COMMUNICATION BETWEEN HEARING PARENTS AND YOUNG CHILDREN WITH HEARING LOSS: INFORMATION PARENTS RECEIVE AND UTILIZE TO SUPPORT CHILDREN’S LANGUAGE DEVELOPMENT By Kalli B. Decker A DISSERTATION Submitted to Michigan State University in partial fulfillment of the requirements for the degree of Human Development and Family Studies – Doctor of Philosophy 2015 ABSTRACT COMMUNICATION BETWEEN HEARING PARENTS AND YOUNG CHILDREN WITH HEARING LOSS: INFORMATION PARENTS RECEIVE AND UTILIZE TO SUPPORT CHILDREN’S LANGUAGE DEVELOPMENT By Kalli B. Decker Family-centered early intervention for children with hearing loss is intended to provide parents with information about ways to strengthen interactions with their children that can promote children’s language skills. Best practices within the field of early intervention suggest that service providers should encourage parents to provide language-rich environments and use specific language techniques; however, these best practices are stated in vague ways, and do not provide specific examples of the information service providers should give to families. Research provides details about what these language environments should be like: specific quantities and qualities of parents’ language have been shown to predict the language skills of children with hearing loss, such as parents’ use of a greater amount of different words (e.g., word types) and certain language techniques (e.g., expansion). Furthermore, researchers have hypothesized that information parents receive as part of early intervention may influence these quantities and qualities of parents’ language; however, this has never been investigated. Therefore, the purpose of the current research was to investigate the information that parents receive as a result of participating in early intervention, and examine how this information was related to the quantities and qualities of their language when they interacted with their children. Participants were primarily recruited via early intervention service providers throughout Michigan. Participants included 12 parents (11 mothers) who were hearing, and their children with permanent hearing loss who were between 12-29 months of age (M = 21.6). Parents participated in an interview about their experience with early intervention, and an observation of parent-child free play. Study 1 examined parents’ reports of the information they receive from early intervention service providers about how to promote the language development of their children with hearing loss. Thematic analysis was used to identify patterns in the information parents received. Results suggest that the information parents receive is partially in line with current best practices within the field of early intervention, such as the importance of frequent communication with their children during everyday activities. However, parents also discussed the need for additional information and unbiased support about how to promote their children’s language skills. Study 2 examined parents’ quantities of language and use of specific language techniques during free play with their children, and how this related to their reports of information received from their service providers. Relationships between these aspects of parents’ language and other important contextual factors, family socioeconomic status (SES) and children’s current language skills, were also examined. There was substantial variation in the quantities of parents’ language, including overall talkativeness, and in their use of specific language techniques. Parents’ use of parallel talk was related to their receipt of information about the importance of frequently talking with their children throughout the day. Other patterns indicated that parents of lower SES used more directives with their children, and children who used a greater number of word types may elicit parents’ use of the language techniques shown to promote their language development. Taken together, these studies reveal that the information parents receive from early intervention is important to their language inputs when interacting with their children with hearing loss. Furthermore, these studies demonstrate the importance of providing parents with more nuanced information about the specific ways in which they can support their children’s language development by building on their existing skills. ACKNOWLEDGEMENTS It seems unreal that my time in graduate school and at Michigan State University is coming to a close. I cannot believe how fast the time has gone. I have many wonderful memories from graduate school that range from deep, insightful conversations shared over a bottle of wine, to middle of the night push-up challenges that still make me laugh. It seems like it was just yesterday when I was an undergraduate teaching assistant for Richard Wampler, and he told me that I had to go to graduate school. I am really glad I took his advice. Thank you for pestering me all those years ago, Richard. I have learned so much from the many wonderful people I have met throughout the years in this program, including faculty and fellow students. I have also gained invaluable knowledge from the parents and children with whom I have met as part of my research, as well as from the early childhood teachers and individuals who are part of the early intervention community. The knowledge that I gained along the way has led me to understand that my learning will never end, and the expertise that I now have is only a small piece of a much larger picture; at the beginning I found this overwhelming, but now I find comfort in knowing that my exploration via research and teaching always has the possibility to help me acquire new knowledge and skills. I am thankful for the academic ‘family’ I now have. Of my academic family, there is one person who has been most influential. Claire, thank you for helping me find out who I am as an academic without telling me who it is that I should be. I have known you for a quarter of my life, and I frequently think about how fortunate I am to have spent these years working with someone as knowledgeable and caring as you. You supported me while I searched for my niche, and you continue to do so since as I still am in the process of figuring this out. I have learned so many iv things from you. You are an exceptional mentor and have created a wonderful space in which to learn and explore. I am so thankful to know what it feels like to have a more experienced scholar support me and care about my progress; it is my hope that I have learned this skill, and will treat my students as well as you have treated me. Because of your unconditional support, I can forever be known as your student who is responsible for the strategic placement of facial tissues in your office. Graduate school, and life in general, was challenging at times. Thank you for supporting me through these phases of my life. I look forward to your continued support as I transition through the next phases of academic life. I am also appreciative of the many other faculty members who have mentored me in a variety of ways. Lori, thank you for supporting me as I was becoming a researcher; you supported me as I was learning new skills and gaining additional experience outside of my direct area of research. I will always remember the support you provided to me during my first year of college teaching; it has shaped the teacher I am today. I am also greatly appreciative of your honesty since I know that this means that I can count on you to help guide me during challenging times. Dr. Carolan, thank you for being so welcoming and helping me navigate multiple stages of graduate school. I have been able to come to you many times with questions and concerns, and you have always helped guide me without telling me exactly what it is that I need to do. Dr. Johnson, I am so appreciative that you have shared your knowledge and expertise with me related to children with hearing loss. I frequently felt alone as I was learning about how to support these children and their families. Thank you for providing guidance during these times. I am also greatly appreciative of the learning experiences that I gained at the Child Development Laboratories (CDL). Thank you, Laurie and Marisa, for welcoming me into the CDL and providing me with opportunities to learn from some of the best early childhood v teachers in our community. My experience at the CDL was very meaningful to my graduate career, and helped me understand how to be a better researcher and teacher, for young children as well as my undergraduate students. The friendship that I gained from being at the CDL was an added bonus. Marisa, thank you for being such a fun and supportive person to have in my life. The research that I have done would not be possible without the time that my undergraduate students have dedicated to spending on various projects. I have worked with so many wonderful undergraduate students over the years. I am especially appreciative of Allie, Becky, and Stephanie, who helped me collect data and complete many of the steps that were necessary for this dissertation. I look forward to the day, in the not so distant future, when I can be the one to call on you for your knowledge and experience. I am also deeply appreciative of the funding that has made my time in graduate school and my research for this dissertation possible. I have received generous funding and scholarships from the Department of Human Development & Family Studies over the years, and because of this, I have had the opportunity to do be part of many research teams and learn how to teach undergraduate students. I am also appreciative of the funding that supported this dissertation from the Early On Center for Higher Education and the Fahs-Beck Fund for Research and Experimentation. The support from Early On and the early intervention community throughout Michigan was key to successfully reaching families, and for this I am very appreciative. I also wish to thank the families who were willing to share their time and experiences with me, and welcome myself and my research assistants into their homes. To my friends, both near and far, thank you for your support over the years. The graduate students I have met have made this experience so much fun, even at times when it felt impossible and never ending. Thank you to those who have kept me company during the many long, tedious vi hours of reading and writing that comes with graduate school. In particular, I am so thankful to have met Ashley and Trish; I can always count on each of you to help me see the forest through the trees, and you always help me find a reason to laugh hysterically. I am also deeply appreciative of the friends I have made outside of graduate school who are part of the MidMichigan Food Club, especially Danielle and Darren. You helped bring perspective and balance to my life at a time when I needed it the most. Knowing that I could count on you for a warm meal and a really good laugh was deeply comforting. Most importantly, I am thankful for the unconditional love and support of my mom, Dale. Mom, thank you for encouraging me to find a path in life that makes me happy, and for supporting me every single step of the way. You have always said that you wanted me to be able to experience things in life that you never had the chance to, and I thank you for making sacrifices so that I could go to college and pursue my interests. Your love and support means so much to me. I am also thankful for the support and encouragement from my sister, Amber, and my grandma, Virginia. Also, to my partner, Seth, who has provided me with love, empathy, and support during the most stressful years of my doctoral program: thank you for helping me find a sense of balance in my life and for always finding a way to make me smile. vii TABLE OF CONTENTS LIST OF TABLES xi LIST OF FIGURES xii CHAPTER 1: INTRODUCTION Purpose Theoretical Framework Rationale for the Current Studies Aspects of Parent-Child Communication that Promotes Children’s Language Development Information Provided to Parents by Professionals Best practices in the field of early intervention Contextual Factors that Influence Parents’ Language Inputs Chapter Summary REFERENCES CHAPTER 2: STUDY 1 Abstract Introduction Best Practices of Early Intervention Parental self-efficacy Unbiased information regarding communication choices Supporting parent-child interactions Information Provided to Parents by Professionals Current Study Methods Early Intervention Services within the State of Michigan Participants Procedures Transcription and Coding Transcription Reliability and validity Coding Results Theme 1: The Importance of Talking Frequently, Particularly in the Context of Everyday Routines and Activities Subtheme: Effective speech, such as speaking clearly, may be particularly important Subtheme: Using signs to supplement frequent speech Summary Theme 2: Promoting Listening Skills and Language by Focusing on Sounds Theme 3: Incorporating Other Communication Channels viii 1 1 1 5 6 11 13 16 18 21 28 28 29 31 33 34 35 37 40 41 41 42 44 45 45 46 46 48 50 52 52 53 54 56 Theme 4: The Essential Role of the Parent Theme 5: Parents Need Additional, Unbiased Information in Order to Feel Supported Subtheme: A need for more information and support related to signs/sign language Subtheme: The need for more specified information Connections between Themes Talking frequently is central to the information parents receive Parents are important to their children’s language development; therefore, they receive a variety of information to support their children Summary Discussion Alignment with Best Practices Unmet Needs Implications for Practice Limitations Future Directions REFERENCES 57 CHAPTER 3: STUDY 2 Abstract Introduction Parent-Child Interactions and Children’s Language Development The potential relationship between information provided to parents and aspects of their language inputs Contextual factors that influence parents’ communication Current Study Method Participants Recruitment and Procedure Observation of parent-child free play Parent interview Transcription and quantitative observational coding of parents’ language techniques Transcription and coding of parent interviews Analytic Approach Results Study Aim 1: Descriptions of the Quantities and Qualities of Parents’ Communication Quantities of parents’ language Qualities of parents’ language Study Aim 2: Associations between Parents’ Communication and Information Received Overarching patterns Quantities of language input 85 85 86 87 ix 59 59 61 62 63 64 65 66 67 68 72 74 75 77 91 94 97 99 99 101 102 102 103 107 109 111 111 111 112 113 113 116 Higher-level language techniques Study Aim 3: Associations between Parents’ Communication and Contextual Factors Family socioeconomic status Children’s language use Post-hoc Analysis: Parents’ Communication Modalities and Receipt of Information about Signs Discussion Implications for Practice Limitations Future Directions REFERENCES CHAPTER 4: INTEGRATIVE CONCLUSION Contribution to Existing Literature Implications for Practice Future Directions REFERENCES 119 122 122 123 126 127 130 131 132 134 142 142 145 147 149 x LIST OF TABLES Table 2.1 Demographic Information 42 Table 3.1 Demographic Information 100 Table 3.2 Definitions and Examples of Language Techniques Used to Code Parents’ Utterances, Noises, and Vocalizations 105 Table 3.3 Quantities of Parents’ Language Use during Free Play 112 Table 3.4 Excerpt from Free Play between Parent-Child Dyad 103 118 Table 3.5 Children’s Language Use during Free Play and Their Age in Months 125 xi LIST OF FIGURES Figure 1.1. Theory of change. 2 Figure 2.1. Thematic map of information parents receive from their early intervention service providers. 49 Figure 3.1. Parents’ average use of specific language techniques (LTs) per minute. Lowerlevel LTs are above the line, and higher-level LTs are below the line. 113 Figure 3.2. Information parents receive about how to promote their children’s language development. 114 Figure 3.3. Parents’ average use of language techniques (LTs) per minute. 117 Figure 3.4. Parents’ mean length of utterance (MLU). 119 Figure 3.5. Parents’ use of parallel talk (PA) per minute. 120 Figure 3.6. Parents’ use of open-ended questions (OQ), expansion (EX), and recast (RE) per minute. 125 xii CHAPTER 1: INTRODUCTION Purpose Communication between parents and children is important to children’s early language development, and it is particularly important for children who have hearing loss since these children are more likely to experience language delays compared to their typically hearing peers. Family-focused early intervention is crucial to promoting the language skills of children who have hearing loss, and an important component of these intervention services are intended to provide families with information about ways in which to strength their interactions with their children that can then promote their children’s language skills. However, we know little about the information that is provided to families via early intervention service providers about supporting the language skills of children who have hearing loss. There is reason to believe that the information parents receive from their early intervention service providers may influence aspects of parents’ language inputs with their children, but this has yet to be studied. Therefore, this dissertation includes two studies for the purpose of investigating and contributing to the existing literature related to: (1) the information that parents receive about how to encourage the language development of their children with hearing loss, and (2) the ways in which parents of young children with hearing loss communicate with their children, and how these aspects of communication are related to the information that parents receive from their service provider(s). Theoretical Framework The overall goal of these studies is to better understand the interactions between parents and their children who have hearing loss and what may influence these interactions, since aspects of these interactions have the potential to lead to significant, positive changes in children’s language development. 1 Figure 1.1, the theory of change for the current studies, outlines some of the steps that can lead to the ultimate goal of promoting the language skills of children with hearing loss via early intervention. The first step in providing high quality early intervention services to infants and toddlers begins with a curriculum based on best practices, which are informed by research as well as theories (Division for Early Childhood, 2014a; Shonkoff & Meisels, 2000; Odom & Wolery, 2003); ideally, these best practices then directly influence the early intervention services that families and their children receive, including the information that is provided to families and the ways in which services are delivered. Best practices (based on research and theories) Early intervention services Information provided to parents Parent-child communication Children’s language outcomes Contextual factors Figure 1.1. Theory of change. A prominent theory about the foundation of human communication proposes that language develops as a result of meaningful social and collaborative interactions with others, and is motivated by individuals’ desires to request or share information (Tomasello, 2008). For this reason, it is important that parents’ language focus on children’s interests or actions; it is in these instances of joint attention that parents’ language inputs are most influential (e.g., Tamis2 LeMonda, Bornstein, & Baumwell, 2001; Lederberg & Prezbindowski, 2000). Therefore, it is necessary to understand what may influence aspects of parents’ language, including the information they receive as part of early intervention services when their children have a delay or disability. Researchers have hypothesized that the information provided to parents may have a powerful influence on the quantities and qualities of parent-child communication, and subsequently, children’s language outcomes (e.g., DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz, Quittner, Marker, DesJardin, & CDaCI Investigative Team, 2013; VanDam, Ambrose, & Moeller, 2012; Ambrose, VanDam, & Moeller, 2014). To explain why the information parents receive from early intervention service providers is so important and why it may influence aspects of parents’ language with their children with hearing loss, a social constructionism perspective informs this study. The theory of social constructionism posits that our knowledge and how we construct meaning in the world is based on our interactions, such as through our communication with others (Gergen, 1985; Lock & Strong, 2010). In the current study, this relates to the information that parents report that they receive from their early intervention service providers because it demonstrates that it is embedded in their memories and potentially in their ways of thinking and actions. Social constructionism emphasizes that the knowledge and meaning that individuals gain from social interaction often determines the ways in which they choose to act (Burr, 1995); in the current studies, this suggests that the information parents report that they have received from service providers can potentially influence their actions, such as specific aspects of their language when interacting with their children. However, the information provided to families as part of early intervention services, or how this may be related to the quantities and qualities of parents’ language use, has yet to be investigated. In 3 particular, we do not yet know a) the content or variation in the information parents receive from early intervention service providers, or b) the relationship between this information and aspects of parents’ language input. Study 1 will be the first to describe the information provided to parents through early intervention services. Thus, it will provide a necessary foundational step in order to inform early intervention practices by beginning to understand how the information provided to parents aligns with best practices, including strengths and areas for improvements. Study 2 is based on research demonstrating that certain aspects of parents’ language are most beneficial for children with hearing loss, such as higher quantities of different words used (word types), mean length of utterance (MLU), and conversational turns, as well as specific qualities of parents’ language, such as the language technique of asking open-ended questions (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam et al., 2012; Ambrose et al., 2014). However, what the field is lacking is an understanding of what explains the variation in these aspects of parents’ language, including how this variation may relate to information they have received as part of early intervention. Therefore, the value of Study 2 lies in its ability to identify the relationships between aspects of parents’ language that are known to be important and the information parents have received from early intervention service providers. Exploratory studies, such as these, provide the foundation for more specific, large-scale explorations and replications. The results of these studies will also be used to understand parents’ experiences and the influences of early intervention services in a new way. By beginning to understand the types of information that positively influence specific aspects of parents’ 4 language inputs, these findings can inform best practices regarding the types of information provided by early intervention service providers that are most influential. Rationale for the Current Studies Hearing loss can influence a number of developmental outcomes for children, but a great deal of importance is placed on their language development. Research has demonstrated that children with hearing loss have lower language skills compared to their typically developing peers (Niparko et al., 2010; Barker et al., 2009); this domain of development is crucially important because a delay in language skills can lead to a number of other adverse developmental outcomes, such as lower academic achievement (Antia, Jones, Reed, & Kreimeyer, 2009; Spencer & Marschark, 2010), more psychosocial difficulties (Dammeyer, 2010), and difficulties with socio-emotional skills (Hintermair, 2006; Spencer & Marschark, 2010). Approximately 90% of children with hearing loss have parents with typical hearing abilities (Mitchell & Karchmer, 2004), and it is these children that are most at risk to experience delays in language development for a variety of reasons, including difficulties with aspects of parent-child communication because of unmatched hearing statuses (Meadow-Orlans, 1997), such as the amount of time these dyads spend in joint attention (Meadow-Orlans & Spencer, 1996; Gale & Schick, 2009; Spencer, Erting, & Marschark, 2000). Therefore, a central aspect of early intervention for children with hearing loss focuses on promoting their language development (Moeller, Carr, Seaver, Stredler-Brown, & Holzinger, 2013; Centers for Disease Control (CDC), 2015; Marschark, 2007; Joint Committee on Infant Hearing (JCIH), 2007; Seaver, 2010) by strengthening aspects of parent-child communication and working directly with parents to build their skills (Moeller et al., 2013; Spencer & Marschark, 2010; Division for Early Childhood, 2014a, 2014b). 5 Aspects of Parent-Child Communication that Promotes Children’s Language Development Children develop language based on their interactions with others (Tomasello, 2008), and when these interactions are based on their interests and actions, this is when they are most influential to children’s language development (Tamis-LeMonda et al., 2001; Lederberg & Prezbindowski, 2000). Research related to parents’ language with both typically developing children, as well as those with disabilities, suggests that higher quantities of parent language, in the form of the different number of words (word types), mean length of utterance, and conversational turns all positively relate to children’s language outcomes (Hart & Risley, 1995; Huttenlocher, Haight, Bryk, Seltzer, & Lyons, 1991; DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam et al., 2012; Ambrose et al., 2014). However, it is not just the quantity of parents’ language that is important to children’s development; when parents’ language includes qualities that are responsive to what it is that children are doing or attending to, it is parents’ language inputs during these interactions that are most influential. For example, qualities of parents’ language that have been linked to children’s expressive and receptive language skills include parents’ use of language techniques that include responses to children’s vocalizations or discussions of what it is that their children are interested in or doing (TamisLeMonda et al., 2001; Girolametto, Weitzman, Wiigs, & Pearce, 1999; McNeil & Fowler, 1999; Yoder, McCathren, Warren, & Watson, 2001; Dale, Crain-Thoreson, Notari-Syverson, & Cole, 1996; Cruz et al., 2013; DesJardin et al., 2014; DesJardin, 2006; DesJardin & Eisenberg, 2007). Unlike the quantities of parents’ communication, which have shown that greater frequencies are beneficial to children of all ages, different qualities of parents’ communication are beneficial for children either at different stages in their language development, or because of their hearing status. The literature demonstrates clear patterns of parent language techniques that 6 are important for typically developing children or those with language delays based on whether children have language skills above or below that of a typically developing 24 month old, which is when children typically transition from the one-word stage of language development to the two-word stage (Girolametto et al., 1999; Tamis-LeMonda et al., 2001; McNeil & Fowler, 1999; Dale et al., 1996; Yoder et al., 2001; Dale et al., & Cole, 1996). However, for children with hearing loss, the qualities of parents’ language that are beneficial for their language development do not differ based on their language age—instead, parents’ use of expansion, recast, open-ended questions, and parallel talk have been shown to be beneficial (Cruz et al., 2013; DesJardin et al., 2014; DesJardin, 2006; DesJardin & Eisenberg, 2007). For typically developing children or those with language delays who are younger and whose language age is under 24 months, the techniques of linguistic mapping, also known as interpreting (putting the child’s verbalizations into words), imitation (imitating the child’s verbalization), and expansion (adding to children’s language by adding words to make it a complete sentence or thought) are shown to be important (Tamis-LeMonda et al., 2001; Girolametto et al., 1999; Yoder et al., 2001). For example, in the Girolametto et al. (1999) study with younger children who had expressive language delays, there was a positive relationship between mothers’ use of linguistic mapping and expansion and children’s expressive language skills. Children’s language skills were also positively associated with mothers’ use of imitation (Girolametto et al., 1999). With young, typically developing children, the use of imitation and expansion also predicts expressive language for young typically developing children (TamisLeMonda et al., 2001). Another study with younger children who had developmental disabilities and delayed language skills demonstrated that mothers’ use of linguistic mapping when children were 23 months on average was positively related to children’s expressive language at 29 7 months, and linguistic mapping at 29 months was related to both expressive and receptive language at 35 months of age (Yoder et al., 2001). Thus, these studies suggest that the parent language techniques of linguistic mapping, imitation, and expansion are facilitative of the language skills for typically developing children and those with language delays whose language age is below 24 months. For typically developing children or those with language delays or developmental disabilities who have a language age above a 24 month old, the language technique of expansion is still beneficial for children’s language development. However, the use of linguistic mapping and imitation no longer predict their language skills, and other techniques become important including recast (repeating the child’s communication in the form of a question), and open-ended questions (a phrase or a question that would require more than a one-word response). For example, when mothers of 4-5 year old children with expressive language delays increased certain aspects of their communication during book reading, such as the frequency of their expansions and opened-ended questions, their children participated in more conversations and the length of the children’s participation in those conversations was greater on average (McNeil & Fowler, 1999). In another study with 3-6 year old children with language delays, parents were taught to use dialogic reading (see Whitehurst et al., 1988; Dale et al., 1996), which encourages parents to be questioning and information-giving listeners in order to support children’s language development by becoming more active and engaged storytellers (Lonigan, Anthony, Bloomfield, Dyer, & Samwel, 1999). They found that as a result of the training program, over the course of approximately 6-8 weeks, parents increased their use of open-ended questions and expansions, and children’s MLU and number of unique words they used increased significantly between the pretest and posttest measures (Dale et al., 1996). 8 In summary, the literature related to children who are typically developing, or those who have language delays, shows that there are patterns in which parents’ use of certain language techniques are most predictive of children’s language development, and these depend on the child’s current stage of language development. Research suggests that parents’ use of linguistic mapping and imitation are important for children’s language development when they are under the language age of 24 months (Girolametto et al., 1999; Tamis-LeMonda et al., 2001; Yoder et al., 2001) and that above a language age of 24 months, the language techniques of recast and open-ended questions are most important (McNeil & Fowler, 1999; Dale et al., 1996); the technique of expansion is important for these children, regardless of their language age (McNeil & Fowler, 1999; Dale et al., 1996; Tamis-LeMonda et al., 2001; Girolametto et al., 1999). The patterns of parents’ language techniques that are most beneficial for children with hearing loss seem to differ compared to children who are typically developing or have language delays. For children with hearing loss the pattern does not seem to vary based on the language age of the child—instead, only the techniques of expansion, recast, open-ended questions, and parallel talk are positively related to their language development, regardless of where they are at in the development of language (Cruz et al., 2013; DesJardin et al., 2014; DesJardin, 2006; DesJardin & Eisenberg, 2007); therefore, these are referred to as higher-level language techniques. For example, Cruz and colleagues (2013) studied children who were 16.5 months on average when they received a cochlear implant; the children and their parents were observed interacting 2 to 4 weeks before the children received their implant and then at multiple time points after implantation. Parents’ use of higher-level language techniques influenced children’s expressive language growth, and approached significance for growth in children’s receptive language, at 12, 24, or 36 months after children received cochlear implants. Contrary to what is 9 found for children who are typically developing or have language delays (Girolametto et al., 1999; Tamis-LeMonda et al., 2001), parents’ use what they considered lower-level language techniques, such as linguistic mapping and imitation, did not significantly influence children’s growth in expressive or receptive language. Similarly, DesJardin (2006) studied children with hearing loss who were between the ages of 1 and 6 years old (M = 3.0 years) and found that mothers’ use of recast and open-ended questions accounted for 23.3% of the variance in children’s receptive language and 24.3% in their expressive language skills. Also, DesJardin and Eisenberg (2007) studied children with hearing loss between 2 and 8 years of age (M = 4.8 years) whose language age was 30 months on average; results showed that mothers’ use of recast was positively related to more advanced receptive and expressive language development for children with hearing loss, and mothers’ use of open-ended questions was positively related to the children’s expressive language development (DesJardin & Eisenberg, 2007). Other studies of children who have hearing loss show these same patterns: it is parents’ use of higher-level language techniques that promotes their language development (e.g., DesJardin et al., 2014; Fung, Chow, & McBride-Chang, 2005). This research, albeit limited related to infants and toddlers, suggests that regardless of a child’s language age, if children have hearing loss then it is only parents’ use of higher-level language techniques that promotes their language development, possibly because it provides children with greater access to complex language and more opportunities to engage in the language environment (Cruz et al., 2013). In summary, studies demonstrate that specific quantities and qualities of parents’ communication are powerful factors that encourage both expressive and receptive language skills of children with hearing loss. However, the Cruz et al. (2013) study is the only study to date to 10 include very young children with hearing loss who have younger language ages, and to examine how their language development is influenced by their parents’ use of language techniques while interacting with them, potentially because early identification and intervention is a relatively recent change for the field of study related to children with hearing loss (e.g., National Center for Hearing Assessment & Management, 2009; White, 2003). Because of the importance of parents’ language inputs when children are very young, Study 2 of this dissertation will expand on this very limited literature by describing the quantities and qualities of parents’ communication with infants and toddlers who have hearing loss. Continuing to describe the aspects of parents’ language inputs with these children who have lower language abilities is an important step in understanding how to promote the language development of infants and toddlers with hearing loss; however, this is only one piece of the picture. What is also needed is to understand what may influence the variation in parents’ quantities of language and use of these different techniques, given their importance to children’s language development. Advancing our understanding of parents’ use of specific quantities and qualities of language, and the factors that may influence these aspects of their language, will provide an opportunity to inform best practices of early intervention for these children. Therefore, Study 2 also investigates two important aspects of these families’ lives that may influence the aspects of parents’ language that are known to be influential, specifically: the information parents receive from their early intervention service providers, and contextual factors of these families and their children. Information Provided to Parents by Professionals Based on variation in the effectiveness of early intervention, and variation in the quantities and qualities of parents’ language with children who have hearing loss, researchers 11 have hypothesized that the information that parents receive from early intervention service providers about how to encourage the language development of their children with hearing loss may influence the aspects of their language when interacting with their children who have hearing loss (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam et al., 2012; Ambrose et al., 2014). However, this has yet to be investigated and, in general, very little known regarding the information that parents receive about how to encourage the language development of their children with hearing loss. Research shows that access to information is an important priority for parents (Fitzpatrick, Coyle, Durieux-Smith, Graham, Angus, & Gaboury, 2007; Meadow-Orlans, Mertens, Sass-Lehrer, & Scott-Olson, 1997), and they want information about how to promote their child’s language development (Roush & Harrison, 2002) and what they can expect for their children’s development of spoken language (Fitzpatrick, Angus, Durieux-Smith, Graham, & Coyle, 2008; Fitzpatrick, Graham, Durieux-Smith, Angus, & Coyle, 2007). Yet, these studies have not observed early intervention to explore the information provided to parents, or used parents’ reports to examine specific information received, although this has been identified as a priority for early intervention research (Alexander Graham Bell Association for the Deaf and Hard of Hearing, 2013). Only one study to date has investigated parents’ reports of information they have received, and this focused on information that parents receive from teachers about shared book reading with their 3-5 year old children. The study found that parents receive contradictory advice or incorrect information (to treat their child as if he/she is hearing), and some parents reported that they did not feel as if the child’s teacher had advice to offer (Watson & Swanwick, 2008). These findings demonstrate that the information parents receive may be 12 varied or incorrect, and this is in line with implications from previous research (e.g., DesJardin, 2006). More research is needed to examine the specific information that parents report that they receive via intervention about how to promote the language development of their children with hearing loss, and whether this includes information about using the specific quantities and qualities of language that have been shown to be important for the language development of children with hearing loss. Therefore, Study 1 is an exploratory study that will investigate parents’ reports of the information that they receive from their child’s early intervention service provider about how to promote the language development of their infants and toddlers who have hearing loss. Although very little is known about the information that parents receive from early intervention service providers based on observations of interventions or through parent report of information received via such interventions (Alexander Graham Bell Association for the Deaf and Hard of Hearing, 2013), there are other resources available for parents, educators, and service providers. These other resources, especially those that outline best practices in the field of early intervention overall, or as related to services specifically for infants and toddlers with hearing loss, provide an idea of the general types of information that should be given to parents (e.g., Division for Early Childhood, 2014a; Moeller et al., 2013; Yoshinaga-Itano, 2014). Best practices in the field of early intervention. The recognition that meaningful social interactions are important to language development (Tomasello, 2008) is evident in the suggested best practices of early intervention for children with hearing loss, given that a foundational aspect of best practices in the field of early intervention includes family-centered services (Division for Early Childhood, 2014a; Moeller et al., 2013; Dunst, Trivette, & Hamby, 13 2007) and focuses on promoting positive parent-child communication (Moeller et al., 2013; Spencer & Marschark, 2010; CDC, 2015a; Seaver, 2010). Family-centered intervention focuses on appreciating and understanding the strengths and needs of each family, while empowering them by providing information and opportunities to build their skills to support their child’s development (Marschark, 2007; Division for Early Childhood, 2014b). Family-focused intervention typically focuses on the context of typical, daily activities, based on the idea that greater parental involvement in children’s day-to-day activities is linked to better child outcomes and higher parental self-efficacy (Marschark, 2007). Similar to overall best practices in the field of early intervention (Division for Early Childhood, 2014a), the primary best practices that guide intervention services for children with hearing loss focus on four main areas: 1) positive parent-child interactions, 2) parental wellbeing that can positively influence the child, 3) family involvement, including participation in early intervention services and informed choices, and 4) parental self-efficacy (Moeller et al., 2013). In order to encourage positive parent-child interactions, family-centered early intervention focuses on providing parents with information and ideas that are relevant to their everyday routines and activities with their children, and then giving parents opportunities to practice and receive strength-based feedback about following through with these recommendations (Division for Early Childhood, 2014a; Moeller et al., 2013; JCIH, 2007; Workgroup on Principles and Practices in Natural Environments, 2008); this is also a way to build parents’ self-efficacy. Supporting families to understand the important role they have in promoting their child’s language development, and taking a strength-based approach to supporting families’ interactions with their children (Division for Early Childhood, 2014a, 2014b; Moeller et al., 2013; Early Childhood Outcomes Center, 2005), can not only help parents feel more confident, but also build 14 their skills (JCIH, 2007; Yoshinaga-Itano, 2014; Workgroup on Principles and Practices in Natural Environments, 2008). An additional way that these best practices can support families’ self-efficacy, specifically as it relates to their feelings about their ability to make decisions about their children with hearing loss, is to provide families with unbiased information and support about their communication choices for their children (e.g., using signed and/or spoken communication), regardless of the choices they make (Moeller et al., 2013; JCIH, 2007; Yoshinaga-Itano, 2014). Furthermore, best practices for this population focus on the aspects of parent-child interactions that can promote these children’s language skills (Moeller et al., 2013; JCIH, 2007; Yoshinaga-Itano, 2014) and providing parents with information that can help them promote their children’s development (Division for Early Childhood, 2014b). In particular, service providers are encouraged to support a language-rich family environment. However, recommendations for ways in which service providers should encourage parents to create a language-rich environment are vague. For example, resources for service providers discuss the importance of encouraging parents to partake in activities and use specific strategies and language techniques that are known to support the language development of children with hearing loss (Moeller et al., 2013; Yoshinaga-Itano, 2014; JCIH, 2007); yet, these specific activities, strategies, and techniques are neither defined nor discussed in a way that clarifies ways in which service providers can encourage parents to interact with their children. These resources do include citations for research that provide support for these recommended practices, including studies that show the specific quantities and qualities of parents’ communication that are known to support the language development of children with hearing loss, such as increasing the number of different words children are exposed to and parents’ use of open-ended questions (e.g., DesJardin, 2006; 15 DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, et al., 2012; Ambrose et al., 2014). Given the vagueness of some of these best practices, this leads to questions about the information that is provided to parents, since these best practices may not be specific or informative enough for service providers to then be able to then provide detailed information to families. Contextual Factors that Influence Parents’ Language Inputs The influence of contextual factors in the lives of children and their families cannot be underestimated; therefore, the studies in this dissertation take these into account. In particular, families’ socioeconomic status, including family income and parental education, and the child’s language skills are considered. These contextual factors have the potential to influence Study 1, regarding the types of information that parents receive as part of early intervention services, and Study 2, regarding how aspects of parents’ language may be influenced by family or child characteristics. Family socioeconomic status (SES) influences a variety of family and child outcomes, including parents’ language inputs, which then influences children’s language skills (Hart & Risley, 1995; Rowe, 2008; Hoff, 2003; for reviews see Bornstein & Bradley, 2003; Conger, Conger, & Martin, 2010; Bradley & Corwyn, 2002). The foundational study by Hart and Risley (1995) showed that two broad aspects of parents’ communication that are known to greatly influence the language development of children, the quantities and qualities of their language, are greatly influenced by their SES. In particular, children in higher SES families are exposed to a greater quantity of parental language, and more supportive qualities, such as fewer prohibitions; the quantities and qualities of language used by parents of higher SES were related to children’s language skills and growth over time (Hart & Risley, 1995). Some of these same patterns in how SES influences parents’ language inputs and children’s outcomes are similar for 16 children who have hearing loss, such as the positive influence of greater quantities of different words that parents use when interacting with their children (e.g., Niparko et al., 2010; Barker et al., 2009; Geers, Moog, Biedenstein, Brenner, & Hayes, 2009; Szagun & Stumper, 2012; Cruz et al., 2013). However, SES has not been shown to influence parents’ use of higher- or lower-level language techniques with children who have hearing loss (Cruz et al., 2013), which means that it is not just higher SES families who may be able to use these qualities more frequently, and all types of families may benefit from receiving information about these techniques. Another important contextual factor that may influence parents’ language use with their children is the child’s current language skills (e.g., Girolametto & Weitzman, 2002; TamisLeMonda et al., 2001; Goldin-Meadow, Goodrich, Sauer, & Iverson, 2007). Research has shown that parents of children with hearing loss adapt their language inputs based on their children’s language abilities (Farran, Lederberg, & Jackson, 2009), rather than their age alone (Lederberg & Prezbindowski, 2000). This demonstrates that parents of children with hearing loss may naturally adapt their language based on what may be most appropriate for their children’s current skills and facilitative of children’s language growth. A number of studies suggest that the quantities and qualities of parents’ language is what drives children’s language skills (e.g., DesJardin, 2006; DesJardin & Eisenberg, 2007; DesJardin et al., 2014); however, only one of these studies was longitudinal and tested directionality. Cruz and colleagues (2013) found that when children had better expressive language skills before they received their cochlear implants at approximately 16 months of age, this predicted their parents’ use of more word types (number of different words) and higher-level language techniques; both of these aspects of parents’ language were then shown to predict children’s later language skills. These research studies suggest that parents are sensitive to their children’s language skills, and children’s abilities may 17 elicit specific aspects of parents’ language that then contribute to children’s continued development. Therefore, important contextual factors in the lives of children and their families should not be ignored. Parents’ SES or children’s language skills are important to the ways in which parents communicate with their children, and for this reason, they will be included in Studies 1 and 2 as factors that may influence may influence the quantities and qualities of parents’ language input. Chapter Summary Children with hearing loss may struggle to develop language skills that are similar to those of their typically developing peers (Barker et al., 2009; Yoshinaga, Sedey, Coulter, & Mehl, 1998; Moeller, 2000), and this is problematic given that these lower language abilities can lead to additional adverse outcomes for these children (Antia, Jones, Reed, & Kreimeyer, 2009; Dammeyer, 2010; Hintermair, 2006). Receiving early intervention services is known to be important for the language development of children with hearing loss (Moeller, 2000; Yoshinaga-Itano, 2003; Vohr et al., 2008), and parents are central to these early intervention services (Division for Early Childhood, 2014a; Moeller et al., 2013; Spencer & Marschark, 2010; Marschark, 2007). There is variation in parents’ language inputs, and questions remain about how their language may vary as a function of the information they receive as a result of participating in early intervention; this variation in parents’ language is important because it subsequently leads to variation in the language skills of children with hearing loss (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam et al., 2012; Ambrose et al., 2014). 18 Important factors that can positively influence the language skills of children with hearing loss include specific quantities and qualities of parents’ language (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; DesJardin et al., 2014), but only one study to date has investigated these aspects of parents’ language when they interact with their infants and toddlers who have hearing loss (Cruz et al., 2013). Furthermore, based on the theory of change that guides this research (see Figure 1.1), there is reason to believe that parents’ language may be influenced by the information they receive from early intervention service providers (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam et al., 2012; Ambrose et al., 2014) or important contextual aspects of these families’ lives (Niparko et al., 2010; Barker et al., 2009; Geers et al., 2009; Szagun & Stumper, 2012; Cruz et al., 2013; Farran et al., 2009; Lederberg & Prezbindowski, 2000); however, this has yet to be studied. For these reasons, Study 1 will investigate parents’ reports of the information they receive from their early intervention service providers; Study 2 will explore the relationships between the quantities and qualities of parents’ language and: a) the information they received and b) contextual factors of these parents’ and children’s lives. Each study has the ability to inform early intervention practices. Specifically, Study 1 can identify the alignment between best practices and information that parents receive, and can elucidate whether the vagueness of the stated best practices emerge within the information parents report that they receive. Furthermore, Study 1 can also identify gaps between what research shows to be important for the language development for children with hearing loss and information that parents receive, which can inform future training efforts for early intervention service providers regarding the types of information that may not be reaching parents. Study 2 has the ability to inform early intervention practices by identifying how specific quantities or qualities of parents’ language are related to the 19 information they receive. In particular, Study 2 can begin to clarify the information that may best relate to parents’ language use that are shown to be supportive of the language development of children with hearing loss, or information that seems to be harmful. Overall, these studies will fill important gaps in the literature that have the ability to better understand important aspects of the lives of parents and their children who have hearing loss, and work toward building these families’ and children’s strengths. 20 REFERENCES 21 REFERENCES Alexander Graham Bell Association for the Deaf and Hard of Hearing. (2013). 2013 supplement: Principles and guidelines for early intervention following confirmation that a child is deaf or hard of hearing. Retrieved from: http://www.listeningandspokenlanguage.org/JCIH/2013_Supplement/ Ambrose, S. E., VanDam, M., Moeller, M. P. (2014). Linguistic input, electronic media, and communication outcomes of toddlers with hearing loss. Ear & Hearing, 35, 139-147. doi: 10.1097/AUD.0b013e3182a76768 Antia, S. D., Jones, P. B., Reed, S., & Kreimeyer, K. H. (2009). Academic status and progress of deaf and hard-of-hearing students in general education classrooms. Journal of Deaf Studies and Deaf Education, 14, 293-311. doi: 10.1093/deafed/enp009 Barker, D. H., Quittner, A. L., Fink, N. E., Eisenberg, L. S., Tobey, E. A., Niparko, J. K., & the CDaCI Investigative Team. (2009). Predicting behavior problems in deaf and hearing children: The influences of language, attention, and parent-child communication. Development and Psychopathology, 21, 373-392. doi:10.1017/S0954579409000212 Bornstein, M. C., & Bradley, R. H. (Eds.). (2003). Socioeconomic status, parenting, and child development. Mahwah, NJ: Lawrence Erlbaum. Bradley, R. H. & Corwyn,R. F. (2002). Socioeconomic status and child development. Annual Review of Psychology, 53, 371-399. doi: 10.1146/annurev.psych.53.100901.135233 Burr, V. (1995). An introduction to social constructionism. New York, NY: Routledge. Centers for Disease Control. (2015). Treatment and intervention services. Retrieved from http://www.cdc.gov/ncbddd/hearingloss/treatment.html. Conger, R. D., Conger, K. J., & Martin, M. J. (2010). Socioeconomic status, family processes, and individual development. Journal of Marriage and Family, 72, 685–704. doi:10.1111/j.1741-3737.2010.00725.x. Cruz, I., Quittner, A.L., Marker, C., DesJardin, J. L., & CDaCI Investigative Team. (2013). Identification of effective strategies to promote language in deaf children with cochlear implants. Child Development, 84, 543-559. doi:10.1111/j.1467-8624.2012.01863.x Dale, P. S., Crain-Thoreson, C., Notari-Syverson, A., & Cole, K. (1996). Parent-child book reading as an intervention technique for young children with language delays. Topics in Early Childhood Special Education, 16, 213-235. doi: 10.1177/027112149601600206 22 Dammeyer, J. (2010). Pyschosocial development in a Danish population of children with cochlear implants and deaf and hard-of-hearing children. Journal of Deaf Studies and Deaf Education, 15, 50-58. doi: 10.1093/deafed/enp024 DesJardin, J. L. (2006). Family empowerment: Supporting language development in young children who are deaf or hard of hearing. The Volta Review, 106, 275-298. DesJardin, J. L., Doll, E. R., Stika, C. J., Eisenberg, L. S., Johnson, K. J., Ganguly, D. H. … Henning, S. C. (2014). Parental support for language development during joint book reading for young children with hearing loss. Communication Disorders Quarterly, 35, 167-181. doi: 10.1177/1525740113518062 DesJardin, J. L., & Eisenberg, L. S. (2007). Maternal contributions: Supporting language development in young children with cochlear implants. Ear & Hearing, 28, 456-469. doi:10.1097/AUD.0b013e31806dc1ab DesJardin, J. L., Doll, E. R., Stika, C. J., Eisenberg, L. S., Johnson, K. J., Ganguly, D. H. … Henning, S. C. (2014). Parental support for language development during joint book reading for young children with hearing loss. Communication Disorders Quarterly, 35, 167-181. DOI: 10.1177/1525740113518062 Division for Early Childhood. (2014a). Recommended practices in early intervention and early childhood special education. Retrieved from http://www.decsped.org/recommendedpractices Division for Early Childhood. (2014b). DEC position statement: The role of special instruction in early intervention. Retrieved from http://dec.membershipsoftware.org/files/Position%20Statement%20and%20Papers/EI%2 0Position%20Statement%206%202014.pdf Dunst, C. J., Trivette, C. M., & Hamby, D. W. (2007). Meta-analysis of family-centered helpgiving practices research. Mental Retardation and Developmental Disabilities Research Reviews, 13, 370-378. doi: 10.1002/mrdd.20176 Early Childhood Outcomes Center. (2005). Family and child outcomes for early intervention and early childhood special education. Retrieved from http://ectacenter.org/eco/assets/pdfs/ECO_Outcomes_4-13-05.pdf Farran, L. K., Lederberg, A. R., & Jackson, L. A. (2009). Maternal input and lexical development: The case of deaf pre-schoolers. International Journal of Language & Communication Disorders, 44, 145-63. doi: 10.1080/13682820801973404. Fitzpatrick, E., Angus, D., Durieux-Smith, A., Graham, I. D., & Coyle, D. (2008). Parents’ needs following identification of childhood hearing loss. American Journal of Audiology, 17, 38-49. doi: 10.1044/1059-0889(2008/005) 23 Fitzpatrick, E., Coyle, D. E., Durieux-Smith, A., Graham, I. D., Angus, D. E., & Gaboury, I. (2007). Parents’ preferences for services for children with hearing loss: A conjoint analysis study. Ear & Hearing, 28, 842-849. doi: 10.1097/AUD.0b013e318157676d Fitzpatrick, E., Graham, I. D., Durieux-Smith, A., Angus, D., & Coyle, D. (2007). Parents’ perspectives on the impact of the early diagnosis of childhood hearing loss. International Journal of Audiology, 46, 97-106. Fung, P. C., Chow, B. W., & McBride-Chang, C. (2005). The impact of a dialogic reading program on deaf and hard-of-hearing kindergarten and early primary school-aged students in Hong Kong. Journal of Deaf Studies and Deaf Education, 10, 82-95. http://dx.doi.org/10.1093/deafed/eni005 Gale, E. & Schick, B. (2009). Symbol-infused joint attention and language use in mothers with deaf and hearing toddlers. American Annals of the Deaf, 153, 484-503. doi:10.1353/aad.0.0066 Geers, A. E., Moog, J. S., Biedenstein, J., Brenner, C., & Hayes, H. (2009). Spoken language scores of children using cochlear implants compared to hearing age-mates at school entry. Journal of Deaf Studies and Deaf Education, 14, 371–385. doi:10.1093/deafed/enn046 Gergen, K. J. (1985). The social constructionist movement in modern psychology. American Psychologist, 40, 266-275. doi:10.1037/0003-066X.40.3.266 Girolametto, L. & Weitzman, E. (2002). Responsiveness of child care providers in interactions with toddlers and preschoolers. Language, Speech, and Hearing Services in Schools, 33, 268–281. doi: 10.1044/0161-1461(2002/022) Girolametto, L., Weitzman, E., Wiigs, M., & Pearce, P.S. (1999). The relationship between maternal language measures and language development in toddlers with expressive vocabulary delays. American Journal of Speech- Language Pathology, 8, 364-374. doi:10.1044/1058-0360.0804.364 Goldin-Meadow, S., Goodrich, W., Sauer, E., & Iverson, J. (2007). Young children use their hands to tell their mothers what to say. Developmental Science, 10, 778-785. doi: 10.1111/j.1467-7687.2007.00636.x Hart, B., & Risley, T. R. (1995). Meaningful differences in the everyday experience of young American children. Baltimore, MD: Paul H. Brookes Publishing. Hintermair, M. (2006). Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. Journal of Deaf Studies and Deaf Education, 11, 493513. doi: 10.1093/deafed/enl005 24 Hoff, E. (2003). The specificity of environmental influence: Socioeconomic status affects early vocabulary development via maternal speech. Child Development, 74, 1368–1378. doi: 10.1111/1467-8624.00612 Huttenlocher, J., Haight, W., Bryk, A., Seltzer, M., Lyons, T. (1991). Early vocabulary growth: Relation to language input and gender. Developmental Psychology, 27, 236–248. http://dx.doi.org/10.1037/0012-1649.27.2.236 Joint Committee on Infant Hearing. (2007). Year 2007 position statement: Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Pediatrics, 120, 898-921. doi: 10.1542/peds.2007-2333 Lederberg, A. R., & Prezbindowski, A. K. (2000). Impact of child deafness on mother-toddler interaction: Strengths and Weaknesses. In P. E. Spencer, C. J. Erting, & M. Marschark (Eds.), The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans (p. 73-92). Mahwah, NJ: Lawrence Erlbaum Associates, Inc. Lock, A., & Strong, T. (2010). Social constructionism: Sources and stirrings in theory and practice. New York, NY: Cambridge University Press. Lonigan, C. J., Anthony, J. L., Bloomfield, B. G., Dyer, S. M., & Samwel, C. S. (1999). Effects of two shared-reading interventions on emergent literacy skills of at-risk preschoolers. Journal of Early Intervention, 22, 306–322. Marschark, M. (2007). Raising and educating a deaf child (2nd ed.). New York, NY: Oxford University Press. McNeil, J., & Fowler, S. (1999). Let's talk: Encouraging mother-child conversations during story reading. Journal of Early Intervention, 22, 51-69. Meadow-Orlans, K. P. (1997). Effects of mother and infant hearing status on interactions at twelve and eighteen months. Journal of Deaf Studies and Deaf Education, 2, 26-36. Meadow-Orlans, K. P., & Spencer, P. E. (1996), Maternal sensitivity and the visual attentiveness of children who are deaf. Early Development and Parenting, 5, 213–223. doi: 10.1002/(SICI)1099-0917(199612)5:4<213::AID-EDP134>3.0.CO;2-P Meadow-Orlans, K. P., Mertens, D. M., Sass-Lehrer, M. A., & Scott-Olson, K. (1997). Support services for parents and their children who are deaf or hard of hearing: A national survey. American Annals of the Deaf, 142, 278-293. doi: 10.1353/aad.2012.0221 Mitchell, R. E. & Karchmer, M. A. (2004). Chasing the mythical ten percent: Parental hearing status of deaf and hard of hearing students in the United States. Sign Language Studies, 4, 138-217. 25 Moeller, M. P. (2000). Early intervention and language development in children who are deaf and hard of hearing. Pediatrics, 106, e43-e51. doi:10.1542/peds.106.3.e43 Moeller, M. P., Carr, G., Seaver, L. Stredler-Brown, A., & Holzinger, D. (2013). Best practices in family-centered Early Intervention for children who are deaf or hard of hearing: An international consensus statement. Journal of Deaf Studies and Deaf Education, 18, 429445. doi: 10.1093/deafed/ent034 National Center for Hearing Assessment & Management. (2009). EHDI Legislation. Retrieved from http://www.infanthearing.org/ Niparko, J. K., Tobey, E. A., Thal, D. J., Eisenberg, L. S., Wang, N. Y., Quittner, A. L., & CDaCI Investigative Team. (2010). Spoken language development in children following cochlear implantation. Journal of the American Medical Association, 303, 1498–1506. doi:10.1001/jama.2010.451 Odom, S. L., & Wolery, M. (2003). A unified theory of practice in early intervention/early childhood special education. The Journal of Special Education, 37, 164-173. Roush, J., & Harrison, M. (2002). What parents want to know at diagnosis and during the first year. The Hearing Journal, 55, 52-54. Rowe, M. L. (2008). Child-directed speech: Relation to socioeconomic status, knowledge of child development and child vocabulary skill. Journal of Child Language, 35, 185–205. doi: http://dx.doi.org.proxy2.cl.msu.edu/10.1017/S0305000907008343 Seaver, L. (Ed.). (2010). The book of choice: Support for parenting a child who is deaf or hard of hearing (3rd ed.). Boulder, CO: Hands & Voices. Shonkoff, J. P., & Meisels, S. J. (Eds.) (2000). Handbook of Early Childhood Intervention (2nd ed.). New York, NY: Cambridge University Press. Spencer, P. E., Erting, C. J., & Marschark, M. (2000). The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans. Mahwah, NJ: Erlbaum. Spencer, P.E., & Marschark, M. (2010). Evidence-based practice in educating deaf and hard-ofhearing students. New York: Oxford University Press. Szagun, G., & Stumper, B. (2012). Age or experience? The influence of age at implantation and social and linguistic environment on language development in children with cochlear implants. Journal of Speech, Language, and Hearing Research, 55, 1640-1654. doi: http://dx.doi.org.proxy2.cl.msu.edu/10.1044/1092-4388(2012/11-0119) Tamis-LeMonda, C. S., Bornstein, M. H., & Baumwell, L. (2001). Maternal responsiveness and children’s achievement of language milestones. Child Development, 72, 748–767. 26 Tomasello, M. (2008). Origins of human communication. Cambridge, MA: Massachusetts Institute of Technology. VanDam, M., Ambrose, S. E., & Moeller, M. P. (2012). Quantity of parental language in the home environments of hard-of-hearing 2-year-olds. Journal of Deaf Studies and Deaf Education, 17, 402-420. doi: 10.1093/deafed/ens025 Vohr, B. R., Jodoin-Krauzyk, J., Tucker, R., Johnson, M. J., Topol, D., & Ahlgren, M. (2008). Early language outcomes of early-identified infants with permanent hearing loss at 12 to 16 months of age. Pediatrics, 122, 535-544. Watson, L. & Swanwick, R. (2008). Parents’ and teachers’ views on deaf children’s literacy at home: Do they agree? Deafness and Education International, 10, 22-39. doi: 10.1002/dei.235 White, K. R. (2003). The current status of the EHDI programs in the United States. Mental Retardation and Developmental Disabilities, 9, 79-88. Whitehurst, G. J., Falco, F., Lonigan, C. J., Fischel, J. E., DeBaryshe, B. D., Valdez-Menchaca, M. C., & Caulfield, M. (1988). Accelerating language development through picture-book reading. Developmental Psychology, 24, 552-558. http://dx.doi.org/10.1037/00121649.24.4.552 Workgroup on Principles and Practices in Natural Environments. (2008). Seven key principles: Looks like / doesn’t look like. Retrieved from http://www.nectac.org/~pdfs/topics/families/Principles_LooksLike_DoesntLookLike3_1 1_08.pdf Yoder, P.J., McCathren, R.B., Warren, S.F., & Watson, A.L. (2001). Important distinctions in measuring maternal responses to communication in prelinguistic children with disabilities. Communication Disorders Quarterly, 22, 135-147. doi: 10.1177/152574010102200303 Yoshinaga-Itano, C. (2003). From screening to early identification and intervention: Discovering predictors to successful outcomes for children with significant hearing loss. Journal of Deaf Studies and Deaf Education, 8, 11-30. doi:10.1093/deafed/8.1.11 Yoshinaga-Itano, C. (2014). Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Journal of Deaf Studies and Deaf Education, 19, 143-175. doi: 10.1093/deafed/ent043 Yoshinaga-Itano, C., Sedey, A. L., Coulter, D. K. & Mehl, A. L. (1998). Language of early- and later-identified children with hearing loss. Pediatrics, 102, 1161-1171. 27 CHAPTER 2: STUDY 1 Abstract Family-centered early intervention for children with hearing loss is intended to provide parents with information about ways to strengthen interactions with their children that promote children’s language skills. However, little is known about the information provided to families within the context of early intervention. Therefore, this study used in-depth interviews to examine parents’ (N = 12) reports of the information they receive from early intervention service providers about how to promote the language development of their children with hearing loss. Thematic analysis was used to identify the patterns in the information parents received as part of early intervention. The results are discussed as they relate to best practices and research within the field of early intervention. Results suggest the information parents receive is partially in line with current best practices within the field of early intervention, such as the importance of frequent communication with their children during everyday activities. However, parents also discussed the need for additional information about how to promote their children’s language skills. 28 Introduction Children with hearing loss may struggle to develop language skills comparable to their typically developing peers (Niparko et al., 2010; Barker et al., 2009), and these delays in language development can lead to a variety of challenges in other developmental domains (e.g., Antia et al., 2009; Dammeyer, 2010; Hintermair, 2006). However, when children are identified with hearing loss early and begin intervention at young ages, language skills are improved (Yoshinaga-Itano, Sedey, Coulter & Mehl, 1998; Yoshinaga-Itano, 2003; Moeller, 2000; Vohr et al., 2008; also see Leigh, Newall, & Newall, 2010 for a review). Nonetheless, even when these children begin intervention at an early age, their language skills are lower, on average, than those of children with typical hearing (Yoshinaga et al., 1998; Moeller, 2000; Niparko et al., 2010), and the language gap between children with hearing loss and those with typical hearing becomes increasingly larger as the age of beginning intervention increases (Moeller, 2000). The lower language skills of these children, even when they begin intervention at very early ages, leads to questions about which specific aspects of early intervention may support their language skills, and which aspects may need to be improved. Because of the language delays that many children with hearing loss experience, early intervention for these children typically includes a strong focus on promoting their language skills (Moeller, Carr, Seaver, Stredler-Brown, & Holzinger, 2013; Centers for Disease Control, 2015; Marschark, 2007; Joint Committee on Infant Hearing (JCIH), 2007). Resources for parents and early intervention service providers suggest that the information parents receive about how to encourage the language development of their children with hearing loss is critical (Marschark, 2007; Yoshinaga-Itano, 2014; Alexander Graham Bell Association for the Deaf and Hard of Hearing, 2013), and may potentially influence aspects of parents’ communication which have 29 been shown to support the language development of children with hearing loss (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz, Quittner, Marker, DesJardin, & CDaCI Investigative Team, 2013; VanDam, Ambrose, & Moeller, 2012; Ambrose, VanDam, & Moeller, 2014). In particular, higher quantities of parent language, in the form of unique words, conversational turns, and mean length of utterance, all support the language outcomes of children with hearing loss (Cruz et al., 2013; DesJardin & Eisenberg, 2007; VanDam, et al., 2012; Ambrose et al., 2014). The qualities of parents’ language are also shown to be important; for children with hearing loss, parents’ use of the language techniques of expansion (expanding upon the child’s communication), recast (repeating the child’s communication in the form of a question), openended questions (a phrase or a question that would require more than a one-word response), and parallel talk (discussing what the child is attending to or doing) have been shown to be beneficial (Cruz et al., 2013; DesJardin et al., 2014; DesJardin, 2006; DesJardin & Eisenberg, 2007). Previous research suggests that these aspects of parents’ language may be influenced by the advice and information parents receive from early intervention service providers about how to interact or communicate with their children (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, et al., 2012; Ambrose et al., 2014). In sum, the information parents receive from service providers is an important aspect of early intervention to consider since it has the potential to influence parents’ communication, and subsequently their children’s language skills; this has yet to be studied in depth, and has been identified as a needed area of research in order to better understand how the information parents receive as part of early intervention may influence their ability to promote their children’s development (Alexander Graham Bell Association for the Deaf and Hard of Hearing, 2013). 30 In addition to suggestions made in the literature, the theory of social constructionism provides a framework to further explain why the information parents receive from service providers is important and why it may subsequently influence aspects of parents’ interactions with their children. The theory of social constructionism posits that our knowledge and how we construct meaning in the world is based on our interactions, such as through our communication with others (Gergen, 1985; Lock & Strong, 2010), and it emphasizes that the knowledge and meaning that individuals gain from social interaction often determines the ways in which they act (Burr, 1995). Therefore, this suggests that the information parents receive from early intervention service providers may influence their knowledge about how to promote their children’s language development, may be embedded in their thinking, and has the ability to influence their actions, such as aspects of their interactions and communication with their children. Although little is known about the information that parents receive about how to promote the language development of their children with hearing loss and how this may influence the ways in which they interact with their children, reviewing the best practices for service providers within the field of early intervention may provide insight as to the information that may be provided to parents of children who have hearing loss. Best Practices of Early Intervention One of the foundational best practices of early intervention for children who have delays or disabilities, including those who have hearing loss, is that the services are family-centered (Division for Early Childhood, 2014; Moeller et al., 2013; Dunst, Trivette, & Hamby, 2007). A family-centered approach to early intervention for these families includes, but is not limited to, recognizing the family’s strengths and goals for their children, supporting parents’ involvement 31 in the program, and encouraging positive interactions between parents and their children (Division for Early Childhood, 2014; Moeller et al., 2013; Spencer & Marschark, 2010; Marschark, 2007). Previous research indicates that when early intervention includes familycentered practices, this is shown to positively influence children’s outcomes (Dunst et al., 2007; Bodner-Johnson & Sass-Lehrer, 2003). In addition, when these services encourage families’ involvement with their child in a way that helps the child reach the goals the family has set for him/her, these practices also influence parents’ self-efficacy, satisfaction with services, and behaviors, such as their general parenting competence (Dunst et al., 2007). Family-centered intervention is based upon the recognition that parents are the most important agents of change for their young children with disabilities, rather than early intervention service providers (Dempsey & Keen, 2008; Workgroup on Principles and Practices in Natural Environments, 2008); consequently, early intervention is intended to increase parents’ confidence and skills regarding their ability to support their children’s development (Division for Early Childhood, 2014; Moeller et al., 2013; Early Childhood Outcomes Center, 2005). Therefore, in order to be most influential, family-centered services must include supporting parents who can then support their children (see Dunst, 2009), since they are viewed as the individuals who have the most potential to directly influence children’s day-to-day lives (Dempsey & Keen, 2008; Marschark, 2007; Moeller et al., 2013; Early Childhood Outcomes Center, 2005). Recognizing the importance of children’s day-to-day lives as a learning context, familycentered intervention also focuses on individualization, such that families are provided with services and supports that are relevant and applicable to their particular routines and activities (Division for Early Childhood, 2014; Moeller et al., 2013; JCIH, 2007; Workgroup on Principles 32 and Practices in Natural Environments, 2008), and that are based on the specific strengths and needs of each child and the goals of their family (Division for Early Childhood, 2014; Marschark, 2007; DesJardin, Eisenberg, & Hodapp, 2006). Therefore, the goal is for service providers to support families’ abilities to interact and communicate with their children in ways that promote children’s development of language skills, and that can be done within the context of their normally occurring day-to-day activities (JCIH, 2007; Yoshinaga-Itano, 2014; Workgroup on Principles and Practices in Natural Environments, 2008). An additional priority for family-centered early intervention services is to support parents’ decisions and goals for their children. For families of children with hearing loss, this means that unbiased information should be provided to families as they make decisions regarding the mode of communication they will use with their child (JCIH, 2007; Yoshinaga-Itano, 2014). In sum, services that are family-centered are intended to support positive parent-child interactions and increase parents’ self-efficacy and competence related to promoting their children’s development and making decisions about their children; more specifically, the support provided to families is intended to be embedded within their day-to-day routines so that it can be more applicable and easily incorporated into their lives. Below, each of these aspects of familycentered services will be discussed in more detail, since best practices in the field of early intervention provide a foundation of understanding the type of information that may be provided to families by their service providers. Parental self-efficacy. Goals of family-focused early intervention include promoting parents’ feelings about the important role they have in helping their children meet goals, and to empower parents to be able to make well-informed decisions about their children (Division for Early Childhood, 2014; Moeller et al., 2013; Early Childhood Outcomes Center, 2005), each of 33 which can build self-efficacy. Self-efficacy is an individual’s belief in their level of competence or ability to perform a certain task (Bandura, 1977, 1989). Parental self-efficacy, beliefs about the ability to competently parent children (e.g., Teti & Gelfand, 1991) or positively influence children’s development (e.g., Coleman & Karraker, 1997), has been shown to positively influence the ways in which parents interact with their children (Teti & Gelfand, 1991; for reviews see Coleman & Karraker, 1998; Jones & Prinz, 2005). For parents of children with hearing loss, self-efficacy is positively related to both the quantities and qualities of mothers’ communication that are shown to promote their children’s language development (DesJardin, 2006; DesJardin & Eisenberg, 2007). The Division for Early Childhood (2014) outlines their recommended family-centered practices by using phrases about how service providers should “support,” “engage,” and “work with” families (p. 8) since these types of supportive, empowering relationships are intended to increase parental self-efficacy (Moeller et al., 2013). Therefore, it is important that parents are provided with information that demonstrates their critical role in the process of promoting their children’s language development. One such way to demonstrate parents’ importance and role in this process is to provide parents with information they can use and apply to their daily lives with their children (Moeller et al., 2013), since this has the potential to positively influence parents’ self-efficacy, which then influences parents’ interactions and communication with their children and, subsequently, their children’s outcomes. Unbiased information regarding communication choices. An additional aspect of family-centered best practices includes providing families with unbiased information so that they can make knowledgeable decisions that are in line with their values and goals (Division for Early Childhood, 2014; JCIH, 2007; Moeller et al., 2013). Of particular importance for families of 34 children with hearing loss is the need for unbiased information related to possible modes of communication—such as spoken and signed language, and the continuum of additional options that are possible (JCIH, 2007; Yoshinaga-Itano, 2014). Choosing a method of communication can be challenging for parents of children with hearing loss (Seaver, 2010; Kurtzer-White & Luterman, 2003), and the information that parents receive from professionals plays an important role in this process (Decker, Vallotton, & Johnson, 2012; Eleweke & Rodda, 2000; Kluwin & Stewart, 2000). Therefore, it is important that families receive a range of unbiased information about their choices and be openly supported regardless of their decision (Moeller et al., 2013; JCIH, 2007); this unbiased information and support is important throughout the entirety of early intervention, since parents’ communication choices are dynamic and may change over time (JCIH, 2007). Supporting parent-child interactions. Because of the importance of encouraging the language skills of children with hearing loss this also means that family-centered early intervention should support families’ abilities to provide language-rich environments (JCIH, 2007; Yoshinaga-Itano, 2014), including providing information about opportunities to communicate with their children during everyday activities (Marschark, 2007; Moeller et al., 2013). Strength-based approaches should be used to provide information about how families can best support their child’s development (Division for Early Childhood, 2014; Workgroup on Principles and Practices in Natural Environments, 2008). However, recommendations for service providers about what constitutes a language-rich environment for children with hearing loss, and ways in which they can support families to provide these environments, lack specificity and detail. For example, service providers are encouraged to support parents’ use of language techniques that have been positively linked to language development for children with hearing 35 loss (Moeller et al., 2013) and “provide strategies” that can support children’s language development (Yoshinaga-Itano, 2014, p. 160)—yet the specific techniques or strategies are not listed or described. Similarly, the Joint Committee on Infant Hearing (2007) recommends that early intervention providers encourage parents’ involvement in activities that are known to promote children’s language development; however, the specific information that should be provided and activities that service providers should recommend are not discussed. Other resources do mention some specific strategies; however, these recommendations are directed toward the service provider, and are not discussed in a way that clarifies the information that could be passed onto parents. For example, based on recommendations of the Division for Early Childhood (2014), service providers are encouraged to use “language to label and expand” on children’s interests or cues (p.12). Further, it is recommended that service providers interpret and respond to children’s communication, regardless of whether it is verbal or non-verbal (Division for Early Childhood, 2014). In sum, the recommendations for the ways in which service providers can support parents to provide a language-rich environment are vague. In addition, the resources that provide recommendations to service providers do not explicitly discuss or explain the specific quantities or qualities of parents’ communication known to support the language development of children with hearing loss (e.g., Moeller et al., 2013; Yoshinaga-Itano, 2014). Recommendations for service providers do provide citations to professional resources or original research that support the suggestions given; however, the lack of complete transparency and description about information or suggestions that should be provided to parents is problematic given that service providers may struggle to interpret research findings (National Center for Education Research, 2015) or do not find them to be helpful (Zipoli & Kennedy, 2005; Campbell & Halbert, 2002). 36 Therefore, questions remain regarding the information that is provided to parents if the recommendations that exist for service providers lack specificity and, therefore, may not be particularly informative for the service providers themselves or for families if service providers are subsequently providing vague information. Information Provided to Parents by Professionals Although a number of studies have focused on parents’ needs and experiences related to early hearing loss detection, identification, and gaining access to intervention (e.g., Eleweke, Gilbert, Bays, & Austin, 2008; DesGeorges, 2003; Fitzpatrick, Angus, Durieux-Smith, Graham, & Coyle, 2008; Fitzpatrick, Graham, Durieux-Smith, Angus, & Coyle, 2007; Luterman & Kurtzer-White, 1999), there is a dearth of studies that focus on the types of information parents receive once they have begun intervention services. It is important to receive families’ input that goes above and beyond measuring their general experiences and satisfaction; the information parents receive as part of their involvement in early intervention services is a critical component of early intervention that needs to be measured (Alexander Graham Bell Association for the Deaf and Hard of Hearing, 2013). One study found that parents’ rate access to information as an important priority, yet the particular type of information that they desire was not specified (Fitzpatrick, Coyle, DurieuxSmith, Graham, Angus, & Gaboury, 2007). A few studies do report general information about parents’ desires for information they would like to receive. For example, a study by Roush and Harrison (2002) found a shift in parents’ priorities about the type of information they wanted to receive at the time of their children’s diagnosis of hearing loss versus a few months after the diagnosis. Immediately after diagnosis, parents wanted information related to understanding what caused their children’s hearing loss and how to cope with the diagnosis. However, a few 37 months later, their first priority for information was learning how to promote their children’s language development (Roush & Harrison, 2002). Another study also found that parents desired specific information related to their children’s hearing loss, such as the medical aspects of their hearing loss as well as information about what could be expected for the development of spoken language (Fitzpatrick et al., 2008; Fitzpatrick et al., 2007a). Further, one study found that the majority of parents receiving intervention services reported that they received information about deafness, legal rights, child development, and options about their child’s future; parents were asked about the service provided to them that they found to be most beneficial, and they ranked the receipt of these types of information higher than other services such as classes, group meetings, or individual counseling (Meadow-Orlans, Mertens, Sass-Lehrer, & Scott-Olson, 1997). These studies demonstrate that the content of the information parents receive as part of early intervention is important to them. However, similar to recommendations on the types of information that should be provided to parents, these studies only provide ideas about the general topics of information provided to parents, rather than details of more specific information. To date, there is one study that has more thoroughly examined parents’ reports of information they receive, and this study focused on the advice provided to parents by teachers of the deaf about engaging in shared book reading with their children (Watson & Swanwick, 2008). Parents reported that they received contradictory advice about how to engage in shared book reading with their children, and some received the message that they should treat their child with hearing loss as if he/she had typical hearing. Many parents felt that their child’s teacher had no advice to offer about shared book reading (Watson & Swanwick, 2008). These findings suggest that parents may receive varied or incorrect information and suggestions about how to 38 communicate with their children, which is in line with implications from previous research (e.g., DesJardin, 2006). The lack of more specific and accurate information may be due to the fact that very few early intervention service providers are trained to work specifically with children who have hearing loss (JCIH, 2007; Hands & Voices, 2005; Yoshinaga-Itano, 2003), even though early intervention is crucial for this group of children (CDC, 2015; Seaver, 2010; Marschark, 2007). It is of utmost importance that children with hearing loss receive services in a timely manner from professionals who have appropriate training and skills (JCIH, 2007; Moeller et al., 2013; Yoshinaga-Itano, 2014). This lack of trained professionals, in combination with vague recommendations for service providers about specific information and suggestions for parents, and the dearth of research that provides details about information given to parents, further demonstrates that information provided to parents may be lacking, inconsistent, or too vague. Based on best practices in the field of early intervention overall and as related to children with hearing loss, parents should be provided with information about their role and importance in promoting their child’s language development (Moeller et al., 2013; Yoshinaga-Itano, 2014; JCIH, 2007). Implications from past studies (e.g., DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam et al., 2012; Ambrose et al., 2014) and the theory of social constructionism (Gergen, 1985; Lock & Strong, 2010; Burr, 1995), suggest that the information provided to parents via early intervention service providers has the potential to influence their communication with their children, and subsequently their children’s development. However, only one study has investigated parents’ reports of information received (Watson & Swanwick, 2008), yet this focused on school-aged children who are past the critical age for early intervention to support their language development. Therefore, there is a need for additional 39 research in order to better understand the information that parents receive at a crucial time in their children’s language development, while they are receiving early intervention services (Alexander Graham Bell Association for the Deaf and Hard of Hearing, 2013). In addition, there are a variety of best practices that guide the field of early intervention; therefore, there is also a need to determine how the information that parents receive aligns with best practices, since this may inform future training and materials for service providers who work with families of children with hearing loss. Current Study The current study is intended to provide a more thorough understanding of a particularly important aspect of early intervention: the information that parents report that they receive via early intervention service providers about how to encourage their children’s language development and their role in the process of promoting their children’s language. Researchers hypothesize that the specific aspects of parents’ language that positively influence the language development of children with hearing loss may be influenced by the information parents receive via their early intervention service providers. A limitation in the current literature is that very little is known about the information parents receive and potentially internalize; this gap must be addressed in order to understand how this information may influence the way in which parents interact with their children and, subsequently, how this may influence children’s language outcomes. This exploratory study will be a first step toward examining the information parents report that they have received via early intervention and will also contribute to the existing literature about how the information that parents receive aligns with suggested best practices in the field. Therefore, the overarching question for this study asks: What information do parents report receiving as part of early intervention services regarding how to promote the language 40 development of their children with hearing loss and their role in this process of supporting the language development of their children? Methods Early Intervention Services within the State of Michigan This section will briefly address early intervention services in the state of Michigan as compared to other parts of the United States based on the Michigan Association of Administrators of Special Education’s (2014) comparison of early intervention systems. Michigan is one of five birth mandate states in the country, meaning that these states provided services to infants and toddlers before Part C of the Individuals with Disability Education Act (IDEA) was passed in 1986, which then mandated that services be provided to children under the age of 3 who have delays or disabilities. Part B services of IDEA cover children 3-21 years of age. Today all states, other than Michigan, use one set of criteria to determine eligibility for both Part C and Part B services. Michigan has two levels of criteria for special education services— meaning that children may be eligible for Part C services only, while others will be eligible for both Part C and B services. In Michigan, children who are eligible for both Part C and B services receive these services based on need and, at a minimum, receive 72 hours of services per year, while children who are determined eligible for only Part C services receive varied frequency and types of services and there are no minimum requirements for the amount of services provided (Michigan Association of Administrators of Special Education, 2014). According to the Centers for Disease Control, 32 children with hearing loss received early intervention services in the state of Michigan in 2012 (Centers for Disease Control, 2014). 41 Participants Twelve parents with typical hearing (11 mothers) and their children with hearing loss (7 females, M age= 21.6 months) participated in this study. All families were receiving in-home early intervention services within the state of Michigan under Part C of the Individuals with Disabilities Education Act; they had been receiving early intervention services for 15.4 months on average at the time of the home visit (SD = 7.8). Each parent was the primary recipient for the child’s early intervention services overall, but for two families the child’s nanny was frequently the adult present for interactions with the child’s service providers. Children were 3.6 months of age on average when they were identified with hearing loss (SD = 4.1) and 6.7 months when they began receiving early intervention services (SD = 6.4). Children had varying degrees of hearing loss; eight children were using bilateral hearing aids and 3 were using bilateral cochlear implants. Children were 12.2 months of age on average (SD = 7.6) when they began using their hearing devices. It should be noted that the child who was not using any type of assistance for hearing had mild, unilateral hearing loss. Additional demographic information for parents, their children, and families are included in Table 2.1. Table 2.1 Demographic Information Variable Parent demographics (%) Gender of participant Mother Father Employment status Stay-at-home parent Working part time Working full time Education level High school or GED Some college Associate’s degree Bachelor’s degree (N = 12) 91.7% (11) 8.3% (1) 33.3% (4) 33.3% (4) 33.3% (4) 16.7% (2) 25.0% (3) 8.3% (1) 16.7% (2) 42 Table 2.1 (cont’d) Master’s degree 16.7% (2) Professional or doctorate degree 16.7% (2) Child demographics Gender Female 58.3% (7) Male 41.7% (5) Age of child when identified with hearing loss (months, SD) 3.6 (4.1) Age of child when he/she first began receiving early intervention 6.7 (6.4) services (months, SD) Amount of time child has been receiving any type of intervention 15.4 (7.8) services (months, SD) Age of child at time of visit (months, SD) 21.6 (6.0) Hearing loss One ear 8.3% (1) Both ears 91.7% (11) Level of hearing loss in best ear when unaided Mild (27 to 40 dB hearing loss) 33.3% (4) Moderate (41 to 55 dB hearing loss) 16.7% (2) Moderately Severe (56 to 70 dB hearing loss) 16.7% (2) Profound (90+ dB hearing loss) 33.3% (4) Use of hearing devices Hearing aids for both ears 66.7% (8) Cochlear implants for both ears 25.0% (3) None 8.3% (1) Family demographics Household income before taxes $12,000-19,999 25.0% (3) $40,000-59,999 16.7% (2) $80,000 or more 58.3% (7) Race and Ethnicity* White, non Hispanic/Latino 91.7% (11) White, Hispanic/Latino 8.3% (1) Parents’ reports of the mode of communication they and their child use together Spoken only 8.3% (1) Mostly spoken, with minimal signing 41.7% (5) More spoken, some signing 41.7% (5) Spoken and signing equally 8.3% (1) *Parents reported their own race and ethnicity and then separately answered the same question for their child in order to consider whether the race or ethnicity of the child’s other parent differed from that of the participating parent’s. In this study, the participating parent and the child’s race and ethnicity did not differ. 43 Procedures To recruit participants, information about this study was primarily provided to families via Part C services, which in Michigan is the Early On system (Michigan Department of Education, 2013). Flyers about this study were provided to Early On county coordinators and service providers, who then passed along the information to families. Information was also distributed through social media networks and events for families of children with hearing loss in Michigan. Criteria for being in the study included the following: (a) children had to be between 12 and 30 months of age, be enrolled in an early intervention program, and have no cognitive delays or disabilities, and (b) both of their parents had to have typical hearing and use English as their primary language. Families in which both parents were typically hearing were recruited for this study, since research shows that these children with hearing loss are at greatest risk for developing lower language skills potentially because the mismatch between hearing statuses may create challenges for effective parent-child communication (Meadow-Orlans, 1997; MeadowOrlans & Spencer, 1996; Spencer, Erting, & Marschark, 2000). Children could have any degree of hearing loss, and families could be using any form of communication with their children (e.g., signed, spoken, or a combination of both). Only one parent per family was asked to participate in the study in order to make participation easier for families. Once a parent contacted the principal investigator and was determined eligible to participate, a home visit was set up; these visits took approximately two and a half hours. In advance of the visit, parents were sent questionnaires to complete that included questions about demographics and early intervention services in which they and/or their child participate. Visits were arranged for a time and day that the parent chose. The home visits included the study 44 coordinator, a member of the research team, and the participating parent and child; sometimes siblings were present as well. At the beginning of the home visit, participants were informed of the nature of the study, their rights as participants, and their right to stop participating at any time. This informed consent procedure followed the Institutional Review Board procedures of Michigan State University. A semi-structured interview was used to learn about parents’ experiences with early intervention services, including their interactions with service providers, including home-visitors, audiologists, or any other type of individual, service, or program they or their child had participated in or were currently participating in related to the child’s hearing loss. The interview protocol included asking parents questions about the information they have received from service providers regarding: (a) how to interact or communicate with their child, (b) how to promote their child’s language development, and (c) their role in promoting their child’s language development. Parents were asked to provide specific examples of information or suggestions they have received. These interview questions focused on the information that parents reported that they had received, and is not a direct measure of information provided to parents. However, for the sake of conciseness, in the results section of this study, parents’ reports of information received will be discussed as ‘information parents received.’ Parents received a $40 gift card and children received a book. Transcription and Coding In order to analyze the information from the semi-structured interviews, thematic analysis was conducted by engaging in the phases of analysis that are outlined by Braun and Clarke (2006, 2012). Transcription. Following the analysis steps outlined by Braun and Clarke (2006, 2012), first the interviews were transcribed by members of the research team. Both a video- and audio- 45 recorder were used to capture the interviews with parents, and were then used to create transcripts. Brackets were added in the transcripts when identifying information needed to be removed, such as names of individuals or agencies. Brackets were also used at times to clarify the parents’ message, such as situations when reading the transcriptions of the data would lose some of the meaning behind parents’ communication that was evident based on the audio and visual data (e.g., exaggerated tones, the use of signs, etc.). After the interviews were transcribed, they were double checked against the video data and re-read multiple times by the principal investigator. In the excerpts presented in the results section, the interviewer’s comments (e.g., “Okay,” “Mhm,” etc.) have been removed, and in addition, […] is used to indicate that a portion of the transcript has been removed for the purposes of providing a more concise example. Reliability and validity. Multiple steps were taken to establish reliability for this study. Although Braun and Clarke (2014) do not suggest that multiple coders are necessary for the use of thematic analysis, additional members of the research team were involved during various stages of the analysis (detailed below) in order to establish greater validity related to data interpretation and validity related to the use of specific codes. In addition, the principal investigator created memos after data collection visits, as well as during the process of rewatching the interviews, double checking, and re-reading the transcripts. Memos were also used to keep track of ideas and patterns that came about during data collection and the qualitative coding process, related to individual interviews as well as the project as a whole. Coding. The qualitative approach of thematic analysis was chosen for this study because of its flexibility; thematic analysis allows for the use of various theoretical positions and purposes (Braun & Clarke, 2006). The purpose of this analysis is to provide a detailed account of parents’ reports of the information they receive via early intervention, and to investigate the 46 complexity of themes, as well as the relationships between these themes. An additional purpose is to explore the relationship between information parents report that they receive and how best practices of early intervention for children with hearing loss. An inductive approach was used, meaning that the codes were driven by the data and were not determined a priori (Braun & Clarke, 2006). Initial codes were generated when the principal investigator and a member of the research team separately re-read each of the transcripts, and then met to discuss preliminary codes. Codes included short phrases or labels, usually using the parents’ own words, to describe a specific type of information received; some phrases or sentences were categorized using multiple codes when applicable (Braun & Clarke, 2012). After the preliminary codes were established, the principal investigator and a member of the research team separately coded 3 of the videos and then met to check for consensus of the usage of specific codes and to continue making adjustments to the coding by further refining codes, adding new codes, and splitting others that were more nuanced. Using NVivo 10 software (QSR International, 2014), the principal investigator then coded the transcripts, and continued to refine the codes. Then the principal investigator met with a member of the research team to discuss initial themes and a thematic map; themes included codes that could be grouped together to describe general pattern of information parents reported that they received, and the thematic map demonstrates the relationships between themes (Braun & Clarke, 2006). Refinement and definitions of themes, as well as refinement of the thematic map, continued until the uniqueness of each theme and richness of the relationships between themes became more precise (Braun & Clarke, 2012). During the coding process it became clear that although parents were not specifically asked about what additional information they wanted, there were a number of instances across 47 interviews when parents discussed their needs for additional information or support related to how they can promote their children’s language development. This was frequently discussed by parents after they answered questions about the information they did receive or from other questions during the semi-structured interview, since the interview included broader questions as well (e.g., parents were asked about ways that early intervention could be improved, if there was anything else that they would like to discuss at the end of the interview, etc.). Our research team chose not to ignore this important aspect of the data when it included discussions about information needed and/or not received, and, therefore, included this aspect of parents’ interviews into our codes and themes. Results Parents discussed a variety of suggestions or tips that they receive from service providers, as well as information about the importance of themselves and other family members to their child’s language development. Analysis of the data resulted in five primary themes; the thematic map (see Figure 2.1) shows each of these themes and their relationship to one another. In the thematic map, the main themes are outlined with solid black lines, and subthemes are outlined with dashed lines. Four of these themes are related to the information that parents receive from their service providers about how to promote their children’s language development, and the fifth theme demonstrated parents’ needs for information or support in addition to what they have already received. Importantly, nearly all parents’ interviews related to each of the five themes, regardless of their children’s degree of hearing loss, use of or type of assistive devices, or the primary mode(s) of communication parents reported using with their children. The thematic map demonstrates the centrality of the information parents received about talking frequently with their children during everyday activities and routines, since these are the 48 contexts in which their children will learn language (which is represented as an oval in Figure 2.1). Parents were also encouraged to focus on both letter and environmental sounds with their children and take advantage of other communication channels, such as eye contact and touch. Parents also received information about their importance to their child’s language development; in the thematic map this is placed above the central theme of talking frequently because they received information about how their interactions and communication with their children is what provides the driving force behind their children’s language development. Parents also discussed a need to receive additional information; parents reported that they need more information that is specific to children with hearing loss, and additional information about the use of sign language. In the sections below, each of the themes will be discussed individually in more depth, then the more nuanced relationships between these themes and the overall representation of the data will be explored. Specific info because of child’s hearing loss The parent is essential, most important A need for more Use effective speech (e.g., talk clearly) Use signs to supplement speech Info for learning signs/sign language Talk frequently, all throughout the day Focus on sounds, hearing Incorporate other communication channels Figure 2.1. Thematic map of information parents receive from their early intervention service providers. 49 Theme 1: The Importance of Talking Frequently, Particularly in the Context of Everyday Routines and Activities The theme that emerged as central, and most prominent to the information parents received, is that they should be talking throughout all of the everyday activities and routines they do with their children. Every parent discussed receiving information that related to the importance of frequently talking with their children. This information was related to when and where they should be talking with their children—and, essentially, that they should be talking as frequently as possible throughout the day, regardless of where they are and what they are doing; quite a few parents used the word “constantly” during portions of their interviews that related to this theme, demonstrating the importance of frequency. It is important to note that when parents discussed receiving information that is pertinent to this theme they nearly always used the word “talk,” which demonstrated that this information was primarily about the spoken modality of language, but they also talked about some of the information they received more generally, as also related to their overall communicative interactions with their children. Parents received information about a variety of ways that they could support them to talk frequently, such as making sure to talk and narrate during routines and activities and slowing down their interactions with their children; they also received information about using signs while talking, and the importance of the spoken aspects of this frequent communication, such as articulation while speaking. In particular, parents received information about communicating during their everyday routines, such as eating and getting dressed; they also received encouragement to engage in common parent-child activities, such as reading and playing together, and to talk frequently during these activities. For example, parents received general suggestions; one parent was told to 50 “read to her, and play with her, and talk to her.” (111), while another parent, when asked about what she has been told about her role in promoting her child’s language development, this parent responded, “Talk. Talk talk talk talk talk talk talk.” (103). Parents also received more specific suggestions about “narrating constantly” (101), and ways to incorporate this into their day-to-day routines in order to talk about what they or their children do. For example, when parents were asked about suggestions they receive or information about their role in helping promote their child’s language development, these were two typical responses: Everybody through the program always says that no matter what you’re doing, you should say everything that you’re doing. Everything. Because then, you know, eventually he’ll pick up, especially the things once they really hear it, they’ll pick it up because you’re constantly saying everything that’s going on: if you’re going to the grocery store, if you’re driving, if you’re eating, if you’re brushing their teeth. Every single thing that you do it should be constant language. […] Pretty much non-stop talking. […] No matter what activity you’re doing, you should be saying everything you’re doing, describing everything. (110) [We’ve been told that] our role is to teach her the daily things. To teach her, ‘we’re putting on your shirt,’ ‘we’re putting on your pants,’ ‘we’re going out the door,’ ‘look at who’s home, daddy’s home,’ ‘look at the dog, feed the dog.’ So like, the daily life things is our role; to teach her how to get through the day, and to communicate. […] Talk and talk and talk and talk! Which is hard for some people, and it is, some days it’s really hard for me. Like I find that I’m just handing her things and I’m like, ‘Why didn’t I explain what I’m handing her?’ But that’s why [our service provider] reminds us of that. Because we get in routines; parents get in routines, and we just do it and we don’t explain it. (104) In addition, parents also received information about the importance of slowing down their interactions with their children, which provides opportunities to use additional communication during everyday routines or while they play together with their child. Parents were encouraged to slow both themselves and their children down; instead of rushing through even regular or mundane routines together, parents received information about the fact that these routines provide an important opportunity to increase the amount that they talk with their children on a day-to-day basis when they take the time to discuss these different aspects of their children’s 51 lives. The suggestions that parents received about slowing down was closely related to information about how this provides opportunities for repetition. For example: It’s kind of just a reminder to, ‘Okay, we need to slow down’ […] Because with [the child’s sibling who has typical hearing] he just did it, so with [my younger child who has hearing loss], it’s just kind of putting your mind set in different way. […] It’s just a lot of repeating. […] So it’s like, ‘Let’s take time with this,’ ‘Let’s talk about the giraffe,’ ‘What’s special about the giraffe?’ (112) I just got to get him to stop and, you know, just try to focus and listen, and just the language. That’s what I’m always told, just all that constant language—that is the most helpful thing. And that’s what’s going to help him. And hearing everything over and over, because it’s very repetitive. (110) Subtheme: Effective speech, such as speaking clearly, may be particularly important. As mentioned above, when parents discussed the receipt of information related to this idea frequently communicating, they primarily used the word “talk,” indicating that this information seems to be specifically about the use of spoken language. Further, parents did not just receive information to talk, but that how they talk is important. Some parents discussed receiving information about specific ways they should be talking with their child; they mentioned receiving information about the importance of pronunciation, enunciation, or talking clearly in general. Some typical examples include: [They tell you that] you have to make sure that you say things—you’re pronouncing it correctly or otherwise they’re not going to learn it correctly. I don’t want [my child] saying it wrong or anything. (110) Basically [our service provider] makes sure that we are being consistent. […] Like if she doesn’t understand something to make sure to be insistent about the way we say something to her. And to make sure like if she doesn’t understand it, sort of explain it or just to be consistent with the way we do that. (108) Subtheme: Using signs to supplement frequent speech. Some parents received information about the use of signs, and to incorporate them into their frequent, spoken communication with their child. A few parents received information about signs in the form of 52 specific demonstrations from their service providers. However, most parents received information in the form of materials or resources about individual signs to use while talking, rather than information or demonstrations about the use of sign language on its own or simultaneously with speech. Parents discussed receiving information about signs, as if the information was to help them learn an additional communication tool to supplement their speech, rather than information that would help them learn a language that could subsequently support their children’s language development. Most of the information parents received about signs was not in-depth; for example, parents received general information to use signs while speaking (e.g., “Just talking, and doing the signs.” (102); “They have stressed the signing and speaking.” (107)). The majority of information that parents received about signs was how to produce individual signs, such as information in the form of handouts, booklets, or websites that included pictures or videos of signs. For example: They gave me the signs and stuff. They printed out like little booklets to work on. And I immediately put them on the fridge; they’re still on the fridge to work on, and once she gets it, to turn the page and work on the next few signs. (104) Originally they gave me a flip book of some signs I can do. But I’m like, ‘Well that’s not really gonna help me [because they are in a flip book].’ So I’m like, ‘Can you laminate them separately? And then magnetize it? And then I can put it on the fridge.’ Because a lot of the signs I do are ones like ‘eat’ and ‘more’ and that type of thing. (111) So it wasn’t very frequent, but she would leave, like she left us information on the signing, like where to look on the internet. (107) Summary. Overall, parents are provided with information about how it important it is that they use a lot of communication with their child, primarily through spoken language, all throughout the day. Parents received information about the fact that everyday routines and activities, which may seem mundane, are actually great opportunities for their children to learn 53 language, so they should talk all throughout these aspects of their day with their children. They also received information about the use of signs during their frequent communication, but there was a heavy emphasis on using speech, as further demonstrated by the next theme from parents’ responses. Theme 2: Promoting Listening Skills and Language by Focusing on Sounds Parents received information about discussing or drawing attention to the range of sounds that are part of their children’s lives in ways that will help their children’s development of listening skills; they received information about a variety of sounds to focus on, such as those associated with spoken communication, sounds within the environment, or toys and other objects that make noise. They also received information about different activities that they could do with their children while playing together in order to support their child’s listening skills or production of sounds or spoken language. All parents discussed receiving some aspect of information that related to this theme overall; however, one specific aspect of receiving information about focusing on sounds only applied to children who were using hearing aids. In particular, the majority of parents whose children were using hearing aids received information about the importance of their child’s hearing aids and having the child wear them often; they received information that their child’s ability to hear was crucial for the child’s language development. For example, when parents were asked about the information they have received about what will promote their child’s language development they said things like: “Wearing her hearing aid so she can hear the talk,” (102). As for the rest of the information parents received that related to this theme, regardless of their child’s use of a particular hearing device, many parents discussed receiving information about promoting their children’s listening skills, both as it related to developing auditory skills in 54 general and for learning to then express language. Some parents received information about drawing attention to different noises within their surroundings (e.g., “The speech pathologist came to work with him and she said whenever you hear something, say ‘I hear it!’” (107)), and, more specifically, to help their children listen for and recognize different words or letter sounds. One example from a parent includes this aspect of focusing on letter sounds, which can help with the children’s listening skills and encourage children to make sounds as well: We’ve talked about like the, just some of the strategies to help promote, or some of the listening activities to do to help. […] His speech therapist gave us like this little game that was like turtles that had vowel sounds, like ‘ah ee oo’ […] so he could practice, he has to listen to it. And then trying to encourage him to make the sound. (101) Parents also received information about using objects, such as those that would be part of everyday play, to help their child associate an object with a specific sound (e.g., “You would say ‘moo’ for the cow. ‘Grr’ for the bear.” (107)). Parents also said that they received information about more specific types of activities to do, which could be incorporated into play. For example, one mother, who had previously mentioned that her service provider had encouraged her to help her daughter start producing the “K” sound, talked about receiving information about incorporating this into play: We started 'kick' and now she’s got it. […] A lot of [our time spent with the service provider] right now is done outside just because that’s where [my daughter] likes to be. You know we kicked the ball outside yesterday quite a bit. (103) Other parents also discussed information that they received about specific ways to incorporate sounds into their play with their children. For example, two parents talked about being encouraged to use the sounds from Ling-6, which is a way to test children’s hearing across the speech spectrum (Hope Cochlear, 2015); specific objects are matched up with sounds and this can become a game for parents and their children to play together. One parent said: 55 The speech therapist has been good about giving us exercises to do with him […] like some Ling-6 exercises. […] She was teaching me about like Ling-6 sounds, and like showing me, how she had like different toys associated with each sound. (105) Furthermore, some parents received suggestions of ways to help their child develop specific skills so that the child could produce certain sounds associated with speech. For example, a few parents mentioned receiving information about the importance of their child’s ability to round their mouth, and ways that they could help their child develop that skill: The one thing was drinking with straw. I never knew that helps form his tongue, help work out his tongue to form letters and consonants. […] And they gave him a honey bear with a straw. You know those honey bears with the straw? So that was one technique. (107) Theme 3: Incorporating Other Communication Channels Many parents said they were encouraged to incorporate additional communication channels into their interactions with their children. Communication channels include sound, vision, touch, and smell (Hewett, 2012). Parents primarily received information about incorporating the communication channel of vision, but they mentioned receiving information about using touch as well. Parents received information about paying close attention to eye contact, and their proximity to their child so that he/she could see the parent’s mouth. Parents also received information about being face-to-face with their child, such as during play or book reading activities. Other parents talked about it more generally, for example: One of the most important things is they like you to be at eye level with them so they can see your whole face. It’s more personal and it’s just so they can watch you. You know, and they’re focused right on you when you’re talking to them. Otherwise it is hard for them to pay attention or even hear. (110) 56 Some parents also discussed the importance of incorporating touch into their interactions with their children, in an attempt to help their child understand that sounds come from the mouth. This meant using touch in relationship to the parents’ mouth or the child’s mouth: They just mainly tell us to work on trying to get her to say sounds, and when you are trying to get her to say sounds you put your hand by her mouth so she can feel it. (102) [One of the service providers told me] about different techniques to use, like putting her hand up to my mouth when I say something. So that way she can kind of tell the way that my mouth is doing it. (108) One parent also received information about gently touching her daughter, so that her child could understand that she was being loud. She said: That is something they ask me frequently is, you know, ‘How’s it going’ and, ‘What’s your hardest part of the day?’ […] [I tell them] she screams really loud! And so they have worked with us on trying to find ways to work on that. So I put my finger up to her lip, instead of yelling back at her. ‘Cause I was just making it worse. They’re like, ‘Oh just put your, you know, just touch her. Touch her.’ And I’m like, ‘Yeah, that makes complete sense. She’s a touch kid, why didn’t I think about that?’ (104) Parents also discussed receiving information about using touch, as well as gestures, to help direct the child’s visual attention and make connections with different sounds. The pattern in the data related to use of gestures and touch was strongly associated with parents’ receipt of information about focusing on sounds with their children; this will be discussed further in a section below. Theme 4: The Essential Role of the Parent Parents discussed receiving information about their importance, specifically as it relates to the crucial role they play in their child’s development. More specifically, some parents heard that they are important because they are the ones with whom their child spends the majority of his/her time, and with whom their children are most comfortable. In addition, they received information about how important it was for them to be involved in multiple aspects of 57 intervention, such as following through with the suggestions made by service providers or medical doctors, taking advantage of the resources that they have available for their child, and advocating for the child. In relationship to parents’ role in early intervention, they received information about their role as their child’s teacher (e.g., “That basically that I’m his number one teacher, and that he’s gonna, I guess respond to me better than them just because he’s with me all the time” (101)). Parents also received information about the importance of family as a whole, including the significance of the child’s other parent and siblings. For example, when asked about the information they received about what is influential to their child’s language development one parent said mentioned herself and the child’s father and sibling, but also said: “He’s got two sets of great grandparents and we have a nice big set of extended close friends that are just cheering him on” (112). However, the overarching feature of this theme is that parents were told that they were the most important individual in their child’s life, for example: My importance? You know, they tell me that it is very important, that probably that I am the most important, the parents and their home life because they are around us the most. And to encourage them with their development. You know, just to know that, ‘You’re doing a great job,’ and they’re always really supportive about everything that we’re doing with her development. (106) Parents discussed that their service providers were genuinely invested and cared deeply for their children, but that they could also tell that the service provider viewed them, the parents, as most important since the service providers also invested a great deal of time into the parentchild relationship. Besides just checking on her […] they’re talking to me: ‘How are you doing? Are you having any issues?’[…] And they’re showing me that I’m important. […] They’re very focused on me and her. […] You can tell that her growth is important to them. You can tell that they love her and they’re invested in her. They’re invested in me, and us as a family, and her development and her future. (111) 58 Furthermore, this was also evident because they were told that they are the individual who is supporting the child the most, and their influence is much greater than that of the service providers’. For example: [My service provider] makes it very clear that, you know, [early intervention] is there to help, but they’re there to help us help her. So, to make sure that we’re part of her development, her language development. […] [She] has put it out there that if the family and parents are not involved then it’s not going to go as good. (108) Well, they’re here twice a month, at best twice a week. That’s only two hours a week. So, if I don’t do it then it’s not going to get done. […] That’s what she said the first time she came here, ‘We’re here this much [a few hours a week] and you’re here this much [all the rest of the time].’ (112) Theme 5: Parents Need Additional, Unbiased Information in Order to Feel Supported This section focuses on parents’ discussions about the way that their experience of early intervention could be improved, as specifically related to the information they receive. There were two subthemes that dominated these discussions: the need for more information or support related to the use of signs or sign language, and a need for more information that is specifically related to the fact that their child has hearing loss. Importantly, it was not that certain parents receive information while others receive barely anything; instead, this theme in the data is driven by parents who discussed a need for additional information that would go above and beyond the information they already receive. Subtheme: A need for more information and support related to signs/sign language. The majority of parents discussed using signs or sign language with their children, and many of these parents also talked about their desire to receive additional information about this; specifically, they discussed that they need additional information in the form of more instruction, support related to the choice to use signs/sign language that the parent had already made, and about using the complete structure of sign language rather than individual signs. The following 59 examples demonstrate the common patterns in parents’ interviews about the need for additional instruction, or that the information would not be helpful to learn the language itself: There’s just a lot of different signs that they do, but everything that they say they try to use the sign for it. […] They ask us to try to use them while we play with her, which is hard because I don’t know how to do them, but we try our hardest. (102) When we started out with [our service provider] I said, ‘I wanna sign’ and they were like ‘Okay’ [the parent uses a hesitant, exaggerated tone that gives the impression of uncertainty: ‘oooh-kay’] and so they tried, they tried really hard and that’s when they gave me the pamphlets and stuff. (104) Parents also discussed a lack of and desire for more support related to the use of sign language, not just signs, but the complete structure of the language. Therefore, in order to try to learn about the use of American Sign Language, these parents had to seek out their own resources, one of which being videos that are primarily meant for children (e.g., Signing Time; Two Little Hands Productions, 2015). I think it would have been helpful if, I guess, if I could change anything—if I could have got like assistance from early intervention in terms of learning sign language myself. That was something we totally had to do on our own [through classes]. (105) There’s no learning how to state a sentence or communicate, it’s just, ‘Are you guys hungry? You wanna go have food?’ [signs ‘food’]. So it’s not […] ‘Go to the table, there’s food time,’ [signs: ‘table,’ ‘food,’ and ‘time’], you know. So what I’ve learned mostly is from Signing Time [videos]. (104) Parents also discussed a desire for more support in two interconnected ways: unconditional emotional support related to their decision to use sign language, as well as support in the form of receiving additional information about how to continue with the decision that they had already made about using signs/sign language. Some parents discussed that they did not feel supported in their choice to use sign language with their children, and that their service providers seemed biased toward the use of spoken language. For example, when asked about the receipt of 60 conflicting advice, some parents talked not only about a lack of support, but also being questioned about the choices their family had made: I think it even got more conflicted because we’re choosing to move to [a new city], so that he can attend the oral deaf program. And so then they’re like, ‘Well if you’re gonna do all oral, why are you still doing sign [language]?’ And I was like, ‘Well, because he really makes the connection with the oral if he knows the sign.’ So I don’t think people quite understood that choice, and they just wanted me to do all verbal—just verbal, verbal, verbal. (101) Our teacher of the deaf and our speech therapist are pushing towards the oral program, and we’re hesitant. We kinda want [him] to do the Total Communication. […] Our teacher of the deaf, and maybe our speech therapist, are really focused on getting him to a point where he can be mainstreamed, and that’s not really a concern of ours. […] We really want him to be bilingual. (105) Subtheme: The need for more specified information. Parents’ desires for more specific information stemmed from the idea that their child is not just any child; their child has hearing loss, and this is part of what makes their child unique and their needs as a parent unique. For these parents, their child’s hearing loss meant that they felt there should be particular ways of communicating or interacting with their children in order to support their language development. Parents felt that they were not receiving this type of specific information, and this led them to feel as if they information they receive “seems so unsophisticated” (106) and does not completely meet their needs; they did not feel comfortable that they have enough information to fully support their children’s language development. Some parents talked about this much more than others; in one instance, one parent’s interview was dominated by her discussion related to this theme of needing additional, specific information. This parent’s quote provides a variety of examples that demonstrate what other parents mentioned as well: [My child] has a special situation […] So I feel like I would like specific things that I can do. […] ‘Is there a certain way I should do this?’ You know, ‘Is there a certain way I should talk? Is there a certain way I should read to her? Is there a certain amount? Is there a certain type of book?’ You know? Like there’s all sorts of little nit-picky questions. […] I think would really help me and empower me, and make me feel like I’m having 61 more of an impact, because right now I just-, it’s not bad for her to feel like she’s any child and I’m any parent. I mean that’s not a bad thing, but we do have a special situation here that I need to be on top of. And I just kind of feel like I’m coasting along like anyone else would that doesn’t have a special situation, and I don’t like that feeling. I kind of feel powerless and I question everything, and I don’t have anyone telling me. They’re telling me I’m doing good but they’re not telling me anything specific I can do better, so I don’t feel like I’m doing better. (111) Although not central to the guiding question of this study, a complex aspect of parents’ discussions must be noted—all parents talked positively about their service providers as individuals and about the services that they receive. Frustration did not dominate the emotional tone of interviews, with the exception of one participant (mentioned above) who discussed multiple times, at length, about being irritated and disappointed about not receiving more specified information. Even this particular parent, as well as all others who discussed a desire for more specified or supportive information, an appreciation for the services was still discussed. For example, one parent commented on both of these aspects—a desire for more specialized information, but despite this, his appreciation of the services: I don’t think they have a lot of exposure or experience with deaf children, and so it seems like it’s geared more towards like, you know, just kids with other issues […] So I mean, I guess overall, through no fault of their own they just, they’re not experienced with deaf kids so we didn’t feel like they had too much to offer us. […] So I mean, they’ve been wonderful. But as far, in terms of like working with him in terms of his hearing loss, you know it’s hit or miss. […] I just hope I got across that like, you know, we’re generally happy with early intervention. […] It’d be a great program for like, any other kind of disability. (105) Connections between Themes The overall patterns in the information parents receive suggest the centrality of the idea of frequently talking within the context of everyday activities and routines, and that parents are foundational to why this matters—they are of utmost importance in their child’s life, and, therefore, are encouraged to interact with their children in specific ways. However, parents desire additional specific information about ways in which they can support their child, who is unique 62 because of his or her hearing loss. These primary themes were related to one another, which also helps elucidate the broader interconnectedness of the data (see Figure 2.1). Talking frequently is central to the information parents receive. The theme of talking frequently was related to each of the other primary themes. The information that parents receive about the importance of frequently talking with their children included the additional recommendations about what that communication should include, such as different sounds in the environment and making sure that the child has access to a visual channel of communication. For example, there are connections between the information parents receive about the importance of talking frequently and the qualities of this communication: Encourage the reading, and keep the talking, like when we talk to her just look, make sure to look at her, talk clearly. […] You know, just make sure she understands the words, don’t like turn and talk to her. Make sure you look at her and she knows you’re talking to hear it. (109) Parents’ importance was also closely connected to the central suggestion of talking frequently. In particular, the reason that they receive this information about this frequent communication is due to the fact that they, and their family members, are the most important individuals in their child’s life, and therefore, have the ability to positively influence their child by increasing their own amounts of language. For example, these are some common examples of this: [My service provider says] that I am key. That if I sit back and just let [my child] do it all on her own and don’t work with her, you know, then she won’t get it as fast. She might still get it, but it might not be as fast. Plus, the chances of lisp and talking differently are less when we’re communicating with her and talking with her. (103) They’ll send pamphlets reminding parents that, ‘You are the biggest influence!’ And, you know, how can you be a bigger influence, and like I said earlier, they sent me a sheet saying, ‘Read this book, and during the day don’t forget when you’re brushing her teeth say ‘Brush, brush, brush!’’ […] If we’re silent, she’ll be silent. I mean, they always tell you that a child is born with a clear slate and you’re the one that’s painting it. […] It’s, ‘You have that ability to teach her.’ (104) 63 The interconnectedness of information about talking frequently, parental importance, and focus on sounds was also evident in discussions of hearing aids. Parents receive information about their role in this process—it is not only about having the child wear his/her hearing aids, instead it is about the important role the parent plays in providing the child with additional access to spoken communication, which then makes the hearing aids more valuable. For example: They’re always telling me, even the audiologist tells me, how important I am and how well I’m doing. Just because I’m trying, you know, ‘You keeping the hearing aids on him all the time is very important, or just constantly trying just keeping that language [going].’ That’s the biggest thing that they say. They say all the time, is the language. (110) One of the ways in which talking frequently was linked to other themes was through the communication channels of touch and eye contact, and to use gesture to provide opportunities to engage in eye contact. Recommendations about touch and gesture were ways in which parents could draw attention to something in the environment, gain their children’s eye contact, and then discuss it with their child. For example, parents talked about touching their own face or pointing to something, which then provided an opportunity to make eye contact and talk about what is going on around them: They say always talk and point out things. […] So if [water was] running and they would say, ‘Oh do you?’ Gestures is another big thing. ‘Do you hear the water running?’[puts her finger to her ear]. And stop and listen or point to the water. So identify noises, and just have a large variety of noises and sounds. (106) Well this has been really helpful like, the first one we really got him to work on was [the letter] B, we’d go ‘buh buh’ [making the B sound while touching her lips with her forefinger]. Or with the horse we would go, ‘nay’ [while touching her nose with her forefinger] […] Just kind of pointing, like getting his eyes on you. Like, ‘Where might this sound come from?’ […] We have a sheet with the, ‘if you’re going to do a K sound, you might want to get his eyes up here, looking at your mouth, and how you’re going to do it.’ (112) Parents are important to their children’s language development; therefore, they receive a variety of information to support their children. Parents’ discussions about the 64 information they receive about their importance demonstrates one of the overarching findings of the analysis. This theme rises above all others: because parents are important to their children’s development of language skills, they receive information about what to do with their children during common activities and routines, and talking frequently with their children is key to this. For example, when asked about their role in promoting their child’s language development, parents said things like: “We’re language models. He’s gonna learn what he sees, and now what he hears” (105) and “Parent interaction. Because [the service providers] only get to see him an hour a week, and for him to really make progress there needs to be more than just an hour interaction per week.” (101). This next quote also demonstrates the overarching interconnectedness—parents receive information about engaging in different activities together and communicating during these times, and that they are important to their child’s language development, yet they still long for more: [What they’ve told me], you know, I mean that’s kind of what I would do anyway. So far we haven’t implemented anything special. […] I’m a first time mom, so I know normal things like read and play and puzzles, and you know, I know kind of the basics. But if there’s something specific or special I should be doing with her—I keep telling them, ‘Let me know,’ and they keep saying that, ‘Right now, just what you’re doing is what you do. You play, you read, you talk. You describe what you’re doing as you’re doing it’ […] I’m waiting for that [additional] instruction and I haven’t got it, and that might be, it’s not a criticism. That might be my only question, about like: ‘Is there more?’ They don’t seem to think so. […] They’re focused on me, on her, on us. Yeah, they’re very concerned, they’re very caring, so that’s awesome. I just can’t wait till we start implementing specific things. (111) Summary The patterns in the information parents received from their service providers demonstrate that parents receive information that they are the primary change agent for their child—they are important, and their importance goes above and beyond what the service provider can do in the 65 short amount of time that they see the family. Further, parents receive information about how to increase the amount of language their children are exposed to, as well as specific information about the importance of focusing on sounds and incorporating additional channels of communication. Since the parent, and the child’s family as a whole, is particularly important to this process, these suggestions are about routines or activities that are part of their everyday life with their child. Despite receiving a variety of suggestions, it is clear that parents have a strong desire for additional, specific information—their child is not the same as children who are typically developing or have other types of disabilities. Parents’ need their interests or choices related to the use of signs or sign language to be better supported, and they feel that this can be done by receiving with additional information about the use of signs or sign language. Furthermore, since they are the most important individual in their child’s life and their child has unique needs, they feel as if there must be more nuanced ways in which they should be communicating or interacting with their child in order to best promote language development. Discussion The purpose of this study was to investigate parents’ accounts of the information they receive about how to promote the language development of their children with hearing loss, based on their interactions with early intervention service providers. The findings of this study demonstrate that some of the information that parents receive is in line with both research and best practices in the field of early intervention overall, as well as those related to children with hearing loss. However, the findings also demonstrate that there is considerable room for improvement in order for families to feel fully supported in their efforts to support their children’s language development. 66 Alignment with Best Practices An overarching result of this study is that parents are provided with information about their importance to their child’s language development—parents are told that they are “key” and because of their relationship with their child, including the amount of time they spend with their child in comparison to the service provider, that they and their family are the most important individuals who can positively support their children’s language development. This finding is in line with recommendations for family-focused early intervention, given that one of the foundations is supporting parental self-efficacy (Division for Early Childhood, 2014; Moeller et al., 2013; Workgroup on Principles and Practices in Natural Environments, 2008). In addition, parents’ reports of suggestions that focus on the idea of frequently communicating about things that are already part of their everyday lives is also in line with best practices. It is important that parents receive information that can be easily integrated into their everyday lives and interactions with their children (Dempsey & Keen, 2008; Marschark, 2007; Moeller et al., 2013). Furthermore, the central theme of this study relates to parents’ receipt of information about the importance of their constant communication with their child. This emphasis on frequently talking represents one key piece to promoting the language development of children with hearing loss—certain quantities of parents’ language are shown to be supportive of the language development of children with hearing loss (DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, et al., 2012; Ambrose et al., 2014). However, it is not the only aspect of parents’ communication, or modality, that should be considered or encouraged by service providers. The parents in this study did receive additional information above and beyond the emphasis on quantity; some of the suggestions parents were given did relate to qualities of their communication as well. For example, parents received information about the importance of 67 focusing on sounds and using other channels of communication, particularly so that they could attain a joint focus of attention with their child. This aligns with the importance of parallel talk or symbol-infused joint attention (i.e., communication about what both a parent and child are attending to), which have been shown to promote the language development of children with hearing loss (e.g., Barker et al., 2009; Lederberg & Prezbindowski, 2000). Unmet Needs The findings of this study suggest that there are specific ways that parents could be better supported via the information provided to them by service providers. This includes information about a) modes of communication that could be used with their child, and subsequent support based on these decisions, b) communication, in any modality, rather than only spoken language, and c) the need for more specified information that goes above and beyond overall quantity of language to include specific quantities and qualities that are particularly important for children with hearing loss. Parents discussed their desire to receive additional information or support about the use of signs or sign language, or their frustrations from not receiving this; parents mentioned that they need more information and instruction about how to learn signs and sign language, as well as a more supportive, unbiased environment in which to receive information about the method(s) of communication they have chosen for their child. Part of providing family-based early intervention means respecting parents’ goals for their children and providing unbiased information to families so that they can make informed decisions (Division for Early Childhood, 2014; Workgroup on Principles and Practices in Natural Environments, 2008), including those related to the mode(s) of communication they will use with their child (Yoshinaga-Itano, 2014; Moeller et al., 2013). 68 Parents reported that they receive information about the use of signs, but this is primarily at an introductory level, such as the receipt of handouts or websites that show individual signs. Providing parents with this information only at the introductory level is not satisfactory, and is not in line with best practices; parents should be provided with in-depth information about the use of possible modes of communication, including spoken language, signed language, or both, or any other option within the continuum of choices (JCIH, 2007; Yoshinaga-Itano, 2014; Moeller et al., 2013). When parents have a desire to learn American Sign Language, these services need to be provided by early intervention service providers who are fluent or native signers and have specialized training related to teaching parents these skills (Yoshinaga-Itano, 2014). Providing parents with information about individual pieces of American Sign Language (e.g., individual signs) is not sufficient, since this only represents a small portion of the language itself. This study suggests that parents do not receive adequate, appropriate, or complete information about the use of signs or a sign language, which is consistent with previous research (Kelly, 2011), but inconsistent with best practices. In addition, adult learning styles should be taken into consideration (Moeller et al., 2013). Providing parents with handouts or websites to learn a language is not in line with adult learning styles, since it does not provide opportunities to practice and receive feedback (Ambrose, Bridges, & Lovett, 2010). These types of resources also do not align with the way in which this language could be best learned, given that it uses visual information from hand, body, and mouth/facial movements (Quinto-Pozos, 2011). The most prominent suggestion or advice that parents discussed was being encouraged to “Talk and talk and talk and talk!” (104). Parents’ reports of receiving information about frequent spoken language, rather than frequent communication which could include any modality, is 69 concerning. This focus on talking demonstrates a bias for spoken language, or lack of knowledge and experience with sign language. It is possible that service providers may worry that providing information and support for the use of sign language may hinder children’s abilities to learn spoken language, but first and foremost, service providers should respect parents’ decisions (Moeller et al., 2013; Yoshinaga-Itano, 2014). Furthermore, research shows that children’s use of sign language supports spoken language skills (Preisler, Tvingstedt, & Ahlstrom, 2002; Yoshinaga-Itano & Sedey, 1998); therefore, providing parents with information about both modalities of language is appropriate, and does not come at the cost of hindering language development overall. Parents need to be supported by professionals who have specific training and experiences related to working with children who have hearing loss and their families, who can then support parents’ interactions with their children regardless of the modality that parents prefer (Yoshinaga-Itano, 2014; Moeller et al., 2013). Furthermore, this vague suggestion to talk frequently does not capture each important aspect of the quantities of parents’ communication: total number words/concepts (tokens), total number of different words/concepts, or richness, of their language (types), mean length of utterance, or conversational turns with their children. Instead, this suggestion of talking frequently seems to suggest that only the total number of word tokens parents use is most important, even though the richness of parents’ language, their mean length of utterance, and conversational turns are quantities of their communication that are predictive of language development for children with hearing loss (Cruz et al., 2013; DesJardin & Eisenberg, 2007; VanDam, et al., 2012; Ambrose et al., 2014). It also does not capture the qualities that characterize high-quality communication for children who have hearing loss, such as the use of higher-level language techniques that are primarily dependent upon responding to children’s 70 vocalizations, actions, or interests (e.g., Cruz et al., 2013; DesJardin et al., 2014; DesJardin & Eisenberg, 2007; DesJardin, 2006). It is possible that parents who receive information about talking frequently use a large quantity of total words with their children, but this message may not influence the diversity, or richness, of their language, nor the other qualities of communication found to be important for children with hearing loss. Also, while parents do report receiving a variety of information about ways in which they can support their child’s language development, they also discuss that they need additional, more specific information about communicating and interacting with their child. Parents discussed that their children are unique because of their hearing loss; therefore, parents discussed the need to receive specialized information about how to support their children’s unique needs, and they do not feel that they are receiving this. This lack of specialized, more nuanced information related to supporting their children who have hearing loss leads them to feel lost, and that the information they receive is not sufficient to fully support their attempts to promote their children’s language development. This need for additional, specific information is line with previous research (Roush & Harrison, 2002; Fitzpatrick et al., 2008). Importantly, these particular findings reflect the way in which resources for service providers are written, since these include vague statements regarding how service providers should promote parents to create a language-rich environment and use specific qualities of communication (e.g., JCIH, 2007; Moeller et al., 2013; Yoshinaga-Itano, 2014). It is possible that these materials are either not being utilized by service providers or are not written in a way that easily leads to translating the research findings into specific practices by individuals in the field of early intervention. Overall, there is a lack of specific, identifiable information in the resources that are intended to guide the information service providers give to parents, and this 71 shows up in the gaps that parents identify in the information that they receive. Parents need more nuanced, specific information that relates to their children’s hearing loss in order to feel more confident in the information they receive and more skilled in their abilities to promote their children’s language development. Implications for Practice Using the lens of social constructionism, the first step in internalization of information, which then influences parents’ actions, is through the information they receive from their service providers. The findings of this study suggest that the information parents receive via their interactions with early intervention service providers may be integrated into parents’ knowledge about ways in which they can support their children’s language development. Findings from this study suggest that parents receive information about the importance of frequently talking, which is one aspect of parents’ language known to be important for children; however, first and foremost, this demonstrates that there is a need for service providers to discuss frequent communication in any modality, rather than focus only on spoken language. Furthermore, this also demonstrates a need for service providers to shift the emphasis of quantities of communication, or total number of words/concepts used, to include specific types of quantities (i.e., richness of language, MLU, and conversational turns) as well as specific types of qualities (i.e., language about children’s focus of attention or actions or that responds to children’s language, i.e., techniques such as parallel talk, expansion, recast, open-ended questions); doing so would yield a more holistic, yet nuanced, view of how parents can promote their children’s language development. This need for a more nuanced approach to supporting the language development of children with hearing loss was evident in parents’ interviews. These shifts in the information that 72 should be provided to parents, away from only the overall quantity of spoken language to more nuanced aspects of communication in any modality, may help meet these needs that parents discussed. This is also necessary given that parents in this study receive information about their importance and that they have the ability to positively influence their children, yet they feel that they are not provided with specific information about ways in which to support the unique needs with which their children were born. Therefore, this further demonstrates the need for service providers to support parents by providing them with additional, nuanced information about specific quantities and qualities of language, regardless of modality, that are known to be highly influential for children with hearing loss. Parents in this study also discussed a need for additional information about the use of sign language; they need information that would help them to support their child via the use of sign language alone or in combination with spoken English. This demonstrates a need not only for support, but also respect for parents’ choices regarding the mode(s) of communication they use with their child; these choices should be supported in an unbiased way, regardless of the beliefs of the service provider (Moeller et al., 2013). This also demonstrates that parents should have a service provider on their children’s early intervention team who is fluent in the use of American Sign Language, or a sign system of their choice, and has proper training to help parents acquire these language skills, if this aligns with their interests or choices (YoshinagaItano, 2014); parents need to be provided with more thorough information and unbiased, unconditional support for their communication choices as long as this means that the child will have access to a complete language system. Given that children with hearing loss are part of a low-incidence population, their early intervention service providers may come from a variety of educational backgrounds; 73 furthermore, there may be an inadequate number of early intervention service providers who have specialized training related to working with children with hearing loss in order to meet the needs of these children’s families (see Yoshinaga-Itano, 2014). With this in mind, as well as the findings of this study that demonstrate that parents need to receive more nuanced and unbiased information, early intervention service providers working with families who have children with hearing loss may need additional training and support. The pre-service and ongoing training for these service providers should focus on an understanding that the use of sign language, alone or in combination with spoken language, will not impede the language development of children with hearing loss and that providing unbiased information about communication options is an essential aspect of early intervention for these families. Limitations Specific limitations of the current study include that the majority of participants were highly educated and reported high levels of household income. Therefore, the results of this study likely do not represent the experiences of families of lower socioeconomic status, including those with lower levels of education. In addition, all families were Caucasian, meaning that the experiences of more diverse families are also not represented in these data. Furthermore, the majority of families in this study indicated that their method of communication with their child was primarily spoken language and all children, with the exception of one child who had mild hearing loss in only one ear, were using hearing aids or cochlear implants—this likely influenced some of the findings of this study, such as parents’ receipt of information about the importance of focusing on sounds. Also, the inclusion of families only within the state of Michigan, which has different eligibility criteria and provision of services for children who may be eligible for early intervention services only but not special education (Michigan Association 74 of Administrators of Special Education, 2014), mean that the results may only relate to the early intervention services provided within this limited geographical area. There are additional limitations related to the study design; in particular, this study is not a direct measure of the information that parents are provided with via early intervention, but rather their memory and potential internalization of this information. Therefore, this study may have elicited only parents’ reports of the most salient information that they received, and is interpreted through the lens of parents’ perceptions and overall experiences of early intervention services. In addition, a few parents in this study discussed the information that is received by their child’s nanny, who was the one present during certain early intervention visits. Considering all of these factors, it is likely that the information provided to families as part of early intervention includes themes that did not emerge from the data in this study, since it is not expected that parents will remember or internalize all of the information provided to them. This does, however, lead to questions about the alignment, as well as disconnections, between information that parents internalize versus that which service providers may intend or believe that they are providing to parents. It is possible that there are certain messages service providers intend for parents, but that are not made explicit. For example, observation of early intervention interactions, particularly those that are home-based, may show that service providers interact with the child and/or parent primarily through play-based activities, even though they may never explicitly recommend that parents play with their children. Future Directions Future research should investigate the relationship between best practices that are suggested in the resources intended for service providers, and service providers’ own goals for the information that they give to parents since this may influence information or suggestions they 75 provide to parents. In addition, observational measures of early intervention—not only of information provided to parents, but also the way in which this information is provided (e.g., verbally, via handouts, demonstrations, opportunities for parents to practice, etc.)—should also be considered in order to more accurately measure the relationship between best practices and the actual practices of service providers; observational studies would also provide more insight to the relationships between actual practices, parents’ internalization of information and, subsequently, their ways of interacting with their children. For example, future research should investigate the relationship between the information parents receive and the actual quantities and qualities of their communication with their children to better understand how the information that parents receive may influence aspects of parent’s communication that have been shown to predict the language skills of children with hearing loss. In addition, parents’ learning styles and preferences for receiving information should also be studied to better understand individual differences and how to best support families. 76 REFERENCES 77 REFERENCES Alexander Graham Bell Association for the Deaf and Hard of Hearing. (2013). 2013 supplement: Principles and guidelines for early intervention following confirmation that a child is deaf or hard of hearing. Retrieved from: http://www.listeningandspokenlanguage.org/JCIH/2013_Supplement/ Ambrose, S. A., Bridges, M. W., & Lovett, M. C. (2010). How learning works: 7 research-based principles for smart teaching. San Francisco, CA: Jossey-Bass. Ambrose, S. E., VanDam, M., Moeller, M. P. (2014). Linguistic input, electronic media, and communication outcomes of toddlers with hearing loss. Ear & Hearing, 35, 139-147. doi: 10.1097/AUD.0b013e3182a76768 Antia, S. D., Jones, P. B., Reed, S., & Kreimeyer, K. H. (2009). Academic status and progress of deaf and hard-of-hearing students in general education classrooms. Journal of Deaf Studies and Deaf Education, 14, 293-311. doi: 10.1093/deafed/enp009 Bandura, A. (1977). Social learning theory. Englewood Cliffs, NJ: Prentice Hall. Bandura, A. (1989). Regulation of cognitive processes through perceived self-efficacy. Developmental Psychology, 25, 729-735. http://dx.doi.org/10.1037/0012-1649.25.5.729 Barker, D. H., Quittner, A. L., Fink, N. E., Eisenberg, L. S., Tobey, E. A., Niparko, J. K., & the CDaCI Investigative Team. (2009). Predicting behavior problems in deaf and hearing children: The influences of language, attention, and parent-child communication. Development and Psychopathology, 21, 373-392. doi:10.1017/S0954579409000212 Bodner-Johnson, B., & Sass-Lehrer, M. (Eds.) (2003). The young deaf or hard of hearing child: A family-centered approach to early education. Baltimore, MD: Paul H. Brooks Publishing. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101. http://dx.doi.org/10.1191/1478088706qp063oa Braun, V., & Clarke, V. (2012). Thematic analysis. In H. Cooper (Ed.), Handbook of research methods in psychology (Vol. 2, pp. 57-71). Washington, DC: APA books. Braun. V. & Clarke, V. (2014). Frequently asked questions about thematic analysis. Retrieved from http://www.psych.auckland.ac.nz/en/about/our-research/research-groups/thematicanalysis/frequently-asked-questions-8.html Burr, V. (1995). An introduction to social constructionism. New York, NY: Routledge. 78 Campbell, P. H., & Halbert, J. (2002). Between research and practice: Provider perspectives on early intervention. Topics in Early Childhood Special Education, 22, 213–226. doi: 10.1177/027112140202200403 Centers for Disease Control. (2015). Treatment and intervention services. Retrieved from http://www.cdc.gov/ncbddd/hearingloss/treatment.html Centers for Disease Control. (2014). 2012 summary of early intervention (EI) among infants identified with permanent hearing loss. Retrieved from: http://www.cdc.gov/ncbddd/hearingloss/2012-data/2012_ei_summary_web_b.pdf Coleman, P. K. & Karraker, K. H. (1997). Self-efficacy and parenting quality: Findings and future applications. Developmental Review, 18, 47–85. Cruz, I., Quittner, A.L., Marker, C., DesJardin, J. L., & CDaCI Investigative Team. (2013). Identification of effective strategies to promote language in deaf children with cochlear implants. Child Development, 84, 543-559. doi:10.1111/j.1467-8624.2012.01863.x Dammeyer, J. (2010). Pyschosocial development in a Danish population of children with cochlear implants and deaf and hard-of-hearing children. Journal of Deaf Studies and Deaf Education, 15, 50-58. doi: 10.1093/deafed/enp024 Decker, K. B., Vallotton, C. D., & Johnson, H. A. (2012). Parents’ communication decision for children with hearing loss: Sources of information and influence. American Annals of the Deaf, 157, 326-339. doi: 10.1353/aad.2012.1631 Dempsey, I. & Keen, D. (2008). A review of processes and outcomes in family-centered services for children with a disability. Topics in Early Childhood Special Education, 28, 42-52. doi: 10.1177/0271121408316699 DesGeorges, J. (2003). Family perceptions of early hearing, detection, and intervention systems: Listening to and learning from families. Mental Retardation and Developmental Disabilities, 9, 89-93. doi: 10.1002/mrdd.10064 DesJardin, J. L. (2006). Family empowerment: Supporting language development in young children who are deaf or hard of hearing. The Volta Review, 106, 275-298. DesJardin, J. L., Doll, E. R., Stika, C. J., Eisenberg, L. S., Johnson, K. J., Ganguly, D. H. … Henning, S. C. (2014). Parental support for language development during joint book reading for young children with hearing loss. Communication Disorders Quarterly, 35, 167-181. doi: 10.1177/1525740113518062 DesJardin, J. L., & Eisenberg, L. S. (2007). Maternal contributions: Supporting language development in young children with cochlear implants. Ear & Hearing, 28, 456-469. doi:10.1097/AUD.0b013e31806dc1ab 79 DesJardin, J. L., Eisenberg, L. S., & Hodapp, R. M. (2006). Sound beginnings: Supporting families of young deaf children with cochlear implants. Infants & Young Children, 19, 179-189. Division for Early Childhood. (2014). Recommended practices in early intervention and early childhood special education. Retrieved from http://www.decsped.org/recommendedpractices Dunst, C. J. (2009). Implications of evidence-based practices for personnel preparation development in early childhood intervention. Infants & Young Children, 22, 44–53. doi: 10.1097/01.IYC.0000343336.34528.ea Dunst, C. J., Trivette, C. M., & Hamby, D. W. (2007). Meta-analysis of family-centered helpgiving practices research. Mental Retardation and Developmental Disabilities Research Reviews, 13, 370-378. doi: 10.1002/mrdd.20176 Early Childhood Outcomes Center. (2005). Family and child outcomes for early intervention and early childhood special education. Retrieved from http://ectacenter.org/eco/assets/pdfs/ECO_Outcomes_4-13-05.pdf Eleweke, C. J., Gilbert, S., Bays, D., & Austin, E. (2008). Information about support services for families of young children with hearing loss: A review of some useful outcomes and challenges. Deafness and Education International, 10, 190-212. doi: 10.1002/dei.247 Eleweke, C. J. & Rodda, M. (2000). Factors contributing to parents’ selection of a communication mode to use with their deaf children. American Annals of the Deaf, 145, 375-383. doi: 10.1353/aad.2012.0087 Fitzpatrick, E., Angus, D., Durieux-Smith, A., Graham, I. D., & Coyle, D. (2008). Parents’ needs following identification of childhood hearing loss. American Journal of Audiology, 17, 38-49. doi: 10.1044/1059-0889(2008/005) Fitzpatrick, E., Coyle, D. E., Durieux-Smith, A., Graham, I. D., Angus, D. E., & Gaboury, I. (2007b). Parents’ preferences for services for children with hearing loss: A conjoint analysis study. Ear & Hearing, 28, 842-849. doi: 10.1044/1059-0889(2008/005) Fitzpatrick, E., Graham, I. D., Durieux-Smith, A., Angus, D., & Coyle, D. (2007a). Parents’ perspectives on the impact of the early diagnosis of childhood hearing loss. International Journal of Audiology, 46, 97-106. Gergen, K. J. (1985). The social constructionist movement in modern psychology. American Psychologist, 40, 266-275. doi:10.1037/0003-066X.40.3.266 Hands & Voices. (2005). Communication considerations A to Z: Early intervention. Retrieved from http://www.handsandvoices.org/comcon/articles/early-int.htm 80 Hewett, D. (2012). The nature of human communication. In D. Hewett, G. Firth, M. Barber, & T. Harrison (Eds.), The intensive interaction handbook (p. 3-8). Thousand Oaks, CA: SAGE Publications Inc. Hintermair, M. (2006). Parental resources, parental stress, and socioemotional development of deaf and hard of hearing children. Journal of Deaf Studies and Deaf Education, 11, 493513. doi: 10.1093/deafed/enl005 Hope Cochlear. (2015). Ling 6 sounds. Retrieved from http://hope.cochlearamericas.com/listening-tools/ling-6-sounds Joint Committee on Infant Hearing. (2007). Year 2007 position statement: Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Pediatrics, 120, 898-921. doi: 10.1542/peds.2007-2333 Jones, T. L., & Prinz, R, J. (2005). Potential roles of parental self-efficacy in parent and child adjustment: A review. Clinical Psychology Review, 25, 341–363. doi: 10.1016/j.cpr.2004.12.004 Kelly, S. (2011). Grief in the context of Early Hearing Detection and Intervention programs: Parents‘ perceptions of grief processing and support. (Doctoral dissertation). Retrieved from MSpace at the University of Manitoba, http://hdl.handle.net/1993/4754. Kluwin, T. N. & Stewart, D. A. (2000). Cochlear implants for younger children: A preliminary description of the parental decision process and outcomes. American Annuals of the Deaf, 145, 26-32. doi: 10.1353/aad.2012.0247 Kurtzer-White, E. & Luterman, D. (2003). Families and children with hearing loss: Grief and coping. Mental Retardation and Developmental Disabilities, 9, 232-235. doi: 10.1002/mrdd.10085 Lederberg, A. R., & Prezbindowski, A. K. (2000). Impact of child deafness on mother-toddler interaction: Strengths and Weaknesses. In P. E. Spencer, C. J. Erting, & M. Marschark (Eds.), The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans (p. 73-92). Mahwah, NJ: Lawrence Erlbaum Associates, Inc. Leigh, G., Newall, J. P., & Newall, A.T. (2010). Newborn screening and earlier intervention with deaf children: Issues for the developing world. In M. Marschark & P. Spencer (Eds.), The Oxford handbook of deaf studies, language, and education, vol. 2 (pp. 345-359). New York: Oxford University Press. Lock, A., & Strong, T. (2010). Social constructionism: Sources and stirrings in theory and practice. New York, NY: Cambridge University Press. Luterman, D., & Kurtzer-White, E. (1999). Identifying hearing loss: Parents’ needs. American Journal of Audiology, 8, 13-18. doi:10.1044/1059-0889(1999/006) 81 Marschark, M. (2007). Raising and educating a deaf child (2nd ed.). New York, NY: Oxford University Press. Meadow-Orlans, K. P. (1997). Effects of mother and infant hearing status on interactions at twelve and eighteen months. Journal of Deaf Studies and Deaf Education, 2, 26-36. Meadow-Orlans, K. P., Mertens, D. M., Sass-Lehrer, M. A., & Scott-Olson, K. (1997). Support services for parents and their children who are deaf or hard of hearing: A national survey. American Annals of the Deaf, 142, 278-293. doi: 10.1353/aad.2012.0221 Meadow-Orlans, K. P., & Spencer, P. E. (1996), Maternal sensitivity and the visual attentiveness of children who are deaf. Early Development and Parenting, 5, 213–223. doi: 10.1002/(SICI)1099-0917(199612)5:4<213::AID-EDP134>3.0.CO;2-P Michigan Association of Administrators of Special Education. (2014). Comparing early childhood systems: IDEA early intervention systems in the birth mandate states. Retrieved from http://www.michigan.gov/documents/mde/CECS_FINAL_6-2514_2_474330_7.pdf Michigan Department of Education. (2013). Early On Michigan Part C of the Individuals with Disabilities Education Act (IDEA): State Plan. Retrieved from http://www.michigan.gov/documents/mde/Part_C_of_IDEA_State_Plan_335896_7.pdf Moeller, M. P. (2000). Early intervention and language development in children who are deaf and hard of hearing. Pediatrics, 106, e43-e51. doi:10.1542/peds.106.3.e43 Moeller, M. P., Carr, G., Seaver, L. Stredler-Brown, A., & Holzinger, D. (2013). Best practices in family-centered Early Intervention for children who are deaf or hard of hearing: An international consensus statement. Journal of Deaf Studies and Deaf Education, 18, 429445. doi: 10.1093/deafed/ent034 National Center for Education Research. (2015). Practitioner perspectives on emerging research needs and improving relevance in education research. Retrieved from http://ies.ed.gov/ncser/whatsnew/techworkinggroup/pdf/PractitionerTWG.pdf Niparko, J. K., Tobey, E. A., Thal, D. J., Eisenberg, L. S., Wang, N. Y., Quittner, A. L., & CDaCI Investigative Team. (2010). Spoken language development in children following cochlear implantation. Journal of the American Medical Association, 303, 1498–1506. doi:10.1001/jama.2010.451 Preisler, G., Tvingstedt, A.-L., & Ahlstrom, M. (2002). A psychosocial follow-up study of deaf preschool children using cochlear implants. Child: Care, Health, and Development, 28, 403–418. doi: 10.1046/j.1365-2214.2002.00291.x 82 QSR International. (2014). NVivo 10 for Windows [computer software]. Retrieved from http://www.qsrinternational.com/products_nvivo.aspx Quinto-Pozos, D. (2011). Teaching American Sign Language to hearing adult learners. Annual Review of Applied Linguistics, 31, 137-158. http://dx.doi.org/10.1017/S0267190511000195 Roush, J., & Harrison, M. (2002). What parents want to know at diagnosis and during the first year. The Hearing Journal, 55, 52-54. Seaver, L. (Ed.). (2010). The book of choice: Support for parenting a child who is deaf or hard of hearing (3rd ed.). Boulder, CO: Hands & Voices. Spencer, P. E., Erting, C. J., & Marschark, M. (2000). The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans. Mahwah, NJ: Erlbaum. Spencer, P.E., & Marschark, M. (2010). Evidence-based practice in educating deaf and hard-ofhearing students. New York: Oxford University Press. Teti, D.M., & Gelfand, D.M. (1991). Behavioral competence among mothers of infants in the first year: The mediational role of maternal self-efficacy. Child Development, 62, 918929. doi: 10.1111/j.1467-8624.1991.tb01580.x Two Little Hands Productions. (2015). Signing Time. Retrieved from http://www.signingtime.com/ VanDam, M., Ambrose, S. E., & Moeller, M. P. (2012). Quantity of parental language in the home environments of hard-of-hearing 2-year-olds. Journal of Deaf Studies and Deaf Education, 17, 402-420. doi: 10.1097/AUD.0b013e3182a76768 Vohr, B. R., Jodoin-Krauzyk, J., Tucker, R., Johnson, M. J., Topol, D., & Ahlgren, M. (2008). Early language outcomes of early-identified infants with permanent hearing loss at 12 to 16 months of age. Pediatrics, 122, 535-544. Watson, L. & Swanwick, R. (2008). Parents’ and teachers’ views on deaf children’s literacy at home: Do they agree? Deafness and Education International, 10, 22-39. doi: 10.1002/dei.235 Workgroup on Principles and Practices in Natural Environments. (2008). Seven key principles: Looks like / doesn’t look like. Retrieved from http://www.nectac.org/~pdfs/topics/families/Principles_LooksLike_DoesntLookLike3_1 1_08.pdf Yoshinaga-Itano, C. (2003). From screening to early identification and intervention: Discovering predictors to successful outcomes for children with significant hearing loss. Journal of Deaf Studies and Deaf Education, 8, 11-30. doi:10.1093/deafed/8.1.11 83 Yoshinaga-Itano, C. (2014). Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Journal of Deaf Studies and Deaf Education, 19, 143-175. doi: 10.1093/deafed/ent043 Yoshinaga-Itano, C., & Sedey, A. (1998). Early speech development in children who are deaf or hard of hearing: Interrelationships with language and hearing. The Volta Review, 100, 181–211. Yoshinaga-Itano, C., Sedey, A. L., Coulter, D. K. & Mehl, A. L. (1998). Language of early- and later-identified children with hearing loss. Pediatrics, 102, 1161-1171. Zipoli, R. P., Jr., & Kennedy, M. (2005). Evidence based practice among speech-language pathologists: Attitudes, utilization, and barriers. American Journal of Speech-Language Pathology, 14, 208–220. doi:10.1044/1058-0360(2005/021). 84 CHAPTER 3: STUDY 2 Abstract Specific quantities and qualities of parents’ language are predictive of the language skills of children with hearing loss, such as parents’ use of a greater amount of different words (e.g., word types) and certain language techniques (e.g., expansion). Researchers have hypothesized that information parents receive as part of early intervention services may influence both the quantities and qualities of parents’ language input; however, this has never been investigated. This study examined parents’ (N = 12) quantities of language and use of specific language techniques during play with their children who were between 12-29 months of age (M= 21.6), and how this related to their reports of information received from their service providers about how to promote the language development of their children with hearing loss. Relationships between these aspects of parents’ communication and other important contextual factors, family socioeconomic status and children’s current language skills, were also examined. There was substantial variation in the quantities of parents’ language, including overall talkativeness, and in their use of specific language techniques. Parents’ use of parallel talk was related to their receipt of information about the importance of frequently talking with their children during daily routines. Other patterns indicated that parents of lower socioeconomic status used more directives with their children, and parents whose children used a greater number of word types may elicit parents’ use of the language techniques shown to promote their language development. 85 Introduction Children with hearing loss frequently have lower language skills compared to their hearing peers (Niparko et al., 2010; Barker et al., 2009; Moeller, 2000; Yoshinaga-Itano, Sedey, Coulter, & Mehl, 1998). There are a number of protective factors for the language development of these children, including the ages at which they are identified with hearing loss (YoshinagaItano et al., 1998; Yoshinaga-Itano, 2003; White & White, 1987; Apuzzo & Yoshinaga-Itano, 1995; Robinshaw, 1997), begin early intervention (Moeller, 2000; Yoshinaga-Itano, 2003; Vohr et al., 2008; also see Leigh, Newall, & Newall, 2010 for a review), and begin using a hearing device, such as a hearing aid or cochlear implant (Niparko et al., 2010; Dettman, Pinder, Briggs, Dowell, & Leigh, 2007; Yoshinaga-Itano et al., 1998). However, even when these factors are considered, there is still great variability in these children’s language skills (Niparko et al., 2010; Barker et al., 2009; Moeller, 2000; Yoshinaga et al., 1998). Other important aspects of these children’s lives that explain some of this variability are features of their interactions with their parents, including specific quantities and qualities of their parents’ language use during parentchild interactions (Moeller, 2000; Calderon, 2000; DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz, Quittner, Marker, DesJardin, & CDaCI Investigative Team, 2013; VanDam, Ambrose, & Moeller, 2012; Ambrose, VanDam, & Moeller, 2014; DesJardin et al., 2014). An implication from research is that these aspects of parents’ language may be influenced by the information parents receive from their early intervention service providers (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, et al., 2012; Ambrose et al., 2014), or specific contextual factors in the lives of these children or families, such as socioeconomic status (Niparko et al., 2010; Barker et al., 2009; Geers, Moog, Biedenstein, Brenner, & Hayes, 2009; 86 Szagun & Stumper, 2012; Cruz et al., 2013) or children’s current language skills (Farran, Lederberg, & Jackson, 2009; Lederberg & Prezbindowski, 2000; Cruz et al., 2013). Parent-Child Interactions and Children’s Language Development According to Tomasello (2008), the process by which children develop language is through collaborative interaction with others; meaningful social interactions and children’s desires to inform, request, or share information are the foundation for their language development. For this reason, it is important that parents’ language inputs focus on children’s interests or actions; it is in these instances of joint attention that parents’ language inputs are most influential (e.g., Tamis-LeMonda, Bornstein, & Baumwell, 2001; Lederberg & Prezbindowski, 2000). Therefore, the importance of these social interactions for children’s language development, and the fact that children’s parents are typically the most consistent and stable individuals with whom they interact, the importance of parent-child interactions early in a child’s life cannot be underestimated (e.g., Dempsey & Keen, 2008; Marschark, 2007; Moeller et al., 2013). An important component of family-centered early intervention for children with hearing loss is that service providers promote aspects of parent-child interaction known to be supportive of children’s language development, such as providing children with language-rich environments, parental responsivity and sensitivity toward the child, and promoting parents’ use of certain language techniques (Moeller et al., 2013; Yoshinaga-Itano, 2014; JCIH, 2007). These best practices are both informed and validated by research that shows specific aspects of parentchild communication influence children’s language development. In particular, specific quantities (e.g., amount) and qualities (e.g., responsiveness, language techniques) of parents’ language with children who have hearing loss are known to be influential to children’s receptive 87 and expressive language skills (Cruz et al., 2013; DesJardin et al., 2014; DesJardin, 2006; DesJardin & Eisenberg, 2007). Research related to parents’ communication with both typically developing children, as well as those with disabilities, suggests that higher quantities of parent language positively relate to children’s language outcomes (e.g., Hart & Risley, 1995; Huttenlocher, Haight, Bryk, Seltzer, Lyons, 1991; Cruz et al., 2013; DesJardin & Eisenberg, 2007). The specific quantities that have been shown to be most beneficial to the language development of children with hearing loss include parents’ mean length of utterance (MLU), number of different words used (word types), and conversational turns (Cruz et al., 2013; Szagun & Stumper, 2012; DesJardin & Eisenberg, 2007; VanDam et al., 2012; Ambrose et al., 2014). Therefore, it is not simply that more language exposure is better for children with hearing loss (e.g., word tokens), but instead, what is most beneficial is more of specific aspects of parents’ language. Specific quantities of parents’ language are important; however, the qualities of parents’ language while interacting with their children are also highly influential. For instance, the ways in which parents interact with their infants, such as their responsiveness or sensitivity, predicts many developmental outcomes, including language (Pressman, Pipp-Siegel, Yoshinaga-Itano, Kubicek, & Emde, 1998; Pressman, Pipp-Siegel, Yoshinaga-Itano, & Deas, 1999; also see Lederberg & Prezbindowski, 2000). It is parents’ communication with their children within these sensitive or responsive interactions that is important to children’s language development. For example, parents’ language that is responsive to what it is that children are doing or attending to predicts children’s vocabulary development, yet when parents’ language focuses on something outside of their children’s focus of attention, this is not influential to children’s language development (Tomasello & Farrar, 1986; Hoff-Ginsberg, 1987). 88 Aspects of parents’ sensitivity and their communication within these sensitive interactions are known to be particularly important for children whose language skills are not as advanced. For example, when mothers change their verbal behavior based on a change in their child’s vocalization or interest, this is predictive of children’s receptive language skills, and the effect is strongest for children whose language skills are not as advanced (Baumwell, TamisLeMonda, & Bornstein, 1997). This is consistent with the effects of maternal emotional availability, which included mothers’ sensitivity; when comparing hearing mothers’ interactions with a typically hearing child to hearing mothers’ interactions with a child with hearing loss, both sets of dyads had similar rates of maternal emotional availability, yet this availability had a significantly larger effect on children’s language growth for children with hearing loss (Pressman et al., 1998). Thus, parents’ sensitivity to their children and their communicative responses within those interactions are extremely important for the language development of children who may struggle to develop age-appropriate language skills. These aspects of parental sensitivity are similar to another aspect of parent-child interaction: parents’ use of certain language techniques that include aspects of responsiveness. For example, qualities of parents’ language that have been linked to children’s expressive and receptive language skills include parents’ use of language techniques that include responses to children’s vocalizations or discussions of what it is that their children are interested in or doing (Tamis-LeMonda et al., 2001; Girolametto, Weitzman, Wiigs, & Pearce, 1999; McNeil & Fowler, 1999; Yoder, McCathren, Warren, & Watson, 2001; Dale, Crain-Thoreson, NotariSyverson, & Cole, 1996; Cruz et al., 2013; DesJardin et al., 2014; DesJardin, 2006; DesJardin & Eisenberg, 2007). Parents’ language techniques that are known to be important for the language development of children with hearing loss or those who experience language delays include 89 parents’ use of parallel talk (a verbalization that relates to what the child is doing or attending to) and expansion (expanding upon children’s language by adding words to make it a complete sentence or thought); these are considered higher-level language techniques since these are shown to positively influence language development (Cruz et al., 2013; Szagun & Stumper, 2012; McNeil & Fowler, 1999; Girolametto et al., 1999; Dale et al., 1996). In addition, other higher-level language techniques include parents’ use of recast, which includes repeating the child’s communication in the form of a question, and open-ended questions, which can be a phrase or a question that would require more than a one-word response (Cruz et al., 2013; DesJardin, 2006; DesJardin & Eisenberg, 2007; Girolametto et al., 1999; Fung, Chow, & McBride-Chang, 2005; McNeil & Fowler, 1999; Dale et al., 1996). Language techniques that have been shown to be detrimental to the language development of children with hearing loss include directives, when parents tell the child to do something or give the child directions, or techniques that include talking to the child about something even if the child is not paying attention (DesJardin, 2006; DesJardin & Eisenberg, 2007). Those that are shown to neither help nor harm the language development of children with hearing loss include making comments that acknowledge what the child has said or done (e.g., “Ok,” “Good job!”) or imitating the child’s exact utterance (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013). Therefore, lower-level techniques are those that either do not influence the language development of children with hearing loss, or are detrimental (e.g., DesJardin, 2006). The difference between higher- and lower-level techniques and the influence they have on the language development of children with hearing loss suggests that parents’ use of these higher-level language techniques provides children with greater access to complex language and more opportunities to engage in the language environment, while lower-level techniques may 90 stifle this (Cruz et al., 2013). Importantly, of the studies that have investigated parents’ use of these language techniques with children who have hearing loss, only one has focused on infants and toddlers children who have hearing loss (Cruz et al., 2013), despite the fact that this is a critical period for language development (Centers for Disease Control, 2015) and parent-child communication is crucial to this process (Moeller et al., 2013). Therefore, an aim of the current study is to examine the quantities and qualities of parents’ language inputs when they interact with their infants and toddlers who have hearing loss. Knowing that specific quantities and qualities of parents’ language inputs predict the language skills of children with hearing loss, this leads to questions about what may influence these aspects of parents’ language, especially during this critical time for children’s language development. There are a few different aspects of these parents’ and children’s lives that should be taken into consideration, such as the information parents of children with hearing loss receive about how to promote their children’s language development and their role in this process, the family’s socioeconomic status, and natural adaptations parents may make based on their children’s language skills. The potential relationship between information provided to parents and aspects of their language inputs. Parents of children with hearing loss use significantly more lower-level language techniques with their children compared to parents of typically developing children when these children’s language ages are matched (DesJardin et al., 2014). Furthermore, these same parents use significantly more lower-level language techniques when their children have below average language skills, but there is no difference in their use of higher-level language techniques based on whether their children have below average or average/above average language skills (DesJardin et al., 2014). This suggests that parents of children with hearing loss 91 may need support in order to shift the qualities of their language over time in ways that are dependent upon the child’s growing skills (DesJardin et al., 2014), yet we know very little about the information provided to families during the period that children may be transitioning between stages of language development. One of the goals of family-focused early intervention is to promote children’s language development by increasing positive parent-child interactions and supporting parents to provide language-rich environments (Division for Early Childhood, 2014a; Dempsey & Keen, 2008; Moeller et al., 2013; Spencer & Marschark, 2010; Marschark, 2007; JCIH, 2007; YoshinagaItano, 2014). Resources that are intended for service providers or parents indicate that the information parents receive about their interactions with their children, including their language input, is critical to their children’s outcomes (Marschark, 2007; Yoshinaga-Itano, 2014; Division for Early Childhood, 2014b). This is in line with the theory of social constructionism, given that it postulates that our knowledge is influenced by our communication with others (Gergen, 1985; Lock & Strong, 2010) and then influences our actions (Burr, 1995), which suggests that aspects of parents’ linguistic inputs when interacting with their children may be influenced by the information they receive from their conversations with early intervention service providers. Best practices also allude to this, given that the purpose of the information provided to parents is to build on their strengths in order to improve specific aspects of their interactions with their children, such as their communication (Marschark, 2007; Moeller et al., 2013; Division for Early Childhood, 2014b), since this is linked to children’s language outcomes (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, et al., 2012; Ambrose et al., 2014). When children with hearing loss begin early intervention services relatively early there is still substantial variability in their language skills (Moeller, 2000), and given that a primary goal 92 of early intervention is to support parents to then support their children’s development (Division for Early Childhood, 2014a; Moeller et al., 2013), this leads to questions about how the variability of parents’ linguistic inputs may be influenced by the variation in information they receive from early intervention service providers. For example, although family involvement in early intervention is beneficial for children with hearing loss (Antia, Jones, Reed, & Kreimeyer, 2009; Moeller et al., 2013; Yoshinaga-Itano, 2014; Moeller, 2000), research with families of children with hearing loss shows mixed results about how family involvement influences aspects of parent-child communication. One study found that the more mothers felt that they were involved in their child’s speech-language development as part of early intervention, the more they used two specific higher-level language techniques, parallel talk and expansion, and the less they used certain lower-level language techniques, two of which were detrimental to their children’s language development (DesJardin & Eisenberg, 2007). Yet, another study found that mothers’ reported involvement in early intervention activities that were meant to promote children’s speech-language development was related to the mothers’ use of two lower-level language techniques, closed-ended questions and imitation (DesJardin, 2006); furthermore, mothers’ use of closed-ended questions was also related to their reports of their service providers demonstrating listening and language activities. This implies that when families are more involved in early intervention services for their children, they may more frequently use techniques that positively influence their children’s language development (DesJardin & Eisenberg, 2007) but also those that have no effect (DesJardin, 2006). This leads to questions about how aspects of parents’ language inputs are influenced by variation in the information parents receive from service providers (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, et al., 2012; Ambrose et al., 2014). 93 The foundational studies that have shown the relationship between specific aspects of parents’ language and the language development of children with hearing loss each mention that the information parents receive may be part of what explains the variation in their language inputs (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, et al., 2012; Ambrose et al., 2014); however, none of these studies have investigated the potential relationships between information that parents receive and aspects of their language when they interact with their children. Although we know little about these potential relationships, drawing from other areas of research shows that when parents of children with disabilities are provided with information, this can lead to changes in their interactions or language with their children. Importantly, these changes then predict children’s language outcomes (e.g., Fung et al., 2005; Hauser-Cram et al., 2001; Buschmann et al., 2009; Falkus et al., 2015; for reviews see Roberts & Kaiser, 2001; Kaiser & Hancock, 2003). Therefore, the primary aim of the current study is to explore the relationship between the quantities and qualities of parents’ language and how this is related to the information they have received from their early intervention service providers. Contextual factors that influence parents’ communication. Other important factors to consider that may influence aspects of parents’ communication include the family’s socioeconomic status (SES), and children’s language abilities since these may naturally lead to parents adjusting their language input. It is well established that a family’s SES, including income and parental education, is shown to be important predictor of parents’ language use and subsequently, children’s development, including their language skills (Hart & Risley, 1995; Rowe, 2008; Hoff, 2003; for reviews see Bornstein & Bradley, 2003; Conger, Conger, & Martin, 2010; Bradley & Corwyn, 2002). These same patterns also hold true for children with hearing loss; those who are part of higher SES families tend to have better language outcomes (e.g., 94 Niparko et al., 2010; Barker et al., 2009; Geers et al., 2009; Szagun & Stumper, 2012). In particular, Cruz and colleagues (2013) found that SES influenced parents’ word types used and children’s expressive and receptive language; however, it did not influence parents’ use of higher- or lower-level language techniques. This may suggest that all families, regardless of SES, may use similar rates of specific language techniques, but also that all types of families may benefit from receiving information about the importance of increasing their use of higher-level language techniques (Cruz et al., 2013). Another aspect of the lives of these parents and children that may be an important contributor to what influences parents’ language input, is that parents may adapt their language use so that it is most appropriate to children’s current levels of language development; this is actually a skill that service providers are encouraged to help parents develop (Moeller et al., 2013). However, the types of adaptations service providers should encourage parents to make and when to make these adaptations are not discussed in detail within the resources that outline best practices (e.g., Moeller et al., 2013; Yoshinaga-Itano, 2014). It is possible that adults may make some adaptations on their own (e.g., Girolametto & Weitzman, 2002; Tamis-LeMonda et al., 2001; Goldin-Meadow, Goodrich, Sauer, & Iverson, 2007); parents of children with hearing loss have also been shown to adapt their language strategies based on their child’s current language skills (e.g., Farran et al., 2009). For example, mothers of children with hearing loss have been shown to be more directive with their children compared to mothers of children who have typical hearing; however, when children are matched based on language abilities, rather than age, there are no differences between the directiveness of mothers who have children with hearing loss (Lederberg & Prezbindowski, 2000). This suggests that mothers of children with hearing loss are able to adapt their language strategies based on the child’s language skills. 95 The studies that have investigated the quantities and qualities of parents’ language suggest that their use of specific quantities (e.g., word types, MLU, and conversational turns) and of higher-level language techniques explain a portion of the variability in children’s language skills. However, in most of these studies, directionality cannot be assumed (e.g., DesJardin, 2006; DesJardin & Eisenberg, 2007; DesJardin et al., 2014). For example, the relationship between parents’ use of higher-level language techniques and children’s language skills is possibly driven by children’s growing language skills, such that when children have better receptive or expressive language, they elicit parents’ use of higher-level language techniques. Or, when children’s language skills are lower or below average, parents may naturally use lowerlevel language techniques. The one study to date that has tested the bidirectional nature of this relationship between parents’ language use and children’s language skills showed that children’s expressive language skills prior to receiving cochlear implants, when they were just under 16 months of age on average, predicted the number of different words their parents used as well as parents’ use of higher-level language techniques, such that children with better expressive language skills elicited certain aspects of parents’ language input; this was true for dyads 12 months after implantation, but this relationship did not remain significant 24 and 36 months after implantation (Cruz et al., 2013). This suggests that parents may be particularly sensitive to their children’s earliest language skills, and these skills may elicit specific aspects of parents’ language. Parents of children with hearing loss whose language skills are greater may use more higher-level language techniques compared to parents of children whose language skills are not as good, since these higher-level language techniques may be best suited for children whose language skills are more advanced (e.g., McNeil & Fowler, 1999; Dale et al., 1996). 96 In sum, although research suggests that it is parents’ use of specific quantities or qualities that can positively predict the language development of children with hearing loss, there is also reason to believe parents’ language inputs are related to their SES or that parents of children with hearing loss may adjust their language inputs based on the child’s skills. Therefore, additional aims of this study address how parental SES and children’s language skills may relate to the quantities and qualities of parents’ language when they interact with their children who have hearing loss. Current Study Both the quantities and qualities of parents’ communication are powerful factors that explain variability in both expressive and receptive language skills of children with hearing loss. Only limited research has described specific quantities and qualities of parents’ communication with their infants and toddlers with hearing loss (e.g., Cruz et al., 2013), despite the importance of involving these children in early intervention from very young ages (Moeller, 2000; Yoshinaga-Itano, 2003; Vohr et al., 2008) and of focusing on parents as central to intervention (Division for Early Childhood, 2014a; Dunst, Trivette, & Hamby, 2007; Moeller et al., 2013; Marschark, 2007). Therefore, the first aim of this study is to investigate the variation in the quantities and qualities of parents’ communication with their infants and toddlers who have hearing loss. Furthermore, service providers are encouraged to help parents create positive parent-child interactions and language environments, which includes providing them with information about how to strengthen their interactions with their children (Division for Early Childhood, 2014b; Moeller et al., 2013; Yoshinaga-Itano, 2014; JCIH, 2007; Alexander Graham Bell Association for the Deaf and Hard of Hearing, 2013). In line with the theory of social constructionism and 97 implications of past research, there is reason to believe that the aspects of parents’ communication that have the potential to positively influence the language development of children with hearing loss are influenced by the information parents receive from their early intervention service providers (Gergen, 1985; Lock & Strong, 2010; Burr, 1995; DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam et al., 2012; Ambrose et al., 2014). However, little is known about the relationship between parents’ language inputs and information they receive since no studies have examined this. For this reason, the second aim of this study is to explore the potential relationships between the information parents report receiving from early intervention service providers and their use of specific quantities and qualities of language that could promote their children’s language development; identifying these relationships could elucidate the types of information that parents internalize from their early intervention service providers that relate to parents’ language inputs that are particularly important to the language development of children with hearing loss, or those that are shown to be detrimental. Lastly, although it is important to examine the relationships between aspects of parents’ communication and the information they receive from early intervention service providers, other contextual factors of these families must not be ignored. In particular, research shows that families’ SES influences children’s language outcomes, such that children who come from families who have higher incomes or levels of parental education are likely to be exposed to the quantities and qualities of parental language that are shown to be important (Hart & Risley, 1995; Rowe, 2008; Hoff, 2003; Niparko et al., 2010; Cruz et al., 2013). In addition, it is also possible that parents are intuitively adjusting their language based on the child’s language skills in order to better match the child’s current level of development (Farran, Lederberg, & Jackson, 98 2009; Lederberg & Prezbindowski, 2000). Therefore, the third aim of this study is to explore patterns between the variations in parents’ language and how these may also be influenced by contextual characteristics that are frequently influential, specifically, the family’s socioeconomic status and children’s current language skills. Method Participants Twelve parent-child dyads participated in this study; participants included 11 mothers and 1 father, and their children who had permanent hearing loss who were between 12-19 months of age (M = 21.6 months). Families were all participating in home-based early intervention services under Part C of the Individuals with Disabilities Education Act, and had been receiving these services for 15.4 months on average at the time of the home visit (SD = 7.8). Children’s degree of hearing loss varied, and 11 children had bilateral hearing loss. Eight children were using bilateral hearing aids and 3 were using bilateral cochlear implants, and the child who had mild, unilateral loss was not using any type of hearing assistance; children were 12.2 months of age on average when they began using their hearing devices. Children were 3.6 months of age on average when they were identified with hearing loss (SD = 4.1) and 6.7 months when they began receiving early intervention services (SD = 6.4). Additional demographic information for parents, children, and families are included in Table 3.1. 99 Table 3.1 Demographic Information Variable Parent demographics (%) Gender of participant Mother Father Employment status Stay-at-home parent Working part time Working full time Education level High school or GED Some college Associate’s degree Bachelor’s degree Master’s degree Professional or doctorate degree Child demographics Gender Female Male Age of child when identified with hearing loss (months, SD) Age of child when he/she first began receiving early intervention services (months, SD) Amount of time child has been receiving any type of intervention services (months, SD) Age of child at time of visit (months, SD) Hearing loss One ear Both ears Level of hearing loss in best ear when unaided Mild (27 to 40 dB hearing loss) Moderate (41 to 55 dB hearing loss) Moderately Severe (56 to 70 dB hearing loss) Profound (90+ dB hearing loss) Use of hearing devices Hearing aids for both ears Cochlear implants for both ears None Family demographics Household income before taxes $12,000-19,999 $40,000-59,999 $80,000 or more Race and Ethnicity* 100 (N = 12) 91.7% (11) 8.3% (1) 33.3% (4) 33.3% (4) 33.3% (4) 16.7% (2) 25.0% (3) 8.3% (1) 16.7% (2) 16.7% (2) 16.7% (2) 58.3% (7) 41.7% (5) 3.6 (4.1) 6.7 (6.4) 15.4 (7.8) 21.6 (6.0) 8.3% (1) 91.7% (11) 33.3% (4) 16.7% (2) 16.7% (2) 33.3% (4) 66.7% (8) 25.0% (3) 8.3% (1) 25.0% (3) 16.7% (2) 58.3% (7) Table 3.1 (cont’d) White, non Hispanic/Latino 91.7% (11) White, Hispanic/Latino 8.3% (1) Parents’ reports of the mode of communication they and their child use together Spoken only 8.3% (1) Mostly spoken, with minimal signing 41.7% (5) More spoken, some signing 41.7% (5) Spoken and signing equally 8.3% (1) *Parents reported their own race and ethnicity and then separately answered the same question for their child in order to consider whether the race or ethnicity of the child’s other parent differed from that of the participating parent’s. In this study, the participating parent and the child’s race and ethnicity did not differ. Recruitment and Procedure Information about this study was primarily distributed to families by county coordinators and service providers in the state of Michigan who provide Part C early intervention services under the Individuals with Disabilities Education Act; in the state of Michigan, this is called the Early On system (Michigan Department of Education, 2013). Information about this study was also distributed via social media networks and events for families in Michigan who have children with hearing loss. Inclusion criteria for children included that they must be between 12 and 30 months of age, enrolled in early intervention services, and have no additional disability or delay that influences their cognitive abilities. Families had to be using English as their primary language, and although only one parent participated in the study, both parents had to have typical hearing abilities. This study focused on typically hearing parents since research has shown that there are differences in the ways in which hearing parents interact with their children who have hearing loss, as compared to parents who have hearing loss; importantly, children with hearing loss who have parents with typical hearing face the greatest risk for delays in their language skills, possibly due to aspects of parent-child communication that are more challenging when there is a mismatch in hearing statuses (Meadow-Orlans, 1997; Meadow-Orlans & Spencer, 101 1996; Spencer, Erting, & Marschark, 2000). Children could have any degree of hearing loss, and families could be using any form of communication with their children (e.g., signed, spoken, or a combination of both). When a parent contacted the research team and the family was deemed eligible to participate, a home visit was scheduled at a time that worked best for the parent and child. Prior to the home visit, a packet was sent to the parent to fill out which included questions about the child’s and family’s demographic characteristics and participation in early intervention services. The home visit began by providing parents with information about the study, as well as their rights as a participant, and their ability to skip any part of the visit or stop participating at any time; this process followed the Institutional Review Board procedures of Michigan State University. Home visits included a semi-structured interview. Home visits included an observation of parents and children interacting together, as well as an interview with the parent; these visits took approximately two and a half hours. Parents received a $40 gift card and children received a book for participating. Observation of parent-child free play. To facilitate free play, parents were provided with the following items: blocks, a puzzle, stacking rings, a doll and bottle, fake food, toy cars, and plastic animals. Parents were asked to play with their child like they typically would at home if they had free time. This was video recorded. Portions of the video when the children were upset or wandered off camera were removed. Videos were standardized to be 10 minutes. Parent interview. Parents were interviewed about their experiences with the early intervention services they had received. The total interview was approximately 60 minutes long and included sections on parents’ feelings about how early intervention was going and how they felt about their children’s progress, information they have received from their service providers, 102 and ways in which they thought early intervention could be improved. The portions of the interviews used for the current study include questions about information parents had received from service providers about how to interact with their child, promote their children’s language development, and what they have been told about their role in promoting their children’s language development. These interviews measured parents’ reports of the information they received, but to be succinct, hereafter this will be referred to as ‘information parents received.’ Transcription and quantitative observational coding of parents’ language techniques. Parents’ and children’s spoken or signed language, vocalizations, and noises used during free play were transcribed using the Codes for the Human Analysis of Transcripts program (CHAT; MacWhinney, 2015); utterances included a) language, b) noises, which included things like pretend eating, tickling, or animal sounds, and c) vocalizations, which were usually made by the child (e.g., “bababa”) but also sometimes spontaneously made by or imitated by the parent. Noises and vocalizations were included since these are important aspects of the babbling stage of language development and pretend play; they also provide a framework to understand a child’s general ‘talkativeness’ even before traditional expressive language skills. The delineation of separate utterances was based on pauses or intonations, the flow of conversation, or when the parent or child took turns back and forth. Each transcript was double checked by a second member of the research team. A member of the research team who is a teacher of the Deaf and fluent in the use of American Sign Language transcribed parents’ and children’s use of signs and sign language; it should be noted that this accounted for a very small percentage of parents’ language (see Table 3.3), and nearly all parents used individual signs rather than American Sign Language. As suggested by the CHAT manual (MacWhinney, 2015), when parents used signs or sign language without speech, it was transcribed as the word 103 concept(s) with the @sl symbol added, and when they were used in combination with speech it was transcribed with the @sas symbol added to indicate that both sign and speech were used. For example, if a parent signed “yes, big bear” without speech, it was transcribed as “yes@sl, big@sl bear@sl” and if a parent used signs while speaking it was transcribed as: “yes@sas, big@sas bear@sas”. Transcripts were used to determine a number of different quantities of parents’ and children’s language. First, the total number of word tokens were counted; each word or sign, even if it was duplicated multiple times through the transcript, was counted as one token each time it was used. Word tokens that were simultaneously spoken and signed were counted as one word token. Second, we counted the total number of different words or signs used (referred to as word types); for example, if a parent used the word “dog” 10 times, this would count as one word type. Word tokens were summarized in such a way that if the parent said, signed, or said and signed a particular word token, it would be considered only one word type. For example, if a parents’ transcript included these two utterances, “Yes, big bear. He is a big@sas bear@sas.” this parents’ word tokens would be 8, and their word types would be 6 (big and big@sas are one word type, and bear and bear@sas are one word type). Lastly, mean length of utterance (MLU) was calculated by dividing the number of word tokens by the number of utterances. Transcripts were used to code parents’ use of language techniques (LTs) at the utterance level, which included spoken or signed language, noises, or vocalizations, using a coding system comparable to that of other researchers (e.g., DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; DesJardin et al., 2014; see Table 3.2). Utterances could also be coded as ‘other’ if they were unintelligible or the parent’s language was not child-directed, such as comments to the research team; these were not included in further analyses. Four of the 12 104 videos were randomly selected to be double coded. Cohen’s kappa ranged from .75 to .85 (M = .80), which is considered substantial agreement (Vierra & Garrett, 2005). For the 8 remaining videos, the primary investigator watched the videos and looked over the coding of each utterance. The member of the research team who originally coded the videos met with the primary investigator to discuss each of the videos after they were double coded or checked, and they then came to an agreement about the coding of each utterance when there had been an initial disagreement. After transcripts were coded for parents’ use of LTs, their use of LTs per minute was calculated as an additional measure of parents’ talkativeness by summing all LTs and dividing by 10 (number of minutes). Parents’ frequency of each individual LT was calculated by dividing the number of instances each specific LT was used by 10; this allowed for differences between more and less talkative parents to be more readily observed for their use of each LT. Table 3.2 Definitions and Examples of Language Techniques Used to Code Parents’ Utterances, Noises, and Vocalizations Code Code Name Definition Examples Lower-level language techniques CQ Closed-Ended A question that the child can MOT: What is this animal called? Questions answer with one word or that only -has one specific or expected MOT: What color is this? answer. DR Directive Giving directions; telling the MOT: Try to fit it in there. child to do something specific. -MOT: IM Imitation Repeating the child’s vocalization CHI: Baby. or verbalization; usually this will MOT: Yes, baby. be an exact imitation, but it can also include other words, such as “hmm” or “yeah.” 105 Table 3.2 (cont’d) LM Linguistic Mapping NO Noise Making and Onomatopoeias PE Perpendicular Talk RA Responsive Acknowledgem ent Putting the child’s potential intended message or actions into words; this relates to when the child has vocalized, his/her utterance is unintelligible, or the parent’s comment relates to what the child may be intended via their actions. Noises that do not represent any specific, identifiable animal, object, or action (e.g., tickling or other playful noises); or, noises that imitate animals, objects, or actions (e.g., vroom, beep, meow, pretend eating). A verbalization that relates to something outside of what the child is involved in or attending to, such as an object, activity, or topic of conversation. A phrase or word that acknowledges an utterance, vocalization, or action of the child; this could also be phrased as a question. Higher-level language techniques EX Expansion Expanding upon the child’s verbalization; this can include making grammatical corrections or adding new information to the child’s verbalization. OQ Open-Ended A question that the child can Questions answer with more than one word or that could have more than one possible answer; this can also be a phrase (e.g., “Tell me…”) 106 CHI: voc. [child vocalizes while touching blocks.] MOT: You found the blocks. -CHI: 0. [holds out a doll to parent] MOT: Ok, I’ll hold the doll now. -CHI: 0. [puts animal on the floor and turns away.] MOT: Oh, you’re done with this now. MOT: [tickling noise while playing with child] -MOT: [eating noise while holding pretend food] CHI: [playing with the puzzle] MOT: Oh, there’s a doll too! -CHI: Apple. MOT: There’s a bowl of cereal here too. MOT: Thank you! -CHI: [child puts bottle in baby’s mouth] MOT: Oh, so nice. -CHI: [vocalizes] MOT: Oh yeah? CHI: Dog. MOT: Yes, that is the brown dog. MOT: What should we do next? -MOT: Tell me about this. Table 3.2 (cont’d) PA Parallel Talk RE Recast A verbalization that relates to what the child is involved in or attending to, such as an object, activity, or topic of conversation. When a parent changes the child’s utterance into a question; this can include one or more words. CHI: Bear! MOT: Yes, he’s furry. MOT: It’s a big bear. -CHI: [playing with stacking blocks] MOT: I see a blue ring, and a yellow ring. CHI: More. MOT: More? -CHI: Baby. MOT: What are you going to do with the baby? Transcription and coding of parent interviews. This study used thematic analysis to code parents’ interviews, following the steps outlined by Braun and Clarke (2006). The interviews were transcribed primarily from video, but audio-recordings were also used to supplement this; all transcripts were double checked by the principal investigator against the videos, or audio recordings if needed. Although multiple coders are not necessary for the steps outlined by Braun and Clarke (2014) for analysis, in order to increase validity regarding data interpretation and reliability of coding, two research team members independently participated in the coding process. Coding was done via an inductive approach, so codes were derived from the data itself (Braun & Clarke, 2006). The first round of coding occurred when the principal investigator and a member of the research team read through each of the transcripts individually and generated a preliminary set of codes; these codes were labels or short phrases, sometimes including parents’ words, which could describe a similar type of information parents received (Braun & Clarke, 2006). Parents’ utterances were sometimes coded into more than one code category when applicable (Braun & Clarke, 2012). Once these initial codes were established, the principle investigator and a member of the research team separately coded the same 3 randomly selected parent interviews, and met to discuss agreement in coding, as well as codes that needed 107 refinement or clarification. The principal investigator then used NVivo 10 software to code each transcript to facilitate the coding process and retrieval of coded text (QSR International, 2014); the codes continued to be refined, and transcripts were reviewed multiple times throughout this process. The principal investigator and a member of the research team then met to discuss initial themes, which were codes that could be grouped together to describe a pattern in the data, and a thematic map, which visually demonstrates the structure of how the themes relate to one another (Braun & Clarke, 2006). The principal investigator then reviewed each of the themes against individual coded excerpts, and continued making refinements to the themes and thematic map; this process was considered complete when the uniqueness of each theme and richness of the relationships between themes was clear (Braun & Clarke, 2006). The overarching themes and individual codes that came from the thematic analysis of parents’ interviews can be found in Figure 3.2; overarching themes are in bold and specific codes, which formed the themes, are bulleted. One purpose of the current study is to investigate the relationship between aspects of parents’ communication and the information they receive from their early intervention service providers. Therefore, the current study examined parents’ quantities and qualities of language and how the presence or absence of parents’ receipt of specific information related to these language inputs. In order to explore associations between the themes in the qualitative data and the patterns in the quantitative data, the themes and codes from the qualitative analysis were turned into binary variables (0s and 1s) at the code and theme levels, indicating whether the code or theme appeared anywhere in each parents’ transcript. A score of 1 at the code level indicated that the parent’s interview had included their receipt of specific information that was represented by the code, and a 1 at the theme level indicated that the parent had received information for any 108 of the individual codes that were included in the theme; 0s indicated that parents had not received information about a specific code, or any code within a theme. Figure 3.2 includes the codes and themes that came from the qualitative analysis, and it is these codes and themes that are then represented as 0s and 1s for each parent. For more detailed information about the description of the themes and their relationship to one another, see Decker (in preparation). Quotes are used in the results section of the current study to provide examples and further depth. To create more concise quotes, […] is used when portions of a parent’s interview has been removed. Parents’ identification numbers (#101-112) are also used throughout the results section so that aspects of parents’ or children’s language can be matched with specific quotes. Analytic Approach The purpose of this study is to: 1) describe the quantities and qualities of parents’ language when they interact with their infants and toddlers who have hearing loss, and investigate how these aspects of their language may be related to 2) the information they received from their early intervention service providers, or 3) other important family and child characteristics that are associated with parents’ language use and children’s outcomes. In line with the exploratory purposes of this study, the analyses used to address this study’s aims were exploratory and descriptive. To address study aim 1, descriptive statistics were used to examine the variation in quantities of parents’ language, including their word types, word tokens, and MLU. In addition, to give perspective to the proportion of language that included speech, signs, or signs and speech together, parents’ types and tokens that were signs and speech at the same time or signs only were also included. Descriptive statistics were also used to examine parents’ child-directed talkativeness, operationalized as their utterances per minute, which was determined by combining all LTs for each parent and averaging across parents. The qualities of parents’ 109 language as measured by their use of specific LTs was explored by examining the percentages of their language inputs that were higher- and lower-level LTs, and their average use of each individual LT per minute to determine which ones were used most frequently. More nuanced examinations of the variations in these LTs, such as associations with parents’ language inputs and contextual factors of the family and child, were completed as part of study aims 2 and 3. Parents’ quantities and qualities of language inputs were treated as the dependent variable for the remainder of the exploratory analyses. To address study aim 2, both the overarching themes from parents’ interviews and the individual codes were used to explore the patterns between aspects of parents’ communication and the information that they received via their interactions with early intervention service providers. For example, I examined whether there were any overarching patterns in the relationship between any of the quantities or LTs of parents’ language inputs and the themes from their interviews. Then, to investigate more nuanced patterns between aspects of parents’ language and information they had received from their service providers, I reviewed the variation in parents’ language inputs, including word types, word tokens, MLU, and LTs as examined by study aim 1, so that differences between parents could be more easily discovered. When a specific quantity of parents’ language or use of a specific LT stood out from the rest of the parents in the sample, either because their inputs were relatively more or less frequent than most other parents’, these differences then led to taking a closer look at the information parents had received from their service provider. I would first examine the information parents received at the level of indicator variables, 0s and 1s as described in the Methods section, and then more in depth by going back to the qualitative excerpts from the interviews. For example, when some 110 parents’ MLU was relatively higher than that of other parents’, I investigated if these parents’ interviews had anything in common regarding the types of the information they received. For study aim 3, the same kind of investigation of patterns was also used to explore whether aspects of parents’ language were related to contextual factors in these families lives. I investigated the relationship between each of the quantities and LTs of parents’ language and parents’ reports of household income and education. Then, I looked at descriptive statistics for children’s use of language during free play to see if parents’ quantities of language or use of LTs were related to any of the quantities of children’s language. Results Study Aim 1: Descriptions of the Quantities and Qualities of Parents’ Communication Quantities of parents’ language. There was substantial variation across parents regarding the quantities of their language use (see Table 3.3). On average, parents used approximately160 different words (word types) and 550 total words (word tokens) during the 10 minute free play session with their children, and nearly 20 LTs per minute. Parents’ MLU was approximately 3 words on average. The majority of parents’ language was spoken, given that approximately only 4 of their word types and 8 word tokens included signs; however, as seen in Table 3.3, one parent’s language did include a much larger percentage of signs. 111 Table 3.3 Quantities of Parents’ Language Use during Free Play Types that were signs Tokens that Type/ + speech, were signs + Token or signs speech, or ID Types Tokens Ratio only signs only 101 198 818 0.24 1 1 102 174 704 0.25 0 0 103 132 415 0.32 6 6 104 169 580 0.29 1 3 105 152 498 0.31 37 72 106 202 711 0.28 2 5 107 160 585 0.27 0 0 108 192 698 0.28 3 4 109 152 406 0.37 0 0 110 95 216 0.44 0 0 111 184 723 0.25 0 0 112 107 320 0.33 3 3 M 159.75 556.17 0.30 4.42 7.83 SD 34.42 186.13 0.06 10.42 20.32 Range 95-202 216-818 0.24-0.44 0-37 0-72 Mean length of utterance 3.61 2.92 1.96 3.00 2.76 3.09 3.18 3.21 2.82 2.66 3.83 2.62 2.97 0.47 1.96-3.83 LTs/ minute 24.00 24.00 21.80 19.50 16.70 24.00 20.20 23.10 14.80 8.10 19.70 12.70 19.05 5.07 8.10-24.00 Qualities of parents’ language. Parents primarily used lower-level LTs when interacting with their children during free play. Specifically, parents’ use of lower-level LTs accounted for 73.1% of their communication. Parents used 19.05 LTs per minute, 13.73 of which were lowerlevel LTs (SD = 3.41) and 5.33 of which were higher-level (SD = 2.33). When examining average levels of specific LTs per minute, there were four LTs that parents used most frequently; relatively speaking, parents used parallel talk, close-ended questions, directives, and responsive acknowledgement the most often per minute. The average use of specific LTs per minute are shown in Figure 3.1, some of which will be discussed in further detail below. 112 CQ 4.0 DR 3.4 Language technique IM 0.9 LM 1.1 NO 1.3 PE 0.8 RA 2.4 PA 4.4 EX 0.2 OQ 0.5 RE 0.3 0.0 1.0 2.0 3.0 Use of language technique/minute 4.0 5.0 Figure 3.1. Parents’ average use of specific language techniques (LTs) per minute. Lower-level LTs are above the line, and higher-level LTs are below the line. Study Aim 2: Associations between Parents’ Communication and Information Received First, patterns that were similar across the entire sample will be discussed. Then, associations between individual differences in parents’ communication and information received will be discussed. Overarching patterns. An overarching connection between parents’ language inputs and the information they receive about how to promote their children’s language development is that parents are using a large amount of parallel talk (PA) on average, and all parents receive information about the importance of frequently talking throughout all daily routines and activities with their children. This demonstrates that parents may be internalizing this message about talking frequently and this is then reflected in their use parallel talk, which focuses on what their child is attending to or doing. Parents’ receipt of information about frequently talking 113 Talk frequently, all throughout the day  Change intonation to draw attention  Talk clearly  Use proper enunciation, or say words ‘right’  Use proper pronunciation  Instruction about how to sign or using signs  Materials or resources related to signs  Use signs  Ask the child questions  Discuss general word concepts  Narrate what you or the child is doing  Play together  Read books together  Repetition  Slow down the interaction  Talk a lot  Talk constantly  Talk/discuss with the child  Verbally label things  Work on specific words Promote listening and language skills by focusing on sounds  Encourage child to produce specific sounds  Focus on the child’s mouth abilities, rounding  Draw attention to and discuss noises in the environment  Focus on the child’s listening skills  Listening activities  Focus on letters, letter sounds  Focus on sounds—general  Have the child wear his/her hearing aids  Hearing aids are important  Process of testing of child’s hearing  Talk into the child’s better ear  Use objects to make specific connections with sounds The parent is essential, most important  I am important because I can teach him/her  I am important—general Incorporating other communication channels  I am more important than the service  Exaggerate my mouth movements provider  Make eye contact with the child when speaking  My participation in early intervention is  Make sure that child can see your mouth important  Point or gesture to my mouth/face when  My family is important speaking  Parents are the language models  Put my hand by the child’s mouth when he/she A need for more speaks  Info about signs/sign language is  Put the child’s hand to my mouth when I speak inconsistent, lacking, or unsupportive  Touch the child to help him/her understand  Need additional or more specified he/she is making noises information because of child’s hearing loss  When reading books have the child face me Figure 3.2. Information parents receive about how to promote their children’s language development. included a variety of features, including general information about the importance of “pretty much non-stop talking” (110) and “read to her and play with her and talk to her” (111). It also included information about “narrating constantly” (101) as it relates it specifically to what the child is doing or what is going on around the child, and ideas for specific “words to work on, and how to pronounce those words so the kids can understand them” (103). 114 Importantly, the receipt of information about talking frequently could have been internalized and expressed in parents’ communication in one of two ways—either through the use of perpendicular (PE) or parallel talk (PA). If parents had internalized the information about frequent communication in such a way that led to their discussion of anything and everything, without regard to their child’s focus or attention, this could lead to greater frequencies of perpendicular talk. However, parents’ use of perpendicular talk is far less frequent than their use of parallel talk (see Figure 3.1), suggesting that parents may interpret the various aspects of information about frequently talking in a way that relates to an awareness of their child’s focus. It is important to take into consideration another aspect of information that parents receive—specifically, to incorporate other communication channels—since this may be what drives this pattern between information about talking frequently and parents’ use of parallel talk, as opposed to perpendicular talk. Parents received information about the importance of eye contact in general (e.g., “Make sure you look at her and she knows you’re talking [in order for her] to hear it.” (109)), as well as purposefully drawing attention to their mouths (e.g., “Mouth movements, make sure she can see your mouth, or point to your mouth and say ‘open’ [exaggerated sound: ‘oooh-pen’].” (103)). This information about communication channels may encourage parents to consider their child’s attention, or for them to either try to get their child’s attention or wait for it before communicating; this could then translate into their use of parallel talk, since this occurs when parents communicate about things that are related to what the child is doing or the child’s focus of attention. Although all parents received information that related to the theme of talking frequently, it is important to note that they also discussed how this can be challenging. Some examples from parents’ interviews that demonstrated this included the following: 115 Basically they just said I have to talk constantly. Which I find I don’t really-, I don’t-, I can’t do it all the time. Well I definitely narrate during playtime, that’s when we’re talking constantly. But sometimes it just seems so unnatural. (101) Our role is to teach her how to get through the day, and to communicate. Talk and talk and talk and talk! Which is hard for some people, and it is. Some days it’s really hard for me. (104) [My service provider] walks around the house and points at stuff: mirror, wall, door. She’s done that before. […] Which is a little easier said than done. Trying to walk around the house and [label], ‘Wall, door,’ [my child is] like, ‘I don’t care mom!’ (103) Therefore, parallel talk may be challenging for some parents, or they may only feel comfortable using this type of communication a certain amount and may supplement their communication by using other techniques. Importantly, there are, in fact, nuances in parents’ use of parallel talk which will be discussed in more depth below. Quantities of language input. There were nuances in the particular types of information that parents receive within the theme of the importance of frequent communication and there is also a great deal of variation in the quantities of parents’ language input. Of the quantities of parents’ language examined, which included word types, word tokens, MLU, and LTs per minute, patterns emerged between parents’ use of LTs per minute and MLU and their receipt of information. Regarding the pattern between parents’ use of LTs per minute, certain parents did not receive information related to the specific code of ‘talk constantly,’ even though all parents received information related to the theme of talking frequently. In particular, parents 105, 108, 109, 111, and 112 did not receive this particular message to talk constantly, although they received other types of information about the importance of talking with their child and/or engaging in communication with their child throughout everyday routines. It is worth mentioning that of these 5 parents, 3 of these parents (105, 109, and 112) were in the bottom quarter of 116 parents regarding their use of the fewest LTs per minute (see Figure 3.3). Therefore, even though all parents received information about the importance of frequently talking with their children, not receiving the specific piece of information to ‘talk constantly’ may be related to some parents being less talkative overall, as measured by their utterances per minute. 101 24.0 102 24.0 103 21.8 104 19.5 Parent ID 105 16.7 106 24.0 107 20.2 108 23.1 109 14.8 110 8.1 111 19.7 112 12.7 0.0 5.0 10.0 15.0 20.0 Use of language techniques/minute Figure 3.3. Parents’ average use of language techniques (LTs) per minute. 117 25.0 30.0 Parents average MLU was approximately 3 words per utterance (M = 2.97, SD = 0.47). Parent 103’s MLU was the lowest in comparison to all other parents in the sample and was 1 standard deviation below the mean (see Figure 3.4). For parent 103, it is important to note that this is the only parent in the sample who received information related to the code of ‘verbally label things.’ In particular, this parent discussed receiving information about pointing out and labeling specific things when interacting with her daughter, and also received information about particular words or concepts to discuss with her child (e.g., in/under, above/below, open/close). Table 3.4 includes an excerpt from the play session between parent and child 103, including the coding of the parents’ use of LTs (noted on the %spa lines), while they were interacting with stacking rings. This excerpt illustrates that parent 103, although frequently using parallel talk which is a higher-level LT (also see the following section), is doing this while using one word at a time to label her child’s actions of taking the rings on and off the toy. This demonstrates that providing parents with information about labeling objects may negatively influence parents’ use of longer utterances when interacting with their children. Table 3.4 Excerpt from Free Play between Parent-Child Dyad 103 *MOT: On. %spa: PA *MOT: On. %spa: PA *MOT: On. %spa: PA *MOT: One more. %spa: DR *MOT: Right here. %spa: PA *MOT: On. %spa: PA *CHI: More. *MOT: More? %spa: RE 118 Higher-level language techniques. Examining parents’ use of higher-level LTs shows that the majority of their use of these techniques is driven by parallel talk; parents used parallel talk 4.4 times per minute on average, but there is also a great deal of variation in this between parents (SD = 2.12). As seen in Figure 3.5, there are three parents whose use of parallel talk is 78 times per minute, which is considerably higher comparison to the other groups of parents who use parallel talk 1-4 times per minute. These parents, 103, 106, and 111, are using approximately 1.5-5 times more parallel talk than other parents in the sample. By exploring the information these parents receive from their service providers in comparison to other parents who are using lower levels of parallel talk, there are interesting differences that emerge. Specifically, parent 103 discussed a variety of detailed information that she receives, such as particular letter sounds, words, or concepts to incorporate into her interactions with her daughter. For example, she said: “Our provider… basically gives us something to work on once a week. The K’s, the P’s. A couple weeks ago they were helping her understand ‘in’ and ‘under,’ ‘above’ and ‘below,’ ‘open’ and ‘close.’ So every week we have something new… She asked me if I had heard [my child make] a ‘K’ sound and I’m like, ‘I don’t think so,’ you know, and then we started 'kick' [and kicking the ball] and now she’s got it. […] After we did ‘open’ and ‘close’ [with small food containers], then we added onto it and made her say ‘eat’ or ‘more’ instead of ‘open.’” (103) Since this parent received information that relates to everyday routines and activities that she already does with her daughter, such as playing outside and eating together, this may mean that this parent is able to easily incorporate this information into her interactions with her child. In particular, this specific information provides the parent with ideas about creating opportunities to talk with her child when she will have her child’s attention on a particular object or action, which is a necessary component of interactions in order for parents’ language to be considered parallel talk. 119 101 3.5 102 4.9 103 7.9 104 4.5 Parent ID 105 4.2 106 7.3 107 4 108 3.6 109 2.6 110 1.3 111 7 112 1.7 0 2 4 6 8 10 Use of parellel talk/minute Figure 3.5. Parents’ use of parallel talk (PA) per minute. It is worth mentioning that other parents also discussed receiving specific information about activities to do with their children during play, such as connecting sounds to objects and creating opportunities for joint attention in which to communicate (e.g., “The speech therapist has been good about giving us exercises to do with him. […] She had these ice cream cones she’d use for ‘mm’, she had a mouse for ‘ee.’” (105)), but most of the time the information that parents received was more broad (e.g., to read books, play together, talk with the child). However, parent 103 discussed the information that she receives in a way that demonstrated how ingrained it is throughout the day with her daughter, and she was the parent who gave the most specific examples of information that she receives from her service provider. The two other parents, whose use of parallel talk was much higher on average, were parents 106 and 111. While a number of parents discussed their need for additional specific 120 information as it pertains to their child’s hearing loss in order to continue to feel supported to promote their children’s language development, these were two parents who talked about this in much more depth during their interviews. This leads to questions about how parents’ current skill levels may influence their desire for more specific information. For example, parent 106 talked about the information that she receives as “unsophisticated” and that the purpose of it is not always clear, while parent 111 said: The most important thing is I want [the service provider] to know that I wish that there was specific things for all ages. Not just, ‘oh, it’s a baby, and because she can’t talk, you’re doing fine, just read to her and play with her.’ You know? […] There’s gotta be more specific stuff, I just know there is. I just know it. (111) In summary, when parents’ receive of very specific information about ideas of ways to communicate with their children within the context of a joint activity this may be particularly important for promoting parents’ use of parallel talk. However, for other parents, it is possible that when they are already frequently communicating about what it is their child is attending to or doing, and therefore using parallel talk, they may feel that the information they receive is not adequate or specific enough. Therefore, if parents are already communicating with their children in ways that align with certain LTs that are of important for the language development of children with hearing loss, this may also drive their feelings that there must be more sophisticated or specific information that they need to receive in order to continue to feel supported. Study Aim 3: Associations between Parents’ Communication and Contextual Factors Family socioeconomic status. Examination of families’ level of income and parental education revealed patterns between the quantities of parents’ language input, as well as one particular LT. The parent whose family income and education were in the lowest categories reported in this sample (income between $12,000-19,999 and a high school diploma or GED), 121 used the lowest number of word types, word tokens, and LTs per minute while interacting with her child (see parent 110 in Table 3.3). Exploring both the percentage of parents’ language that included specific LTs and their rates of LTs per minute, there are three parents, 102, 109, and 110, whose use of directives (DR) was relatively higher than others. Across the entire sample, parents used directives 3.8 times per minute on average (SD = 1.75, range = 1.10-7.90) and for 19.4% of their total language (SD = 11.9%, range = 5.7-43.2%). Parents 102, 109, and 110 used more directives compared to any other LT while playing with their child, at 7.9, 5.6, and 3.5 times per minute, respectively. Though parent 110’s rate of 3.5 times per minute seems close to the overall average across all parents (3.8 times/minute), looking at the percentage of this parent’s communication is important considering that this parent used the least amount of communication compared to all other parents, as mentioned above. Parent 110’s use of directives was approximately 43.2% of her overall use of LTs, which is approximately 2 standard deviations above the mean. Although there are no identifiable differences in the information these three parents received, there is a difference in their income level. These parents are the three whose families’ annual household incomes were in the lowest category reported in this sample. The results related to families’ income level and parental education suggest that SES may influence both the quantities and qualities of their language input. However, it should be noted that of the three parents discussed the section above, 102, 109, and 110, their children’s language skills were among the lowest in the sample (see Table 3.5). This may mean that when the quantities of parents’ language are lower or include more lower-level LTs, particularly directives, this may negatively influence children’s language skills. On the other hand, this may 122 demonstrate a child effect: when children have lower language skills, their parents may adapt their use of language in ways that include more lower-level LTs. Children’s language use. When examining other relationships between children’s current language skills and parents’ quantities of language and use of LTs, there was a relationship between children’s language skills and parents’ use of specific higher-level LTs. Given that parents used a great deal of parallel talk, and the three other higher-level LTs—openended questions, expansion, and recast—were used much more infrequently, these three techniques were combined and examined separately so that parents’ use of parallel talk did not conceal the nuances in the use of other higher-level LTs. When these three higher-level language techniques were combined, parents used approximately 1 higher-level LT per minute while playing with their child (M = 0.95, SD = 0.92). There are two parents who used relatively greater levels of these higher-level techniques in comparison to others (see Figure 3.6). Parent 101 and 108’s use of these higher-level LTs during their interactions with their children is nearly 2 standard deviations above the mean. Exploring the information received for these two parents did not suggest that these parents received substantially different information from their service providers. However, there are patterns in the differences of the language skills that their children demonstrated during free play. There was a great deal of variation in children’s language skills, as approximated by their language use during free play; children used approximately 14 word types and 41 word tokens (word types: SD = 13.6, range = 1-45; word tokens, SD = 41.2, range = 20-151; see Table 3.3). Children in dyads 101 and 108 used the most word types of all children in the sample, which is an indicator of children’s vocabularies (e.g., Pan, Rowe, Spier, & Tamis-LeMonda, 2004). As seen in Table 3.5, children in dyad 101 and 108 used 30 and 45 word types, which was more than 123 1 standard deviation above the mean. However, proxies for these children’s overall talkativeness (word tokens) or age does not yield the same pattern. This may mean that it is children’s vocabulary, rather than their overall talkativeness or age, that is related to parents’ use of higherlevel LTs. It is possible that when parents use more higher-level LTs with their children this promotes children’s expressive language skills, or that children with greater expressive language skills may elicit their parents’ use of these higher-level LTs. 124 101 2.8 102 0.6 103 1.4 Parent ID 104 0.5 0.9 105 106 0.6 OQ 107 1 EX 108 2.7 109 RE 0.1 110 0.3 111 0.2 0.3 112 0 0.5 1 1.5 2 2.5 3 Use of open-ended questions, expansion, and recast/minute Figure 3.6. Parents’ use of open-ended questions (OQ), expansion (EX), and recast (RE) per minute. Table 3.5 Children’s Language Use during Free Play and Their Age in Months ID Types Tokens Child age (in months) 101 30 58 24.9 102 2 22 20.9 103 21 69 25.1 104 12 46 20.8 105 19 24 29.5 106 9 34 18.6 107 6 50 17.9 108 45 151 29.4 109 2 31 15.6 110 2 20 15.8 111 1 35 12.0 112 21 122 29.0 M 14.2 55.2 21.6 SD 13.6 41.2 6.0 Range 1-45 20-151 12.0-29.5 125 Post-hoc Analysis: Parents’ Communication Modalities and Receipt of Information about Signs Based on the descriptive results of parents’ language use, which indicated that the majority of parents in this sample did not use many signs (see Table 3.3), an examination of the relationship between parents’ use of signs and their receipt of information about signs was completed post-hoc. There does not appear to be a clear relationship between these data. Of the 12 parents in the study, 7 used signs while interacting with their children—4 of which had not received information about the use of signs. Importantly, 6 of these 7 parents who used signs did so in a minimal way in comparison to their overall communicative types and tokens, such that it accounted for 0.12-1.45% of their total tokens. However, one parent’s use of signs accounted for 14.46% of the total tokens, and this parent did not report receiving information about signs; instead, this parent talked at length about the lack of support and information received about the use of signs or sign language. In addition, this parent, as well as 5 others in the study reported a desire for additional information regarding the use of signs, including both those who used some signs and those who did not use signs at all during the free play interaction. It is possible that parents’ use of signs may be about the personal choice their family has made about using signs, rather than about specific information they receive, potentially because they are not receiving enough information or support from their service providers. This may be related to the types of information parents receive about the use of signs, given that the information that parents do receive about the use of signs is usually in the form of pictures of signs or websites to visit (e.g., “handouts on sign language” (103); “They gave me the signs and stuff. They printed out like little booklets to work on.” (104)). 126 Discussion This study found that the majority of parents’ language inputs to their infants and toddlers with hearing loss included lower-level language techniques and the majority of their use of higher-level language techniques was driven by the use of parallel talk; this is in line with the only other study to date that has focused on very young children with hearing loss (e.g., Cruz et al., 2013). Importantly, there was also a great deal of variability in the quantities of parents’ language and in the specific language techniques they used. The similarities across parents, as well as the individual differences among them, were used as a basis to then explore how these quantities and qualities of their language may vary as a function of aspects of their early intervention services or other contextual factors. The current study is the first of its kind to investigate the relationship between parents’ language inputs and the information they receive as part of early intervention services. Overarching patterns in the data show that parents’ use of parallel talk may be influenced not only by their receipt of information about the importance of frequently talking with their child throughout all daily routines and activities, but the receipt of this information in conjunction with information that may encourage joint attention between children and their parents. Specifically, parents also received information about the importance of incorporating other communication channels, such as eye contact and touch, and to focus on sounds; both of these kinds of information may provide parents with ways to create opportunities for joint attention in their interactions with their children, and to use language in these interactions. More nuanced patterns between individual pieces of information parents received and their language use show that although all parents receive information about the importance of frequently talking with their children, it may be beneficial for some parents to receive more 127 explicit information about what ‘frequently’ may mean in order to potentially increase their overall talkativeness. Another piece of information that may influence the quantities of parents’ language is receiving information to use labels to describe objects or actions; receiving information about labeling things may hinder parents’ mean length of utterance, and if it is not done within the context of joint attention it is shown to be detrimental for the language development of children with hearing loss (DesJardin, 2006). Receiving information about labeling may come at the expense of more rich language interactions between parents and their children. Thus, parents may need more specific information about using multiple words while providing labels, and to do this when it describes what their children are attending to or doing. Additional patterns related to the qualities of parents’ language show that receiving information about specific activities to do with their children may promote their use of parallel talk; this type of information may provide parents with ideas about discussing what their children are attending to or doing, which is a necessary component of parallel talk (e.g., DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013). However, the findings of this study show that when parents are frequently using parallel talk, they may be the parents who are most in need of additional, specific information. There is reason to believe that if parents’ language use is already in line with the recommendations they receive from their service providers, such as to frequently talk to their children and use communication channels and sounds as an opportunity to engage in joint attention, they may feel as if the information they receive is not enough to help them promote their children’s language development; these parents need additional information in order to feel like the recommendations that they receive are meaningful and that they have the information to strengthen their interactions with their children in order to make a difference in their children’s language development. Overall, these findings are the first to test the hypothesis 128 that parents’ language inputs may be influenced by the information they receive as part of early intervention services, which is frequently mentioned as implications of research studies that examine how variation in parents’ language influences the language skills of children with hearing loss (e.g., DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, et al., 2012; Ambrose et al., 2014). Investigating other contextual aspects of these families lives shows there are relationships between the quantities and qualities of parents’ language and families’ SES. The findings of the current study demonstrate that children of lower SES families may be exposed to fewer different and overall words, and the qualities of their parents’ language may include more directives, which aligns with other research studies about the influences of parental SES (Hart & Risley, 1995; Niparko et al., 2010; Barker et al., 2009; Geers et al., 2009; Szagun & Stumper, 2012; Cruz et al., 2013), Thus, parents of lower SES may need additional supports about the importance of the combination of frequently talking while following their children’s lead. Furthermore, parents who use relatively more frequent directives have children whose language skills were among the lowest in the sample, while parents whose children had the greatest language skills used considerably more of the higher-level language techniques. These findings are consistent with previous studies, which suggest that directives may be detrimental, while expansion, recast, and open-ended questions may be predictive of the language development of children with hearing loss (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013). However, these findings may also demonstrate that parents are adjusting their use of language techniques based on their children’s current skill levels, with parents using more lower-level techniques with their children whose language skills are less advanced and more higher-level techniques with children whose skills are greater, which has also been suggested by 129 past research (Farran et al., 2009, Lederberg & Prezbindowski, 2000). Regardless of directionality, the findings of the current study, in combination with research related to the language techniques that promote the language development of children with hearing loss (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013), suggest that parents may need to be provided with information about the specific language techniques known to support their children’s language development since these may be different than those that are best for younger children who have typical hearing or who have language delays (Girolametto et al., 1999; Tamis-LeMonda et al., 2001; McNeil & Fowler, 1999; Dale et al., 1996; Yoder et al., 2001; Dale, Crain-Thoreson, Notari-Syverson, & Cole, 1996). Implications for Practice In line with the theory of social constructionism (Gergen, 1985; Lock & Strong, 2010; Burr, 1995), this study shows that the information parents receive from their service providers has the potential to influence both the quantities and qualities of the language that they use when interacting with their children. In particular, this study shows the importance of parents receiving information about frequently talking with their children since this may contribute to their use of parallel talk, but that also providing parents with additional information about ways to create opportunities for joint attention is key to this process. Providing parents with information about increasing the quantity of their language is not enough; instead they need to simultaneously receive messages about the importance of the quality of their interactions with their children, in particular, the importance of talking frequently about their child’s interests or actions. Therefore, providing these families with information about the quantity of their language should be done in conjunction with the importance of the quality of these interactions, and the most important quality is to discuss what it is that their child is attending to or doing. 130 The findings from this study also demonstrate that it may be particularly helpful to parents if the information they receive is based on their current strengths. Parallel talk is an important quality of parents’ language and it is also one that may be approachable for parents, given that it was the most common language technique used; therefore, parallel talk may provide a foundation for promoting specific qualities of parents’ language. The results of this study suggest that parents whose language includes frequent levels of parallel talk may be at a stage where they are ready to receive information about the more complex higher-level language techniques (e.g., open-ended questions, expansion, and recast) in order to feel as if the information they receive is adequate enough to support them in their continued efforts to promote their children’s language skills. The post-hoc analysis of this study shows that parents want additional information and support regarding the use of signs or sign language, and they may not be currently receiving enough information in order to use this modality of language with their children. It is important that parents are supported in their decisions regarding the method of communication they will use with their children (Moeller et al., 2013; Yoshinaga-Itano, 2014; JCIH, 2007). In order to do this, parents need information that provides them with examples and opportunities to practice the language itself, rather than individual components. Limitations This study is limited in generalizability for a variety of reasons, including being drawn from a small sample and the fact that all families came from one limited geographic area. Although there was variation in families’ income levels and parents’ education, the majority of parents in this study had relatively high levels of socioeconomic status. The lack of variation in parents’ and children’s race/ethnicity means that the experiences of other types of families are 131 not represented in these data. Future research should make concerted efforts to recruit participants from more diverse families, since these families’ experiences may be different and, therefore, influence their interactions with their children in unique ways. Although this study suggests that the information parents receive as part of early intervention services may influence the quantities and qualities of their language, the directionality in these relationships cannot be assumed. Furthermore, the information parents’ receive from their service providers was only from the retrospective account of the parents, which may mean that other types of information provided to parents, or the ways in which information is provided, may potentially guide the relationships between these services and parents’ language inputs. Future Directions To better understand the ways in which parents’ language inputs may be influenced by the information parents receive about how to promote their children’s language development as part of early intervention services, longitudinal studies that focus on both observation of early intervention services as well as parents’ reports of information received, would be most influential. Longitudinal studies would allow for analytic approaches that could test directionality; it is possible that there are sensitive periods of time when certain information may be more influential when provided to parents, and testing this longitudinally would allow for family-centered early intervention to be more sensitive to parents’ needs, as well as to the critical periods of children’s language development when certain aspects of parents’ language inputs may be most influential. Measuring the information parents’ receive and how it is provided, via both observation and parents’ reports over time, would provide an opportunity to better understand how the information provided to parents aligns with best practices and what specific 132 aspects of this information provided to parents or that parents remember is most critical to positively influencing their interactions with their infants and toddlers who have hearing loss. Furthermore, future studies should examine service providers’ reports of the information they provide to parents about how to promote the language development of children with hearing loss. This would help identify gaps between information service providers feel that they are giving to parents and parents’ perceptions of this information. This may provide insight as to the types of information that may be provided to parents, but not internalized and incorporated into their interactions with their children who have hearing loss. 133 REFERENCES 134 REFERENCES Alexander Graham Bell Association for the Deaf and Hard of Hearing. (2013). 2013 supplement: Principles and guidelines for early intervention following confirmation that a child is deaf or hard of hearing. Retrieved from: http://www.listeningandspokenlanguage.org/JCIH/2013_Supplement/ Ambrose, S. E., VanDam, M., Moeller, M. P. (2014). Linguistic input, electronic media, and communication outcomes of toddlers with hearing loss. Ear & Hearing, 35, 139-147. doi: 10.1097/AUD.0b013e3182a76768 Antia, S. D., Jones, P. B., Reed, S., & Kreimeyer, K. H. (2009). Academic status and progress of deaf and hard-of-hearing students in general education classrooms. Journal of Deaf Studies and Deaf Education, 14, 293-311. doi: 10.1093/deafed/enp009 Apuzzo, M., & Yoshinaga-Itano, C. (1995). Early identification of infants with significant hearing loss and the Minnesota Child Development Inventory. Seminars in Hearing, 16, 124–139. Barker, D. H., Quittner, A. L., Fink, N. E., Eisenberg, L. S., Tobey, E. A., Niparko, J. K., & the CDaCI Investigative Team. (2009). Predicting behavior problems in deaf and hearing children: The influences of language, attention, and parent-child communication. Development and Psychopathology, 21, 373-392. doi:10.1017/S0954579409000212 Baumwell, L., Tamis-LeMonda, C. S. & Bornstein, M. H. (1997). Maternal verbal sensitivity and child language comprehension. Infant Behavior and Development, 20, 247–58. doi:10.1016/S0163-6383(97)90026-6 Bornstein, M. C., & Bradley, R. H. (Eds.). (2003). Socioeconomic status, parenting, and child development. Mahwah, NJ: Lawrence Erlbaum. Bradley, R. H. & Corwyn,R. F. (2002). Socioeconomic status and child development. Annual Review of Psychology, 53, 371-399. doi: 10.1146/annurev.psych.53.100901.135233 Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77-101. http://dx.doi.org/10.1191/1478088706qp063oa Braun, V., & Clarke, V. (2012). Thematic analysis. In H. Cooper (Ed.), Handbook of research methods in psychology (Vol. 2, pp. 57-71). Washington, DC: APA books. Braun. V. & Clarke, V. (2014). Frequently asked questions about thematic analysis. Retrieved from http://www.psych.auckland.ac.nz/en/about/our-research/research-groups/thematicanalysis/frequently-asked-questions-8.html 135 Burr, V. (1995). An introduction to social constructionism. New York, NY: Routledge. Buschmann, A., Jooss, B., Rupp, A., Feldhusen, F., Pietz, J., & Philippi, H. (2009). Parent based language intervention for 2-year-old children with specific expressive language delay: A randomised controlled trial. Archives of Disease in Childhood, 94, 110–116. doi:10.1136/adc.2008.141572 Calderon, R. (2000). Parental involvement in deaf children's education programs as a predictor of child's language, early reading, and social-emotional development. Journal of Deaf Studies and Deaf Education, 5, 140-155. doi: 10.1093/deafed/5.2.140 Centers for Disease Control. (2015). Early intervention: Communication and language services for families of deaf and hard-of-hearing children. Retrieved from http://www.cdc.gov/ncbddd/hearingloss/freematerials/communication_brochure.pdf Conger, R. D., Conger, K. J., & Martin, M. J. (2010). Socioeconomic status, family processes, and individual development. Journal of Marriage and Family, 72, 685–704. doi:10.1111/j.1741-3737.2010.00725.x. Cruz, I., Quittner, A.L., Marker, C., DesJardin, J. L., & CDaCI Investigative Team. (2013). Identification of effective strategies to promote language in deaf children with cochlear implants. Child Development, 84, 543-559. doi:10.1111/j.1467-8624.2012.01863.x Dale, P. S., Crain-Thoreson, C., Notari-Syverson, A., & Cole, K. (1996). Parent-child book reading as an intervention technique for young children with language delays. Topics in Early Childhood Special Education, 16, 213-235. doi: 10.1177/027112149601600206 Dempsey, I. & Keen, D. (2008). A review of processes and outcomes in family-centered services for children with a disability. Topics in Early Childhood Special Education, 28, 42-52. doi: 10.1177/0271121408316699 DesJardin, J. L. (2006). Family empowerment: Supporting language development in young children who are deaf or hard of hearing. The Volta Review, 106, 275-298. DesJardin, J. L., & Eisenberg, L. S. (2007). Maternal contributions: Supporting language development in young children with cochlear implants. Ear & Hearing, 28, 456-469. doi:10.1097/AUD.0b013e31806dc1ab DesJardin, J. L., Doll, E. R., Stika, C. J., Eisenberg, L. S., Johnson, K. J., Ganguly, D. H. … Henning, S. C. (2014). Parental support for language development during joint book reading for young children with hearing loss. Communication Disorders Quarterly, 35, 167-181. doi: 10.1177/1525740113518062 Dettman, S. J., Pinder, D., Briggs, R. J., Dowell, R. C., & Leigh, J. R. (2007). Communication development in children who receive the cochlear implant younger than 12 months: Risks versus benefits. Ear & Hearing, 28, 11S-18S. doi: 10.1097/AUD.0b013e31803153f8 136 Division for Early Childhood. (2014a). Recommended practices in early intervention and early childhood special education. Retrieved from http://www.decsped.org/recommendedpractices Division for Early Childhood. (2014b). DEC position statement: The role of special instruction in early intervention. Retrieved from http://dec.membershipsoftware.org/files/Position%20Statement%20and%20Papers/EI%2 0Position%20Statement%206%202014.pdf Dunst, C. J., Trivette, C. M., & Hamby, D. W. (2007). Meta-analysis of family-centered helpgiving practices research. Mental Retardation and Developmental Disabilities Research Reviews, 13, 370-378. doi: 10.1002/mrdd.20176 Falkus, G., Tilley, C., Thomas, C., Hocky, H., Kennedy, A., Arnold, T. … Earney, R. (2015). Assessing the effectiveness of parent-child interaction therapy with language delayed children: A clinical investigation. Child Language Teaching and Therapy, 31, 1-11. doi 10.1177/0265659015574918 Farran, L. K., Lederberg, A. R., & Jackson, L. A. (2009). Maternal input and lexical development: The case of deaf pre-schoolers. International Journal of Language & Communication Disorders, 44, 145-63. doi: 10.1080/13682820801973404. Fung, P. C., Chow, B. W., & McBride-Chang, C. (2005). The impact of a dialogic reading program on deaf and hard-of-hearing kindergarten and early primary school-aged students in Hong Kong. Journal of Deaf Studies and Deaf Education, 10, 82-95. http://dx.doi.org/10.1093/deafed/eni005 Geers, A. E., Moog, J. S., Biedenstein, J., Brenner, C., & Hayes, H. (2009). Spoken language scores of children using cochlear implants compared to hearing age-mates at school entry. Journal of Deaf Studies and Deaf Education, 14, 371–385. doi:10.1093/deafed/enn046 Gergen, K. J. (1985). The social constructionist movement in modern psychology. American Psychologist, 40, 266-275. doi:10.1037/0003-066X.40.3.266 Girolametto, L. & Weitzman, E. (2002). Responsiveness of child care providers in interactions with toddlers and preschoolers. Language, Speech, and Hearing Services in Schools, 33, 268–281. doi: 10.1044/0161-1461(2002/022) Girolametto, L., Weitzman, E., Wiigs, M., & Pearce, P.S. (1999). The relationship between maternal language measures and language development in toddlers with expressive vocabulary delays. American Journal of Speech- Language Pathology, 8, 364-374. doi:10.1044/1058-0360.0804.364 137 Goldin-Meadow, S., Goodrich, W., Sauer, E., & Iverson, J. (2007). Young children use their hands to tell their mothers what to say. Developmental Science, 10, 778-785. doi: 10.1111/j.1467-7687.2007.00636.x Hart, B., & Risley, T. R. (1995). Meaningful differences in the everyday experience of young American children. Baltimore, MD: Paul H. Brookes Publishing. Hauser-Cram, P., Warfield, M.E., Shonkoff, J.P., Krauss, M.W., Sayer, A., & Upshur, C.C. (2001). Children with disabilities: a longitudinal study of child development and parent well-being. Monographs of the Society for Research in Child Development, 66, 1-126. Hoff, E. (2003). The specificity of environmental influence: Socioeconomic status affects early vocabulary development via maternal speech. Child Development, 74, 1368–1378. doi: 10.1111/1467-8624.00612 Hoff-Ginsberg, E. (1987). Topic relations in mother-child conversation. First Language, 7, 145158. doi: 10.1177/014272378700702006 Huttenlocher, J., Haight, W., Bryk, A., Seltzer, M., Lyons, T. (1991). Early vocabulary growth: Relation to language input and gender. Developmental Psychology, 27, 236–248. http://dx.doi.org/10.1037/0012-1649.27.2.236 Joint Committee on Infant Hearing. (2007). Year 2007 position statement: Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Pediatrics, 120, 898-921. doi: 10.1542/peds.2007-2333 Kaiser, A. P., & Hancock, T. B. (2003). Teaching parents new skills to support their young children’s development. Infants & Young Children, 16, 9-21. Lederberg, A. R., & Prezbindowski, A. K. (2000). Impact of child deafness on mother-toddler interaction: Strengths and Weaknesses. In P. E. Spencer, C. J. Erting, & M. Marschark (Eds.), The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans (p. 73-92). Mahwah, NJ: Lawrence Erlbaum Associates, Inc. Leigh, G., Newall, J. P., & Newall, A.T. (2010). Newborn screening and earlier intervention with deaf children: Issues for the developing world. In M. Marschark & P. Spencer (Eds.), The Oxford handbook of deaf studies, language, and education, vol. 2 (pp. 345-359). New York: Oxford University Press. Lock, A., & Strong, T. (2010). Social constructionism: Sources and stirrings in theory and practice. New York, NY: Cambridge University Press. MacWhinney, B. (2015). The CHILDES project: tools for analyzing talk – electronic edition; Part 1: The CHAT transcription format. Retrieved from http://childes.psy.cmu.edu/manuals/CHAT.pdf 138 Marschark, M. (2007). Raising and educating a deaf child (2nd ed.). New York, NY: Oxford University Press. McNeil, J., & Fowler, S. (1999). Let's talk: Encouraging mother-child conversations during story reading. Journal of Early Intervention, 22, 51-69. Meadow-Orlans, K. P. (1997). Effects of mother and infant hearing status on interactions at twelve and eighteen months. Journal of Deaf Studies and Deaf Education, 2, 26-36. Meadow-Orlans, K. P., & Spencer, P. E. (1996), Maternal sensitivity and the visual attentiveness of children who are deaf. Early Development and Parenting, 5, 213–223. doi: 10.1002/(SICI)1099-0917(199612)5:4<213::AID-EDP134>3.0.CO;2-P Michigan Department of Education. (2013). Early On Michigan Part C of the Individuals with Disabilities Education Act (IDEA): State Plan. Retrieved from http://www.michigan.gov/documents/mde/Part_C_of_IDEA_State_Plan_335896_7.pdf Moeller, M. P. (2000). Early intervention and language development in children who are deaf and hard of hearing. Pediatrics, 106, e43-e51. doi:10.1542/peds.106.3.e43 Moeller, M. P., Carr, G., Seaver, L. Stredler-Brown, A., & Holzinger, D. (2013). Best practices in family-centered Early Intervention for children who are deaf or hard of hearing: An international consensus statement. Journal of Deaf Studies and Deaf Education, 18, 429445. doi: 10.1093/deafed/ent034 Niparko, J. K., Tobey, E. A., Thal, D. J., Eisenberg, L. S., Wang, N. Y., Quittner, A. L., & CDaCI Investigative Team. (2010). Spoken language development in children following cochlear implantation. Journal of the American Medical Association, 303, 1498–1506. doi:10.1001/jama.2010.451 Pan, B. A., Rowe, M. L., Spier, E., & Tamis-LeMonda, C. (2004). Measuring productive vocabulary of children in low-income families: Concurrent and predictive validity of three sources of data. Journal of Child Language, 31, 587-608. http://dx.doi.org.proxy2.cl.msu.edu/10.1017/S0305000904006270 Pressman, L. J., Pipp-Siegel, S., Yoshinaga-Itano, C., Kubicek, L., & Emde R. N. (1998). A comparison of the links between emotional availability and language gain in young children with and without hearing loss. The Volta Review, 100, 251–277. Pressman, L.J., Pipp-Siegel, S., Yoshinaga-Itano, C., & Deas, A. (1999). Maternal sensitivity predicts language gain in preschool children who are deaf and hard of hearing. Journal of Deaf Studies and Deaf Education, 4, 294-304. QSR International. (2014). NVivo 10 for Windows [computer software]. Retrieved from http://www.qsrinternational.com/products_nvivo.aspx 139 Roberts, M. Y., & Kaiser, A. P. (2011). The effectiveness of parent-implemented language interventions: A meta-analysis. American Journal of Speech-Language Pathology, 20, 180– 199. doi: 10.1044/1058-0360(2011/10-0055) Robinshaw, H. M. (1997). Early intervention for hearing impairment: Differences in the timing of communicative and linguistic development. British Journal of Audiology, 29, 315– 344. Rowe, M. L. (2008). Child-directed speech: Relation to socioeconomic status, knowledge of child development and child vocabulary skill. Journal of Child Language, 35, 185–205. doi: http://dx.doi.org.proxy2.cl.msu.edu/10.1017/S0305000907008343 Spencer, P. E., Erting, C. J., & Marschark, M. (2000). The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans. Mahwah, NJ: Erlbaum. Spencer, P.E., & Marschark, M. (2010). Evidence-based practice in educating deaf and hard-ofhearing students. New York: Oxford University Press. Szagun, G., & Stumper, B. (2012). Age or experience? The influence of age at implantation and social and linguistic environment on language development in children with cochlear implants. Journal of Speech, Language, and Hearing Research, 55, 1640-1654. doi: http://dx.doi.org.proxy2.cl.msu.edu/10.1044/1092-4388(2012/11-0119) Tamis-LeMonda, C. S., Bornstein, M. H., & Baumwell, L. (2001). Maternal responsiveness and children’s achievement of language milestones. Child Development, 72, 748–767. Tomasello, M. & Farrar, M. J. (1986). Joint attention and early language. Child Development, 57, 1454-1463. doi: 10.2307/1130423 Tomasello, M. (2008). Origins of human communication. Cambridge, MA: Massachusetts Institute of Technology. VanDam, M., Ambrose, S. E., & Moeller, M. P. (2012). Quantity of parental language in the home environments of hard-of-hearing 2-year-olds. Journal of Deaf Studies and Deaf Education, 17, 402-420. doi: 10.1093/deafed/ens025 Vierra, A. J., & Garrett, J. M. (2005). Understanding interobserver agreement: The kappa statistic. Family Medicine, 37, 360-363. Vohr, B. R., Jodoin-Krauzyk, J., Tucker, R., Johnson, M. J., Topol, D., & Ahlgren, M. (2008). Early language outcomes of early-identified infants with permanent hearing loss at 12 to 16 months of age. Pediatrics, 122, 535-544. White, S. J., & White, R. E. C. (1987). The effects of hearing status of the family and age of intervention on receptive and expressive oral language skills in hearing-impaired infants. Monographs of the American Speech, Language and Hearing Association, 26, 9–24. 140 Yoder, P.J., McCathren, R.B., Warren, S.F., & Watson, A.L. (2001). Important distinctions in measuring maternal responses to communication in prelinguistic children with disabilities. Communication Disorders Quarterly, 22, 135-147. doi: 10.1177/152574010102200303 Yoshinaga-Itano, C. (2003). From screening to early identification and intervention: Discovering predictors to successful outcomes for children with significant hearing loss. Journal of Deaf Studies and Deaf Education, 8, 11-30. doi:10.1093/deafed/8.1.11 Yoshinaga-Itano, C. (2014). Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Journal of Deaf Studies and Deaf Education, 19, 143-175. doi: 10.1093/deafed/ent043 Yoshinaga-Itano, C., Sedey, A. L., Coulter, D. K. & Mehl, A. L. (1998). Language of early- and later-identified children with hearing loss. Pediatrics, 102, 1161-1171. 141 CHAPTER 4: INTEGRATIVE CONCLUSION Contribution to Existing Literature Together, these studies were intended to fill a gap in the literature related to the information parents’ receive from early intervention service providers about how to promote the language skills of their young children with hearing loss, and the relationship between this information and specific quantities and qualities of parents’ language that are known to influence the language development of these children. These studies help to shed light on how early intervention influences these families by identifying patterns in the information parents’ receive from their service providers which then relate to some of the variations in the ways these parents communicate with their children. Study 1 demonstrates that the information parents receive is partially in line with best practices. More specifically, results of Study 1 show that, central to all of the information they received, was the importance of frequently talking to their child by embedding language into all of their daily activities; parents received information about how these are learning opportunities for their children, regardless of how mundane these activities seem. This is in line with researchbased best practice recommendations in a few distinct ways: parents received information about a way to enhance their children’s everyday language environments (e.g., Moeller, Carr, Seaver, Stredler-Brown, & Holzinger, 2013; Spencer & Marschark, 2010; Marschark, 2007; Joint Committee on Infant Hearing (JCIH), 2007; Yoshinaga-Itano, 2014), and this information was provided in a way that aligned with their everyday routines, which demonstrates the importance of the children’s parents and home lives to their learning (e.g., Division for Early Childhood, 2014; Moeller et al., 2013; JCIH, 2007; Workgroup on Principles and Practices in Natural Environments, 2008). Furthermore, not only did parents receive information about the 142 importance of frequently talking with their children, but they also received information about other ways in which to support children’s language development, such as focusing on sounds and incorporating other communication channels. These findings align research that shows the importance of the frequency of parents’ language (Hart & Risley, 1995) within the context of joint attention (e.g., Barker et al., 2009; Lederberg & Prezbindowski, 2000). Furthermore, parents also received straightforward information about their importance, which is in line with best practices that focus on the importance of parental self-efficacy (Division for Early Childhood, 2014; Moeller et al., 2013). Parents were provided with information about how they are the most important individual in their child’s life, and their involvement in early intervention and follow-through with the suggestions made by their service provider are important to their child’s development. Parents were told their importance outweighs that of the service provider; they received information about how the service provider is there to help the parent. However, the findings from Study 1 also demonstrate that there is additional information that should be provided to parents in order for them to feel fully supported. In particular, parents felt that they did not receive enough information regarding the use of sign language, even though best practices including empowering parents to make decisions about their children; for parents of children with hearing loss, one of the decisions they will make relates to their child’s mode(s) of communication, and it is important that these decisions are respected (Moeller et al., 2013; JCIH, 2007; Yoshinaga-Itano, 2014). Best practices for children with hearing loss reflect an unbiased and in-depth presentation of information to parents regarding communication options (Moeller et al., 2013; JCIH, 2007; Yoshinaga-Itano, 2014). This calls for additional attention to 143 be paid to supporting service providers to be more able or willing to offer these particular types of information and unbiased support. Furthermore, there are also other gaps in the information that parents received based on what research suggests can be influential to the language development of young children. For example, in Study 1 parents receive information about frequently talking, demonstrating a bias in toward spoken communication; this demonstrates that there is a need for this information to discuss the important aspects of communication that includes any modality of language (Moeller et al., 2013; Yoshinaga-Itano, 2014). In addition, parents also discussed that they need to be provided with information about more nuanced ways in which to support their children’s development; best practices discuss the importance of service providers giving parents’ strategies for ways to promote their children’s language development (Yoshinaga-Itano, 2014) and supporting parents’ use of the specific language techniques that are shown to promote children’s language development (Moeller et al., 2013). Study 1 shows that parents did not receive information about specific quantities or qualities of language to use with their children, despite that this is a suggested best practice (e.g., Moeller et al., 2013; Yoshinaga-Itano, 2014; JCIH, 2007). Study 2 shows that when parents receive information about the importance of frequently communicating with their children, and when this information is supplemented by additional suggestions that provide parents with opportunities to communicate with their children within the context of joint attention, that this is related to parents’ use of parallel talk. Furthermore, when parents receive very specific ideas about ways to incorporate suggestions into their everyday routines and activities with their children, this also promotes parents’ use of parallel talk. Both of these findings are positive, given that parents’ use of parallel talk is important for the language 144 development of children with hearing loss (Cruz, Quittner, Marker, DesJardin, & CDaCI Investigative Team, 2013). Study 2 also shows that parents of lower socioeconomic status may need additional supports to increase their overall talkativeness and to transition their language away from using directives to instead beginning to follow their children’s lead. When taken together, these studies show that parents want additional, nuanced information about how they can promote their children’s language development, and this is especially true when they may already be using one important technique, parallel talk. When parents’ language inputs already include a foundation in the specific language techniques that are shown to be important to their children, they need more detailed and explicit information about how to continue improving their skills. These studies also demonstrate that parents need additional information about the use of signs or sign language, and the types of information they receive at this point, such as handouts or websites to use, are not enough to support their use of sign language. Implications for Practice Taken together, these studies show that parents receive a wide variety of information about how to promote their child’s language development and the important role they have in this process, and this influences aspects of their communication in specific ways. However, in light of previous research which showed that specific quantities and qualities of parents’ communication are known to be predictive of the language development of children with hearing loss (DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam, Ambrose, & Moeller, 2012; Ambrose, VanDam, & Moeller, 2014), Study 1 suggests that parents need to be provided with more specific information about how increasing these aspects of their language when communicating with their children, regardless of the modality of language used, can be 145 very beneficial for their children. Study 1 shows this in two separate ways; first and foremost, parents did not report that they received information about any of these quantities or qualities beyond talking frequently, which would relate to the overall number of words parents used, which has been not been shown to be associated with the language development of children with hearing loss (VanDam et al., 2012; Ambrose et al., 2014). Parents need to receive information beyond the pure quantity of their language, since quantity of language alone is not predictive of their children’s language skills in absence of rich vocabulary (word types) and discussions that respond to children’s vocalizations or actions (e.g., DesJardin, 2006; DesJardin & Eisenberg, 2007; Cruz et al., 2013; VanDam et al., 2012; Ambrose et al., 2014). Secondly, Study 1 demonstrates the need for more specific information for parents, because this is what they feel is missing from the information they already receive. Parents discussed how the information they receive seems generic and that it could relate to any type of child, rather than their child who has specific needs because of his/her hearing loss. Study 1 also demonstrates that there is a need for service providers to increase the amount of information and support they provide to parents regarding the use of sign language. This study also demonstrates that service providers may need additional training and support to learn about the importance of providing unbiased information and support to parents, and that the use of sign language will not impede a child’s ability to acquire spoken language, if this is also a goal for the parents. Although parents reported that they received information about the use of individual signs, they did not seem satisfied with this; they discussed their need for additional information, and that receiving this information would also show that their service provider supported the communication options they were considering or had already decided upon. 146 The results of Study 2 demonstrate that there is an opportunity to build on parents’ strengths. Parents received information about the importance of frequently talking with their children, and of all the language techniques they used with their children, parallel talk was used most frequently. Given that parallel talk is a language technique that is positively associated with the language development of children with hearing loss (Cruz et al., 2013), these findings and the potential relationship between parents’ use of parallel talk and the receipt of information about frequently talking, is positive. Parents’ use of parallel talk provides an opportunity to build on and expand their skills. For example, when service providers notice that parents’ are frequently using parallel talk, this may provide a bridge to incorporating more of the other higher-level language techniques. For example, for parents’ who are already discussing their child’s actions or what the child is attending to, this may provide a good opportunity to encourage parents to then ask their children open-ended questions regarding their actions (e.g., “What are you doing with the baby doll?”) or what they are attending to (e.g., “What are you going to do with that one?”). Future Directions The findings of these studies could be strengthened by observing early intervention services in order to directly assess the information provided to families, as well as the ways in which this information is provided. This would provide an opportunity to further inform early intervention practices and training of service providers. Observational studies of this kind would lead to a better understanding of the alignment between recommendations of best practices and research, and the information provided to families; it would also clarify particular areas of weakness that need to be addressed. 147 However, this would not address the potentially most influential aspect of the theory of change: the messages that parents internalize, and how these influence their language inputs. Even if families are provided with information that completely aligns with the best practices and research recommendations made in the field, there is still uncertainty regarding what it is that parents take from this process. It is parents’ internalization and understanding of this information, rather than information actually provided by service providers, that has the potential to be most influential to their interactions with their children and, subsequently, their children’s language development. Therefore, particularly informative studies would be those that combined: a) direct observation of early intervention services provided to families, including information provided to families, as well as the ways in which this information is provided, b) parent reports of information received, and c) direct observations of parent-child interactions. Studies of this kind would allow for a better understanding of the gaps between the information provided to parents and what parents actually internalize, what may explain these gaps, and would further add to our limited understanding of the particular information provided and internalized that is predictive of the quantities and qualities of parents’ language input. This would also provide an opportunity to see how individual variation in the information provided to parents and their internalization of this information may relate to specific aspects of their language inputs. Studies of this kind would also allow for a continued exploration of how specific quantities and qualities of parents’ language inputs, potentially influenced by the variation in information they receive, influence children’s language skills over time. 148 REFERENCES 149 REFERENCES Ambrose, S. E., VanDam, M., Moeller, M. P. (2014). Linguistic input, electronic media, and communication outcomes of toddlers with hearing loss. Ear & Hearing, 35, 139-147. doi: 10.1097/AUD.0b013e3182a76768 Barker, D. H., Quittner, A. L., Fink, N. E., Eisenberg, L. S., Tobey, E. A., Niparko, J. K., & the CDaCI Investigative Team. (2009). Predicting behavior problems in deaf and hearing children: The influences of language, attention, and parent-child communication. Development and Psychopathology, 21, 373-392. doi:10.1017/S0954579409000212 Cruz, I., Quittner, A.L., Marker, C., DesJardin, J. L., & CDaCI Investigative Team. (2013). Identification of effective strategies to promote language in deaf children with cochlear implants. Child Development, 84, 543-559. doi:10.1111/j.1467-8624.2012.01863.x Division for Early Childhood. (2014). Recommended practices in early intervention and early childhood special education. Retrieved from http://www.decsped.org/recommendedpractices DesJardin, J. L. (2006). Family empowerment: Supporting language development in young children who are deaf or hard of hearing. The Volta Review, 106, 275-298. DesJardin, J. L., & Eisenberg, L. S. (2007). Maternal contributions: Supporting language development in young children with cochlear implants. Ear & Hearing, 28, 456-469. doi:10.1097/AUD.0b013e31806dc1ab Division for Early Childhood. (2014). Recommended practices in early intervention and early childhood special education. Retrieved from http://www.decsped.org/recommendedpractices Hart, B., & Risley, T. R. (1995). Meaningful differences in the everyday experience of young American children. Baltimore, MD: Paul H. Brookes Publishing. Joint Committee on Infant Hearing. (2007). Year 2007 position statement: Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Pediatrics, 120, 898-921. doi: 10.1542/peds.2007-2333 Lederberg, A. R., & Prezbindowski, A. K. (2000). Impact of child deafness on mother-toddler interaction: Strengths and Weaknesses. In P. E. Spencer, C. J. Erting, & M. Marschark (Eds.), The deaf child in the family and at school: Essays in honor of Kathryn P. Meadow-Orlans (p. 73-92). Mahwah, NJ: Lawrence Erlbaum Associates, Inc. Marschark, M. (2007). Raising and educating a deaf child (2nd ed.). New York, NY: Oxford University Press. 150 Moeller, M. P., Carr, G., Seaver, L. Stredler-Brown, A., & Holzinger, D. (2013). Best practices in family-centered Early Intervention for children who are deaf or hard of hearing: An international consensus statement. Journal of Deaf Studies and Deaf Education, 18, 429445. doi: 10.1093/deafed/ent034 Spencer, P.E., & Marschark, M. (2010). Evidence-based practice in educating deaf and hard-ofhearing students. New York: Oxford University Press. VanDam, M., Ambrose, S. E., & Moeller, M. P. (2012). Quantity of parental language in the home environments of hard-of-hearing 2-year-olds. Journal of Deaf Studies and Deaf Education, 17, 402-420. doi: 10.1093/deafed/ens025 Workgroup on Principles and Practices in Natural Environments. (2008). Seven key principles: Looks like / doesn’t look like. Retrieved from http://www.nectac.org/~pdfs/topics/families/Principles_LooksLike_DoesntLookLike3_1 1_08.pdf Yoshinaga-Itano, C. (2014). Principles and guidelines for early intervention after confirmation that a child is deaf or hard of hearing. Journal of Deaf Studies and Deaf Education, 19, 143-175. doi: 10.1093/deafed/ent043 151