosexuals were found to be positively and significantly related to geneal knowledge about AIDS and knowledge about prevention. Hypothesis nine evaluated the relationslnip between attitudes towards drug users and knowledge about AIDS. In this analysis the attitudes towards drug users wee only related to geneal knowledge about prevention, which was also 138 one of the predictors of geneal knowledge about AIDS in the regression analysis (the other predictor was attitudes towards PWAs). A possible reason for not finding a significant relationship between attitudes towards drug users and knowledge about prevention is that usually just one or two behaviors (not to share needles, or to clean the needles) are identified with drug use, as opposed to more preventive behaviors for safer sex which be could mistakenly related to homosexuals—even though the use of drugs could also be related to unsafe sexual behavior. Anothe situation that could have interfeed with the finding of a relationship between attitudes towards drug uses and knowledge about prevention is that only one item clearly related to drug use was included in the assessment of prevention behaviors-{leaning the needles with bleach before injecting drugs. Future studies should include items such as not to use intravenous drugs, and not to share needles, in the section about peceived effectiveness and knowledge of prevention behaviors. Interestingly, the attitudes towards drugs users and the attitudes towards homosexuals were significantly and positively correlated to attitudes towards PWAs (hypothesis 10 and 11). This was expected, particularly because Lawrence, Husfeldt, Kelly, Hood and Smith (1990) expeimentally found that when patients wee portrayed as homosexuals, the subjects consideed them as more deserving and responsible for their disease, more deserving to die, more dangerous and deserving to be quarantine, less entitled to work, and of less intrinsic worth. In othe words the attitudes towards the patients wee more negative. Would the participation in the participatory and didactic learning groups increase migrant's openness to AIDS information as measured by their behavior? The hypothesis regarding this research question was that there was going to be a sigrnificant diffeence in the number of subjects requesting information about condoms 139 and spemicides, between the participatory and didactic learning groups and the control group. This hypothesis was not supported by the data. The method used to collect data regarding Openness behaviors faced difficulties that limit its reliability-«Le, people losing their cards, people not been at the eamps at the time of the follow-up. Exploratory analysis found a positive signifieant relationship between the reported interest in getting more information about condoms and spermicides—iten in the questionnaire-and the behavior of requesting samples or information about condoms during the follow-up. This finding and qualitative observations, indicated that people wee open to the information about AIDS. For instance: in most camps the people kept coming to talk to the edueators and often stayed during the presentations about AIDS and musical videotapes (a second time) after having gone through their assigned meetings; many people attended the second educational meetings on each camp afte having participated in the first one; the subjects asked many questions during the presentations,and; most of the subjects who returned cards dnrring the follow-up requested more written materials. It could be thought that the subjects chose the request of written information because it was an individual behavior, not as intimidating as requesting information about condoms, or taking someone to the educator to receive information. However, it is necessary to remember that the subjects had the option of bringing a card to get into the raffle without doing any of the behaviors, and also that in some cases subjects who lost their cards requested the brochures as well as people who did not participate in the presentations-because they wee not at the camps. A possible explanation for not finding differences in openness between conditions could be that since the whole camp was involved in activities related to AIDS education (even the controls which only completed the questionnaire and the follow-up), the retm'n of the cards and performance of the different behaviors wee 140 connsidered as acceptable behaviors by the community. It could have also been that the subjects in the control group displayed the behaviors used to assessed openness out of curiosity because they knew that otlne people at the camp receive more informatiorn about AIDS. Thus, the involvement of the whole camp in the AIDS edueation program and expeiment could have been more effective promoting openness to the topic of AIDS among everyone in the eamp than the interventions with the experimental conditions. Summarizing, if the migrant workers wee open to information about AIDS—a ceiling effect—if would have been unreasonable to expect major changes in the display of behaviors related to openness during the follow-up. Still, it was not tested if performing the behaviors regarded as displays of openness to informatiorn about AIDS meant more openness to information about AIDS than the subjects' participation in the AIDS education activity. Also, the involvement of the whole eamp in AIDS education activities could have promoted social acceptance of the topic and elicited openness to the topic equally across all groups Would the participation in the participatory and learning groups increase the rrnigrant workers' awareness of the importance of education about AIDS for the Hisparnic population? The hypothesis proposing a signifieant difference in the migrant workers' report of interest in distributing information to other people, and disposition to bring someone to receive information between the conditions was rejected. Sonne of the alternative explanations presented in the previous hypothesis apply to this situation: the reduction in the sample size during the follow-up and the possibility of an effect on awareness of the importance to edueate the community about the topic due to the involvement of the families at the camp in the HIV/AIDS prevention program. 141 Similarly to what happened witln qualitative obsevations of openness, qualitative data indicated awareness of the need to edueate the community about AIDS. Adult women and nnen showed interest in having their families listen to the information about AIDS and asked questions regarding when the children should begin to learn about the topic. Another interesting finding is that the exploratory analysis found a significant relatiornship between the request of copies of information about AIDS to be distributed and the score on knowledge about prevention, and between the behavior of introducing someone to the instructors and the knowledge about prevention. Those who requested nnaterials for distribution wee the ones with highe scores on knowledge about AIDS, and those who accomparnied someone to receive information about AIDS from the educators wee the ornes with lower scores on knowledge about prevention. The second relationship was found in a very small sample, and usually the subjects who brought someone to receive information wee amorng the oldest in the camp, and stayed during the short explanation provided to the person that they brought. Meaning that they could have brought the othe person out of interest in having this other person educated about AIDS, or maybe because of the subjects' peception tlnat they did not knew or understood enough to communieate the information themselves. Thee are many possible explanations for the relationship between knowledge about prevention and the request of copies of information to distribute. For example, it could be that the undestanding of information about prevention increases the sense of self-efficacy or the peception that the infection could be avoided. As a consequence it becomes more relevant to educate other people about the disease, or it could be that the understanding of more information about AIDS promotes more accurate assessments of risks and the peception that people that they know in the 142 community could be at risk becomes more clear. Theefore, increasing the nwd to protect them through education was reflected in the inteest to have others leanning about HIV/AIDS. More information about the community dynamics regarding disseminatiorn of information about AIDS would be extremely useful in the design of prevention programs. The variables age and edueation The lite'ature review provided evidence of how the variables age and ednncation have been found to be related to having more information about AIDS in the general publicnthe more educated and the younger knowing more—(Singe, Rogers, & Corcoran, 1987) and in the Hispanic community (Dawnson & Hardy, 1989: Cristo Rey and HIV [AIDS Prevention and Intervention Section, 1989). This research also found a negative significant correlation between age and geneal knowledge about AIDS and age and knowledge about prevention, and sigrnificant positive correlations between educatiorn and geneal knowledge about AIDS and edueation and knowledge about prevention. . It is important to note that a negative significant correlation was found between age and education in the sample of migrant workers (~53)--the younger the subject, the more educated. This finding probably accounts for the correlations between knowledge about AIDS and age and education; younger subjects have more education and could eithe receive more inforrrnation about AIDS or understand it better. Previous research explained this finding in cornnectiorn with the variable language. The rationale has been that subjects with more edueation and younge completed the questionnaires in English and that it could be assumed that they had access to more information about AIDS—since most of it is in English. The present research included one item in the questiormaire whee the subjects indieated the 143 languagethattheypreferredtospeakanditwasnotfoundtoberelatedtoany ofthe othe variables in the study. Also, the choice of the English or Sparnish--88 chose the Spanish version and 51 chose the English version-questionnaires was studied as an indicator of the language that the subjects feels helshe ean undestand bette and thee was not a significant diffeence between the subjects who chose any of the versions and the geneal knowledge about AIDS. The means on geneal knowledge about AIDS were 15.06 for the people who answered in Spanish and 15.27 for those answering the English translation of the questionnaire. The variables age arnd education wee also related to the attitudinal variables. Age was significantly and negatively related with attitudes towards homosexuals, drug users and PWAs. Education was significantly and positively related to attitudes towards homosexuals, drug users and PWAs. Qualitative observations also suggested relationships with the variable age. The participation and reactions of younger and olde couples wee diffeent. The younger couples came togethe to the meetings and often requested more information about condoms in fiont of each otlner, while the olde couples came togethe to the meetings less frequently, and showed discomfort requesting information about condoms in hunt oftheirpartrners. Summary of findings This research identified the following main findings: 1. That the rnnigrant workes knew rrnost of the general information about AIDS, but wee less knowledgeable about prevention belnaviors. 2. That the participatory and didactic learning inteventions wee effective in increasing knowledge about prevention, and showed more geneal knowledge about 144 AIDS than the control group and non-equivalent control group (this found in a trend analysis). 3. The participatory education was not better than the lectnne type education in the dissenination of information about prevention. 4. Thee was a sigrnificant diffeence between conditions on attitudes towards PWAs but it was not in the predicted directiorn (the participatory learning group had lower score than the didactic learrning group). 5. The attitude towards PWAs was not found to be related to any of the behaviors related to openness and awareness and studied during the follow-up. 6. The attitudes towards homosexuals were positively and signifieantly related to general knowledge about AIDS and knowledge about preventiorn. 7. The attitudes towards drug users wee related to geneal knowledge about AIDS. 8. The attitudes towards drug uses and homosexuals were significantly and positively correlated to attitudes towards people with AIDS. 9. The subjects in the experimental conditions did not show more openness to informationabout AIDS or awareness of the nwd to edueate the community about AIDS. 10. Thee was a significant negative correlation between age and education, and between age and geneal knowledge about AIDS and knowledge about prevention. 11. There was a significant positive correlation between education and geneal knowledge about AIDS and knowledge about prevention. 12. Age and education wee significantly related with attitudes towards homosexuals, people with AIDS and drug users: age was negatively related to the attitudes and edueation was positively related to the attitudes. 13. The younge couples came together to the meetings and often requested more information about corndoms in front of each othe, while the olde couples came 145 togethe to the meetings less frequently, and showed discomfort requesting information about condoms. 14. The women and men reacted in diffeent ways to the presentations: women with helplessness,or anger , and men with boastful comments trying to challenge me or to minimize the relevance of the information arnd the peceived threat of HIV/AIDS. Also more women than men invited to the presentations attended. 15. Thee was no evidence of religious beliefs conflicting with the HIV/AIDS prevention information. 16. Behaviors that could be attributed to the "simpatia" script and the ”respeto" wee identified in people's reactions to the project. For instance, a couple of times people with concens about participating in the presentations will not discuss their objections to the educational intevention with us. Also, thee were many examples of a peceived difference in status between myself and the family membes probably due to my job as educator and this could have limited the discussion of individual concens about HIV/AIDS. The following diagram shows the relationships that were identified with this study. 146 32* ATTITUDES ATTITUEEVi;OWARD TOWARDS HOMOSEXUALS .38” .33» ATTITUDES TOWARDS .Io KP .2l*GK PREVIOUS DRUG ADDICTS .46*GK .23*KP SOURCES .38,.“ OF INF. AIDS .07KP -.34*GK _ KNOWLEDGE ., . —. am: . . 9KP AGE ' ‘ ABOUT <—°———> EDUCATION .I8*GK .02GK -.02KP .22KP .40* ‘ AWARENESS OPENNESS 28/ ATTITUDE \28 30),! ATTITUDE \30 INTEREST INTEREST INTEREST INTEREST WRITTEN INFORMATION INFORMATION BRING INFORMATION CONDOMS OTHERS SOMEONE .05 t test! .I4 t t .05 REQUEST REQUEST REOUEST WRITTEN INFORMATION INFORMATION BRING INFORMATION CONDOMS OTHERS (““595 OPENNESS 64* AWARENESS BEHAVIOR 6 + BEHAVIOR 1" - SIGNIFICANT AT D < .05 GK ' GENERAL KNOWLEDGE ABOUT AIDS KP ' KNOWLEDGE ABOUT PREVENTION Liam. Relationship Between Variables. 147 This field experiment was designed to test the effectiveness of a participatory educatiorn approach in promoting openness to information about AIDS and awareness Of the need to learn about AIDS. The participatory learning condition was expected to be more effective than didactic, control and non-equivalent control cornditions, because of its potential to influence social norms and facilitate the intepnetation of the information about prevention according to the subjects' living conditions and previous expeiences. Some attitudinal variables that have been hypotlnesized in the literature as having an impact on Hispanics' knowledge about AIDS wee studied. The top half Of figure 6 shows the relationship between attitudes towards PWAs, homosexuals and drug users and knowledge about AIDS . These attitudinal variables wee positively and significatively correlated with eitlne general knowledge about AIDS ( attitudes towards drug addicts, PWAs, and homosexuals) or knowledge about prevention (attitudes towards homosexuals). The attitudes towards PWAs wee positively and signifieatively correlated with attitudes towards homosexuals and drug users. Two demographic characteistics were also correlated with geneal knowledge about AIDS (edueation—-positively correlated—and age-negatively correlated). One othe background characteistic studied was the numbe Of previous sources Of information about AIDS. Inteestingly, this variable was sigrnificatively correlated with knowledge about prevention and with attitudes towards homosexuals. The bottom half of the figure displays the relationships between knowledge about AIDS and attitudes and behaviors assess as indicators of openness and awareness. The only significant relationship between knowledge about AIDS and eithe openness or awareness attitudes and behaviors was between general knowledge about AIDS and Openness as an attitude measured with two written items (inteest in written information about AIDS and interest in more information about condoms). For each of the four written items used as indicators of eithe openness or awareness thee was one corresponding 148 behavior. The only significant relationship between the written items and the corresponding behaviors was found between the inteest in receiving condoms and the request of condoms. Still, it is important that Openness and awareness, as attitudes wee significantively correlated (.40) and that Openness and awareness as behaviors wee also significatively correlated (.64). If the relationship were found only in the behaviors it would have been possible to argue that maybe people just tend to bring cards classified unde any Of the categories—wee not discriminating-when they decided to bring a card. Howeve, this was not the case because Openness and awareness wee also correlated when assessed as attitudes. The finding of sigrnificant relationships between the attitudinal variables and knowledge about AIDS suggests potential areas of intevention for future prevention programs and research. It is encouraging to think that working with peoples' attitudes towards homosexuals drug users or persons with AIDS could have an impact on knowledge about prevention behaviors and general knowledge about AIDS, because the only othe variables that have been continuously identified as related with knowledge about AIDS are age and education of the subjects and tlnose variables are out of the researche's control. Still, if the reason why education and age are related with knowledge about AIDS is because younge and more educated people have better understanding of the English language, then these two variables will not impact on knowledge about AIDS as more information about AIDS is disseminated in Spanish. Howeve, this study did not found significant differences in knowledge about AIDS due to the reported language that the subjects preferred to speak or the language chosen to answe the questionnaire. Limitations Of the Study The method used to implement the educational sessions at the camps imposes certain limitations to this research. First Of all, it was necessary to have random assignment Of the families on each housing unit to each of the three expeimental conditions in orde to have families from the same environment and with the same potential opporturnities receive information about AIDS on each Of the expeimental groups. Still, this poses the risk that by the time of the follow-up people from control conditions could have talked about AIDS with participants in the educational conditions and then their return of cards during the follow-up could have been affected by curiosity to learn about a topic that was discussed with some of their neighbors or . by interest in finding out the answers to the items that they completed in the questionnaires. In fact, qualitative Obsevations reported in the previous chapter indicated that this could have happened. For instance, sometimes members of the control groups asked the researche for the correct responses to the questionnaires or came to the presentations for the educational groups-4n this later ease their follow-up cards were not included in the data set. Anothe area whee the research faced limitations was in tems of data collection techniques. Maybe it would have been bette tO' use longe instruments assessing self- reported preventive behaviors, using multidimensional seales and assessing peceived risk of HIV/AIDS to have scales with highe reliability. Howeve, most Of the participants did not have strong educational backgrounds and sometimes had difficulties reading questionnaires and getting used to the type Of execises. Also, given the fact that talking about AIDS was expected to be intimidating and that the intervention was not going to include any specific elements to change risk behaviors, othe than the provision of knowledge, items about personal risk taking behaviors wee not included. Anothe reasons why this type of questions was not used was 149 150 that it was critical for this program that subjects who answe the questionnaire and participate in the first presentations, do not feel uncomfortable because otherwise, an attendancetofuture meetingsatthatcarnpcould havebeenaffected, andalsothatldid not want to rrnake the nnigrant families feel that they were being ”checked” on their behavior to be criticized, or furtlne stigmatized. Still, sorrne areas of the questionnaire should be improved, like the section on knowledge about prevention that needs to include more items about needle sharing behavior, and a section should be added on behaviors that the individual thinks that it will be possible for him/he to do in the future to prevent getting infected with HIV and furthe research should explore if it will be possible to ask those type of questions without affecting negatively the attendance to presentations in that community. The reliance on the subjects bringing up comments related to attitudes towards homosexuals, drug users and people with AIDS was not the best way to get an opportunity to talk about the topic and clarify myths. There were simply not enough comments on those topics. Different symbols or execises with key terms can be included in the future to promote the discussion Of those topics. Finally, the measures Of Openness to information about AIDS and awareness of the need to educate the community about AIDS wee difficult to adrniniste because some people lost their cards and some fannilies wee not at the camps at the time of the follow-ups, and since the follow-up visit also included a raffle it was not possible to reschedule that visit. Issues for Furthe Research Several areas of furthe research wee identified through this study. First, the finding of significant correlations between knowledge about AIDS and attitudes towards homosexuals, people with AIDS and drug addicts suggests that the potential 151 impact of more positive attitudes on knowledge about HIV/AIDS and knowledge about prevention should be studied. It will be important to know if when the public is exposed to sources Of information about AIDS aiming at the development or reinceforcement of more positive attitudes towards homosexuals, drug uses or people with AIDS, knowledge about AIDS and preventive behaviors and behavioral change is more probable. These attitudes could be interfering with the subjects' interpretation and integration of the information about AIDS that helshe had received. Anothe area for furthe research is the study of the community dynamics on how and what information about AIDS is disseminated within the camp—by the migrants «before and afte educational interventions. This type Of information, together with individual assessments of the perceived social norms associated with AIDS issues will bring information conducive to learning more about how to influence the social environment to have an impact on individuals' knowledge, attitudes and behaviors regarding AIDS. It will be inan to answe if the involvement of the whole camp in HIV/AIDS edueation activities have an impact in promoting more Openness to inforrrnatiorn about AIDS in the community. If this were the case, the potential Of community involvement in the promotion of more specific behavioral changes could be used for HIV prevention. Earlie in this chapter the need to identify preventive behaviors peformed by the migrants before and afte expeimental implementation of educational inteventions was mentioned. Also, the intentions to do the preventive behavior, and the subjects' peceptions of their ability to do the preventive behaviors should me measured. It was discussed earlie that asking for individual risk taking behaviors might not be feasible in some programs. Moreove, the intentions to do a preventive behavior are not always correlated with the peformance Of the behavior. An alternative will be the longitudinal administratiorn Of surveys regarding community norms regarding risk 152 behavior, and the peception Of risk of infection in the particular camp. This will be useful in two ways, identifying the current community norms, and providing an estimate of risk behaviors Of migrant workes without having to ask each individual about his/he sexual and needle sharing behavior. The next section draws conclusions based on this research and makes suggestions for future programs of education of Hispanic migrant families. Conclusions and Recommendations for Future Programs This dissetation discussed earlie how social influences and knowledge could affect the beliefs and values that should impact on health belnavior or intentions to behave according to the health beliefs model and the reasoned actiorn theory. It was suggested that the diffeent conditiorns and elements Of this model take time and require the repetition-acme researchers said saturation—Of the messages and an strong impact of the disease on the social environment for knowledge to be assimilated and for social influences to push in the direction Of preventive behaviors. A need Of AIDS preventiorn initiatives for the Hisparnic migrant community in Michigan-and for Hispanics in geneal—was described and the elements of the social environment and individual's attitudes hypothesized in the literature as potentially related with AIDS prevention behaviors in the Hispanic commurnity wee identified (cultural values such as, ”machismo", ”marianismo", "respeto", ”simpatia script", religiosity and sexuality, and individual attitudes such as those towards homosexuals, drug uses and people with AIDS). I A one-time edueational intervention for the Hisparnic migrant commurnity was designed to provide information about AIDS and incorporating Openness to . information about AIDS and awareness of the importance of learning about AIDS for the community as goals Of the edueational interventions. The Objectives of the 153 program were : (a) to disseminate knowledge about AIDS, (b) to promote the subjects' exploration of their attitudes towards people with AIDS, homosexuals and drug uses, (d) to motivate more Openness to receive information about AIDS, and (e) to increase awareness of the importance of AIDS education for the Hispanic community. The method prefered for the educational intervention was a participatory approach based on Paulo Freire method Of using symbols to help the mic identify the information that they rneed at the same time that they relate the concepts to their own lifestyles and experiences. In order to evaluate this educational method the inteventiorn was implemented as a field comparison Of this type Of education with the usual dithctic—lecture type— of presentation. The participants in the study had a fair amount of geneal knowledge about AIDS even in the control conditions. For this reason tlnere wee not large and significant diffeences between conditions. The area of knowledge about prevention--which was identified in the literature as the area of weakness for Hispanics—showed the expected differences between the experimental and control cornditions. Thee wee doubts regarding if the subjects had enough opportunity to explore their own attitudes towards homosexuals, drug users and people with AIDS. Even though all the participants had the opportunity to complete the questionnaire asking about their attitudes, there was almost no discussion regarding this attitudes during the meetings. The level of awareness of the need to educate the community about AIDS and the Openness to the information about AIDS could not be confirmed by the quantitative behavioral measures used. Howeve, qualitative data suggested that both Objectives could have been accomplished through: (a) the whole camp involvement in the HIV/AIDS education program—it was probably appropriate to talk about the topic and ask about it beeause eveybody was doing it and people wee having fun in tlne 154 activities whee they talked about it—;(b) the subjects' satisfaction with the educational expeience, identified through the absence Of complaints and people leaving the presentations, people who watched the presentations twice, the attendance of many women and children to the meetings,and the collaboration of the participants with the educators during evey visit. Even though the participatory educatiorn was only identified to be supeior to the othe conditions in general knowledge about AIDS in a trend, and showed to be sigrnificantly bette than the didactic education, it worked out extremely well in getting the family members to talk about AIDS in a non-threatening atmosphere. The use of the talking posters is a vey effective edueation method for the Hispanic migrant families, and has the advantage we the didactic learning presentations Of allowing family membes to hear what membes of their family think or feel about AIDS. For the sanne reason, it is highly recommended that future programs condnnct the education with families instead Of the common way Of doing it which is separate meetings for women and men. This research expeience showed, that even though it is harde to get the participation Of men in nnixed meetings, by using adequate recruitment techniques (i.e., Oldest or influencial men as contact pesons, entertainment activites and men from the camp recruiting otlne men) they did attended with their families. Also, the role of the fatlne and the mothe on AIDS education were vey clear. Not having the opportunity to Offe diffeent training semirnars to the women or men about how to talk to each othe about AIDS or how to communicate about AIDS with their children, it was very beneficial to have mixed groups wee men could lnear women concens and vicevesa. Anothe reason why separate groups are not encouraged is beeause the information that is discussed among the men is sometimes more sexually explicit and in a diffeent tone than the way the information is discussed with a group of women. Men tend to forbid women to attend to meetings about AIDS when they feel that they are going to be attending presentations presenting sex issues that way-- this was learned from the participants' reactions to presentations in the past. The combination of an entertainment activity with the educational intevention is highly recommended as an incentive, because it could help the participants peceive the information about the topic as something more common. Furthe, it can be used as a way to get the community an opportnunity to make decisions regarding the implementation Of the program. In the current research, even though the migrants did not decide the type of educational program that they wanted to have at their camps, they participated in the decision regarding the shows that they wanted to watch on the television-—they chose between comedies, Mexican music, Tex-Mex music, or contemporary latino music. Previous visits to get acquaintance with the migrant families and the disposition to help them with referrals for services or in doing some of their tasks, the openness to inteact with the children, and the inteest in talking and sharing a meal with some families, wee spontaneous activities that became very important in orde to be trusted and accepted by the community, which in this study seem tohave developed the Opinion that they were coming to the educational meeting to collaborate with the educator and to show appreciation. For these reasons the participatory approach of AIDS edueation is recommended for migrant families and should be implemented as part of an entertainment activity of inteest to the migrants and with attention paid to get the educator to be known and trusted by the migrant families. This approach was more effective for the communication Of information about prevention of AIDS and providing a forum for the discussion of AIDS and its related issues at a community and family level. This allowed the participants to integrate the information to their expeiences, and could have an impact on social norms or in the perception Of social norms about AIDS 155 related issues. It is also important to note that since the individual attitudes studied in their potential relationship with knowledge about AIDS were found to be related with eithe general knowledge about AIDS or knowledge about prevention, future educational interventions should promote more positive attitudes towards homosexuals, drug users and people with AIDS. A program that will continue with the effort initiated with the current research will be implemented during the Summe Of 1992, tlnrough Cristo Rey Community Center, and sponsored by the HIV/AIDS Prevention and Intevention Section of the Michigan Department of Public Health. This year, each Of the camps included in the previous study, and four new camps will be visited and the people older than 13 years Old will be interviewed regarding their participation in the educational program implemented last Summe, and about knowledge about AIDS. 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APPENDICES APPENDIX A Appendix A Format and Content of the Invitation ; LES ESPERAMOS ! 3 NO nos fallen! WE ARE GOING TO HAVE A GOOD TIME! g 1.144. "III/swath rim! Ha- I' ', mks-«laminammw mu 4 5;: y . )2. FAMILIA , VBNGAN A on r m a. ‘1‘ 0"? 1.0‘ vroaos uusrcms on: o {A mu um ocean r «o 0 ”do to". O T. .7 “to, a runners as!" r" t 4 IO ”beg, noeuru u roam census Tatiana II case Ila canola ea se cannpauearo at «Its . a la: Como la casa dc canals qua tees-nos no es alienate-eat: grade y cease-es tenet algeaos refuges-ies. eats-or iavilaado a algae: families suistireadtaaeeabonyamssuistirm dis 0 e are Incl-a. Es my item qua erred y :- familia estate- eldtaylalnonqeelesfeeasignadqueeuuesm esta iavitaciOa. 162 APPENDIX B Appendix B Key Messages Provided in the Presentations 1. Basic information about AIDS A. Diffeence between HIV and AIDS B. How the virus affect the human organism C. Spectrum of infection D. Symptoms of infection E. Symptoms Of the disease 11. Routes of transmission of the virus A. Blood B. Semen C. Vaginal cervical secretions 111. Real vesus hypothetical risk A. Casual contact and contagion B. Other body fluids IV. Issues related to AIDS prevention A. Communication between partnes B. HIV test ' C. Othe as mentioned by the participants V. Questions 163 APPENDIX C Appendix ’ C Summary of Content of Public Service ADVERTISEMENTS All these public health advetisements were developed by the Department of Public Health, they are in Spanish and played by actors with Mexican traits. PSAs 1."Anita": This advertisement shows a Hispanic woman explaining that AIDS is a problem for Hispanics and showing a picture of an adolescent (he niece) who looks healthy, but who died Of AIDS. 2. "Words": This advertisement shows diffeent men which have been diagnosed having AIDS explaying what is happening to them. 3. "Stand & Deliver": The same actors who played the role of the students in the movie "Stand and Delive", are showed having a convesation clarifying misconceptions about ways through which AIDS is and is not transmitted. 4. ”Morales”: Pueto Rican actor Fssai Morales talks about the risks of sharing needles for drug use, tatoos, or ear piecing for the transmission of AIDS. 164 APPENDIX D Appendix D CONSENT FORM You are been asked to collaborate in a study about methods Of education about AIDS for the migrant population in Michigan. This study is sponsored by the AIDS awareness Office of Cristo Rey Community Center, the Special Office Of AIDS Education of the Public Health Department, the American Red Cross and the Psychology Department at Michigan State Univesity. The information that will be gatheed in this survey will help in the development of effective methods of education about AIDS. Your answers are really important and valuable, and your participation should be COMPLETELY VOLUNTARY. Thee will be NO PENALTIES for anyone to refuse to participate in the study. The completion Of the questionnaire would not take more than 20 minutes, if you follow the educator as she reads the instrument aloud. If you work on the questionnaire independently, you might finish in 10 or fifteen minutes. Even though the topic Of the questionaire that you will be asked to answe is AIDS, you will not find any questions about your individual sexual behavior, or about drugs and/or alcohol use. The items that you will be anweing are about knowledge about AIDS, and your attitudes and beliefs about cetain issues related to AIDS. Howeve, if you feel uncomfortable with an item or question you may CHOOSE NOT TO ANSWER THE ITEM. You could also CHOOSE TO WITHDRAW FROM THE STUDY at any time without any penalty. THIS IS A CONFIDENTIAL SURVEY. This means that you will not be asked to write your name, or any information that could be used to identify you. An identification numbe has been assigned to each questionnaire for the purpose of matching the responses from each subject to his/he responses in a second exercise. Howeve, since the educators are not going to have a list matching the identification numbers to names, it will be IMPOSSIBLE TO IDENTIFY YOUR ANSWERS. THE RESPONSES ARE ANONYMOUS. This means that the educators and researchers will not know the name Of any Of the respondents. If you understand this information and agree to complete the questionnaire, please sign the following statement: " I have been informed Of my rights as a participant in the study and agree to collaborate answering a questionnaire“ If you have any questions and/or concerns about the study Milagritos Gonzilez and/or Robert Patifno will be glad to talk to you, and if you would like to know the results Of the study you can contact the Cristo Rey AIDS Awareness Office (372-4700). YOUR COLLABORATION IS REALLY APPRECIATED. 165 Appendix D CONSENT FORM FOR PARENTS OR GUARDIANS I understand the information that was read to me about the rights of the participants in the study and decided that my son and/or daugther can participate providing data to the educators given that his/her participation in the study only implies the completion of a questionnaire and decisions regarding a set of cards, and that the information will be kept confidential and anonymous and that my children can refuse to answer any item and/or resign from the study at any time without any consequence. My child age is and my name is 166 APPENDIX E Appendix E ENCLEST A PARA TRABAJADORES AGRICOLAS SOBRE EL SIDA Las siguientes preguntas buscan conocer mejor qué piensan y qué saben los trabajadores agricolas hispanos sobre el SIDA/AIDS. Usted solamente tendra que escribir un circulo alrededor de su respuesta. No escriba su nombre en el cuestionario. Las respuestas son completamente confidenciales (nadie sabra qué usted respondio) y anonimas (nadie sabra quién contesto cada cuestionario). Si tiene alguna duda sobre la manera de responder alguna secci6n de este cuestionario o si no entiende la pregunta, por favor pidale a uno de los educadores que le explique lo que tiene que hacer. I. Lea cada una de las siguientes declaraciones e indique si cada una es CIERTA O FALSA, circulando su respuesta. ‘ 1. Al presente no hay cura para el SIDA. CIERTO FALSO 2. Una mujer embarazada que tiene el virus del CIERTO FALSO SIDA puede pasarlo a su bebé sin que este haya nacido todavia. 3. Una persona puede infectarse del virus de SIDA si... a. ...trabaja cerca de alquien infectado(a) con el virus CIERTO FALSO del SIDA. b. ...asiste a la escuela con alguien infectado(a) con CIERTO FALSO e1 virus del SIDA. c. ...una persona con el virus del SIDA le estornuda CIERTO FALSO cerca. d. ...comparte platos, tenedores o vasos CIERTO FALSO con alguien que tiene el virus del SIDA. e. ...usa bafios publicos. CIERTO FALSO f. dona o recibe sangre en una clinica. CIERTO FALSO g. ...besa a una persona con el virus del SIDA en la CIERTO FALSO mejilla. h. ...comparte agujas para inyectarse CIERTO FALSO drogas con una persona infectada con el virus del SIDA. i. ...tiene relaciones sexuales con una CIERTO FALSO persona infectada con el virus del SIDA. 167 168 II. Lea, por favor, [as siguientes oraciones y para cada una indique cuan dc acuerdo 0 en desacuerdo esta usted con cada una, circulando el numero correspondiente: 4=Muy de acuerdo, 3=De acuerdo, 2=En desacuerdo y 1=Muy en desacuerdo. Muy De acuerdo En desacuerdo Muy De acuerdo en desacuerdo 1. Las personas que tienen 4 3 I SIDA deben ser separadas de la comunidad. 2. El SIDA no es una 4 3 l enfu'medad muy comi'm entre los hispanos. 3. El SIDA es un 4 3 l castigo de Dios. 4. Las agujas deberian ser 4 3 l regaladas a los drogadictos para evitar que se contagien. 5. Si una persona se infecta 4 3 2 1 con SIDA , es porque ha llevado a cabo oonductas inmorales. 6. Las victimas del SIDA 4 3 l representan un 81111” no atendido en nuestra sociedad. 7. Yo recibiria en mi casa a 4 3 2 1 una persona que tiene SIDA. 8. Yo no quisiera que una 4 3 2 l persona con SIDA me tocara. III. Circule el m’rmero que mejor indica cuan efectivo cree usted que es cada uno de los siguientes métodos para prevenir el SIDA. El m’rmero 3= Muy efectivo, el 2=Mas o menos efectivo, el l=Nunca efectivo. 1. No tener relaciones sexuales. 2. Usar un condon. 3. Limpiar Ias agujas con cloro antes de inyectarse (h'ogas. 4. Usar un espermicida. 5. Tener relaciones solo con una persona que conocemos bien. MUY EFECTIVO 3 3 MAS O MENOS EFECT'IVO 2 2 2 NUNCA EFECTIVO l l l 169 IV. Escriba la respuesta a cada una de las siguientes preguntas. 1. (Que edad tiene usted? 2. Circule el ultimo grado de educacién que usted completo. Escuela primaria: K 1 2 3 4 5 6 7 8 Escuela seetmdaria: 9 10 l I 12 Universidad/Colegio: l 2 3 4 5 6+ Escuela vocacional: l 2 3 4 3. Circule el idioma que usted prefiere hablar Ingles Espafiol Espafiol e inglés Otro (mencione, por favor) 4. Circule cual es su sexo: Femenino Masculino 5. Circule su estado civil: casado/casada soltero/soltera viviendo jtmtos separado/separada viudolviuda divorciado/divorciada 6. Circule el grupoétnico/cultural al cual usted pertenece a. mexicano/mexicana b. mexicano-americano/mexicana—americana c. chicanolchicana d. cubano/cubana e. puertorriquefio/puertorriquefia f. suramericano/americana g. otro (mencione) V. Lea, por favor, las siguientes oraciones y para cada una indique cuan de acuerdo 0 en desacuerdo esta usted con cada una, circulando el m’rmero correspondiente: 4=Muy de acuerdo, 3=De acuerdo, 2=En desacuerdo y 1=Muy en desacuerdo. Muy De awerdo En desacuerdo Muy De acuerdo en desacuerdo 1. Me sentiria incomodo 4 3 2 I si estuviera en el bafio y hubiera un homosexual. 2. No me gustaria vivir 4 3 2 1 con un homosexual de vecino. 3. Los homosexuales 4 3 2 I nacen siendo asi. 4. La policia deberia arrestar 4 3 2 l a los homosexuales. 170 Muy De acuerdo En desacuerdo Muy De acuerdo en desacuerdo 5. Los adictos a drogas son 4 3 2 l personas que no saben manejar sus problemas. 6. hos/Ias adictos(as) a 4 3 2 l drogas son criminales. 7. Es imposible ser 4 3 2 I amigo(a) de un(a) adicto(a). 8. A las personas que usan 4 3 2 I drogas e1 gobiemo Ies debe quitar los hijos. 9. Una persona que usa 4 3 2 1 drogas puede dejar de ser adicto. 10. A una persona 4 3 2 l homosexual no se le debe permitir criar a sus hijos. VI. Responda SI 0 NO a las siguientes preguntas 1. (Le interesaria a usted recibir mis informacién escrita sobre el SIDA? 81 NO 2. (;Le gustaria distribuir copias de informacion escrita sobre el SIDA a personas que usted conoce? SI NO 3. (Le interesaria recibir mas informacion sobre condones y SI NO espermicidas? 4. {Le interesaria traer a personas que usted conoce a recibir informacion sobre el SIDA de parte de los educadores? SI NO 5. (Ha oido usted informacion sobre el SIDA por radio? SI NO 6. (,Ha visto usted anuncios de television sobre el SIDA? SI NO 7. (;Ha Ieido usted informacion escrita sobre el SIDA? SI NO 8. Circule alguna otra filente de la cuil usted haya recibido informacién sobre el SIDA: a. Amigos b. Clinicas c. Escuela d.Laboratorio e. Farmaceutico MUCHISIMAS GRACIAS POR SU COOPERACION AL RESPONDER A ESTE CUEST'IONARIO. SURVEY FOR MIGRANT WORKERS ABOUT AIDS The following questions try to better understand what Hispanic migrant workers think and/or know about AIDS. You will only have to draw a circle around your answer. Do not write your name in the questionnaire. The answers are completely confidential (nobody will know what you answered) and anonymous (nobody will know who answered each questionnaire). If you have any doubts about the way to answer any of the sections of this questionnaire, or if you do not understand any item, please ask one of the educators to explain the task to you. I. Read each of the following statements and indicate if they are TRUE OR FALSE. 1. Currently there is no cure for AIDS. TRUE FALSE 2. A pregnant woman infected with the AIDS virus TRUE FALSE could infect her baby before it is born. 3. A person could get infected with the AIDS virus fi'om... a. ...working with someone infected with TRUE FALSE the AIDS virus. b. ...going to school with someone infected TRUE FALSE with the AIDS virus. c. ...someone infected with AIDS sneezes TRUE FALSE nearby. (1. ...sharing dishes, forks or cups with TRUE FALSE someone infected with the AIDS virus. e. ...using public restrooms. TRUE FALSE f. ...giving or receiving blood at a clinic. TRUE FALSE g. ...kissing someone infected with the TRUE FALSE AIDS virus on the cheek. h. ...sharing needles with a drug addict TRUE FALSE infected with the AIDS virus. i. ...having unprotected sexual relationships TRUE FALSE with someone infected with the AIDS virus. 11. Read each of the following statements and for each one, please indicate how much do you agree andlor disagree, by drawing a circle around the number corresponding to your answer: 4=Strongly agree, 3: Agree, , 2=Disagree, l=Strongly disagree. Strongly Agree Disagree Strongly agree disagree 1. People with AIDS should be isolated 4 3 2 I from the community. 171 172 Strongly Agree Disagree Strongly agree disagree 2. AIDS is not a common disease among 4 3 2 l the Hispanics. 3. AIDS is a punishment from God. 4 3 2 I 4. Needles should be distributed to drug 4 3 2 I addicts to stop the spread of the disease. 5. If someone gets infected with the AIDS 4 3 2 1 virus it is because she/he have been behaving immorally. 6. AIDS victims are a forgotten group of 4 3 2 1 the society. 7. I would open my house to someone 4 3 2 l with AIDS. 8. I would not want a person with AIDS 4 3 2 l to touch me. III. Circle the number that best indicates your perception of how effective each of the following methods is to prevent infection with the AIDS virusz3=Very effective, 2=Somewhat effective, l=Never effective VERY EFFECTIVE 1. Not to have sexual relationships. 3 2. Using a condom. 3 3. Cleaning the needles with clorox 3 before injecting drugs. 4. Using an spermicide. 3 5. Having sexual relationships only 3 with someone you know well. SOMEWHAT NEVER EFFECTIVE 2 2 EFFECTIVE I I I IV. Answer each of the following questions. I. How old are you? I73 2. Circle the last level of education that you completed. Elementary school: K I 2 3 4 5 6 7 8 Secundary school: 9 10 ll 12 University/College: I 2 3 4 5 6+ Vocational school: I 2 3 4 3. Circle the language that you prefer to speak: a. English b. Spanish c. English and Spanish d.Other 4. Circle your gender: a. Female b. Male 5. Circle your mrital status: a. married b. single c. living together (I. separated e.widow/widower f. divorced 6. Circle the ethnic/cultural group to whom you belong: a. Mexican b. Mexican-ameriean c. Chicano d. Cuban e. Puertorican f. South-American g. Other (mention) V. Please read each of the following statements and indicate how much do you agree andlor disagree with each one, drawing a circle around the corresponding number: 4=Strongly agree,3=Agree, 2=Disagree, 1=Strongly disagree. Strongly Agree Disagree Strongly agree disagree I. I would feel uncomfortable 4 3 2 1 if] were in the bathroom and a homosexual were there too. 2. I would not like to have a 4 3 2 l homosexual as my neighbor. 3. Homosexuals have a mental 4 3 2 1 disease. 4. The police should arrest 4 3 2 1 homosexuals. 5.Drugusersarepersonsthatdo 4 3 2 1 not know how to handle their problems. 6. Drug addicts are criminals. 4 3 2 I I74 Strongly Agree Disagree Strongly agree disagree 7. It is impossible to be a friend 4 3 2 1 of a drug addict. 8. The goverment should separate 4 3 2 l the children of drug addicts from their parents. 9. A drug addict cannot stop 4 3 2 1 his/her addiction. 10. A homosexual person should 4 3 2 1 not be allowed to take care of his children. VI. Answer YES or NO to each of the following questions. I. Would you like to receive more written information about AIDS? YES NO 2. Would you like to distribute copies of written information about YES NO AIDS to people that you know? 3. Would you like to receive more information about condoms and/or YES NO spermicides? 4. Would you like to bring people that you know to receive information YES NO about AIDS from the educators? 5. Have you heard information about AIDS on the radio? YES NO 6. Have you seen AIDS advertisements on television? YES NO 7. Have you read written information about AIDS? YES NO 8. Circle any other source from which you have received information about AIDS? a. Friends b. Clinics c. School d. Laboratories e. Pharmacist f. Other THANK YOU VERY MUCH FOR YOUR COOPERATION ANSWERING THIS QUESTIONNAIRE. APPENDIX F Appendix F Examples of the color coded cards GREEN CARD ID number Group A B C Por favor, recuerde traer esta tarjeta y llevar a cabo la conducta que se menciona en la misma, si usted esta de acuerdo con ella. La FECHA para traer la tarjeta es Por cada tarjeta que usted traiga de vuelta llevando a cabo la conducta mencionada en la misma usted tendra derecho a un boleto para la rifa de un abanico eléctrico que se llevara a cabo ese dia. CONDUCTA: DESEO RECIBIR MAS IN F ORMACION ESCRITA SOBRE EL SIDAIAIDS. YELLOW CARD: ID number Group A B C Por favor, recuerde traer esta tarjeta y llevar a cabo Ia conducta que se menciona en la misma, si usted esta de acuerdo con ella. La FECHA para traer la tarjeta es Por cada tarjeta que usted traiga de vuelta llevando a cabo la conducta mencionada en la misma usted tendra derecho a un boleto para la rifa de un abanico eléctrico que se llevara a cabo ese dia. CONDUCTA: ME GUSTARIA RECIBIR COPIAS DE MATERIALES ESCRITOS SOBRE EL SIDAI AIDS PARA DISTRIBUIRLOS A PERSONAS QUE CONOZCO. 175 176 GRAY CARD: ID number Group A B C Por favor, recuerde traer esta tarjeta y llevar a cabo la conducta que se menciona en la misma, si usted esta de acuerdo con ella. La FECHA para traer 1a tarjeta es Por cada tarjeta que usted traiga de vuelta llevando a cabo la conducta mencionada en la misma usted tendra derecho a un boleto para la rifa de un abanico eléctrico que se llevara a cabo ese dia. CONDUCTA: TRAIGO A ALGUI EN QUE CON OZCO PARA QUE USTEDES LE INFORMEN SOBRE EL SIDAIAIDS. RED CARD: ID number Group A B C Por favor, recuerde traer esta tarjeta y llevar a cabo la conducta que se menciona en la misma, si usted esta de acuerdo con ella. La FECHA para traer la tarjeta es Por cada tarjeta que usted traiga de vuelta llevando a cabo la conducta mencionada en la misma usted tendra derecho a un boleto para la rifa de un abanico eléctrico que se llevara a cabo ese dia. CONDUCTA: QUIERO RECIBIR MAS INFORMACION SOBRE CONDONES Y ESPERMICIDAS. 177 BLUE CARD: ID number Group A B C Por favor, recuerde traer esta tarjeta y llevar a cabo Ia conducta que se menciona en la misma, si usted esta de acuerdo con ella. La FECHA para traer la tarjeta es Por cada tarjeta que usted traiga de vuelta llevando a cabo la conducta mencionada en la misma usted tendra derecho a un boleto para la rifa de un abanico eléctrico que se llevara a cabo ese dia. CONDUCTA: NO ESTOY INTERESADO(A) EN LLEVAR A CABO NINGUNA DE LAS CONDUCTAS MENCIONADAS EN LAS TARJETAS, PERO DESEO OBTENER UN BOLETO PARA LA RIFA DEL ABANICO. APPENDIX G Appendix G Tables Table G-l. Item-to correl ti n for re n eneralkn wled a out AID . Items Item-total correlation 13a. Currently there is no cure for AIDS. .34 13b. A pregnant woman infected with the AIDS virus could infect her .31 baby before it is born. * A person could get infected with the AIDS virus from... 130. ...working with someone infected with the AIDS virus .52 13d. ...going to school with someone infected with the AIDS virus .42 I36. ...someone infected sneezes near you .30 13g. ...kissing someone infected with the AIDS virus in the cheek .26 13h. ...sharing needles with a drug user infected with the virus .3 1 131. ...having unprotected sexual relationships with someone infected .28 178 Table G-2. Percentage of correct and incorrect responses on each item by each group. Groups NEC CG DL PL Items Y N Y N Y N Y N 1. Currently there is no cure for AIDS. 67% 33% 68% 27% 77% 21% 89% 9% 2. A pregnant woman infected 96 % 4% 93 % 7% 92 % 8% 97% 3% with the AIDS virus could infect her baby before it is born. 3. A person could get infected with the AIDS virus from... a. ...working with someone infected with 17% 79 % 17% 83 % 15% 85 % I I % 89 % the AIDS virus. b. ...going to school with someone 13% 83 % 12% 85% 8% 90% 14% 86% infected with the AIDS virus. c. ...someone infected with AIDS sneezes 25% 75 % 22% 73 % 8% 92 % 3 % 97 % (1. ...sharing dishes, forks or cups with 21% 75 % 22% 76 % 13% 87 % 11% 89 % someone infected with the AIDS virus. e. ...using public restrooms. 29% 71 % 29% 66 % 15% 82 % 9% 91 % f. ...giving or receiving blood at a clinic. 88% 8 % 83% 12 % 85 % 15 % 63% 31 % g....kissing someone infected with the 88% 13 % 7% 93 % 8% 90 % 3 % 94 % AIDS virus on the cheek. h. ...sharing needles with a drug user 100 % -- 88 % 7% 95 % 5% 98 % 3% infected with the AIDS virus. i. ...having unprotected sexual 100 % --- 85 % 12% 92 % 8% 94 % 6% relationships with someone infected with the AIDS virus. Note. The percentages highlighted show the correct answers to each item. NEC=Non-equivalent control group, CG=control group, DL= didactic learning, PL=participatory learning 179 Table G-3. Pergntages on Knowledge of prevention . Conditions Control Participatory Didactic Non-equivalent Effectiveness NE SE VE NE SE VE NE SE VE NE SE VE items I. Nottohavesexual 32 29 37 15 28 54 6 31 57 21 25 54 relationships. 2. Usingacondom. 29 37 32 5 28 67 6 49 43 17 38 46 3. Cleaningneedles 51 27 22 10 23 67 17 20 60 38 29 33 with clorox if using drugs. 4. Usingan 42 29 22 3 44 54 9 46 43 25 46 17 spermicide. 5. Having sexual 12 29 46 8 31 54 31 26 40 8 21 67 relationship only with someone that you know well. Table 04. Frequency 9f @19me 9f mhaviors. Behavioral cards RD GRE YE GRA Responses YES 44 59 50 9 NO 53 7 38 47 88 180 Table G-S. Means on Am uggs 19m @QQIQ with AIDS Groups Items (13 PL DL E '1. People with AIDS should be 2 2 3 3 isolated from the community. ‘2. AIDS is not a common disease 2 2 2 2 among the Hispanics. ‘3. AIDS is a punishment from God. 3 3 3 3 4. Needles should be distributed to 3 2 2 2 drus addicts to stop the spread of the disease. *5. If someone gets infected with the 2 3 2 3 virus it is because she/he have been behaviong immorally. 6. AIDS victims are a forgotten group 3 2 2 2 of the society. 7. I would open my house to someone 4 2 2 2 with AIDS. '8. I would not want a person with 3 4 3 3 AIDS to touch me. * The responses for these items are recoded (4=strongly disagree, 3=disagree. 2=agree and 1=strongly agree). Higher scores in all the items correspond to positive attitudes. 181 TableG-6.M nA‘ w h x I Groups Items (13 PL DL I~E 1. I would feel uncomfortable 2 2 2 2 if I were in the bathroom and a homosexual were there too. 2. I would not like to have a 2 3 2 2 homosexual as my neighbor. 3. Homosexuals have a mental 3 3 2 3 disease. 4. The police should arrest 2 3 3 3 homosexuals. 10. A homosexual person should not 2 2 2 2 be allowed to take care of his children. Note. The responses to all of these Items were recoded (4=strongly disagree. 3=disagree. 2=agree and 1$trongly agree). Higher scores mean positive attitudes to homosexuals. Table G-7. WW Groups Items (1': PL DL PE: 5. Drug users are persons that 2 2 2 2 do not know how to handle their problems. 6. Drug addicts are criminals. 2 2 2 2 7. It is impossible to be a friend of a 2 3 2 3 drug addict. 8. The government should separate 2 2 2 3 the children of drug addicts from their parents. 9. A drug addict cannot stop his/her 3 2 2 2 addiction. Note. The responses to all of these items were recoded (4=strongly disagree, 3=disagree. 2=agree and 1=strongly agree). ngher scores mean positive attitudes toward drug users. 182 aRIES "‘iiiiiiiiiiiiiiii 312