a E... 3. (.3; 9. ‘ V . . 3 JithHl.hfi lliikw. 3...: Punk 4135.53... : 33.9.. 1:21;; \ y .. an»: s c. u». hv. \léha). Kira-0.8.0. , .iz... : 1 39 Run. r ‘3‘ ha ‘9 t. {25%- : 9...}. i. . n. Jnmnl 2.... I _ m .3. l g: '2} ’: 3: r" {f ’9 .x . r2...“ .. . :1}; :3... 1.1:... YE. 5 ‘I‘ ‘19.. L‘fl‘l- luv: 3.3.2.4.: 3 ‘ Lanny-uni. . . . 313;: V n ‘ ‘ 9!}..331: 9.3.43. II . v: A 1‘? I It‘d?!“ . n .o "Hit ‘ s \ 2. , . 2r....fl.d..x . . .y 3 Q A ’1' s -2 :2 .yyll ‘ ., l//////////////////////////////////////////l This is to certify that the thesis entitled PHYSICIAN ROLE CONFLICT IN RURAL MEDICINE: PATIENT ADVOCATE OR PUBLIC AGENT? presented by DAVID BRIAN SCHINDERLE has been accepted towards fulfillment of the requirements for INTERDISCIPLINARY PROGRAMS IN MASTER OF ARTS degree in HEALTH AND HUMANITIES ///~3’/7 91 LEONARDMETEEEZSTPIL D. Date / / 0-7639 MS U is an Affirmative Action/Equal Opportunity Institution LIBRARY Michigan State Universlty PLACE ll RETURN aoxmmwommum ywrncord. TO AVOID FINES Mom on or Mon duo duo. DATE DUE DATE DUE DATE DUE MSU ISM Manama Action/Emil Oppommlly Inultulon mans-m PHYSICIAN ROLE CONFLICT IN RURAL MEDICINE: PATIENT ADVOCATE OR PUBLIC AGENT? By David Brian Schinderle A THESIS Submitted to Michigan State University in partial fulfillment of the requirements for the degree of MASTER OF ARTS Department of Interdisciplinary Programs in Health and Humanities 1994 ABSTRACT PHYSICIAN ROLE CONFLICT IN RURAL MEDICINE: PATIENT ADVOCATE OR PUBLIC AGENT? By David Brian Schinderle This thesis explores the tension between the rural physician's obligations to act both as a patient advocate and as a steward of the community's resources. In rural settings, the financial status of the local hospital, the personal relationships between the physician and patients, and the vulnerability of the physician to social pressures all can combine to put these two duties at loggerheads. The first section of this thesis examines each of these sociological features in detail. Next the issue is evaluated from the philosophical perspectives of autonomy, utility, and justice. I conclude that the prescriptions that these abstract principles generate fail to address the unique social dynamics of the rural setting. Alternatively, Rational Democratic Decisionmaking, a method that relies on community-determined guidelines to help physicians allocate medical resources, is advocated. This approach provides context—appropriate specificity and balances various relevant moral claims, yet also respects general philosophical principles. Copyright by DAVID BRIAN SCHINDERLE 1994 To my wife, Michele iv ACKNOWLEDGMENTS I am delighted to recognize the members of my Master's committee for their valuable assistance in preparing this manuscript. The members include Nan Johnson, Ph.D., Dept. of Sociology; William Wadland, MD, MS, Chairperson, Dept. of Family Practice; Judith Andre, Ph.D., Center for Ethics and Humanities in the Life Sciences; and Leonard Fleck, Ph.D., Center for Ethics and Humanities in the Life Sciences. Dr. Fleck served as Thesis Advisor, and his guidance merits special thanks. Critical review of preliminary drafts was also provided by Peter Vinten-Johansen, Ph.D., Dean Havron, MD, and each of my classmates in the Spring, 1994, offering of the Capstone Course for the Interdisciplinary Programs in Health and Humanities. Brian Brown, M.A., a Ph.D. candidate in Anthropology, helped develop the general topic for the thesis. I also would like to thank my parents, Robert and Martha Schinderle, for a lifetime of encouragement. Education has always been a top priority in our home, and my parents have made great sacrifices so that each of their children could achieve. Finally, I am indebted to my wife, Michele. If not for her steady patience and selfless support, producing this thesis would have been a much more difficult task. PREFACE When I entered medical school in the fall of 1992, it was with a certain amount of regret. Although I was certain I wanted to become a doctor, I was disappointed that my education would now become so focused. In particular I wanted to continue to study philosophy, 3 field I had dabbled in as an undergraduate and had very much enjoyed. Fortunately, Michigan State University recognizes that the social sciences and humanities can enrich the field of medicine, and the University offers graduate programs that study those contributions. Consequently I was able to enroll as a Master's student in the Interdisciplinary Programs in Health and Humanities while concurrently pursuing my medical degree. As one might expect, one requirement of IPHH is that its students compose theses that have an interdisciplinary focus. I approached that task by combining my professional interest in rural medicine with my personal interest in medical ethics. What emerged was a topic that draws upon both sociology and philosophy: how do the social contours of rural medical practice influence the ethical dilemmas that face rural doctors? Subsequently, I narrowed my focus to the strain between rural physicians' duties to individual patients as their advocates, and their duties to the community at large as stewards of its health care resources. Judith Andre has written that role morality is a complex instance of ordinary morality, and that consequently role dilemmas require no special moral frameworks for their resolution, (1991). I wanted to see if an vi examination of an issue as contextually rich as rural physician role conflict would bear out that notion. After exploring the nature of the dilemma, I concluded that conventional moral principles failed to engage various social features that are critical to the problem. But this should not be interpreted as a rejection of Andre's position. If there is one thing that l have learned since beginning the Master's program, it is that medical personnel, the general public, and even many philosophers share a basic frustration with philosophy's tendency to lack practical utility. The reason for this dissatisfaction, I am convinced, stems from the discipline's reverence for remote, universal constructs that cannot account for the particular moral details that are central to ethical issues. These details cannot be ignored. In fact, I would argue that ethical dilemmas are constituted by the very context in which they are embedded. As a result, moral frameworks that attempt to achieve objectivity by abstracting away from detail often seem not to "fit" real- life situations. What we need to resolve role conundrums is not a special framework, then, but a sensitive framework. We need moral tools that are practical, flexible, and versatile, not rigid, abstract, and distant. Andre, feminist philosophers, many medical ethicists, and others who practice applied philosophy all recognize this reality. So when Andre writes that no special moral framework is required to resolve issues of role conflict, she means that the moral instruments we apply to ordinary ethical scenarios should have the same characteristics as frameworks that can ameliorate dilemmas that are especially context-laden: they should be capable of addressing the morally-important yet contextually-unique features that vii comprise and shape the problem itself. This idea is one of the points that I hope readers will carry away from this thesis. I advocate Rational Democratic Decisionmaking as a solution to rural physicians' tension between their roles as patient advocates and their roles as public agents because it achieves what we have just discussed. Because it opens up ethical issues to moral debate and allows communities to forge their own solutions, the outcomes it produces are custom-tailored to the specific problems it is employed to address. And while this approach may be rather unconventional, its utility is hardly limited to special circumstances. Although I will save such an argument for a future project, or for another author, I see no reason why Rational Democratic Decisionmaking could not work in any setting, at any level, for any moral dispute. In my opinion, Rational Democratic Decisionmaking exemplifies how both "ordinary" moral dilemmas and role dilemmas could be resolved through the very same approach. I hope that this paper will provide readers with a better understanding of what it is like to practice medicine against the backdrop of the rural social milieu. Additionally, I want to demonstrate how that milieu can generate ethical dilemmas for physicians, and why it is necessary to approach these (and all) dilemmas through moral constructs that recognize the centrality of context. Finally, I hope that this thesis will point out the advantages of an interdisciplinary perspective on ethical problem-solving, and that it will emphasize the general importance of conversation between the various fields of academic study. viii TABLE OF CONTENTS INTRODUCTION BACKGROUND MEDICINE IN THE RURAL COMMUNITY THE ETHICS OF PHYSICIAN ROLE CONFLICT The Physician as Patient Advocate The Physician as Public Agent INTERDISCIPLINARY APPROACHES CHAPTER ONE: THE SOCIAL CONTEXT THE FINANCIAL INSTABILITY OF RURAL HOSPITALS THE COHESIVE NATURE OF RURAL COMMUNITIES RURAL PHYSICIANS' VULNERABILITY TO SOCIAL CONTROLS CHAPTER TWO: PHILOSOPHICAL PERSPECTIVES AUTONOMY UTILITY JUSTICE Libertarian Justice Egalitarian Justice CHAPTER THREE: RATIONAL DEMOCRATIC DECISIONMAKING THEORETICAL CONSIDERATIONS THE PROCEDURE ADVANTAGES OF RATIONAL DEMOCRATIC DECISIONMAKING OBJECT IONS TO RATIONAL DEMOCRATIC DECISIONMAKING SUMMARY AND CONCLUSIONS LIST OF REFERENCES ix INTRODUCTION The goals of this paper are (I) to explore how the social dynamics of rural communities affect the nature of many rural physicians’ dilemma between their roles as both patient advocates and public agents, and (2) to ameliorate this conflict by finding a method that has moral legitimacy and is suited to the particular context of the rural arena. The first chapter of the paper sketches a picture of what it is like to practice medicine in many rural towns, and how ethical dilemmas arise from the nature of these communities. In the second part of the paper, we evaluate how effectively several classic moral constructs address these conflicts. Ultimately each proves to be inadequate, but their weaknesses reveal the characteristics that a successful approach to solving this problem must possess. Finally, the third chapter examines the utility of a "bottom-up" approach to resolving these moral conflicts that has been suggested by Leonard Fleck. This method, called Rational Democratic Decisionmaking, can successfully balance the various moral values pertinent to an ethical issue and produce outcomes that are context-sensitive, and yet still remain consistent with universal moral principles. BACKGROUND In order to demonstrate how rural social dynamics can generate role dilemmas for rural physicians, we will have to examine the issue from the perspectives of both sociology and ethics. A sociological look at rural life 2 can help us understand how these role tensions are shaped by the social characteristics of rural communities. The field of moral philosophy can help us arrive at methods to alleviate their role strain by offering various theoretical frameworks through which the problem can be assessed. However, if these philosophical approaches are to be of any real use, they must account for the sociological features of the rural community, since these characteristics are primary contributors to the physician's role tension. Thus, a potential solution to the problem of rural physicians' divided loyalties must be informed by the disciplines of both sociology and philosophy. MEDICINE IN THE RURAL COMMUNITY The literature in the fields of medical and rural sociology, as well as descriptive work published in medical journals, has described the practice of medicine in rural areas. The character of rural medicine is shaped by the unique social constitution of the rural town. Toennies (1963) introduced the term gemeinschaft to capture the essence of rural communities, stating that often they are "based on friendship, neighborliness, and on blood relationships," (p. 4-5). The role of the small town physician grows out of this cohesive social milieu. Klein (1976), in a study of the attitudes of the members of a rural town in Oregon toward the health profession, found that among his subjects, "most often mentioned was the desire that the practitioner be a friendly, house- calling, family doctor," (p. 41). Griffin, et. al. (1990) state that "strong community ties and familiarity with the people in an area can contribute significantly to the success of a rural practice," (p. 30). Hassinger, et. al. (1980) interviewed physicians in a twenty-county area of rural Missouri 3 and in the metropolitan center of Kansas City, and found that "for rural physicians, the outstanding difference focused on the quality of physician-patient relationships--knowing the patient better, longer, and in the context of the social setting," (p. 73). Magaro (I 994) cites one rural doctor who says that he and his colleagues are so familiar with their patients that many times they can diagnose health problems over the phone, (p. 16). Cohesiveness and intimacy, then, are among the salient features of medical practice in rural communities. Some authors describe how ethical considerations can stem from the sociological contours of rural communities. Nelson and Pomerantz (1992) conclude that "complex ethical issues in health care are just as prevalent (in rural areas) as in urban areas and are dramatically affected by the cultural values of the rural setting," (p. 15). Glusker (1989) reports that rural physicians' and rural hospitals' relationships to patients often requires that the approaches to ethical problems in rural centers be "very different" from the approaches taken in urban centers, (p. 413). Instead of a "hospital ethics committee" approach, he argues that the background of patient-physician interaction allows for a team approach to ethical problems in which the patient, physician, and nurses all collaborate to reach a solution. Flannery (1982) mentions rural doctors' problems with limiting their commitments: because there is a paucity of resources, they feel confused about whether, for lack of a more appropriate authority, rural physicians should provide social services as well as medical care, (p. I 1). Additionally, Flannery points to a lack of anonymity, intense public scrutiny, and an inability to separate personal and professional lives as consequences of "the high visibility of a physician in a small town," (p. 12). All of these features contribute to the difficulty that 4 faces many rural physicians with respect to their conflicting role obligations. THE ETHICS OF PHYSICIAN ROLE CONFLICT Physician role conflict is treated extensively in the ethics literature. In fact, Veatch (1977) states that "one of the most significant issues in medical ethics is the conflict between the physician's duty to the individual and to society," (p. 59). While he is primarily concerned with physicians' financial conflicts of interest, Rodwin (1993) also identifies "conflicts that divide a physician's loyalty between two or more patients or between a patient and a third party," (p. 9). He states that when physicians find themselves in such predicaments they can either play the role of "ideal fiduciary, promoting their patients' interests without regard to those of other parties," or they can play the role of "neutral resource allocators, distributing resources to maximize social benefit or promote some principle of fairness," (p. 159). Rodwin argues that this tension forces physicians to make "tradeoffs" requiring "discretion and subtlety of judgment," and as a result there is a potential risk to patients (p. 160). Wolf (1994) writes that the current movement toward health care reform may sharpen the tension between physicians’ obligations to their patients and their obligations to the larger community. She states that now more than ever it is imperative to clarify doctors' roles as patient advocates in relation to their roles as stewards of their communities‘ resources. The Physician as Patient Advocate. According to Veatch, "historically the Western physician has seen his duty in highly individual terms," (p. 59). Levinsky (1984) argues that this traditional stance should be maintained, stating that "in caring for an individual patient, the doctor 5 must act solely as that patient's advocate, against the apparent interests of society as a whole, if necessary," (p. 1573). He believes that ultimately, both patients and society at large will benefit from this single-mindedness: "a just society must have a group of professionals whose sole responsibility as health-care professionals is to their patients as individuals," (p. 1574). Kimball (1977) argues for the primacy of the interests of individual patients based on what he claims is the very foundation of the physician patient relationship: intimacy. He suggests that to act in a manner other than to promote the interests of patients is not compatible with humane doctoring, (p. 873). Similarly, La Puma and Lawlor (1990) assert that for physicians, "conserving society's resources is secondary or tertiary; if such conservation is brought about by considering some patients expendable or by serving opposing masters of patient and society, the seemingly imminent role of public agent must be acknowledged, appealed, and refuted," (p. 2920). The Physician as Public Agent. In spite of the considerable body of literature that exists to support it, the primacy of the role of patient advocate increasingly is being challenged. Many authors have called for a shift away from physicians' conventional orientation to one that includes considerations of social welfare as well as patient welfare. According to Mooney (1984), "medical ethics lacks a concept of the common good," (p. 183). Mooney wants the scope of medical ethics to be broadened to recognize not only clinical freedom and professional duty, but also a notion of the good of society, (p. 185). Similarly, Daniels (1987), Jecker (I 990), and Mirvis (1992) argue that patient advocacy must be balanced by considerations of fairness and social justice. Daniels argues that in conflicts between patients and society, justice should be of primary 6 concern: "the Ideal Advocate who plays the role of 'gatekeeper' in a just system can nevertheless reassure himself that his denials of care are fair," (p. 78). Jecker also points to justice as a principle that should underlie resolutions to conflicts between society and the individual, stating that "social justice requires instituting global policies and calls for public debate," (p. 138). She feels that such policies will reduce the necessity for physicians to use a situational approach to resolve these tensions, thereby minimizing the potential for inconsistencies and errors of judgment. Mirvis (1992) concurs with Daniels’ and Jecker’s calls for the circumscription of patient advocacy by principles of social justice: “Physicians should be the patient’s advocate for...things that appropriately fall under the umbrella of professional autonomy and that are determined by the public to be available to the patient,” (p. 1349). David Eddy approaches this issue by formulating the notion of "positions,"(l 991 a; 1991b). When people are in the first position, they are healthy and do not know what health services they will need in the future. From position one, they will probably choose to allocate health care resources in the most effective and efficient manner. Because they do not know what their future health care requirements will be, they will simply play the odds. In contrast, people in the second position are patients: they have a disease or injury, and thus know much more about what health resources they want. Consequently, they probably will choose to spend resources such that their immediate needs are met, regardless of whether they would have judged such allocations to be a wise use of resources prior to becoming sick or injured. Thus, the first position represents the perspective of society, while the second position represents the perspective of the individual patient. Eddy wants to point out that 7 "physicians and patients must understand that when they attempt to maximize care from the patient's perspective, they might not only be in conflict with society, but they might well be fostering policies that are not even in their own long-term interest," (1 191b, p. 2406). Menzel (1990) introduces the notion of W, which is similar to Eddy’s idea of positions in that it recognizes that our opinions about health care allocation can be greatly influenced by our present circumstances. He describes prior consent this way: "if individual patients beforehand would have granted consent to the rationing policies and procedures in question (or more clearly yet, if they actually have consented to them), then the appeal of those policies and procedures will rest not merely on attachment to the morally controversial goal of overall aggregate welfare, 'efficiency;' such policies will gain their moral force from respecting individual patients' own will," (p. 10). Smith (1987) places his discussion of the patient advocate vs. public agent dilemma in the context of primary care medicine. He argues that the nature of primary care, in which the physician acts as the patient’s first contact with the health care system, demands that the physician pay attention to social justice as well as personal virtue. He asserts that as opposed to tertiary care, “primary care medicine requires a different set of presuppositions which include, among others, (a) a willingness to say no to some exotic therapies if using them means denying dispensation of available and basic medical care to others in need of them and (b) a clear preference for prevention over other kinds of intervention,” (p. 708). While Smith's article points out a difference between the way specialist and generalist physicians might approach conflicting obligations to individual patients and to society, discussion of possible distinctions 8 between physicians who practice in different sociological settings is lacking in the scholarly literature. INTERDISCIPLINARY APPROACHES Nevertheless, there are a precious few works that pursue the interdisciplinary nature of this topic by addressing both the sociological and philosophical dimensions of rural physicians’ role strain between their duties to their patients and their duties to society. Purtilo and Sorrell (1986) state that rural physicians are faced with many of the same ethical problems as urban physicians, including the “patient advocate vs. public agent” dilemma, but that in rural areas this problem is influenced by distance from other professional facilities, the interrelationships of physicians’ private and professional roles in a small community, the difficulty in preserving confidentiality, and the non- specialized orientation of rural medical practice. They conclude that these factors combine to create a situation in which “the rural physician, perhaps more than any other, is increasingly called upon to be both a professional advocate for the patient and a personal resource for helping protect the broader interests of the community,” (p. 27). Jecker and Berg (1992) highlight the particular problems encountered by rural doctors with respect to allocating medical resources, and describe the strategies that physicians develop for dealing with them. Their main focus is to point out the shortcomings of addressing allocation conflicts through the use of the principles of justice and beneficence, since they argue that in rural communities justice and beneficence may be inseparable because of the blurring between physicians’ professional and personal roles. While the work by these authors represents a beginning, 9 much room for investigation into the topic of rural physician role conflict remains. This paper adds to the work done by Purtilo and Sorrell and Jecker and Berg by providing a more careful analysis of how the social characteristics of rural communities shape the unique nature of the rural physician’s role conflict. I will first argue that the tenuous financial status of many rural hospitals, the relatively close relationships between rural residents, and the vulnerability of rural physicians to social controls imposed by their communities can complicate rural physicians’ dual obligation to serve both as patient advocates and as stewards of their communities’ medical resources. Next I will present this issue from various moral perspectives, and ultimately demonstrate that each approach is inadequate. Finally, I will concretely analyze the potential efficacy of an approach that might help resolve this role conflict. While several authors have submitted abstract suggestions for methods that might assist rural physicians in dealing with this dilemma, none have elaborated upon the mechanistic details of how their suggestions might be applied. Neither have they critically assessed the utility of their hypotheses. In these respects, this paper is perhaps unique. CHAPTER I: THE SOCIAL CONTEXT Earlier I asserted that a discussion of rural physicians' role strains must address the social features that generate and shape these conflicts. Three of the most salient characteristics that contribute to rural physicians’ tension between their roles as patient advocates and public stewards are: (1) the financial instability of many rural hospitals; (2) the cohesive nature of rural communities; and (3) the relative vulnerability of rural physicians to their towns’ social pressures. In order to understand how these social features generate the ethical problem, it is necessary to examine each factor individually. THE FINANCIAL INSTABILITY OF RURAL HOSPITALS One of the characteristics of rural towns that contributes most significantly to the rural physician’s role tension is the financial status of the rural hospital. Rural community hospitals have found themselves on uncertain financial footing over the past several years; indeed, many have been forced to close down. Concern about the viability of rural hospitals began to arise as far back as the late 19705 (Geyman, p. 477). The cloudy forecast was mostly accurate: according to Fickenscher and Lagerwey- Voorman, between 1980 and 1987 the annual number of rural hospital closures increased by 32.5%, (p. I I 6). And according to annual reports issued by the United States Inspector General, of the 2593 rural hospitals 10 11 still operating as of January I, 1988, a total of 121 had folded by the end of 1990, the most recent year for which data could be obtained. This rate of rural hospital closure has "easily exceeded Urban closures," (Wakefield, 1989). I To a large extent, the culprit responsible for rural hospital closure appears to be Medicare, the government program that helps cover the health care expenses of elderly Americans. Prior to 1983, Medicare reimbursed whatever charges a hospital levied, trusting them to be honest and reasonable in their billing practices. Congress put an end to this way of doing business by devising a method of prospective payment in which “Medicare hazards a prediction of how long each patient is likely to be - hospitalized, and then bases its payment strictly on that forecast,” (Margolis, p. 29). Of course, Medicare’s length-of-stay predictions are merely estimates based on averages--patients sometimes require longer stays than Medicare is willing to compensate. In these cases, the hospital is faced with a decision: discharge the patient when Medicare coverage is exhausted, or keep the patient on at the hospital’s expense. Because of their stronger ties to their communities, rural hospitals are more likely to choose the latter option than are urban hospitals, (Margolis, p. 29). This tendency--combined with the fact that Medicare reimbursement levels are 37% lower for rural than for urban institutions—-has devastated many rural hospitals, (Wakefield, 1989). In fact, one study reported that "83 percent of the hospitals with financial losses during the first three years of PPS (prospective payment systems) were located in rural areas," (Doelker and Bedics, p. 541). That in mind, it is plain to see why a survey of small-town mayors'concluded that 12 government reimbursement practices figured heavily into the demise of their communities' hospitals, (Hart, Piriani, and Rosenblatt, p. 232). Yet even without Medicare reimbursement problems, rural hospitals would still be in danger of folding because of the socioeconomic characteristics of rural inhabitants. Rural communities have 33% more poverty and 50% more unemployment than urban communities; consequently, rural residents' level of health insurance coverage is well below that of urban residents, (Fickenscher and Lagerwey-Voorman, p. 1 14). The result is that rural hospitals have to absorb the costs of treating many of their uninsured patients who cannot afford to pay. These facts provide some insight into why nearly half of the small town hospital administrators polled in one survey believed that their institutions would fail in the next five years, (Margolis, p. 31). Regardless of cause, the consequences of rural hospital failure can be devastating for rural residents. The most immediate damage is to the local economy. Often, the vitality of the town itself depends on the vitality of its hospital. The local hospital supportsudirectly and indirectly--about 25% of the average rural community’s jobs, (Fickenscher and Lagerwey-Voorman, p. 1 17). With the hospital playing such a pivotal role in the rural community’s economy, the claim of one rural physician that “the life of the town revolves around the hospital” is often literally true, (Reece, 1990a, p. 54). Closure of a rural hospital can also represent a setback to a community’s collective pride. One family practitioner in Moose Lake, Minnesota who advises small hospitals on changes in health care provision reports that “communities have a strong sense of ownership and need for hospitals as well as churches and schools; those are the real guts of a 13 small rural community,” (Reece, 1990b, p. 12). This physician’s personal observation echoes scholarly research that demonstrates that “the hospital ranks with the church and the school as one of those elements of rural society through which communities define themselves,” (Rosenblatt and Moscovice, p. 174). The loss of such a central symbol of their identity represents a serious blow to rural residents’ pooled self-respect: a rural housewife from Independence, Iowa reports that “a town that loses its hospital has one less thing to be proud of,” (Margolis, p. 28). Indeed, a study of the viewpoints of the residents of the rural town of Century, Florida on the impact of the failure of their hospital revealed that they "saw the closing as one more example of the perceived political impotence of Century," (Doelker and Bedics, p. 542). The psychosocial impact of rural hospital closure can be so significant that the authors of the study recommend that "mental health workers should be prepared to deal with the generalized depression experienced by the population, (Doelker and Bedics, p. 542). While the economic and social-psychological effects of rural hospital closure on the residents of the hospital’s community can be catastrophic, the consequences for the residents’ health status can be serious as well. Mayors of rural communities whose hospital had closed “clearly stated that the major effect of hospital closure was diminished access to care,” (Hart, Piriani, and Rosenblatt, p. 241 ). The mayors felt that their residents’ health status had decreased as well. Rural residents without a local hospital may be more likely to miss screening and health I maintenance procedures such as fetal ultrasonography because of the time and trouble involved with traveling to the nearest facility that houses the necessary technology, (Hilfiker, p. 118). And obviously, in emergency 14 situations in which time is of the essence, rural residents who lack local hospital facilities are at a severe disadvantage. Thus, inconvenience and increased travel time may be responsible for the fact that “rural counties without hospitals have significantly higher rates of infant mortality and morbidity, and higher accidental death rates, than those counties with hospitals,” (Fickenscher and Lagerwey-Voorman, p. 1 17). And not only can closure of a local hospital compromise rural residents’ access to hospital services, but it can even jeopardize rural residents’ access to office-based physicians. The connection between the presence of a local hospital and the ease of recruiting primary care physicians is well-documented. According to a study of the recruitment and retention issues for physicians in a rural community in North Florida, the “quality of (the) hospital in the community” was judged to be of “high” or “moderate” importance for 75% of the physicians, (Conte, lmershein, and Magill, p. 189). Surveys of Texas medical residents show that the number one factor in choosing to practice in a rural town is the availability of adequate hospital facilities, (Griffin, et. al., p. 28). And Hassinger, et. al., found that physicians who practice outside rural areas perceive one of the major disadvantages of rural practice to be a “lack of facilities and consultative services,” (p. 73). So rural residents may lose more than just convenient access to hospital services if the local community hospital fails. Because physicians generally prefer to practice near a hospital, closure can compromise rural dwellers’ ability to access even basic doctor’s office health care. Even worse, those physicians that make the noble choice to serve a community that lacks a hospital must use extra care to ensure that their skills remain up to date. By providing a central location for medical 15 personnel to interact and communicate, a hospital can act as a resource to help physicians keep their skills and knowledge fresh. According to a study by Keeler, et. al., some rural physicians "may not have enough patients or contact with other physicians to maintain their skills," (p. 1713). The absence of a local hospital only exacerbates this problem: Rosenblatt and Moscovice report that “the physician without a hospital practice is in danger of obsolescence,” (p. 175). Isolated from their peers, rural doctors that practice in areas without hospitals must be particularly conscientious about maintaining contemporary standards of care. Thus, through both direct and indirect means, rural hospital closure can threaten the quality of rural residents' health care. The relevance of the viability of the local hospital to the rural physician's role dilemma now becomes clearer. If physicians are considered to be stewards of their communities’ medical resources, then it follows that this role entails looking out for the local hospital. Likewise, if physicians should act in the best interests of their patients, then the previous discussion seems to suggest that they should protect the stability of the local hospital, since its failure would threaten their patients’ health in so many ways. PW 0‘ 0.00.10: .0 0 one ' 0. l‘ o . I0 '1 o I‘ ’1‘: -10_ .- r h r But what are physicians to do in instances where it is not clear that referral to the local hospital is in an individual patient’s best medical interests? For instance, assume that a physician is aware that the morbidity rate for cholecystectomies is slightly higher at the community hospital than at the nearest urban center. Should the physician still encourage a patient to have the procedure done locally? If we decide not, 16 then presumably we expect that the physician should recommend the urban center for all patients who require treatments that are accomplished with better statistical success there. MW a... 0 I‘ 0 -. o. . “0.1." ‘00:! ‘0. ,0... 0 ‘0.-‘l 0 n... l‘l‘o Itl‘. ‘ «.‘o l‘ .A -.n. ‘Q‘l .lnthisway, the financial instability of many rural hospitals sets up the tension between rural physicians’ roles as patient advocates and their roles as public agents. THE COHESIVE NATURE OF RURAL COMMUNITIES The second feature that impacts this role conflict is the fact that rural communities tend to be more cohesive than urban communities. Before this issue is discussed in earnest, it should be noted that rural- urban differences are neither universal nor dichotomous. I am asserting only that in general, rural communities have a tendency to be more cohesive than urban communities. It is helpful to understand the nature of rural-urban differences on the basis of the continuum model, (Carlson, Lassey, and Lassey, p. 6; Childs and Melton, p. 28; Rogers, et. al., p. 90). This model demonstrates that, as opposed to being polar opposites, rural communities and urban communities simply occupy different positions on a gradient. Particularly due to advances in transportation and communication technologies, the physical separation between the two settings largely has been overcome: distinctions between rural and urban communities are increasingly becoming a matter of degrees. Even so, they are not yet insignificant. Carlson, Lassey, and Lassey report that “formal studies of the rural-urban continuum reveal persistent divergencies in attitudes, values, levels of income, social 17 services, and cultural attributes,” (p. 6). Decades ago, in his study of urban and rural communities, Toennies assigned the word gemeinschaft to small villages to describe their reliance on “friendship, neighborliness, and on blood relationships,” (p. 4—5). This characterization is to some extent accurate even today, and it constitutes one of the distinctions between city life and country life. For example, Childs and Melton report that one of the differences between rural communities and urban communities is a higher degree of integration and solidarity among residents of rural communities, (p. 29), and that rural dwellers are likely to be better acquainted with their fellow residents, (p. 156). So although social isolation might be expected to emerge from physical isolation, in fact “social networks may actually be stronger in sparsely populated areas than in communities which are not as isolated,” (Childs and Melton, p. 9). These social networks are often supported by the dynamic of “going into town.” In most rural areas, there is a location that serves as the center of activity, the “heart” of the town. It is where people gas up their cars and equipment at the service station; it is where they buy their groceries and supplies at the general store; it is where they enjoy a sandwich and a cup of coffee at the cafe; it is where they get a haircut and the latest gossip at the barber shop. This location acts as a social magnet: people converge upon it from throughout the surrounding area, inevitably (and not accidentally) bumping into each other and interacting. In Century, Florida, the focal point was the hospital itself: "the hospital cafeteria had been used by the community for social and business lunches and served as a gathering spot for residents," (Doelker and Bedics, p. 542). This dynamic lends support to the assertion that in rural areas 18 “community interactions (are) more intense and more important,” (Rosenblatt and Moscovice, p. 6). The organic nature of rural communities can be very satisfying for the rural practitioner. When rural physicians characterize the Single most salient difference between urban and rural practice, they place greatest emphasis on the quality of interaction between physician and patient in the community context; that is, they enjoy “knowing the patient better, longer, and in the context of the social setting,” (Hassinger, et. al., p. 73). A Dr. Talley, who practices in the rural West Texas town of Fort Stockton, describes the attractive aspects of small town life this way: “it’s easier to get to know people and to develop friendships. There is more of a feeling of closeness with the community, which leads to greater trust,” (Griffin, et. al., p. 30). And a Dr. Rimas from Comfrey, Minnesota, states that the factors he likes about his rural practice are “the quality of life, the hometown atmosphere, the friendly people, (and) the knowledge about people and their families,” (Reece, 1990a, p. 54). Clearly, the opportunity for rural physicians to interact more intimately with their patients is one of the most pleasant aspects of small town practice. The depth of familiarity that rural physicians have with their patients sometimes enables them to make more efficient diagnoses and recommendations. For instance, imagine that a fifty-seven year-old man (who happens to farm wheat) presents to the physician one autumn day with the complaint of frequent respiratory distress. Because he is a fellow member of a relatively intimate rural community, his physician is likely to know that the patient is a farmer, and that he is in the middle of harvest. This knowledge alone might lead to an immediate suspicion about the source of the man’s respiratory ailment, and before launching into the 19 standard diagnostic protocol, the physician might simply ask the man about the onset and timing of his symptoms. If this information correlates with the wheat harvest, then a major Step toward resolution has been reached quickly, easily, and inexpensively. On the other hand, if this farmer’s doctor practiced in a metropolitan area, it is unlikely that the physician would know him personally. Although the farmer’s occupation would be stated in his medical record, it is less likely that the connection between the wheat harvest and the man’s symptoms would be made because the urban doctor would probably lack the same insight into the farmer’s lifestyle that the rural practitioner would have. As a result, the urban doctor most likely would have to take a complete history and perform a physical examination, as well as possibly order costly tests, in order to get data that ultimately might or might not point to the wheat harvest as the source of the problem. Hence, a holistic picture of patients’ identities often offers rural doctors a clinical advantage in diagnosis and treatment. The knowledge base available to rural practitioners as a consequence of the social relationships between them and their patients can represent a valuable clinical tool. It is the cohesive nature of many rural communities that promotes the familiarity with which rural physicians can interact with their patients. In fact, Magaro cites one rural physician who states that he and his colleagues are so familiar with their patients that many times they can diagnose their health problems over the telephone, (p. 16). However, this kind of familiarity poses problems as well. The relatively intimate nature of many rural towns makes it virtually inevitable that rural physicians will treat people close to them. 20 Sometimes this is simply one of the pleasant perks of country doctoring, but often it can make it difficult for rural physicians to separate their professional lives from their private lives. Technically speaking, it is preferable to refer friends to the care of a trusted peer rather than to accept them' as patients because of the professional dictum that physicians should “practice medicine with what may be called ‘detached concern,’ unswayed in their clinical decisions by social, cultural, or economic considerations,” (Eisenberg, p. 961 ). While detached concern is an ideal that is clearly theoretical, it is nevertheless the standard for which physicians are expected to strive. Flannery offers the example of one of her urban colleagues who avoids accepting his friends as patients because he believes that confusing the roles of physician and friend makes objective medical judgments more difficult for physicians to render, (p. 12). Yet for rural physicians, the impracticality of referral makes the blurring of the distinction between friend-friend and doctor-patient relationships virtually unavoidable. This obscured distinction can create a tension between objectivity and partiality regarding physicians’ allocation decisions. That is, it can cloud physicians’ ability to referee fairly between their obligations to their patients and their obligations to the public at large. This tension is described by Jecker and Berg: In the rural health care setting especially, concerns of justice occur in the context of close relationships with patients. These relationships are more likely to be motivated by a sense of personal involvement and special responsibility. Justice therefore calls upon the physician’s skill at being simultaneously immersed in and distanced from others, (p. 469). 21 Jecker and Berg cite a rural physician who states that he is often torn between the responsibility he feels to specific patients to serve as their advocate and his obligation to the larger group to make judicious resource allocation decisions, (p. 469). Thus, Wage 0 -_ l‘ A. L Iv. ‘. all'l'. l' ' Q‘I ' “2| .2 .1. {I An example of this dilemma is provided by Purtilo and Sorrell, (p. 26). They relate the story of a Dr. Palmer, who practices medicine in rural Nebraska. The Roubal family had been patients of Dr. Palmer for twenty years, and had been unable to afford health insurance for about a year. Recently, Mrs. Roubal came to Ir. Palmer in acute gastric distress. Knowing that the local hospital would not be reimbursed for services rendered, Dr. Palmer conducted the routine battery of tests on an outpatient basis at his own expense. However, he was unable to pinpoint the cause of Mrs. Roubal's symptoms, and in the meantime her condition had worsened. Dr. Palmer knew that the large metropolitan hospital sixty miles away probably would not admit the indigent Mrs. Roubal. And at the last meeting of the medical staff at the local hospital, the hospital administrator reported that prospective payment schemes were hurting the local hospital so badly that the hospital might have to close its doors within a year. Dr. Palmer thus found himself torn between split allegiances. 0n the one hand, he felt that as Mrs. Roubal’s physician, his duty was to obtain the highest quality care available to her. Since he was powerless to win 22 her admission to the metropolitan hospital, his job as her advocate seemed clear: he should secure her admission to the local hospital. This goal was given added impetus by virtue of the fact that Mrs. Roubal and Dr. Palmer enjoyed a personal relationship with a twenty year history--he felt a personal (as well as a professional) inclination to help her. But at the same time, his role as a steward of his community’s medical resources seemed to demand that he protect the stability of the financially-troubled local hospital by not admitting her there. Because Mrs. Roubal had no insurance and would be unable to pay for her care, the local hospital would be forced to absorb the cost of treating her-- something it could ill afford to do while struggling to remain solvent. 9 -. I... 191‘: A. o ,-I 'III‘ nu 9‘ 01° I! 0 l‘ 031' ‘ 0 l‘ o . I0 ' I - 0. 0: Wit 0 I o l‘ o ' ‘0. 0.: ‘ ‘ 0. ‘l‘ H 1‘ 01]“-1 ‘ .- -_ I! . a. -.-.‘I o 1"-.. '1‘ ‘ ll“ P II‘ A. 99:07: I! i ”“1111 MW As Purtilo and Sorrell acknowledge, “he is expected to respond to the patient’s need while also accepting personal responsibility for protecting the community’s best interests. When the best interests of the community take the form of helping to keep the hospital open, he faces a ‘no win’ situation,” (p. 27). Because of the familiarity that often develops between rural physicians and their patients, rural doctors sometimes have difficulty subjugating the interests of patients for the sake of competing considerations, even when the consequences for failing to do so could be serious. InI we 23 RURAL PHYSICIANS' VULNERABILITY TO SOCIAL CONTROLS The final factor I want to discuss is the rural physician’s high degree of vulnerability to social controls. The urban environment has been described as one that promotes freedom and diversity, (Scherer, p. 17). These values are much less characteristic of the rural community, where the composition of the populace is likely to be relatively homogenous in terms of background, values, attitudes, and culture, (Rosenblatt and Moscovice, p. 7). In contrast to the tolerance for alternative ways of living that is representative of cities, in small towns role expectations are clearly defined and vigorously enforced. Rosenblatt and Moscovice state that “rural dwellers...(live) in a social setting where role constraints are more rigid,” (p. 6). Indeed, “the oppressive impact of social criticism in small town milieus” is described as an often- overlooked negative aspect of rural life, (Childs and Melton, p. I 51). The effectiveness of rural communities at enforcing social controls on their residents stems from their small size and close-knit nature. Childs and Melton acknowledge the work of Nader and Todd, who “noted that the interdependence and familiarity present in small, homogenous societies result in community based social control,” (Childs and Melton, p. 372). In describing the nature of this control, Jacqueline Scherer cites William Whyte, who observes that “the group is a tyrant; so also it is a friend, and it is both at once. The two qualities cannot easily be separated, for what gives the group power over the man is the same cohesion that gives it warmth,” (Scherer, p. 34). Scherer presents the example of the rural town of Springdale (a pseudonym), which was the subject of sociological investigation by Bensman and Vidich. The researchers found that the town was capable of exerting potent social control over its residents: Scherer sta po 0th Fer fi0' est inl rep BEI hn- bel DOE COI COT “k6. finn 56cc Dhys Certa 24 states that “several important groups and persons were excluded from the population so effectively that their existence was ignored or assigned to other citizens’ unconsciousness,” (p. 30). Likewise, in his study of Kirk’s Ferry, Oregon, Klein found that patrons of the town’s bar were noted and frowned upon by the town’s residents, and that the owner of the establishment was effectively “restricted” from holding certain positions in the community, (p. 35). Social control may be especially effective in influencing the behavior of prominent members of rural communities. For instance, Rogers, et. al., report that Rural-urban differences may still be found in the severity of sanctions applied against individuals who violate local community norms relative to specific statuses. Statuses involving service to the public, such as teacher, extension agent, and minister, are examples where role style more greatly affects the evaluation of performance in small towns and rural areas than in urban settings, (p. 72). Because their jobs place them in the public spotlight, people in these kinds of occupations are held to stiffer standards of performance and behavior by the community. Physicians are among the persons whose positions in rural communities make them subject to more intense social control, (Dean Havron, M.D., personal communication, May 1994). Rural physicians generally are more visible members of their communities than are urban physicians. In urban areas physicians are less likely to live in the same neighborhoods as their patients. This is true first because of the sheer size and diversity of metropolitan areas, and second because of the probable socioeconomic class differences between physicians and their patients. Although physicians may practice in a certain sector of the city, they might well choose to reside in a different 25 sector, or in the suburbs. And even when urban physicians do practice in the same location in which they live, the nature of city living is likely to enable them to preserve their anonymity. As Jacqueline Scherer explains, the migration of people from rural areas to urban areas had the effect of “replacing a personal society in which all persons were known to each other with one that highlighted impersonality and anonymity,” (p. 16). Scherer’s comment is supported by Childs and Melton, who suggest that urbanites live under conditions that promote anonymity, alienation, and detachment, (p. 156). In small towns, neighborhoods are less likely to be separated by distance or along class lines, and so although rural physicians are still likely to enjoy higher incomes than most of their patients, chances are that they will live amongst them just the same. According to Maureen Flannery, a rural family physician in Kentucky, “living among the people whom I serve in a close-knit community, I do not have the luxury of retreating to a suburban lifestyle surrounded by other ‘young professionals’ when I end my day at an inner-city clinic,” (p. 12). It is clear that Flannery enjoys the fellowship of her rural neighbors very much; she envies her urban counterparts only because they are able to step out of their roles as physicians at the end of their work day. As a family practitioner from rural Alaska acknowledges, small town physicians often must be “24-hour-a-day docs,” (Dean Havron, M.D., personal communication, May 1994). The fact that rural physicians live among their patients makes them very visible people. In fact, often the physician is the community’s most revered member, (Purtilo and Sorrell, p. 27). Although the status of semi- celebrity might seem attractive, there is a down side to this high profile 26 as well. Many rural physicians have little opportunity to enjoy the conveniences of anonymity; they must contend with a substantial lack of privacy in their lives, (Hassinger, et. al., p. 76). For instance, Flannery says that “I am one of the few professionals in my county, and everyone knows where I live, how I spend my days off, and whether I dug up my potatoes before the first frost,” (p. 12). Because small town physicians are prominent community figures, Flannery says that anonymity is nearly impossible for them to maintain. The result of this high profile status is that like teachers and ministers, rural physicians are subject to social controls that can be even more harsh than those applied to rural laypersons. This heightened vulnerability to social control is central to the discussion of rural physicians' strain between their roles as patient advocates and protectors of community interests. Their susceptibility can pressure them into making judgments that, instead of being informed by fair, rational, and considered guidelines, are merely consistent with public opinion. Many times, the sentiment of rural towns can persuade physicians to supersede the good of the society for the good of a particular patient. This is because rural residents generally do not consider patients’ lack of financial resources to be a legitimate reason for refusing to care for them. In non-rural areas, patient rejection is relatively commonplace: many physicians decide that due to finances, they must close their practices to new non-paying or Medicaid patients. However, a rejected rural patient is likely to be known by the residents of the town, and they would be sympathetic toward that patient--especially in light of the fact that, given the scarcity of rural physicians, the 27 rejected patient might not have any alternatives. According to Purtilo and Sorrell, Since rural residents support their neighbors with produce, money, or skills as needed, the same behavior is expected of the physician. Failure to do so is judged not only as unfitting for a physician but also as irresponsible for a citizen. Understandably, physicians feel pressed by professional and personal loyalties to act in favor of the patient and ‘let the system be damned,’ (p. 27). Thus, if rural physicians reject patients, they run the risk of violating important social norms, and hence, of incurring powerful social sanctions. For instance, one rural physician interviewed by Jecker and Berg “describes how ‘word gets around’ if one of his patients is treated differently than another,” (p. 469). This physician was confronted not for rejecting an indigent patient in need of a cholecystectomy, but for admitting her to a less-expensive public health hospital in another town. Trouble arose because he recently had admitted a Blue Cross patient to the local hospital for the same procedure: the indigent patient found out about the inconsistency and angrily demanded that he explain it. The atmosphere of rural towns can thus encourage physicians to promote the interests of individual patients. W 0“ ‘ lo. 1‘ I. ‘ «.1 0.00... u o l‘ .0 "0.0 ‘ A o . ‘ 'I I“! (I. 9‘ 1-- l‘ 39' Oh‘ on l‘II'Dzla. ' r-.. on H-I «.l .0‘ _‘0.0 .!m_--.‘n'0‘o.9-9 ‘11-. 0|: 0‘ W The penalty for doing otherwise-~which would be exacted in terms of social sanctions that can be devastating in the context of a small town-~often is simply too intimidating. Yet rural residents are more distanced than their physicians from the possibility of rural hospital closure, and so the potential consequences of unfettered 28 patient advocacy may not seem as real to them. While physicians might perceive the mood of the public to be supportive of the best interests of individual patients, rural hospital administrators are quick to remind them of the potential consequences of following such a course. To sum up then, the social contours of the rural setting can contribute significantly to rural physicians’ role conflicts. The strain between their roles as patient advocates and their roles as public agents is often precipitated by the financial instability of the local hospital. This tension is further complicated by the tendency for close personal relationships to develop between rural patients and rural physicians, and by the vulnerability of rural physicians to the expectations of their communities. Thus, compelling forces pull rural physicians in many directions as they attempt to sort out questions of divided allegiance, and so the potential for morally inappropriate outcomes seems especially ripe in the rural context. What is needed is a mechanism that can generate morally-sound outcomes as well as account for the social components of the problem. In the next section, we will put several conventional moral principles to this task. CHAPTER TWO: PHILOSOPHICAL PERSPECTIVES It is important to note that while role strain between physicians’ duty to advocate for their patients’ best interests and their obligation to protect the good of the larger community may be more pronounced in rural medicine, it is certainly not unigue to rural medicine. It has been argued that role conflicts are complex instances of “ordinary” ethical problems, and that consequently they require no special moral framework for their analysis and resolution, (Andre, 1991; Bowie, 1982). For this reason, I want to explore several popular moral principles that might help guide physicians’ allocation decisions, with an eye toward assessing their utility in the context of the rural community. After examining the perspectives of autonomy, utility, and justice, I will conclude that each fails to provide appropriate guidance to rural physicians who are wrestling with the problem of divided loyalties between their roles as patient advocates and community stewards. AUTONOMY One moral perspective that might be of use to rural physicians as they attempt to resolve these types of role conundrums is the principle of autonomy. When associated with the work of Immanuel Kant, autonomy is often taken to mean “the capacity of the will to follow a law that it imposeson itself,” (Johnson, p. 445). In the context of medical ethics, 29 30 autonomy customarily refers to the prerogative of competent individuals to select their own treatment choices. Autonomy taken this way is the opposite of paternalism: rather than deferring decision-making power to the physician, autonomy demands that capable persons be allowed to choose for themselves the appropriate course of action. So that patients can make intelligent decisions, autonomy also requires that physicians provide their patients with the relevant medical information, and that physicians interpret this information clearly and honestly when their opinions and recommendations are sought. It is only when patients have a proper understanding of their situations that the principle of autonomy can have any real meaning. Because autonomy emphasizes individual freedoms and rights, this standpoint seems to support the argument for patient advocacy; that is, it seems to require that physicians allow patients to establish for themselves what is in their own best interests, and then that physicians promote those interests. According to Bushy and Rauh, "with autonomy a patient's self-determination takes precedence over the values of medicine," (p. 209). In other words, the patient's values must be held supreme with respect to the physician's values should the two collide. When Levinsky says, “the doctor’s master must be the patient,” his assertion is based on the principle of autonomy, (p. 1575). mm 919‘. Lon-II -90.: 1991‘. I‘IQI 0 -, our ‘1 In, .I our! .0-. ‘l 0 ‘ -0.‘ ‘mh on Io - 0. .II! 0 l‘ Oll!‘ I! We can use the example of Dr. Palmer and Mrs. Roubal to help demonstrate how the principle of autonomy would apply to the rural physician’s conflict between the roles of patient advocate and public 31 agent. Recall that the indigent Mrs. Roubal has a twenty-year relationship with Dr. Palmer, and that she has no health insurance. Dr. Palmer is convinced that Mrs. Roubal needs to be hospitalized for extensive diagnostic testing. He is equally convinced that her admittance at the nearest metropolitan hospital would be virtually impossible because of the prospects for reimbursement for her care. At the same time, Dr. Palmer is under pressure from the local hospital administrator to be careful about his admissions to his hospital, because the hospital is in very serious danger of closing within the year. Dr. Palmer finds himself caught in a conflict between his allegiance to Mrs. Roubal as her physician and his responsibility to the local hospital as a steward of the community’s health resources. According to the principle of autonomy, Dr. Palmer should allow Mrs. Roubal to make her own health care decision. Since autonomy requires that her decision be based on informed judgment, Dr. Palmer is expected to be forthright in disclosing his findings and interpretations regarding her condition, and his opinion with respect to potential treatment options and strategies. After being informed of the gravity of her situation, and of Dr. Palmer’s assessment of her chances for admission to the urban center, Mrs. Roubal naturally might choose to seek admission to the local hospital. Her alternative is to continue to be monitored and tested as an outpatient, but her condition is worsening and that strategy so far has proven to be thoroughly ineffective. Based on the principle of autonomy, Dr. Palmer--a fiduciary agent trusted to advocate for Mrs. Roubal’s self-determined interests--should respect her decision by working to secure her admission to the local hospital, even though he knows it would hurt its profitability. 32 Another example might reinforce what it is that the principle of autonomy demands. Earlier I presented the case of the rural physician (whom we can subsequently call Dr. Smith) who sent two patients in need of cholecystectomies to different hospitals because one of the patients was uninsured: she would not have to pay as much at an out-of-town public health facility. We now can modify the scenario by pretending that the quality of care is somewhat lower at that public health facility than at the local hospital. Additionally, we can assume that the local hospital is in very real financial jeopardy, and that if the woman is admitted to the local hospital, it will have to absorb 80% of the cost of her care because she has no third-party coverage. Here again the principle of autonomy dictates that the woman should be afforded the right to exercise her own judgment about where she should be treated. Additionally, it requires that Dr. Smith fully inform her of the pertinent medical information, including the mortality/morbidity differential that exists between the local hospital and the public health hospital. He must also tell her that he is able to admit her to either facility. As a sick patient in need of treatment, the woman’s top priority naturally might be her health; the fact that she cannot cover the majority of the expense at the local hospital probably would be secondary. So most likely, she would choose to have her surgery at the local hospital since the odds for a successful outcome are better there, and because the local hospital is more convenient. Because her decision is the choice of an informed and competent patient, the principle of autonomy would direct Dr. Smith to respect it by admitting her to the local facility, even though he is aware that the hospital will be badly hurt by the cost of treating her. 'I -- o 'Io'9_-_ .ot'I -- 0.“ll‘0_! I‘9o|.The‘l physician’s job is to educate patients so that they acquire a full comprehension of their medical status, and then to help patients match their personal goals and values with treatment plans. Physicians thus play a support role; they are experts with whom patients may consult, but final decisions must be left to the judgment of the patients themselves. For instance, La Puma and Lawlor appeal to autonomy when they state that “the physician’s primary duty is to meet the patient’s medical needs as they together find them, the physician with technical knowledge and expertise and the patient with his or her personal history and values,” (p. 2920). Once patients have made their decisions, physicians should accept them as being in patients’ self-determined best interests, and should advocate for them as such--even if they know that they will be at odds with the larger goals of the community. This is Chase Patterson Kimball's meaning when he writes that considerations of public good are “at a different level and of another order than the ethics of personal medical care,” (p. 873). For physicians, the principle of autonomy can be tempting grounds upon which to base allocation decisions. Essentially, it relieves them of the psychological burden of having to weigh difficult allocation decisions: the job of deciding treatment options is left to informed patients. Physicians need only promote the choices that patients make for themselves. And in rural areas, autonomy has a special appeal. The likelihood that rural physicians’ patients also will be their friends gives them an added 34 motivation to respect their patients’ choices. Finally, the expectation that rural physicians should treat patients as if they are all worthy of equally high-quality care, regardless of ability to pay-~and the capacity of the rural community to enforce this expectation--can make autonomy an even more attractive guideline for rural physicians to follow. Yet autonomy may not be an appropriate principle upon which to base a solution the rural physician's role dilemma. Taken alone, the principle of autonomy dismisses physicians’ roles as stewards of their communities’ medical resources when that role conflicts with patient advocacy. It evaporates the role tension by rejecting one prong of the dilemma. Thus, the principle of autonomy resolves physicians’ role strain by effectively ignoring the physician's role as a public agent; that obligation simply is not acknowledged as a legitimate competing consideration. Under autonomy, the physician’s ultimate concern must be to further the interests of individual patients; other concerns are secondary. Surely a thoughtful society would not want its physicians to perform such a narrow and exclusive role. By virtue of their occupation, doctors have responsibilities to the larger community which cannot be neglected. Without consideration of these broader goals, physicians would be committed to serving the self-interested, atomisticaIIy-determined wishes of individuals. And while a personal connection to a patient might represent a tempting motivation to promote that patient's immediate interests, it is not necessarily a morally legitimate justification. In such scenarios, social ends might be difficult to achieve. For instance, in rural communities patients might select health care options based on pure self- interest. The ultimate result, when the sum of many such individual choices is aggregated, could be the failure of the local hospital. As I have 35 previously argued, such a consequence could be catastrophic in terms of its effect on rural residents’ ability to access health care. Yet the principle of autonomy ignores the significance of this possibility by allowing the potential for individual preferences to run roughshod over the interests of the community. WW lo. -‘0 l‘ 'I all. 9‘ 0 I'.‘ Q 'P‘zl 10".-v, .0 l 9‘ UTILITY Having rejected autonomy as the principle upon which the resolution of the rural physician's role dilemma should be based, we might now consider utility. In contrast to autonomy, which emphasizes the importance of individual choice, the principle of utility judges the rightness or wrongness of actions based on their contribution to the greatest good of the greatest number, (Johnson, p. 448). It is a very pragmatic approach to ethical problem solving that is attributed to the philosophical thought of Bentham and Mill. As Bushy and Rauh state, "it infers balancing the good it is possible to do with the harm that might result from doing, or not doing, the deed, (p. 21 1). Thus, if an action would result in more "good" to society than harm to an individual, utility would support the action since it would achieve a greater net good--even though this benefit would be achieved at the expense of the individual's welfare. To help demonstrate how the principle of utility might resolve rural physicians' dilemma between their roles as public agents and their roles as patient advocates, we can apply it to the examples we have already discussed. In the case of Mrs. Roubal, who is in need of hospitalization for testing but is unable to pay for her health care, the principle of greatest 36 good seems to require that Dr. Palmer continue to treat her as an outpatient. Even though her condition is worsening and the outpatient testing strategy has proven to be ineffective, under the principle of utility Mrs. Roubal's interests must take a backseat to the interests of the community. If she is admitted to the local hospital, the cost of her care will compromise the stability of an institution that is already on treacherous financial footing. Because the local hospital is a crucial resource for the community, its interests must be protected over the interests of Mrs. Roubal: she is an individual, while the community consists of a great number of individuals. Now it is true that utility demands more than just a determination of the greatest number; it also requires an assessment of how much good and how much harm is done to each subject before the final sum is figured. Yet even if denying Mrs. Roubal admission to the local hospital would be devastating from her perspective (which it probably would be), the principle of utility still seems to direct her physician to say no. For as we saw in the first chapter of this paper, the closure of the hospital can have a tremendously negative impact upon the economic, psychosocial, and medical well-being of each member of the community. Thus, in the case of Mrs. Roubal, the principle of utility contradicts the principle of autonomy. It demands that Dr. Palmer deny her admission to the local hospital in order to protect its viability as a resource for the community at large. In the case of the patient of Dr. Smith, who needs a cholecystectomy but would be unable to pay the majority of her bill at the local hospital, the principle of utility again results in an outcome that is the opposite of the result generated by autonomy. Because she has no third party 37 coverage, the hospital would be forced to absorb that portion of her costs that she could not afford to pay out-of-pocket. Since that would jeopardize the existence of a facility that is critical to the town's well— being, the principle of utility seems to require that Dr. Smith admit her to the public health hospital, even though her chances for a less-than- optimal outcome are greater there. Because the principle of utility holds the greatest good for the greatest number to be supreme over the rights of individuals, it directs Dr. Smith to act as a public agent at the expense of his role as a patient advocate. Thus, the principle of utility will often produce outcomes that conflict with outcomes determined by the principle of autonomy. WM I‘C‘leO 0 1-010“ AII‘II’I'.‘ “0.0“ ‘nuq‘ u:.u-u""90n. 3 ‘ ‘ on 1‘919‘0 Lon-u I‘u- 0‘..c.'1.oo ‘Al‘l‘0l"' W This is illustrated by Gavin Mooney, who supports a utilitarian conception of medical ethics: "there is too often a simplistic assumption on the part of doctors that, for example, clinical freedom is to be defended literally at all costs--even when these costs result in inefficiency in the sense of failing to maximize the health of the community," (p. 184). But the principle of utility is just as problematic as the principle of autonomy when employed to solve allocation dilemmas in rural medicine. First of all, it is a cold and mathematical approach: to solve ethical problems, "good" and "harm" are simply calculated. Utility is insensitive to other factors. Such a method seems to offer very little to rural physicians, whose interpersonal involvements often cause their professional and private lives to overlap. In implementing the principle of 38 utility to resolve their role conflicts, rural physicians would be forced to deny that aspect of their identities that some philosophers refer to as the WI, (Friedman, p. 164). The notion of the social self is central to feminist ethics, and some feminist philosophers argue that it is implicit in medical ethics as well. According to Susan Sherwin: In feminist and medical ethics, it is important to consider factors that do not carry any special weight in utilitarianism. There is a need to look at the nature of the persons and the relationships involved in our analysis and not merely to record such values as preference satisfaction or pleasure or pain...(p. 61). I- l'!‘ 09-. l‘O‘ eff-gnu ‘11.. .|_-.0 o I'!‘-.‘ 0.000. --. .01 "I 0-0.12 ‘ o " l‘ll'v. QIsl‘.‘ l‘ 0‘ win I! IIQa‘l 'I ‘ o ‘. o. W. They would be forced to ignore such factors as fidelity, implicit and explicit promises, intimacy, and personal concern. This is one reason why utility seems to come up short as a solution to the rural physician's role strain between the responsibilities of patient advocacy and public agency. One might argue that the utility calculations could be modified to capture these sorts of contextual considerations, but such an approach seems incompatible with the nature of utility’s orientation, which tends toward abstraction away from uniqueness and particularity. And even if utility could be manipulated to reflect morally-important contextual particulars, it still would suffer from other problems that are inherent in its design. There are many pragmatic difficulties associated with the practical application of the principle of utility that are well-known to those familiar with philosophy, (Bushy and Rauh, p. 21 1). For instance, is the "greatest good for the greatest number" supposed to reflect long term 39 good or short term good? How is "good" to be quantified? Is medical good more or less important than other types-of good, such as economic or psychological? Who should determine the greatest good? These questions are basic and frustrating, and limit the practical usefulness of utility as a guiding principle. So when its shortcomings are examined, it appears that the principle of utility does not hold the solution to the rural physician's role dilemma. -I-“o ‘ 0 -. o -l or O‘II‘I 0| ‘. I' 0 II«. 0| ‘ 1 ‘0. o ‘u "I 0“-_-II_0 l9-.‘l ‘2'!!! All 11‘ -. 01‘! Cl '-‘ . ‘l -. 'IIOOI‘I o l‘ o ‘ OI-” _II no ‘0 ‘ l‘ ‘ . ‘ II-II‘I e ,- 0.- ‘II A. I l‘ .H .. {I «u 011’ WW For these reasons, the principle of utility must be rejected as a device for resolving rural physicians' tensions between their roles as advocates of their individual patients' best interests and their roles as protectors of their communities' health care resources. JUSTICE Having considered the principles of autonomy and utility, we might now turn our attention to the principle of justice. Whereas autonomy promotes individual liberties, and utility attempts to optimize overall good, justice concerns itself with entitlements and deserts. There are at least two notions of justice that have dominated American philosophy in this century. One, which is attributed to Robert Nozick, I will call “libertarian” in the sense that, like the principle of autonomy, it stresses individual freedoms. The other, associated with John Rawls, I will call 40 “egalitarian” because it is concerned with fair treatment. Both notions attempt to derive methods by which distributive justice can be achieved. Libertarian Justice. Nozick’s idea of distributive justice concerns itself with the just acquisition and transfer of resources. Nozick asserts that since in a free society there is no central authority that is responsible for controlling resources and deciding how they are to be given out, “what each person gets, he gets from others who give to him in exchange for something, or as a gift,” (p. 149). Many different people control different amounts of different resources, and new distributions arise out of voluntary agreements to exchange holdings, (p. 150). Thus, Nozick’s model is similar to the capitalist economic system. Such a system distributes goods primarily on the basis of free trade, yet it also allows (but does not mandate) voluntary acts of beneficence, such as donations to charity or gifts to relatives or friends. According to Nozick, his maxim might dictate that resources should be transferred: from each according to what he chooses to do, to each according to what he makes for himself (perhaps with the contracted aid of others) and what others choose to do for him and choose to give him of what they’ve been given previously (under this maxim) and haven’t yet expended or transferred, (p. 160). In other words, if one needs or desires something that one does not possess, one must either enter into a just exchange in which one trades 3 held resource for the desired resource, or one must hope for others to show generosity with the resources that they justly hold and now might volunteer to donate pro bono. One central facet of Nozick's theory is that distributive models must not “specify that a distribution is to vary along with some natural dimension, weighted sum of natural dimensions, or lexicographic ordering 41 of natural dimensions,” (p. 156). On this basis, Nozick rejects moral merit, need, marginal productivity, effort, and the like as considerations that should be allowed to determine distributions. These methods of distribution constitute what Nozick calls “patterning,” which is incompatible with his notion of justice. As Nozick says, “to maintain a pattern, one must either continually interfere to stop people from transferring resources as they wish to, or continually (or periodically) interfere to take from some persons resources that others for some reason chose to transfer to them,” (p. 163). Thus Nozick rejects the maintenance of patterns because the regulation required to sustain patterns interferes with individual freedoms. It is for this reason that his notion ofjustice can be characterized as libertarian. An idea of what Nozick’s sense of justice would mean for the distribution of health care in rural areas can be achieved by applying it to our example cases. Libertarian justice seems to offer little promise for Mrs. Roubal, the uninsured, long-time patient of Dr. Palmer who needs hospitalization for diagnostic testing. Up to this point, she has received her medical care as a result of Dr. Palmer’s beneficence: she has been unable to reimburse him for his care but he has chosen to treat her anyway. Nozick’s notion of justice recognizes these kinds of transactions as valid distributions of resources. Dr. Palmer donated resources that he justly held to Mrs. Roubal of his own free will; his services were provided essentially as a gift to her. However, Nozick’s notion of justice does not recognize health care as a right or desert to which Mrs. Roubal is entitled beyond the extent to which she is able to secure it for herself by freely trading her own justly held resources. I. .II‘ I‘L'Ielll'!‘ u {0-91 la I0- -.II 42 WW. Libertarian justice poses no barrier to her accepting charity either in the form of monetary contributions earmarked for her medical needs, or in the form of medical services delivered free-of—charge. Yet Mrs. Roubal has no basis for claiming an entitlement to health care based on Nozick’s model of justice, since her lack of insurance and personal funds prevents her from entering into a mutual agreement to exchange resources. Dr. Palmer thus cannot support an attempt to gain Mrs. Roubal's hospital admission by appealing to Nozickian justice. Similarly, the patient of Dr. Smith, who needs a cholecystectomy but is uninsured and is thus unable to pay for the majority of her surgery, has no moral entitlement to select the location for the procedure under Nozick's model of justice. Since she does not possess the resources necessary to enter into an exchange for her treatment, she cannot appeal to the Nozickian principle of justice to build a case for her right to have the procedure done locally. While any hospital or doctor is free to offer (to the extent that they justly control the necessary resources) the procedure free-of-charge or at a bargain-basement rate, the patient has no moral grounds, based on Nozick's model, of legitimately demanding treatment at the hospital of her choice. Her resources are insufficient to compensate the local hospital; as a result the local hospital is under no moral obligation to expend its own resources to treat her. Consequently, Dr. Smith cannot make a compelling justification on the grounds of Nozick's model of distributive justice for an attempt to win her admission to the local hospital . The examples help to illustrate that NEW I ".0“. I. ' ._ 1... 9| -.I . I0. ‘ I‘ .1 ‘I 1,... I‘ 43 f“0_0ll 0 'I n ‘ ounI' 0 IN ‘ l‘ -0 IO‘. 1. 0. 0.1- .0 " h h I“ofrl0. QIQ‘I !- ‘l o ‘ ° ‘ l‘ . ‘ Iv. WM. Freedoms and liberties are regarded as primary; no one can be told to distribute his or her resources in a compulsory fashion. But if it could be shown that some methods of patteming--that is, some forms of mandated resource reallocation--are morally permissible (or maybe even morally required), then Nozick's model is weakened. As Jonathan Wolff writes, "if an effective defence of either banning certain transactions, or engaging in compulsory redistributive activity can be given, then Nozick's principle of justice in transfer is refuted," (p. 89). It would seem that in the case of health care, a case for patterning could be made. While controversy regarding the moral status of health care continues, there is growing consensus among medical ethicists that, to one extent or another, and for one reason or another, health care must be considered a "special" social good, like education. Descriptive evidence for this normative belief is provided by the observation that "even in the US, which has a much less egalitarian health-care system than many other industrialized capitalist or socialist countries, there is the belief that health care should be distributed more equally than many other social goods," (Daniels, 1985, p. 17). Consequently, one would expect that most Americans would reject a value hierarchy that would deny necessary care to the poor by prioritizing individual freedoms over life itself. lLLttifi 11"! l . -‘ 'lmiv.‘ I-. ' {I OI‘-. I ‘ Ol‘l _- ‘ I' ‘I .HI ' _‘ o l‘ I,o.I l‘ 0. _‘ ' 0 II: I‘, r I0 . .0-. ‘I lo. I‘ l‘ ‘ I' .I-. o ‘l ‘ °I o ‘. {Ie‘ . Othervalues for which cases could be made might include equity and utility, but an 44 approach such as Nozick's fails to recognize them as being worthy of consideration. As a result, Nozick's libertarian model seems to be inappropriate. As Wolff states, "one way to reject (Nozick's) theory is to argue that liberty is just one value among possibly many others," (p. 89). Egalitarian Justice. One value that might be suggested as an alternative to liberty is equality. John Rawls has developed an idea of distributive justice by elaborating the principles of justice in terms of fairness. He begins with a basic definition: "essentially justice is the elimination of arbitrary distinctions, and the establishment, within the structure of practice, of a proper balance between competing claims," (p. 653). Such a definition seems to avoid the pitfalls of Nozick's theory that are pointed out by Wolff. Justice, as intended by Rawls, recognizes that there is more than one competing value in questions of ethical distribution of resources; indeed, justice has as its end the equitable compromise between those values. Having outlined a rough definition ofjustice, Rawls formulates two fundamental principles: The first principle is that each person participating in a practice, or affected by it, has an equal right to the most extensive liberty compatible with a like liberty for all; and the second is that inequalities are arbitrary unless it is reasonable to expect that they will work out for everyone's advantage and unless the offices to which they attach, or from which they may be gained, are open to all. (p. 654) Perhaps surprisingly, the first principle actually seems to smack of libertarianism: Rawls says that there is no valid rationale for circumscribing rights until they interfere with one another. Thus, the first principle states that prima facie, we should pursue the greatest liberty that is possible for all, without incurring a loss of liberty to any. 45 Rawls’ second principle lays out a mechanism for determining when it is permissible to deviate from the first principle. In instances in which inequalities will work to the advantage of every group, differences in liberties, rights, and/or powers can be allowed. This is the moderately egalitarian portion of Rawls’ theory: any inequalities that are allowed to occur must improve the lot of each--including those who are least well- off. This is often referred to as Rawls’ “difference principle.” In articulating this system, Rawls attempts to create a notion of justice that is richer and more complex than Nozick's. In Rawls' theory, elements of the values of liberty, equality, and utility are synthesized. Inseam lel'I ‘Il'leIQ- OI‘ “.!‘l ‘0 I‘Oh‘ I. ll'!‘ 1 “ll! ,0 1 l‘ ‘ -.l ‘9- 1.- : .0 ‘l'. o . o I‘ In 1 | . . | _ Because of this balance, Rawls' theory represents an attractive tool to help determine just resource distributions. Indeed, Norman Daniels draws heavily upon Rawls' model in formulating his fair equality of opportunity principle. In W, (1985), Daniels argues that health care needs are those requirements that must be met in order to "maintain, provide, or restore (where possible) functional equivalents to normal species functioning," (p. 32). Furthermore, he argues that because health care needs are fundamental to normal species functioning, they should be given special moral weight. The logic behind his definition of health care needs seems fairly rational and uncontroversial. However, the assertion that health care needs derive special moral consideration from this definition requires further exploration. Daniels tries to make the connection by developing the notion of a normal opportunity range. This idea holds that for a given society, there 46 exists an array of life-plans that people are likely to construct for themselves. Such an array constitutes the normal opportunity range, (p. 33). Because only those ends that realistically could be accomplished can be included in an opportunity range, a particular individual's share of the normal opportunity range is directly dependent upon that individual's capacity for “species typical functioning,” (p. 26). As Daniel's says, "if an individual's fair share of the normal range is the array of life plans he may reasonably choose, given his talents and skills, then disease and disability shrink his share from what is fair," (p. 34). The extent to which a health care procedure or treatment can be expected to restore a given sick or disabled person to species-typical functioning, then, is the extent to which justice requires that treatment to be performed. According to Daniels, "in general, it will be more important to prevent, cure, or compensate for those disease conditions which involve a greater curtailment of an individual's share of the normal opportunity range," (p. 35). Thus, Daniels offers what he believes is an appropriate framework within which to apply the principles of justice so that a fair distribution of health care resources can be achieved. Waugh 0 (9‘ OI' ell 0 ‘1 I 1‘ I ‘ 9 0901.0le o l‘ I‘! “ 0 II'I I‘II‘Q.¢ o I"0I'I Q-‘ 'OI I ‘l‘ ‘ 'I 0‘ 3 - f _I '-I I! ll'Olel . I 1 (HI. 'IQ‘O‘II‘I o I‘ A. 0 {I ml".-. 0 'I .OI-. _ooq‘ 00“ l‘l‘ ‘ a .- .. 0.0 It must be understood, of course, that Daniels is attempting to formulate an approach that can help guide resource decisions at the "macro" level. He does not intend to suggest that resources should be 47 doled out on a case-by-case basis after establishing a particular patient’s level of functional impairment and how well it could be ameliorated by treatment. Instead, he means to say that those technologies, cures, and preventive measures that will significantly benefit those groups whose level of species-typical functioning is most significantly impaired should be prioritized above other health care resources. It is when Daniels' theory is stated in this form that its Rawlsian flavor is most prominent: in making macro-type allocation decisions, it does not rely on one narrow parameter to reach a settlement. Instead, it incorporates elements of many principles, such as autonomy (to choose from the normal range of opportunities); utility (in that those who are worst off are prioritized-- i.e., the "most good" is sought); and equity (to the greatest extent possible, all citizens are provided the means to achieve the possibilities presented by the normal opportunity range via species-typical functioning). However, its "macro" orientation is, in fact, the precise reason why Daniels' model is of limited use to the rural practitioner. While it provides a helpful way to think about the allocation of medical resources on a large scale level, individual patients and physicians are able to obtain little guidance from it. It is meant as a tool to determine just distributions at the system-level, and not as an operational guide to making micro-level allocation decisions. W IIII 0.‘ ‘III‘ I-. .01 ‘IOI l‘ ‘ ‘ o I MOI-_IIOelll‘l I‘ ‘ 'e‘l le‘ll'e‘lQ‘IQ-.ll 'l‘ole‘v. 00‘I Take the examples of the two patients that we have been discussing. Both are uninsured, indigent patients who have fairly important medical needs. If their impairments are significant enough, then Daniels' model 48 will grant legitimacy to their claims to health care, regardless of their ability to pay for it. Yet once it is established that they have legitimate health needs that someone is obligated to meet, then what? Is it the responsibility of the financially-insecure community hospital to treat them? Or should the patients be sent to a distant urban facility? Daniels’ theory is silent on this matter: a fundamental element of this problem remains unresolved because Daniels' theory is not (and really was not intended to be) sufficiently fine-grained. In the jargon of medical ethicists, his notion fails to "go all the way down." While it can lend theoretical legitimacy to uninsured patients' claims to health care, it provides no practical mechanism for equitably distributing the burden of their treatment. In summary, then, it seems as though the three major philosophical approaches to ethical problems that we have examined all seem inadequate. The prominent philosophical frameworks appear unable to address issues as context-laden as the divided loyalties of many country doctors. Libertarian-oriented notions of justice, along with the principle of autonomy, affirm the undeniable importance of liberty in the American sociopolitical tradition, yet neglect the significance of values such as equity and utility. Similarly, the principle of utility fails under the cross—analysis of equity and autonomy, and also is unable to account for morally-important intangibles. Finally, conceptions of justice that are based upon fairness are designed for and limited to macro-level applications. In fairness, it should be noted that no broad philosophical notion should be expected to go all the way down to address a particular, morally- complicated, contextually-complex situation. It seems doubtful that any 49 conception of health care justice simultaneously could be broad enough to generate universal moral principles and sensitive enough to deal with specific practical applications at the micro level. That in mind, the problem for the last section of this paper is clear: in attempting to help rural physicians sort out the tensions between their roles as patient advocates and their roles as stewards of their communities' health resources, we will need to arrive at procedures which: (1 ) are context- appropriate and engage the relevant moral particulars; (2) are capable of striking a balance between multiple competing moral values; and (3) can accomplish I and 2 while simultaneously achieving compatibility with high-level philosophical principles. CHAPTER THREE: RATIONAL DEMOCRATIC DECISIONMAKING From our discussion so far, we have seen that to guide conflicts of loyalty in rural medicine, we require a method that is capable of generating specific protocols, as opposed to one that structures allocation systems on only a more general level. Our method also must acknowledge the legitimacy of various moral criteria, instead of relying on a single, narrow, a priori principle. Yet at the same time, we need an approach that respects the importance of high-level moral precepts. One model that seems to fit the bill is Leonard Fleck’s Rational Democratic Decisionmaking model, (1994). Fleck suggests that ethical conflicts such as those that face rural doctors can be resolved by public, broad-based community dialogue that incorporates the best scientific and moral methodology and knowledge, followed by the submission for referendum of proposals that arise from the deliberations. THEORETICAL CONSIDERATIONS Rational Democratic Decisionmaking is a conception of justice that is non-ideal. The following example has appeared in several articles in the ethics literature, and may help clarify the meaning of "non-ideal justice." Suppose that two women, Alice and Betty, need a liver transplant to save their lives, but that only one can receive it. Alice would live for two years past the date of the treatment; Betty for twenty. The woman who 50 51 does not receive the treatment will die in a matter of days. Both have waited the same length of time for the operation. Who should receive the treatment? As we saw in Chapter Two, the outcome will depend on what kind of moral approach is taken. One might decide that the woman who will live for twenty more years should be saved since the treatment would provide her with more years of life. Alternatively, one might opt for a coin toss on the assumption that each woman has an equal right to life. Or the younger woman might be selected, since the older woman has had more "innings." If a single moral precept could be identified that clearly seemed most appropriate, then of course that precept should be used. But the frustrating truth of the Alice and Betty case is that no one moral principle seems to provide a definitive answer. Any number of solutions could be generated that, prima facie, seem to be morally-plausible. This area of moral uncertainty represents the domain of non-ideal justice. In instances where no particular moral construct seems to produce a solution that is unequivocally most appropriate, non-ideal models such as Rational Democratic Decisionmaking are useful (perhaps necessary). According to Fleck, under such circumstances “we have no reason to believe that we could identify something that could be called the 'most just' set of rationing protocols possible for our society,” (1994, p. 382). In fact, Fleck says that we do not even have a strong moral obligation to come as close as possible to achieving the “most just” result. This is because there are other competing values besides justice that deserve legitimate moral consideration. What we are obligated to achieve is an outcome that is “just enough” or “fair enough.” 52 Rational Democratic Decisionmaking is not meant to promote moral laxity, however. Fleck describes eight “constitutional principles” which cannot be violated by a protocol developed through Rational Democratic Decisionmaking. These are: (I) a Publicity Principle, aimed at eliminating invisible rationing; (2) a Fair Equality of Opportunity Principle (which we have discussed in a previous section of this paper); (3) an Equality Principle, the intent of which is to assure each citizen equal moral consideration; (4) an Autonomy Principle, which affirms the right of every individual to participate freely in the democratic decisionmaking process; (5) a Just Maximizing Principle, which will specify the circumstances in which it is morally permissible to pursue the maximization of social welfare; (6) Need Identification Principles, to distinguish health needs from health preferences; (7) Priority Setting Principles, to help rank health resources fairly; and (8) a Neutrality Principle aimed at protecting the liberal character of our society with respect to choosing health services, (1994, p. 384). Fleck refers to the space inside the boundaries set by these principles as “the domain of just democratic decisionmaking,” (I 994, p. 382). Decisions that are rendered and found to be within this domain should be considered morally-legitimate and binding; those that violate one or more of the constitutional principles would lie outside the domain and thus should be rejected. For instance, a proposal that emerged from deliberations from which a particular segment of the community was excluded could not be allowed, even if it were broadly popular. It would have to be disqualified on the grounds that it violated the Autonomy Principle. The constitutional principles act as a test: they ensure that 53 decisions that are made from the bottom up are compatible with higher- level moral values. THE PROCEDURE A more practical description of the process is in order. Let us see how Rational Democratic Decisionmaking might actually operate by applying it to one of the case examples that we discussed throughout the middle portion of this paper. Recall the case of Dr. Palmer and Mrs. Roubal. Mrs. Roubal is an indigent patient with no health insurance who needs to be hospitalized for extensive diagnostic testing. Dr. Palmer is her physician of twenty years who knows that the nearest metropolitan hospital will not accept her. At the same time, Dr. Palmer is under pressure from the administrator of the local hospital to be stingy with his admissions for patients who cannot pay, because the local hospital is in serious financial jeopardy. How can Rational Democratic Decisionmaking help Dr. Palmer resolve the conflict between his allegiance to Mrs. Roubal as her physician (and friend), and his responsibility to the hospital as a steward of the community's medical resources? The first step simply is to identify and articulate the problem. Although the Rational Democratic Decisionmaking process could be initiated by any member of the community, I anticipate that usually it would be started by physicians. Due to the nature of theirjobs, problems related to health care delivery come to doctors' attention often. In this particular example, the issue is that the financial condition of the local hospital has created a dilemma between Dr. Palmer's duty to the hospital and his obligations to his patients who are poor. Now that Mrs. Roubal's case has manifested the problem to Dr. Palmer, he might approach the 54 town government and say something like "I've got this problem that I'm not sure how to handle..." This would start the process of Rational Democratic Decisionmaking into motion. Next, public meetings would be set up to discuss what should be done about the dilemma. These meetings should be given heavy advance billing in newspapers, in radio advertisements, and on flyers tacked up in conspicuous places like the post office, gas station, and grocery store. Community leaders such as ministers, school officials, business people, physicians, etc. should be persuaded to encourage their congregations, students, associates, patients, and colleagues to attend. Special efforts would be made to encourage the attendance of representative members of each of the community's different cultural, racial, religious, socioeconomic, and special interest groups. In this case, a capable advocate for the interests of the medically-underinsured poor should be recruited. The goal, of course, would be the fair opportunity for everyone's interests to be represented, especially those of the politically weak. Specialists would be brought in to consult in their areas of expertise. In our example, a professional medical ethicist might advise on moral issues; a lawyer might ensure that proposals are legal; a doctor might assess what a given proposal would mean for patients; an independent hospital finance consultant might. determine the potential effects of different plans on the community hospital; an economist might estimate the consequences for the town's vitality. These experts should be neutral and objective, serving only as consultants and not as advocates. Neither should this panel act as any sort of "commission," for final decisions are to be left to a democratic vote of the community at large. Essentially 55 what I mean to describe here is a town meeting, undertaken with particular care to ensure that fair representation is achieved, and enriched by the input of consultants who are experts in fields that are germane to the issue. In the meetings themselves, everyone in attendance should be given an equal right to be heard, and no one group or individual should be allowed to dominate the discussion. Arrangements should be made for prepared statements to be read from those whose health, job, or peculiar circumstances will preclude their personal attendance. After sufficient time for discussion and deliberation, proposals should be articulated and presented for a referendum. For example, in this case proposals might range from limiting the treatment of indigent patients to emergency room visits only, to levying additional taxes so that health care services to the indigent could be expanded above their present levels. Between these two extremes, a middle-of-the-road pr0posal might define certain circumstances under which indigent patients could be admitted to the local hospital, and establish a policy for arranging their admittance to the metropolitan center under other circumstances. The third stage of Rational Democratic Decisionmaking is to put the potential solutions to a democratic vote of the community's residents. If a proposal is passed, then provided it is not found to violate a "constitutional principle" of the sort laid out by Fleck it would be deemed morally-legitimate and binding. It is important to emphasize that the purpose of Rational Democratic Decisionmaking is to generate standing policies to guide the handling of various classes of cases. That is to say that in our scenario, it is not implemented simply to solve Mrs. Roubal's dilemma, but rather to solve her case as well as all cases that are similar 56 to hers that will be encountered in the future. Mrs. Roubal just happens to be the patient whose situation has crystallized the larger moral problem for Dr. Palmer. We cannot predict just what the outcome would be in Dr. Palmer's town, of course, because results would reflect the unique character and circumstances of individual communities. ADVANTAGES OF RATIONAL DEMOCRATIC DECISIONMAKING At the end of Chapter Two we concluded that in order to resolve rural physicians' role conflicts, a method must possess three crucial features. First, it must produce resolutions that are relevant to the unique contexts of individual communities. Second, the approach must find a compromise between the various competing values that pertain to the issue at hand. Finally, the method must achieve the first two objectives while simultaneously respecting upper-level moral principles. Rational Democratic Decisionmaking satisfies each of these criteria. Rational Democratic Decisionmaking's meets our specificity requirement by virtue of its democratic nature. Resolutions produced by Rational Democratic Decisionmaking are not the products of remote philosophical constructs. Instead they are conceived of and implemented by the residents of the community themselves. W I I 00.1‘00 .|.o . “0. 0.1.1-‘ ._I‘ 0000., {'0‘ ‘00-. W The options are then deliberated and put to a vote. Rational Democratic Decisionmaking succeeds in “going all the way down” by structuring decisions from the bottom up. What emerge from the process are policies that are virtually tailor-made for the problems they are meant to solve. Thus, Rational 57 Democratic Decisionmaking represents an extremely flexible, practical, and context-sensitive approach to ethical dilemmas. The same characteristics that allow Rational Democratic Decisionmaking to pass our specificity test also enable it to strike a balance between multiple moral considerations. With Rational Democratic Decisionmaking, appeal is not automatically made to any one particular normative principle. In the course of the deliberations, various viewpoints, values, and precepts will arise, each of which will demand attention. Community members must weigh each of these claims, and incorporate them in the proposals to the degree that they deem appropriate. 'I ' II... 0| . ‘III ‘ o «.I II ‘ o..- . IIo . lel‘l ._ or. -. 01!‘-.°l0 l‘ 01 ‘1'10 «.7 I. 0‘ I. -. Q‘llllo. ie'lsl.‘ll0 ' " 'IlsIIOII“ 0_ ‘0- ‘Il‘l I-_ ' In -.I ‘ l‘ I. ‘ ‘ o 0110‘ I0 “0 ._ —.II .. . I. I. . Finally, Rational Democratic Decisionmaking satisfies the third component of our test in that it acknowledges the validity of upper-level moral principles. Although Rational Democratic Decisionmaking grants voters wide freedom to shape their own resolutions to ethical dilemmas, their autonomy is not unlimited. It is restricted to the boundaries established by the constitutional principles. By laying QHI an imtiglable 0| . OI 0“” ".0111! o l‘ a OI-. ‘Q'llllel .l “02 IO!“ {gut l‘IIo .' D‘ " II-..I-..0‘ ‘I‘ “0'. 0.0 II II . if" II I . In addition to satisfying the criteria we have set up for distributive models, Rational Democratic Decisionmaking also offers further advantages. According to Fleck, "access to health care is properly thought 58 of as a public interest," (1992, p. 1602). If this is true, then Rational Democratic Deliberation appropriately offers the community the opportunity for self—determination regarding its public goods: decisions that emerge from Rational Democratic Decisionmaking are self-conceived and self-imposed. Provided that basic moral concerns are protected by a set of constitutional principles, the fairest way to settle questions involving the allocation of communal resources is to let the community decide them for itself. As Rosenblatt and Moscovice recommend, "local communities will be well served if they take (health care) planning into their own hands and make it a joint activity engaged in by the people who stand to benefit." (p- 272). WWW '. 01-. "I 0 -_' I‘ 'OIII... 0. _0 09‘! ‘ IIII ‘ I‘ .0 ‘ 091' ‘ o ‘I‘I 0 ‘0 ‘QI‘Illv. I00. I‘OII OIIII.I-. ‘0- . While it might be possible to construct a case for applying Rational Democratic Decisionmaking to privately held resources, such an argument would be more difficult and will not be attempted here. Rational Democratic Decisionmaking would also make resource allocation policies explicit. Currently, ethical decisions regarding the utilization of a community's health resources are sometimes made by individual physicians, hospital administrators, or medical ethicists on the basis of idiosyncratic personal values, vested interests, or remote phil050phical constructs. Some authors, such as David Mechanic (1992), and Guido Calabresi and Phillip Bobbitt, (1978), believe that it is better for rationing protocols to be implicit in order to preserve the public's illusion that morally-difficult decisions are not being made. For instance, it is now widely known that British physicians used to explain to their older patients in kidney failure that "nothing more can be done," when in 59 fact they were denying them access to renal dialysis so that slots could be kept open for younger candidates. The crucial issue here is not the legitimacy or illegitimacy of using age as a rationing criterion. Rather, the most morally-troubling feature of this example is that denied patients were not told they were being denied. What they were told was that no medical options existed. This was a lie, but it was a lie that was successfully hidden because rationing decisions were made from behind a veil of secrecy, away from public scrutiny. Rationing decisions that are closed to public examination are at best potentially capricious and idiosyncratic; at worst, they are manipulative and morally—treacherous. Rational Democratic Decisionmaking minimizes the potential for the veiled danger of implicit rationing by opening up these kinds of decisions to public debate. Since it is the community itself that formulates the terms of a policy, it is impossible for any aspect of a proposal to be kept hidden or secret. This feature promotes fair, public, legitimately self-determined outcomes. As Fleck states, "moral premises need to be made explicit so that they can be publicly assessed through a democratic consensus mechanism," (1992, p. 161 1). In addition to these general advantages, Rational Democratic Decisionmaking has particular appeal for rural physicians. Content in the knowledge that policies are established by public consensus, and that they are compatible with high-level constitutional principles, physicians would be able to follow policy guidelines with increased moral confidence. In granting the community the power to decide ethical questions, Rational Democratic Decisionmaking removes from physicians the uncomfortable burden of deliberating ethical issues in isolation. Rational Democratic Decisionmaking makes these issues a public concern, so while physicians 60 certainly must participate in the deliberations, the need for them to wrestle with heavy moral questions all by themselves is eliminated. As a result, physicians would not have to worry about making mistakes due to their own potentially faulty moral judgment. No longer would physicians have to fret over "making the right choice," or "doing the right thing." The choice already would have been made, and it would be patients themselves who made it. The tension between rural physicians' conflicting roles thus would largely be relieved. As Mirvis says, physicians would be the patient's advocate for "things that appropriately fall under the umbrella of professional autonomy and that are determined by the public to be available to the patient," (p. 1349). There is another feature of Rational Democratic Decisionmaking that can help physicians feel more comfortable about carrying out the policies that the procedure generates. In the United Kingdom, the health care system operates on a global budget, and primary care physicians act as gatekeepers. There is a kitty of common resources, and access to the account is controlled by primary care doctors. Therefore, if physicians conserve funds through efficiency or rationing, then more money remains in the pot to be spent on patients with serious medical problems. Norman Daniels (1986) refers to this kind of system as "closed," because financially it is self-contained in the form of a hard budget. Daniels writes that one reason why American physicians tend to overemphasize their roles as patient advocates at the expense of their roles as public stewards stems from the nature of our health care system. In the United States, health care largely is left to the private domain, and as a result there is seldom such a thing as a global budget. Because our health care system has no fixed budget ceiling, when American doctors 61 implement a rationing protocol they "have no assurance that the resources they save will be put to better use elsewhere in the health care system," (1986, p.1382). Since they cannot be sure that the resources they deny to one patient will be used for another patient with higher-priority needs, many physicians decide that they might as well do everything they can for the patient who is before them. But because of the relative geographic isolation of many rural areas, rural health care services can approximate closed systems. In the city there are often multiple public and private hospitals, each competing with the others in a free market environment. When they deny patients care, it is seldom because they have a more just purpose in mind for the resources that would have been spent. Instead the denial is likely to be related to considerations such as profit and incentive. But in the country, the community's hospital might constitute practically its entire health care system. Consequently, Rational Democratic Decisionmaking can provide rural physicians with a clearer idea of how the resources that they conserve by rationing treatment will be utilized in a more important capacity. Any savings gained from carrying out policies that restrict some services would be channeled into other services that the community has decided are more important. Because savings would be retained within the community and used to support high-priority services at the local hospital, rural health care could more closely resemble the kind of "closed system" that Daniels describes. As a result, community- determined allocation guidelines would be easier for rural physicians to accept. To borrow again from our example, a guideline might be adopted that would regulate the use of the local hospital by the uninsured poor. In the 62 event that, under the guideline, Dr. Palmer should have to deny Mrs. Roubal care at the local hospital, he at least can be comforted in the knowledge that there is a higher purpose for doing so (and so can she). By avoiding the costs of unreimbursed care for lower-priority treatments, the hospital can remain open and able to provide care that is judged to be more important. Fleck says that when established policies dictate that a physician must limit a patient's care, the physician "can in good conscience implement those rationing protocols because the savings will be recaptured for higher priority health needs, and those protocols and priorities will have been endorsed by that patient," (1992, p. 1627). Rational Democratic Decisionmaking thus allows physicians to make sense out of having to deny care. OBJECTIONS TO RA'ITONAL DEMOCRATIC DECISIONMAKING In spite of the many advantages l have described, I can anticipate some objections to Rational Democratic Decisionmaking. Like any democratic process, the legitimacy of Rational Democratic Decisionmaking hinges at least in part on fair representation and equity, and so I expect that some skeptics would argue that these criteria would be difficult to achieve. Critics might object that the interests of the politically weak would be overlooked, while the interests of the politically powerful would unfairly dominate. For example, the health care needs of the homeless might be easy to ignore, while the mayor might push for the health care needs of his genetically-diseased family. Essentially, this objection asks how Rational Democratic Decisionmaking would deal with the potential for oppression of a powerless minority, and how it would deal with individual self-interest. 63 First let us tackle the issue of oppression. l have already stated that special measures to encourage representation from politically- disadvantaged groups would have to be a part of the Rational Democratic Decisionmaking process. And failing that, the constitutional principles would be in place to protect their moral status. Yet there is a third aspect of Rational Democratic Decisionmaking that would add an additional safeguard against disrespecting the politically powerless. In the matter of health care, says Fleck, "we are capable of a rare degree of impartiality because we really do not know enough about our future health needs," (1992, p. 1632-33). David Eddy has described this ignorance of our future medical needs in terms of positions, (1991a). Position 1 is the position in which people are healthy. Before they fall ill or become injured, most people have no idea what kinds of health care options they might require in the future. From position 1, then, people operate from behind a veil of ignorance with respect to the choices they make for their future health care: their lack of insight into what their own personal needs will be tends to ensure that their choices will be impartial. Additionally, it is unlikely that people will vote so as to exploit a particular group if it is understood that, should they unexpectedly find themselves members of that group, the rules will not be bent for them. For example, residents are likely to vote for a proposal that respects the rights of the uninsured if they are aware that should they lose their own coverage they will be treated like any other uninsured patient. An understanding that exceptions cannot be made would help prevent the adoption of guidelines that discriminate against a weak minority in the event that the many other safeguards inherent in the Rational Democratic Decisionmaking process were to fail. 64 But how would Rational Democratic Decisionmaking prevent domination by a self-interested and powerful minority? After all, the mayor's family has a pretty good idea about what kinds of medical care they will need. These people are in Eddy's position 2; that is, they are presently sick or hurt, and so have significant insight into what their health care needs will be. As a result, they might be tempted to shape decisions that seem to be in their immediate personal self-interest, instead of choosing impartially. But first of all, even if each member of the family were to vote selfishly, their ballots would be diluted by the other members of the community, who presumably are impartial. This is a democratic process where all votes are equal: those of the mayor's family carry no special weight. Second, the mayor's family would have to be made to understand that if they monopolize the community's resources to deal with their genetic disease, then sufficient resources might be unavailable to treat other, more common conditions. Further, they must understand that their friends and relatives and future children who are not afflicted with the condition might be denied treatment for these common illnesses, because resources would be committed to treating the genetic disease. To avoid "hogging," then, it is important to make it clear that since allocation protocols will apply to all members of the community, people should consider what the effects would be on everyone they care about before they decide to vote selfishly. In rural towns, where "everybody knows everybody," it seems as though this type of safeguard would be particularly effective at curtailing the ability of a minority to dominate the political process. Some authors, such as E. Haavi Morreim, have raised another concern. They object that no proposal for distributive justice will permit physicians to completely avoid the need to make bedside ethical choices. 65 Even with explicit guidelines in place, Morreim states that "the physician cannot escape reckoning with awkward decisions," (p. 101 S). Rodwin argues that in such situations, physicians rely on their own discretion and subtlety of judgment, with the resulting tradeoffs representing a moral risk to patients, (p. 160). If bedside allocation decisions are indeed inevitable, one might wonder what is to be gained by investing in Rational Democratic Decisionmaking. While Morreim's point about the inevitability of rationing at the bedside is probably true, explicit guidelines would reduce the need for it significantly. Rational Democratic Decisionmaking minimizes the risks to patients by generating explicit protocols, thereby limiting the need for physicians to rely on their own moral judgment. If the guidelines produced by Rational Democratic Decisionmaking are sufficiently fine- grained and specific, then a small, unavoidable degree of "play" would be acceptable—-a sort of grey area within which the public must trust physicians to make judgments in good faith. .And physicians must strive to be worthy of that trust by exercising their best moral reasoning. Thus, in those minor circumstances where a guideline fails to provide clear direction to physicians, trusting them with their discretion would seem to pose little danger. Rational Democratic Decisionmaking would ameliorate the problem substantially, and so the fact that it might fail to eliminate the need for physicians to make ethical decisions hardly seems like a valid reason to reject it. A situation that could not be tolerated, however, would occur if physicians step outside of this grey area to subvert the system because their personal beliefs conflict with a hard and fast guideline generated by Rational Democratic Decisionmaking. "Gaming the system" must be 66 strictly prohibited. For instance, suppose that a morally-legitimate protocol emerged from Rational Democratic Decisionmaking that prevented Dr. Palmer from admitting Mrs. Roubal for the testing that he felt she needed. As her personal friend, Dr. Palmer might be deeply frustrated by the fact that his hands are tied by the guideline. However, it would be unacceptable for him to decide to change her diagnosis or exaggerate the seriousness of her condition in order to win her admission. Such arrogance and selfishness would undermine the very purpose of Rational Democratic Decisionmaking, and would be plainly dishonest. Furthermore, it would disrespect the autonomy of the community at large, and indeed of Mrs. Roubal, who presumably consented to abide by the protocol at some point in the past. If Rational Democratic Decisionmaking is to be of any utility, then, it will have to be free of "gaming" by disgruntled physicians. As Mirvis states, "it is not appropriate to subvert the system by political manipulation or deceit in order to gain for patients things to which they are not entitled by social or legal contracts," (p. 1349). This point about gaming suggests a final objection to Rational Democratic Decisionmaking. Imagine a scenario in which a town has passed a guideline that directs its physicians to deliver uncomplicated pregnancies at the local hospital so that enough income is generated by the hospital's obstetrical service to keep the service open. Now imagine that upon becoming pregnant, a wealthy member of the community decides that she would rather deliver her child at a nearby metropolitan hospital, because although her pregnancy has been uneventful she feels that the urban facility is better equipped to handle an unanticipated emergency. She has secretly been seeing a specialist in the city who has agreed to 67 admit her to the metropolitan hospital for her delivery. She is paying him out of pocket to avoid double-billing her insurance company. When her labor begins, she calls the specialist, has her husband drive her into the city, and delivers a healthy child. The problem illustrated by this example is obvious: what measures are in place to enforce the guidelines set by Rational Democratic Decisionmaking? In other words, how can we ensure that people follow the rules? First and foremost, it should be noted that "opting out" is morally- unacceptable behavior. Due to the fact that patients previously granted consent to the guidelines (or at least to the process that produced the guidelines), the policies "gain their moral force from respecting individual patients' own will," (Menzel, p. 10). Nevertheless, the rural physician cannot assume the role of cop. The responsibility to enforce protocol guidelines cannot rest with physicians, because such a duty would be incompatible with the trust that the doctor-patient relationship demands. The goal would be to prevent these sorts of behaviors in the first place. The residents of the community must be made aware of the potential for a "tragedy of the commons" situation to develop, in which residents vote to promote the good of the general community, but act so as to maximize their own individual good. If this selfish behavior is sufficiently widespread, then the broader good will fail to be achieved and everyone will be worse off than if they had acted unselfishly. Thus, when patients try to escape their responsibility to abide by just guidelines, "they might not only be in conflict with society, but they might well be fostering policies that are not even in their own long-term interest," (Eddy, 1991c, p. 2406). It is important that community members have a 68 solid understanding of this concept in order to decrease the frequency with which they choose to break the social contract. Additionally, the social features of rural communities make it even less likely that rural patients would attempt this sort of betrayal. Recall from Chapter One that privacy is relatively difficult to preserve in rural towns. Secrets are difficult to keep, and so the prospects of getting away with breaking the guidelines without being discovered would be rather slim. Remember also our discussion about the considerable power rural communities can bring to bear through social controls. The offending party would be subject to social sanctions whose severity would depend directly upon the seriousness of the infraction. With little chance of pulling it off, and a stiff penalty to pay for getting caught, it is doubtful that residents would dare to disregard the guidelines with any kind of frequency. For the most part, then, the potential objections to Rational Democratic Decisionmaking only help to illustrate in greater relief why it could be of particular use in resolving the tension between rural physicians' duties to their communities and their duties to their individual patients. With that in mind, it appears that we have achieved the goal that we set for ourselves at the end of Chapter Two: we have arrived at a distributive mechanism that is capable of coupling respect for a variety of generally-recognized, broad moral precepts with a high degree of context-appropriate specificity. Because it grants communities free reign to determine--within boundaries marked by a set of high-level constitutional principles--their own policies for allocating public resources, Rational Democratic Decisionmaking can strike a successful balance between various competing moral criteria while simultaneously 69 engaging morally-relevant particulars. The result is a good "fit" with the social contours of rural communities, and the alleviation of the role strain that those social features generate for rural physicians. SUMMARY AND CONCLUSIONS This thesis stresses the importance of an interdisciplinary approach to the problem of rural physician role strain. Solutions derived from abstract philosophical theories will be of little practical value unless they can contend with the particular sociological make-up of rural communities. Specifically, a potential solution must account for the financial instability of many rural hospitals, the cohesive nature of rural communities, and the vulnerability of rural physicians to social controls. The first chapter of the thesis deals with each of these elements individually. The shaky financial status of rural hospitals sets up the dilemma for physicians. The local hospital is a critical communal health resource, and as a consequence it is incumbent upon physicians to protect it. However, sometimes it becomes difficult to protect the viability of the community hospital while simultaneously maximizing the care of particular patients. In these instances, physicians find themselves torn between their roles as patient advocates and their roles as stewards of their communities' health resources. The cohesive nature of many rural towns exacerbates this dilemma. Rural physicians often have a unique familiarity with their patients. This makes "clinical detachment" hard for them to achieve, and can create a tendency for rural physicians to disregard larger, more remote goals in favor of the patient who is presently before them. 70 71 Similarly, the heightened vulnerability of rural physicians to social controls exerted by their communities makes them more likely to overemphasize their roles as patient advocates. Social pressures can be extremely intense in small towns, and as particularly conspicuous members of the community physicians are especially susceptible to them. Rural residents often believe that people should be treated regardless of their economic status, and their ability to enforce this belief is another factor that makes patient advocacy more attractive than public agency for rural physicians. In Chapter Two, rural physicians' role tension is assessed from the perspectives of several conventional, high-level moral principles. The principle of autonomy favors patient advocacy since it supports individual rights. However, autonomy does not recognize the moral legitimacy of the physician's role as a public agent, and therefore cannot be used to solve a problem whose nature it cannot grasp. In contrast to autonomy, the principle of utility stresses the interests of the community, since utility is concerned with maximum aggregate good. However, utility does not account for the nature of physicians' roles in a cohesive community: it ignores morally significant interpersonal factors. Furthermore, utility is plagued by mechanistic difficulties surrounding its proper practical application. Libertarian justice resolves allocation questions by leaving them to the free market. What is central is the capability to enter into economic negotiations; there is no recognition of a right to health care beyond one's ability to pay for it. Because it fails to acknowledge the legitimacy of other competing considerations, libertarian justice is an inappropriate solution to this conflict. 72 Egalitarian justice recognizes that many moral criteria are relevant to ethical problems, and attempts to render outcomes that strike a balance between them. However, like most general moral systems, it has a "macro" orientation, and thus is unable to achieve sufficient specificity. In rejecting these conventional moral principles, the characteristics of a potentially-successful approach become clear. First, the approach must be able to generate solutions that are appropriate for a particular rural community. Second, it must be capable of balancing numerous competing moral values. And finally, it needs to accomplish these two objectives while simultaneously preserving moral rigor. Chapter Three explores Rational Democratic Decisionmaking. This method generates solutions to ethical dilemmas by opening the issue to public debate, and then putting proposals to a democratic vote. Although outcomes are community-determined, they are constrained by a "constitution" of high-level moral principles. Rational Democratic Decisionmaking is advocated as an approach to resolving rural physicians' conflict between their roles as patient advocates and public agents for several reasons. First, its structure allows it to satisfy the criteria we formulated at the end of Chapter Two. In allowing residents to construct their own tailor—made solutions to issues regarding community resources, Rational Democratic Decisionmaking achieves a high level of specificity to context. The broad community discussions and deliberations identify a variety of relevant moral values, and each is weighed into the final solution to the extent that is deemed appropriate. Thus, the need for balance is met. And finally, the autonomy of the voters is restricted to the space bounded by the set of constitutional principles, thus insuring moral stringency. 73 Additionally, Rational Democratic Decisionmaking's reliance on the democratic process is the fairest and most appropriate way to settle issues that involve public resources, such as community hospitals. Also, the fact that the policies it produces are self-conceived and self-imposed provides a solid foundation for the moral legitimacy of the approach. Patients are not morally injured when they are denied care on the basis of a guideline to which they have granted their prior consent. Rational Democratic Decisionmaking is especially attractive to country physicians. It liberates them from the struggle of having to sort out painful ethical questions by themselves: Rational Democratic Decisionmaking is a community process. Additionally, it provides them with a clear idea of how the savings that are achieved by carrying out the protocols would be recovered and used for higher-priority purposes. In summary, Rational Democratic Decisionmaking seems to fit the bill for rural physicians. It provides a method of resolving the conflict between their roles as patient advocates and as public agents by finding a balance between the assortment of competing values such that the generated policies are context-appropriate and account for the morally- important sociological features of rural towns. Yet at the same time, these policies are also compatible with abstract, higher-level moral principles. Thus, Rational Democratic Decisionmaking is capable of generating morally sound outcomes that are suited to the unique social dynamics of rural areas. LIST OF REFERENCES LIST OF REFERENCES Andre, Judith. "Role Morality as a Complex Instance of Ordinary Morality," AmedcamEhilQSQQttinaLQuattetlx 28:1 (Jan) 1991 p 73 81 Bowie, Norman E. "'Role' as a Moral Concept In Health Care, " Magi QLMedicineandfibilosonhx 7:1 (Feb) 1982 pp 57-63 Bushy, Angeline, and J. Randall Rauh. "Ethical Dilemmas: Do They Occur in Rural Practice?" from Chapter 14 of Wang, Newbury Park, CA: Sage Publications, 1991. Calabresi, Guido, and Philip Bobbitt. W, New York:W.W Norton and Co., 1978. Carlson, John E. and Marie L. Lassey and William R. Lassey. Rurgi W New York: McGraw Hill 1981 Childs, Alan W., and Gary B. Melton, BIJLaLEflQhQIQQX. New York: Plenum Press, 1983. Conte, Susan J., and Allen W. Imershein and Michael K. Magill. "Rural Community and Physician Perspectives on Resource Factors Affecting Physician Retention," JgumgLQLBuLgLijggim, 8:3 (Summer) 1992, pp. 185-196. Daniels, Norman. W, New York:Cambridge University Press, 1985. Daniels, Norman. "Why Saying No to Patients in the United States is so Hard." flexinglandJoumaLoLMedlcme 314:21 (May 22). 1986. pp— 1380-1383. Daniels, Norman. "The Ideal Advocate and Limited Resources, " IheoteticaLMedicine 1987 8z-69 80. 74 75 Doelker, Richard E., Jr., and Bonnie C. Bedics. "Impact of Rural Hospital Closings on the Community," Sgciguiiioflg, 34:6, (Nov.), 1989, pp. 541- 543. Eddy, David M. (1991a) "The Individual vs. Society: Is There a Conflict?" W265: 11 (March 20) 1991. pp. 1446—1450. Eddy, David M. (1991b) "The Individual vs. Society. Resolving the Conflict, " MinnaLQttheAmedeedicaLAschiation 265: 18 (May 8), 1991 pp 2399- 2406. Eisenberg, John M. "Sociologic Influences on Decision-Making by Clinicians," Aaagi§_o_f_iatgLagLM_e_djgjag, vol. 90, 1979, pp. 957-964. Fickenscher, Kevin, and Mary Lagerwey-Voorman. "An Overview of Rural Health Care, " Chapter 4 ofl mmi—iggitbfioimygafi u-.-.II“"‘IIILI I "0 Shortelland Reinhardt, eds., Ann Arbor, Ml:AHSR/HAP, 1992. Flannery, Maureen. "Simple Living and Hard Choices," Ibgfigstiags W. Aug- 1982. pp- 9-12- Fleck, Leonard M. "Just Health Care Rationing: A Democratic Decisionmaking Approach," University of Pennsylvania Law Review, 140:1597, 1992, pp. 1597-1636. Fleck, Leonard M. "Just Caring: Oregon, Health Care Rationing, and Informed Democratic Deliberation," Journal of Medicine and Philosophy, 19:367-388, 1994. Friedman, Marilyn. "The Social Self and the Partiality Debates," Chapter 10 of EgmiaigLEthjgs, Lawrence, KA: University Press of Kansas, 1991. Geyman, John P. "On the Plight of the Rural Hospital, " W W, 6: 3, 1978, pp. 477- 478. Glusker, Peter. "Ethical Decisions in Small Hospitals," AaagiiQI iatemgLMgdjgiae, 110:5 (March 1), 1989, p. 413. Griffin, Theresa, and Janis Williams, Craig Barron, Lawanda Hartman, and Kathy Trombatore. "Going the Distance: Rural Health Care in 76 Texas," W, 86:8, (Aug.) 1990, pp. 26-32. Hart, Gary L., and Michael J. Piriani and Roger A. Rosenblatt. "Causes and Consequences of Rural Small Hospital Closures from the Perspectives of Mayors," JQQmaLQLBuLaLHgaim, 7:3, (Summer), 1991, pp. 222-245. Hassinger, Edward W., and Lucille Gill, Daryl J. Hobbs, and Robert L. Hageman. "Perceptions of Rural and Metropolitan Physicians About Rural Practice and the Rural Community, Missouri, 1975," Public Was, 95:1 (Jan-Feb) 1980, pp. 69-79. Havron, Dean. Personal communication (written reactions to early draft of manuscript), May, 1994. Hilfiker, David. "Facing our Mistakes," MW, 310:2, (Jan 12), 1984, p. 118-122. Jecker, Nancy S. "Integrating Medical Ethics with Normative Theory. Patient Advocacy and Social Responsibility," W, vol. 11, 1990, pp. 125- 139. Jecker, Nancy S., and Alfred O. Berg. "Allocating Medical Resources In Rural America: Alternative Perceptions of Justice, " SociaLScigncg andLMedicine, 34: 5, 1992, pp. 467- 474. Johnson, Oliver A. - ' - Milena, New Yorszolt, Rhinehart, and Winston, 1984. Kimball, Chase Patterson. "The Ethics of Personal Medicine, " Medical ClinicuLNoctbAmeLiga 61: (July) 1977 pp 867 877 Klein. Norman. MW Dubuque:Kendall/Hunt, 1976. La Puma, John, and Edward F. Lawlor. "Quality-Adjusted Life-Years: Ethical Implications for Physicians and Policymakers, " Whig AmericamMedisaLAssosjation 263: 21 (June 6) 1990 pp- 2917- 2921 Levinsky, Norman G. "The Doctor's Master," Wm Medicine, 311:24 (Dec. 13), 1984, pp. 1573-1575. Magaro, Amy. "The Back Roads of Reform," WEED. 43:1 , (Jan- Feb), 1994, p. 12-16. 77 MargoIis, Richard J. "In America's Small-Town Hospitals, A Patient Isn't 'Just A Number,” MW. 73:(Jan) 1990, pp. 24-33. Mechanic, David. "Professional Judgement and the Rationing of Medical Care " MW. 140: 5 1992 Menzel, Paul. flmMedicine, New York:Oxford University Press, 1990. Mirvis, David M. "Physicians' Autonomy--The Relation Between Public and Professional Expectations," from Sounding Board, IheNenLEnglend qumeLQLMedicine, 328:18 (May 6), 1992, pp. 1346-1349. Mooney, Gavin. "Medical Ethics: An Excuse for lnefficiency?" qumeicj Medicaiflhics, 10:4 (Dec.), 1984, 183-185. Morriem, E. Haavi. "Fiscal Scarcity and the Inevitability of Bedside Budget Balancing," AmhixescflntemeLMedicine, 149:May, pp. 1012-1015, 1989. Nelson, William A., and Andrew S. Pomerantz. "Ethics Issues in Rural Health Care," excerpted from W. ChicagozAmerican Hospital Publishing, 1992. Nozick, Robert. W, New York:Basic Books, 1974. Purtilo, Ruth, and James Sorrell. "The Ethical Dilemmas of a Rural Physician." 83W. Aug. 1986. pp- 24-28- Rawls, John. "Justice as Fairness," Iheleumaictfihiicecehy, S4:(Oct.),1957, pp. 653-662. Reece, (19903). "Solo Doctor, Small Town, Tiny Hospital," mm Medicine, 73:(Jan), 1990, pp. 10, 54-56. Reece, (1990b). "Our Medical Man in Moose Lake," Minneectafledicine, 73:(Jan.),1990, pp. 11-14. Rodwin, Marc A. W, New York:Oxford University Press, 1993. Rogers, EverettM., and RabeIJ. Burdge, PeterF. Korsching, and Joseph F Donnermeyer SeciaLCbangeJnBuLalfigcieties New Jersey: 78 Prentice Hall, 1 988. Rosenblatt, Roger A., and Ira S. Moscovice. W, New Yorszohn Wiley and Sons, 1982, pp.1-23. Scherer, Jacqueline. ' ' I W. London: Tavistock Publications, 1972. Sherwin, Susan. "Feminist and Medical Ethics: Two Different Approaches to Contextual Ethics," Hypetie, 4:2 (Summer), 1989, pp. 57-72. Smith, Harmon L. "Medical Ethics In the Primary Care Setting," Social SeieneeaniMedieine 25:6 1987 pp 705- 709 Toennies, F. Ccmmunimndjcciejy, (C.P. Loomis, Ed. and trans.), New Yorszarper and Row, 1963. Veatch, Robert. "Duty to the Patient, " Chapter Three of Caeejjudieem MedicaLEthics, Cambridge: Harvard University Press, 1977, pp. 59-88. Wakefield, Mary. "Health Care in Rural America," excerpted from a presentation to the AACN Board of Directors, March 4, 1989. Wolf, Susan M. "Health Care Reform and the Future of Physician Ethics, W, 24:2, (March-April), 1994, p. 28- 41. Wolff. Jonathan. We Stanford:Stanford University Press, 1991. HICHIGnN STATE UNIV. LIBRARIES llllllllllllllllllIlllllllIllllllllllllllll 31293010219651