'35., ‘2. 5;":— n 5 ’ie . I lfljlllllyllzllflfllllfllljlflllljlllllfllulflll THESlS This is to certify that the thesis entitled DEVELOPMENT OF A SCALE TO MEASURE THE ATTITUDE TOWARD CITIZEN PARTICIPATION IN COMMUNITY MENTAL HEALTH CENTER BOARDS presented by i Edward A. Oxer \ l has been accepted towards fulfillment of the requirements for Ph.D. degree in Counseling kWh Major professor Date W \ 0-7639 OVERDUE FINES ARE 25¢ DER DAY PER ITEM Return to book drop to remove this checkout from your record. flfs 'JUL :2m8 2015 ~ I h] © Copyright by EDWARD A. OXER 1979 DEVELOPMENT OF A SCALE TO MEASURE THE ATTITUDE TOWARD CITIZEN PARTICIPATION IN COMMUNITY MENTAL HEALTH CENTER BOARDS BY Edward A. Oxer A DISSERTATION Submitted to Michigan State University in partial fulfillment of the requirements for the Degree of DOCTOR OF PHILOSOPHY Department of Counseling, Personnel Services and Educational Psychology 1979 ABSTRACT DEVELOPMENT OF A SCALE TO MEASURE THE ATTITUDE TOWARD CITIZEN PARTICIPATION IN COMMUNITY MENTAL HEALTH CENTER BOARDS BY Edward A. Oxer The concept of citizen participation has been a central theme in American democracy and politics. Com- munity institutions and agencies, as part of the fabric of American democracy, have been influenced significantly by the underlying philOSOphical base of community involve- ment and local control. Large State mental hospitals that were for many communities the exclusive providers of inpatient mental health services in the early 19503 with the impetus of a strengthened mental health policy at the State and Federal levels gave way to the "third revolution" in psychiatry; that of community mental health. Local communities were to be served by locally operated, community-based mental health services, but the problem of defining the community's boundaries and assuring suitable citizen input, representative of the community, was greater than anticipated by the planners. The contro- versy soon became polarized around citizen participation versus citizen control. Edward A. Oxer The purpose of this study was to develop an instru- ment to measure the attitude toward citizen participation in Community Mental Health Center boards. The importance of this study is evident for any community mental health center program that does not develop a suitable mechanism for insuring adequate community involvement, so as to relate itself to community needs, will soon be suffering from a lack of community support, often with financial and political consequences. A series of 80 statements was developed from an extensive review of the citizen participation in mental health literature. Seven factors or subscales were hypothesized and the 80 statements were scaled in the Likert format. Seven experts in the field rated the 80 items and predicted directionality of the items, as well as the factors into which the items fell. Items were reviewed for content validity and criterion groups were also suggested from an expanded list of groups concerned with citizen participation in community mental health. A total of 45 items and six factors received sufficient support from the experts to be included in a pilot of the scale. The 45-item scale was administered to a pilot group of 50 with a lS-item semantic differential scale and a five-item control over decision making scale included as criterion measures. The final stage of instru- ment development involved construct validation in which Edward A. Oxer several groups such as community mental health services board members, community mental health center staff and clients completed the scale in terms of their View of citizen participation. Strong correlations were expected between the cumu- lative scores for each group and the criterion measures, as well as certain of the demographic characteristics. Significant differences were expected among groups, which should indicate that the scale has the ability to dis- criminate between those in favor of a strong citizen role in CMHC decision-making and those who are not. A reasonably reliable 30-item scale was developed which has the ability to differentiate between groups with varying views of citizen participation. Several weak relationships were found between demographic characteris- tics and the scale which suggested that those who were older, more educated and at a higher income level support a strong citizen role in decision-making. Other data suggest that those in favor of citizen participation see community leaders and potential consumers rather than clients and mental health professionals as being able to play a strong role in CMHC decision making. Minorities and community mental health board members were in favor of a strong citizen role. Clients and parents of clients were found to be aligned with professionals in non-support of a strong role for citizens in CMHC decision making. To My Wife, Tina and My Sons, Adam and Jeremy ii ACKNOWLEDGMENTS This research as well as my doctoral studies would not have been possible without the enduring love and encouragement of my wife, Tina. Her constructive criticism and discussion of the ideas contained herein were invalu- able as an incentive toward eventually reaching my goal. To my two sons, Adam and Jeremy, I express my appreciation for their understanding and patience throughout the years of work involved in my graduate studies. To my parents, I wish to express my appreciation for emphasizing the importance of education and learning. The support and understanding of my wife's parents through- out the period of my doctoral studies was of great assistance. I wish to express my sincere appreciation to my dissertation chairman, Dr. James R. Engelkes, who cheer- fully accepted the responsibility for this portion of my doctoral studies and whose guidance and support was invaluable. I would also like to thank my program chair- man, Dr. John E. Jordan for his encouragement throughout the years of my doctoral work. In addition, I would like to express my gratitude to the other members of my committee as follows: iii Dr. Herbert M. Burks, for his careful review of the materials associated with the study; Dr. Norbert B. Enzer, who has been of assistance by serving on this committee as well as helping to find solutions to the day-to-day prob- lems of managing a community mental health center; and Dr. Lawrence A. Messe for his research expertise and friendly support. I would also like to thank the following friends and colleagues: Dr. Judith Taylor, whom I met while studying for my comprehensive examinations and who has provided much invaluable consultation on research, computer programming and data analysis; Dr. Romaldus Kriauciunas, for his review of the research at various stages of development. Dr. Duane Gibson, Chairman of the Ingham Community Mental Health Center Advisory Council for his guidance on matters pertaining to citizen participation. I wish to especially thank Thomas M. Ennis, Executive Director, and Dr. Gilbert DeRath, Clinical Director of the Community Mental Health Board of Clinton, Eaton, and Ingham Counties, Lansing, Michigan for provid- ing the sanction to complete this study. Lastly, the clients, staff, board members, and many-others too numerous to mention must be thanked for their interest in citizen participation and their willingness to "get involved." iv TABLE OF CONTENTS LIST OF TABLES . . . . . . . Chapter I. II. III. Iv. INTRODUCTION . . . . . . Introductory Statement . . Need for the Study . . . Statement of Purpose . . . Questions to be Addressed by Definition of Terms . . . Summary . . . . . . . THEORY AND SUPPORTIVE RESEARCH Introductory Statement . . History of Mental Health Care . . The Ideology of Citizen Participation Citizen Participation in CMHC' s . Attitude Measures of Citizen Participation . . . . Summary . . . . . . . DESIGN AND METHODOLOGY . . . Introductory Statement Procedure . . . . Sample Selection . Research Hypotheses Statistical Analysis Summary . . . . RESULTS . . . . . . . . Introductory Statement . . Results of Analyses . . . smary O I O O O Page vii \OCDO\®LOl—‘ |—‘ 11 ll 11 20 30 4O 45 47 47 47 61 68 71 72 74 74 74 89 Chapter Page V. DISCUSSION 0 O O O O O O O O O O 88 Introductory Statement . . . . . . 93 Results of the Instrument Development . 94 Results Related to Differences Between Criterion Groups on the Citizen Participation Scale (CPS) . . . . 95 Results Related to the Relationship Between Demographic Characteristics and the Citizen Participation Scale (CPS) . . . . . . . . . . . 99 Limitations of the Research . . . . 101 Implications for Future Research . . . 103 Conclusions . . . . . . . . . . 106 APPENDICES A. Mailing to Judges: Four Tasks for Initial Stages of Scale Development . . . . 109 B. Pilot: Instructions, 45-Item Scale, Semantic Differential, Control over Decision-Making Scale, and Demographic Items . O O O O I O O O O O O 124 C. Letter to Federally Funded CMHCs . . . 137 D. Mailed Questionnaire . . . . . . . 141 E. Followup Reminder Post Card . . . . . 147 F. Letters of Approval . . . . . . . 149 BIBLIOGRAPHY . . . . . . . . . . . . 152 vi Table 3.1 3.2 LIST OF TABLES Distribution of 80 Declarative Statements into Seven A Priori Factors as Predicted by Author 0 O O O O O O O O O 0 Distribution of Judges by Organizational Affiliation O O O O O I I O O 0 Two Levels of Agreement among Judges on the Seven A Priori Factors . . . . . . Comparison of the Number of Items in Each A Priori Factor as Predicted by Author, Agreed Upon by Judges, and Finally Included in Pilot . . . . . . . . Response Rate by Group Samples as of April 17, 1979 . . . . . . . . . Non-Respondents Rate of Return . . . . One-Way ANOVA--Citizen Participation Scale (CPS) Total Score by Non-respondents versus Respondents . . . . . . . . Reliability Analysis, Cronbach Alpha by Number of Scale Items . . . . . . . Means, Standard Deviations and Item-Total Correlation Coefficients for the Thirty Item Citizen Participation in CMHC Boards Scale (CPS) . . . . . . . . One-Way ANOVA--CPS Total Score by Income . One-Way ANOVA--CPS Total Score by Age . . One-Way ANOVA--CPS Total Score by Sex . . One-Way ANOVA--CPS Total Score by Education vii Page 50 52 57 57 64 65 66 68 69 76 77 79 80 Table Page One-Way ANOVA--CPS Total Score by Marital Status 0 O O O O O O O O O O O 81 One-Way ANOVA--CPS Total Score by Board Chairperson versus Board Members . . . 33 One-Way ANOVA--CPS Total Score by Elected Official versus Non-elected Officials who are Board Members . . . . . . . . 34 One-Way ANOVA--CPS Total Score by Professionals versus Non-professionals . 35 One-Way ANOVA--CPS Total Score Board Members versus Non-board Members . . . . . . 86 One-Way ANOVA--CPS Total Score by Consumers versus Non-consumers . . . . . . . 87 One-Way ANOVA--CPS Total Score by Race . . 88 One-Way ANOVA--CPS Total Score by Criterion Groups . . . . . . . . . . . . 90 t-Tests of Contrasts of Mean Scores for Criterion Groups on CPS . . . . . . 91 viii CHAPTER I INTRODUCTION Introductory Statement Government must be kept open. If we intend to rebuild confidence in the government process itself, policy must be shaped through the participation of Congress and the American people. Jimmy Carter (Community Services Administration, 1978) The concept of citizen participation has been central to American democracy and politics. Community institutions and agencies, as part of the fabric of American democracy, have been influenced significantly by the underlying philOSOphical base of community involve- ment and local control. Large state mental hospitals that were for many communities the exclusive providers of inpatient mental health services in the early 19508 gave way, with the impetus of a strengthened mental health policy at the federal and state levels, to the "third revolution" in psychiatry: community mental health. State governments that operated the mental hospitals responded to legisla- tive forces, as well as to citizen groups calling for a l substantial portion of the mental health budget to be used in operating and contracting for community services such as outpatient clinics, day treatment, halfway houses, 24- hour emergency services, inpatient services, and preven- tion programs. The Federal government's initial role in this was via the Community Mental Health Center's Act (PL 88-164 of 1963) which funded state planning grants to the designated state mental health authority. Service districts, or catchment areas, ranging in size from 75,000 to 200,000 population were called for as a way of locating services in close proximity to local "communities." But the problem of defining the local community's boundaries and assuring suitable citizen input, as well as its effec- tiveness, was greater than anticipated by the National Institute of Mental Health (NIMH) plannners. The contro- versy soon became polarized around citizen participation versus citizen control. Who are the true representatives of the residents of the community? How should the "community" be defined? Connery (1968) pointed out that the Federal insistence on a population limit for community mental health centers was unrealistic. "The guiding principle should not be size but that the governmental unit sponsoring it be a viable one in terms of an adequate tax base and leadership supply. The unit must have a present political reality" (Connery, 1968, p. 507). The NIMH Community Mental Health Center (CMHC) concept addressed the issue of community involvement without specific regard to the local political realities across the United States. The Federal Proqram of Community Mental Health Centers (CMHCs) is based on the premise that in order for a CMHC to be successful, it must be responsive to the viewpoints and problems of local communities. For this reason, the following mandate was included in the Community Mental Health Centers' Amend- ments of 1975, Public Law 94-63, Section 201(c)(1)(A): The governing body of a community mental health center shall: (i) be composed, when practicable, of individuals who reside in the center's catchment area and who, as a group, represent the residents of that area taking into consideration their employment, age, sex, and place of residence, and other demographic characteristics of the area, . . . (NIMH, 1978, p. v). Need for the Study While much has been written on the ideological mandate for citizen participation in all forms of social and community services, little information is found in the literature that quantitatively measures the outcomes. One is left with the feeling that inquiry into this issue in a more systematic way may be akin to heresy; but, nevertheless, the need is present to try to investigate methodically the effectiveness of citizen participation. The importance of evaluating the effectiveness of citizen participation is underscored by Hunt (1973b): . . . in order for citizen groups to function effectively over the long haul, it is important to evaluate their activity and their effect on the planning and delivery of health services. Without adequate evaluative research, it will be impossible to know whether the experiment has been a success or whether changes are necessary to produce a more positive outcome (p. 31). Any community mental health program that does not develop an effective mechanism for insuring adequate community involvement so as to relate itself to community needs will soon suffer from a lack of community support, often with financial or political consequences. Statement of Purpose The purpose of this study was to expand upon the research of Au Yeung (1973) and the Health Policy Advisory Center (Health PAC) of New York's study, "The Evaluation of Community Involvement in Community Mental Health Centers" (1972). In conjunction with this study, entitled Citizen Participation in a Community Mental Health Center, Au Yeung developed two scales, "Participants' Views of Citizen Participation in a CMHC" and "Participants' Per- ceived Influence on the CMHC," with 10 and five items, respectively. No reliability or validity data are reported for these scales. Further research in the area of refined measurement of the variables related to citizen participation is a logical next step and was the focus of this study. A case study approach was used by Health PAC in surveying citizen participation in six community mental health centers in various parts of the United States. This study, while complete as descriptive research, made no effort to measure any of the variables or the effective- ness of the process of citizen participation in CMHC boards. As noted above, this has been the case in the field of citizen participation, which is usually described in ideological terms with little quantifiable data to support the concept. Health PAC defines community involvement as participation in policy-making by direct service con- sumers, mental health professionals, and other community members, i.e., providers and non-providers of mental health services. Mechanisms of community involvement include boards or advisory groups, volunteers working in community mental health programs, employment of catchment area residents (mostly para-professionals in designated poverty areas), patient committees and advocates, and consultation and education services. The purposes of these mechanisms of community involvement are: 1. To educate and inform the community (direct service consumer group) about center services and how to use them. 2. To educate and inform center staff and administration about the perception of community needs, in particular mental health needs. 3. To engage the community as much as possible in the center's planning (operation) and evaluation. It was also suggested in this study that community involvement contributes to the general level of mental health in the community through citizen participation in the self-determination of this community institution. In summary, the purpose of this study was to develop an instrument to measure the variable: attitude toward citizen participation in CMHC boards. Questions to be Addressed by This Study The mechanism of community involvement that was of interest in this study was the CMHC board. Much con- troversy has revolved around the issue of the community mental health center's board and its role with respect to the program. This controversy gave rise to many research questions. Should a board be simply informed of decisions made by the staff after they are made or should the board have a policy-making role with substantial fiscal and programmatic authority? What is the impact of the level of participation on the effectiveness of the CMHC board as a mechanism of community involvement? What are the attitudes toward a particular model of decision-making or influence over the decision-making process? What is the role and function of citizen participation in community mental health? How should members be selected and by whom appointed? How should the nature of representation be determined? What is the need for citizen participation? What are the characteristics of effective citizen partici- pants? The independent variables of the Health PAC study were the activity levels of community involvement as reflected in the quantity and quality of participation. The quantity of participation includes such considerations as number of participants, frequency of meetings, and amount of time spent; the quality of involvement dealt with representativeness, depth of participation, and the accuracy with which the mental health needs of the com- munity are reflected. A second possible independent variable of interest is the attitude toward citizen par- ticipation. The Health PAC study (1972) indicated that the effectiveness of the CMHC Board may be seen in terms of increased communication and understanding between the center's staff and community members. It suggested that there was a concurrence on service mission and that there was a positive correlation between community perception of need and the center's staff judgment. Other matters raised in conjunction with assessing the effectiveness of mechanisms for community involvement included resolution of conflicts, accountability across the staff-community boundary, communication of expectations, definitive roles, and the general viability of the program in terms of community support. Definition of Terms A common understanding of the key terms used in this study is provided by the following definitions: 1. Community Mental Health Center (CMHC). In keeping with PL 94-63 of 1975, a Federally-funded CMHC consists of 12 services: inpatient, outpatient, day treatment, emergency service, consultation and education, transitional services, court screening, follow-up for state hospital patients, children's services, services for the elderly, and alcohol and drug abuse services. Each center serves a catchment area of 75,000 to 200,000 population and must have a governing/advisory board that is representative of the area served. 2. CMHC Board. The policy-making body of a community mental health center which must be composed of citizens who are representative of the catchment area. This group may be a governing or advisory board. The governing board provides the stronger form of citizen participation. 3. Consumer Board Members. Individuals who have actually used or have the potential to use the services of the community mental health center and can represent consumer interests. Also included are those who are members of the immediate family of the consumers. 4. Provider Board Members. Individuals who earn their living from the delivery of health care services including mental health services. Specific professions would include psychiatry, psychology, social work, and nursing. 5. Citizen Participation. A process whereby service users (actual and potential consumers), service providers, and at-large community representatives (com- munity leaders) are involved in the policy-making aspects of the CMHC. 6. Community Leaders. Board members who are key business, professional, and elected community leaders who regularly serve on community boards and are active in civic affairs, and represent the middle class and more affluent members of the community. 7. Community Control. A process whereby repre- sentatives of mostly low income and ethnic/racial minor- ities attain representation and eventually policy-making control over the CMHC. This has been achieved after much controversy that has often had an ultimately destructive effect on the program. Summary In order to achieve any of the evaluation tasks on the effectiveness of citizen participation in CMHC boards mentioned above, it was necessary to be able to measure and quantify the independent and dependent 10 variables of interest. The purpose of this study was to develop an instrument to measure the variable: attitude toward citizen participation in CMHC boards. Ultimately, it was expected that through the development of this scale, a means will be found to measure one of the major constructs in a field that abounds with ideological fervor but has little in the way of documentation and quantification. Through the develop- ment of this instrument, more information and knowledge will be acquired regarding the area of citizen participa- tion, a process which is far from adequately understood. The need to study this area was evident as a community mental health center that does not develop a suitable mechanism for insuring adequate community involvement and citizen participation, so as to be responsive to community needs, will soon be suffering from a lack of community support, often with financial and political consequences. CHAPTER II THEORY AND SUPPORTIVE RESEARCH Introductory Statement In accord with the purpose of this study, which is to develop an instrument to measure the attitude toward citizen participation in CMHC boards, four areas of relevant research literature were surveyed. These were the history of mental health care, the ideology of citizen participation, citizen participation in CMHC boards, and attitude measures of citizen participation. History of Mental Health Care A familiarity with the ideology associated with mental health and illness was important to understand the development of mental health care. However, before one could discuss community mental health, the most recent mental health ideology to come into focus on the American scene, it was necessary to trace briefly the history of American psychiatry over the last 200 years. A frame of reference was suggested for this by Golann and Eisdorfer (1972) who, in assessing the changes in the field, noted the universality of three related social-clinical processes: 11 12 1. Classification. Some acts or behavior patterns are distinguished from others and certain concepts may be grouped together under a single term such as neurosis. 2. Explanation. A belief system or theory is developed to account for the occurrence of certain acts of patterns of action. 3. Intervention or Regulation. A system of institutions, persons, or practices is built and sanctioned to cope with certain acts of behavior. For each phase of mental health ideology. there has existed a system of classification or preferred theory of causa- tion and a sanctioned form of response (Golann & Eisdorfer, 1972, p. 3). Two volumes (Zilboorg, 1941; Deutsch, 1949) surveyed in great detail the history of mental health care from the era of primative medical psychology through the period of the Greeks and Romans to colonial America. The following is a brief summary and review of the history which fits into the present system of mental health care. A central theme that runs through all modern mental health care is that of concern for the welfare of the individual and the preservation and enhancement of such institutions as the family, community, and society in general. Prior to the emergence of humanitarian care, the mentally ill or disordered were considered holy or possessed by demons. Many cultures invoked gods or demons to explain behavior, while care in the form of exorcism of the mentally ill was expected from a medicine man or religious figure of the culture. Various forms of exorcism have been described throughout history, ranging 13 in degree and severity, and based upon a theory of how the evil may have entered the body of the afflicted. Examples of this include such procedures as trepanation, or boring a hole in the skull of the possessed individual to allow evil spirits to leave and good spirits to enter, thereby reducing or replacing the cause of the mental symptoms (Freedman, Kaplan & Saddock, 1975, p. 10), and the burning of witches at the stake as the "ultimate" cure in 17th Century Salem, Massachusetts for the suffering of dis- ordered thought and behavior (Freedman, Kaplan and Saddock, 1975, p. 46). Less severe but equally dramatic were the reports of Shamanism, or the inspirational activities of the tribal medicine men. "Frequently, the patient's liberation from the evil spirit was expressed concretely through the explusion of an object such as a stone, insect or from the mouth of the Shaman" (Freedman, Kaplan & Saddock, 1975, p. 11). Vincenzo Chiarugi in Italy, William Tuke in England, Phillippe Pinel in France, and Benjamin Rush in America are generally credited with the curbing of harsh and objectionable practices with respect to the care of the mentally ill. Pinel is best known for his liberation of the mentally ill at Salpetriere in 1795. The work of these men led to the development of the concept of moral treatment in the early 18003. 14 Ruth B. Caplan (1969) discussed moral treatment and the concepts which provided its philosophical and scientific base. The essence of moral treatment was the belief that because of the great malleability of the brain surface, because of its susceptibility to environmental stimuli, pathological conditions could be erased or modified by corrective experience. Therefore, insanity, whether the result of direct or indirect injury or disease or of overwrought emotions or strained intel- lectual faculties, would be cured in almost every case (Caplan, R. B., 1969, p. 9). The mentally ill were, therefore, seen as sick rather than guilty of an act which was deserving of punishment. They were to be treated like those suffering from physical illnesses rather than locked in poorhouses or jails. Physicians who were involved in moral treatment were personally involved in the care of their patients in small institutions where caring, hOpeful attendants pro- vided kind and respectful treatment. Dorothea Dix became concerned that this type of treatment was not available to the majority of those who needed it but only to the mentally ill of the more affluent families. By petition- ing state legislatures throughout the United States, she is credited with the founding or enlarging of more than 30 state hospitals during the period of 1840 to 1880. It was this expansion of services, coupled with immigration in the latter part of the 18803 and the consequent increase of poor "foreigners" attempting to adjust to the American way of life, that caused increased numbers of 15 patients to be admitted to the state hospitals, thereby causing an overload upon available resources which, con- sequently, brought a decline in the quality of care which led to a prevalent custodial ideology. Grob (1966) indicated that other factors contributed to the decline of care in state institutions, such as the professionali- zation of psychiatry and the increased reliance upon psychiatry as a scientific discipline based on a somatic model of treatment. At the same time that psychiatrists were becoming more scientifically oriented by virtue of their identification with and training in medicine, they were having a harder time being associated with main- stream "acute care" medicine of the general hospital. The large state institution located in a rural environ- ment with minimal hospital facilities contributed to this. Mechanic (1969) concluded that the trend toward professionalization isolated psychiatrists from the more humanitarian and compassionate ideologies existing in the society and replaced these with a barren, alleged objec- tivity which offered little help or hope (Mechanic, 1969, p. 54). The emphasis on humanitarian care and its decline, often referred to as the first revolution in psychiatry (Goldenberg, 1973, p. 295), led to the second revolution, which directed attention to the inner psychological life of man emphasizing developmental stages and the role of the unconscious. Concerns in classification changed from categorization of symptoms to elaboration of mechanisms 16 of defense. Golann and Eisdorfer (1972) discussed prob- lems with the psychoanalytic approach: The variations on the psychoanalytic theme pro- liferated but all shared the difficulty that patients were those who could afford such treat- ment and had the verbal capacity and adaptability to deal with a variety of feelings and memories not usually at the level of awareness of the patient when he requests help; this, of course, leads to a variety of alternative styles of verbal interaction with patients but effective psychotherapy was not available to large numbers of individuals because of financial or logistical constraints, unfamiliarity of socially advantaged mental health professionals with practical living problems faced by disadvantaged clients and the impracticality for disadvantaged clients of a method requiring long periods of retrospective analysis (Golann & Eisdorfer, 1972, p. 6). Prior to World War II, 3000 psychiatrists prac- ticed in the United States. The outbreak of war brought about a concern for conducting an appropriate psychiatric medical screening of all those inducted into the military. A proposal from the profession of psychiatry to screen all inductees was implemented but failed in effectiveness due to the limitations in manpower. Large numbers of American males were rejected from military services for psychiatric reasons. This experience, as well as the experience of mental health professionals in the war zone, once again pointed to the need for stronger public mental health programs of prevention, as well as treatment. Following the war, concern for the mental health needs of the country was reflected in the high rejection rate of selective services, as well as the need to care 17 for those in the Veterans' Administration system who had been disabled in the war. This provided the impetus for Congress to passthe Mental Health Act of 1946 which led to the establishment of the National Institute of Mental Health (NIMH) in 1949. The intent of this program was to combine a public health approach with mental health. The NIMH budgets reflect the increased involvement of the Federal government in mental health from 1950 with a budget of less than $9,000,000 to $68,000,000 in 1960, $338,000,000 in 1967 (Mechanic, 1969, p. 57), and $503,000,000 in 1978. In 1955 the Mental Health Study Act authorized the Joint Commission on Mental Illness and Health to conduct an objective, thorough and nationwide analysis and evaluation of the human and economic problems of mental illness and of the resources, methods and practices currently utilized in diagnosing, treating and caring for and rehabilitation of the mentally ill, both within and outside insti- tutions as may lead to the development of compre- hensive and realistic recommendations for such better utilization of those resources (PL 84-182 as reproduced in Joint Commission on Mental Illness and Health, 1961, p. 303). In 1961 the Joint Commission published its report entitled Action for Mental Health, which called for l. A tripling of mental health expenditures in ten years. 2. A new and better recruitment and training prOgram for mental health professionals. 18 3. Expansion of treatment programs for acutely ill patients in all facilities, including community mental health centers, general hospitals and mental hospitals. 4. Establishment of one mental health center for every 50,000 persons in the population. 5. Conversion of large state hospitals to smaller regional intensive treatment centers with no more than 1,000 beds. 6. New programs for chronic patients such as aftercare and rehabilitation services (Mechanic, 1969, p. 60). The following year a cabinet-level committee reviewed the Joint Commission's recommendations and, on February 5, 1963, President Kennedy sent to Congress his message on Mental Illness and Mental Retardation. The President called for "governments at every level--Federal, State and Local, private foundations and individual citizens [to] face up to their responsibilities in this area" (Kennedy, 1963). A bold new approach was needed "to use Federal resources to stimulate State, Local and private action" (Kennedy, 1963). The President's message also cited the need for broadly conceived community mental health centers, rather than clinics, that would work toward the elimination of state hospitals. Federal pro- grams for the construction and staffing of community mental health centers, which were to include the five essential services of inpatient, outpatient, partial hospitalization, emergency services, and consultation and education, followed. The overall goal of the community 19 mental health centers program was the establishment of 2000 centers. As of April, 1978, the total number of centers funded was 649 and future growth was uncertain. The emphasis in the CMHC's upon early diagnosis and pre- vention, based upon understanding of social and community factors, has been referred to as the "third revolution" in mental health, or the community mental health movement. Gerald Caplan (1969) reflected on the history of American psychiatry and states, I now realize that traditional American psychiatry has been community and population-oriented from its beginning and that, with all its undeniable assets, the individual patient orientation of academic and psychoanalytic psychiatrists of the last twenty to thirty years has been to some extent a withdrawal to a professionally controlled haven from the difficulties of grappling with the demands made upon us by the society that sponsors our Operations. Community psychiatry is not merely a bright new idea developed by some of us in the 19603 as a reaction to our awareness of the shortcomings of the individual approach but is a return to an orientation that was our basic mandate from society when our profession was established and within the framework of which it has been developed (Caplan, G., 1969, p. 320). Caplan continued by discussing the importance of confrontation between psychiatrist and the public: If we organize or participate in programs that are administered or financed by public bodies, particularly state or local governments, we must be prepared to accept the political framework within which support is given (Caplan, G., 1969, p. 322). He outlined five principal purposes to be served by this interaction: 20 1. To communicate with legislators or others who distribute community resources . . . in order to persuade them to allot to us an appropriate share of such resources in competition with representatives of other groups and resources. 2. To influence social policy planning. 3. To monitor salient need to which mental health services should be addressed and to find out how to utilize non-psychiatric resources in the community to extend the impact of mental health professionals. 4. 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Hm.a m>.v «.zoccaofiwwo mucum weapon paso3 mpumoa 0:20 3M wanna cmuwuwu noummuu .NN mm. nm.a oo.e a.mmflocmmc HmwOOm nonuo Ocm 0:20 ecu comzumo xuo3 on» mecca: paso3 usmcw cenwuwo umumcuo .am am. ve.a o~.v .mucmflao mummuu mmmum 30: ocwoccno :O uodew cm m>mz capo: mpumon 0:20 cw been mcfixmu mccuwua0 .om em. vm.a em.m .mpucoo 0:20 map 00 mumnEmE m>wuomwum umOE onu oxcE pasocm mpumon ofl>wo umcuo co m>fluoc out 033 muons .ma we. «m.s sm.v .ummsan 0:26 we» mcs>ouaam mu cosm mCOMmflomp ome Ou um3om on» m>mz pasozm mumflEmE meson amnwuwo .ma mm. oA.H mm.m «.gumon an» no m>umm Ewan mcw>mn can» onzo men :fl newsfluflo mcfi>ao>cfi co yummmo ouOE m>mn pHso3 Ecumoum uwoucsao> 4 .ea Lagos cessas>oo ccwz smuH eumscaum 60:3quco0ll.a.m mqmde 71 3. There will be a positive relationship between a favorable attitude toward citizen participation in CMHC boards and being male. 4. There will be a positive relationship between a favorable attitude toward citizen participation in CMHC boards and education. 5. There will be a positive relationship between being married and favorable attitude toward citizen participation in CMHC boards. 6. There will be a positive relationship between a favorable attitude toward citizen participation in CMHC boards and level Of community activity. 7. There will be a differentiation between group means at the p < .05 level of significance with regard to citizen participation in CMHC boards. Statistical Analysis A variety Of analyses were used in this study. The computer programs used for these analyses were all part of the Statistical Package for the Social Sciences (1975) and the analyses were computed on the CDC 6500 computer at Michigan variance was used to between the means of further analysis was nificant differences were established and State University. Analysis Of test for significant differences the groups that were sampled. Where required so as to find specific sig- between paired group means, contrasts evaluated with t-tests. Pearson product moment correlations were used to examine 72 relationships between variables. In order to further examine the data, one-way analysis of variance was used. Reliability analyses were conducted using the Cronbach Alpha. The Cronbach Alpha is ". . . the mean of all split-half coefficients resulting from different split- tings Of a test . . . [Cronbach Alpha] is therefore an estimate of the correlation between two random samples of items from a universe Of items . . ." (Cronbach, 1951, p. 132). Summary In this chapter the procedures for developing the 30-item Likert scale were described in detail. Based upon the review Of the literature, 80 declarative statements were scaled in an agree-disagree format and six a priori factors were validated by experts in the field of citizen participation in CMHC boards. In addition, the experts predicted high- and low-scoring criterion groups, item directionality and reviewed the content validity of the scale. The reading level Of the scale was adjusted for 9th - 10th grade. Demographic items and two criterion measures (semantic differential and a control over decision making scale) were developed prior to piloting. Piloting of the scales was accomplished on graduate social work students at the Ingham CMHC, Oasis Fellowship, Inc. (a consumer advocacy group) and staff Of two CMHC's in 73 Ohio. A reliability of .79 and a validity of .53 were considered sufficient to continue with the major study. Major samples included those in attendance at the National Council Of CMHC's meeting February 1978, in Washington, D.C., randomly selected County Community Mental health board members, and CMHC board members, staff, and clients Of the Ingham CMHC. An overall return rate Of 55.6% was reported for a total Of 509 question- naires sent. Non—respondents were surveyed and differed from respondents at the .01 level of significance. The 30-item scale had a reliability Of .78 and concurrent validity Of .52 with the semantic differential. Weak relationships were found for the second criterion measure. CHAPTER IV RESULTS Introductory Statement The purpose of this study was to develop an instrument to measure the variable: attitude toward citizen participation in Community Mental Health Center (CMHC) boards. In this chapter the results of the study will be presented as they relate to the development of the Citizen Participation Scale (CPS). This analysis will focus on differences and relationships among vari- ables. Because a large number of subjects participated in the study, considerations of practical versus statisti- cal significance must be kept in mind. Each hypothesis is restated from Chapter III, with the statistical analysis immediately following. For testing each of the hypotheses, the citizen participation scale (CPS) of 30 items was used. The question numbers refer to the scale in Appendix D. Results Of Analyses Hypothesis 1: There will be a negative relationship between a favorable attitude toward citizen participation in the CMHC Mental Health Boards and income. 74 75 The data for Hypothesis 1 related variable CPS to the gross annual income (Question 7). The Pearson corre- lation for these variables was .11 (N = 271, p < .04) which indicated non-support of the hypothesis. In addi- tion, a one-way ANOVA was done to detect differences among the six income groups. The data did not support the possibility that there were differences in the means among the income groups (Table 4.1). Hypothesis 2: There will be a negative relationship between a positive attitude toward citizen participation in CMHC boards and age. The data for Hypothesis 2 related the variable CPS to age (Question 4). The Pearson correlation coeffi- cient for these variables was .14 (N = 276, p < .07) which indicated weak relationship and non-support Of the hypothesis. Additionally, a one-way ANOVA was done which indicated that the differences among the means Of the various age groupings was not significant (Table 4.2). Hypothesis 3: There will be a positive relationship between a favorable attitude toward citizen participation in CMHC boards and being male. The data for Hypothesis 3 related the variable CPS to sex (Question 5). The Pearson correlation for these variables was -.04 (N = 265, p <=.28) which 76 TABLE 4.l.--One-Way Anova--CPS Total Score by Income.* Standard Standard Group Number Mean. Deviation Error 3 4,999 or under 15 131.63 16.23 4.19 $ 5,000 - $ 9,999 20 130.88 16.85 3.77 $10,000 - $14,999 38 134.26 13.76 2.23 $15,000 - $19,999 34 132.72 25.03 4.29 $20,000 - $29,999 82 134.35 16.97 1.87 $30,000 and over _§2_ 137.78 16.56 £483 TOTAL 271 134.77 17.60 1.07 Analysis of Variance Sum Of Mean F F Source DF' Squares Squares Ratio Prob. Between Groups 5 1360.94 272.19 .88 .50 Within Groups 2g; 82287.93 310.52 TOTAL 270 83648.87 *NOTE: In subsequent tables variable N sizes will be noted due to differential response rates to various items. 77 TABLE 4.2.--One-Way ANOVA--CPS Total Score by Age. Group Standard Standard (yrs) Number Mean Deviation Error 19-24 16 126.06 12.83 3.21 25-29 40 136.55 17.47 2.76 30-34 39 134.23 16.56 2.65 35-39 44 130.20 18.00 2.87 40.44 27 132.63 21.21 4.08 45-49 26 137.15 20.38 4.00 50-54 35 137.51 17.43 2.95 55-65 35 139.00 14.29 2.42 66 and over _£4 139.61 9.31 2:39 TOTAL 276 134.86 17.53 1.06 Analysis of Variance Sum Of Mean F‘ F Source DF Squares Squares Ratio Prob. Between Groups 8 3754.72 469.34 1.55 .14 Within Groups 2&1 80783.93 302.56 TOTAL 275 84538.65 78 indicated no relationship and non-support Of the hypothesis. Additional analysis Of the differences among groups means was non-significant when using a one- way ANOVA (Table 4.3). Hypothesis 4: There will be a positive relationship between a favorable attitude toward citizen participation in CMHC boards and education. The data for Hypothesis 4 related the variable CPS to education (Question 6). The Pearson correlation coefficients for these variables were .01 (N = 274, p < .001) which indicated a statistically significant relationship and support of the hypothesis. Additional analysis Of the means of the educational groupings indi- cated significant differences at the .005 level (Table 4.4). Hypothesis 5: There will be a positive relationship between being married and a favorable attitude toward citizen participation in CMHC boards. The data for Hypothesis 5 related the variable CPS to marital status (Question 5). The Pearson correla- tion coefficient for these variables were .09 (N = 265, p < .07) which indicated no relationship and non-support for the hypothesis. One-way ANOVA for the means indi- cated no significant differences (Table 4.5). 79 TABLE 4.3.--One-Way ANOVA--CPS Total Score by Sex. Standard Standard Group Number Mean Deviation Error Male 121 135.75 16.83 1.53 Female 144 134.53 17.55 1.46 TOTAL 265 135.09 17.21 1.06 Analysis of Variance Sum Of Mean F F DF Squares Squares Ratio Prob. Between Groups 1 97.33 97.33 .33 .57 Within Groups 263 78056.67 296.79 TOTAL 264 78154.00 80 TABLE 4.4.--One-Way ANOVA--CPS Total Score by Education. Standard Standard Group Count Mean Deviation Error Some High School 5 121.70 10.40 4.65 High School Graduate 24 124.42 16.78 3.43 Technical School 5 121.20 19.71 8.81 Some College 44 136.03 12.81 1.93 College Grad. 48 136.92 18.19 2.63 Graduate or Professional School 148 134.91 18.25 1.50 TOTAL 274 134.91 17.66 1.07 Analysis of Variance Sum of Mean F F DF Squares Squares Ratio Prob. Between Groups 5 5098.97 1019.79 3.41 .005 Within Groups 268 80046.76 298.68 TOTAL 273 85145.73 81 TABLE 4.5.--One-Way ANOVA--CPS Total Score by Marital Status. Standard Standard Number Mean Deviation Error Married 183 136.52 15.60 1.15 Single 35 130.59 21.78 3.68 Widowed 8 132.63 11.72 .14 Separated- Divorced 39 132.92 20.18 .23 TOTAL 265 135.09 17.21 .06 Analysis of Variance Sum of Mean F F Source DF Squares Squares Ratio Prob. Between Groups 3 1314.17 438.06 1.49 .22 Within Groups 26 76839.84 294.41 TOTAL 264 78154.01 82 Hypothesis 6: There will be a positive relationship between a favorable attitude toward citizen participation in CMHC boards and level of community activity. The data for Hypothesis 6 related the variable CPS to hours spent in community activities such as participation in boards and volunteer work (Question 14). The Pearson correlation coefficient for these variables were -.05 (N = 277, p < .19) which indicated no relation- ship and non-support for the hypothesis. Further questions were explored related to the demographic variables such as whether the instrument could differentiate between board Chairpersons and board members, board members who were elected officials and non-elected official board members, professionals and non-professionals, board members and non-board members, consumers and non-consumers, and minority and non-minority subjects. One-way ANOVA was performed on each of these groups and significance at the .05 level was found between the means Of the board members and non-board members and minority and non-minority subjects. The data are pre- sented in Tables 4.6 through 4.11. Hypothesis 7: There will be a differentiation between group means at p < .05 level Of signifi- cance with regard to citizen participation in CMHC boards. TABLE 4.6.--One-Way ANOVA--CPS Total Score by Board 83 Chairperson versus Board Members. Standard Standard Number Mean Deviation Error Community Mental Health Board Chairman 17 141.53 13.45 3.26 Community Mental Health Board Members 98 141.02 17.81 1.80 TOTAL 115 141.09 17.19 1.60 Analysis of Variance Sum of Mean Source DF Squares Squares Ratio Prob. Between Groups 1 3.83 3.83 .01 .91 Within Groups 113 33678.96 298.04 TOTAL 114 33682.79 84 TABLE 4.7.--One-Way ANOVA--CPS Total Score by Elected Officials versus Non-elected Officials Who are Board Members. Standard Standard Group Number Mean Deviation Error Board Members Who are Elected Officials 31 138.95 18.67 3.35 Board Members Who are Not Elected Officials 86 141.53 16.63 1.79 TOTAL 117 140.85 17.15 1.59 Analysis of Variance Sum of Mean F F D]? Squares Squares Ratio Prob . Between Groups 1 152.06 152.06 .51 .47 Within Groups 115 33971.07 295.40 TOTAL 116 34123.13 85 TABLE 4.8.--One-Way ANOVA--CPS Total Score by Professionals versus Non-professionals. Standard Standard Group Number Mean Deviation Error Professionals 117 133.84 17.44 1.61 Non- professionals 16_ 135.78 17.67 Tng TOTAL 227 134.96 17.57 1.06 Analysis of Variance Sum of Mean F F Source DF Squares Squares Ratio Prob. Between Groups 1 252.55 252.55 .82 .37 Within Groups 275 84966.72 308.97 TOTAL 276 85219.27 86 TABLE 4.9.--One-Way ANOVA--CPS Total Score Board Members versus Non-board Members Stamdard Standard Group Number Mean Deviation Error Board Members 117 140.85 17.15 1.59 Non-board Members 160 130.65 16.65 1.32 TOTAL 277 134.96 17.57 1.06 Analysis of Variance Sum of Mean F F Source DF Squares Squares Ratio Prob. Between Groups 1 7031.74 7031.74 24.73 .001 Within Groups 275 78187.53 264.32 TOTAL 276 85219.27 87 TABLE 4.10.--One-Way ANOVA--CPS Total Score by Consumers versus Non-consumers. Standard Standard Group Number Mean Deviation Error Consumer 116 133.06 17.49 1.62 Non-consumer 158 136.34 11113_ 1111 TOTAL 274 134.95 17.66 1.07 Analysis of Variance Sum of Mean F F Source DF Squares Squares Ratio Prob. Between Groups 1 721.65 721.65 2.32 .13 Within Groups 272 84464.53 310.53 TOTAL 273 85186.18 88 TABLE 4.11.--One-Way ANOVA--CPS Total Score by Race. Standard Standard Group Number Mean Deviation Error White 248 134.05 17.29 1.10 Non-white 29 142.69 18.39 3.41 TOTAL 227 134.96 17.57 1.05 Analysis of Variance Sum of Mean F F Source DF Squares Squares Ratio Prob. Between Groups 1 1936.05 1936.05 6.39 .01 Within Groups 275 83283.22 302.85 TOTAL 276 85219.27 89 This analysis was undertaken to explore the question of significance between the groups that took the scale. A confirmation of this would indicate that the instrument has the ability to discriminate among various groups along a continuum of those favorable toward citizen participation in CMHC boards. Confirmation of this pat- tern would indicate the instrument's basic construct validity. An eight-cell one-way ANOVA was performed to test for significance and, in addition, contrasts were formulated for the 28 pairs of group means. Significance was reported at the p < .001 level for an N of 276 for all eight groups. The paired contrasts for the different groups revealed 14 differences p < .01. The matrix reflects a pattern that is consistent in most respects to that which would be expected (Tables 4.12 and 4.13). Summary The results of the study were presented in this chapter. The findings were reported in two categories; the first related to the development of the scale and the second described the relationships between the scale and various demographic variables. A 30-item Likert scale was developed with a reli- ability of Cronbach Alpha of .78. The concurrent validity of the scale with the 15-item semantic differ- ential was found to be .52 (N = 247, p < .001). The 90 Hoo. v a. 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I . . . m Umzo oano as m cum «I I I . . + mmm H mHH 038 MO mmmum mumnEmz pumom +mm.mn +mmp.mu mh~.~ mam. oaa. mmofi>umm mzo muqsoo mcwummz *om.mu xvam.mI +omm.mI H4G.I mme.u mnm.u momzo so ago Icsou HmcoHumz . . I . I . . . I . mumnamz numom «mm mu «maa m .mmn a +Hao m +nn> N +~mm m +Hmo m mnficum>oo omzo mm. mm mm mm 3 «am mmm 95.8 tau 9:» .Ic. n.nu TIE eTln e.Ln4 ens Tgu. .d.l 115 0.3 TlAnu .+ t. um gm 3 pa a... pan “3 m a wp We "5a 5 e 3 3 “N. am. 3...: 933 mt m m I m; -m w m .3 D D O 90 S a 30 M 1.1 o 1 c.n . SrA S n.“ mmu co mmsouw cofluwuauu Mom mmuoom cmmz mo mummnucou mo mumma uII.MH.v mqmde 92 concurrent validity of the scale with five other criteria variables indicated weak, statistically significant rela- tionships between the scale and a high level of control over decision making for community leaders, potential consumers, and for the entire board as opposed to clients and mental health professionals. The construct validity of the instrument was supported as the ordering of group means was as expected, with board members being most in favor of a strong citizen role while staff was less favorable. A weak, statistically significant relationship was found between a favorable attitude toward citizen participation and a high level of education. The data suggest also that those who are older and who have a higher level of income would also support a strong citizen role. Minorities and board members scored sig- nificantly higher on the scale, indicating their attitude of being in favor of a high level of citizen participa- tion. Clients and parents of clients, while supported by "liberal" professionals to take an active role in the governance of CMHC services, seem almost as Opposed to the idea as the professionals. CHAPTER V DISCUSSION Introductory Statement This research was conducted to evaluate several questions related to citizen participation in Community Mental Health Center (CMHC) boards. The primary questions of this study were as follows: 1. Can an instrument be developed to measure the attitude toward citizen participation in CMHC matters by varying constituencies? Is the attitude toward citizen participa- tion in CMHC boards held by groups such as clients, staff, and board members significantly different? How do the variables of age, sex, income, education, and level of community activity relate to the attitude toward citizen participation in CMHC boards? These questions produced research findings which will be discussed separately in the following sections of this chapter. The first two sections focus on instrument development and related issues, while the third section elaborates upon the scale and various demographic characteristics. Limitations of the research, implica— tions for future research, and conclusions are then pre- sented in the final sections. 93 94 Results of the Instrument Development A 30-item Likert scale was developed which had a reliability of Cronbach Alpha ~ .78. The reliability was within acceptable limits for attitude scales, which is typically .75 (Mehrens & Lehmann, 1969, p. 257). A moderate level of relationship (.52) with one of the two criterion measures, namely, the semantic differential was found and a statistically significant and weak relation- ship was found between the citizen participation scale (CPS) and the five-item control over decision-making scale. The construct validity of the instrument was verified in a review of the contrasts between the means of the criterion groups. Significant differences were found among the groups which will be discussed in more detail in the next section. The factor analysis that was completed for the scale did not support the six a priori factors (control over the decision-making process, role of CMHC board, selection and appointment of members, representativeness of board, impact of citizen participa- tion, and participant characteristics) validated by the judges in the early phase of the research. The validity for attitude measures is usually quite low. Values in the range of .5 to .6 are not unusual (Tittle & Hill, 1967; Mehrens & Lehmann, 1969, p. 258). Of the two measures of concurrent validity, the value produced by the semantic differential, an instrument 95 with adequate research support, was superior to the five- item control over decision-making scale. The data sup— ported the characteristics of reliability and validity associated with a typical Likert Scale. Since these scales depend on the self-reporting of the subject where it is possible to hide one's true attitudes, caution should be exercised when interpreting these scores. How- ever, for research purposes these scales represent the "state of the art" and are the best that are available. The factor analysis did not support the six a priori factors. A possible explanation for this was that the area of study is highly complex and that the scale items developed did not lend themselves to simple cate- gorization. The scale was consequently treated as a single variable. Results Related to Differences Between Criterion Groups on the Citizen Participation Scale (CPS) A one-way ANOVA was conducted to demonstrate the scale's construct validity on the eight groups indicating a high level of significance (p < .001) between the means of the consumer, staff, and board member groups. In order to determine where the statistical significance was specifically, 28 paired comparisons were established among the eight groups. Differences were found (p < .001) between clients of the Ingham CMHC and CMHC board members 96 in Wayne County. Other significant differences were found reflecting a trend in the data to indicate that those board members most associated with the governance of the CMHC are most in favor of citizen participation, while those whom the organization most affects--c1ients, clients' parents (consumer advocates), and staff--were less in favor of a strong citizen role. One would expect governing board members of CMHC's in Wayne County to be highly in favor of a strong role for citizens in the governance of the center. The CMHC's in Wayne County are private non-profit corporations which can appoint their own board members from a variety of neighborhood organizations. As such the centers pro- vide a model which is "grass roots" oriented and closely related to the model of governance proposed in federal CMHC legislation. As pointed out in the review of litera- ture, federal programs in the 19608 often directed support to the local level of "fight city hall," thereby stimu- lating local citizen participation. Interestingly, the Wayne County governing board members were significantly higher-scoring than all other groups tested. An inconsistency in the data was reflected in the lack of similarity between the means of the Wayne County governing board member group and that of the National Council of CMHCs. Since the National Council of CMHCs is comprised of federally funded centers, it was expected 97 that they would View citizen participation quite similarly to the Wayne County group. Since the National Council of CMHCs group was composed of both staff and board members (split about evenly), the influence of the staff which tended to score lower on the scale (Ohio and Ingham CMHC staff), may account for the somewhat lower than expected group mean. A review of the data for Oasis Fellowship, clients and CMHC staff revealed some interesting observations. Oasis Fellowship consisted of clients' parents who were attempting to become consumer advocates. Consumerism has been with us in force for the last several years. Indi- viduals such as Ralph Nader who were associated with the beginnings of the movement through his work on safety in the automobile industry, have expanded their interest to the area of health and mental health care (Chu & Trotter, 1974). If one were to generalize Nader's premise that mental health services ought to be influenced strongly by actual consumers (clients), and potential consumers who are most closely affected by or most likely to be affected by mental health services, then a strong citizen role in the determination of how those services were to be offered would be expected. Interestingly, when this thought was tested, the data did not support it. While the concept of citizen/consumer participation is most heavily'supporux1 by the board members themselves as Opposed to the 98 professional staff, the clients and Oasis Fellowship were more closely aligned with the professionals than the citizen board members. This finding adds support to what was personally experienced. It was paradoxical that groups which would be most affected by the services, clients and their family members, were the least in favor of their having a strong voice in defining CMHC directions. At the same time, clients and their families are often most critical of the quality and quantity of the mental health services which they use. Perhaps it is characteristic of this particu- lar handicapping condition that those most affected by it are least able to take political action to foster change in the services available. If one would exclude the clients themselves from this group because of their limited ability to function in this area, then the families should be most available as advocates on the client's behalf. This has been observed with parents of the mentally retarded for many years but has only recently become a factor with groups representing the psychiatrically impaired. Several years ago the author would have hypothesized that parents and clients would have scored even lower on the CPS scale than they did. Perhaps the fact that they did score higher than expected is reflective of a change. It is anticipated that in the future they will play as active a role as the present 99 board members and will, in fact, be vying for seats on mental health boards which will enable them to accomplish their goal. Other conclusions can be drawn from the data. The data supported the idea that governing board members would score higher than advisory board members. This indicated that those board members actually involved in policy-making supported a stronger role for citizens in that policy-making as opposed to board members in an advisory role who often questioned their impact on the CMHC. County board members and CMHC governing board members were significantly different, as would be expected, since CMHC governing board members are generally comprised of people who are not political appointments. Results Related to the Relationship Between Demographic Characteristics and the Citizen Participation Scale (CPS) Of the demographic correlates studied (age, marital status, sex, level of education, income and com- munity activity) only education was at all suggestive of being related to CPS. The relationship was weak (.21) which accounted for only four percent of the common variance among variables. The correlation, which was statistically significant but at such a low level of relationship, had little practical value. 100 In terms of the differences among groups, statis- tical significance was found in three instances: whether or not the subjects attended college, whether or not they were members of a minority group, and whether or not they were board members. Those who had some college or had completed college, were members of a minority group, and were board members tended to score significantly higher on the CPS. The results of this part of the study supported the conclusions cited in the preceding section. As expected, the Wayne County CMHC governing board members were highly supportive of a strong role for citizen participation. It was clear that the subjects who scored higher in the study came from this group, scoring on the average at least 10 points higher than any other group. A plausible explanation for the results related to demo- graphic characteristics could be that minority board members in Wayne County played an active role in community affairs in a county which has a significant population of minority group members. Those who served on boards tended to be upwardly mobile and more highly educated. This was an interesting contradiction in terms since there appeared to be a tendency not to identify with one's immediate past while at the same time being expected to represent the interests of actual and potential con- sumers of publicly supported CMHC services. The data, 101 then, supported the notion that board members who were somewhat more educated and members of minority groups were the most likely to receive a high score on the CPS. Those who were most involved as CMHC governing board members were apparently the strongest supporters of citizen participation in CMHC boards, a result which is obvious and not surprising. Limitations of the Research Caution must be exercised when generalizing the results of this study. The County Community Mental Health board members, CMHC board members, and advisory board member samples were selected randomly from the population of board members in Michigan. The results of the study with respect to these samples could be con- sidered valid for Michigan but probably not for board members on a national level due to the many differences between CMHC programs in various states. Sample sizes for clients, staff, and Oasis Fellow- ship were quite small and not randomly selected due to financial limitations. Clients and staff were selected from only one CMHC in Michigan and in the case of the clients, a very low return rate was prevalent. Non- respondent clients could not be sampled because of con- cerns about client confidentiality and a general desire on the part of the clients' therapists not to pursue the 102 completion of the scale if it were not returned immediately. Oasis Fellowship, a group of parents of young adults who are mentally ill and who were currently involved in some level of consumer advocacy, were unique to the Lansing area. Due to financial limitations, no effort was made to find and sample other similar groups in Michigan. It was not clear whether any other groups of this type have been organized in other parts of the state. If so, they do not communicate with each other and consequently have no knowledge of each other's activities. The samples of staff in the two Ohio CMHCs and those at the National Council of CMHCs meeting were not selected randomly. Subjects in both groups were selected because they were available as volunteers, and results related to these groups should be interpreted with caution. Non-respondents sampled following the cut-off date for the main samples of county community mental health board members and CMHC governing and advisory board members scored significantly higher than the respondents. Telephone interviews were conducted in addition to mailing a second questionnaire and the inter- views indicated a positive attitude toward citizen par- ticipation in CMHC boards and completing the task. The fact that non-respondents scored higher than respondents 103 indicated a favorable attitude toward citizen participa- tion and validated the reasons (i.e., being too busy, not receiving the questionnaire) given by non-respondents rather than the reason being the content of the question- naire. Here, too, caution should be exercised in the interpretation due to the very small sample involved. Implications for Future Research This study raised many questions in addition to the immediate ones it set out to answer. By developing an instrument it was expected that efforts to evaluate, measure, and, in some way, quantify the concept of citizen participation in CMHC boards would be achieved. Many possibilities remain for expanding this research. As mentioned above, some of the samples were not randomly selected due to the financial limitations of the study. Additional data could be gathered that would allow greater generalization to CMHC clients and staff. Other groups could be sampled, such as staff in state hospitals, board members from CMHCs in other states, the general public, and those who train mental health pro- fessionals at various universities. Differences among mental health professionals could be explored. Generally, a broadening as well as a careful selection of additional norm groups could add another dimension to the area of research initiated in this study. Demographic 104 characteristics of the various groups could be explored in more detail. Relationship to other variables for which scales are already in existence could be explored relative to the CPS. One of the original purposes of this study was to create an instrument which could measure one of the inde- pendent variables that affect the effectiveness of a CMHC board. With a suitable criterion measure, it would be possible to assess the impact of the attitude of board members on the actual level of accomplishment or effective- ness of a CMHC board. As a predictive measure, the CPS could be used as a means of determining where a potential board member stood in terms of his/her attitude toward citizen partici- pation. It is possible that the nominating committee of a CMHC board would want to use this information in making a decision about whether or not to offer an appointment to the board. Use of the CPS could address the concern that the CMHC board have a balanced composition with respect to being supportive of citizen/consumer interest. Since boards of CMHCs are to be representative of the community, use of the CPS may promote some assurance that a broad range of attitudes might be represented. The CPS could be used as a measure of results (outcome) to assess the impact of board member training 105 programs upon attitude toward citizen participation in CMHC boards. Recently articles have appeared (e.g., Howell, 1979) presenting a model of training to develop board members and make them effective. The CPS could be used as a pretest and posttest for measuring the effect of thetraining program on board member attitude toward citizen participation in CMHC boards. Training packages producing no measurable results could be eliminated or modified, saving time and limited financial resources. A final question raised by this research relates to the effect of citizen participation or consumer control on the delivery of mental health services. Two authors (Tischler, 1971, and Bolman, 1972) cite their rather dif- ferent experiences in this area. For Tischler (1971) a shift from informal citizen participation to more formal community control caused a reordering of program priori- ties (i.e., emphasizing children's services) and modifica- tions in staff task characterized by four basic patterns: (1) fear and disorganization; (2) retrenchment and denial; (3) romance and surrender: and (4) collaborative engage- ment. "All but the last [pattern] tended to compromise the staff's capacity to perform their assigned roles and therefore had an adverse effect upon the delivery of service" (p. 505). Bolman (1972) cites examples from clinical practice which illustrate the issues raised as a result of community control of mental health centers. The 106 examples are characterized by consumer dissatisfaction, institutional inability to respond and black-white con- flict. A concerted effort on the part of professionals to work closely with citizen/consumer groups is urged by Bolman to overcome these obstacles to the effective delivery of mental health services. Further research into the coordination of effort between the CMHC staff and board members for increased program effectiveness is urgently needed and hopefully the research presented herein can be a base upon which further investigation may be built. Conclusions The purpose of this research was to develop a means of measuring the attitude toward and effectiveness of citizen participation in CMHC boards. This study has produced the following findings related to this goal: 1. A reasonably reliable and valid instrument was produced which could measure the attitude under investigation. 2. Generally those in favor of citizen participation saw community leaders and potential consumers rather than actual consumers (clients) and mental health professionals as being able to play a strong role in CMHC decision-making. 3. Correlations between demographic variables and the citizen participation scale sug- gest that those who are more educated support a strong citizen role in decision- making. 107 4. Minorities and board members were found to be in favor of a strong citizen role. 5. The construct validity of the scale was supported, showing governing board members being most in favor of a strong citizen role and mental health profes- sionals least in favor. 6. Clients and parents of clients unexpectedly were aligned with the professionals in not supporting a strong citizen/consumer role in mental health decision-making. Citizen participation has permeated many areas of American life and is closely associated with the basic tenets of democracy. While citizen participation in com- munity mental health services is a recent idea, it is based upon many years of participatory democracy in American institutions such as public schools. This study sought to clarify the concept, measure attitudes, and contribute toward accomplishing a quantifiable means of evaluating its effectiveness. The results of this study have supported the idea that much clarification was and still is needed. It is hoped that this research has also contributed to the ability to evaluate the effectiveness of citizen participation, the acid test as to whether efforts to improve community agencies' responsiveness actually produces the intended results. APPENDICES 108 APPENDIX A MAILING TO JUDGES: FOUR TASKS FOR INITIAL STAGES OF SCALE DEVELOPMENT 109 Dear Thank you for agreeing to be a judge for the development of this scale. I believe, as I'm sure you do, that citizen participation in the delivery of community mental health services is an important area that requires much study and research in order to increase the understanding and, hence, the effectiveness of this endeavor. I would like to draw on your expertise in the area and have you review the enclosed first draft of this scale in terms of four tasks that need to be accomplished. These are as follows: 1) Predict two high and two low scoring criterion groups. 2) Predict the directionality of the scale items. 3) Estimate the content validity of the scale items. 4) Validate the seven factors of the scale. Also enclosed is the scale entitled, "A Scale to Measure Attitudes Toward Citizen Participation in Community Mental Health Center Boards" and more detailed instructions as to how to proceed with the above-mentioned tasks. Your time and assistance with these tasks is appreciated. The results of the study will be forwarded to you at a later date. If you have any questions, please contact me. Sincerely, Edward A. Oxer EAO/mg Enclosures 110 111 TASK N0. 1 PREDICT TWO HIGH AND TWO LOU SCORING CRITERION GROUPS Below is a list of possible groups to which this scale could be administered for the purpose of validation. From this list of criterion groups, please select the two groups that would be most identified with citizen participation in community mental health center boards (i.e., those that would score high on the attached attitude scale). Next, please select the two groups that would be least identified or in greatest disagreement with citizen participation in com- munity mental health boards. 1. Two groups most in agreement 2. 1. Two groups least in agreement 2. A. elite (high income) CMHC board members 3. middle income CMHC board members C. low income CMHC board members D. members of a CMHC policy board 3. members of CMHC advisory board F. consumer members of a CMHC board G. provider members of a CMHC board H. professional staff of a CMHC I. CMHC directors J. state hospital staff K. state hospital directors L. department of mental health officials M. NIMH officials N. county commissioners 0. county government staff P. social agency staff Q. social agency directors R. university faculty 5. high income consumers of CMHC services T. middle income consumers of CMHC services U. low income consumers of CMHC services V. high satisfaction consumers V. low satisfaction consumers X. family members of consumers Y. county (Community mental health board) meubers 2. county (Community mental health board) chairpersons AA. CMHC board chairpersons 33. county directors CC. minority group consumers of CMHC services 112 TASK NO. 2 PREDICT DIRECTIONALITY 0? ITEMS - respond to each of the eighty scale items as per the instructions on the scale indicating, in your opinion, how an individual who was strongly identified (i.e., in high agreement) with citizen participation in CMHC boards would respond. TASK NO. 3 ESTIMATE CONTENT VALIDITY OF SCALE ITEMS -- suggest different language, new scale items for areas that might have been overlooked, changes in wording, as well as other comments that would help clarify scale items and, hence, the issue under examination. TASK N0. 4 VALIDATE THE SEVEN FACTORS OF THE SCALE -- categorize each statement in terms of the factors listed below: CDM - Control over the decision-making_process. What different models of decision-making exist among community mental health center boards? On a continuum, they range from full policy-making control to token or non-existent input. Which model reflects an appropriate degree of in- fluence over the CMHC's decision-making process? RCB - Role of community mental health center's board. Should the role of the board be well defined? Does this help the members perform a more useful function? what are the appropriate functions of the board? How does the board decide what tasks it should perform? SAM - Selection and appointment of members. How are board members selected? What is the appropriate means of selection? How should board members be appointed? ggi- Representative of board. "he should be represented on the board? What should the scope of membership be in order to have a board which reflects the catchment area population? What should be the relative pro- portion of professionals, consumers and elite coununity members represented on the board? ICP - Impact of citizen participation. What effect does citizen parti- cipation have upon the community and the mental health program with which it is associated? Does citizen participation make a difference? 113 NCP - Need for Citizen Participation. Can relevant community mental health services be provided without citizen participation? Who says citizen participation is necessary? PC - Participant Characteristics. How energetic and active should participants be who are members of CMHC boards? Are the best members those who are already active in other agency boards? How knowledgeable should participants be about mental health issues? Please respond to each scale item in terms of the category in which you be- lieve it falls and circle the corresponding initials representing the factor. Please refer to the examples below for an illustration of how you might indi- cate your answers: EXAMPLE 1. Citizens involved in CMHC boards should not become involved in advocacy in behalf of center clients. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC An individual who wished to categorize this item as related to the role of the CMHC board would circle "RCB." There may be some items that can't be classified. Please indicate this by placing an "x" to the left of "CDM" in the designated space. EXAMPLE 2. Citizen participation in CMHC boards should be the same as consumer con- trol of community mental health services. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC An individual who felt that this item overlapped more than one category with the major factor being control of decision-making would circle "CDM" as the strongest factor and underline no more than two additional factors such as role of community mental health center board "RCB," and/or participant characteristics "PC." Please proceed to complete Tasks 2, 3 and 4 directly on the attached scale. 114 A SCALE TO MEASURE ATTITUDES TOWARD CITIZEN PARTICIPATION IN COMMUNITY MENTAL HEALTH CENTER BOARDS A number of writers in the field of citizen participation have expressed the feeling that it is the right of all citizens to participate in decision-making matters which affect their lives. Until recently, only the affluent or elite members of our society have had that right. Citizen participation then, is a broad term referring to any citizen of the country expressing their opinion whether consumer or provider of mental health services by participation in a political process. There are many forms of citizen participation or com— munity involvement. The purpose of this research is to determine which form is most appropriate to which community. Citizen participation means different things to different people. For some, it is the same as consumer control and implies full policy-making control over the major issues affecting the community mental health center programs by those who actually use the services. This seems to be particularly true in communities where the poor or racial and ethnic minorities do not have a "real voice" in the policy determination of many community institutions that affect their lives. For others, (i.e., the more affluent members of the community) citizen parti- cipation means citizen support for community mental health center programs, but in the form of raising funds and matter-of-fact approval of the "profes- sional issues" brought by the staff of the center. Board members often defer to professional judgement and opinion in the majority of cases and show little interest in advocacy in behalf of clients of the program. Some mental health services, particularly those that are privately operated may be completely governed by professional interests. Although this is less the style with public or private non-profit community mental health centers, many centers do have professional advisory boards mandated by the Community Mental Health Center Amendments of 1975. This scale seeks to have you express your opinion on the issue of citizen participation. The information you provide will be valuable in helping us to better understand the issue of citizen participation. Please read each of the statements carefully and for each one indicate to what extent you personally agree or disagree with it. You should do this by circling one of the six choices that best represents your feeling about the statement. You will note that the choices permit you to express an opinion that ranges from strong agreement to strong disagreement. Circle AAA, if you strongly agree Circle AA, if you moderately agree Circle A, if you slightly agree Circle D, if you slightly disagree Circle DD, if you moderately disagree Circle DDD, if you strongly disagree 115 Please refer to the two examples below for an illustration of how you might indicate your answers: EXAMPLE 1. Citizen participation in CMHC boards should be the same as consumer control of community mental health services. AAA AA A D DD DDD An individual who wished to indicate agreement, but only slight agreement with this statement, would circle the choice "A." EXAMPLE 2. Citizens involved in CMHC boards should not become involved in advocacy in behalf of center clients. AAA AA A D DD DDD An individual who wished to indicate a moderate degree of disagreement with this statement would circle the choice "DD." Make sure that you circle a symbol for each statement. Leave none of the items blank and make only one circle for each item. In some cases, you may feel that you do not know how to judge a statement. When this occurs, please make the best estimate you can. You should not spend more than a few seconds on each item. If it seems difficult to make up your mind, make the best judge- ment you can and go on to the next item. Please proceed to the first item. 116 A SCALE TO MEASURE ATTITUDES TOWARD CITIZEN PARTICIPATION IN COMMUNITY MENTAL HEALTH CENTER BOARDS Citizen representatives should vote on decisions affecting the community mental health center, but their decisions should be able to be reversed by the center's administration. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Community residents who have actually used the services of the center should be represented on the center board. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives involved in community mental health center boards should be consulted about policy decisions before they are made. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC In order to participate in making decisions in a community mental health center board, citizens should have extensive knowledge of community mental health service delivery systems. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives should advise in determining the community mental health center's budget. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives should be elected to the community mental health center's board by the residents of the catchment area rather than be appointed by governmental officials. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation should involve consumers in making policy decisions for the community mental health center. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC A most important area for citizens to be involved is program planning and evaluation of community mental health center services. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC New community mental health center programs should not be initiated by citizen meubers of community mental health center boards as they are not capable of designing programs of this type. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC 10. 11. 12. 13. 14. 15. 16. 17. 18. 19. 117 Citizen representatives of community mental health center boards who do not regularly attend meetings should be asked to give up their membership. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation would be most effective when the board has less than fifteen members. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives should be involved in the hiring and firing of the community mental health center's director. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Accomplishments of the community mental health center board should be an important factor in evaluating the effectiveness of citizen participation in community mental health services. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen members of community mental health center boards should be selected for their energy level and leadership abilities. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives to community mental health center boards should represent a cross-section of all elements of the catchment area. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Upper middle class members of the community should serve on community mental health center boards to assist in fund raising activities. AAA AA, A D DD DDD CDM RCB RB SAM ICP NCP PC Providers of mental health services should be in the majority on community mental health center boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation should be an important part of the planning process for community mental health centers. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives should serve on community mental health center's policy making boards instead of advisory boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC 20. 21. 22. 23. 24. 25. 26. 27. 28. 29. 118 Citizen representatives should advise in evaluation of the community mental health center's service delivery system. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives of the community should be involved in the day- to-day operation of the community mental health center. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Local business and industry should be represented on community mental health center boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen boards would be a useful addition to the mental health system. AAA AA A D DD DDD CDM RC3 RB SAM ICP NCP PC Appointments to all community mental health center boards should be approved by the State mental health authority. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation in community mental health center boards would be most effective if the catchment area is a politically viable area such as a county or other governmental unit. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Consumers should be in the majority on community mental health center boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP _PC Citizen participation should be most effective when the board meets at least once per month. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation should involve community residents in identifying mental health problems that need to be acted on. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation should be most effective when the board is appointed by a governmental body. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives should be involved in the setting of community mental health center program priorities. AAA AA A D DD DDD CDM RCB RE SAM ICP NCP PC 31. 32. 33. 34. 35. 36. 37. 38. 39. 40. 119 If local citizens are involved in policy making and decisions, mental health professionals are not likely to be attracted to community mental health centers. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation in a private non-profit corporation which adminis- ters all community mental health center services in the catchment area would be the most effective form of citizen participation. AAA AA A D DD DDD CDM RCB RE SAM ICP NCP PC Every community mental health center should have consumer/patient repre- sentation on the board of the program. AAA AA A D DD DDD CDM RCB RE SAM ICP NCP PC Every community mental health center should have formally associated with it a local citizen's board assigned significant responsibilities. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives should share in making final decisions with those who hold the ultimate power in the community mental health center. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives on advisory boards should have direct input to the governing board rather than through center staff. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Appointments to community mental health center boards should be made primarily by other community agencies. AAA AA A D DD DDD CDM RCB R3 SAM ICP NCP PC Citizen participation in the planning and operation of community mental health center programs have not produced sufficient payoff to make it worth our while. AAA AA A D DD DDD CDM RCB RE SAM ICP NCP PC Citizen participation should involve residents in implementing community mental health center programs. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives involved in community mental health center boards should have prior experience with other social agency boards. AAA AA A D DD DDD CDM RCB RE SAM ICP NCP PC 41. 62. 43. 44. 45. 46. 47. 48. 49. 50. 120 An active volunteer program in the community mental health center would be a more effective mechanism for involving citizens in community mental health center services than having them serve on a board. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Greater citizen participation should help the community mental health center to offer better services to residents of the catchment area. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives involved in community mental health center boards should have delegated power to make decisions. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizens who are most active in other social agency boards would make the most effective members of community mental health center boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC It should be more effective to have the families of community mental health center patients represented on the board than the patients theme selves. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation would be most effective if the boards on which they serve have substantial authority and responsibility. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Low income persons are not sophisticated enough to participate in policy making in community mental health center boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation in community mental health center boards would have an impact on changing staff attitudes. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representation in community mental health center boards should be consulted about decisions before they are made. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Greater citizen participation would hinder the working relationship be— tween the community mental health center and other social agencies. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC 51. 52. 53. 54. SS. 56. S7. 58. 59. 60. 121 An annual service plan should be prepared by the community mental health center board in conjunction with the residents of the catchment area. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Greater citizen participation in community mental health center boards would hamper staff efficiency. AAA AA A D DD DDD CDM RCB RE SAM ICP NCP PC Citizen representatives involved in a community mental health center board would find the experience a rewarding and gratifying one. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Fund raising should be an important activity for citizens participating in community mental health center boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizens would be reluctant to serve on boards of community mental health centers because they don't have the knowledge to make an effective con- tribution. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participants should speak for the group which they represent rather than for themselves. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Providers and non-providers of health services should be represented in equal proportion on community mental health center boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC An effective group of community representatives serving on the community mental health center board would help to increase the utilization rates of center services. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation in community mental health center boards would be a way of training community residents in democratic values. AAA AA A. D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation in a community mental health center board would be most effective if their role is clearly defined. AAA AA A D DD DDD CDM RCB RE SAM ICP NCP PC 61. 62. 63. 64. 65. 66. 67. 68. 69. 70. 122 Citizen representatives involved in community mental health center boards should have full control over policy decisions that they make. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Community mental health center boards should sponsor forums to inform the community about problems of providing services to the area. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives involved in community mental health center boards should receive financial remuneration for their effort. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen participation should be a necessary part of community mental health planning. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Efforts to involve local citizens in community mental health center plan- ning and decision-making will prove to be undemocratic in that a few citizens will participate and those that do will do so for personal ambition or to advance special interests. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representation in the local mental health association is an effec- tive means of involving community residents in community mental health programs. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizens who serve on community mental health center boards should be in agreement with community mental health ideology. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives should be involved in community mental health center boards primarily as a means of educating the public about mental health services. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Staff of the community mental health center should not be involved in the appointment of citizen representatives to the center. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Low income community residents should be involved in community mental health center boards in order to provide therapy to the community as a whole. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC 71. 72. 73. 74. 75. 76. 77. 78. 79. 123 Employing community residents as paraprofessionals in the community mental center would be a more effective means of citizen participation than having citizens serve on a community mental health center board. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Militant social action groups should be permitted to participate in the planning of community mental health center services. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Citizen representatives should have a constituency to which they are clearly accountable. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Attending meetings regularly should be an important part of citizen participation in community mental health center boards. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Community representatives should have a complete orientation and train- ing program so that they can participate effectively in the decision making of the community mental health center. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Efforts to involve citizens in mental health programs have not produced sufficient payoff to make them worthwhile. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Consumers of services should be involved in community mental health cen- ter decision-making in order to control the cost of mental health care. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Greater citizen participation would bring greater public support to the community mental health center. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Greater citizen participation in community mental health center boards would insure greater representation of the wishes of residents of the catchment area. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC Local political leaders should be on the governing board of the community mental health center. AAA AA A D DD DDD CDM RCB RB SAM ICP NCP PC APPENDIX B PILOT: INSTRUCTIONS, 45-ITEM SCALE, SEMANTIC DIFFERENTIAL, CONTROL OVER DECISION-MAKING SCALE, AND DEMOGRAPHIC ITEMS 124 CITIZEN PARTICIPATION IN COMMUNITY MENTAL HEALTH CENTER (CMHC) BOARDS SCALE It is the right of all people to take part in the every day issues which touch their lives. Citizen participation in mental health is the idea that any citizen can be involved in deciding how mental health services should be run, whether a user of mental health service or a mental health professional, by taking part as a CMHC board member. There are many ways for citizens to participate. The purpose of this study is to find out what you think of citizens taking part in the board of a CMHC. For a community mental health center (CMHC) to get Federal funds, it must provide a wide range of services. The CMHC must also have a board that can speak for the mental health needs of the people of the service area. This scale seeks to have you express your ideas on the issue of citizen participation. The information you give will be valuable in helping us to better understand the issue of citizen participation. Please read each of the statements carefully and for each one indicate to what extent you agree or disagree with it. You should do this by circling one of the six choices that best states your ideas about the statement. You will note that the choices permit you to express an opinion that ranges from strong agreement to strong disagreement. Circle AAA, if you strongly agree Circle AA, if you moderately agree Circle A, if you slightly agree Circle D, if you slightly disagree Circle DD, if you moderately disagree Circle DDD, if you strongly disagree Please refer to the two examples below for an illustration of how you might indicate your answers: EXAMPLE 1 . Citizen participation in CMHC boards should be the same as consumer control of community mental health services. AAA AA A D DD DDD An individual who wished to indicate agreement, but only slight agreement with this statement, would circle the choice "A." 125 126 EXAMPLE 2. Citizens involved in CMHC boards should not become involved in advocacy in behalf of center clients. AAA AA A D DD DDD An individual who wished to indicate a moderate degree of disagreement with this statement would circle the choice "DD." Make sure that you circle a symbol for each statement. Leave none of the items blank and make only one circle for each item. In some cases, you may feel that you do not know how to judge a statement. When this occurs, please make the best estimate you can. You should not spend more than a few seconds on each item. If it seems difficult to make up your mind, make the best judgement you can and go on to the next item. 10. 127 CITIZEN PARTICIPATION IN CMHC BOARDS Citizen board members should vote on issues affecting the Cmc but their choices should be able to be changed by the center's director. AAA AA A D DD DDD People who have used the center should be represented on the CMHC board. AAA AA A D DD DDD In order to take part in voting on the CMHC board, citizens should have knowledge of mental health services. AAA AA A D DD DDD Citizen board members should be elected to the CMHC board by local people rather than be appointed by the county or city. AAA AA A D DD DDD Citizen members of CMHC boards who do not attend meetings should be asked to resign (leave). AAA AA A D DD DDD Citizen members of the board should be involved in the hiring and fir- ing of the CMHC director. AAA AA A D DD DDD What the CMHC board has done (achieved) should be a factor in looking at the results of citizens taking part in CMHC boards. AAA AA A D DD DDD Citizen members of CMHC boards should be selected for their drive and because they are leaders. AAA AA A D DD DDD Citizen members of the CMHC board should represent a sample of all parts of the service area. AAA AA A D DD DDD CMHC boards should be made up of mostly mental health professionals. AAA AA A D DD DDD 11. 12. 13. 14. 15. 16. 17. 18. 19. 20. 128 Citizen board members should serve on CMHC governing boards instead of advisory boards. AAA AA A D DD DDD Citizen board members should be involved in the day-to-day workings of the CMHC. AAA AA A D DD DDD Local businessmen should be asked to be members of CMHC boards. AAA AA A D DD DDD Those named to CMHC boards should be approved by the State Mental Health Department. AAA AA A D DD DDD Citizens taking part in CMHC boards would bring the best results if the service area of the center is the same as the county. AAA AA A D DD DDD People who have used the services should be in the major group on CMHC boards. AAA AA A D DD DDD Citizen board members would have the most effect when they are appointed by the county. AAA AA A D DD DDD If local people are involved in policy making, mental health pro- fessionals are not likely to want to work in CMHC's. AAA AA A D DD DDD Citizen board members serving on a private non-profit corporation which runs all CMHC services in the service area would be the most effective form of citizen input. AAA AA A D DD DDD Every CMHC should have clients serving on the board. AAA AA A D DD DDD 21. 22. 23. 24. 25. 26. 27. 28. 29. 31. 129 Citizen board members should share in policy making with those who hold the power in the CMHC. AAA AA A D DD DDD Those named to CMHC boards should be chosen by other agencies. AAA AA A D DD DDD Citizens sharing in the planning and running of CMHC's have not pro- duced enough payoff to make it worthwhile. AAA AA A D DD DDD Citizen board members of the CMHC should have had experience on other social agency boards. AAA AA A D DD DDD A volunteer program would have more effect on involving citizens in the CMHC than having them serve on the board. AAA AA A D DD DDD Citizen board members should have the power to make decisions such as approving the CMHC budget. AAA AA A D DD DDD Those who are active on the civic boards should make the most effec- tive members of the CMHC boards. AAA AA A D DD DDD It should be more effective to have the families of CMHC clients on the board than the clients themselves. AAA AA A D DD DDD Citizens taking part in CMHC boards would have an impact on changing how staff treats clients. AAA AA A D DD DDD Greater citizen input would hinder the work between the CMHC and other social agencies. AAA AA A D DD DDD Greater citizen input in CMHC boards would reduce staff efficiency. AAA AA A D DD DDD 32. 33. 34. 35. 36. 37. 38. 39. 40. 41. 42. 130 Fund raising should be an important job for citizens taking part in CMHC boards. AAA AA A D DD DDD Citizen board members should speak for the group which they represent rather than for themselves. AAA AA A D DD DDD People who speak for clients and people who speak for mental health professionals should serve in equal numbers on CMHC boards. AAA AA A D DD DDD Those who are good at speaking for the community should serve on the board to help to increase the use of the center. AAA AA A D DD DDD Having citizens take part in CMHC boards would be a way of training local people in democratic values. AAA AA A D DD DDD Citizens taking part in CMHC boards would be most effective in their role is clearly defined. AAA AA A D DD DDD CMHC boards should sponsor forums to inform the public about problems of servicing the area. AAA AA A D DD DDD Citizens who serve on CMHC boards should agree with community mental health ideas. AAA AA A D DD DDD Staff of the CMHC should not be involved in the naming of citizens to the board. AAA AA A D DD DDD Militant social action groups should be allowed to take part in the planning of CMHC services. AAA AA A D DD DDD Citizen board members should have local groups to which they are accountable. AAA AA A D DD DDD 131 43. Greater citizen input would bring greater public support for the CMHC. AAA AA A D DD DDD 44. Local political leaders should be on the board of the CMHC. AAA AA A D DD DDD 45. Citizen members of CMHC boards should be asked about policies before they are made. AAA AA A D DD DDD 132 INSTRUCTIONS: Rate the following concept with respect to the adjectives listed below. Circle the number that indicates the degree to which one or the other of the terms describes the concept: Citizen participation in Community Mental Health Boards? Good 2 3 4 S 6 7 Bad Ineffective 2 3 4 5 6 7 Effective Irrelevant 2 3 4 5 6 7 Relevant Timely 2 3 4 5 6 7 Untimely New 2 3 4 5 6 7 Old Regressive 2 3 4 5 6 7 Progressive Wise 2 3 4 5 6 7 Foolish Simple 2 3 4 5 6 7 Complex Wrong 2 3 4 5 6 7 Right Sophisticated 2 3 4 5 6 7 Naive Narrow 2 3 4 5 6 7 Broad Rash 2 3 4 5 6 7 Considered Realistic 2 3 4 5 6 7 Unrealistic Needed 2 3 4 5 6 7 Unneeded Strong 2 3 4 5 6 7 Weak Unimportant 2 3 4 5 6 7 Important Sterile 2 3 4 5 6 7 Fertile Conflicting Z 3 4 5 6 7 Cooperative Active 2 3 4 5 6 7 Passive 133 CITIZEN PARTICIPATION IN CMHC BOARDS INSTRUCTIONS: Rate the concept of Citizen Participation in CMHC boards for each board member group. Please rate all three groups in terms of whether they should have high or low control: Board Member Degree of Control Over Group Decision Making Process Low High Health Care Professionals 1 2 3 4 5 6 7 (Provider Members) Those who claim their living from health care Low High Elite Members I 2 3 4 5 6 7 (Business, professional and community leaders interested in mental health). Low High Consumer (Client) Menbers l 2 3 4 5 6 7 Family members and/or those who have used the CMHC services. 134 Please indicate your age: 1) Less than 18 4) 30-34 7) 45-49 10) 60-64 2) 19-24 5) 35—39 B) 50-54 ll) 65-69 3) 25-29 6) 40-44 9) 55-59 12) 70 and Over Sex: 1) .____Male 2) ___ Female Marital Status: l) ___ Married 3) ____Single 2) ___ Widowed 4) ___.Separated or Divorced Education: l) Grade School 5) Some College 2) Some High School 6) College Graduate 3) High School 7) Graduate or Professional Specify: Please indicate your Gross Family Income: 1) $4,999 or Under 4) $15,000-$l9,999 2) $5,000-59,999 5) 520,000-529,999 3) $10,000-$14,999 Number in Your Family: l) l, 2) 2. 3) 3. 4) 4, 5) 5, 6) 6, (Circle one) 7) 7, B) 8, 9) 9, 10) More than 9. Number of Years in Community: 1) _____Less than 1 Year 2) _____l-5 Years 3) _ 6-lO Years 4) _____ll-ZO Years 5) ____ 2l-30 Years 6) More than 30 10. ll. 12. l3. 14. IS. I6. 17. 18. 19. 135 Please indicate your Racial/Ethnic Background: l) ____Black 2) ____Hhite 3)____ Chicano 4) ___ Other; Specify Occupation: l) ___ Professional 4) ____Clerical/Office 7) ___ Farming 2) ___ Skilled Trades 5) ____Business/Sales 8) Other 3)____ Self-employed 6) ____Managerial Specify: Do you currently hold elected office: 1) ____County Commissioner 3) ___ State 2) ___ City/Township 4) ____Other Specify: Have you previously held elected office? -l) ____County Commissioner 3) ____State 2) ____City/Township 4) ___ Other Specify: Are you employed in health care? 1) Yes 2) No What is your position? Specify: If yes, how long? 1) Less than l year 4) 6-l0 years 2) l-3 years 5) ll-ZO years Have you used mental health services? l) Yes 2) No If yes, please indicate kind: 1) CMHC 3) Other 2) Private Specify: How long did you use services? 1) Less than 1 month 4) l-3 years 2) 2-6 months 5) 3-5 years 3) 7-l2 months 6) 5 or more years Do you belong to an organized group of people who have used mental health services? l) Yes 2) No If yes, Specify: 20. 21. 22. 23. 24. 25. 26. 27. 28. 136 Are you a CMH Board Member: 1) Yes 2) No If yes, please indicate type: I) PA-ZSB Board 2 CMHC Governing Board 3) CMHC Advisory Board Are you a Consumer or Provider Member? 1) Consumer 2) Provider How long have you been a board member? 1) Less than 1 year 3) 3-5 years 2) l-Z years 4) More than 5 years Are you currently the Chairperson of the Board? I) Yes 2) No Have you previously been the Chairperson? l) Yes 2) No Are you active in other community boards? 1) Yes 2) No Are you active in other civic activities? I) Yes 2) No Are you a member of the Mental Health Association in Michigan? l) Yes 2) No APPENDIX C LETTER TO FEDERALLY FUNDED CHMCS 137 January 15, 1979 Dear Enclosed is an abstract of my doctoral research on "Citizen Participation in Community Mental Health Center Boards." Citizen participation has been an area of interest through-out my nine year association with the Ingham Community Mental Health Center especially in the past three years as Center Director. with the advent of P.L. 94-63 and a renewed interest in meaningful citizen participation, I have been especially interested in an expanded knowledge base in the area. The core of my proposal involves the development of a means of measuring attitudes related to Citizen Participation in Community Mental Health Center Boards. One of the groups that I would like to sample in order to validate the scale is board members of federally-funded Community Mental Health Centers in Michigan. Your cooperation and the participation of your board of directors in this study will be helpful in pro- moting effective citizen participation in federally-funded centers in Michigan. I plan to make the results available to all partici- pating groups as soon as possible after the completion of the study. I have been in touch with Dr. Paris Finner, Program Development Specialist of the Detroit-Wayne Community Mental Services Board and she has provided a list of Community Mental Health Centers in Wayne County. I would greatly appreciate it if you could provide a list of your board members names and addresses so that I might contact them regarding their participation in the study. The study involves completing a questionaire that would require about thirty minutes of their time. I would be glad to answer any further questions you might have regarding this project. Your support is greatly appreciated. Sincerely, (1" (.1/ ’62 Edward A. Oxer, A.C.S.W. Director Ingham CMHC 138 139 A B S T R A C T DEVELOPMENT OF A SCALE T0 MEASURE ATTITUDES TOWARD CITIZEN PARTICIPATION IN CMHC BOARDS by Edward A. Oxer Statement of the Problem The concept of citizen participation has been a central theme in American democracy and politics. Community institutions and agencies, as part of the fabric of American democracy, have naturally been influenced significantly by the underlying philosophical base of community involvement and local control. Large State mental hospitals that were for many communities the exclusive providers of (inpatient) mental health services in the early 1950's with the impetus of a strengthened mental health policy at the State and Federal levels gave way to the "third revolution" in psychiatry; that of community mental health. Local communities were to be served by locally operated, community- based mental health services, but the problem of defining the com- munitys' boundaries and assuring suitable citizen input, representative of the community, was greater than that anticipated by the planners. The controversy soon became polarized around citizen participation versus citizen control. Professional and consumer groups squared off over who would control the nature of the mental health services pro- vided. How should the "community" be defined and who were the "representatives" if the community became the central issues. Statement of Purpose The purpose of the study is to expand upon the research done by the Health Policy Advisory Center (Health PAC) entitled, "Evaluation of Community Involvement in CMHC's" (1972). This will be done by developing an instrument to measure the attitude toward citizen participation in CMHC boards, and thereby attempting to establish a method of measuring the attitude toward the most salient variable of the Health PAC study. Ultimately, it is hoped that, via the develop- ment of this scale, a means will be found to measure one of the major constructs in a field that abounds with ideological fervor but little in the way of documentation and quantification. Through the develop- ment of this instrument, more information and knowledge will be acquired regarding the area of citizen participation, a process which is far from adequately understood. The importance of this study is evident for any 140 community mental health center program that does not develop a suitable mechanism for insuring adequate community involvement, so as to relate itself to community needs, will soon be suffering from a lack of community support often with financial and political con- sequences. Methodology A series of eighty statements were developed from an extensive review of the citizen participation in mental health literature. Seven factors or subscales were hypothesized and the eighty statements were scaled in the Likert format. Seven experts in the field rated the eighty items and predicted directionality of the items, as well as into which factor the items fell. Items were reviewed for content validity and criterion groups were also selected from an expanded list of groups concerned with citizen participation in community mental health. A total of forty-five items and six factors received sufficient support from the experts to be included in a pilot of the scale. In addition to the forty-five items, a semantic differential, an additional criterion measure relating to board member control of the decision-making process and demographic items were also piloted on staff of a CMH system. The final stage of the instrument develop- ment involves the criterion validation in which several groups such as Michigan CMHC board members, CMH services board members, Mental Health Association board members, state hospital directors and con- sumers of mental health services complete the scale in terms of their view of citizen participation. Significant correlations are expected between the cumulative scores for each group and the criterion measures, as well as certain of the demographic characteristics. Significant differences are expected between groups, indicating that the scale has the ability to discrimi- nate between those heavily in agreement with those who favor a strong citizen role in CMHC decision-making and those who do not. APPENDIX D MAILED QUESTIONNAIRE 141 142 Community Mental Health Board Clinton 0 Eaton o Ingham INGHAM COMMUNITY MENTAL HEALTH CENTER THOMAS M sums. i 0. March 16 , 19 79 tone or omcroes uscuvm omcvon NOLAN OWEN CW!" new!“ wt Aim CHAIRMAN 0".qu .C IAVI‘ m 0 Nu" y Mllm" CLO-‘0‘ .“CVOO LAURIE DOWN! S we“ Hum-w MAI'O CAIIA SAM Ktwrzu Dear Participant: uww uooow NIlEN IOMSCK PH 0 MAlCARE T Tumcsuo The enclosed questionnaire is concerned with citizen participation :“WDWWHGI in community mental health center boards and is part of a state- fififlxzfifif wide study that I am conducting in conjunction with my doctoral program at Michigan State University. This study has been approved by the Michigan Department of Mental Health and will provide a basis for assessing attitudes toward citizen participation in community mental health center boards in Michigan. The results of this study will provide information that will be useful in the selection of community mental health board members, as well as assess- ing the impact of board member training. Participation in this study is strictly voluntary and the results will be handled in an anonymous and confidential manner. I am particularly interested in obtaining your response because your experience with community mental health will contribute significantly to an expanded knowledge base in this increasingly important area. The enclosed questionnaire has been pretested by people with background similar to yours and it has been revised in order to make it possible to obtain all necessary data while requiring a minimum of your time. The average time required for completing the questionnaire is about thirty minutes. It would be appreciated if you could complete the questionnaire prior to March 26. Please return the questionnaire directly to me or via my mailbox. Other phases of this study cannot be carried out until analysis of this questionnaire data is complete. I would welcome any comments that you might have concerning any aspects of citizen participation in community mental health center boards not covered in this questionnaire. I would be pleased to send you a summary of the questionnaire results if you so desire. Thank you for your cooperation. V uly yours, Edward A. Oxer, Director Ingham Community Mental Health Center “7 W. GREENLAWN lANSlNG. MICHIGAN “910 PHONE (517') 374-0000 U 0 143 - -NOT WRITE IN THIS AREA 10. ll. 12. ll. lb. Your code # is |__J I | 1 I 1 Please indicate your age: (0) Less than l9 (4) 35-39 (B) 55-65 (1) l9-26 (5) 40-66 (9) 66 6 Over (2) 25-29 (6) 65-69 (3) 30-34 (7) SO-Sb Sex and Marital status (1) Halo. married (5) Halo. widowed (2) female. married (6) Pamela. widowed (3) Male. single (7) halo. separated or divorced (6) female. single (8) Female. separated or divorced Education: (l) Grade School (3) Some College (2) Some High School (6) College Graduate (3) High School Grad. (7) Graduate or Professional School (6) Technical School flags irsidicsts your Cross Annual Family Income: 6,999 or Under (6) 515.000 - $l9.°9’ (2) $5.000 - $9,999 (5) 520.000 - 529.3}; (3) “0.000 -Slb.999 (6) 530.000 and ova: Please indicate whether your co-unity is mostly: (1) Urban (3) Suburban (2) Rural (6) Hired Please indicate your Racial/Ethnic background: (l) Black (3) Chicano (2) “hits (4) Other Minority Occupation (select only one that best reflects your work); (0) Professional (4) Business/Salas (B) Housewife (1) Skilled Trades (5) Hana srial (9) Retired (2) Self-employed (6) Farm n (3) Clerical/Office (7) Unskil ad Do you currently or have you previously held elected office? ( ) County Co-issionsr (4) Other 8; guy/Township (3) Not hold elected office COCO l) Clinical Staff - G010 (Commmity Mental Health Center) 2) Administrative Staff - CMHC (Co-nity Mental Health Center) 3) Clinical Staff - State Hospital ’0) Administrative Staff - Stats hospital 5) Other Health Care 6) lot onloyad in health or mental health care serve on a CMHC Board? (I) PA-ZSB Board (County Cmity hntal Health Services Board) (2) PA-ZSB Board Chairperson (1) WC Governing Board member I?) was Governing Board chairperson (6) (7) 2 5 CHIC Advisory Board “or out Advisory Board chairperson lot a MC Board msdsr Are you active in co-lnity affairs? Please indicate the order of hours spent {or month in cm“ boards. church activities. etc. (1) or sea (5) -l6 (7) lot active (2) -b (3) l‘l-ZA (3) 5-0 (6) 25 or more you used Mental Health services personally as a client? ) CHIC (Co-mity lIsmtal Health Center) ) Private ) No use of mental health services Cl“ md private v-GoomtothsleatPags-o L0000000000 L0000000000 3-0000000000 c0000000000 catamaran LOOQQOOOOC 30®$@&8- LOOOOOOOOOO ®G$¢flfififlflfl l0000000000 0BG$98$8§$ “0000000000 ®&Q%&fi%&fi§ m0000000000 ©08®Qfi®flfl® :d0000000000 SGGQQQ®603 1L0000000000 0®fiflfififl®afi n~0000000000 @@0&®0$®0£‘ ‘Qfiflfififlfififlf u~0000000000 @@@@%éé®@© “-0000000000 @®G€®$&$¢® u~0000000000 (5006063000 144 NOT‘x‘YQ‘Igfi'E IN THIS - ,- AREA - “unsung“ es - ‘ ~ - - .‘x f‘ xxxxxxxxxrsxxxxxx? - - {KWWZKXX‘Q‘OC 3...... m: " Hark ll). if you completely agree Mar: 23;. i: you slightlyldigsgrse - A A A A A A 1"“ A ~, Mark (2). if you strongly agree Mar . i you moderate y isegree IEXXXXXXXXXXXXXXXQ Mark (1). if you mdcratcly agree Marl: (7). if you strongly disagree - hark (6). if you slightly agree hark (I). if you cewletsly disagree - find/wmrxrxr'xmm - xxxxxxxxxxxxxxxx. - Anmdfi A .A \— v’vv v QUOOV 16 . Citizen board members should vote on issues affecting the MIC but theit - choices should be able to be changed by the csntss's director. - A .. , A ' 0030:3000 l7 . People who have used the center should be represented on the 001C board. - - DCOCC'C'OCOC lb. in order to take part in voting on the OOH: board. citizens should have - Knowledge of mental health services. - QOOCCCOOOC l9 . Citizen board nembsrs should be elected to the CMHC board by local people - rather than be appointed by the comty or city. - 33 C’ 300003 3 20 Citizen members of 000C boards who do not attend meetings should be asked - to resign. - ‘,"\’\/T\f\fi.f\rv—~l’ . u 000 v #3009 21 . Citizen members of the board should be involved in the hiring and firing "' of the com director. - DOOC'OOGOOC 21. m: the CHHC board has eccoqlished should be a factor in looking at the - results of citizens taking part in OIIC boards. - A - f“ , 302x JQCOUOO 23 Citizen mothers of cmc boards should be selected for their drive and "' because they are leaders. - 3000006000 26. Citizen members of the CMHC board should represent a sale of all parts - of the area served by the program. - 0000000060 2!. cat boards should be made up of-mostly esntal health professionals. - - 303 3300000 26. itizen board were should serve on (30!: governing boards instead of - 1 advisory boards. -- ‘ 3 C 3 :2 3C 3 000 27. Citizen board m‘ers should be involved in the day-to-day workings of - | the WC. - QOOCCDCOOOC 2B. local businessmen should be asked to be odors of CMHC boards. - - 3C; 3C3: .3030 29. Those nusd to a” boerds should be approved by the State Mental Health - Department. - 0") ’1‘" ". ’M“ 1" 30. Citizens tahin part in out boards would bring the best results if the - DVV 0V V V V V V service area o the center is the a- as the county. - A _ . .., . DUCOQOOOQC Jl. :opie who have used the services should be in the major group on GOIC - er s. - 3 QCC‘CCOOOQ 32. Citizen board “yrs would have the soot effect when they are appointed - by the cemty. . :C 3330-0030 33. if citizen board lee-bers are involved in policy making. mental health - professionals are not likely to want to work in Chin‘s. - 3303;230:3000 34.. Every once should hove persons serving on the board who have used an. - services. - 30 00000000 35. Citizen board members should share in policy making with those who hold "' the power in the m. - 3000300000 36. Those M to ORG boards should be chosen by other agencies. - - 2000000003 37. Citizens sharing in the planning and naming of CHIC's have not produced - § enough payoff to make it worthsthile. - 3000606000 38. Citisen beard msdsrs of the 0m should have had experience on other - 7- social agency boards. - ‘ “A’KAAF’NA’K. xxxmxxxxxxxxxx'} - - Lam '- o-GoontothelestPeg-u - my - - DO ‘-’ - NOT WRITE 145 IN THIS AREA Your code # is | I | | l 2 3 Storm; toy: .‘lork (l). 1.! you couplotoly ogroo Hort (S). 1! you slightly dlsogroo Mark (2). L! you stromzly agroo Mark (6). it you oodorstoly dunno Fork (J). 1.! you mdorotoly ogroo .‘lork (7), 1.! you strongly dlsogrso Hort (ls). 1.! you sllghtly ogroo Hort (8). it you toqlstoly dlssuso 39. A voluntoor progrn would howo Ioro offoct on lnwolVlh. eltlsns lh tho thou hovm; thou sorwo on tho hoord. #0. Cltuon hootd ooohors should hovo tho powor to ooho docisloos such so opprovlh; tho 00K: hud‘ot. '61. Thoso who oro sctlvo a would: he: do szd osho tho oost ofloctlvo oo-hors of tho Who ‘2. It would ho ooro oftoctlvo to hows tho (alllss ot CHIC cllsnts on tho hoord thoo tho clloots thousolvos. 63. Cltlsoos toklo; port to cxuc boords would hows on 'npoot on chohglo; how stott troots cllohts. 66. Grootor cltlzoo lhput would hlhdor tho work hotwooo tho once and othor soclol sgooclos. k3. Grootor cltlsou luput to our: hoords would roduco Itl‘h ottlcloocy. 56. fund rolslo; should ho so Mortont job (or tltloohs tohlo. port lo C30“: booxds. ’07. Cltlsoo hoord o-bors should spook tor tho group whlth thoy roprosoht rothor thou tor thousolvos. ‘3. Pooplo who spook for ollonts sod pooplo who spook for oontsl hoolth protosslohols should sorvo lo oquol omoors on mac hoot do. ‘9. Thoso who oro good st spookln, (or tho co-uolty should sorvo on tho boord to holp to lootssso tho on tho contor. 50. loving cltlsoos tsko port to 08¢ bosrds would ho s wsy o! trololn; locol pooplo Ln doncrotlo voluos. 51. Cltlsons tok port to CHIC hoords would ho oost otloctlwo l: tholr rolo ls closrly do! d. :2. ml: hoords should sponsor form to tutor. tho puhllo shout prohlsos o! sorwlclog tho sroo. SJ. Cltlzono who sorwo on out: hosrds should soroo wtth oo-oulty osotol hooth ldoos. Sb. Stott at tho Ole should not ho lovolvod lo tho onto; o2 cltlsohs to tho boord. 55. Hilltoht soolsl sctloh grows should ho sllowod to toho port lo tho plonolh; u! can: sorvl too. 56. Cltlzon boord oolbors should hovo lotsl groups to whloh thoy oro scoouotohlo. 51. Grootor cltltoo Shout would bring grootor puhllc support for tho out. SI. hood polltltol losdors should ho on tho hoord o! tho me. 59. Cltuoh oodors o! Gil: hoords should ho sshod shout polltlos holoro thsy ors oodo. 60. Cltlsou hoord odors COMM on s prlwoto hon-profit corporotlon whlch run oll once sorvlcos to tho sorvloo sroo uould ho tho oost ottottlvo (on o! cltlooo lnput. .. Go on to tho loot Pogo -- 39. so. 51. 62. 63. Mo. ‘5. 67. 69. 50. $1. 51. S). 56. $5. 36. 57. 3|. OOQOOOCOOC OOOOOOOOOC OOOOOOOOOC ”Gum 23%;,AQAI‘AV\ “ NAAAA ”XXXXXXXXXX 3033333333 0033333333 303 3333333 33303 33: 3V CCOCCCCOCC OCOCSOCOCC NC CCCOOCC AOOCCOCCC OCOOCCCOCC OOCCCDCOCC OCOCCCCOCC OOOCCCQOCC OCCOOCOOCC OOOCQCOOCQ OCOCCOOOCD OOCCC3COCC 0003333003 QOCOOCCOOC CCCOCCOOCC OCCCDCQOCC OCOCCCOOOO OOOCCOOOCC £&A-«AAAAA .333 flg‘finfif‘ DO NOT WRITE" IN' THIS - AREA ( ) I‘ ) (J (A) ( ) (J C) U () U () u U () f) C) (. () ) (J () () () (J ( () () () g) (f) u Q C) J fi) () () (i) C) C) () f) (J (1 A) (J () O 0 O ()00 A\f\ ') $3 33) () 0 O (900 0000 O O O O m 0 o (i) (3 (‘~ 0 O ( 1) (L) o 0 o o _ O 0 0 U (9 (fl 0 (D O O 3.” (3 O 0 O (3 (,7 000 () O (3) 000303 G) 00 O () (.3) () (J O O . O 3 (J (i) 5) O O O O U U U () O 0 O O F) O O (3 (J ') O C) : U () O U G O (.1) INSTRUCTIONS : 146 Hork tho author L. tho :chlo on tho loft sldo Judgo tho followlng ldoo by uslng tho sdjoctlvos llstod holow. of tho pogo thst shows tho dogroo to whlch too or tho othor of tho words doscrlbos tho ldoo. Io ours-to Iorh your answer on tho clrclus on tho lot: “do of tho pogo. Cltlzon t‘srtlclpstl-m ln CHHC Ioords ls; 6 s s3 s3 vw‘I‘ #6 "s“ “to. .~¢o" ’9‘, 61. Good l 2 3 e. 3 6 7 Iod 62. lhofloctlwo l 2 3 6 5 6 7 lilootlwo 63 . lrro lovont l 2 3 6 5 6 7 6o lovout 66. “fl-sly l 1 3 6 5 6 7 Uhtlloly 65. low 1 2 3 6 S 6 7 Old 66 . logrosslvo l 2 .3 6 3 6 7 Progross two 67. “loo 1 2 3 6 S 6 7 Foolish 66. Sllplo l 2 3 6 5 6 7 Conplor 69. wrong 1 2 3 6 S 6 7 light 70. lorrow l 2 3 .6 3 6 7 Irood 7l. hoodod l 2 3 6 3 6 7 Uhhoodod 72. Strong 1 2 3 6 5 6 7 Hook 73. lhhportout l 2 3 6 3 6 7 Imrtoht 76. Confllctlng l 2 3 6 5 6 7 Cooporstlvo 73. Mtlvo l 2 . 3 6 S 6 7 Pooslvo lh‘S‘l‘lUC‘l'lOlS: Judgo tho ldoo of Cltlooo 'Psrticlpotloh in CMHC hoords for ooch hoord oonhor group. Plooso osrk tho must to tho circlo on tho loft oido of the pogo thot shows whothor you think thoy should hovo high or low control. 3o ours to oorh your ohswors in tho clrclos on tho lo£t oldo of tho pogo. Dogroo of Control (Ivor 0‘ W 76. lulth or hootsl Ioolth Protoootoools (thooo no. clot- thotr lulu troo hoolth or oootsl hoolth tors). W1336367Ilgh 77. suotooso. proloootoool. polltlool on oo-olty Low l I 3 6 3 6 7 Ilgh loodors morootd to osotsl hoolth. 7|. Thooo no how uood all: sorwltos sod/or thou how l 2 3 6 3 6 7 Ilgh (sully o-hors (ootoo. also»). 19. how loco-o sod/or och-lo. roolol o1oor;.1oo uho llro Low l 2 J 6 S 6 7 ugh to tho sol-nos or- (potatlol tlsuts). so. totlro all: Doors. Low 1 2 3 6 5 6 7 lush hook you for your portlclpotloo lo thls stud). tltsso roturn cooplotod quostlohholro to° lawn“.I A. cost 1333 Rod Lost Loos toot Lohslu. lllohlgon 66623 APPENDIX E FOLLOWUP REMINDER POST CARD 147 March, 1979 Dear Participant: I recently mailed a questionaire to you regarding citizen participation in community mental health center boards. I would like to thank those who have reSponded for your participation, as the success of this important study is highly de- pendent upon your individual contribution. If you had intended to reSpond but have not had the time to complete the questionaire, I would appreciate your doing so at your earliest convenience. Director 740%] Ingham Community Mental Health Center Sincerely, 148 APPENDIX F LETTERS OF APPROVAL 149 9: J ,3" i" '3': 5 sure or mcmom :.-,__;,.. DEPARTMENT OF MENTAL HEALTH I A l AN N HIGAN 2‘ WILLIAM G. MlLUKEN. Gavovnor LEW S C 55 BUILD "6' L S! G “.0 609 v.A.51’EHMAN. MO" Actmg Onocto: March 7, l979 Edward A. Oxer, A.C.S.H. Director Community Mental Health Board 300 N. Hashington Square Community Services Center Suite 40l Lansing, MI 48933 Dear Mr. Oxer: We have reviewed your proposed dissertation research, "Development of a Scale to Measure the Attitude Toward Citizen Participation in Community Health Boards". We understand that this research involves a client sample who will participate on a voluntary basis. Confidentiality will be maintained and there will be no risk to clients. You have the approval of the Department to proceed with this research, providing that the following is assured: (1) Approval from the Clinton-Eaton-Ingham Community Mental Health Board. ‘ (2) The questionnaire should have a cover letter indicating that responses are anonymous and confidential, that completing the survey is voluntary. and does not affect services received as a client of the agency. You might also consider indicating to patients and subjects what use may be made of the data, that the purpose of this questionnaire is for your dissertation research, and whether or not results will be sent back to participants. Please direct the materials requested and/or any questions to Carol T. Mowbray, Ph.D. (5l7-373-2746). Departmental Administrative Procedures are that you provide the Department and the CMH Board with a report of the results of your research. We look forward to being informed of the findings of this interesting study. Sincerely, V.A. Stehman, M.D. CC: Thomas Ennis, Director, CEI BOARD *} 3 303 :fiarrell WC 'G'A‘N VAS.:CTM:g It" . 'o' PM“)?! 150 To: From: 151 COMMUNI" MENTAL HEAIJH BOARD CUNTON-EAION-INGHAM I? E c E I v E D MEMO MAR121979 INGHAM CMH". Ed Oxer, A,C.S.W., Director Dots: March 7, 1979 Ingham CMHC Gilbert W. DeRath, Ph.DM Director of Clinical Services Research Proposal Ed, I have reviewed your proposal for the "Development of 3 Scale to Measure Attitudes Toward Citizen Participation in Community Mental Health Center Boards." I approve of implementation of the research within our programs. I assume that you will develop an informed consent format for use with CMH clients. Attached is the DH}! policy on Approval of Research Policies, for your information. 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