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HOL'HRLPIIVJ.’ 1.“ A... .L...?m?f ‘ (.l 'I“ - ,fl...“ - . 1 . ‘ornui... valuifigv. . hum |.H.n...u.m..a‘ T “H1 JII». .ul 1"?L.3.,‘3 l 3 1293 01688 4656 WIIIIII This is to certify that the thesis entitled THE RELATIONSHIP BETWEEN IMPACT, COPING STRATEGIES, AND LENGTH OF INFERTILITY presented by Patty Jo Hopkins has been accepted towards fulfillment of the requirements for Master of Sciencedegree in Nursing Major professor Date 5: [4‘78 0-7639 MS U is an Affirmative Action/Equal Opportunity Institution LIBRARY MIchIgan State Unlvorslty PLACE IN RETURN BOX to remove this checkout from your record. TO AVOID FINES return on or before date due. DATE DUE MTE DUE DATE DUE 1/98 WWW“ THE RELATIONSHIP BETWEEN IMPACT, COPING STRATEGIES, AND LENGTH OF INFERTILITY BY Patty Jo Hopkins A THESIS Submitted to Michigan State University in partial fulfillment of the requirements for the degree of MASTER OF SCIENCE IN NURSING College of Nursing 1998 ABSTRACT THE RELATIONSHIP BETWEEN IMPACT, COPING STRATEGIES, AND LENGTH OF INFERTILITY BY Patty Jo Hopkins A nonexperimental descriptive secondary data analysis was completed to examine the impact, types and effectiveness of coping strategies, and length of infertility upon infertile women. Forty-four infertile women who had undergone at least one gonadotropin ovulation induction treatment cycle completed two questionnaires designed to determine impact and coping strategies. The impact of infertility was low to mild and did not significantly differ by length of infertility. There was much overlap between types of coping strategies used in the Initial phase and those used in the Intermediate and Late phases. Women in all phases of infertility hoped things would get better. Overall effectiveness of coping strategies was low. The strategy that was most effective throughout all phases of infertility was talking the problem over with someone who had been in a similar situation. Supportant coping styles showed a positive relationship with effectiveness in all groups, however Late phase showed significantly less effectiveness than Intermediate. Implications for clinical practice include education and counseling throughout each phase of infertility. Copyright by Patty Jo Hopkins 1998 To my husband, Ken, for his constant encouragement and belief in my abilities. To our daughters, Lindsey Jean and Maegen whose miraculous births renewed faith in all of us. iv ACKNOWLEDGMENTS My special appreciation to my chairperson, Rachel Schiffman, PhD, for her patience, encouragement, and expert academic guidance. Thank you to Jacqueline Wright, MSN, for your encouragement and participation in my endeavor. A very special thank you to Linda Keilman, MSN, for your unrelenting encouragement, support, and advice. TABLE OF CONTENTS LI ST OF TABLES 0 O O C O O O O O C 0 LIST OF FIGURES . . . . . . . . . . . INTRODUCTION . . . . . . . . . Background . . . . . . . . . Statement of the Problem . . . . Conceptual Definition . . . . . . . . Impact of Infertility . . . . . Types of Effectiveness of Coping Length of Infertility . . . . . Conceptual Model . . . . . . . . . . Review of Literature . . . . . . . . Impact of Infertility . . . . . Coping Strategies and Effectiveness Length of Infertility and Impact Summary . . . . . . . . . . . Methods . . . . . . Design . . . . Sample . . . . . . . Instruments . . . . . Operational Definitions Data Analysis . . . . . . Human Subjects . . . Assumptions . Limitations Results . . . . . . . . . . . . . . . Sample . . . . . Impact of Infertility by Length of Infertility Types of Coping Strategies and Length of Infertility . . . . . . . . . Effectiveness of Coping Strategies and Length of Infertility . . . . . . . . . vi Strategies Page viii O uraF' Qtnébb 11 14 17 21 21 22 22 23 27 27 28 28 TABLE OF CONTENTS (cont.) Discussion . . . . . . . . . . . . Sample . . . . . . . . . . . . . Impact of Infertility . . . . . . Types of Coping Strategies . . . . Use of Coping Strategies . . . . . Effectiveness of Coping Strategies Coping Strategies . . . . . . . . Theoretical Framework . . . . . Implications . . . . . . . . . . . . . Major Findings . . . . . . . . . . LIST OF REFERENCES . . . . . . . . . . APPENDICES Appendix A . Appendix B . . Appendix C . . . Appendix D . . . vii 33 33 36 38 40 41 44 44 46 46 57 6O 62 66 67 Table Table Table Table Table Table LIST OF TABLES Eight Coping Styles on the Jalowiec Coping Scale . . . . . . . Impact of Infertility . . . Rank Order of “often used” Strategies Means, Standard Deviations, Use . . . . . . . . . . Rank Order of *very helpful" Strategies Means, Standard Deviations, For Effectiveness . . viii and F Values for and F Values Page LIST OF FIGURES Figure 1: Conceptual Model of Coping ix INTRODUCTION Background For most couples, pregnancy is a naturally occurring event. For those couples who face infertility, the consequential treatment and outcome can be devastating. With advancing technology, infertility treatment can last from six months up to 10 years for those who can financially and emotionally endure the often disappointing results (Becker & Nachtigall, 1994). Experimental treatments and difficult procedures create a highly stressful experience and can test coping skills (Blenner, 1992). Effective coping is, in part, determined by the type of coping strategies utilized as well as available resources and previous problem solving skills. Coping strategies and effectiveness of those strategies are also impacted by the length of infertility. It is predicted that unique coping strategies are utilized and effectiveness of those strategies differ with length of infertility. The purpose of this study was to investigate the relationship between impact of infertility, types of coping strategies used during this stressful experience, the effectiveness of those coping strategies, and length of infertility. 2 For the 15-20% of couples affected by infertility (Christensen, 1986; Mahlstedt, 1994; Menning, 1980; Phipps, 1993; Steward & Glazer, 1986), the impact of infertility associated with long-term infertility treatments is not to be minimized. Infertility is a life long experience with ever-lasting wounds (Balen & Trimbos-Kemper, 1994). Women experience greater levels of psychological distress than men as a direct consequence to infertility (Abbey, Andrews, & Halman, 1991; Beaurepaire, Jones, Thiering, Saunders, & Tennant, 1994; Berg & Wilson, 1991; Cook, Parsons, Mason, & Golombok, 1989; Halman, Andrews, 8 Abbey, 1993; Hynes, Callan, Terry, & Gallois, 1992; Laffont & Edelmann, 1994; Litt, Tennen, Affleck, & Klock, 1992; Morrow, Thoreson, & Penney, 1995; Phipps, 1993; Reading, Chang, & Kerin, 1989; Tarlatzis, Tarlatzis, Diakogiannis, Bontis, Lagos, Gavriilidou, & Mantalenakis, 1993). Therefore, women show a greater impact resulting from the infertility experience and associated treatment measures, exhibiting higher distress behaviors and using a greater variety of coping strategies during this process. Hammer-Burns (1987) defines infertility as “the inability to conceive or carry a pregnancy to live birth after one year of normal sexual intercourse without contraceptives” (p. 359). While many women are referred to infertility specialists for advanced treatment, diagnosis often occurs in the primary care setting. Due to the complex emotional, educational, physical, and adaptive needs 3 of this population, the Advanced Practice Nurse (APN) is in an ideal situation to intervene during all phases of the infertility experience in both the primary care setting and while undergoing specialty care. The APN can provide education, information, resources, support, and act as an advocate for women during this experience. Statement_of_£rohlem The impact of infertility is discussed in the literature; however, the relationship to length of infertility has not been clearly developed. Women experience a significant psychological impact as a result of the infertility experience. Importantly, this impact employs different coping strategies as infertility lengthens. While some coping strategies are discussed in the literature, most are generalized to the infertile couple, few are related to the length of infertility, and none relates specifically to the effectiveness of the coping strategy and the length of infertility treatment phenomenon. Therefore, given the impact of infertility and the limited information about coping, the research questions were: 1. What is the association of length of infertility and perceived impact of infertility? 2. What is the relationship between length of infertility and types of coping strategies utilized by infertile women? 4 3. What is the relationship between length of infertility and coping strategies infertile women perceive to be most effective in dealing with their infertility? If associations are positive between length of infertility and the stated independent variables, the results could prove powerful in planning care for the infertile population. Specifically, a generalized protocol could be devised which focuses on coping strategies specific to length of infertility. Conceptual Definitions The variables, impact of infertility, types and effectiveness of coping strategies, and length of infertility have been defined multiple ways in the literature. For the purpose of this study, the variables were defined and discussed as follows. I l E I E !.].l Involuntary childlessness is an unanticipated event that often results in difficult psychosocial consequences which include guilt, sorrow, isolation, powerlessness, and loss of self-esteem (Phipps, 1993). For women, the psychological risks are great. Women pursue medical treatment despite known health risks out of responsibility for child-bearing (Becker & Nachtigall, 1994). Women are subject to societal expectations to bear children and therefore experience greater impact when conception is not possible. 5 Women place greater significance on having children than men (Halman et al., 1993). Women show frequent behaviors of depression, hostility, and interpersonal sensitivity during and following infertility treatment (Bernstein, Mattox, & Kellner, 1988). Women feel a sense of failure during menses, are reluctant to discuss infertility issues with family and friends (Prattke & Gass-Sternas, 1992), and describe infertility as a continuous struggle with a loss of the pregnancy, mothering, and child experience (Phipps, 1993). Women experience increased levels of depression with decreased self-esteem and self- confidence with failed in vitro fertilization (IVF) cycles (Beaurepaire et al., 1994; Hynes et al., 1992), experience more disruption in their social, personal, and sex lives than men, feel more responsible for and stress from the infertility problem (Abbey et al., 1991), and experience more stress regarding childlessness (Brand, 1989). Prolonged stress depletes the individual of internal resources and requires more diverse and externally focused coping strategies for positive adaptation. For the purposes of this study, impact of infertility was defined as any cognitive or behavioral consequence which taxed the resources of the individual. I 3 BEE !' E : . 5! l . Coping skills are learned processes and aid the individual to adapt to stressors. Coping encompasses all coping strategies used without regard to the final outcome. 6 Lazarus and Folkman (1984) describe two functions of coping; problem-focused coping which is managing the demands with the environment which is causing the distress, and emotion- focused coping which is described as regulating the emotional response to the demand. In effective coping, problem-focused and emotion-focused coping complement each other. 'Various coping strategies are used by the individual based upon the immediate need of problem-solving or emotion- focused coping, whichever need is greater. Effectiveness is determined by the individual based upon positive outcomes. Coping strategies are referred to by Jalowiec (1987) as actions taken to deal with stressors. Jalowiec (1987) identifies sixty individual coping strategies. These individual strategies comprise eight different coping styles. These styles are confrontive, evasive, optimistic, fatalistic, emotive, palliative, supportant, and self- reliant coping strategies. Confrontive coping styles refer to facing the problem and problem-solving. Evasive styles refer to avoidant or evasive activities used to cope with a stressor. Optimistic styles refer to positive thinking and outlook as well as positive comparisons. Conversely, fatalistic styles include pessimism, hopelessness, and feeling little control in coping with the stressor. Emotive styles include expressing and releasing emotions and ventilating feelings. Palliative styles include trying to control or reduce distress by using behaviors to make the person feel better. Supportive styles refer to the use of 7 personal, professional, and spiritual support systems. Self-reliant styles refer to dealing with the stressor by oneself rather than depending upon others. These eight coping styles as described by Jalowiec (1987) can be categorized to fit with Lazarus and Folkman's (1984) functions of coping. Confrontive, supportant, and self-reliant coping styles might fit into problem—focused coping. Evasive, optimistic, fatalistic, emotive, and palliative coping styles might best fit emotion-focused coping as described in the Lazarus and Folkman (1984). For the purpose of this study, type and effectiveness of coping strategies was defined as any cognitive or behavioral action categorized into confrontive, evasive, optimistic, fatalistic, emotive, palliative, supportant, or self-reliant used by the infertile woman to enable her to cope with her infertility and which we found to be useful. I I] E I E I°J°l Length of infertility is defined in the literature as number of IVF cycles, number of years of infertility, number of years of treatment, or simply as an implied length of time. Infertility is described as a crisis situation whereby the infertile person experiences stages of surprise, denial, anger, isolation, guilt, grief, and hopefully resolution in their attempt to cope with this life event (Menning, 1980). Berg and Wilson's (1991) study defines length of infertility as stages. Stage one represents the first year 8 which includes diagnosis and initial treatment. Stage two represents the second year which includes medical investigation and hope for success. Stage three represents year three and beyond and include advanced treatment. Beaurepaire et al. (1993) defines length of infertility by number of IVF cycles. Reading et al. (1989) as well as Laffont and Edelmann (1994) define length of infertility in number of years of treatment. . For the purposes of this study, length of infertility was defined as a process with specific phases. The Initial phase encompasses the initial shock reaction as a response to diagnosis, information seeking, and the impact resulting from diagnostic testing and preliminary treatment. The Intermediate phase encompasses the need for further information seeking regarding treatment options and prognoSis, focuses on communication skills, and identifies external resources. The Late phase encompasses prolonged .length of infertility and strategies to maintain the marital relationship, restore self-esteem, and bring about resolution with a positive outcome. Conceptual Model Roy's Theory of Adaptation provides a framework which can be adapted to incorporate the impact of infertility, type and effectiveness of coping strategies, and length of infertility (see Figure 1). The person is an adaptive system which interacts constantly with the changing environment thereby encountering stimuli or inputs. The ENVIRONMENT INPUTS Adaptation Process External stimuli Internal stimuli Length of Infertility f Cognator OUTPUTS Functioning ‘ Self-Concept IMPACT OF INFERTILITY Role Inter- Function Types of coping strategies Effectiveness of coping strategies Regulator Person Feedback Figure 1. Conceptual model of coping with infertility based on Roy's Theory of Adaptation. Adapted from Fithatrick, J.J. and Whall, A.L. (1989). 10 envirgnment encompasses all internal and external stimuli which affect the behavior and develOpment of persons and groups (Meleis, 1991). Utilizing Roy's Adaptation Theory, the length of infertility is classified as an input that the person, as an adaptive system, must process through self-appraisal of one's resources, beliefs, and well-being resulting in types of coping strategies and effectiveness of coping strategies. The length of infertility precipitates an adaptation process (self-appraisal) according to Roy's theory. The next step in the adaptation process is the processing of the impact of infertility through both the regulator and the cognator mechanisms which can present a physical and/or symbolic disruption in behavior and/or functioning which require coping (Meleis, 1991). The impact of infertility is directly effected by the length of infertility. As the impact of infertility is processed through the regulator which includes physiological functioning and perception of self concept, and the cognator mechanisms which includes alterations in role functioning and interdependence, it is channeled through the specific modes of adaptation (effectors). These modes share a common proponent: impact of infertility. The person's perception of the impact of infertility and the length of infertility determines the specific individual coping strategies. While impact may effect types and effectiveness of coping strategies, this study did not study those effects. The 11 direct relationship between length of infertility and impact are the focus of this study. Length of infertility directly determines the types of coping strategies used and the effectiveness of the coping strategies. Ineffective coping strategies demand the need for nursing to potentiate coping mechanisms (Meleis, 1991). Review of Literature In reviewing the overall body of literature on infertility, there are five studies (Abbey et al., 1991; Halman et al., 1993; Laffont & Edelmann, 1994; Phipps, 1993; Stanton, 1992) that explore the impact of infertility. Seven studies (Davis & Dearman, 1991; DeHaan, 1995; Edelmann, Connolly, & Bartlett, 1994; Hynes et al., 1992; Litt et al., 1992; Morrow, Thoreson, & Penney, 1994; Prattke & Gass-Sternas, 1992) examine coping strategies and effectiveness. Five studies (Beaurepaire et al., 1993; Berg 8 Wilson, 1991; Laffont & Edelmann, 1994; Reading et al., 1989; Wilson, 1979) explore impact associated with length of infertility. For most of these studies, the length of infertility is defined, but the identified coping strategies and/or effectiveness of the strategies are not directly related to the specific length of infertility. I l E I E !.].l Women's perceptions of the impact of infertility (Abbey et al., 1991; Halman et al., 1993; Hynes et al., 1992; Laffont & Edelmann, 1994; Litt et al., 1992; Stanton, 1992) is clearly described in the literature. Abbey et al. (1991) 12 interviewed 275 couples, 170 with primary infertility, in early stages of treatment where the length of infertility averaged 34 months (IVF and gamete intrafollopian transfer (GIFT) couples were excluded). Results emphasized the greater impact upon women. The study concluded that wives reported more personal, social, and sexual stress, and placed greater emphasis upon having children than their husbands. Consistent with these findings are Prattke and Cass-Sternas (1992) study results of artificial insemination donor (AID) participants. Overall, women reported higher impact associated with aid. Litt et al. (1992) concluded that women who showed escape as a coping mechanism following an unsuccessful IVF cycle were more likely to have used ineffective coping. They also reported impact as feeling a loss of control in their lives resulting from infertility. More recently, Halman et al. (1993) completed a data analysis of a previous study in 1988 of 161 infertile couples who were interviewed to investigate the source of their infertility problem, importance of children, stress of infertility treatment, number and acceptance of tests and treatments received, length of time expected to conceive, and ideal number of children desired. Inclusion criteria were having been seen by an infertility specialist, self- perception of infertility, and not having participated in IVF. Results were similar to those of Abbey et al. (1991) in that women's impact of infertility resulted in a higher level of stress and women held a greater importance to 13 having children. Additionally, Hynes et al. (1992) showed impact of infertility in women undergoing IVF included greater depression and lower self-esteem four to six weeks following an IVF procedure, and lower self-confidence overall. The impact of infertility was also investigated by Phipps' (1993) qualitative phenomenological study of eight couples which identified impact of infertility and specific coping strategies but did not define length of infertility or the effectiveness of each coping strategy. The inclusion criteria was not stated, although those who participated in IVF or support groups were excluded. Similar to Abbey et al. (1991) and Halman et al. (1993) where women experienced higher stress levels, women reported an impact of over- whelming struggle of loss, emptiness, anger, sorrow, isolation, and loss of control over their bodies. Laffont and Edelmann's (1994) study of 117 women and 101 men who had undergone at least one IVF treatment showed consistent results of impact of infertility with those of Abbey at al. (1991), Phipps (1993), and Halman et al. (1993) of increased disruption, stress, and alteration in thought processes throughout the IVF treatment cycle. These studies identify the impact of infertility on women which range from broad, such as personal, social, and sexual stress (Abbey et al., 1991; Prattke & Gass-Sternas, 1992), higher stress levels in general (Halman et al., 1993; Hynes et al., 1992), increased disruption, stress, altered 14 thought processes, to more specific impact as described by Phipps (1993) and Litt et al. (1992) such as struggle of loss, emptiness, anger, sorrow, and loss of control. Laffont and Edelmann (1994) discuss a mean length of infertility with a general impact. : . 5! l . 1 EEE l' Further research focuses on coping and coping strategies, most of which are in responses to (IVF) or donor artificial insemination (DAI). Multiple authors have identified coping strategies (Davis 8 Dearman, 1991; DeHaan, 1995; Edelmann, Connolly, 8 Bartlett, 1994; and Prattke 8 Gass-Sternas, 1992). Only a few (DeHaan, 1995; Edelmann, Connolly, 8 Bartlett, 1994; Litt et al., 1992; Prattke 8 Gass-Sternas, 1992) identified length of infertility, but not in relationship to types of coping strategies. DeHaan (1995) studied effectiveness of coping strategies but did not study the relationship between either types of coping strategies or length of infertility. Type_gf_5;rategy. Davis and Dearman (1991) conducted a qualitative research study which investigated coping strategies of infertile women. Six consistent coping strategies were used during this challenging process. These types of coping strategies.included distancing self from infertility reminders, regaining control, being the best, finding hidden meaning, acknowledging feelings, and sharing with other. Effectiveness of strategies were not studied. Similarly, Edelmann, Connolly, and Bartlett (1994) report 15 that women experienced more depression and engaged in more problem and emotion-focused coping. Women use distraction, direct action, catharsis, social support, and religion with a higher frequency than men (Edelmann et al., 1994). Women identified cognitive coping strategies through gaining information, seeking support, reading, verbalizing, and focusing on the positives of not being pregnant (Phipps, 1993). In Morrow, Thoreson, and Penney's (1995) study of 215 participants (125 being women) which focused on predictors of psychological distress (impact), gender specific coping strategies were identified. Participants had received medical treatment for infertility a mean length of 3.12 years (SD=2.61 years). There was no breakdown of length of infertility. Women used more self-blame and avoidance, informational and emotional support seeking, and cognitive restructuring coping strategies. Effectiveness of these coping strategies was not measured. In the Litt et al. (1992) study of women and unsuccessful IVF cycles, results show that women used more escape-avoidance, problem-solving, and confrontive coping strategies. Escape avoidance is a negative coping strategy most often association with depression, anger, mood disturbance, confusion, and tension- anxiety. The range of infertility was one to thirteen years with a breakdown of 25% of women having completed 0-6 AID cycles, nine of the women having completed 7-12 cycles and six had completed 12 cycles or more. 16 DeHaan (1995) investigated the impact of infertility, coping strategies used, and the effectiveness of coping strategies used by infertile women. The sample was comprised of 44 nulliparous women who had received at least one Metrodin or Pergonal treatment cycle. Length of infertility ranged from 1-15 years with a mean of 4.6 years. Optimistic and confrontive coping styles were most frequently used. The strategies most often used were geared towards optimism by hoping that things would improve and infertility would resolve. These coping strategies were not related to the length of infertility. Infertile women attempted to gain information and education, and tried to keep busy and maintain a normal lifestyle despite the disruption caused by their infertility. Many different types of coping strategies are identified in the literature: distancing self, regaining control, being the best, finding hidden meaning, acknowledging feelings, and sharing with others (Davis 8 Dearman, 1991). Distraction, direct action, catharsis, social support, and religion are identified by Edelmann et al. (1994). Seeking support, reading, verbalizing, and focusing on positives are identified by Phipps (1993). Self-blame, avoidance, information and emotional support seeking are identified by Morrow et al. (1995). Optimism, gaining information, education, keeping busy, and maintaining a normal lifestyle are discussed by DeHaan (1995). 17 Effectiyeness_of_senins_5trategies- In the one study which captures effectiveness (DeHaan, 1995), the most effective coping strategy reported by infertile women was sharing their experiences with other infertile women. Also effective was gaining information about their problem, maintaining a sense of humor, and sharing infertility experiences with family and friends (DeHaan, 1995). Effective coping strategies include sharing experiences, gaining information, maintaining sense of humor, and sharing infertility experiences with family and friends. Ineffective coping strategies include escape avoidance behaviors which are associated with depression, anger, mood disturbance, confusion, and tension anxiety. I I] E I E l']'! i I I In additional studies of the relationship between psychological impact and the length of infertility, the definitions of length of infertility are inconsistent. Length of infertility has been defied as either number of Pergonal/IVF cycles or as number of years of infertility or treatment. Reading et al. (1989) conducted a study involving 37 women undergoing IVF and/or endometrial transfer (ET) during the beginning of the cycle, at day eight of treatment, and at the conclusion of treatment. A comparison group of ten women who were not pregnant or attempting to conceive were assessed at days 10-12 and days 26-28 in their menstrual cycle. The length of infertility ranged from 0.8 to 4 years, and the length of treatment was 18 0 to 10 years (M=3-3 years). Results of impact of infertility indicated that subjective distress, depression, anger, fatigue, and confusion increased during the IVF cycle. With subsequent IVF cycles, tension vigor, and fatigue were higher than the initial IVF cycle. Generally, distress levels rose with length of infertility although these women who perceived control over their treatment reported less distress. Laffont and Edelmann's (1994) study reported a mean of 3.4 years ($D=3.0) of infertility treatment prior to an IVF cycle with 79% having two to nine IVF attempts. Results of impact were that women showed higher levels of stress throughout all phases of the IVF cycle than men except during replacement of embryos. As Reading et a1. (1989) and Beaurepaire et al. (1993) studies indicate, impact intensified as length of infertility increased, Berg and Wilson's (1991) study provides specific areas of impact in relation to defined lengths of infertility. Stages are defined as year 1 or Stage 1 which represents diagnosis and initial treatment, year 2 or Stage 2 which represents some medical investigation and offers hope of success, and year 3 and beyond or Stage 3 which represents advanced investigational procedures with guarded success. Inclusion criteria was a twelve month period of attempting to conceive, receiving medical treatment for infertility, no children living in the 19 home, and participation of spouses. Length of infertility ranged from one month to ten years. The relationship of impact to length of infertility are as follows. Psychological strain was borderline for Stage 1, normative for Stage 2, and symptomatic in Stage 3. Depressive symptoms followed suit with moderate elevations in Stage 1, normal in Stage 2, and markedly elevated in Stage 3. Also, Stage 3 participants showed higher levels of depression, anxiety, and hostility. Interpersonal sensitivity was moderately elevated in Stages 1 and 3. Similar to Stage 3 participants, Beaurepaire et al.'s (1993) study of new and repeat cycle patients undergoing IVF/ET where length of infertility was measured by the number of IVF/ET cycles indicated that anxiety, depression, neuroticism, guilt, and control were higher in repeat cycle women than in inductee women. Overall, women showed higher levels of anxiety, external locus of control, dependency, and guilt than men. The most significant finding was that repeat cycle women showed higher levels of depression than inductee women. Specific impact was identified by Wilson (1979) showing a sequence of emotional changes occurring during a progressive length of infertility. The first response was disbelief and denial to the diagnosis of infertility. The second response was depression, anger, and altered self- image where the patient stated feelings of embarrassment, and inadequacy which resulted in self-doubt and altered 20 self—image. The third response was optimism which enabled the patient to seek treatment and share experiences with others. The fourth response was desperation where the patient often bargains with the physician for unconventional types of treatment therapies. The fifth response was depression. This occurred after unsuccessful treatment or infertility was absolute. Similar to Stage 3 in Berg and Wilson's (1991) study, the final response was acceptance which results in acceptance of childlessness. In this study, stages of impact are implied without identification of a defined length of infertility. These studies address the relationship between the impact of infertility and the length of infertility. However, as is the case in the Reading et al. (1989) and Beaurepaire et al. (1993) studies, the impact was not correlated to a specific length of infertility but rather to a general mean length of either number of years or IVF cycles. Differentiation of impact at specific lengths of infertility is difficult. Impact seems to increase in relationship to a mean length of infertility. Berg and Wilson (1991) do specifically correlate impact with defined stages of length of infertility. Wilson (1979) identifies an implied progression of impact over an unidentified length of infertility. Summary The literature addresses many of the emotional efforts resulting from the infertility experience. If these 21 emotional responses are equated to impact, then the literature shows many similarities. Length of infertility is not consistently defined in the literature. Some studies use number of IVF or Pergonal cycles, while other studies use number of years. Other than Berg and Wilson (1991), specific durations of length of infertility are not defined. While there is literature that addresses the impact of infertility, coping strategies, and effectiveness of these strategies used by infertile women, there is little research which investigates the relationships between the impact of infertility or the specific coping strategies used and the specific length of infertility. Methods for obtaining data were interviews or questionnaires which may have inherent issues such as interviewer bias or interpretation difficulties with terminology. Instruments show acceptable reliability. Sample sizes ranged from 16 to 275 with most over 100 resulting in acceptable generalizability. The intent of this study was to investigate these relationships and begin to fill the gaps in the body of literature regarding types and effectiveness of coping strategies and length of infertility. Methods Design This study was a non-experimental descriptive secondary analysis of data from DeHaan's (1995) primary study of infertile women. DeHaan (1995) investigated the perceived impact of infertility on infertile women, identification of 22 coping strategies infertile women used, and which coping strategies women perceived to be most effective. Sample The sample for this secondary analysis included the 44 infertile women from the primary study who obtained medical treatment at a University based Reproductive Endocrinology practice in the Midwest. The women comprised a convenience sample who self-referred for the primary study in a phased enrollment from July through September of 1994. Inclusion criteria included the ability to read and understand English and at least one unsuccessful cycle with Metrodin or Pergonal. Instruments The Infertility Questionnaire (IFQ) (Bernstein, Potts, 8 Mattox, 1985) is a 21 item, self report questionnaire which uses a five-point Likert scale from (1) errengly disagree to (5) errengly_egree to measure the impact of infertility in three areas: self-esteem, guilt and blame, and sexuality (see Appendix A). Bernstein et al. (1988) reported test-retest reliability to be 0.92. DeHaan (1995) reported Cronbach's alpha of 0.83 for the self-esteem sub scale, 0.72 for blame and guilt sub scale, and 0.79 for sexuality sub scale and a total test alpha of 0.88 The Jaloweic Coping Scale (JCS) was used to measure the types and effectiveness of coping strategies used by infertile women (see Appendix B). The 60 item, self report questionnaire uses a 4-point Likert scale for (0) neyer_need 23 to (3) eflenJeed in response to the question “how often you used each coping method?,;and (0) ner_nelpfn1 to (3) helpful in response to the question “how helpful was it". This questionnaire is a non-specific measurement of stressors which necessitates the user and/or researcher to indicate the stressor. DeHaan (1995) labeled the stressor as “infertility” for the purposes of the primary study. Validity of coping strategies was established by a research panel examination. Research panel agreement was as follows; supportant, 94%, confrontive, 86%, evasive, 85%, palliative, 76%, optimistic, 72%, fatalistic, 67%, self reliant, 66%, emotive, 54%. Reliability was computed by Cronbach alpha. Total use alpha was .86 and total effectiveness alpha was .90 indicating acceptable reliability. : I' J E E' °!' Impeet_ef_lnferriliry. The perceived impact of infertility in women was measured by the IFQ (Bernstein et al., 1985) (see Appendix A). This 21-item questionnaire measures the effect of infertility on self-esteem (questions 1-8), blame and guilt (questions 9-13), and sexuality (questions 14—21). Total score indicates the overall impact. Bernstein et al. (1985) indicate mean scores for low distress (1 to 3) and mild to moderate distress (3.1 to 4). Scores for all sections were totaled and divided by 21 for a mean score (DeHaan, 1995). W. Types and effectiveness of coping strategies were measured by the 24 JCS (see Appendix B). Individual coping strategies scored as “most used” and “very helpful” were identified for each category of length of infertility. Types of coping strategies were grouped into eight styles according to the JCS: confrontive, evasive, optimistic, fatalistic, emotive, palliative, supportant, and self-reliant (see Table 1). Use and effectiveness mean scores were calculated for each of the eight coping styles. High scores indicate high use and effectiveness, while low scores indicate low use and effectiveness. Length_ef_lnferriliry. Length of infertility was grouped into three specific time categories. Berg and Wilson (1991) suggest that the first year represents the period of diagnosis and initial treatment, the second year represents medical investigation and hope for success, and the third year and beyond to include advanced treatment. Due to the secondary study data which included a range of infertility from 1 to 15 years, the time stages needed to be extended to incorporate Berg and Wilson's (1991) concepts of stages. For the purpose of this study, Initial phase included years 0 through 2, Intermediate phase included years 3 through 5, and Late phase included years 6 through 15. Years of infertility and number of treatment cycles were collected by self-report on the demographics questionnaire in the primary study (see Appendix C). Table 1. EHI:.EI] H ].:.E] 25 1. Confrontive Coping Styles 4. 13. 16. 25. 27. 29. 33. 38. 43. 45. Thought out different ways to handle the situation. Tried to look at the problem objectively and see all sides. - Tried to keep the situation under control. Tried to change the situation. . Tried to find out more about the problem. Tried to handle things one step at a time. Tried to work out a compromise. Set up a plan of action. Practiced in your mind what had to be done. Learned something new in order to deal with problem. Evasive Coping Styles 7. 10. 14. 18. 20. 21. 28. 35. 40. 48. 55. 56. 58. Tried to get away from the problem for a while. Tried to put the problem out of your mind and think of something else. Daydreamed about a better life. Tried to get out of the situation. Told yourself that the problem was someone else's fault. Waited to see what would happen. Slept more than usual. Let time take care of the problem. Put off facing up to the problem. Tried to ignore or avoid the problem. Told yourself that this problem was really not that important. Avoided being with people. Wished that the problem would go away. Optimistic Coping Styles 2. 5. 30. 32. 39. 47. 49. 50. S4. Hoped that things would get better. Told yourself that things could be much worse. Tried to keep your life as normal as possible. Told yourself not to worry because everything would probably work out fine. ' Tried to keep a sense of humor. Thought about the good things in your life. Compared yourself with other people who were in the same situation. Tried to think positively. Tried to see the good side of the situation. 26 TABLE 1 (cont.) 4. Fatalistic Coping Styles 9. 12. 23. 60. Expected the worst that could happen. Accepted the situation because very little could be done. Resigned yourself to the situation because things looked hopeless. Told yourself that you were just having some bad luck. Emotive Coping Style 1. 8. 24. 46. 51. Worried about the problem. God mad and let off steam. Took out your tensions on someone else. Did something impulsive or risky that you would not usually do. Blamed yourself for getting into such a situation. Palliative Coping Style 3. 6. 26. 34. 44. 53. Ate or smoked more than usual. Exercised or did some physical activity. Used relaxation techniques. Took a drink to make yourself feel better. Tried to keep busy. Took medications to reduce tension. Supportant Coping Styles 11. 15. 17. 42. 59. Talked the problem over with family or friends. Talked the problem over with a professional person (such as a doctor, nurse, minister, teacher, counselor) Prayed or put your trust in God. Talked the problem over with people who had been in a similar situation. Depended on others to help you out. Self-reliant Coping Styles 19. 22. 31. 37. 41. 52. 57. Kept your feelings to yourself. Wanted to be alone to think things out. Thought about how you had handled other problems in the past. Told yourself that you could handle anything no matter how hard. Tried to keep your feelings under control. Preferred to work things out yourself. Tried to improve yourself in some way so you could handle the situation better. 27 mm The relationship between the dependent variable length of infertility and the independent variables of the impact of infertility, types of coping strategies used, and the effectiveness of coping strategies were analyzed. Descriptive statistics such as frequency, means, and standard deviations were calculated for all variables. Specifically, for research question number one which explored the association of length of infertility (dependent variable) to the perceived impact of infertility (independent variable) ANOVA was used. For research questions two and three which explored the relationship between length of infertility (dependent variables) and types and effectiveness of coping strategies, rank order by frequency of “most often" and “very helpful” responses by each phase of length of infertility with a textual analysis of similarities and differences of the results was used. ANOVA was used for mean use and effectiveness scores by length of infertility groups for the eight coping styles. The significance level was set at .05 for all analyses. HumaLSnbjects DeHaan's (1995) primary study was approved by University Committee on Research Involving Human Subjects. Subjects anonymity was assured by the lack of subjects' names on questionnaires (see Appendix C) and no identifying links between questionnaires and mailing list. Implied consent was obtained through the return of completed 28 questionnaires. Approval of this study was obtained from the University Committee on Research Involving Human Subjects prior to data analysis (Appendix D). It was not possible to identify any subjects. Data were provided by code numbering. Assnmntinns For the purpose of this study, the following assumptions were made: 1. Respondents completed questionnaires honestly. 2. Data collection and entry were complete and accurate. Limitations Limitations of this study included limited generalizability of results to the general population due to the small sample size. Individual differences in coping styles, coping skills, ad available resources are unable to be differentiated. The limited cross-sectional nature of the study (all women had high school education with 41.5% being college educated, implied high socioeconomic level making affordability of specialty care possible) makes generalizability of study results applicable to this section of the population only. Long term individual effects of the infertility experience cannot be determined which might yield useful data regarding individual changes over time in coping methods. 29 Results Sammie Forty-three of the 44 women in the sample returned demographic data. These women ranged in age from 25 to 46 years (M:34.3), had a 1-15 year length of infertility history (M=4.6), were married 86% (n338), and were all nulliparous. Most of the women had additional education beyond high school with 39% receiving 13-17 years of school and 41.5% receiving 18-24 years of school. Metrodin or Pergonal cycles ranged from 1 to 11 (M=4.3) (DeHaan, 1995). I l E I E !.].l l I I] E I E !.].l The majority of women were in the Intermediate length group and all mean impact scores were indicative of low or mild distress (Table 2). No significant differences were found between total impact scores and length of infertility (£3.17, p=.84). I E : . 5! l . i I I] E I E I'J'l nest Eregnenrly used strategies. Women in all phases of infertility used “hoped things would get better” with high frequency (see Table 3). All individual coping strategies in the Intermediate phase were identified in Initial phase. Similarities exist in the individual coping strategies utilized in Initial and Intermediate phases of infertility such as “tried to think positively”, “worried about the problemfl,“keep your life as normal as possible" and.‘tried to keep busy”. Similarities also exist in the individual coping strategies utilized in the Initial and 3O Table 2. InnastJLInfertility Length Mean SD n Initial 2.93 .29 Intermediate 2.98 .37 24 Late 3.04 .49 11 Table 3. Infertilitx Initial Phase n=8 Item Label Percent 30 Keep your life as normal as possible 87.5 58 Wishes that the problem would go away 75.0 1 Worried about the problem 62.5 2 Hoped things get better 62.5 25 Tried to change the situation 62.5 27 Tried to find out more about the problem 62.5 29 Tried to handle things one step at a time 62.5 44 Tried to keep busy 62.5 50 Tried to think positively 62.5 Intermediate Phase n=24 Item Label Percent 2 Hoped things get better 66.7 50 Tried to think positively 66.7 1 Worried about the problem 58.3 30 Keep your life as normal as possible 58.3 44 Tried to keep busy 58.3 Late Phase n=11 Item Label Percent 2 Hoped things get better 90.9 4 Thought out solutions 81.8 25 Tried to change the situation 72.7 58 Wished that the problem would go away 72.7 27 Tried to find out more about the problem 63.6 31 Late phases of infertility such as ”tried to change the situation" and “tried to find out more about the problem”. Initial phase seems to encompass most of the coping strategies used in both the Intermediate and Late phase. In the Initial phase, women also used two strategies “tried to change the situation" and “tried to handle things one step at a time" which were not used by the other phases. Late phase was the only group to use:“thought out solutions”. While there is overlap between Initial and Intermediate and Initial and Late, there was much less similarity between Intermediate and Late phase infertility. Types_gf_£eping_fitylee. Of the eight coping styles defined by JCS, none showed a significant relationship with length of infertility indicating that while use of individual coping strategies can be identified, coping styles are not used with any frequency during each phase of infertility (see Table 4). ‘ ‘Q‘ o 09.0 .‘ -o- 0.00. -.e o o g '- Meet_£ffeeriye_§rreregiee. There was minimal overlap between length of infertility and effectiveness of individual coping strategies. Women in all phases reported ftalked with family and friends”las an effective strategy. Discussing infertility with someone who had been in a similar situation was effective for women in both the Initial ad Intermediate phases of infertility; “Tried to set a plan of action” was used by both Initial and Late. Faith in God and information seeking were unique to 32 mm. so. ~¢.~ Ams.vmv.a Amm.vsn.a Asm.vsm.a m>euosm mm. so.fl ~¢.~ Aem.vss.a tom.ven.a Ava.cev.a seesaw» oamm ms. Nn. ~¢.~ ion.vev.a Ivm.vmm.s tom.veH.H oflumwamume as. mm. ~8.~ Am¢.vnfi.m Amm.vmfl.m Aam.v¢o.~ oflomflsfludo mm. so. ~¢.~ Aem.cmm.a Amm.vme.fi Ase.vom.a m>sumfiaamm on. ¢~.H ~¢.~ Amv.vee.a Am¢.vm~.a Ame.vflm.a m>smm>m mm. as. ~¢.~ .em.vma.~ Ame.vmo.m Am¢.v~o.~ m>woconocoo am. we. me.~ .eo.vms.a tom.vme.a Aam.vse.a ucmunoddsm m u mu .awv a tame a tame a «one mumsomsnmucH Hmanwcu mnsum .4 manna 33 Intermediate and Late phase. The remaining strategies were unique to each phase of infertility: Initial” “keep your life as normal as possible" and “tried to distract yourself", Intermediate, “tried to keep a sense of humor” and “physical activity”, Late, “learned something new about problem”, “thought out solutions", “tried to change the situation”, and “tried to think positively” (see Table 5). EIi2Ctixensss_9£_flgning_5tyles. Overall mean effectiveness for all styles was low. Evasive, Fatalistic, Self reliant, and Emotive means are between “not helpful” and “slightly helpful". Supportant, Confrontive, Palliative, and Optimistic are between “slightly helpful“ to “fairly helpfulf. Of the eight coping styles only the Supportant coping style showed significant differences between groups by length of infertility. Post hoc test using Scheffe method showed that the difference between Intermediate phase and Late phase was significant which may have resulted from the low subject number in Late phase (see Table 6). Discussion Sample The women studied in this study had a mean age of 34.3, a mean length of infertility of 4.6 years with a 1-15 year range, and were nulliparous. Most of the women were educated beyond high school with 41.5% receiving 18-24 years of school. DeHaan's (1995) primary study included the same sample. In reviewing the literature, many of the study 34 Table 5. Infertility Initial Phase n=8 Item Label Percent 11 Talked with family and friends 37.7 30 Keep your life as normal as possible 37.7 36 Tried to distract yourself 37.7 38 Set up plan of action 37.7 42 Talked the problem over with someone who had been in a similar situation 37.7 Intermediate Phase n=24 Item Label Percent 42 Talked the problem over with someone who had been in a similar situation 50.0 27 Tried to find out more about the problem 41.7 39 Tried to keep a sese of humor 37.5 6 Physical activity 33.3 11 Talked with family and friends 33.3 17 Prayed or put trust in God 33.3 Late Phase n=11 Item Label Percent 45 Learned something new about problem 36.4 4 Thought out solutions 27.3 11 Talked with family and friends 27.3 17 Prayed or put trust in God 27.3 25 Tried to change the situation 27.3 27 Tried to fid out more about the problem 27.3 29 Tried to handle things one step at a time 27.3 38 Set up-a plan of action 27.3 50 Tried to think positively 27.3 35 em. on. m~.~ Amm.vms. Amm.vem. Ama.vme. m>fluoem so. «4. en.~ Ams.veo.a Amm.cmm.a Amm.vsa.a ucmfiamu “Hum 54. as. en.~ .Nm.vms. 26>.VHm. Afio.voe. onumfiamume mm. mm. He.~ Ame.vm~.a 164.com.a Aflm.vm~.a oanmflsaudo mm. em.H on.~ Awe.vam.a Amm.vao.fl A~6.Vnm.a m>HumflHHmm mm. om. mm.~ Aem.vms. 164.com. Am~.vms. m>smm>m «a. me. ae.~ .vm.vem.H Ame.vms.s Ase.vmm.s m>wuconocoo no. mm.m mn.~ Ans.vmm.a tom.vmo.~ Aos.vmm.a accuseddsm m w ud any a am; a 3.3 a mums mumwemsnmucH HaauficH masum NHHHHMHMHQH .6 «Hana 36 samples consisted of infertile couples. For those studies using infertile women, inclusion criteria was not always stated although most include those women undergoing IVF procedures. Demographics on age, educational level, previous children, or employment status were not specifically discussed for comparison. W The means for all phases of infertility indicate that women responded.5neutralf'to the questions asked in the IFQ. Since this questionnaire is designed to measure impact upon self-esteem, guilt/blame, and sexuality as a result of infertility, these women did not show significant impact in these areas. Bernstein et al. (1985) established scores of 1 to 3 to indicate low distress, while mean scores of 3.1 to 4 indicate mild to moderate distress. The mean scores across all lengths of infertility were similar indicating low distress. The impact of infertility remains stable throughout the length of infertility, with only a slight rise in Late phase. These results are not consistent with results from previous studies. Reading et al. (1989) found an increased distress level with length of infertility and progressive IVF cycles. Beaurepaire et al. (1993) also found impact to intensify as length of infertility increased. Berg and Wilson (1991) reported symptomatic strain, markedly elevated depressive symptoms, and higher 37 levels of anxiety and depression as length of infertility increased. Perhaps one explanation for the low distress scores might be the anticipation of these women to experience a delay in conception since the mean age of the women was 34.3, with a range of 25-46. If women anticipate a delay, they may be more accepting of the time delay in conception and of medical intervention. Maybe the delay indicates less importance of having children. Since this sample was comprised of educated women, these women may have known not to blame or feel guilty. Women with higher education levels may be better problem-solvers which can decrease the impact of infertility. Career goals may have attributed to life satisfaction, increased self esteem, or served as a distractor. Almost all of the women (n=38) were married which may decrease the impact of infertility. In addition, this sample was cross-sectional and not longitudinal; therefore, changes over time could not be determined. Women receiving care at this specific site may have had their issues addressed by their health care provider. Maybe questions were answered sufficiently and comprehensive information was provided. Perhaps issues related to self- esteem, guilt/blame, and sexuality were addressed by support persons in the site. Resources for these women may have been provided through support groups, written information, or through individual counseling. 38 I E : . 5! I . Mest_Eregnenrly_ueed_srretegies. During the Initial phase of infertility the diagnosis is made, initial treatment takes place, and usually hope is greatest for conception. It is not surprising that the two most “often used“ coping strategies are “keep your life as normal as possible” and “wishes that the problem would go away”. Wilson (1979) discusses the disbelief and denial that accompanies diagnosis of infertility. Certainly, the strategies identified here may be a response to diagnosis. Many women hope that the diagnosis is erroneous and that pregnancy will be spontaneous. Women also “worried about the problem?,“hoped things get betterfl.“tried to change the situationfl,“tried to find out more about the problemf, “tried to handle things one step at a time”, and “tried to keep busy”. This sample of women show problem-solving approaches with the strategies “tried to change the situation", “tried to find out more about the problem”, and “tried to handle things one step at a time". ‘These problem- solving approaches may be a result of their educational level or of individual coping characteristics. The coping strategies “worried about the problem” and “hoped things would get better” are a natural response to the initial impact of infertility. These coping strategies of information seeking (Morrow et al., 1995), keeping busy, and maintaining a normal lifestyle (DeHaan, 1995) are consistent with those found in the literature. 39 Women in the Intermediate phase of infertility indicated that they used some of the same coping strategies as were used in the Initial phase. Women in the Intermediate phase of infertility seem to be more accepting of the situation. They are no longer'“trying.to change the situation” or “wishes the problem would go away". This Intermediate phase often brings increased disruption in daily activities resulting from medication or treatment regimens, office appointments, or even surgical intervention. Optimism enables the person to seek treatment and share experiences with others (Wilson, 1979). Optimism is also identified as a coping strategy by both Phipps (1993) and DeHaan (1995). These coping strategies appear to be directed towards minimizing daily disruption, ensuring positive thinking, and staying focused on daily life. Women continue to “worry about the problem” as they struggle to achieve a pregnancy. Interestingly, women in the Late phase of infertility use strategies such as “tried to change the situation", “wished the problem would go away”, and.“tried to find out more about the problem" that were also used in the Initial phase of infertility. “Hoped things get better” was used in all phases of infertility. Unique to this Late phase was the strategy'“thought out solutions". ‘Women must decide about the use of experimental treatments, alternative parenting such as artificial donor or adoption, or whether to end treatment all together. Wilson (1979) discusses the 40 bargaining that occurs during later stages of infertility for unconventional treatment and the acceptance process of remaining childless. Women identify individual coping strategies used throughout the length of infertility, many of which remain the same through the entire experience. “Hoped things would get better"was used through all three phases indicating that these women experienced hope in all phases of length of infertility. “Thought out solutions”‘was used exclusively during the Late phase indicating the women's thoughts towards resolution. WW Mean scores for confrontive and optimistic indicate these styles were “sometimes used”, while the remainder indicate:“seldom usedf. None of the coping styles were “often used”. Initial phase means are somewhat lower than Intermediate and Late phase which could have resulted from the lower number of subjects in this group. Standard deviations are low indicating little variance from the mean score. While many individual coping strategies were identified asthoften usedf, coping styles were not different with length of infertility indicating that a specific coping style was not used during any of the phases of length of infertility. Rather a limited variety of individual coping strategies within the styles were used during all phase of infertility which could suggest that a specific style of coping is not used at any one time based upon the low level 41 of use. Perhaps some of the coping strategies used are not identified on the JCS suggesting that women may have used other types of coping strategies then those identified. BEE Ii E : . S! ! . Mest_Effeetiye_Stretegiee. During the Initial phase which encompasses the initial shock reaction, diagnosis, and impact resulting from diagnostic testing and preliminary treatment, support from family and friends and from those who can share personal experience can help to cope with the infertility diagnosis and treatment regimens. Family and friends can acknowledge feelings and instill hope. Sharing of experiences can help the women to prepare for further diagnostic procedures or treatment regimens. Strategies such as “keep your life as normal as possible", “tried to distract'yourself", and “set up a plan of action” allow the individual to problem solve, minimize disruption in daily life, and attempt to minimize self-absorption. Perhaps this sample had many social support systems and close, supportive family members that resulted in increased effectiveness of these strategies. These specific strategies may have shown a greater effectiveness for this sample group due to their higher educational level, career pursuits, problem-solving abilities, and strong family support. It is important to note that while some individual coping strategies were more effective than others, the overall frequency of “very helpful" Was low. 42 The Intermediate phase encompasses the need for further information seeking regarding treatment options and prognosis, focuses on communication skills, and identifies external resources. Women in the Intermediate phase of infertility shared two coping strategies perceived ast“very helpfulf‘with women in the Initial phase. These two ‘ strategies are “talked the problem over with someone who had been in' a similar situation” and “talked with family and friends”. 'These two strategies which are supportant behaviors, continue to be perceived as somewhat effective as duration of infertility lengthens. Again, this may be attributed to a strong spousal or family support system for this sample. Other perceived effective coping strategies include “tried to find out more about the problem", “tried to keep a sense of humor”, “physical activity", and “prayed or put trust in God?. These strategies perceived as effective were consistent with DeHaan's (1995) findings. Gaining information, maintaining a sense of humor, and sharing infertility experiences with family and friends were‘ perceived as effective coping strategies in her study. None of these coping strategies were identified as “most used" in the Initial phase. Information gathering about treatment regimens including IVF, additional medical interventions, or perhaps specialty services can help the women to prepare herself and determine a plan with appropriate problem solving techniques. The benefits of physical activity can help to alleviate mental and physical stress. Faith can 43 help to instill a sense of hope and strength while alleviating stress. Information gathering becomes more important as interventions become more complicated and experimental. The Late phase encompasses prolonged length of infertility and strategies to maintain the marital relationship, restore self-esteem, and bring about. resolution. During the Late phase of infertility, women identify nine coping strategies as “very helpful? although effectiveness was low. Specific to this phase are “thought out solutions" and “tried to change the situation”. Both of these strategies are:“very helpful? during the Late phase. “Talked with family and friends” and “prayed or put trust in Godficontinue to be useful in the Late phase as well as the Intermediate phase of infertility. “Set up a plan of action" was perceived as effective in both the Initial and Late phase of infertility. During the Initial phase of infertility, setting a plan of action refers to diagnostics and initial treatment regimes. During the Late phase of infertility, setting a plan of action may refer to more experimental treatment regimes, alternative parenting such as adoption, or abandonment of treatment. Again in the Late phase, women may need to determine a plan of action in terms of an end-point and a plan to bring resolution. The overall effectiveness of individual coping strategies is low indicating that none of the coping strategies are remarkably effective. Perhaps none of the 44 strategies showed effectiveness since the only acceptable outcome is conception, which these strategies could not provide. EEE l' E : . 5! 1 Evasive, fatalistic, and emotive coping styles indicate that women found them to be between “not helpful" to “slightly helpful“.' The remainder of the coping styles were found to be between “slightly helpful” to “fairly helpful". None of the coping styles were indicative of “very helpful“. Standard deviations are very low indicating little variance from the mean. Of the eight coping styles, only Supportant showed any significance. The mean score is lower in Late phase and significantly different from Intermediate phase. Supportant coping styles seems to be only “slightly helpful" during Late phase. Those supportant coping strategies viewed as “slightly helpful" to “fairly helpful” are perceived as less effective as duration of infertility increases. Perhaps women in Late phase infertility stop using coping strategies that show such low effectiveness. Went}: Findings from this study support the theoretical framework. Length of infertility is classified as the input. As length of infertility is processed through the cognator and regulator, the perception of impact occurs. The impact of infertility is low to mild distress over the entire length of infertility. Women in Initial and Intermediate phases of infertility experience the same 45 impact, while women in Late phase experience a slightly higher, but not significant, distress level. i The relationship between length of infertility (input) and types of coping strategies (output) is positive. There appears to be overlapping of types of coping strategies in the Initial and Intermediate phases. Those women experiencing Initial phase of infertility uSed two strategies significant to this phase of infertility» “tried to find out more about the problem” and “tried to think positively”. Women experiencing Late phase infertility shoed a significant relationship with the coping strategy “tried to change the situation” specific to this phase. Those women in the Initial and Intermediate phases of infertility chose similar coping strategies such as “worried about the problemfl,“hoped things get betterfi,“keep your life as normal as possibleflt“tried to keep busyfi,“tried to think positively” which were directed at minimizing disruption, maintaining hope, and problem-solving. The relationship between length of infertility (input) and effectiveness of coping strategies (output) is positive as well. Women in the Initial phase perceived.9keep you life as normal as possible”,“tried to distract yourself”, and.“set up a plan of actionT‘as effective coping strategies. Women in the Intermediate phase perceived “tried to find out more about the problemfi,“tried to keep a sense of humor”, “physical activity", and “prayed or put trust in Godfias effective coping strategies. During both 46 the Initial and Intermediate phases of infertility, women perceived.“talked with family and friends" as the most effective coping strategy. Women in the Late phase of infertility used mostly Supportant coping strategies. As the person experiences each phase of infertility, there is an adaptation process which determines the impact of infertility. In this particular study, the impact of infertility was the same for each phase of infertility. In the model length of infertility is directly related to the type of coping strategies used. While there was some overlap between each phase of infertility, there were individual coping strategies that were used only during a specific phase of infertility. Length of infertility also directly influenced the types of coping strategies perceived to be effective. While overall effectiveness was low, individual effective coping strategies were specific to each phase of infertility. Therefore, this study generally supports the direct relationship between length of infertility and impact of infertility, and length of infertility and types and effectiveness of coping strategies. Implications M . E' 3' The mean impact score across groups of length of infertility was low to mild with a slight increase in Late phase. No significant differences were found between total impact scores and length of infertility. Women in all 47 phases of infertility used “hoped things would get better” with high frequency. In the Initial phase, women used two strategies “tried to find out more about the problem” and “tried to think positively“. None of the coping styles were “often usedf. Overall effectiveness of individual strategies by length of infertility is low with generally low effectiveness ratings by style. Women in all phases reported “talked with family and friends” as an effective strategy. None of the coping styles are indicative of’“very helpful”. The impact of infertility, although low throughout all phases of infertility, has important implications for both women and health care professionals in the primary care and specialty areas. For women whose characteristics are similar to this sample, the Advanced Practice Nurse (APN) can assist the woman through acknoweldgement of the woman's existing coping strategies and resources and of the impact upon daily activities. The APN can also give reassurance that the impact throughout the entire length of infertility may remain low. For women who are seen in the primary care setting, health questionnaires should include an area which addresses infertility. For those women who are at risk for infertility or are experiencing infertility, open ended questions directed at how they are feeling about their infertility should be asked. Generalized assessment of support systems, spousal response, feelings related to 48 medical intervention, as well as emotional and physical health should be included during each visit. Both within the primary care setting and the specialty setting, assessment should include feelings related to self- esteem such as feelings about their bodies, perceived attractiveness, physical and emotional competency, and feelings of femininity. Further assessment of guilt or blame issues such as feelings about guilt for the infertility, feelings of blame from spouse, feelings of punishment, or blaming spouse for infertility. Additional assessment should include feelings regarding the women's perception of sexuality, sexual enjoyment, changes in purpose of sexual activity, and sexual desire of self and spouse. The APN should address issues relating to self- esteem, guilt or blame, and sexuality within the primary care setting at each visit in an effort to educate, provide support, and problem-solve to prevent an increaSe in impact in these areas. Within the primary care setting the APN might encourage positive self-talk, communication with spouse regarding feelings of self-esteem, and encouragement to recognize accomplishments in the work environment to enhance self- esteem. Open, honest communication with spouse regarding guilt or blame should be encouraged. The APN can assist with role modeling with family or social inquiries, instruct in effective communication techniques, provide counseling, and provide objective data regarding medical information to 49 alleviate guilt or blame. Open communication is also effective with issues surrounding sexuality. Since the impact of sexuality is low, counseling and problem solving can be provided by the APN. The APN can educate other staff members including nurses, physician, and ancillary persons regarding sensitivity with these women. General interventions such as meditation or including time in daily schedule for personal hobbies can be discussed within the primary care setting in an effort to decrease the impact of infertility. Most importantly, the APN can educate, role model, and provide information regarding communication techniques with significant others, health care professionals, and friends. Since disruption in daily schedules can occur as a result of frequent appointments or medication regimes such as Pergonal injections, women need to plan for this disruption. Discussing employment options to accommodate for these needs might prove helpful. Within the specialty care setting, scheduling appointments early or late in the work day can be beneficial. Women in the Initial phase of infertility, consistently maintained hope through thinking positively and educating themselves by trying to find out more about the problem of infertility. The APN in both the primary care and specialty care settings can encourage hopeful thinking by emphasizing the positive elements of the situation, while remaining objective and honest about risks and success rates. The APN 50 can play an active role in education by providing written information in the form of pamphlets for both clients and family members, providing current references on the topic, and providing information about other individuals who may offer a personal perspective. In recognizing the initial shock of diagnosis, denial reaction, and feelings of hopelessness in controlling the situation, the APN recognizes that women use worry, denial, and attempts to change the situation as coping strategies. These are normal reactions to a stressful event and the APN can provide support and encouragement during this phase, while remembering that the impact upon these women is low. During the Intermediate phase of infertility women continue to worry indicating the need for continued support by the APN in both the primary care and specialty settings One of the most powerful and effective methods to offer support is by listening and acknowledging the feelings of these women. APN's can encourage women to verbalize or ask questions as appropriate, by phone or by appointment. As with the Initial stage of infertility, women continued to maintain hope ad keep life as normal as possible. The APN can assist with scheduling to accommodate work schedules. Since women in the Late phase of infertility appear to be gaining control by attempting to change the situation and thinking about solutions, the APN can help foster problem- solving. The APN in the specialty setting might ask about future plan for infertility, any alternative plans for 51 parenting such as adoption, status of current resources, or thoughts about willingness to remain childless. The APN can continue to provide information to meet the women's efforts to find out more about the problem. Most importantly, the APN must promote hope--hope of resolution with or without conception. In both the primary care and specialty setting, the APN must remember that women in late phase infertility are at risk for depression and need to be followed closely. All of the eight coping styles were “seldom used" to “sometimes used" none were “often used”. With this knowledge, the APN recognizes that a limited variety of coping strategies seem to be used during all lengths of infertility. Offering a specific coping style would not meet the needs of the infertile women in any phase of infertility. Emphasis should be with the individual types of coping strategies as discussed previously. 2 While many coping strategies are utilized during the Initial phase of infertility, social support, normalcy in daily life, distraction, and developing a plan of action are perceived to be any more effective, although all show low effectiveness. Knowing that social support can be beneficial in all phases of infertility, the APN in both the primary care and specialty setting can educate and encourage women regarding the usefulness of sharing feelings with family and trusted friends, or talking with someone who has been in a similar situation. The APN in the primary care setting can initiate a support group which would include 52 both women and their support persons. Including family and friends in a support group may provide a more realistic picture of the types of coping strategies which are perceived as effective. Family members could identify topics that would increase their understanding of the infertility experience and offer suggestions for them to be more supportive to these women. Experts could be brought in to discuss topics of interest to increase understanding. Women need to be encouraged to set up a plan of action including accommodation of treatment regimes, how to deal with social inquiries, financial considerations, and any limits of the infertility treatment options. Knowing that keeping your life as normal as possible was identified as effective, but often difficult to do, the APN in the specialty setting can emphasize the effectiveness of keeping daily life as normal as possible while making allowances for treatment goals. Distraction can be effective in alleviating the distress. Making time for special events such as dinners out, weekend get-a-ways, or vacations can serve as distracters. In addition to talking the problem over with someone who had been in a similar situation, talking with family and friends, and educating oneself which are carried over from the Initial phase, keeping a sense of humor is perceived as somewhat effective. The APN in the specialty setting can encourage women to allow themselves to laugh or find humor in daily life or during infertility regimes. Knowing that 53 women identified prayer or trust in God, the APN in the primary setting might suggest that attending religious activities is perceived as a source of support. Inservices regarding the emotional needs of the infertile woman could be presented to interested clergy in the community by the APN. Allowing women to pray before inseminations or laparoscopy procedures is a supportive intervention. The APN might encourage physical activity to minimize distress such as group aerobics, softball teams, or other activities which give the women an opportunity to socialize without the infertility link. Running, walking, or yoga might be more appropriate for women who prefer quiet time. Women continue to perceive social support, trust in God, educating oneself, and positive thinking as effective. The APN in the specialty setting should focus on problem- solving techniques and goal setting behaviors for these women. Women need guidance and support in thinking out solutions and setting a plan of action for both further treatment regimes and infertility goals. The APN must fully support those that opt for investigational treatment in their efforts to conceive, and those who wish to end their quest. For those who are overwhelmed by treatment options, past failures, financial tolls, and emotional exhaustion, handling things one step at a time can prove effective. The APN can help the women to focus only on the next step instead of the whole picture, for example, focus on getting through the Pergonal injections, then focus on the surgical 54 procedure. Since overall effectiveness of coping strategies was low, the APN in the primary care setting needs to follow infertile women closely to identify difficulty in coping. Although overall effectiveness of coping styles are low, ranging from “slightly helpful” to “fairly helpful”, the APN in both the primary care and specialty setting might decide to focus on Supportant interventions for women during all phases of infertility recognizing that effectiveness is shown although low. While supportant coping styles are “fairly helpful” in Intermediate phase, they are closer to “slightly helpful” in Late phase. Supportant coping styles refer to using personal, professional, and spiritual support systems. Use of family or friends, health care professionals or ministers, putting trust in God, or talking with others who have been in a similar situation are strategies which can be suggested by the APN. For women in the late phase, the APN should first assess the effectiveness of support since trust was low and significantly different from the Intermediate phase. Overall implications include recognition of low impact of women with similar characteristics undergoing infertility treatment. Health care professionals need to provide support and information whenever contact occurs in the primary care setting or in specialty services. Health care professionals have a responsibility to keep abreast of the current research regarding infertility and coping. Both 55 undergraduate and graduate programs should include the topic for infertility in the curriculums. ImnlitatieannLEurtheLResearch There are many future options for research in the area of infertility. Further research should focus on replication of the primary study to determine if similar results occur. Larger sample sizes with more diversity in age, race, educational backgrounds, and religious . backgrounds. Samples should be taken from multiple clinical sites. Samples should include spouses, significant others in the case of lesbian couples, single women, and women who have had previous pregnancies or children to determine if impact changes or if types or effectiveness of coping strategies are different in response to differing support systems. Samples might be categoriZed by type of procedures or types of medication used. Use of different questionnaires designed to measure impact as well as use and effectiveness of coping strategies to determine if other impact is present in addition to self-esteem, guilt/blame, or sexuality. Perhaps different types of coping strategies are used or are more effective than those indicated on the JCS. Longitudinal studies would prove beneficial in determining the changes in the use of coping strategies and perceived effectiveness over time with differing support systems, treatments, and individual characteristics. For example, do women with previous children who experience 56 secondary infertility exhibit a different impact than women without children or previous pregnancies? Additional research should focus on coping related to various treatment regime such as Clomid only, Pergonal only, IVF, AID, or lack of treatment regime. Emphasis on further research should focus on effectiveness of coping strategies along the entire continuum of infertility since little is found in the literature. In conclusion, infertile women in this study experienced a low amount of distress over the entire length of infertility. Women often hoped things get better during all phases of infertility. Talking with family and friends was the common effective coping strategy throughout all phases of infertility. Supportant coping style showed significant with all phases of infertility with the lowest effectiveness in Late phase. The APN can significantly impact the coping process of infertile women through education and counseling during different phases of infertility. Importantly, all health care professionals must remember to acknowledge that each women is an individual with specific responses to distress, and with her own set of effective coping strategies given her unique set of circumstances. LI ST OF REFERENCES LIST OF REFERENCES Abbey, A., Andrews, F.M., 8 Halman, L.J. (1991). Gender's role in responses to infertility. ESXQthQg¥_Q£ Homen_Qnartsrl¥1_ii. 295-316- Balen, F., 8 Trimbos-Kemper, T. C. M. (1994). Factors influencing the well-being of long-term infertile couples. Jnurnal_nf_Bsxchnscmatic_Qbstetrical_cxnecolns¥i_ifi. 157- Beaurepaire, J., Jones, M., Theiring, P., Saunders, D., 8 Tennant, C. (1994). Psychosocial adjustment to infertility and its treatment: Male and female responses at different stages of IVF/ET treatment. Jenrnel_ef Reichosnmatic_Research1_38(3). 229- 240- Becker, G., 8 Nachtigall, R. D. (1994). Born to be a mother: The cultural construction of risk in infertility treatment in the U 8. Social_Science_Medicinei_32(4)I 507- 518. Berg, B. J., 8 Wilson, J. F. (1991). Psychological functioning across stages of treatment for infertility. Ionrnal_of_Behaxioral_Medicinei_14(1). 11- -25- Bernstein, J., Mattox, J. H., 8 Kellner, R. (1988). Psychological status of previously infertile couples after a successful Pregnancy lenrnal_nf_0bstetricall Gxnecolngical1_and_Neonatal_Nursin91_ll(6). 404- -408 Blenner, J. L. (1992). Stress and mediators: Patients' perceptions of infertility treatment. Nursingeaeeeerehr 51(3), 92- 97. Brand, J. J. (1989). The influence of sex difference on the acceptance of infertility lonrnal_nf_Renrndnctixe_and Infant_2sxcholcg¥1_l. 129- 131. Christianson, C. (1986). Support groups for infertile patients. Ionrnal_nf_Qbstetrica11_§¥necnlnsicali_and Hennatal_uursing1_15(4). 293-296- 57 58 Cook, R., Parsons, J., Mason, B., 8 Golombok, S. (1989). Emotional, marital and sexual functioning in patient embarking upon IVF and AID treatment for infertility 1cnrnal_cf_Benroductixe_and_Infant_Bs¥chnlns¥1 1, 87- —93. Cook, R. (1993). The relationship between sex role and emotional functioning in patients undergoing assisted conception. fixnaecnlog¥+_14. 31-40- Davis, S.C., 8 Dearman, K.N. (1991). Coping strategies of infertile women. Iournal_nf_Qbstetricali_§¥necolnsicali and_Neonatal_Nnrsing1_ZQ(3). 221-249- DeHaan, P. (1995). ' ° ' ' ° ' and_effeetiyeness. Unpublished manuscript, Michigan State University at East Lansing. Edelmann, R. J. Connolly, K. J., 8 Bartlett, H. (1994). Coping strategies and psychological adjustment of couples presenting for IVF. 13(4), 355- -364. Fitspatrick, J.J., 8 Whall, A.L. (1989). Connecticut: Appleton 8 Lange. Halman, J., Andrews, F. M. 8 Abbey, A. (1993). Gender differences and perception about childbearing among infertile couples. and_ueonatal_uursingi_23(7). 593-599- Hammer- -Burns, M. A. (1987). Infertility as boundary ambiguity: One theoretical perspective. Eamil¥_ErQCeasi_2§. 359- -372. Hynes, G.J., Callan, V.J., Terry, D.J., 8 Gallois, C. (1992). The psychological well-being of infertile women after a failed IVF attempt: The effects of coping. British Ionrnal_nf_Mental_£s¥cnclcg¥1_§5. 269-278- Jalowiec, A. (1988). Confirmatory factor analysis of the Jalowiec coping scale. In C. F. Waltz 8 O. L. Strickland (Eds ). Measurement_cf_nursing_outccmes (pp. 287 304) New York: NY: Springer Publishing Company, Inc. Laffront, I., 8 Edelmann, R. J. (1994). Psychological aspects of in-vitro fertilization: A gender Comparison. 0 Io. 0 ' .0 Otto. 0.0 ‘ ._ l‘ 0 0° , 85- '92. Lazarus, R.S., 8 Folkman, S. (1984). Stressi appraisa11_and_cnping- New York: Springer- 59 Litt, M. D., Tennen, H., Affleck, G., 8 Klock, S. (1992L Coping and cognitive factors in adaptation to in- vitro fertilization failure. lenrnal_ef_Beha¥iQral Medicine1_15(2), 171- -185. Mahlstedt, P.P. (1994). Psychological issues of infertility and assisted reproductive technology. Male Infertilitx1_21(3), 557-566. Meleis, A.I. (1991). ' ' - and_nrogress (2nd ed.). Philadelphia: J.B. Lippincott. Menning, B. E. (1980). The emotional needs of infertile compleS- Eertilit¥_and_aterilit¥1_34(4). 313- 319- Morrow, K., Thoreson, R. W., 8 Penney, L. L. (1995L Predictors of psychological distress among fertility clinic patients. 51(1), 163-167. Phipps, S. A. (1993). A phenomenological study of couples' infertility: Gender influence. Heiistis_flurse Practicei_1(2). 44- 56. Prattke, T. W., 8 Gass- -Sternas, K. A. (1992). AppraiSal, coping, and emotional health of infertile couples undergoing donor artificial insemination. GxnecQlQgical1_and_Neonatal_Nnrsing1_22(6). 516-527- Reading, A., Chang, L. C., 8 Kerin, J. F. (1989). Psychological state and coping styles across an IVF treatment cycle. Bsxchnlcg¥1_l., 95-103. Stanton, A. L. (1992). Downward comparison in fertile COUPleS- Basic_and_Annlied_Sccial_Es¥cholcg¥1_ll(4). 389- 403. Stewart, 5., 8 Glazer, G. (1986). Expectation and coping of women undergoing in-vitro fertilization. Maternal:Child2Nursing_Journall_15(2). 103- -116- Tarlatzis, I., Tarlatzis, B.C., Diakogiannis, I., Bontis, J., Lagos, S., Gavriilidou, D., 8 Mantalenakis, S. (1993). Psychosocial impacts of infertility on Greek counleS- Human_Benrcduction1_8(3). 396-401- APPENDIX A 6C) IFQ Instructions: Please circle the number closest to the reaction that most accurately expresses your current feelings. A“3V°’= 5tr°n817 Agree Neutral Disagree Strongly Agree. Disagree Circle: 5 4 3 2 1 l. I feel bad about my body because of our inability to have a child. 5 4 3 2 1 2. Since our infertility I feel I can do anything as well as I used to. S 4 3 2 1 3. I feel I am as attractive as before our infertility. S 4 3 2 l 4. I feel less masculine/feminine because of our inability to have a child. . s 4 3 z 1 5. Compared with others. I feel I am a worthwhile person. 5 4 3 2 l 6. Lately. I feel I am sexually attractive to my partner. 5 4 3 2 l 7. I feel I will be incomplete as a man/woman if we cannOt have a child. 5 4 3 2 l 8. Having an infertility problem makes me feel physically incompetent. s 4 3 2 1 9. I feel guilty about somehow causing our infertility. S 4 3 2 l 10. I wonder if our infertility problem is due to something I did in the past. 5 4 3 2 l 11. My spouse makes me feel guilty about our problem. 5 4 3 2 l 12. There are times when I blame my partner four our infertility. S 4 3 2 1 13. I feel I am being punished because of our infertility. S 4 3 2 1 l4. Lately. I feel I am able to respond to my spouse sexually. S 4 3 2 1 6]. (CONTINUED) Answer: Strongly Agree Neutral Disagree Strongly Agree Disagree Circle: 5 4 3 2 1 IS. I feel sex is a duty. not a pleasure. S 4 3 2 1 16. Since our infertility problem, I enjoy sexual relations with my spouse. 5 4 3 2 l 17. We have sexual relations for the purpose of trying to conceive. S 4 3 2 l 18. Sometimes I feel like a "sex machine" programmed to have sex during the fertile period. 5 4 3 2 l 19. Impaired fertility has helped our sexual relationship. 5 4 3 2 l 20. 'Our inability to have a child has increased my desire for sexual relations. S 4 3 2 l. 21. Our inability to have a child has decreased my desire for sexual relations. 5 4 3 2 l APPENDIX B 62 0 I977, l987 AM. Jalowiec. PhD, RN Study a JALOWIEC COPING SCALE This questionnaire is about how you cope with stress and tension. and what you do to handle stressful situations. In particular. I am interested in how you have coped with the stress of: This questionnaire lists many different ways of coping with stress. Some people use a lot of different coping methods: some people use only a few. You will be asked two questions about each different way of coping with stress: v Part A How often have you used that coping method to handle the stress listed above? For each coping method listed. circle one number in Part A to show how often you have used that method to cope with the stress listed above. The meaning of the numbers in Part A is as follows: 0 a. never used 1 - seldom used 2 - sometimes used 3 - often used Part B If you have used that coplng method, how helpful was It In dealing with that stress? For each coping method that you have used. circle.a number in Part B to show how helpful that method was in coping with the stress listed above. The meaning of the numbers in Part 8 is as follows: 0 u not helpful i a. slightly helpful 2 a fairly helpful 3 = very helpful If you did not use a particular coplng method, then do not circle any number in Part 8 for that coping method. 63 |2L Waited to see what would happen .— wanted to be alone to think things out 0 l 2 . Resigned yourself to the situation . because things looked hopeless Part A Part B How often have you used It you have used each coplng method? that coping methad' COPING METHODS how helpful was it? Never Seldom Sometimes Often Not Slightly Fairly v." Used Used Used Used Helpful Helpful Helpful Helpful 1. Worried about the problem 0 f 2 3 D t 2 3 2. Hoped that things would get better 0 t 2 3 0 . . l 2 3 3. Ate or smoked more than usual 0 l 2 3 0 f 2 3 4. Thought out different ways to handle the situation 0 l 2 3 O l ' 2 3 5. Told yourself that things could be on worse a l 2 3 0 l 2 3 6. Exercised or did some physical activity . D l 2 3 0 f 2 3 7. Tried to get away from the problem for a while 0 l 2 3 0 l 2 3 8. Got mad and let off steam 0 l 2 3 0 l 2 3 9. Expected the worst that could happen 0 l 2 3 0 l 2 3 to. ‘Tried to put the problem out of your mind and think of something else 0 t 2 3 0 l 2 3 ft. Talked the problem over with family or friends 0 t 2 3 O l 2 3 12. Accepted the situation because very little could be done 0 1 2 3 0 t 2 3 13. Tried to look at the problem obiectively and see all sides 0 l 2 3 0 l 2 3 t4. Daydreamed about a better life 0 t 2 3 l o i 2 3 is. Talked the problem over with a professional person (such as a doctor. nurse. minister. teacher. 0 t 2 3 0 l 2 3 counselor) ls. Tried to keep the situation under control 0 1 2 3 0 i 2 3 | 17. Prayed or put your trust in God 0 l 2 3 l D 1 2 I 3 I 18. Tried to get out of the situation 0 l 2 a | o l 2 3 I ‘ l9. Kept your feelings to yourself 0 l 2 3 I 0 l 2 3 20. Told yourself that the problem was someone else‘s fault D l 2 64 Part A . Pen 8 flow often have you used if you have used each coplng method? that coping method, COPING METHODS ‘ how helpful was it? Never Seldom Sometimes Often Not My Fifty Very Used Used Used Used Habit! Nobel Help“ Helpful 24. Took out your tensions on someone else 0 f 2 3 f 2 25. Tried to change the situation 0 t 2 3 t 2 a 26. Used relaxation techniques 0 f 2 3 t 27. Tried to find out more about the problem 0 f 2 3 f 3 28. Slept more than usual 0 f 2 3 f 3 29. Tried to handle things one step at a ' time D f 2 3 O l 2 3 30. Tried to keep your life as normal as possible and not let the problem 0 f 2 3 0 f 2 3 interfere 3i. Thought about how you had handled 7 other problems in the past 0 l 2 3 O i 2 3 32. Told yourself not to worry because everything would work out fine i 2 1 33. Tried to work out a compromise l 2 1 34. Took a drink to make yourself feel better i 2 l 35. Let time take care of the problem i 2 3 f 36. Tried to distract yourself by doing something that you enjoy 0 f 2 3 0 f 2 3 37. Tdfd yourself that you could handle ' anything no matter how hard 0 f 2 3 D t 2 3 38. Set up a plan of action 0 t 2 3 D t 2 3 39. Tried to keep a sense of humor 0 f 2 3 0 f 2 3 40. Put off facing up to the problem 0 l 2 3 D l 2 3 4f. Tried to keep your feelings under control 0 f 2 3 0 l 2 3 42. Talked the problem over with someone who had been in a similar 0 l 2 3 O i 2 3 situation 43. Practiced in your mind what had to be done 0 f 2 3 0 f 2 44. Tried to keep busy 0 l 2 3 f 45. Learned something new in order to deal with the problem 0 l 2 3 O l 2 3 46. Did something impulsive or risky that you would not usually do 0 1 2 3 o t 2 3 65 Part A Part a How often have you used if you have used each coping method? that coplng method, COPING METHODS how helpful was in NeverdeolISooletilneIOilen Not Sightly Filly Vuy Usedlieed tlsedllsedfiehftliielpitlllebfllflebu 47. Thought about the good things in your life 0 t 2 3 0 f 48. Tried to ignore or avoid the problem 0 t 2 3 0 l 49. Compared yourself with other peeple who were in the same 0 f 2 3 0 f 2 3 shuauon SO. Tried to think positively D f 2 3 O f 2 3 St. Blamed yourself for getting into - such a situation 0 t 2 3 D f 52. Preferred to work things out yourself 0 t 2 3 0 l 53. Took medications to reduce tension 0 f 2 3 0 t 54. Tried to see the good side of the situation 0 t 2 3 o f 2 3 55. Told yourself that this problem was really not that important 0 f 2 3 0 f 56. 'Avoided being with people 0 i 2 3 O f 57. Tried to improve yourself in some way so you could handle the D l 2 3 0 l 2 3 situation better 58. Wished that the problem would go away 0 l 2 3 0 l 59. Depended on others to help you out 0 l 2 3 0 i 2 3 60. Told yourself that you were just ‘ having some bad luck 0 f 2 3 0 f 2 3 if there are any other things you did to handle the stress mentioned at the beginning. that are not on this list, please write those coplng methods In the spaces below. Then circle how often you have used each coplng method. and how helpful each coplng method has been. 61. l 2 3 O l 2 3 62. l 2 3 0 l 2 3 63. l 2 3 0 l 2 3 “one“ 4'80 APPENDIX C 66 DEMOGRAPHICS How old were you on your last birthday? Race: l-white, Z-black, 3=hispanic, 4-oriental, S-American Indian, 6-other How many years of school have you completed? Occupation (job title): Marital Status: l-single, Zsmarried, 3=separated/divorced, 4-widowed How long have you been trying to achieve a pregnancy? How many Metrodin or Pergonal cycles haVe you tried including your current treatment course? 1, 2, 3, 4, S, 6, 7, 8, 9, 10, more than 10 APPENDIX D GRADUATE flflfififlll FAX: fill/4324i“ muse-seem mews-sir (Melba Maxim MW“ €Y7 MICHIGAN STATE UNIVERSITY February 23. 1993 r0: Rachel P. Schiffman A230 Life Sciences RE: IRBI: 98-069 TITLE: THE RELATIONSHIP BETWEEN IMPACT. COPING, STRATEGIES AND LENGTN OE INFERTILITY REVISION REQUESTED: N/A CRTEGORY' . l-E APPROVAL DATE: 02/17/90 The University cos-uttee on Research Involving Human Subjects‘lOCRIhS) review of this project is complete. I am pleased to advase that the rights and welfare of the human subjects appear to be adequately . pgotected and methods to obtain informed consent are ap ropriate. ‘bgrefore. the OCRINS approved this project and any rev sions listed VG. neuewnn: UCRIHS approval is valid for one calendar year. beginning with the approval date shown above. Investigators planning to continue a project be nd one year must use the green renswal form (enclosed with e original a roval letter or when a project is renewed) to seek gsdate certification. There is a maximum of four such expedit renewals ssible. Investigators wishi to continue a project beyond the time need to submit it again or complete revaew. REVISIONS: UCRIRS must review any changes in rocedures involving_human subjects, rior to initiation of t e change. If this is done at the time o renewal, please use the green renewal.form. ro revise an approved protocol at an 0 her time during the yoar send your written request to the. IRS Chair. requesting revised approval and referencing the progect's IRS h and title. Include in your request a description of the change and any revised ins ruments. consent forms or advertisements that are applicable. PROELflfS/ CHAN 638: Should either of the following arise during the course of the work. investi ators must noti UCRIHS promptly: 51) problems (unexpected e de effects, comp ainta. e c.)_involv1ng uman subjects or (2) changes in the research enVIronment or new information indicating greater risk to the human subsects than existed when the protocol was previously reviewed an approved. If we can be of any future help please do not hesitate to contact us at (517)355-2180 or sax (517ld i- 171. Sincerely. l. avid 8. “ti UCRIHS Chair DEH:bed ght.gPh.D. / cc: Patty Jo Hopkins "‘IIIIIIIIIIIIIIIIIII“