- " ’- THE DEVELOPMENT OF A PROTOCOL FDR THEI3f:T-.Iili-fi'flgif'_jiifg.fi.‘_ MANAGEMENT OE CDMBATIVE OEHANIOR IN ';_ 1 . ' OEMENTEO ELDERLY LONTO- TERM CARE j 1* ; RESIDENTS A Scholarly Progect TOT the Degree of M S. N. MICHIGAN STATE UNIVERSITY _ - JUDITH LYNN JANDERNOA ‘ " 1991 GAN STATE SITY LIB IIINII II IIIIIII I NI IIIIIIIII II NIILJ 12930 048800 LIBRARY Michigan State University TO AVOID FINES return on or before date due. DATE DUE DATE DUE DATE DuE D 508 u I I TOT—3N “III I I I IL I I Lj ji- MSU I. AnNflmatm Adm/Emu Opponmly Inflation W10 THE DEVELOPMENT OF A PROTOCOL FOR THE MANAGEMENT OF COMBATIVE BEHAVIOR IN DEMENTED, ELDERLY, LONG-TERM CARE RESIDENTS by Judith Lynn Jandemoa A SCHOLARLY PROJECT Submitted to Michigan State University in partial fulfillment of the requirements for the degree of MASTER OF SCIENCE in NURSING College of Nursing 1991 ABSTRACT THE DEVELOPMENT OF A PROTOCOL FOR THE MANAGEMENT OF COMBATIVE BEHAVIOR IN DEMENTED, ELDERLY, LONG-TERM CARE RESIDENTS By Judith Lynn Jandemoa The management of combative behaviors in the demented elderly is a difficult task for primary caregivers. Within this scholarly project, combative behaviors are defined as physical responses of demented, elderly, long-term care residents to their environment which endanger the residents and others in the immediate area. A protocol has been developed for use by primary caregivers in long-term care facilities when demented, elderly residents exhibit combative behaviors. Interventions are based upon the literature reporting on factors causing combative behavior in the demented and techniques for its management. The protocol was developed by applying Hall’s Progressively Lowered Stress Threshold model to the problem of combativeness in demented, elderly residents. Plans for both the follow-up once the combative episode is resolved and the implementation and evaluation of the protocol are presented. The implications of this scholarly project for professional nursing, advanced nursing practice, and primary care are discussed. Unpublished work, Copyright 1992, Judith Lynn Jandemoa DEDICATION To my mother, Barbara Hughes, for her faith in God, love of her family, and inner strength. To my father, Dr. John Hughes, for his compassion for the sick, dedication to his family, and wisdom. iv ACKNOWLEDGMENTS I wish to thank Dr. Barbara Given for her guidance and encouragement as my scholarly project chairperson, and for her commitment to the advancement of the nursing profession. I would also like to thank Drs. Sharon King and James Kursch for their continual support and availability as members of my committee. A special thanks to all three for serving as role models throughout my graduate education. To Bets Caldwell, I thank her for offering her time and expertise in assisting with the preparation of my manuscript. To the Hafner and Christian families, I wish to thank them for loving and caring for our daughter, Barbara, and for being there whenever we needed them. I thank my family (Pat, Frances, Phyllis, Daniel, Elizabeth, David, and George) for their never-ending faith in me. Lastly, I wish to thank my husband, Paul, for his love and encouragement, and our daughter, Barbara, for bringing so much love and joy into our lives. TABLE OF CONTENTS Page CHAPTER I: The Problem Introduction ................................................ 1 Background of the Problem ...................................... 2 Statement of the Problem ...................................... 14 Project Description ........................................... 14 Overview ................................................. 15 Conceptual Framework ........................................ l6 Conceptual Definitions ........................................ 16 The Progressively Lowered Stress Threshold Model .................... 24 Application of the PLST Model to the Problem of Combativeness .......... 35 Schematic Representation of the Conceptual Framework ................. 37 vi Page CHAPTER II: Review of the Literature Introduction ................................................ 43 Factors Related to Combative Behavior ............................ 43 Agitated Behavior ........................................... 43 Disruptive Behavior .......................................... 47 Aggressive Behavior .......................................... 52 Summary of Factors Related to Combative Behavior ................... 55 Management of Combative Behavior .............................. 57 Behavioral Management ....................................... 58 Environmental Management .................................... 64 Communicative Management .................................... 71 Pharmacological Management ................................... 80 Summary of Management of Combative Behavior ..................... 84 Summary of Literature ........................................ 85 CHAPTER III: Protocol for the Management of Combative Behavior in Demented, Elderly Residents Introduction ................................................ 88 vii Page Presentation of the Protocol ..................................... 89 Prevent Physical Injury ........................................ 89 Diminish Agitation ........................................... 91 Promote Comfort and Rest .................................... 101 Follow-up Plan for Primary Caregivers ............................ 105 Conclusion ............................................... 109 CHAPTER IV: Implementation and Evaluation of the Protocol and Its Impact on Professional Nursing Introduction ............................................... 110 Implementation and Evaluation of the Protocol ...................... 110 Application of the Conceptual Framework to the Protocol ............... 122 Project Benefits Related to the Nursing Profession .................... 125 Impact on Nursing Education .................................. 125 Impact on Nursing Practice .................................... 129 Impact on Nursing Research ................................... 130 Implications for Advanced Nursing Practice ........................ 133 Implications for Primary Care .................................. 139 Conclusion ............................................... 145 viii Page Appendices Appendix A: Format of the Protocol for Clinical Use .................. 147 Appendix B: Resources Required to Implement and Evaluate the Protocol . . . 154 Appendix C: Letter of Permission to Copyright ...................... 158 List of References ............................................ 159 Figure 1. Figure 2. Figure 3. Figure 4. LIST OF FIGURES Page Stress threshold in normal individuals .................. 29 Progressively lowered stress threshold in adults with progressive degeneration of the cerebral cortex (Alzheimers’s Disease and related disorders) ............. 30 A typical day for an adult with a dementing illness in an unstructured care program ...................... 31 Schematic representation of the conceptual framework ..................................... 38 CHAPTER I The Problem Introduction America is growing old. The 65 and older age group has increased in size much more rapidly than the other segments of the United States population--by 54% in the last 2 decades, compared to a 24% increase for those under 65 (US. Senate Special Committee on Aging, 1985). The reason for this large increase is two-fold. First, there was a significant jump in the number of annual births in the US. prior to 1920. Second, improved disease prevention and health care have increased the life expectancy of the U.S. population. Due to the accelerated annual birth rate after World War II from 1946 to 1962 (the "baby boom"), the 65 and older age group will continue to grow. Hutton (1988) predicts an increase of 18% in the 65 and older population between 1985 and 1995 alone, and a 51% increase in the 85 and older population. Overall, the 65 and older population is predicted to grow by almost 5 million between 1985 and 1995 (Keyfitz & Flieger, 1990). As the 65 and older segment of the US. population continues to grow, so will the prevalence of chronic illness. Cross-sectional data have demonstrated that the occurrence of chronic illness and disabling conditions increases substantially with age. Greater than 4 out of 5 individuals 65 and older have a minimum of one chronic illness, and having several is not uncommon (US. Senate Special Committee on Aging, 1985). Contrary to popular belief, the incidence of psychiatric illnesses, which often are chronic in nature, is lowest in the 65 and older age group. However, cognitive 2 impairment is a significant mental health problem of this age group (Erwin & Skidmore, 1989; U.S. Senate Special Committee on Aging, 1985). In studies by the National Institutes of Mental Health, mild cognitive impairment was reported in approximately 14% of elderly men and women, and 5.6% of elderly men and 3% of elderly women had severe cognitive impairment (U.S. Senate Special Committee on Aging, 1985). It is estimated that some level of cognitive impairment is present in 50 to 75% of elderly residents in long-term care facilities (Erwin & Skidmore, 1989). Based on these estimates, it appears that a substantial number of elderly in the United States are cognitively impaired. Background of the Problem Cognitive impairment is one of the essential features of dementia. Dementia is an organic mental syndrome, that is, "a constellation of psychological or behavioral signs and symptoms without reference to etiology” (American Psychiatric Association, 1987, p. 97). Carroll (1989) describes dementia as: ”a global neurological impairment characterized by slowly progressive and irreversible deterioration of the cognitive functions--speech, abstract thought, emotion, memory-—and hence of the ability to take care of oneself, to identify time and place, to relate socially to others, to think and speak and act in a clear and reasonable way" (p. 5). Currently, an estimated 1.8 million Americans suffer from severe dementia (Office of Technology Assessment, 1990). If cure or prevention for the common causes of 3 dementia are not found, it is predicted that by the year 2040 approximately 7.4 million Americans will be affected by severe dementia (Office of Technology Assessment, 1987). As dementia progresses, it robs the afflicted individual of the ability to think, plan, remember, and function as a productive member of society (Hutton, 1988). Eventually, the individual’s ability to perform activities such as cooking, cleaning, and shopping, as well as activities of daily living (ADLs), such as bathing, dressing, and toileting, become so impaired that constant care and supervision are required (American Psychiatric Association, 1987; Office of Technology Assessment, 1990). Often, family members will assume the care and supervision of dependent elders, such as those afflicted with dementia, in order to avoid institutionalization (Buckwalter & Hall, 1987). The primary caregivers of dependent elders in the community are generally close relatives, that is, spouses, children, siblings, nieces or nephews (Cohn & Jay, 1988). Primary caregivers provide the bulk of physical and emotional care and supervision to demented elders (Office of Technology Assessment, 1990). Many difficulties are encountered when caring for demented elders, including the exhibition of problem behaviors. Examples of such problem behaviors are wandering, incoherent talking, nocturnal disturbances, agitation, and verbal and physical aggression, including combativeness (American Psychiatric Association, 1987; Ereshefsky, Rospond, & Jann, 1989; Katzman, 1986; Office of Technology Assessment, 1987, 1990; Pynoos & Stacey, 1986). Often, these types of behavioral 4 problems are harder to manage and more stressful to caregivers than the demented individual’s physical and cognitive impairments (Mace, 1990). Combative behaviors are especially problematic (Carroll, 1989; Mace, 1990; Mace & Rabins, 1981; Richter, Blass, & Valentine, 1989). Behaviors of demented individuals which are of a combative nature include hitting or striking out, kicking, pushing, scratching, pinching, forceful and quick grabbing, and biting (Carroll, 1989; Mace, 1990; Mace & Rabins, 1981; Mentes & Ferrario, 1989; Struble & Siversten, 1987; Winger, Schirm, & Stewart, 1987; Zirnmer, Watson, & Treat, 1984). The display of combative behaviors by demented individuals is thought to be related to several factors. These factors include a progressive decline in cognitive functions resulting in a decreased ability to use rational problem-solving as an effective coping mechanism, impairments of judgment and impulse control, and frustration over the increasing loss of control over the environment (American Psychiatric Association, 1987; Beck, Baldwin, Modlin, & Lewis, 1990; Katzman, 1986). Other factors affecting combative behaviors are the demented individual’s premorbid personality and c0ping style. Physical, interpersonal, and internal environmental stressors may also exacerbate combative behaviors, for example, medication side effects, demands by caregivers which exceed the individual’s functional abilities, and affect (e.g., feelings of loss or depression). Furthermore, catastrophic reactions, that is, emotional responses to supposed insignificant incidents, 5 may be manifested as combative behaviors (Carroll, 1989; Jarvik & Trader, 1988; Mace, 1990; Mace & Rabins, 1981). Regardless of the causes, the occurrence of combative behaviors is distressing to the demented elder and the caregiver, and puts both individuals at risk for injury and physical and emotional exhaustion (Carroll, 1989; Mace, 1990; Mace & Rabins, 1981; Richter et al., 1989). Emotional exhaustion occurs due to a multitude of negative feelings brought on by combative behaviors, such as fear, anger, rejection, sorrow, and frustration (Carroll, 1989; Mace, 1990; Mace & Rabins, 1981). Feelings of frustration and exhaustion in the caregiver may result in negative consequences for the demented individual, for example, overmedication with sedative or tranquilizing drugs, denial of services, and a deterioration of the caregiver/carereceiver relationship (Mace, 1990). The problems associated with combative behaviors can create stress for both the caregiver and the demented elder. If the amount of stress experienced by the caregiver results in a significant deterioration of his or her own health, the quality of care provided to the demented elder may also deteriorate. Therefore, if it is evident that the caregiver’s physical and emotional health are being compromised, and adequate family and/or community support services are not available, institutional placement of the demented elder should be considered (Cohn & Jay, 1988; Richter et al., 1989). When demented individuals are admitted to a long-term care facility, nursing personnel become primarily responsible for providing care to and coordinating services for them (Brannon & Bodnar, 1988; Zimmer et al., 1984). Nursing personnel, who constitute approximately 89% of full-time nursing home employees (National Center 6 for Health Statistics, 1989), have the most frequent contact with demented residents. Family members often continue to assume responsibilities in long-term care facilities such as supplying personal items, providing emotional support and some types of care, arranging family social events and certain appointments, and managing finances (Brannon & Bodnar, 1988; Hall, 1988a; Office of Technology Assessment, 1987; Richter et al., 1989). The exhibition of combative behaviors by demented elders is a problem in long- term care facilities as well as in residential homes (Winger et al., 1987; Zimmer et al., 1984). Behaviors such as striking out, biting, and kicking are especially difficult to manage and are detrimental to the demented residents themselves and to others in the immediate area, including nursing staff (Maas, 1988; Winger et al., 1987; Zimmer et al., 1984). For demented residents, combativeness may result in physical injury, a decrease in the amount and quality of care pmvided, social isolation, and functional impairments (Beck et al., 1990; Hall & Buckwalter, 1987; Pynoos & Stacey, 1986; Rovner, Kafonek, Filipp, Lucas, & Folstein, 1986; Struble & Siversten, 1987; Winger et al., 1987). The display of combative behaviors may also promote agitation in other nursing home residents, as well as increase the potential for fear and injury to other residents, nursing home staff, and visitors (Ebersole, 1989; Maas, 1988; Marx, Wemer, & Cohen-Mansfield, 1989). Many of the effects that combativeness has on nursing staff are similar to those mentioned earlier for family caregivers. Nursing staff may experience an increased A}; PL» 1 . I”... Lou. 7 potential for injury, physical exhaustion, and negative feelings (e.g., fear and frustration). Nursing staff may also experience burnout, as evidenced by a lowered staff morale, increased rates of absenteeism and resignation, and physical or verbal abuse of residents (Beck et al., 1990; Maas, 1988; Mentes & Ferrario, 1989; Office of Technology Assessment, 1987; Pynoos & Stacey, 1986; Rovner et al., 1986; Winger et al., 1987). The display of combative behaviors by demented residents may also increase nursing staff’s awareness of these residents’ distress and indicate the need for intervention. Aggressive, defined as "marked by combative readiness" (Mish, 1985, p. 64), is a word akin to combative used in the literature on problem behaviors associated with dementia (Chandler & Chandler, 1988; Mentes & Ferrario, 1989; Rovner et al., 1986; Struble & Siversten, 1987; Zimmer et al., 1984). In the literature reviewed, researchers used both "combative" and "aggressive" to describe behaviors such as pushing, hitting, and kicking. Therefore, the following discussion is based upon studies in which résearchers explored mental illness and behavioral problems in long- term care facilities, and reported the common occurrence of either aggressive or combative behaviors, along with a high prevalence of dementia. Rovner et a1. (1986) conducted a study examining the prevalence of mental disorders in a nursing home. They found that 78% of the residents were diagnosed with some type of dementia, and 26% of those residents exhibited active aggression. A description of behaviors considered to be actively aggressive was not provided. 8 Chandler and Chandler (1988), in studying mental illness in nursing home residents, reported that 72% of the residents had dementia, and 15% of the demented residents displayed mild to severe aggressive outbursts. A description of behaviors considered to be mild or severe aggressive outbursts was not included in the report. In a study designed to determine the prevalence of behavioral problems in skilled nursing facilities (Zimmer et al., 1984), it was found that 22.6% of the subjects exhibited serious behavioral problems, including striking out or biting. Among the subjects who exhibited serious behavioral problems, 66.5% had diagnoses indicative of organic brain syndrome. Winger et al. (1987) studied the prevalence of aggressive behaviors on both an intermediate-care and a nursing home unit within a VA medical center. Intermediate- care residents required extensive hospital services, weekly physician visits, and skilled nursing care, whereas nursing home residents required monthly physician visits, skilled nursing care, or active rehabilitation. Behaviors such as biting, pushing, and hitting were considered aggressive behaviors. Within the samples studied, 34% of the intermediate care and only 9% of the nursing home subjects exhibited g9 aggressive behavior. Thus, researchers have reported both a high incidence of dementia and the common occurrence of aggressive and combative behaviors within long-term care facilities. Researchers have also reported a high incidence of both physical and chemical restraint use by nursing staff to control problem behaviors, including combativeness. Physical restraints include geriatric chairs with locking tables, belt and 9 vest restraints, wrist and ankle restraints (Sloane et al., 1991), and pelvic restraints. Neuroleptic, anxiolytic, sedative, and hypnotic medications used on a regular basis constitute chemical restraints (Sloane et al., 1991). Zimmer et al. (1984) reported that 58% of residents exhibiting serious problem behaviors (e.g., striking out or biting) received psychotropic drugs on a regular basis, and 47% had a restraint applied within 30 days preceding the study. Consultation with a psychiatrist, who may have offered suggestions regarding alternative management techniques, as well as the judicious use of psychotropic drugs, had occurred for only 14.8% of the residents. Reality orientation was the only other documented management technique for problem behaviors, and 14% had received this. Chandler and Chandler (1988) conducted a study examining the prevalence of medical, neurological, and psychiatric illness in a nursing home. They found a 94% rate of neuropsychiatric illness in the resident population, and a 72% rate of dementia, based on DSM-III-R criteria. The primary management techniques documented for aggressive and agitated behaviors were physical restraints and psychotropic drugs (50% and 43% of subjects, respectively). Of the total population diagnosed with a neuropsychiatric illness, only 40% had a history of previous psychiatric consultation or treatment. Sloane et al. (1991) performed a study comparing the use of physical and chemical restraints for the management of demented residents on both specialized dementia units and traditional nursing home units. On the specialized units, the rates of physical and chemical restraint use were 18.1% and 45.3%, respectively. On the 10 traditional nursing home units, the rates of physical and chemical restraint use were 51.6% and 43.4%, respectively. Mental impairment was reported as a predictor of both physical and chemical restraint use. Physically abusive behavior by demented residents was the factor mpg; significantly related to chemical restraint use. The high incidence of physical and chemical restraint use documented in these studies implies that these restraints are used frequently to manage problem, including combative, behaviors of demented residents. Specific reasons given by nursing staff for the use of physical and chemical restraints include the following: impaired mental status; controlling disruptive behavior; preventing harm to residents and staff; preventing disruption of oriented residents’ environments; inadequate or inexperienced staff; preventing interference with treatment; or lack of available alternatives (Jencks & Clauser, 1991; Pynoos & Stacey, 1986; Strumpf, Evans, & Schwartz, 1991; Tinetti, Liu, Marottoli, & Ginter, 1991; Vladeck, 1980; Zarit, Orr, & Zarit, 1985). Although physical and chemical restraints are utilized to control combative behaviors, they can have negative effects on demented, elderly residents. The application of physical restraints increases the potential for skin abrasions, nerve damage, and strangulation. The use of physical restraints also fosters immobility and its complications, including impaired circulation, decubitus ulcers, sensory deprivation, decreased strength and stability, incontinence, and contractures. Physical restraints may also increase the manifestation of problem behaviors (Covert, Rodrigues, & Solomon, 1977; Jencks & Clauser, 1991; Struble & Siversten, 1987; Tinetti et al., 1991; Office of Technology Assessment, 1987). 11 Chemical restraints may cause an exacerbation of the behaviors for which they were given, such as agitation. The administration of chemical restraints may also result in serious side effects, including increased sedation and confusion and tardive dyskinesia (Jarvik & Trader, 1988; Jencks & Clauser, 1991; Maas, 1988; Office of Technology Assessment, 1987; Pynoos & Stacey, 1986; Struble & Siversten, 1987; Strumpf et al., 1991; Vladeck, 1980; Yerian & Pettengill, 1990). In a descriptive study of physical restraint use in a metropolitan teaching hospital, elderly patients’ subjective experiences and behaviors related to restraint use were explored (Strumpf et al., 1991). Elderly patients who were physically restrained reported experiencing feelings of anger, fear, humiliation, and demoralization. Behavioral effects of restraint application on elderly patients noted by nurses included combativeness, agitation, resistance, and hallucinations. A review of the literature on physical restraints resulted in no literature supporting the view of physical restraints as effective in controlling problem behaviors and facilitating treatment of the elderly (Strumpf et al., 1991). The use of physical and chemical restraints for the management of combative behaviors can have negative effects not only on demented residents, but on their families and nursing staff as well. For family members, seeing the negative effects that physical and chemical restraints have on their loved one may intensify feelings such as guilt and concern (Maas, 1988). Primary nurses have reported feeling discomfort and ambivalence when applying physical restraints to the elderly (Strumpf et al., 1991). Also, the care of residents who have become more dependent and have 12 developed complications due to restraint use (Pynoos & Stacey, 1986) requires increased amounts of nursing time. As of October 1, 1990, federal regulations regarding the use of physical and chemical restraints, based on the Omnibus Budget Reconciliation Act (OBRA) of 1987, amended in 1989, have been in effect. According to these regulations, it is an infringement of a resident’s rights if appropriate assessments and justification for the use of a restraint are not documented in the medical records. Any long-term care facility not in compliance with OBRA regulations can be penalized (Garrard et al., 1991; Yerian & Pettengill, 1990). Research studies conducted since October 1, 1990 report that some long-term care facilities using restraints are not abiding by the OBRA regulations (Garrard et al., 1991; Tinetti et al., 1991), and are therefore violating certain resident’s rights. It is apparent that employing physical and chemical restraints to manage combative behaviors of demented long-term care residents can create additional problems for the residents themselves, their families, and nursing staff. Unfortunately, the majority of professional and non-professional nursing staff in long-term care facilities have not been educated regarding the care of demented residents, including the management of problem behaviors (Maas, 1988). In general, nursing homes employ few staff members, with the possible exception of social workers, who have been educated regarding appropriate behavioral interventions, activities, and care approaches for demented residents (Pynoos & Stacey, 1986; Office of Technology Assessment, 1987). 13 Nurse’s aides, who give more direct patient care than any other group of long-term care employees, have the lowest level of educational and pre-employment training related to the care of the elderly (Brannon & Bodnar, 1988; Mentes & Ferrario, 1989; Office of Technology Assessment, 1987). Furthermore, although federal and state regulations require intermediate and skilled nursing facilities to provide mandatory inservice programs, the required programs do not include information for nursing personnel on the management of demented residents’ problem behaviors (Brannon & Bodner, 1988; Office of Technology Assessment, 1987). 14 W Due to a lack of training and education in the care of the demented, including problem behavior management (Maas, 1988; Struble & Siversten, 1987), a significant number of long-term care nursing staff may be unaware of alternatives to physical or chemical restraint use for the management of combative behaviors (Maas, 1988; Struble & Siversten, 1987). Researchers exploring aggressive and combative behaviors in cognitively impaired nursing home residents emphasize the need for educating nursing staff on restraint-free methods of managing these behaviors (Beck et al., 1990; Mentes & Ferrario, 1987; Rovner et al., 1986; Struble & Siversten, 1987; Winger et al., 1987; Zimmer et al., 1984). Because they provide the most care to demented residents and are generally the first to intervene when combativeness occurs, nursing personnel need an effective plan for managing combative behaviors. Therefore, the purpose of this scholarly project is to develop a protocol which primary caregivers in long-tenn‘care facilities can follow when demented, elderly residents exhibit combative behaviors. Project Description The protocol developed will be based on the professional literature related to combative and aggressive behaviors in demented individuals. Because the demented individual’s environment plays an influential role in the display of problem behaviors (Schainen, 1991), special attention will be given to environmental factors related to 15 combative and aggressive behaviors. Suggested interventions for the management of these problem behaviors will be reviewed. The protocol will focus on the management of combative behaviors, rather than on their prevention. Although the prevention of combative behaviors is the ideal goal, this goal is not always realizable when caring for demented individuals. The protocol will emphasize the use of management techniques other than physical and chemical restraints. The project plan does not include the actual implementation and evaluation of the protocol. However, future testing of the protocol is intended. my. This scholarly project consists of four chapters. In Chapter I, the introduction, background and statement of the problem, and purpose of the project have been presented. The conceptual framework will be presented, including conceptual definitions with supporting literature, an explanation of the conceptual model upon which this project is based, and a discussion of the applicability of the conceptual model to the problem of combativeness. In Chapter II a review of the current literature relevant to this project, including existing research, will be presented. In Chapter III a detailed description of the protocol will be presented, along with a follow-up plan to prevent or minimize further combative behavior. Chapter IV will include a proposed plan for the implementation and evaluation of the protocol, as well as a discussion on the implications of this project for professional nursing, advanced nursing practice, and primary care. 16 Conceptual Framework Conceptual Definitions M- A protocol may be defined as "a precise and detailed plan for the study of a biomedical problem or for a regimen of therapy" (Hensyl, 1990, p. 1274). Another definition for a protocol is ”a written plan specifying the procedures to be followed in giving a particular examination, in conducting research, or in providing care for a particular individual" (Como, 1990, p. 976). For the purpose of this project, a protocol is defined as a detailed, written plan developed to specify the procedures to be followed in managing the combative, demented, elderly resident within a long-term care facility. A clinical protocol is the "transformation of the research base into clinically relevant knowledge that is precisely defined for practice and that specifies an intervention with predictable patient outcomes and recommended procedures for its evaluation” (Horsley, Crane, Crabtree, & Wood, 1983, p. 98). A clinical protocol is used to implement and evaluate a change in clinical practice, and includes information related to the following: the need for change, summary and limitations of the research base, description of the protocol, research-based principles guiding the protocol, implementation and evaluation of the protocol, summary, and references (Horsley et al., 1983). 17 Primg Caregiver. In discussing the responsibilities of relatives caring for the frail or disabled elderly, Couper (1989) describes the primary caregiver as the individual who is principally responsible for providing care to or coordinating services for the disabled elder. Aronson (1988) defines the primary caregiver of a demented individual as the one in charge, who assumes primary responsibility for care of the demented person on a daily basis. Primary caregivers of dependent, elderly individuals provide constant, intimate care which meets these individuals’ physical, emotional, and social needs (Aronson, 1988; Brannon & Bodnar, 1988). Within this project, a primary caregiver is considered one who is principally responsible for coordinating services or providing care which is constant and intimate, and meets the demented, elderly, long-term care resident’s physical, emotional, and social needs. Litwalk (1985) discusses the role of family members caring for dependent, elderly relatives at home. He defines the "primary group” as those individuals who provide services not on the basis of economic rewards, but rather based on affection, duty, or respect. If the primary group becomes dysfunctional and the disabled elderly individual is relocated to a long-term care facility, the responsibility of the long-term care staff is to provide the services previously given by the primary group. Within long-term care facilities, nursing personnel are primarily responsible for providing care to, and coordinating services for, demented residents (Brannon & Bodnar, 1988; Zimmer et al., 1984). Thus, the long-term care resident’s quality of life is affected by the motivation, skill level, quality, and stability of the nursing personnel 18 (Brannon & Bodnar, 1988). The following is a discussion of the general responsibilities of different levels of nursing personnel found within long-term care facilities. Registered Nurses (RNs) have assumed primary responsibility for managerial work, that is, providing the resources and environment for the provision of care (Brannon & Bodnar, 1988). Compared to other nursing personnel, RNs spend less time giving direct patient care, and more time addressing administrative issues (Office of Technology Assessment, 1987), for example, nursing documentation, staffing needs, and inservice development. Licensed Practical Nurses (LPNs) perform both managerial and direct work, that is, providing nursing care directly to residents (Brannon & Bodnar, 1988). Examples of their managerial responsibilities are supervising nurse’s aides, assisting with inservices, and coordinating services for residents. Direct work responsibilities include administering medications and monitoring residents for adverse effects, performing treatments ordered by physicians, and assisting with ADLs (Brannon & Bodnar, 1988). Nurse’s aides are supervised by RNs and LPNs, and their work revolves around meeting the immediate needs of residents (Brannon & Bodnar, 1988). Nurse’s aides comprise the largest single group of long-term care personnel, and spend more time with residents and provide more direct care than any other group of employees (National Center for Health Statistics, 1989; Office of Technology Assessment, 1987). Because the behavioral treatment of chronic mental health problems must be frequent 19 and consistent (Brannon & Bodnar, 1988), nurse’s aides can make a significant contribution to the behavioral management of demented residents. An innovation within long-term care facilities has been the utilization of a Gerontological Clinical Nurse Specialist (GCN S) to enhance the quality of care provided to residents. The GCNS is a Registered Nurse who has received additional education and training in the fields of gerontology and primary health care. As a primary care provider, the GCNS focuses on wellness, on promoting the elderly client’s and family’s ability to cope with the client’s aging changes, illnesses, and disabilities, and on supporting and enhancing the elderly client’s strengths (Michigan State University, College of Nursing, 1985b). The GCNS works closely with long- term care residents’ physicians, who oversee the residents’ medical care and are vital members of the health care team. Thus, it can be seen that nursing personnel and residents’ primary physicians have important roles and responsibilities related to the coordination and provision of services to demented, elderly, long-term care residents. Therefore, although family members often provide some services, within this study nursing personnel and primary physicians will be considered the primary caregivers of demented, elderly, long-term care residents. WM. Long-term is defined as "occuning over or involving a relatively long period of time" (Mish, 1985, p. 704). Therefore, a long-term care facility is literally a facility in which care is provided over a relatively long period of time. A more descriptive MINI STEIN NEON ELTON: INTI: L‘m car VICIII) I ION LT 65: UNIT: NH I 311133, I “331.3 35;“ , “JILL 20 definition of long-term care facilities is "health care facilities that provide 24-hour supervision, skilled nursing services, and personal care" (Office of Technology Assessment, 1987, p. 214). Terms used synonymously with long-term care facility are extended-care facility, intermediate- and skilled-care facility, and nursing home. Based on federal regulations, specific services which these facilities must provide to residents include health care services (i.e., the appropriate levels of nursing and medical care), rehabilitative and restorative services, social, dietetic, pharmaceutical, laundry, and housekeeping services, and activities programs. The primary responsibility of long- term care facilities is to provide both adequate services and appropriately trained personnel to maintain the residents’ highest achievable levels of physiological, psychological, and sociological health (American Nurses’ Association, 1975). Long-term care facilities are the most frequently used institutions for demented individuals (Office of Technology Assessment, 1987). Research studies have reported that 65-78% of residents within these facilities exhibit features indicative of dementia (Chandler & Chandler, 1988; Katzman, 1986; Rovner et al., 1986). Although some skilled nursing services may be needed, the majority of demented residents require primarily 24-hour supervision and assistance with ADLs (Office of Technology Assessment, 1987). Therefore, for the purpose of this study, a long-term care facility is defined as a health care facility which provides primarily 24-hour supervision and ADL assistance, as well as skilled nursing, medical, and other required services to maintain the elderly, demented resident’s highest levels of physiological, 21 psychological, and sociological health. Within this project, terms synonymous with long-term care facility include nursing home, interrnediate- and skilled-care facility, and extended-care facility. Combative Behaviors. A definition of combative behavior may be derived from the definitions of combative and behavior. Combative is defined as "marked by eagerness to fight or contend" (Mish, 1985, p. 262). Behavior is defined as "the response of an individual, group, or species to its environment" (Mish, 1985, p. 141). Therefore, combative behavior may be defined as the response of an individual to his environment marked by an eagerness to fight or contend. Behaviors exhibited by demented individuals which are considered to be of a combative nature include deliberate hitting or striking out, kicking, pushing, scratching, pinching, forceful and quick grabbing, and biting (Carroll, 1989; Mace, 1990; Mace & Rabins, 1981; Mentes & Ferrario, 1989; Struble & Siversten, 1987; Winger et al., 1987; Zimmer et al., 1984). Behaviors such as these endanger both demented individuals and others, and may create stress, fear, and exhaustion for demented individuals and their caregivers (Carroll, 1989; Maas, 1988; Mace, 1990; Mace & Rabins, 1981; Richter et al., 1989; Zarit et al., 1985). In a study exploring problem behaviors of nursing home residents (Zimmer et al., 1984), behaviors considered to be endangering most often involved a physical action (e.g., deliberate striking, biting, or scratching). Therefore, within this study, combative behaviors are defined as physical responses of the demented, elderly resident to his or 22 her environment which endanger the resident and others, and may create stress, fear, or exhaustion for the resident and primary caregivers. mm. For the purpose of this project, a definition of demented, elderly resident will be developed through discussion of each concept individually, that is, dementia, elderly, and resident. A diagnosis of dementia is considered by the physician if the individual exhibits a loss of intellectual function resulting in impairments of short and long-term memory, along with impairments of one or more other cognitive areas, including abstract thinking, judgment, and higher cortical functions, such as language, motor activities, recognition of objects, and constructional abilities (American Psychiatric Association, 1987). The individual may also exhibit behavioral problems, mood and personality changes, secondary psychiatric symptoms, and affective disorders (American Psychiatric Association, 1987; Ereshefsky et al., 1989; Katzman, 1986; Mace, 1990; Office of Technology Assessment, 1987, 1990; Patterson & Whitehouse, 1990). In order for a diagnosis of dementia to be made, the observed cognitive impairments must be severe enough to substantially disrupt the individual’s normal social activities and/or relationships (American Psychiatric Association, 1987). In addition, a thorough medical history and physical exam, as well as extensive lab work and possibly diagnostic tests, must be performed to elicit signs/symptoms indicative of dementia and to rule out all other causes of cognitive impairment (Patterson & Whitehouse, 1990). 23 An elderly individual is one who is 65 years of age or older, based on the following delineation of the population: the older population, 55 and older; the elderly, 65 and older; the aged, 75 and older; and the very old, 85 and older (Erwin & Skidmore, 1989). A resident is "one who resides in a place" (Mish, 1985, p. 1003). Therefore, for the purpose of this study, a demented, elderly resident is defined as an individual 65 years of age or older who resides in a long-term care facility, and has exhibited an impairment in short- and long-term memory, along with impairments in one or more other cognitive areas, severe enough to substantially disrupt normal social activities and/or relationships. The individual may also exhibit behavioral problems, mood and personality changes, psychiatric symptoms, and affective disorders. Because the physician must obtain and analyze a significant amount of information when dementia is suspected, a substantial amount of time may pass before the diagnosis of dementia is made (Maletta, 1988). Thus, primary caregivers may interact with individuals who are suspected to have dementia but for whom a diagnosis has not yet been made. Therefore, the protocol developed within this project may be utilized with residents who either have been diagnosed with dementia by a physician, or are suspected to have dementia. 24 The Progressively Lowered Stress Threshold Model Geri Richards Hall, a GCNS at the University of Iowa Hospitals and Clinics, has developed a model depicting the effect environmental stressors have on the behavior of adults with Alzheimer’s disease and related disorders. The model, Progressively Lowered Stress Threshold (PLST), is conceptually linked to the psychological theories on stress, c0ping, and adaptation set forth by Coyne and Lazarus (1981), Lazarus (1966), and Selye (1980). The PLST model is also based upon behavioral and physiological research on Alzheimer’s disease and related disorders, as well as literature related to symptom clusters and behavioral states in adults with dementing illnesses (Hall, 1988a, 1988b; Hall & Buckwalter, 1987). Hall noted that researchers had grouped losses associated with dementia into three clusters, including cognitive, affective, and planning losses. Hall also noted that certain behaviors in demented adults often occurred later in the day or after a stimulating event, and that the patients appeared uncomfortable and/or distressed. Hall hypothesized, therefore, that these behaviors were stress-related, and placed them within a fourth cluster, labeled the PLST group. Behaviors within the PLST group include catastrophic reactions, purposeful wandering, anxious or agitated behaviors (including violence), purposeless behaviors, withdrawal or avoidance behaviors, and compulsive and repetitive behaviors (Hall, 1988a; Hall & Buckwalter, 1987). 25 The assumptions of Hall’s PLST model are as follows: 1. All humans require some control over their person and their environment and need some degree of unconditional positive regard. 2. All behavior is rooted and has meaning; therefore, all catastrophic and stress-related behaviors have a cause. 3. The confused or agitated patient is not comfortable and should be regarded as frightened. All patients have the right to be comfortable. 4. The patient exists on a 24-hour continuum. Care cannot be planned or evaluated on an eight-hour shift basis (Hall & Buckwalter, 1987). According to Hall, demented adults exhibit three basic types of behavior, called "behavioral states": baseline, anxious, and dysfunctional. These behavioral states are the foundation of the PLST model (Hall & Buckwalter, 1987). The amount exhibited of each type of behavior changes as dementia progresses, with dysfunctional behavior generally increasing until the demented individual is no longer able to respond to the environment (Hall, 1988b). Characteristics of each behavioral state are as follows: 1. M1132. A calm state, in which the demented individual’s perceived stress level is low. The individual is both socially accessible (able to respond to communications from others and communicate needs) and cognitively accessible (oriented to, or aware of, the surrounding 26 environment). The individual experiences the maximum levels of function possible considering losses associated with dementia. m- The individual begins to perceive offending, stressful stimuli. The individual attempts to avoid these stimuli, but is still able to react appropriately to the environment. Caregivers are still able to initiate or maintain communication with the individual. Behavioral indicators of increased anxiety include decreased socialization (e.g., loss of eye contact), increased psychomotor activity (e.g., fidgeting, pacing), and decreased levels of function. Dysfunctional. Stressful stimuli are allowed to continue or increase, and the individual is highly aware of these stimuli. He or she is no longer able to communicate effectively with caregivers or use the environment in a functionally appropriate manner (socially and cognitively inaccessible). The individual experiences a significant impairment of functional levels, as well as decreased levels of comfort and safety. Dysfunctional behaviors occur, generally appearing suddenly and lasting a relatively short period (Hall, 1988a, 1988b; Hall & Buckwalter, 1987). These behaviors, considered to be stress-related and labeled the PLST group, include the following: compulsive or repetitive behaviors, withdrawal or avoidance behaviors, noisy or purposeless behaviors, confusion, ”sundowner’s syndrome”, agitated or 27 violent behaviors, and catastrophic reactions (Hall, 1988a, 1988b; Hall & Buckwalter, 1987). An important concept of the PLST model, stress threshold, was not conceptually defined in the literature reviewed. A definition of this concept may be derived, however, from the definitions of stress and threshold. A stress or stressor is defined as any adverse stimulus, physical, mental, or emotional, internal or external, that tends to disturb homeostasis, and elicits compensatory reactions in an attempt to regain homeostasis (Taylor, 1988). Threshold is defined as ”the place or point of entering or beginning” (Gove, 1986, p. 2383). Therefore, stress threshold may be defined as the point at which compensatory reactions begin in response to an adverse internal or external physical, mental, or emotional stimulus in an attempt to regain homeostasis. For the purpose of this project, in relation to the PLST model, the stress threshold is the point at which the demented individual displays compensatory reactions (i.e., combative behaviors) in response to perceived overwhelming internal or external physical, mental, or emotional stimuli in an attempt to regain homeostasis. According to the PLST model, the individual whose cerebral function is intact maintains a relatively stable stress threshold as time progresses (see Figure 1). The person with an irreversible dementia such as Alzheimer’s disease, however, experiences a progressively lowered stress threshold as brain cells degenerate and cerebral function declines (see Figure 2). This is because, as cerebral function declines, the demented individual’s ability to accurately receive, process, and respond 28 to stimuli and information decreases (Hall & Buckwalter, 1987; Hall, Kirschling, & Todd, 1986). Furthermore, the aging process may impede the elderly, demented individual’s ability to cope with environmental stressors, due to a decrease in mobility and hormones, sensory losses, and slowed synaptic response times (Hall & Buckwalter, 1987). The combination of a progressive decline in cerebral functioning and degenerative changes that occur with aging results in an increased sensitivity to stressors, a decreased ability to cope effectively with stressors, and an increased potential for displaying anxious and dysfunctional behaviors (Hall & Buckwalter, 1987). For the demented individual, consistent or heightened levels of exposure to stressors increases the potential for the display of anxious, then dysfunctional behaviors as energy is depleted, fatigue increases, and the stress threshold is exceeded, as is seen in Figure 2 (Hall, 1988a, 1988b; Hall & Buckwalter, 1987; Hall et al., 1986). Furthermore, exposure to stressors on a routine basis may push the individual into a cycle of dysfunctional behavior (see Figure 3), creating risks such as injury, social isolation, physical and chemical restraint use, and functional impairments (Hall etal., 1986). Prolonged exposure to high levels of stress may also result in excess disability, that is, the development of additional functional impairments and losses that subside when the stress level is diminished (Hall & Buckwalter, 1987). In addition to the increased risks for demented individuals, the cyclical occurrence of dysfunctional behaviors may increase both injuries to, and demands on, caregivers, possibly leading to burnout. Within long-term care facilities, lucid residents exposed 29 Dysfunctional Behavior (Fight or Flight) Stress Threshold n” Anxious Behavior llllllllllllllllllllllll Perceived Stressors Normative Behavior EignnLL Stress threshold in normal individuals. N91; From "Progressively lowered stress threshold: A conceptual model for care of adults with Alzheimer's disease" by G. R. Hall and K. C. Buckwalter, 1987 , Amh'meufi Wm, 1(6), p. 402. Copyright 1987, by W.B. Saunders Company. Reprinted by permission. Stress Threshold I l Perceived Anxious Stressors Behavior Normative Behavior W- Progressively lowered stress threshold in adults with progressive degeneration of the cereme cortex (Alzheimer‘s Disease and related disorders). Nate. From "Progressively lowered stress threshold: A conceptual model for care of adults with Alzheimer’s disease" by GR Hall and KC. Buckwalter, 1981mm Nursing, 1(6), p. 403. Copyright 1987, by W .B. Saunders Company. Reprinted by Permission. 31 I I : Dysfunctional Behavior | I , I 1"" A _ - , , Stress Threshold II I I ll H‘T” ~ u I H - I I w- , , , Anxious Behavior I I Normative Behavior A.M. Noon P.M. Night figure}. A typical day for an adult with a dementing illness in an unstructured care program. Ema. From "Progressively lowered stress threshold: A conceptual model for care of adults with Alzheimer's disease" by GR. Hall and KC. Buckwalter, 1987, Amhimf Wing, 1(6), p. 403. Copyright 1987 by W.B. Saunders Company. Reprinted by permission. 32 to dysfunctional behaviors may be negatively affected, for example, through the fear of harm from violent demented residents (Hall et al., 1986). Previously, it was believed that demented individuals’ antisocial behaviors such as combativeness occurred randomly, with management consisting of physically and/or chemically restraining these individuals and keeping them in a highly stimulating environment (Hall & Buckwalter, 1987). However, the PLST model proposes that combative and other dysfunctional behaviors are related to demented individuals’ consistent or heightened exposure to environmental stressors. The hypothesis of the PLST model is "that normative or baseline behavior and maximum functional levels can be achieved by supporting losses in a ‘prosthetic manner’, rather than testing them, thereby increasing stress, and by controlling for the factors related to stress, which cause excess disability" (Hall & Buckwalter, 1987, p. 402). Based on this hypothesis, rehabilitative approaches used in the past which tested the demented individuals’ limited cognitive abilities (e. g., maximizing sensory input, reath testing, and attempting to retrain lost skills) would increase the frustration and stress experienced by these individuals. Examples of approaches which would support losses in a prosthetic manner and decrease stress, as the PLST model proposes, are the use of reassuring therapies (e.g., validation, reminiscence, or music) and providing the demented individual with a consistent routine (Hall & Buckwalter, 1987). In addition to supporting losses prosthetically, normal behavior and maximum functional levels are promoted by diminishing stress-producing factors in the demented individual’s environment. For the demented individual, factors related to stress 33 include the following: fatigue; change of environment, caregiver, or routine; internal or external demands to function beyond the limits imposed by cortical deterioration; competing, misleading, or overwhelming stimuli; and physical stressors (Hall, 1988a, 1988b; Hall & Buckwalter, 1987). Interventions to minimize the occurrence of anxious and dysfunctional behaviors are determined by the demented individual’s stress level. reflected in his or her behavioral state (Hall & Buckwalter, 1987). The demented individual experiencing minimal stress exhibits baseline or normative behavior (i.e., he or she is generally calm, oriented to and aware of the environment, and communicates effectively with others). Examples of interventions to maintain baseline behavior include providing a consistent routine, orienting cues, and regular quiet rest periods for the demented individual (Hall & Buckwalter, 1987). As the demented individual becomes increasingly aware of stressors, his or her stress level begins to rise. Anxious behavior is displayed (e.g., stressful situations are avoided, psychomotor activity increases, socialization decreases, and cognitive, physical, and emotional functional levels decrease). Interventions to decrease the potential for further anxious or dysfunctional behavior at this stage include: providing unconditional, positive regard; carefully observing for messages of increased fatigue, anxiety, or stress; and modifying and simplifying environmental factors until anxious behavior ceases (Hall & Buckwalter, 1987). 34 As the demented individual’s awareness of consistent or increased stressors is heightened, the stress level continues to rise until the stress threshold is exceeded. At this point dysfunctional behavior is manifested, accompanied by significant impairments in communication and functional levels and decreased comfort and safety. In addition to the previously mentioned interventions, interventions at this stage focus on the following: protecting the demented individual and others from harm, identifying and eliminating factors aggravating dysfunctional behavior, promoting a calm environment, establishing trust with the individual, reestablishing communication with the individual, reorienting the individual to his or her environment, resolving the dysfunctional behavior, minimizing the individual’s anxiety and promoting comfort, and promoting rest for the individual (Gugel, 1988; Hall & Buckwalter, 1987; Hoffman & Platt, 1990; Robinson, Spencer, & White, 1989). Hall’s PLST model may be utilized to develop educational programs for primary caregivers of demented adults, and to guide practice and research related to the care of the demented in a variety of settings, such as home care, day care, acute care, and long-term care (Hall & Buckwalter, 1987). Various research designs have been used to test the PLST model, including pretest-postest, repeated measures, and retrospective chart reviews. The PLST model has been tested in several different settings, including adult day care and long-term care facilities. Dependent variables utilized to measure the PLST model’s effectiveness with demented patients have included sleep and socialization patterns, weight gain, the use of sedatives and tranquilizers, the frequency 35 of agitated behaviors, the functional levels of demented patients, and family satisfaction with care (Hall & Buckwalter, 1987; Hall et al., 1986). Application of the PLST Model to the Problem of Combativeness The PLST model can be utilized to gain further insight into the problem of combativeness in demented, elderly residents. The risk factors within the PLST model identified as being stress-producing and aggravating dysfunctional behaviors, such as combativeness, are commonplace within the environment of the demented resident. Examples of these risk factors within a long-term care facility are as follows: 1. m. The hallways are often long, without cues to stop and rest, encouraging continuous and tiring pacing of the demented resident (Hall et al., 1986). Change of environmeng caregiver, or routine. The demented resident may be moved to another room or an unfamiliar nurse’s aide may care for the resident. Internal or external demands to function beyond the limits imppsed by cortical deterioration. The demented resident may attempt to write a letter (internal), or the nurse’s aide may ask the resident to brush his or her teeth (external), although the demented resident no longer has the cognitive abilities to perform these tasks. 36 4. CommtingI misleading, or overwhelming stimuli. The demented resident placed in the dayroom may be exposed simultaneously to the loud and bright television, the voice on the overhead paging system, and the confused resident repeatedly asking for her baby. This may result in increased confusion, fatigue, and frustration related to the inability to accurately perceive, process, and respond to these multiple stimuli. 5. Physical stressors. The demented resident may be uncomfortable due to a tightly-tied restraint but is unable to communicate this or reposition the restraint. Because the risk factors identified within the PLST model (Hall, 1988a; Hall & Buckwalter, 1987) as being stress-producing are present within long-term care facilities, the potential exists for the display of combative behaviors by demented residents. According to the PLST model, frequent or heightened levels of exposure to these risk factors would increase the potential for the demented resident to exceed his or her stress threshold and manifest combative behaviors. Consistent exposure to stress-producing factors could result in excess disability, as well as a vicious cycle of combativeness. A cycle of combativeness would consist of fluctuations between anxious and combative behavior as the demented residents’ stress threshold was repeatedly exceeded (Hall & Buckwalter, 1987). Potential complications of such a cycle could include physical injury, social isolation, physical and chemical restraint use, and increased functional impairments. 37 Based on the assumptions and concepts within the PLST model, as well as literature on the management of problem behaviors of the demented (Carroll, 1989; Maas, 1988; Struble & Siversten, 1987), the goal for primary caregivers managing combative behaviors should be to assist demented, elderly residents to reestablish their maximum levels of safety, comfort, and function possible considering the dementing process. According to the PLST model, the achievement of this goal would be enhanced if primary caregivers focused on identifying and eliminating the stressors aggravating combative behaviors, in addition to controlling the behaviors. Attempting to manage a problem behavior (e.g., with physical or chemical restraints) without first attempting to identify and eliminate causative factors may exacerbate the problem behavior (Gugel, 1988). Thus, the resolution of combative behaviors depends on the caregiver’s ability to identify and eliminate causative factors, as well as to manage the combative behaviors. Schematic Representation of the Conceptual Framework Up to this point, the problems related to combative behaviors of demented, elderly residents and the utility of Hall and Buckwalter’s (1987) PLST model for gaining an understanding of the nature of these behaviors have been discussed. Figure 4 is a schematic representation of the relationships between the problems associated with combative behaviors of demented, elderly residents, Hall’s PLST model, and the role of the GCNS. 38 H. “WITH ENDED. .3 8.9.3. .558 285.... .m .3 .3 a... 5.5.5 .3: . . . . .5... 31.53.. .OO. 3. .3. x c .3 .88.... $5.52 5.3 5...... .o as a. .32.. 13.8.8 < 6.2.2... .8... .333... 53.858... 52. 3...... as... £0325... 2.5.02.8 o... .0 egg». 3.3.2.8 g . Nina: 3...... 838R. 3...... 8.8 —08.£ &O .2325 bust.— Sasesueqa. .82.... :88 8.858 "l' ‘ ' ‘ " , .32.. 2.6 3.35.5 «3:2... .9‘» V5 £0528 so 495 3323 .v 38.35.? .8353 .v m: A. .9585. 553: .m u u H" 33.38.. b . . on \..8E.&....s§.:m n 6331801 . . . «3......- gablxufi .. . . " 3.3.59.8...” , .9 fl s. u g u a - ohu DIE... .395... 8:8... Eon< 2.352 .80....» ow 3. .895? AI. 3 .0 wZUO E35 . 35.3.2.2...- dscadhn 3.3.5.8.; .e 8.....22. :58: .. s... 318.5 .35. .— Digs.— 8..8.2.. 2.52 .381 33...... 8......an # .252 303’. soil-on 2.2 \ Eon-S ~ Eh 8:033 533% I— §» Bag—no 8.583 I fi fi .52.... 38...... .382 :25 39 Within this schematic, each of the three behavioral states of the demented individual proposed by Hall (Hall & Buckwalter, 1987), that is, baseline, anxious, and dysfunctional, is represented as a rectangle containing the characteristics of that behavioral state. The rectangle representing dysfunctional behavior is labeled combative behavior. The progression of the demented resident’s behavior from baseline to anxious to dysfunctional as his or her stress level increases, is depicted by the left to right sequencing of the rectangles, as well as the increasing darkness of the rectangle borders. The vertical arrows between each behavioral state represent the perceived environmental stressors of the demented resident. As the demented resident’s perception of environmental stressors is heightened, represented by the increasing number of vertical arrows from left to right, his or her level of stress is increased. The demented resident’s increasing stress level is represented by the progressive increase in the width of the horizontal arrows, which represent the demented, elderly resident’s passage from one behavioral state to the next. When the demented, elderly resident exceeds his stress threshold, represented as a broken vertical line between anxious and dysfunctional behavior, combative behavior may occur. The stress threshold line is broken to indicate the potential for the resident to return to anxious or baseline behavior if environmental stressors are diminished or eliminated. 40 The circle connecting anxious and combative behavior represents the cycle of combative behavior, which develops due to the demented resident’s consistent exposure to environmental stressors. The circle is broken to indicate its openness to intervention. The rectangle representing combative behavior in the demented resident has an arrow above and below it connecting it to two rectangles, which represent others in the area surrounding the combative resident (other residents, staff, and visitors at the facility), and primary caregivers (physicians and nursing personnel). To the right of the rectangle is a square representing the GCNS as a change agent, who oversees the implementation and evaluation of a protocol for the management of combative behavior in demented, elderly, long—term care residents. The arrow from the GCNS to other primary caregivers signifies the effect the GCNS’s intervention has on these caregivers (i.e., a change in their behaviors related to the management of combativeness). The arrows connecting the GCNS to the combative demented resident and others around him or her signify the effect the GCNS’ intervention has on these individuals (i.e., the resolution of the resident’s combative behavior and a decrease in negative outcomes experienced by those involved in the combative episode). The arrows exiting from the right side of the GCNS square indicate the positive impact that the protocol development and implementation could have on professional and advanced nursing practice and primary care, which is discussed in Chapter IV. Three arrows exit from the rectangle representing primary caregivers of combative, demented residents. The first, which points toward the stress threshold, 41 represents the primary caregiver’s implementation of the protocol at the point at which combative behavior may occur (i.e., when the demented resident’s stress threshold is exceeded). The second arrow, which slants to the left and points to the cycle of combative behavior, signifies the primary caregiver’s ability to break this cycle and assist the demented resident to return to baseline behavior, through the use of the protocol and the appropriate follow-up. The third arrow, pointing horizontally to the left, signifies the positive impact which the primary caregiver’s utilization of the protocol would have on the demented resident, others around him or her, and the primary caregiver. Through the implementation of the protocol and the appropriate follw-up, the primary caregiver would decrease the demented resident’s risk for physical injury, discomfort, fatigue, physical and chemical restraint use, social isolation, and functional impairments. For others around the demented resident (i.e., other long-term care residents, staff, and visitors) the primary caregiver’s utilization of the protocol would decrease their risk for physical injury and negative emotions, such as fear and uncertainty. By utilizing the protocol, the primary caregiver would also decrease his or her own risk for physical injury, negative emotions, and physical and emotional exhaustion. In conclusion, within this chapter the introduction, background, and statement of the problem, as well as the purpose of this scholarly project, have been presented. A conceptual framework has also been presented, along with a schematic representation of the conceptual framework, depicting relationships between the problems associated with combative behaviors of demented, elderly residents, Hall’s PLST model, and the 42 GCNS. In the following chapter a review of the literature relevant to this project is presented. CHAPTER II Review of the Literature Introduction The purpose of this chapter is to present a review of the literature related to factors causing combative behavior in the demented and techniques for its management. Due to the lack of literature specifically discussing combative behavior, the first section will cover literature related to agitated, disruptive, and aggressive behavior in the demented. In the second section, the literature related to behavioral, environmental, communicative, and pharmacological management of problem behaviors (including combativeness) in the demented will be presented. Egtors Related to Combative Belgvior Agitated Behavior Agitation may be defined as ”inappropriate verbal, vocal, or motor activity that is not explained by needs or confusion per se" (Cohen-Mansfield & Billig, 1986, p. 712). Cohen-Mansfield and Billig (1986) defined inappropriate behaviors as those that were aggressive or abusive toward self or others, excessively repetitive, or opposed accepted social standards. Combative behaviors (e.g., biting and hitting) were included in Cohen-Mansfield and Billig’s (1986) examples of agitated behaviors. The following is a review of the research literature on causative factors of agitation in nursing home residents. 43 44 Cohen-Mansfield (1986) conducted a study to explore the relationship of agitation to certain variables and professional staffs’ perceptions of causes of agitation in elderly nursing home residents. The sample included 66 residents from two skilled units. The Cohen-Mansfield Agitation Instrument (interrater reliability of .88) measured the frequency of subjects’ agitated behaviors (including hitting, kicking, and biting). The Rapid Disability Rating Scale-2 and the Brief Cognitive Rating Scale assessed ADL and cognitive function, respectively. The rating team also stated their perceptions of why subjects became agitated. Using t—tests, no significant differences were found between the agitated and non- agitated groups in cognitive level, age, or frequency of awakening at night. However, agitated subjects received significantly more psychotropic medications for agitation (p < .001) and had a significantly higher incidence of falls (2 < .031) (Cohen-Mansfield, 1986). Because agitated subjects received more medications for agitation, Cohen- Mansfield (1986) questioned whether these drugs were relieving or aggravating agitation. The factors which professional staff related to subjects’ agitation were grouped into four interrelated categories: moods and needs, events, disabilities, and past unresolved issues. Factors within these categories included frustration at the loss of control and the invasion of territory or personal space, loneliness, depression, behavior of other residents, and discomfort from constipation or restraints. Generalizability of this study was limited due to the small sample (Cohen-Mansfield, 1986). 45 Werner, Cohen-Mansfield, Braun, and Marx (1989) conducted an observational study on the relationship between physical restraints and agitation in cognitively impaired nursing home residents. The subjects exhibited significantly more strange movements, strange noises, and total agitation when restrained (p < .05), as well as increases in the amount of aggressive behaviors. The researchers questioned the effectiveness of physical restraints in quelling agitation. Cohen-Mansfield, Marx, and Rosenthal (1989) studied the frequency of agitated behaviors documented by charge nurses over three shifts within a 2 week period. The sample was 408 nursing home residents who exhibited varying levels of physical and cognitive decline. The Cohen-Mansfield Agitation Inventory, a nurses’ rating questionnaire consisting of 29 agitated behaviors (including hitting, kicking, and grabbing), was used to document agitated behaviors. Interrater reliability for three sets of raters averaged .92, .92, and .88. Data analysis indicated that the frequency of agitated behaviors was significantly different (p_ < .01 to .05) across the three shifts, with subjects exhibiting 3.8, 3.3, and 2.1 different agitated behaviors at least once a week for the day, evening, and night shifts, respectively. Higher daytime agitation levels were attributed to subjects’ increased activity (Cohen-Mansfield et al., 1989). Cohen-Mansfield and Marx (1988) examined the relationship between depression and agitated behavior in 408 nursing home residents (54.4% diagnosed with dementia). The Cohen-Mansfield Agitation Inventory (Cohen-Mansfield et al., 1989) measured the frequency of agitated behaviors. The Depression Rating Scale (interrater reliability of 46 .73) measured dimensions of depression. Nursing and social work staff rated subjects, and relationships between depression, agitation, and other variables were determined. Aggressive agitated behaviors related significantly to social and activity dimensions of depression, that is, poor ability to communicate, infrequent and poor quality of social interactions (2 < .01), and low activity level (p < .05). Aggressive agitated behaviors were positively related to severity of dementia and negatively related to gender (Cohen-Mansfield & Marx, 1988). Hall et al. (1986) conducted a study of 12 Alzheimer’s disease residents in an intermediate-care facility to evaluate the effect of a low-stimulus unit on their functional levels. The unit’s therapeutic environment and resident care plans were based upon Hall’s PLST model (Hall & Buckwalter, 1987). Approximately one-half of the residents had been discharged from other facilities due to agitated or violent behavior. Overwhelming and potentially misleading stimuli were minimized on the unit and scheduled rest periods, consistent routines, and environmental cues were provided. Subjects were allowed to wander freely on the unit. After 3 months, changes observed in subjects’ behaviors included increased social interaction, decreased agitation, wandering, and neuroleptic drug use, and the elimination of combative behaviors, delusions, and illusions. Limitations of the study included the short evaluation period and the lack of qualitative and quantitative measurement tools (Hall et al., 1986). In summary, the literature reviewed described three different types of agitated behavior: aggressive (including combative behaviors). physically nonaggressive, and 47 verbal. Dementia and the male gender were factors predisposing to agitation. Factors precipitating agitation included physical stressors (e.g., medication side effects, fatigue, or discomfort), overwhelming or misleading stimuli, and changes in routine. Other factors aggravating agitated behavior were the behavior of other residents and negative feelings such as frustration, loneliness, and depression. These feelings are often associated with perceived losses in the areas of control and independence, personal space and territory, the ability to communicate, meaningful activities, and social supports. Disruptive Behavior Disruptive or problem behaviors are those which are perceived as bothersome and/or intolerable by observers, elicit negative reactions from others, and/or harm the offender or his environment (Ebersole, 1989; Sillirnan, Stemberg, & Fretwell, 1988). Examples of disruptive behaviors are combativeness, yelling, wandering, and refusing to eat or drink (Ebersole, 1989; O’Connor, 1987). A review of the literature on factors related to disruptive behavior in the demented follows. Jackson, Drugovich, Stemberg, Fretwell, and Spector (1987) examined the relationships between nursing home resident characteristics and disruptive behaviors. Subjects (131 = 2371) were randomly selected from Rhode Island nursing homes. Multivariate analyses indicated that a history of disruptive behavior, cognitive status, gender, and dissatisfaction with one’s support system were significantly related to disruptive behavior. 48 Teri, Borson, Kiyak, and Yamagishi (1989) studied 56 Alzheimer’s disease patients and their caregivers to describe the prevalence and types of behavioral problems found in community-based Alzheimer’s disease victims. The relationships between behavioral problems and the subjects’ levels of cognitive and functional impairment were also explored. The Dementia Rating Scale-Coblentz assessed cognition. Caregivers completed the newly developed Behavioral Problems Checklist and the Instrumental Activities of Daily Living and Self-Care Skills tool. Behavioral problems related to cognitive function were reported most frequently by caregivers, followed by those associated with activity and emotional distress. Physically aggressive behaviors were not reported, although verbal aggression and destruction of property were. Male subjects exhibited significantly more problem behaviors than female subjects (1; < .05). The level of impairment of conceptual skills approached statistical significance with the number and persistence of behavioral problems (Teri et al., 1989). The researchers concluded that behavioral problems were prevalent in community- based Alzheimer’s disease victims, and that those with decreased conceptual skills might be less able to problem solve and more prone to display problem behavior. Limitations of the study included the use of a new measurement tool and the reliance on caregivers’ reports, which were possibly biased (Teri et al., 1989). Silliman et al. (1988) presented two case studies in which seveme demented patients lived with family caregivers who were either verbally abusive or fought 49 frequently with others. In both situations, the demented patients’ disruptive behaviors diminished upon separation from their caregivers. O’Connor (1987) performed a reu'ospective study on factors related to the exacerbation of problem behaviors of demented patients (5 = 70) referred for admission to a psychiatric hospital over a 21 month period. The behaviors manifested included physical aggression, severe wandering, and refusal to eat or drink. Data were collected from clinical records and interviews with relatives. Factors related to problem behavior exacerbations included drug-induced delirium (8.5%), active physical illness, such as infections, congestive heart failure, or transient ischemic attacks (34.4%), psychiatric illness (20%), and premorbid personality problems (43%). In only 39% of subjects was a worsening of dementia considered solely responsible for problem behavior exacerbation. As evidenced in O’Connor’s (1987) study, delirium can exacerbate disruptive behaviors in demented individuals. Delirium presents as an acute change (usually occuning over several hours to days) in cognitive function and a clouding of consciousness, accompanied by disturbances of perception, speech, sleep, and psychomotor activity. Delirious individuals may display agitation and combativeness (American Psychiatric Association, 1987; Ereshefsky et al., 1989; Patterson & LeClair, 1989). Drug intoxication (commonly with anticholinergic drugs, such as anti- Parkinsonians and antipsychotics) as well as drug withdrawal (e.g., from benzodiazepines) can induce delirium. Other factors causing delirium include 50 endocrine (e.g., hypoglycemia or hypercalcemia) or metabolic (e.g., organ failure or dehydration) disturbances, seizures, neoplasms (either by direct mass or remote effects), trauma (e.g., concussion, subdural hematoma, fracture, or surgery), infections (e.g., respiratory or urinary tract), and vascular events (Patterson & LeClair, 1989). According to Ray et al. (1990), disruptive behaviors of nursing home residents are most frequently associated with a dementing illness. Potentially reversible physical factors related to disruptive behaviors include drug intoxication, metabolic disorders, infections, cardiac or brain disorders (e. g., arrhythmias or transient ischemic attacks), nutritional deficiencies (e.g., B-12, folic acid, or niacin), and hypothermia. Mental disorders such as depression and chronic or late-onset schizophrenia can result in disruptive behaviors. Disruptive behaviors can also occur secondary to environmental or psychosocial changes, for example, changes in lighting or noise level, sensory deprivation, or the loss of a significant other. Psychiatric symptoms (i.e., delusions, hallucinations, and illusions) can also precipitate disruptive behaviors in the demented (O’Connor, 1987; Patterson & LeClair, 1989). These symptoms may be due to dementia itself, or to other factors, such as medication side effects, a concurrent psychiatric illness, or sensory losses (Burnside, 1981; Carroll, 1989; Hussian & Davis, 1985; Patterson & LeClair, 1989). Researchers have documented the occurrence of psychiatric symptoms and their relationship to aggressive behavior in demented nursing home residents. Rovner et al. (1986) reported that active aggression occurred more frequently in the 38% of 51 demented nursing home residents manifesting delusions and hallucinations, compared to other demented residents in their study. Morriss, Rovner, Folstein, and German (1990) reported that 20.8% of nursing home residents displayed delusional behavior. These residents manifested more cognitive impairment and physical and verbal aggression than other residents in the study. Nursing assistants recognized delusions in only 19% of the delusional residents, emphasizing the need to educate long-term care nursing staff on the recognition and management of residents manifesting psychiatric symptoms. Another potential cause of disruptive behaviors (including combativeness) in demented individuals is catastrophic reactions, i.e., ”sudden episodes of strong emotion that occur in situations that overtax the demented patient’s coping ability" (Howell & Watts, 1990, p. 431). Stressors such as relocation or a change in caregiver can aggravate a catastrophic reaction. In summary, the literature reviewed identified aggressive or combative behavior as one type of disruptive behavior in the demented. Predisposing factors related to disruptive behavior included cognitive impairment, a past history of disruptive behavior or a mental disorder, and the male gender. Suggested physical precipitants of disruptive behavior included an irreversible dementia and potentially reversible factors often associated with delirium. The onset of psychiatric disorders (e. g., depression or late-onset schizophrenia) as well as psychiatric symptoms could also provoke disruptive behaviors. Finally, the manifestation of disruptive behaviors could be due 52 to environmental or psychosocial changes such as relocation, a change of caregiver, or a diminished social support system. Agwsive Behavior As discussed in Chapter I, the literature on dementia often utilizes the term aggressive to describe behaviors defined within this study as combative, that is, deliberate hitting or striking out, kicking, pushing, scratching, pinching, grabbing, and biting. Due to the lack of research literature on "combative" behavior, the following is a review of the literature on factors related to aggressive behavior in the demented. Ryden (1986) and Hamel et al. (1990) performed studies to determine the frequency and nature of aggressive behavior in community-based demented persons. Measurement instruments completed by caregivers included the 25-item Ryden Aggression Scale, the General Health Questionnaire, the Burden Interview, the Memory and Behavior Problem Checklist, and the Social Interaction Questionnaire. Analysis of the data indicated that verbally aggressive behavior was reported most frequently, followed by physically and sexually aggressive behavior, respectively. Predisposing factors related to aggressive behavior included premorbid aggressive behavior, greater severity of cognitive impairment, greater frequency of behavioral and memory problems, and a troubled premorbid caregiver/carereceiver relationship. The situation most often aggravating aggressive behavior was caregivers telling demented subjects to "do something" (Hamel et al., 1990; Ryden, 1986). Beck et al. (1990) performed a descriptive study on 21 nurses’ and 20 nursing assistants’ perceptions of aggressive behaviors displayed by nursing home residents. A 53 guided interview format was used to obtain information from subjects. Verbal and physical aggression were reported by 95% and 68% of subjects, respectively. Physically aggressive behaviors reported included kicking, hitting, and pinching. Aggressive behaviors were reported to occur most frequently when residents were receiving ADL assistance and medications. Reasons given for residents’ aggression included receiving care from a new staff member, acting out for family, wanting things done their way, unfulfilled requests, illness, homesickness, medications, fear, confusion, restraints, being a new resident, inability to communicate, and disliking a roommate. Meddaugh (1987a, 1990) studied the differences between 14 aggressive and 13 non-aggressive cognitively impaired nursing home residents. Data were collected over a 5 week period through subject observations, semi-structured interviews, and chart and incident report reviews. Analysis of the data indicated that compared to nonaggressive subjects, aggressive subjects were offered fewer choices and were more nonverbal, socially isolated, cognitively impaired, dependent on others for care, and emotionally unpredictable. In two situations residents forced a change in their care through aggressive behavior when other means of communication had failed. Meddaugh (1987b) described characteristics of abusive nursing home residents and abused caregivers. The operational definition of abusive behavior was similar to that of combative behavior. The sample consisted of 72 residents and 97 nurses and aides in a skilled-care facility. Data were collected through a retrospective chart and 54 incident report review spanning a 3 month period and were analyzed using descriptive statistics. The highest rate of abuse occurred in severely confused subjects and subjects who received less support from significant others. There were more abusive acts toward nurses’ aides (18 vs. 2 for RNs and 6 for LPNs), and 35.3%, 26.3%, and 21% of abusive incidents occurred during the day, evening, and night shifts, respectively. It was suggested that abusive residents were more confused and acting out due to feelings of rejection and loneliness, and that subjects were more abusive when receiving ADL assistance from aides (Meddaugh, 1987b). To summarize, researchers have suggested that aggression is a behavior problem manifested by both community- and institutionally-based demented individuals. Predisposin g factors related to aggression included the male gender, a greater severity of cognitive impairment, a greater frequency of behavioral and memory problems, and a premorbid aggressive personality or troubled caregiver/carereceiver relationship. Causative factors of aggressive behavior discussed within the literature included negative feelings such as fear, rejection, loneliness, and frustration. These feelings may be related to other suggested causative factors such as unmet needs, social isolation, restrictions on behavior and choice, dependency in ADLs, and the inability to communicate. Other causative factors of aggressive behavior discussed within the literature included a change of environment or caregiver, illness, restraints, and increased activity and stimuli. 55 Summary of Factors Related to Combative Behavior In conclusion, no research literature was found which specifically addressed combativeness in the demented elderly. However, combative behaviors were discussed within the research literature on agitated, disruptive, and aggressive behaviors in the demented. Predisposing factors related to aggressive and combative behaviors include a greater severity of cognitive impairment, a greater frequency of behavioral or memory problems, a past history of aggressive behavior or a mental disorder, a troubled premorbid caregiver/carereceiver relationship, and the male gender. Possible precipitants of aggressive and combative behaviors were also identified in the literature reviewed. Many of these precipitants can be placed within the categories of stress-producing factors identified by Hall. These categories are: changes in the environment, caregiver, or routine; demands to function beyond the limits imposed by cortical deterioration; overwhelming, competing, or misleading stimuli; physical stressors; and fatigue (Hall, 1988a; Hall & Buckwalter, 1987). Changes in the environment which are associated with increased agitation and aggression include relocation, sensory deprivation, and changes in physical factors such as lighting and noise. Factors such as an unfamiliar caregiver or an inconsistent daily routine may also heighten agitation in the demented. The fact that demented subjects were more aggressive when told to ”do something" suggests that caregivers at times expect the demented to perform beyond their mental and physical capabilities. Aggression may also be an expression of the 56 anger and frustration experienced by the demented as mental and physical capabilities deteriorate. A greater frequency of aggressive and combative behaviors both during the day and on regular nursing units within long-term care facilities suggests that high levels of overwhelming and competing stimuli aggravate these behaviors. Misleading stimuli such as the overhead paging system could precipitate psychiatric symptoms resulting in aggression in demented nursing home residents. Physical stressors related to combativeness include the progression of an irreversible dementia and factors often related to delirium (e. g., drug intoxication or withdrawal, metabolic or endocrine disorders, and infections). Discomfort and fatigue may also aggravate combative behaviors. The development of psychiatric disorders such as depression and late-onset schizophrenia could precipitate aggressive behaviors. Psychiatric symptoms due to dementia, psychiatric disorders, sensory losses, or medication side effects could also result in aggressive behaviors. A relationship between negative feelings such as frustration, anger, loneliness, boredom, and depression and the occurrence of agitated, disruptive, and aggressive behaviors was suggested in the literature reviewed. The literature also supported an association between these negative feelings and the losses experienced by the demented elderly. Examples of these include losses of control, independence, personal space and territory, the ability to communicate, meaningful activities, significant others, and an adequate social support system. 57 Thus, factors have been identified that are related to combative behaviors in demented residents. Nursing staff intervening during a combative episode often respond to the combative behavior, ignoring the factors provoking such behavior (Ebersole, 1989). In such situations the caregivers’ response (e.g., physically restraining the resident) may result in only temporarily halting the behavior or in increasing its frequency and intensity (Gugel, 1988). In order to effectively manage combative behaviors, therefore, caregivers must focus on both eliminating any aggravating factors and on controlling the combative behaviors. Mment of Combative Behavior Although the management of the physical and cognitive impairments of dementia is demanding, perhaps the most difficult task for caregivers is tolerating and managing problem behaviors (Mace, 1990). Severe problem behaviors such as combativeness can jeopardize both the demented elder’s and caregiver’s safety and result in physical and emotional exhaustion. Because the use of several approaches has been recommended to manage problem behaviors (Eirner, 1989; Maletta, 1988) the following discussion will focus on behavioral, environmental, communicative, and pharmacological interventions for the management of combative behavior in the demented elderly. 58 Behavioral Management Behavioral therapy is defined as "any intervention that attempts to change the frequency, intensity, duration, or location of a specific behavior or set of behaviors through systematically varying antecedent stimuli or consequential events" (Hussian & Davis, 1985, p. 15). Behavioral therapy has been suggested as an effective approach for the management of geriatric behavioral problems, including combativeness (Ebersole, 1989). The following is a discussion of behavioral therapy principles and techniques relevant to the management of combative behaviors in demented residents. The first step toward managing a problem behavior is specifically defining the problem or ”target" behavior (Gugel, 1988). Once the target behavior is defined, the frequency, duration, and intensity of the behavior are observed and recorded (Hussian & Davis, 1985). An accurate description of the target behavior provides a standard upon which to evaluate the effectiveness of behavioral interventions (Ebersole, 1989). Because behavior is largely a reaction to environmental stimuli, antecedents (i.e., events occurring just prior to the target behavior) are also identified. When identifying antecedents of combativeness, it is important to identify both external, observable antecedents, such as excessive noise and internal, nonobservable antecedents, such as delusions or hypoglycemia (Hussian & Davis, 1985). Consequents (i.e., events immediately following the target behavior) should also be identified (Hussian 81. Davis, 1985). Combative behavior may occur because of reinforcing consequents, defined as events which increase the probability of the recurrence of the behavior (Ebersole, 1989; Gugel, 1988; Hussian & Davis, 1985; 59 Janosik & Davies, 1989; Letemendia, 1985). Examples of reinforcing consequents related to combativeness include escape from an undesirable activity and gaining attention (Chafetz, 1988; Hussian & Davis, 1985; Letemendia, 1985). Once the combative behavior has been evaluated, behavioral techniques may be utilized to reduce its occurrence. Due to impairments in memory, comprehension, and learning, some behavioral techniques are not appropriate for the demented resident (Hussian & Davis, 1985; Letemendia, 1985). Behavioral techniques considered effective for reducing aggressive behaviors in the demented include extinction, time out, and distraction (Hussian & Davis, 1985; Letemendia, 1985). Extinction focuses on preventing the reinforcing consequents that immediately follow a problem behavior (Chafetz, 1988; Hussian & Davis, 1985). For example, if a demented resident displayed combative behavior, the caregiver would avoid reinforcing the behavior by avoiding physical or verbal contact with the resident. The caregiver would remain calm, not take the aggressive behavior personally, and leave the situation if feelings such as anger or fear surfaced (Chafetz, 1988; Hussian & Davis, 1985; Letemendia, 1985). Time out involves either removing all reinforcers from the combative resident’s environment (e.g., attention from others or participation in a desired activity), or relocating the resident to a room devoid of reinforcers (Hussian & Davis, 1985; Letemendia, 1985). This technique would be implemented immediately following the combative behavior, with the caregiver briefly describing to the resident the behavior necessitating time out, the length of the time out period, and the criteria for ending it. 60 A suggested length for time out is five minutes, after which the resident would return to previous activities (Hussian & Davis, 1985). In addition to preventing further reinforcement of combative behavior, time out may also provide temporary relief from expectations causing frustration in the demented resident (Ebersole, 1989). Distraction is a behavioral technique which is particularly successful with demented persons due to their shortened attention span (Hussian & Davis, 1985). Depending on the severity of cognitive impairment, distraction may be the only effective behavioral intervention for combativeness. Distraction involves shifting the demented resident’s attention from the combative behavior to an appropriate behavior which the resident enjoys and which is incompatible with aggression and the associated feelings of anger, fear, or resentment. The combative behavior is ignored, and the resident is engaged in the distracting behavior long enough to allow aggressive feelings and tendencies to abate (Hussian & Davis, 1985; Letemendia, 1985). In addition to reducing the target behavior, behavioral therapy focuses on increasing appropriate behavior, primarily through reinforcing such behavior (Gugel, 1988; Hussian & Davis, 1985; Letemendia, 1985). Suggestions related to the use of reinforcement with the demented include presenting reinforcers immediately after the appropriate behavior and using multiple reinforcers (e. g., praise and touch). Also, individualized and primary reinforcers (i.e., those immediately satisfying needs) are most effective in maintaining appropriate behavior. Finally, reinforcement should be strong and consistent and may need to be continued indefinitely to sustain appropriate behavior (Gugel, 1988; Hussian & Davis, 1985). .— i. 61 Although behavioral therapy has been suggested for the management of combative and other problem behaviors of the demented, the bulk of literature on this topic was empirical. A literature review of the research related to the behavioral management of combative and several other problem behaviors of the demented follows. Rosberger and MacLean (1983) studied whether or not educating staff on a long- terrn care unit in behavioral management techniques could reduce the behavioral problems of a 79-year-old female resident (post-CVA). The resident’s behavioral problems included kicking or tripping others and pushing her table or wheelchair into others. An initial educational meeting was held with staff followed by a 1 week baseline assessment of target behaviors, which indicated that the resident’s problem behaviors were attention-seeking behaviors. Phase I of treatment involved the use of differential social reinforcement. Staff were instructed to provide social reinforcement (e. g., attention, conversation) for appropriate behaviors and to walk away or ignore the resident when she displayed target behaviors. Phases II and III of treatment consisted of gradually involving the resident in group activities while continuing differential social reinforcement (Rosberger & MacLean, 1983). Within 3 weeks the frequency of target behaviors decreased to 0 to l per week compared to baseline frequencies of 3 to 16 per week. Staff observed that the subject was using more appropriate verbalizations and initiating positive interactions. It was concluded that behavioral intervention had markedly reduced the resident’s problem behaviors and increased appropriate behaviors (Rosberger & MacLean, 1983). 62 Wisner and Green (1986) studied the effectiveness of cognitive-behavioral techniques in decreasing angry outbursts of a 73-year-old male nursing home resident diagnosed with multi-infarct dementia. Nursing staff on all shifts were trained on the use of a 10 point Likert-type scale rating angry episodes as mild, strong, or severe. Treatment included exclusion from eating meals in the dining room if angry outbursts occurred and a self-controlled time out whenever the subject began to experience uncontrollable anger. The subject and nursing staff kept a record of his angry behavior and the senior researcher met weekly with the subject to discuss possible alternative reactions and solutions to anger and to provide reinforcement for attempts at changing behavior (Wisner & Green, 1986). Review of the data indicated that during the baseline assessment, 11 angry outbursts occurred in 14 days, and more than 50% of these were rated as strong to severe. In contrast, during the treatment period 4 angry outbursts occurred in 42 days, with 25% of these rated as strong and 75% as mild. It was concluded that the cognitive-behavioral interventions used had assisted the subject in controlling his anger. A limitation of the study was the lack of data amenable to statistical analysis (Wisner & Green, 1986). Baltes and Lascomb (1975) studied whether or not behavioral techniques could diminish the screaming behavior of an 80-year-old female nursing home resident diagnosed with confusion and paranoia. A 2 week baseline assessment of the target behavior was performed, followed by a 1 week treatment period (six, 1 hour sessions) in which the subject’s behaviors other than screaming were reinforced immediately 63 and consistently with social and tangible reinforcers. The occurrence of the target behavior resulted in a modified time out in which reinforcers were removed. After treatment ended a second assessment of target behavior was performed. Analysis of the data indicated that during treatment screaming behavior decreased to a mean frequency of 5 screams per 5 minutes at peak times, compared to 21 during baseline. After treatment was discontinued, screaming behavior dramatically increased to between 35 to 55 times at peak times, and the subject displayed behaviors such as pleading, reaching out, hitting, and kicking (Baltes & Lascomb, 1975). Birchmore and Clague (1983) explored the effect of a behavioral intervention in reducing a 70-year-old blind and demented female nursing home resident’s shouting behavior. A baseline assessment of the target behavior was done followed by the behavioral intervention, which consisted of stroking the subject’s back when she was quiet and ceasing stroking when she began vocalizing. Treatments were conducted over approximately 4 weeks for four, 10 minute periods each day. The amount of time vocalizing during treatments was recorded. A comparison of the frequency of vocalizations indicated that vocalizations occurred from 8.5 to 10.0 minutes per 10 minute intervals during baseline and from .25 to 5.5 minutes per 10 minute intervals during treatment. Staff stated that the subject was quieter on treatment days. The researchers concluded that the use of differential social reinforcement did reduce the subject’s shouting behavior (Birchmore & Clague, 1983). 64 In summary, the literature reviewed supports the use of behavioral management techniques to reduce combative and other problem behaviors in demented nursing home residents. The behavioral techniques of extinction, time out, distraction, and differential reinforcement appear effective in reducing various problem behaviors. However, the benefits of utilizing behavioral management techniques must be weighed against the risks related to the ethical treatment of the institutionalized elderly. For example, in Baltes and Lascomb’s (1975) study, the withdrawal of the behavioral treatment (consisting of social and tangible reinforcers) resulted in a dramatic increase in the target behavior, as well as the occurrence of pleading and reaching out behaviors. The effectiveness of behavioral management techniques hinges upon nursing staff’s ability to collect data, consistently apply behavioral interventions, and evaluate their effectiveness, as well as stast levels of enthusiasm and cooperation (Hussian & Davis, 1985). Environmental Management Generally speaking, the elderly, due to age-related physical and psychological changes, are more sensitive to their environment than are younger adults (Minde, Haynes, & Rodenburg, 1990). This sensitivity is exacerbated in the demented elderly, who also experience a progressive decline in cerebral function resulting in a decreased ability to accurately receive and process environmental stimuli (Hall & Buckwalter, 1987). In the demented elderly, normal behavior and maximum functional levels are achieved by minimizing stress-related factors within the environment and by 65 supporting losses (Hall & Buckwalter, 1987). However, minimal research has been done addressing the manipulation of environmental factors to promote maximum functioning of the demented (Minde et al., 1990). A review of the literature discussing environmental interventions to diminish stress-producing factors within the demented resident’s environment follows. Hall (1988a) suggested environmental interventions to minimize demented residents’ exposure to the stressor groups identified within the PLST model (Hall & Buckwalter, 1987). Techniques to minimize fatigue include providing residents with scheduled time out and rest periods and cues to assist in distinguishing between naps and bedtime, involving residents in shorter activities, and planning the most taxing activities in the morning. Because environmental changes can increase frustration and confusion in demented residents, it is important to maintain consistency in their physical environment, caregivers, and routines. Changes which must occur should be simple and gradual, and demented residents should be observed for anxious or dysfunctional behavior indicating the need for assistance in coping with the change (Hall, 1988a). Environmental modifications which diminish overwhelming, competing, or misleading sensory stimuli are needed to enhance demented residents’ abilities to interpret and cope with their environment. Such modifications include providing quieter areas, simpler and smaller group activities, and an environmental decor reminiscent of home (Hall, 1988a). 66 Because attempting to rejuvenate lost abilities through retraining and testing only exacerbates the frustration experienced by demented residents, assistance should be given to support losses in mental, physical, and emotional function. For example, reality therapy should be used with demented residents only if topics to which the resident can relate are discussed (Hall, 1988a). Physical stressors causing pain, acute illness, or other physiological alterations in demented residents can exacerbate dysfunctional behaviors such as combativeness (Hall, 1988a). Interventions must be taken, therefore, to eliminate physical stressors such as adverse drug reactions, bowel irnpactions, or infections. Demented residents manifesting either new or exacerbated dysfunctional behavior should receive a physical exam to determine if physical factors are involved (Hall, 1988a). According to Pynoos and Stacey (1986) changes within long-term care facilities which would promote maximum function and discourage problem behavior include the provision of appropriate levels of environmental stimulation, specific orienting cues, an environment promoting individuality and privacy, and adequate staff to address both physical and psychosocial needs and to encourage autonomy. Maas (1988) suggested that the traditional nursing home unit was not furnished with either the appropriate environmental structures or the necessary staff to provide the special care needed by demented residents. Therefore, the placement of demented residents on special care units with environmental modifications promoting safety and maximum function and staff trained in the care of the demented was advocated. 67 Benson, Cameron, Humbach, Servino, and Gambert (1987) performed a prospective study on the functioning of 32 demented residents to determine the impact of relocation from a traditional long-term care unit to a specialized dementia unit. The unit was designed to decrease the demands placed on demented residents’ limited cognitive abilities. Special features included orientation boards throughout the unit and color coding of residents’ rooms with their names and pictures outside the doors. For each subject a researcher completed a rating scale assessing levels of mental, emotional, and ADL function. Subjects were also assessed with the New York State Department of Health Long-term Care Placement Form, Medical Assessment Abstract. Each subject was assessed prior to and 4 and 12 months after admission to the dementia unit (Benson et al., 1987). All data were statistically analyzed utilizing paired t-tests. Compared to scores prior to admission, a statistically significant (p < .001) improvement in mental, emotional, and ADL scores was found at 4 months. This improvement was maintained at 12 months for both mental and emotional function (p_ < .05) and ADL function (2 < .005) (Benson et al., 1987). Cleary, Clamon, Price, and Shullaw (1988) performed a study to measure functional level changes in 11 demented nursing home residents moved to a Reduced Stimulation Unit (RSU). The RSU was designed to reduce stimulation and minimize reliance on memory. Features included the absence of televisions and radios, consistent daily routines, small group activities, and the freedom of residents to ambulate, eat, and rest where desired. 68 Multiple measurement tools were used and were administered both 3 months prior to and after the unit’s opening. Analysis of the data indicated a significant improvement in subjects’ ADL function (p < .005), a significant decrease in agitation (including combative behavior) and restraint use (p < .001), and increases in family satisfaction and subjects’ communication abilities after relocation (Cleary et al., 1988). Minde et al. (1990) discussed environmental changes made on a psychogeriatric ward housing 36 residents with primary diagnoses of dementia, schizophrenia, and affective disorders, many whom were placed on the ward due to aggressive and other inappropriate behaviors. Two phases of environmental change were initiated by the nursing supervisor. Changes during Phase I included removing all physical restraints and permitting resident access to previously restricted areas. Although the number of incidents, falls, and serious injuries increased the first year, by the second year’s end a significant decrease (p < .05) had occurred in the percentage of total incidents that were falls and serious injuries. In addition, staff turnover had decreased by 19.1%, residents were calmer, more sociable, and sleeping better, and the ward noise level was substantially reduced (Minde et al., 1990). Phase II of the environmental changes consisted of changing the decor of the ward from an institutional to a homelike one, including decorating the dayroom in colonial style. After a period of initial confusion residents began spending more time in the dayroom, with residents "adopting" particular chairs and behaving more appropriately 69 and appearing happier and more relaxed. The visitation rate also increased. A limitation of the study was the lack of a true experimental design (Minde et al., 1990). Thus, the literature related to modifications of the demented residents’ physical environment suggests that such modifications can result in increased levels of function for demented residents and in increased family and staff satisfaction. The environmental literature reviewed also supports the modification of staffing and resident socialization patterns to improve resident function and staff satisfaction. For example, Athlin and Norberg (1987) conducted a study to describe changes in nursing caregivers’ attitudes toward and interpretations of demented residents’ behaviors when allowed to feed the same residents for 14 meals. The subjects were two male and two female long-term care nursing staff members. Meals l, 7, and 14 were recorded on videocamera and assessed by a researcher using a modification of Bamard’s Assessment Feeding Scale. Following the observed meals a researcher interviewed each subject. Qualitative analysis of the data indicated that the subjects became more confident in their ability to interpret residents’ eating behaviors and to communicate with and understand residents as the study progressed. Subjects also developed a more positive image of the residents and more job satisfaction. It was suggested that the organization of care within long-term care facilities be changed so that staff could care for the same demented residents consistently (Athlin & Norberg, 1987). Donat (1986) studied factors related to combative incidents between residents in a 330-bed psychogeriauic intermediate-care facility. A survey was conducted of all 70 incident reports documenting altercations between residents within a 3 month period. Analysis of the data indicated that 51% of the altercations occurred between 5 and 8 pm. when staffing levels and activities for residents were lower. The majority of altercations occurred in the dayroom and hallways. Residents identified as aggressors manifested significantly more problem behaviors (p < .01) than the general ambulatory psychogeriatric population. Resident victims were significantly more cognitively impaired and less mobile and manifested significantly less problem behaviors (p < .01) than their aggressors (Donat, 1986). Interventions to decrease altercations on one ward included assigning additional staff to the ward during the evening hours and separating residents identified as aggressors and victims into different dayrooms. Compared with the period prior to the interventions, altercations decreased from an average of 4.7 per week to less than 1 per week. On a similar ward without interventions the frequency of altercations remained essentially unchanged (Donat, 1986). In conclusion, the literature reviewed suggested that environmental interventions be made to diminish demented residents’ exposure to stress-producing factors and to support functional losses in an anticipatory manner. The implementation of such interventions creates an environment which facilitates maximum functioning and normal behavior in these residents (Hall & Buckwalter, 1987). Positive outcomes from environmental interventions included significant improvements in mental, emotional, and ADL function, and a decrease in agitated and combative behaviors accompanied by an increase in appropriate behaviors. Also, a 71 significant reduction in physical restraint use, an increase in family satisfaction and visitation rates, and a decrease in nursing time spent managing problem behaviors were reported. Communicative Management A major challenge for long-term care nursing staff is identifying the needs of demented residents whose ability to communicate is impaired. Communication, which can occur through the spoken word, writing, and body language, is defined as "the transmission and reception of a message between two or more persons" (Harkulich & Calamita, 1989, p. 97). The inability of demented residents to express themselves or to comprehend others can result in feelings of pain, frustration, and embarrassment for both the residents and their caregivers. The frustration experienced by demented residents may result in emotional outbursts, including combative behavior (Kotik-Harper & Harper, 1988). Thus, interventions are needed which will enhance communication between demented residents and their caregivers. Maintaining communication between demented residents and nursing staff diminishes the occurrence of problem behaviors and reassures residents that there are people who will listen and respond to them (Bartol, 1979). The following section is a review of the literature on techniques which can enhance communication with the demented resident. Bartol (1979), Ray et al. (1990), and Robinson et al. (1989) suggested communication techniques to use with the agitated and/or angry demented resident. Distracting stimuli are minimized as the resident has a decreased ability to block out C01 am pit Sh: an. 72 competing stimuli. The caregiver approaches from the front and gains the resident’s attention by calling his or her name and stating the caregiver’s name, role, and purpose. The caregiver assesses the resident for any visual, hearing, or speech impairments and attempts to compensate for these. The caregiver looks directly at the resident and speaks at his or her eye level. The caregiver’s tone of voice should be gentle and calm, projecting a sense of control. A condescending tone may provoke anger. A low voice pitch is preferable as a higher pitch conveys stress. Voice volume should be raised only for the hearing impaired as shouting can upset the demented resident (Bartol, 1979; Robinson et al., 1989). Communication begins with orienting information. The caregiver speaks slowly and clearly using short, simple sentences with concrete and familiar words and phrases. A pause is needed between sentences to allow the demented resident sufficient time to process and respond to information. The use of other sensory modalities will assist in the comprehension of messages (Bartol, 1979; Robinson et al., 1989). Simple questions with a choice of two answers are used, avoiding open-ended questions and those relying on memory. If the resident does not respond to a question it is repeated verbatim. If a response is not obtained despite several repetitions, the question is rephrased. Frequent and clear reminders during communication will provide reassurance to the demented person (Bartol, 1979; Robinson et al., 1989). A non-demanding and non-confrontational approach is used, avoiding ordering the resident to do something. Directions should be given in a positive manner, avoiding 73 the use of "no" or "don’t". Reasoning or rationalizing is avoided as this could increase the resident’s frustration and anger due to the inability to think logically (Ray et al., 1990; Robinson et al., 1989). Demented residents are keenly aware of others’ verbal and nonverbal messages. Therefore, feelings such as anger or impatience should not be conveyed by the caregiver, as these may increase the resident’s agitation and confusion (Robinson et al., 1989). Techniques for communicating with agitated demented residents suggested by Kotik-Harper and Harper (1988) include approaching the resident in a calm and reassuring manner, reducing environmental stimuli, removing dangerous objects, conveying feelings of genuine concern and patience, avoiding making unrealistic or additional demands of the resident, and maintaining consistency between verbal and nonverbal messages. For the elderly resident experiencing anxiety due to the loss of control over behavior, interventions include identifying the resident’s feelings and providing reassurance regarding the willingness to help control behavior. Once the resident is receptive to these communications, the caregiver suggests an alternative to combative behavior and encourages the verbalization of feelings (Burnside, 1981). Nonverbal communication (touch, facial expression, eye contact, posture, and spatial position) conveys an individual’s emotions and beliefs, and therefore is as important as verbal communication. Nonverbal techniques for communicating with demented residents include the use of touch provided it does not elicit negative 74 responses. The use of eye contact can convey interest and build a trusting relationship, whereas avoiding eye contact can convey feelings of dislike, guilt, or boredom (Hoffman & Platt, 1990). Regarding posture, raised shoulders may convey stress and tension, and arms folded in front of the body can suggest dislike for another or the need to protect oneself. Caregivers interacting with demented residents should keep their shoulders and arms relaxed and down (Hoffman & Platt, 1990). When caregivers violate demented residents’ personal space without first establishing trust, residents may withdraw and possibly display catastrophic reactions. Trust is promoted by approaching the demented resident slowly from the front and announcing oneself, explaining all procedures, sitting or standing at the resident’s eye level and making frequent eye contact, and maintaining a relaxed body posture (Hoffman & Platt, 1990). Effective communication involves not only sending clear messages, but also being able to interpret others’ messages. Caregivers should monitor demented residents for fluctuations in facial expression, eyes, gesture, posture, and vocalization indicating changing feelings or needs. Techniques to enhance the understanding of nonverbal messages include responding to the emotional tone of messages and acknowledging feelings, and considering the context of the behavior (Hoffman & Platt, 1990; Robinson et al., 1989; Ronch, 1989). Receptive, nonverbal behaviors of demented residents include a relaxed body, making eye contact, pleasant facial expressions, extending the hand or a verbal 75 greeting, and taking a few steps or leaning toward the caregiver. Behaviors indicative of nonreceptiveness include backing, turning, or walking away, shying away from touch, avoiding eye contact or narrowing or closing the eyes, frowning, and increased signs of anxiety, such as increased motor restlessness and muscle tension (Bartol, 1979). Due to the emotional lability of demented residents, caregivers should consider leaving the nonreceptive resident alone for a period. Forcing an interaction with a nonreceptive resident could aggravate a negative response. The caregiver can acknowledge the resident’s desire not to interact and follow through on a commitment to return later. If the resident displays both receptive and nonreceptive behaviors, communicating concern and affection may increase receptiveness (Bartol, 1979). Little research literature was found related to techniques for communicating with the demented. Because of this, in addition to the studies involving demented subjects, several studies with nondemented subjects which appeared relevant to this project were reviewed. A review of the research literature related to communicating with demented residents follows. DeWever (1977) performed a study on affective touching of nursing home residents by nurses. The subjects were 99 elderly, white residents from two nursing homes. The Comfort When Touched Inventory (CI'I), a 28-item instrument, was used to measure perceived comfort or discomfort from seven types of affective touch. The researcher administered the CTI to each subject while he or she viewed each of four photographs depicting a younger or older male or female nurse. 76 Data were analyzed using Pearson-product moment correlation, point biserial correlation, and multiple regression analysis. Based on the data analysis, affective touching of residents’ arms and faces was recommended, while placing an arm around residents’ shoulders was discouraged. Male nurses were advised to use discretion when affectively touching female residents (DeWever, 1977). Langland and Panicucci (1982) studied the effects of touch on elderly, confused residents’ verbal and nonverbal responses. The subjects were 32 cognitively impaired female residents from two intermediate—care facilities randomly assigned to experimental and control groups. All subjects were given the same verbal request, with the experimental group also receiving a light touch on the forearm. Utilizing a tool developed by the researcher, data were collected on subjects’ attention, verbal, and action responses. Data analysis indicated a significant increase in attention (2 < .05) for the experimental versus the control group, indicating that touch is important in gaining attention and developing relationships with confused, elderly residents. McCorkle (1974) studied the relationship between touch received by seriously ill patients and the occurrence of positive acceptance responses. Sixty seriously ill, hospitalized patients were assigned to experimental or control groups. Experimental group subjects were touched while conversing with the researcher, whereas the control group subjects were not. Instruments used to measure verbal and nonverbal responses included the Interaction Behavior Worksheet and Bale’s Interaction Process Analysis. Analysis of the data using the Kolmogorov-Smirnov two sample test indicated that significantly 77 more patients in the experimental group (p < .01) responded positively to touch. The researcher concluded that touch was effective in eliciting positive responses from seriously ill patients and in conveying caring (McCorkle, 1974). Due to a decreased ability to accurately perceive stimuli, the demented resident may become agitated and combative when nonthreatening persons invade his or her personal space (Bartol, 1979). Marx et al. (1989) studied the relationship between agitated behavior and personal space. Personal space was defined as "the invisible boundary which each person maintains between himself and others which serves as a buffer from real or perceived threats" (Marx et al., 1989, p. 1020). The Agitation Behavior Mapping Instrument (ABMI) was used to observe and document agitated behaviors of 24 cognitively impaired residents from a 550-bed nursing home. The ABMI consisted of 20 agitated behaviors categorized as either verbally nonaggressive (e. g., strange noises, requests for attention), physically nonaggressive (e.g., repetitious mannerisms, pacing), or aggressive (e.g., biting, hitting). Interrater reliability averaged .93. The observations were made over 3 months, and during each observation the observer recorded the number of times the subject exhibited agitated behaviors and the physical distance to the closest individual (Marx et al., 1989). Analysis of the data indicated that the subjects exhibited more aggressive behaviors, strange noises, and requests for attention when touched. Compared to females, male subjects exhibited more aggressive behaviors when touched. Three other agitated behaviors (strange movements, picking at things, and repetitious 78 mannerisms) were displayed least when the subjects were touched. It was concluded that staff should consider extending the personal space of aggressive-prone residents and using touch to distract or comfort residents displaying certain nonaggressive agitated behaviors (Marx et al., 1989). Horowitz, Duff, and Stratton (1964) conducted a series of experimental studies which supported the existence of a personal space and indicated that the personal space of schizophrenic patients tended to be larger than for nonschizophrenic individuals. Kinzel (1970) performed an experimental study to compare the size and shape of personal space between violent and nonviolent prisoners. Analysis of the data indicated that both the total and rear personal spaces of violent prisoners were larger than those of nonviolent prisoners. Essentially, the research reviewed on touch and personal space suggests two conflicting viewpoints: (a) that touch can enhance communication with demented residents, or (b) that physical closeness and touch aggravate agitated and aggressive behavior. Due to the demented resident’s tendency toward emotional lability and impairments in perception, impulse control, and judgment, discretion should be used related to the use of touch. Prior to touching the resident the caregiver should attempt to gain the resident’s attention, establish trust with the resident, and assure that nonreceptive and/or agitated behaviors are not being displayed. Hoffman, Platt, Barry, and Hamill (1985) compared the responses of demented and nondemented, elderly residents to verbal and nonverbal messages. Subjects were 54 residents of two long-term care facilities. The experimental intervention consisted of a 79 researcher approaching each subject in either a positive (relaxed, smiling, speaking subject’s name in a pleasant tone, clasping hand gently) or negative (frowning, speaking subject’s name harshly, grasping wrist firmly) manner. Nonverbal responsivity was measured by changes in posture, head position, facial expression, and eye contact, and verbal responsivity by responses to questions asked during the intervention. Data analysis indicated that demented subjects manifested positive responses to positive messages and withdrawal and discomfort to negative messages. Demented subjects’ nonverbal communication skills were comparable to those of nondemented subjects’. A several second delayed response to communications was noted in demented subjects (Hoffman et al., 1985). Skews (1988) studied the effects of a positive communicative approach on the manifestation of aggressive behavior in 34 nursing home residents with varying levels of dementia. The intervention consisted of all staff using positive verbal and nonverbal messages when interacting with subjects. Subjects manifesting aggressive behavior were encouraged to verbalize and express negative feelings in socially acceptable ways through participation in available physical and social activities. The intervention was evaluated after two years, and nurses reported that the frequency and intensity of subjects’ aggression had decreased, subjects were responding better to nursing interventions for aggression, stafi’ morale and resident activity participation had increased, and psychotropic drug use for aggression was low (Skews, 1988). A limitation of this study was the lack of a rigorous research design. 80 In summary, based upon a review of the literature related to communicating with the demented, several important conclusions are made. The first conclusion is that the demented resident is capable of communicating with others, despite his or her illness. Second, when communicating with the demented resident, the caregiver should focus on creating a safe and calm environment, establishing a therapeutic and trusting relationship, and enhancing the resident’s communication abilities. Third, the caregiver should utilize nonverbal, as well as verbal, messages when communicating with the demented resident. Finally, the caregiver should use touch with the agitated and/or demented resident only after trust has been established with the resident and nonreceptive behaviors have ceased. Pharmacological Management Although different classes of psychotropic drugs have been used to manage severe behavioral problems associated with dementia, the neuroleptic (i.e., antipsychotic) drugs have proven most effective (Barnes & Raskind, 1980; Risse, Lampe, & Cubberley, 1987; Thomas, 1988). The judicious use of neuroleptic drugs may be warranted for the management of symptoms such as aggressive behavior, severe agitation, delusions, and hallucinations (Eimer, 1989; Helms, 1985; Wragg & Jeste, 1988). However, these agents are capable of causing serious side effects, many of which are dose-related and due to their ability to block receptors in the central nervous system and periphery (Eimer, 1989). Guidelines for the use of neuroleptics include the identification and documentation of target symptoms when therapy is initiated and periodically during therapy to 81 determine effectiveness. Research on neuroleptic effectiveness indicates no clinical difference between agents, suggesting that drug selection should be based on the patient’s medical condition and previous response to agents and the drug’s side effect profile (Eimer, 1989; Wragg & Jeste, 1988). Only one neuroleptic should be used at a time and treatment should be time- limited with periodic attempts to reduce or discontinue administration. Demented residents should be monitored closely for side effects and drug interactions and neuroleptic doses or agents adjusted to resolve these problems (Wragg & Jeste, 1988). Previous reviews of the literature on neuroleptic drug use in the demented suggest some clinical improvement of severe behavior problems (Eimer, 1989; Helms, 1985; Wragg & Jeste, 1988). The following is a brief review of the literature related to the pharmacological management of significant behavioral problems, including combativeness, in demented residents. Beardsley, Larson, Burns, Thompson, & Karnerow (1989) examined the use of psychotropic drugs using data from the 1984 National Nursing Home Survey pretest. The sample consisted of 526 elderly subjects, 69% having a mental disorder. Information was collected on psychotropic and other drugs often problematic to the elderly. Analysis of the data indicated that 35% of the sample received psychotropic drugs and less than 10% of these were pm. No documentation of a mental disorder was found for 21% of subjects on psychotropics, and 23% percent were on two psychotropic drugs. The concurrent use of psychotropic drugs with drugs known to 82 increase the potential of drug-drug interactions was common. It was concluded that some nursing home residents were at risk for adverse drug reactions and treatment failure based on their medication regimen (Beardsley et al., 1989). Beers et al. (1988) studied patterns of psychotropic drug use in 12 intermediate- care facilities (ICFs) in Massachusetts. Data were collected on prescriptions and patterns of use for 850 residents over 1 month. Analysis of data indicated that 53% of subjects received psychotropic drugs (26% were antipsychotics), with 15.2% receiving two concurrently. Sedative/hypnotics were given to 28% of subjects, 82% on a regular basis. Long- acting benzodiazepines (high incidence of toxicity in the elderly) and diphenhydramine (strong anticholinergic effect) were common. Fourteen percent of subjects received antidepressants and 61% had no documented diagnosis of depression. Twenty-six percent of the subjects on antidepressants received Amitriptyline, which has strong anticholinergic and sedative effects (Beers et al., 1988). It was concluded that psychotropic drug use was high in ICFs with often suboptimal agents prescribed. Increased efforts to improve the use of psychouopics within long-term care facilities were suggested in this study (Beers et al., 1988) and in Beardsley et al.’s (1989) study. Avom et al. (1988) conducted a randomized, controlled study to determine the efficacy of an educational outreach program in reducing excessive psychotropic drug use within 12 ICFs. The intervention consisted of 3 to 5 educational sessions on geriatric psychopharmacology presented to residents’ primary physicians, nurses, and 83 aides. Analysis of the data indicated that the educational outreach program effectively reduced the use of psychotropics within ICFs. Barnes, Veith, Okimoto, Raskind, and Gumbrecht (1982) compared the effectiveness of Thioridazine, Loxapine, and a placebo in controlling behavioral disturbances of demented nursing home residents. Subjects were randomly assigned to three treatment groups and evaluated before and after treatment with several rating scales. A two-tailed _t_-test was used to determine significant changes in rating scale scores and analyses of covariance were performed to compare the efficacy of the different agents. Analysis of the data indicated significant improvements in anxiety, excitement, emotional lability, and uncooperativeness with antipsychotic use. It was concluded that antipsychotics have a ”definite but limited" role in the management of demented nursing home residents’ behavioral symptoms (Barnes et al., 1982, p. 1170). Risse et a1. (1987) discussed two case studies in which patients with Alzheimer’s disease unresponsive to conventional neuroleptic treatment were successfully treated with very low-dose neuroleptics. In the first case, a 59-year-old agitated dementia patient manifested substantial behavioral improvement on Haloperidol 0.125 mg. q.d. In the second case, an 82-year-old demented patient manifesting increased confused, paranoid, and hostile behaviors experienced diminished behavioral problems on Thioridazine 5 mg. q.d. Weiler and Goodman (1987) reviewed the literature on the use of Propranolol for the management of disruptive behavior. This agent was found to be effective in the 84 management of physical and verbal aggression associated with dementia, brain injury, and schizophrenia. The need for further well-controlled clinical trials was emphasized. Greendyke and Kanter (1986) performed a double-blind, placebo-controlled crossover study to determine the effectiveness of Pindolol in treating assaultive and other problem behaviors of 11 hospitalized, severely demented patients. Data analysis with the Wilcoxon matched-pairs signed-ranks test indicated that Pindolol was effective for the management of severe behavioral symptoms associated with dementia (Greendyke & Kanter, 1986). In summary, the cautious use of neuroleptic drugs for the management of severe behavioral problems, including combative behavior, was supported by the literature reviewed. Further well-designed research studies are needed related to the effectiveness of neuroleptic, as well as other drugs, in managing severe problem behaviors. Due to the potentially deleterious effects of neuroleptic and other drugs, more research is also needed on alternative management techniques. Summary of Management of Cornbgive Behavior The majority of literature related to the management of combative behavior in the demented is empirical, indicating a need for further research. Regarding the behavioral management of combativeness, the need to assess the problem behavior and its antecedents and consequents was emphasized. The literature supported the use of distraction, time out, extinction, and differential reinforcement to decrease problem behaviors, including combativeness, in the demented. 85 Environmental management of problem behaviors focused on decreasing the demented resident’s exposure to stress-producing factors and on supporting functional losses. Emphasis was placed on maintaining a consistent environment, minimizing overwhelming and misleading stimuli, and providing orienting cues. The literature related to communicating with the combative, demented resident focused on promoting a safe and calm environment, established a trusting relationship between caregiver and resident, and minimizing communicative impairments due to cognitive losses. The importance of nonverbal communication when interacting with the demented, as well as the use of touch as a communication tool (under certain circumstances), was stressed. The pharmacological literature reviewed supported the judicious use of neuroleptic drugs for the management of persistent combative behaviors in the demented. Researchers emphasized the need for further research related to the use of neuroleptic drugs and nonpharmacological management techniques and for increased education of caregivers on psychotropic drug use. Summg of Literature The majority of nursing literature related to combative behaviors of the demented was empirical. Precipitating factors of combativeness stressed within the nursing research included: misleading and overwhelming stimuli, environmental change, physical illness or discomfort, confusion, and negative feelings related to losses. 86 Regarding the management of combative behaviors, the nursing research supported the use of behavioral techniques such as time out and differential reinforcement and environmental modifications to diminish stress-producing factors and to promote the safety and maximum functioning of the demented resident. The greatest amount of nursing research found was on the use of touch as a method of communicating, whereas no nursing research was found on the pharmacological management of combativeness. In reviewing the literature on factors related to combative behaviors in the demented and the management of these behaviors, several important issues were identified. The most important is the lack of research specifically addressing combative behaviors in the demented. In order to successfully manage combative behaviors further research is needed on factors aggravating these behaviors and the effectiveness of different management approaches. In addition, the literature review raised questions and concerns regarding the ethical treatment of the institutionalized, demented elderly, primarily related to the use of psychotropic drugs and behavioral management techniques. Further research is needed in these areas to determine whether or not the benefits gained from these interventions outweigh the risks to demented residents. Finally, there appears to be a great need to educate caregivers of the demented on factors related to combative behaviors and on effective interventions for the management of these behaviors. Therefore, the protocol for the management of combative behaviors in demented residents to be presented in Chapter III will focus on 87 identifying factors precipitating combative behaviors, and on effective interventions to manage these behaviors. CHAPTER III Protocol for the Management of Combative Behavior in Demented, Elderly Residents Introduction An innovation in the care of the demented elderly within long-term care facilities has been the utilization of the GCNS. The GCNS’s primary goal within a long-term care facility is to enhance the quality of health care provided to the residents. One way the GCNS promotes quality health care for residents within an institutional setting is through research utilization. Research utilization is defined as "a systematic series of activities that can culminate in the change of a specific nursing practice" (Horsley et al., 1983). Once a clinical nursing problem has been identified, the first step in the research utilization process is the review of the relevant research literature, followed by a synthesis of this literature into a research base. The second step of this process is the combining of relevant information from the research base into a solution, or clinical protocol. The third step of research utilization is the implementation of the protocol via nursing actions administered to clients, and the fourth and final step is the evaluation of the protocol to determine whether or not expected outcomes were achieved (Horsley et al., 1983). The format of this scholarly project is similar to that of the research utilization process. In Chapter I the problem, that is, the need for a protocol for the management of combative behavior in demented, elderly residents, was identified. In Chapter II, a 88 89 review and summarization of the literature relevant to this problem was presented. Within Chapter III, a description of a protocol for the management of combative behavior in demented, elderly residents, based on the literature reviewed in Chapter II, will be presented. The appropriate follow-up plan once the acute combative episode is resolved will also be presented. In Chapter IV , a proposed plan for the implementation and evaluation of the protocol will be presented. In addition, the implications of this project for the nursing profession, advanced nursing practice, and primary care will be discussed. Presentation of tl_re Protocol Within this scholarly project, the goal related to intervening with the combative, demented, elderly resident is to assist the resident in regaining the maximum possible levels of safety, comfort, and function, considering the dementing process. In order to - accomplish this goal, a specific set of objectives should be met. Therefore, the protocol for the management of combative behavior in demented, elderly residents will be presented via a discussion of these objectives. Prevent Physical Inju_ry The first objective when intervening with the combative, demented resident is to prevent physical injury to the resident and others. A primary caregiver whom the resident has recognized and communicated effectively with in the past intervenes during the combative episode. In a descriptive study on aggressive behavior in cognitively impaired nursing home residents (Beck et al., 1990), 27% of nursing staff 90 reported that subjects became aggressive when being cared for by unfamiliar caregivers. In a study by Athlin and Norberg (1987) subjects who fed the same severely demented nursing home residents for 14 consecutive meals reported an increased ability to interpret the residents’ behaviors and to communicate with them. Demented persons commonly experience impairments of judgment and impulse control (American Psychiatric Association, 1987). These impairments increase the demented resident’s potential for harming him or herself and others when agitated. Therefore, in order to prevent physical injuries, all other residents, visitors, and staff are removed from the area surrounding the combative resident. Sharp and other potentially dangerous objects are also removed from the area. No attempt should be made to move the combative resident until his or her agitation is diminished. In studying the relationship between agitated behaviors and personal space, Marx et al. (1989) found that highly agitated, cognitively impaired nursing home residents displayed significantly more (2 < .05) aggressive behaviors when touched, compared to when they were more than three feet away from others. The primary caregiver designates one coworker to remain outside the immediate area to prevent others from entering. This will protect others from physical injury and allow the primary caregiver to communicate with the resident without the distraction of others (Carroll, 1989). The coworker is also to assist the primary caregiver if needed (e. g., by obtaining a snack to be used as a distractor). If the primary caregiver’s physical safety is imminently threatened (i.e., the demented resident is highly combative), the caregiver leaves the immediate area and 91 reports the situation to his or her supervisor. Meddaugh (1990) reported the kicking. hitting, and biting of staff by highly agitated, cognitively impaired nursing home residents. Because dysfunctional behaviors such as combativeness generally appear suddenly and last a short period of time (Hall & Buckwalter, 1987), the primary caregiver returns 10 minutes later to reassess the resident’s behavior and the need for intervention. If the primary caregiver’s physical safety is not imminently threatened, he or she remains in the immediate area to intervene with the agitated resident. The first objective, preventing physical injury to the resident and others, is achieved if, at the resolution of the combative episode, neither the demented resident nor others in the immediate area have received physical injuries. Diminish Agitation The second objective for the primary caregiver intervening with the combative, demented resident is to diminish the resident’s agitation. In order to achieve this objective, the caregiver promotes a calm environment. First, the primary caregiver must recognize and control his or her own anxiety. One of the most anxiety- producing situations for nursing personnel is intervening with the combative patient (Burnside, 1981). Demented residents are often sensitive to caregivers’ verbal and nonverbal behaviors conveying anxiety or other negative emotions, and may assimilate such emotions (Robinson et al., 1989). Signs and symptoms of anxiety include feelings of nervousness and restlessness, an increase in voice pitch, rate of speech, or pulse and respirations, trembling hands, and 92 shifting feet (Burnside, 1981; Hoffman & Platt, 1990). Anxiety can be minimized through relaxation techniques such as controlled breathing and deep muscle relaxation. Techniques such as the identification and alteration of self-defeating thoughts (e.g., that the caregiver is incapable of managing the combative episode) can also reduce the caregiver’s anxiety (Agras, 1984; Perry & Furukawa, 1986). Once the primary caregiver’s anxiety has been controlled, he or she utilizes behaviors conveying calmness. The caregiver speaks in a calm and reassuring tone of voice and uses a normal voice volume. Shouting will not improve the demented resident’s comprehension of messages and may increase his or her agitation. The caregiver’s voice pitch should be low, as a higher pitch suggests anxiety (Bartol, 1979; Hoffman & Platt, 1990). The primary caregiver’s body posture should be relaxed, with shoulders and arms down. Raised shoulders can convey stress and tension, and arms folded in front may convey dislike or a need to protect oneself (Hoffman & Platt, 1990). Body movements should be slow and easy, as quick movements may startle the demented resident and increase his or her feelings of anxiety (Porter, Rasmussen, & Burnside, 1981). In a study by Hoffman et al. (1985) demented nursing home residents who were approached in a calm, positive manner (pleasant tone of voice, relaxed body posture, smiling, clasping resident’s hand gently) by the researcher responded positively (e. g., turning toward the researcher, smiling). Approaching the residents in a negative manner (angry facial expression, speaking in a harsh tone of voice, holding resident’s 93 wrist firmly) elicited negative responses from the residents (e.g., turning away from the researcher, acting startled, frowning). Due to brain dysfunction and/or damage, the agitated, demented resident may misperceive caregivers as threatening, further increasing his or her agitation (Bartol, 1979; Hoffman & Platt, 1990). Therefore, the primary caregiver also promotes a calm environment by utilizing behaviors which build trust with the demented resident. According to Martin and Kirkpatrick (1987), the assessment and management of aggressive behavior in the elderly client requires the establishment of a therapeutic caregiver-client relationship. Because the demented resident’s ability to comprehend others is often impaired, establishing a trusting relationship may be the only way to get the demented resident to respond to, and cooperate with, the caregiver (Bartol, 1979). Furthermore, the demented resident is more apt to attempt communicating his or her needs and feelings to the caregiver if trust is established (Hoffman & Platt, 1990). Trust is promoted with the agitated, demented resident first by gaining his or her attention. If the caregiver does not have the demented resident’s attention, it cannot be assured that the resident will hear or comprehend what is conveyed, or comply with directions or requests (Bartol, 1979). In order to gain the elderly resident’s attention the caregiver approaches the resident slowly from the front, as approaching from the back or side may startle him or her. The caregiver looks directly at the resident and enunciates his or her name clearly. This approach will help compensate for any 94 hearing or visual deficits the resident may have (Robinson et al., 1989; Porter et al., 1981). The caregiver then observes the resident’s verbal and nonverbal behavior to determine if his or her attention has been gained. In Langland and Panicucci’s (1982) study on communicating with demented nursing home residents, behaviors considered indicative of listening included nodding the head up and down, raising the eyebrows, blinking the eyes, making eye contact, smiling, turning the body toward or touching the researcher, and responding verbally. Listening behaviors of demented individuals described by Bartol (1979) included sitting or standing still, repositioning the head to hear the caregiver better, and leaning forward or moving the body in some manner to be closer to the caregiver. If the resident does not display listening behaviors, the primary caregiver should repeat the resident’s name every few seconds until his or her attention is gained. The caregiver may need to step closer to the resident and speak louder (not shouting) to further compensate for any visual and/or hearing impairments (Bartol, 1979). Once the resident’s attention has been gained, the primary caregiver further promotes trust by providing orienting information. The caregiver states his or her name, role, and purpose (e.g., "This is _, your nurse, and I’m here to help you"). The caregiver also explains all of his or her actions before proceeding (Robinson et al., 1989). The demented resident’s diminished ability to comprehend and respond to others’ messages is related to memory impairment, a shortened attention span, a decreased 95 ability to understand abstract words and phrases, and an impaired ability to process and respond to auditory and visual messages (Carroll, 1989). In order to facilitate the demented resident’s comprehension, the caregiver speaks slowly and clearly using simple words and phrases (Robinson et al., 1989). The comprehension of messages by the demented resident is also facilitated when the primary caregiver utilizes nonverbal communication techniques (Robinson et al., 1989). The ability to understand the nonverbal communications of others is one of the most basic and reflexive human communication skills. Therefore, it seems probable that this skill remains at least somewhat intact in demented individuals who can no longer understand verbal communications (Hoffman, Platt, Barry, & Hamill, 1985). In order to further promote trust with the demented resident, the primary caregiver maintains consistency between verbal and nonverbal messages. Sending contradictory messages fosters disbelief in the resident (Hoffman & Platt, 1990; Robinson et al., 1989). Trust is also enhanced by spending time with the resident and attempting to discern what is upsetting him or her, thereby conveying concern for the resident (Hoffman & Platt, 1990). Making frequent eye contact conveys interest in the resident, whereas avoiding eye contact may convey guilt, boredom, or a dislike for the resident. Positioning oneself at the resident’s eye level (preferably sitting) also conveys a willingness to listen (Ronch, 1989). In addition to minimizing his or her own anxiety and utilizing behaviors which convey calmness and build trust, the primary caregiver further promotes a calm environment by identifying and eliminating factors agitating the resident. According 96 to Hall’s PLST model (Hall & Buckwalter, 1987) the demented adult displays dysfunctional behavior when he or she is overwhelmed by stress-producing factors. Therefore, in order to effectively resolve the demented resident’s combative behavior, the caregiver should focus on identifying and eliminating any aggravating factors (Gugel, 1988). In order to identify factors aggravating the demented resident’s combativeness, the primary caregiver first considers the context in which the behavior occurred, that is, what event immediately preceded the resident’s combativeness (Robinson et al., 1989)? Behaviors are often a reaction to antecedents, that is, events occurring just prior to the behaviors (Hussian & Davis, 1985). For example, in a study on altercations between nursing home residents, Donat (1986) found that residents often became aggressive when confused, wandering residents entered their personal space. In a descriptive study on aggressive behavior in cognitively impaired nursing home residents (Beck et al., 1990) nursing staff reported the highest incidence of aggressive behavior when residents were receiving personal care, such as being dressed or bathed. Next, the primary caregiver assesses the external environment for factors possibly agitating the resident. Overwhelming auditory or visual stimuli (e. g., radios or televisions), misleading stimuli (e.g., an overhead paging system or fire alarm), or other stimuli within the external environment (e.g., extremes of light or temperature) can potentiate dysfunctional behavior in the demented adult (Hall & Buckwalter, 1987). In a study by Cleary et al. (1988) demented subjects who were moved from a 97 traditional nursing unit to a Reduced Stimulation Unit (RSU) experienced a significant (p < .001) decrease in agitated, including combative, behaviors. The primary caregiver also assesses the agitated, demented resident’s verbal and nonverbal behaviors to assist in the identification of aggravating factors, including emotions the resident is experiencing. In the earlier stages of dementia, victims are generally able to express their needs and feelings both verbally and nonverbally. As dementia progresses, verbal comprehensive and expressive abilities diminish. However, nonverbal comprehensive and expressive abilities may persevere through the end stages of dementia (Carroll, 1989). The caregiver observes the demented resident closely for changes in vocalizations, facial expressions, eyes, posture, and gestures indicative of changing feelings and needs (Hoffman & Platt, 1990; Robinson et al., 1989; Ronch, 1989). For example, an increase in the demented resident’s voice volume may indicate anger and/or frustration, whereas an increase in voice pitch or the rate of speech may indicate anxiety and/or the loss of self control. Close examination of the demented resident’s facial expressions and eyes may reveal feelings such as pain or fear (Hoffman & Platt, 1990). The demented resident’s posture can convey receptiveness to the caregiver (e. g., body turned toward or away) as well as emotions the resident is experiencing (e.g., hunched shoulders may indicate hopelessness and depression). Gestures may be used by the demented resident to relay messages or to indicate the intensity of an emotion (Hoffman & Platt, 1990). 98 Thus, assessing the demented resident’s verbal and nonverbal behaviors can assist the primary caregiver in identifying factors aggravating the resident’s agitation. For example, a female, demented resident might periodically hallucinate that mice are crawling up her legs. Frightened, the resident begins yelling and repeatedly hitting her legs. A nurse’s aide, unaware of the resident’s hallucinations, attempts to stop this behavior. The resident becomes combative, hitting and scratching the aide. By assessing the resident’s verbal and nonverbal behaviors, the primary caregiver intervening in this situation determines that the resident is hallucinating. When assessing for factors agitating the demented resident, the primary caregiver also asks the resident to communicate what is upsetting him or her. The caregiver uses a short question with simple words to facilitate the resident’s comprehension (Robinson et al., 1989). In Hoffman et al.’s (1985) study on the communication abilities of demented residents, the researchers found that both mildly and severely demented subjects responded appropriately nonverbally to simple questions, and that mildly demented subjects also responded appropriately verbally. The primary caregiver waits 3 to 5 seconds for a response, repeating the question verbatim if the resident does not respond. In Hoffman et al.’s (1985) study, the researchers found that demented subjects often manifested a several second delay in responding to the researcher’s questions, and that at times the researcher had to repeat a question verbatim in order to elicit a response from subjects. Residents afflicted with an irreversible dementia, such as Alzheimer’s disease, may experience expressive and/or receptive aphasia (Bartol, 1979). Therefore, the primary 99 caregiver may need to assist the resident in communicating what is agitating him or her. The following interventions will help the demented resident to communicate: interpret the resident’s message within the context of the situation; encourage the use of nonverbal messages, such as gestures; offer words or phrases which seem appropriate; repeat back what the resident appears to be saying and ask the resident to shake his or her head yes or no in response; provide encouragement and positive feedback to the resident; and use writing as a method of communicating (Carroll, 1989). By considering the context in which the resident’s combative behavior occurred and assessing the resident’s external environment and verbal and nonverbal behaviors, the caregiver can identify factors agitating the resident (e.g., a darkened room or a wandering resident). The caregiver then eliminates or diminishes these factors, as able. The caregiver does not attempt to eliminate any aggravating factors within the resident’s personal space (e.g., a tight physical restraint) until the resident’s agitated behavior has diminished. As discussed previously, highly agitated, cognitively impaired residents displayed significantly more (2 < .05) aggressive behaviors when touched, compared to when they were more than three feet from others (Marx et al., 1989). If the primary caregiver is successful in establishing a calm environment during the combative episode, the demented resident will manifest a decrease in the frequency and duration of highly agitated behaviors, including combativeness, threatening 100 gestures, cursing or other verbal aggression, screaming, throwing things, and pacing. Other indicators that a calm environment has been established include the primary caregiver identifying and eliminating the factors aggravating the resident’s agitation, initiating actions to relieve his or her own anxiety, feeling in control of the situation, and utilizing behaviors conveying a calm mood. The establishment of trust between the primary caregiver and the demented resident (as evidenced by the resident cooperating with the caregiver’s directions and requests, allowing the caregiver to approach and enter his or her personal space, and communicating his or her needs and concerns to the caregiver) also suggests that a calm environment has been promoted. If the resident continues to manifest highly agitated behaviors despite the primary caregiver’s interventions, the caregiver implements the behavioral technique of distraction. According to Hall’s PLST model (Hall & Buckwalter, 1987), the display of anxious and agitated behaviors suggests that the demented resident is becoming increasingly sensitive to environmental stressors and, therefore, has a greater potential for displaying further dysfunctional behavior. Distraction is an effective technique for decreasing agitation in demented residents due to their shortened attention span (Hussian & Davis, 1985; Robinson et al., 1989). Distraction consists of shifting the demented resident’s attention from the agitated behavior to an activity which the resident enjoys. Using food as a method of distraction is recommended, as demented adults generally respond positively to objects which satisfy a basic physical need (Hussian & Davis, 1985). The combative episode should not be discussed during the distracting activity, and the resident should be 101 engaged in the activity long enough to allow aggressive feelings to dissipate. Compared to younger adults, the elderly are slower to recover from emotional stress, and need sufficient time to allow negative feelings to subside (Hussian & Davis, 1985; Letemendia, 1985). If the distraction technique is unsuccessful. and the resident continues to display highly agitated behaviors, the primary caregiver acknowledges the resident’s desire not to interact. Attempts to continue interacting will increase the potential for the display of further combative or other agitated behaviors by the resident (Bartol, 1979). By acknowledging the resident’s desire not to interact at this time, the caregiver is respecting his or her freedom of choice. In studying aggression in cognitively impaired nursing home residents, Meddaugh (1987a, 1990) found that aggressive episodes were often related to the subjects’ loss of the freedom of choice. Before leaving the area, the primary caregiver makes a commitment to return in 10 minutes to check on the resident, thereby conveying continual concern for the resident. The caregiver must follow through on the commitment to return, as failing to follow through will jeopardize any trust the caregiver has established with the resident (Bartol, 1979). Upon returning to the area, the caregiver reassesses the resident’s behavior and the need for intervention. W The third and final objective for the primary caregiver managing the combative, demented resident is to promote the resident’s comfort and rest. This objective is based upon an assumption of Hall’s PLST model (Hall & Buckwalter, 1987), that is, 102 that the confused and agitated demented adult should be regarded as frightened and uncomfortable. The third objective is also based upon the proposal that the demented adult who has manifested dysfunctional behavior requires substantial rest to diminish his or her stress level and to restore energy reserves (Hall & Buckwalter, 1987). In order to promote the resident’s comfort and rest the primary caregiver first addresses the resident’s psychological comfort. The caregiver responds to the emotional tone of the resident’s verbal and nonverbal messages and acknowledges the resident’s feelings (e.g., stating "you look frightened"). In Hoffman et al.’s (1985) study on the communication abilities of demented nursing home residents, both mildly and seveme demented subjects were able to nonverbally communicate their feelings. Mildly demented subjects were also able to verbally communicate their feelings. By acknowledging the resident’s feelings, the caregiver is demonstrating concern for and empathy toward the resident and building trust (Hoffman & Platt, 1990; Robinson et al., 1989). The primary caregiver further promotes the resident’s psychological comfort by utilizing gentle touch once the resident’s agitation has diminished. Langland and _ Panicucci (1982) reported a significant (p < .05) increase in positive nonverbal responses (including smiling, nodding the head up and down, blinking, making eye contact, and touching or turning toward the researcher) in demented subjects touched on the forearm. The findings of a study on the effects of touch on seriously ill patients (McCorkle, 1974) suggested that touch can have a calming, comforting effect on patients (e.g., a decrease in patients’ restless movements). 103 Psychological comfort is also promoted by offering the resident verbal reassurance that actions will be taken to meet his or her needs and to prevent or minimize further exposure to factors causing agitation. The agitated, demented resident who has lost control of his or her behavior needs reassurance that someone will help control the behavior and attend to his or her needs (Burnside, 1980; Robinson et al., 1989). The primary caregiver managing the agitated, demented resident promotes the resident’s physical, as well as his or her psychological, comfort. According to Hall’s PLST model (Hall & Buckwalter, 1987), physical discomfort is a major stressor for demented adults and can aggravate dysfunctional behavior. Therefore, the caregiver implements measures to assure the demented resident’s physical comfort, such as loosening restrictive clothing or physical restraints, assuring that the resident is not too hot or cold, and providing fluids. The primary caregiver also promotes the demented resident’s rest. The resident is placed in a low-stimulus environment, as exposing him or her to multiple, competing environmental stimuli would increase the resident’ levels of stress and fatigue (Hall, 1988a; Hall & Buckwalter, 1987). The caregiver encourages the resident to nap or engage in a simple, solitary activity. Lawton (cited in Hall, 1988a) reported that demented residents given time alone in their rooms manifested higher functional levels when with others. Indicators that the primary caregiver has promoted the demented resident’s comfort include the resident responding positively to gentle touch (e. g., smiling, making eye contact, turning toward or touching the caregiver, or exhibiting a decrease in restless 104 body movements) and manifesting a decrease in the frequency and duration of behaviors indicative of psychological or physical discomfort, such as moaning or other verbalizations indicating discomfort and facial expressions indicating discomfort (e. g., wincing, grimacing, or tearing of the eyes). Indicators that the primary caregiver has promoted the demented resident’s rest include the resident engaging in a nap or other restful activity and returning to his or her baseline mental, physical, social, and emotional functional levels upon completion of the restful activity. The protocol presented here is based upon three basic objectives which, if accomplished, will facilitate the achievement of the protocol’s goal, which is to assist the combative, demented, elderly resident in regaining the maximum possible levels of safety, comfort, and function, considering the dementing illness. The primary caregiver’s successful management of the combative, demented, elderly resident (i.e., the resolution of the resident’s highly agitated behaviors without the occurrence of physical injuries or the use of physical and/or chemical restraints) is an indicator that the protocol’s goal has been achieved. This protocol may be utilized by all primary caregivers within a long-term care facility. Depending upon the situation, it is assumed that modifications in implementing the protocol will be necessary. For example, if a demented resident receiving personal care from an unfamiliar nurse’s aide becomes combative, it would be appropriate for the aide to immediately intervene, rather than attempting to find a primary caregiver more familiar to the resident. The following section will discuss a 105 follow-up plan for primary caregivers once the protocol has been implemented and the acute combative episode has been resolved. Follow-up Plan for Primg Caregivers Once the acute combative episode has been resolved, the primary caregiver who intervened with the combative resident is responsible for assuring that the appropriate follow-up is taken to prevent or minimize the reoccurrence of the combative behavior. The primary caregiver reports the details of the incident to the unit supervisor (LPN or RN). An incident report may also be required, depending on the facility’s policy. The primary caregiver should report the time and place of the combative incident, any observable cues prior to the incident (e. g., fatigue, increased anxiety), what activity immediately preceded the combative behavior, what were perceived causative factors, how long the behavior occurred, and what interventions relieved the resident’s combativeness. Talking with the supervisor about the incident will also help relieve any tension the primary caregiver is feeling (Martin & Kirkpatrick, 1987; Ray et al., 1990). The unit supervisor is responsible for assuring that other nursing staff on the unit are informed of the incident, as well as the charge nurse and/or nursing administrator. The unit supervisor also assures that the incident is documented in the resident’s chart. If the unit supervisor determines that the interventions taken by the primary caregiver (e.g., loosening a tight restraint, removing a wandering resident from the combative resident’s room) eliminated the factor(s) aggravating the combative 106 behavior, this is also documented in the resident’s chart. The resident’s nursing care plan is altered, when appropriate, to assure that interventions are taken to prevent further combative episodes. If, based on the primary caregiver’s report, the unit supervisor determines that further follow-up is indicated related to the combative incident, he or she initiates this follow-up. Further follow—up is indicated if the primary caregiver and unit supervisor suspect a specific causative factor requiring further intervention, or if the causative factor remains unknown. ’ An LPN or RN is responsible for the initial assessment to rule out a reversible somatic, mental, or psychosocial factor aggravating the resident’s combativeness. The nurse assesses the resident’s chart for any recent changes in ADL function (e.g., urination or defecation patterns, food or fluid intake), social function (e.g., withdrawal), emotional function (e. g., increased crying or sadness), behavior, sleep patterns, the resident’s physical environment, or any social or psychological changes (Martin & Kirkpatrick, 1987; Ray et al., 1990). The nurse also reviews the resident’s medication record for recent changes in the medication regimen. The nurse then assesses the resident, beginning with a complete set of vital signs to detect abnormalities (e.g., an elevated temperature might be indicative of an infection). The resident’s positioning is observed for any changes such as guarding or protecting of a body area (indicative of a possible injury), and the skin is inspected for signs of trauma (redness, bruising, etc.). The abdomen and bladder are inspected and palpated for distention, the joints are put through their range 107 of motion to detect pain or limitation, and the bones are palpated for irregularities indicative of trauma. Items such as urinary catheters and physical restraints are assessed for proper positioning and application (Ray et al., 1990). If the nurse identifies a factor aggravating the resident’s combativeness which is amenable to nursing intervention, a nursing diagnosis is formulated (e.g., physical aggression related to pain secondary to fecal impaction) and the appropriate nursing interventions are implemented. If the nurse is unable to identify a factor aggravating the resident’s combative behavior, or if the nursing interventions implemented do not resolve the combative behavior, the nurse can consult with the GCNS. Upon receiving a consultation request related to the resident’s combative behavior, the GCNS conducts a more in-depth assessment to detect any reversible somatic, mental, or psychosocial causes. The history and physical exam focus on identifying signs and symptoms indicative of factors possibly aggravating the demented resident’s combative behavior. If indicated, the GCNS consults with the resident’s primary physician regarding further diagnostic tests and consultations. If a reversible causative factor related to the combative behavior is identified, the appropriate medical and nursing interventions are implemented to eliminate or diminish this factor. If the GCNS is unable to find a reversible factor causing the resident’s combativeness and the behavior continues, a behavioral management plan is implemented (Ray et al., 1990). The behavioral management plan is developed through consultation with all staff involved in the resident’s care, and contains specific behavioral objectives and time frames. The plan consists of a baseline behavioral 108 assessment, the development and implementation of a care plan, and an evaluation of the plan with modifications made as needed (Hussian & Davis, 1985; Ray et al., 1990). If the behavioral management plan is unsuccessful in controlling the resident’s combative behavior, and the behavior is endangering the resident and others and/or interfering with the resident’s care, pharmacological intervention is considered (Ray et al., 1990). The GCNS consults with the resident’s primary physician regarding the use of a psychotropic drug to conu'ol the resident’s combativeness. The antipsychotic drugs are the drugs of choice for severe behavioral problems in the demented elderly (Maletta, 1988). The choice of an agent for the management of the resident’s combative behavior is based upon an evaluation of the resident’s current medications and medical problems, as well as the resident’s previous response to antipsychotic agents and the agent’s side effect profile (Eimer, 1989; Wragg & Jeste, 1988). Ray et al. (1990) recommend the use of a nurse-supervised protocol for the initiation and monitoring of an antipsychotic drug. The GCNS monitors the resident for behavioral changes indicative of either the agent’s effectiveness in controlling the combative behavior or adverse side effects related to its use. If the antipsychotic agent is effective in controlling the resident’s combative behavior, Ray et a1. (1990) recommend the use of a protocol to periodically attempt withdrawal from the drug (Ray et al., 1990). 109 Conclusion In summary, within this chapter, a protocol for the management of combative behavior displayed by demented, elderly residents was presented. A suggested plan of follow-up to prevent or minimize further occurrences of the behavior was also presented. The role of the GCNS and other health care professionals in implementing the protocol and performing the appropriate follow-up was discussed. The protocol and suggested follow-up for combative behavior presented within this chapter demonstrate the need for health care professionals to function as a multidisciplinary team, in order to provide long-term care residents with quality health care. In the following chapter, a proposed plan for the implementation and evaluation of the protocol will be presented. In addition, the relationship of the protocol to this scholarly project’s conceptual framework, as well as the implications of this project for the nursing profession, advanced nursing practice, and primary care, will be discussed. The protocol is presented in a format for clinical use in Appendix A. CHAPTER IV Implementation and Evaluation of the Protocol and Its Impact on Professional Nursing Introduction Within the first chapter of this scholarly project, the problem of the need for a protocol for the management of combative behavior in demented, elderly, long-term care residents was identified. In Chapter II, a review and summary of the literature related to combative behavior in demented adults was presented. Within Chapter III, a protocol for the management of combative behavior in demented, elderly residents, as well as a follow-up plan to prevent its reoccurrence, were presented. In this, the fourth and final chapter, a proposed plan for the implementation and evaluation of the protocol will be presented. In addition, the application of this scholarly project’s conceptual framework to the protocol, as well as the implications of this project for the nursing profession, advanced nursing practice, and primary care, will be discussed. Implementation and Evaluation of the Protocol As discussed in Chapter III, the first and second phases of the research utilization process are the review of the research literature relevant to an identified clinical problem and the formation of a protocol based upon this literature. The third and fourth phases of the research utilization process are the implementation and evaluation of the clinical protocol. The use of the planned change process is essential when implementing and evaluating the protocol, as this will muire changes in the behaviors 110 l 1 1 of the involved staff members (Horsley et al., 1983). Planned change is defined as "a conscious, rational, and deliberate process for bringing about change and innovation, which tends to make those changes more acceptable and beneficial to those involved” (Horsley et al., 1983, p. 3). A change agent is defined as ”one who generates ideas, introduces the innovation, develops a climate for planned change by overcoming resistance and marshaling forces for acceptance, and implements and evaluates the change" (Lancaster, 1982, p. 20). Within this project, the change agent facilitating the implementation of the protocol is the GCNS. The client system, or group who is the focus for the change (Brooten, 1984; Welch, 1979), is the primary caregivers within a long—term care facility. In the following discussion, it is assumed that the GCNS is employed by a long-term care facility. The first step related to the implementation and evaluation of the protocol is creating a climate for change (Horsley et al., 1983). The GCNS must heighten both the administrative and clinical nursing staff’s awareness of the need for a change in their current practices related to the management of combative, demented residents. In a meeting with nursing administrators, the GCNS could present research literature to support the need for a change. The literature would be related to the frequency of chemical and physical restraint use for the management of aggression in demented residents and the negative outcomes associated with the use of these restraints. The GCN S would also emphasize the need to implement alternative interventions for the management of combative behavior in light of recent federal 112 regulations restricting the use of chemical and physical restraints. This information could also be shared with residents’ primary physicians. In addition, a volunteer group of nursing staff could be formed to review all incident reports related to combativeness over the past year. The group would document the negative outcomes from these episodes and formulate ideas on how to overcome these. This information would then be presented to coworkers, for example, at a nurses’ meeting or inservice. The GCNS could also arrange several informal meetings in which nursing staff were encouraged to express their feelings related to residents’ combative behaviors, such as fear, anxiety, loss of control, and anger. Staff would also be encouraged to share their feelings related to the use of chemical and physical restraints, such as guilt or ambivalence. In a study in which nursing staff were asked to rate a nurse’s responses to being hit by a patient (as described in a vignette), approximately 71% of subjects stated the nurse would have moderate to severe emotional and physical reactions to being hit (Lanza, 1985). In a study on the effects of physical restraints on elderly hospitalized patients and their primary care nurses (Strumpf et al., 1991), the nurses reported experiencing ambivalence and discomfort related to physically restraining their elderly patients. The next step related to the implementation and evaluation of the protocol is the establishment of a cooperative relationship between the GCN S and the nursing staff (Brooten, 1984). This is a crucial step, as this relationship is the avenue through 113 which the clinician’s knowledge and experience will be shared with staff to assist in the implementation of the protocol (Lippitt, Watson, & Westley, 1958). A cooperative relationship between the GCNS and nursing staff would be promoted by remaining open to one another’s ideas, encouraging all nursing staff to participate in the project, seeking agreement on goals, sharing information, and keeping channels of communication Open and flowing (Brooten, 1984). The GCNS would meet initially with nursing administrators to discuss such issues as what tasks would be required for the protocol’s implementation and evaluation and who might be willing and qualified to assist with the project. Nursing administrators could help identify staff who would be enthusiastic about the project and would act as leaders for others. The next step toward the implementation and evaluation of the protocol is specifically defining the problem related to the staff's current management of combative behavior (Brooten, 1984; Lippitt et al., 1958; Welch, 1979). This would be achieved by identifying the nursing staff’s current methods of managing residents’ combative behaviors and their knowledge level related to potential causes of these behaviors in the demented, the most effective management techniques, and the potential negative outcomes related to chemical and physical restraint use. Information on the nursing staff‘s management techniques for combative behavior and their knowledge level related to this behavior could be gained by reviewing nursing documentation related to combative episodes over the past year, and by developing and administering a questionnaire to nursing staff exploring these areas. 114 By reviewing and synthesizing the information collected, the GCNS and nursing staff assisting him or her would be able to determine the staff’ 3 learning needs related to the management of combative behavior in demented residents. The next task is assessing the environment of the proposed change (Brooten, 1984). The group would evaluate whether or not the facility environment was supportive of the protocol implementation (e. g., was the administration supportive of the change, and were the necessary resources available)? The group would also need to identify potential obstacles to the protocol’s implementation and determine strategies to overcome these. One potential barrier to the protocol’s implementation would be a lack of interest amongst the nursing staff. The staff might feel that there was no need to alter their current approach to the management of combativeness, and therefore would not be willing to assume the responsibilities and risks involved with implementing the protocol. As was discussed earlier in this chapter, the GCNS and others supporting the protocol’s implementation would utilize strategies to heighten the nursing staffs awareness of the need for a change in their current management approach to the combative, demented resident. Another potential obstacle to the protocol’s implementation would be the perception by both the administrative and clinical nursing staff that implementing the protocol would be time-consuming. Generally speaking, most nursing administrators within the long-term care setting feel pressured to complete their many administrative duties. The clinical nursing personnel also struggle to meet the multiple needs of their 115 elderly residents. Therefore, the GCNS would need to demonstrate to the nursing staff that the protocol’s implementation could ultimately result in more time for them. If the protocol was tested and found to be effective, the frequency and duration of combative episodes would decrease, residents would maintain higher levels of function, and nursing staff would spend less time caring for combative residents. Administrative nursing personnel may feel threatened by the GCNS, due to his or her higher level of educational preparation. Nursing administrators may view the GCNS’s advanced education as a threat to their job security and authority. The GCNS could explain to administrative nursing personnel that his or her expertise was in clinical, rather than administrative, gerontological nursing. The GCNS could also emphasize the need for teamwork and for the expertise of the nursing administrators in implementing the protocol. The long-term care facility’s administrator and medical director might voice skepticism related to the implementation and evaluation of the protocol. They could, for example, be concerned about ethical and monetary issues related to performing a clinical study. Those promoting the testing of the protocol could educate the administrator and medical director about the benefits of research, and the methods utilized to obtain informed consent and maintain resident safety and confidentiality. Furthermore, the potential availability of grants to support the study, the utilization of resources within the facility to minimize costs, and the potential cost-effectiveness of the protocol could be discussed with the administrator and medical director. 116 Another potential obstacle to the protocol’s implementation and evaluation would be the time needed by the GCNS to oversee the study. The GCNS would need to prepare a realistic list of his or her responsibilities and the time frame involved. Prior to the implementation of the protocol, the GCNS and administration would need to agree on the amount of time the GCNS would devote to the study. Once potential obstacles to the implementation and evaluation of the protocol had been identified and management strategies determined, a plan would be developed for the implementation and evaluation of the protocol. This is another crucial step, as the success of any change is dependent upon the extent to which the change has been carefully planned (Brooten, 1984). First, a committee would be established to assist the GCNS in the implementation and evaluation of the protocol. The advantages of establishing a small committee (3-6 people) include the accomplishment of a greater amount of work within a specified time period, a greater influence over nursing staff to be involved in the project, and a greater variety of skills and expertise to facilitate the protocol’s implementation and evaluation (Brooten, 1984). Also, by delegating leadership roles and responsibilities, the GCNS would be generating enthusiasm for the project and minimizing the nursing staff‘s reliance on him or her to implement the protocol (Welch, 1979). As the leader of the committee overseeing the protocol’s implementation and evaluation, the GCNS would work with committee members to develop a written master plan. The first step within the master plan should be the provision of a written description of the protocol (e. g., actions within the protocol, who is to implement it, 117 where and when it is to be implemented) and the methods for implementing and evaluating it (Horsley et al., 1983). The initial implementation and evaluation of the protocol would be achieved by conducting a pilot study. The pilot study would involve testing the protocol on one or two nursing units within the facility to obtain information related to the feasibility of utilizing the protocol and to determine how the protocol and its implementation might be improved. Implementation of the protocol on a smaller scale should be done as carefully as if it were to be implemented on a larger scale, so that problems which could occur when implementing the protocol on a larger scale are identified (Polit & Hungler, 1983). The sample used for the pilot study should reflect the populations sampled in the protocol’s research base. The sample for the pilot study would consist of male and female demented, elderly, long-term care residents having a recent history of combative behavior. A convenience sample would be developed, consisting of all residents who met the pilot study criteria on one or two nursing units within the facility (Horsley et al., 1983). The units chosen for the pilot study should have an adequate number of residents available who meet the criteria for study inclusion. The units should also have nursing staff who are willing and able to participate in the pilot study, as well as adequate staffing to support the study (Horsley et al., 1983). The independent variable for the pilot study would be the implementation of the protocol for the management of combative behavior. At least one or more of the 118 dependent variables (i.e., resident and/or staff outcomes) to be used in the pilot study should come from the protocol’s research base (Horsley et al., 1983). The dependent variables for the pilot study would be related to the expected resident and staff outcomes of the protocol, including the following: the frequency and severity of physical injuries, the ability of the primary caregiver to control his or her own anxiety and to utilize behaviors conveying calmness, the degree to which the primary caregiver felt in control of the combative situation, the amount of trust established between the primary caregiver and the resident (measured by the degree to which the resident cooperated with the caregiver’s directions and requests, allowed the caregiver to enter his or her personal space, and communicated needs to the caregiver), the ability of the primary caregiver to identify and eliminate factors agitating the resident, the frequency and duration of highly agitated behaviors and behaviors indicative of psychological or physical discomfort manifested by the resident, the resident’s response to physical touch, the frequency of chemical and/or physical restraint use, and the resident’s functional levels. A quasi-experimental research design (lacking at least one of the properties required for an experimental study, i.e., manipulation, control, and randomization) would be used for the pilot study (Polit & Hungler, 1983). The research design would consist of the collection of data related to the dependent variables before and after the protocol was implemented. Other activities related to planning the pilot study would be identifying instruments to measure the dependent variables (e.g., incident report and chart documentation after the combative episode, a questionnaire to be completed by 119 primary caregivers who intervened with the combative resident) and determining how to collect the data (Horsley et al., 1983). Next, the committee would list all the activities to be completed and all the resources needed to conduct the pilot study (e. g., personnel, time, equipment, physical space, etc.). The committee would also determine how to obtain the necessary resources (Horsley et al., 1983). In Appendix B is a suggested list of the resources required to conduct a pilot study of the protocol’s implementation on a 30—bed long-term care unit. The study would occur over 4 weeks and 10 subjects would participate. The unit’s nursing staff would remain consistent during the pilot study, and would include one nurse per shift, and four, three, and two nurse’s aides for the day, evening, and night shifts, respectively. The committee overseeing the pilot study would include the GCNS, the Director of Nursing, the Inservice Director, and an LPN and nurse’s aide from the study unit. The facility would absorb the costs of the study. This resource list was developed through consultation with the Director of Nursing, Inservice Director, and Office Manager of a 172-bed, long-term care facility in St. Johns, Michigan. The next step in planning for the pilot study would be the development of a time schedule, in which deadlines were set for completing activities and obtaining resources. The responsibilities of committee members in these areas would need to be specified. The time schedule should be flexible enough to allow for unanticipated problems (Brooten, 1984; Horsley et al., 1983; Welch, 1979). 120 Other activities to be completed by the committee in preparation for the pilot study would include obtaining approval of the project from the appropriate authorities (i.e., Medical Director, Administrator), obtaining consents for resident participation in the study from responsible parties, determining how to communicate necessary information to the nursing staff, identifying possible sources of resistance to the protocol’s implementation and developing strategies to manage these, developing needed materials (e.g., inservice materials, measurement instruments, data collection forms), and educating nursing staff who will participate in the pilot study (Brooten, 1984; Horsley et al., 1983). Once the committee had sufficiently planned for the protocol’s implementation and evaluation, the pilot study would be initiated. An individual would be designated by the committee to function as a coordinator during the pilot study (Horsley et al., 1983). The GCNS would function well in this role, due to his or her familiarity with the protocol, active participation in the planning phase, and knowledge related to the research utilization process. Responsibilities of the coordinator would include closely monitoring the procedures of the pilot study, monitoring staff’s responses and suggestions related to the protocol’s implementation, assuring that communication between those involved remained open and fluent, identifying obstacles (e.g., missing or inaccurate data, declining staff morale) and unexpected events and intervening to assure the continuation of the pilot study (if possible), and reporting regularly to committee members (Brooten, 1984; Horsley et al., 1983; Welch, 1979). 121 During the pilot study, the other committee members would also monitor the procedures of the study. The full committee would meet weekly to receive updates from the coordinator and to assist him or her in making decisions (e.g., related to staff's suggestions for protocol revisions). Other issues to be addressed at these meetings might include how to implement the protocol on a larger scale and provide nursing staff with encouragement and positive feedback (Brooten, 1984; Lippitt et al., 1958). Upon completion of the pilot study, the data would be analyzed to determine if the protocol’s implementation resulted in any clinically significant improvement in , resident or staff outcomes related to combative episodes. Findings indicative of an improvement in resident and/or staff outcomes with the protocol’s implementation would support the implementation of the protocol on a larger scale. If the analysis of the data suggested that revisions of the protocol were needed, the committee would decide whether or not the resources were available to undertake this project. The committee would also need to debrief with the staff involved in the study, and evaluate other areas related to the protocol’s implementation, for example, the adequacy of the inservice program in preparing nursing staff for the pilot study, and the accuracy of the timetable developed within the master plan. The GCNS should also evaluate his or her effectiveness as a change agent. One indicator of the GCNS’s effectiveness would be the degree to which the nursing staff felt they were responsible for implementing and evaluating the protocol. An effective change agent is able to 122 instill feelings of responsibility and pride in those involved in the change (Brooten, 1984; Horsley et al., 1983; Lippitt et al., 1958; Olson, 1979). Application of the Conceptual Framework to the Protocol The purpose of this scholarly project was to develop a protocol which primary caregivers in long-term care facilities could implement when demented, elderly residents exhibited combative behaviors. The protocol’s development was guided by the conceptual framework presented in Chapter I, which is based upon Hall’s PLST model (Hall & Buckwalter, 1987). The following discussion is on the relevance of the conceptual framework presented in Chapter I to the protocol presented in Chapter III. According to Hall’s PLST model (Hall & Buckwalter, 1987), the elderly resident afflicted with an irreversible dementia experiences a progressive degeneration of brain cells, often accompanied by degenerative changes that occur with aging (e.g., sensory losses, slowed synaptic response times, impaired mobility). Due to these changes, the elderly, demented resident experiences a progressively lowered stress threshold and a decreased ability to cope effectively with environmental stressors. Within this scholarly project, the demented resident’s stress threshold has been defined as the point at which the resident displays compensatory reactions (i.e., combative behaviors) in response to perceived overwhelming internal or external stimuli, in an attempt to regain homeostasis. The demented resident’s regaining of homeostasis is indicated when he or she returns to normal, or baseline, behavior. 123 According to the conceptual framework presented in Chapter I, the demented, elderly resident within a long-term care facility is frequently exposed to the stress- producing factors identified in the PLST model (i.e., fatigue, change of environment, caregiver, or routine, internal or external demands to function beyond the limits imposed by cortical deterioration, competing, misleading, or overwhelming stimuli, and physical stressors). Due to his or her diminished ability to cope with these stressors, continued or heightened exposure to them results in the demented resident manifesting increased fatigue and anxious and/or agitated behaviors. If primary caregivers do not intervene to minimize the demented resident’s exposure to environmental stressors, the resident’s perception of these stressors escalates, his or her stress threshold is exceeded, and the resident manifests combative behavior. The combative resident’s levels of comfort, safety, and function are significantly decreased. It is at this point that the primary caregiver would implement the protocol for the management of combative behavior presented in Chapter 111. By implementing the protocol, the primary caregiver would assist the demented resident in coping with environmental stressors and in returning to baseline behavior (i.e., homeostasis). The goal of the protocol presented in Chapter III is to assist the combative, demented resident in regaining his or her maximum levels of safety, comfort, and function possible, considering the dementing illness. In order to achieve this goal, the primary caregiver follows the interventions presented within the protocol. These 124 interventions are focused on the accomplishment of three objectives, which are based upon the conceptual framework presented in Chapter I. The first objective, which is to prevent physical injury to the demented resident and others in the immediate area, is based upon the conceptual framework’s proposal that the combative, demented resident experiences significant impairments of functional, including cognitive and emotional, levels. The resulting impairments of judgement and impulse control increase the potential for the resident to harm him or herself and others. The second objective, that is, to diminish the demented resident’s agitation, stems from the proposal that highly agitated, including combative, behaviors are compensatory reactions of the demented resident to perceived overwhelming environmental stressors. Therefore, the primary caregiver implements interventions to promote a calm environment and to eliminate environmental stressors agitating the demented resident. The third objective, which is to promote the demented resident’s psychological and physical comfort and rest, is based upon an assumption of the PLST model, that is, that the confused or agitated demented adult is uncomfortable and frightened (Hall & Buckwalter, 1987). The third objective is also based upon the proposal that the demented adult who has manifested dysfunctional (e. g., combative) behavior requires substantial rest to diminish his or her stress level and to restore energy (Hall & Buckwalter, 1987). 125 Thus, it can be seen that the conceptual framework developed in Chapter I is applicable to the protocol presented in Chapter III. Overall, the conceptual framework and Hall’s PLST model (Hall & Buckwalter, 1987) upon which it was based, assisted in the identification of objectives related to the management of combative behavior in demented, elderly residents. An identified weakness of the conceptual framework, based upon a review of the literature, is its failure to directly address important causative factors of combativeness such as psychiatric illness, negative feelings, and losses experienced by the demented elderly. Although some of these factors are addressed indirectly (e. g., the loss of adequate social supports may be related to a change of environment), a modification of the conceptual framework would be necessary to directly address these causative factors. Project Benefits Related to the Nursing Profession Impact on Nursing Education The information provided within this scholarly project could be utilized to develop an in-depth educational program for long-term care nursing staff on the management of combative behavior in the demented elderly. The program would provide staff with information related to potential causes of combative behavior, negative outcomes secondary to its occurrence, and the implementation of the protocol to manage combativeness. The objectives of the protocol could be used to develop sequential educational sessions for nursing staff. Various teaching methods could be uied, for 126 example, presenting case studies, discussing staff’s previous experiences, or role playing. There would be both barriers and facilitators for the GCNS educating long-term care nursing staff on the protocol presented in Chapter HI. Regarding barriers, the nursing staff might be intimidated by the GCNS’s higher level of educational preparation. To counteract this, the GCNS would prepare and present inservices to meet the educational needs of the staff attending (e.g., nurse’s aides, LPNs, or RNs). In addition, the GCNS would show a sincere interest in meeting the needs of all nursing staff related to the management of the combative resident, for example, by offering supplemental reading materials appropriate for the different educational levels of the staff. The GCNS would also present the protocol in a simple format that nursing staff could remember and utilize when intervening with the combative, demented resident. Another potential barrier to the education of long-term care nursing staff related to combative behavior management would be the staff’ s lack of knowledge related to the care of the demented resident, the possible causes of combative behavior in this resident population, and the negative outcomes related to chemical and physical restraint use. Therefore, the GCNS would need to provide educational programs in these areas, prior to educating staff on the use of the protocol presented in Chapter III. The tendency of long-term care nursing staff to focus on controlling the demented resident’s combative behavior could hinder their ability to learn the protocol within this scholarly project. This is because the protocol, rather than focusing on controlling 127 the resident’s behavior, is concerned primarily with maintaining the resident and others’ physical safety, promoting a calm environment (including eliminating factors possibly agitating the resident), and promoting the resident’s comfort and rest. Therefore, the GCNS would need to assist the nursing staff in learning new priorities related to the management of the combative, demented resident. Although barriers would exist to educating nursing staff on the utilization of the protocol, facilitators would also be present. For example, the primary caregivers of demented adults have a need to feel in control of combative situations, rather than anxious and fearful. Also, long-term care nursing staff want to provide quality nursing care to their demented residents. Therefore, provided they are educated on the negative outcomes of physical and chemical restraints, they should be open to alternative interventions for combativeness. Furthermore, federal regulations based on the Omnibus Budget Reconciliation Act (OBRA) of 1987, amended in 1989, mandate that any long-term care facility not providing adequate documentation supporting the use of restraints be penalized (Garrard et al., 1991; Yerian & Pettengill, 1990). Therefore, long-term care nursing staff are looking for alternatives to chemical and physical restraints for the management of the combative, demented resident. The protocol presented in Chapter III is an alternative management technique for combativeness which maintains a safe environment, as well as the demented resident’s maximum levels of function and comfort. 128 resident. By maintaining a positive attitude, the GCNS can instill new hope and confidence in the nursing staff related to their ability to manage the problem behaviors of demented residents. As the staff’s knowledge related to the care of demented residents grows, so will their pride in themselves and the care they provide to long- term care residents. Utilizing the conceptual framework upon which this project was based, an educational program on the management of combative behavior in demented residents could be expanded to include the prevention of this behavior. The nursing staff could be taught to use demented residents’ behaviors as an index of their tolerance to environmental stimuli. The display of anxious or dysfunctional behaviors would indicate the need to reduce the amount of stimuli within the demented resident’s environment. It is also important that nursing students at both the undergraduate and graduate level are educated related to the management of the combative, demented elderly. Therefore, educational materials from this project could be incorporated into nursing schools’ curricula related to the care of the elderly. If the protocol is tested and found effective in managing combativeness in demented residents, the protocol could be submitted to nursing journals for publication. Publication of the protocol would increase its availability to professional nurses caring for the demented elderly in a variety of settings, and stimulate further interest in the management of combative behavior in this population. 129 Nurse educators within long-term care facilities who were introduced to the protocol might- be encouraged to develop more educational programs on low-risk management techniques for disruptive behaviors of demented residents. Programs which focused on low-risk interventions (e.g., assessing for causative factors and utilizing distraction) for the management of disruptive behaviors could result in a decreased use of chemical and physical restraints within long-term care facilities. W The long-term goal of this scholarly project is the implementation and evaluation of the protocol within a long-term care facility. If the protocol was found to be effective in managing combative behaviors of demented residents, this would support the development of policies within long-term care facilities related to the use of the protocol. Utilization of the protocol within the long-term care setting could minimize primary caregivers’ anxiety when intervening with the combative, demented resident. The anxiety experienced by caregivers when a resident is combative is related (at least in part) to the fear of injury, and to uncertainty regarding how to control the behavior. The protocol provides primary caregivers with specific guidelines which, if followed, would minimize the occurrence of injury and assist caregivers in controlling the combative behavior. For all primary caregivers, the utilization of the protocol would minimize their risk for physical injury, negative emotions, and physical and/or emotional exhaustion when intervening with a combative resident. For the non-professional nursing staff, the 130 increased responsibility and accountability afforded to them through their role in the protocol’s implementation would increase their credibility as important members of the health care team. Regarding the professional nursing staff, the proper implementation of the protocol would require an increased use and further refinement of their clinical knowledge and skills (e. g., when assessing for causative factors related to the combative behavior). The suggestions made within this project related to the follow-up for combative behavior could stimulate creativity in the professional staff, as they endeavored to develop nursing care plans which utilized the least restrictive techniques for the management of combative behavior. In addition, the utilization of the protocol could enhance the quality of health care provided to combative, demented residents. By correctly implementing the protocol and instituting the appropriate follow-up, primary caregivers would decrease residents’ risks for injury, discomfort, fatigue, physical and chemical restraint use, social isolation, and functional impairments related to combativeness. Also, the implementation of the protocol could decrease the risks to other staff, residents, and visitors related to combativeness. Impact on Nursing Research Again, the long-term goal of this scholarly project is the implementation and evaluation of the protocol within a long-term care facility. If the protocol’s implementation on a smaller scale is successful, a larger research study involving several facilities could be conducted. This would result in a larger sample size, 131 possibly allowing the use of a more rigorous research design (i.e., one which utilized random sampling and experimental and control groups) than the one proposed in this scholarly project. Basing the protocol development upon the conceptual framework presented in Chapter I validates the applicability of nursing theory to practice. Educating nursing staff on the relationship between the protocol they are implementing and the conceptual framework upon which it is based could enhance their understanding of the link between nursing theory and practice. If the protocol was found to be effective in managing combative behaviors, this would confirm the utility of nursing theory in improving clinical practice. Upon completion of the implementation and evaluation of the protocol, the research findings could be presented to nursing staff who participated in the study (e.g., at nurses’ meetings and through the posting of a written report). The research findings could also be disseminated to other professionals caring for the demented elderly, for example, by submitting the study for publication in nursing journals, or presenting the research findings at professional conferences. During the development of this scholarly project, the need for further nursing research in several areas was identified. For example, the lack of studies on the use of behavioral techniques for the management of disruptive behaviors indicates the need for further research in this area. Research is needed related to the effectiveness of behavioral techniques in controlling disruptive behaviors, as well as the effect varying levels of cognitive impairment have on demented residents’ responses to behavioral 132 techniques. Also, research is needed to determine whether or not the benefits of behavioral therapy outweigh the risks to demented residents (e.g., the loss of social and tangible reinforcers if therapy is interrupted or discontinued). Due to the large number of demented residents within long-term care facilities, the creation of low-stimulus units within these facilities addresses the needs of only a small percentage of the demented residents. Therefore, further research is needed to determine if environmental modifications could be made on a larger scale within long- term care facilities to enhance all demented residents’ functional levels (e.g., using permanent assignments for nursing staff or restricting the use of overhead paging systems). Further research is also needed related to the communicative abilities of demented residents. Based upon the literature reviewed, as well as past clinical experiences of the author, it appears that primary caregivers within long-term care facilities are often unaware of the ability of demented residents to communicate concerns and feelings, either verbally or nonverbally. Therefore, the quality of communication between caregivers and demented residents could be improved through the conduction of further studies investigating the ability of demented residents to communicate, and through the dissemination of the research findings to caregivers. Another potential area of research is the utilization of nurse-supervised clinical protocols for the initiation and withdrawal of antipsychotic drugs. Research studies could be conducted to determine whether or not the utilization of such protocols would result in improved outcomes for demented residents receiving antipsychotic drugs (e.g., 133 related to the management of disruptive behaviors and the incidence of adverse side effects). lrnplications for Advanced Nursing Practice Advanced nursing practice is defined as ”the deliberative diagnosis and treatment of a full range of human responses to actual or potential health problems" (Calking, 1984, p. 27). The nurse in advanced practice has specialized knowledge and skills related to the treatment of human responses, and utilizes diagnostic and treatment procedures which are supported by rationale (Calking, 1984). The GCNS providing primary care services to the institutionalized elderly has assumed an expanded role which affords greater autonomy in practice and requires greater responsibility and self-discipline. The GCN S functioning in this advanced role assumes specific role characteristics in order to provide comprehensive, primary health care services to elderly residents. The following is a discussion of how the GCN S coordinating the care of demented, elderly residents incorporates these roles into his or her advanced practice. The first role the GCNS assumes is that of an assessor. The GCNS collects subjective and objective data to assist in the identification of causative factors related to a demented resident’s combative behavior. The GCN S performs the appropriate history and physical exam, and consults with the resident’s physician regarding any diagnostic tests. Periodic assessments by the clinician would also be needed to determine the demented resident’s responses to nursing and medical interventions. 134 The GCN S promoting the implementation and evaluation of a protocol for the management of combative behaviors is functioning as a change agent. As a change agent, the clinician fosters an awareness amongst long-term care nursing staff of the need for a change in their current management practices for combativeness. The GCNS utilizes his or her special knowledge and skills, as well as planned change theory, to promote this change. The GCNS also acts as a change agent by fostering an awareness amongst health care professionals of the need to change the environment of the institutionalized, demented elderly. Research studies reviewed within this scholarly project support the placement of these residents in an environment where stimuli are controlled, staff are educated on the care of the demented, and programs are provided which meet the special needs of demented residents. Within the long-term care environment, one of the most crucial roles of the GCNS is that of client advocate. As an advocate for the combative, demented resident, the clinician identifies 'and communicates the resident’s problems and needs to the appropriate individuals (e.g., physicians or nurses). The regirnented routines established within long-term care facilities foster dependence and hasten the loss of the demented resident’s self-care abilities. The GCNS reinforces to primary caregivers that fostering dependence in the demented resident increases the resident’s potential for combative behavior due to the loss of control. The GCNS also emphasizes to primary caregivers that most demented 135 residents can communicate verbally and/or nonverbally, and should be given every opportunity to do so. The GCNS also functions as a clinician, utilizing the nursing process as a basis for practice, and helping professional long-term care nurses managing the combative, demented resident to perform the appropriate assessment, develop the pertinent nursing diagnoses, and implement and evaluate a plan of care. The GCNS consults with the resident’s physician as needed, and makes the appropriate referrals. The GCNS also functions as a collaborator. When overseeing the management of a resident displaying frequent combative behavior, the clinician collaborates with other health care team members (e. g., other nurses, the physician, or social worker) and the resident’s family. The GCNS may need to organize a team meeting in order to create a comprehensive management plan. The GCN S also collaborates with health care professionals from other long-term care facilities to share knowledge related to the care of the combative, demented resident. As a consultant, the GCNS shares his or her knowledge and skills related to the research utilization process and the management of the combative, demented resident to assist long-term care nursing staff in planning for, implementing, and evaluating a protocol for combative behavior management. The GCNS also serves as a consultant to health care professionals in other long-term care facilities related to the care of the combative, demented resident. A crucial role for the GCNS providing primary care services to the institutionalized elderly is that of a coordinator. When coordinating the care for a 136 demented, elderly resident manifesting combative behavior, the GCNS assures that all necessary interventions are taken to resolve this behavior. For example, the GCNS may need to consult with the resident’s physician to arrange a psychiatric consultation, and with the activities director to provide the resident with an acceptable means for releasing anger. The GCNS within a long-term care facility also serves as a counselor for both residents and nursing staff. When intervening in an acute combative episode, the GCNS attempts to establish communication with the resident and encourage the resident to express his or her needs or concerns. The GCNS assesses the resident’s capabilities and resources, and offers whatever assistance is necessary to help the demented resident cope with identified stressors. The GCNS also organizes meetings for primary caregivers in which they are encouraged to openly express their feelings related to combativeness in demented residents. The nurse clinician assures that confidentiality is maintained, and promotes various coping strategies by staff to deal with negative feelings related to combativeness. As an educator within a long-term care facility, the GCNS assesses the health care team’s learning needs related to the care of combative, demented residents, and provides educational programs to meet these needs. For example, the GCNS could educate nursing, as well as other, professional staff on federal regulations related to the use of physical and chemical restraints. The clinician also acts as an educator by 137 providing educational programs to health care providers within other facilities on the management of the combative, demented resident. The GCNS within a long-term care facility is also an evaluator. He or she is aware of and practices by accepted standards of nursing practice (e. g., code of ethics and/or standards of gerontological nursing practice). The GCN S evaluates his or her (as well as other nurses’) provision of care to residents utilizing these standards, and is active (through participation in professional nursing organizations) in the development of further standards of practice related to the care of the elderly. As a leader among nursing staff caring for the demented, institutionalized elderly, the GCNS promotes the provision of quality nursing care to long-term care residents through his or her involvement in state and national nurses’ associations. The GCNS remains abreast of legislative actions affecting the health care of the institutionalized elderly, and is active in lobbying for the provision of quality health care services to this population. The GCNS also functions as a planner by guiding professional nursing staff in the development of a master plan for the implementation and evaluation of a protocol for combativeness. He or she provides expertise in areas such as developing a realistic time schedule, determining the resources needed and how to acquire these, etc. The GCNS also works with the professional nursing stafi' to develop comprehensive management plans for combative, demented residents. A role model is one who utilizes knowledge, research, service, and accountability to clients to promote the nursing profession, and whose behavior is worthy of 138 emulation by colleagues and clients (Michigan State University, College of Nursing, 1985a). The GCNS who utilizes a protocol to manage an acute episode of combativeness and is able to control the demented resident’s behavior without physical or chemical restraints serves as a role model for the facility’s nursing staff. The GCNS acts as a role model for professional nurses by assuming responsibility for the appropriate follow-up related to the combative episode. The GCNS also acts as a role model for professional nurses by basing his or her practice on the nursing process, utilizing interventions which are supported by rationale, and conducting and utilizing research in the clinical setting. The final role of the GCNS providing primary care services to the demented, institutionalized elderly is that of a researcher and inquirer. The GCNS participates in the development and conduction of a pilot study testing a clinical protocol through assisting in activities such as developing the research design, determining the sample and tools for measurement of the dependent variables, and training staff in the collection and recording of data. The GCNS fosters interest in nursing research related to the care of the demented elderly by demonstrating to other long-term care nurses the application of nursing theory to clinical practice, educating nurses on the research utilization process, offering assistance with the development and implementation of clinical studies, and assuring that nursing research literature is available for staff. 139 Implications for Primapy Care The GCNS within a long-term care facility provides health promotion, health prevention, and health maintenance services to residents, as well as health education and counseling (Michigan State University, College of Nursing, 1985b). As a primary care provider, the GCNS assists demented residents to cope with and adjust to the losses experienced secondary to dementia, in order to maintain their maximum levels of function and independence possible. The following is a discussion of how the GCNS incorporates the components of primary care into the management of the combative, demented resident. According to Silver (1977), primary health care has two dimensions. The first dimension is the initial contact between the client and the primary caregiver, in which a decision is made regarding how to manage the client’s health problem. The second dimension is the primary caregiver’s assumption of responsibility and accountability for the continuing coordination and management of the client’s health care. The GCNS intervening with the combative, demented resident first collects subjective and objective data and formulates a comprehensive management plan. The GCNS then assumes primary responsibility for coordinating the health care services needed to implement the plan, and for monitoring the demented resident’s response to the plan. The GCNS adjusts the plan as needed to assure that the most effective and least restrictive interventions are utilized to manage the resident’s combativeness. The clinician maintains contact with the resident’s other health care providers and family to 140 keep them informed of changes in the management plan and the resident’s responses to treatment. The GCNS providing primary health care services within a long-term care facility is readily accessible to nursing staff and residents. The GCNS is available to assist nursing staff in managing the acutely combative, demented resident, and in initiating the appropriate follow-up to prevent further combative behavior. The GCNS serves as a link between the long-term care nursing staff and primary care physicians, providing nursing staff with the immediate assistance needed to manage the combative resident, and providing physicians with the information necessary to determine the appropriate medical follow-up. The GCNS within a long-term care facility provides residents with individualized care, based on their unique health care needs. When intervening with the combative, demented resident, the clinician identifies the specific intemal and/or external stressors aggravating the combativeness, and develops an individualized management plan to assist the resident in coping with these stressors and in regaining maximum levels of safety, comfort, and function. The GCNS as a primary care provider promotes management plans for combativeness which maintain the residents’ maximum levels of physical, mental, and psychosocial health. The GCNS educates other health care team members on the risks of physical and chemical resu'aint use (e. g., immobility, increased agitation), and collaborates with these individuals to create alternative interventions for the management of combativeness. 141 The GCNS also supports interventions for combativeness which promote demented residents’ individual strengths and enhance their ability to cope with their losses. For example, a combative, demented resident whose previous occupation was farming could be encouraged to work in an outdoor garden. Schwab, Rader, and Doan (1985) reported on a rehabilitative program for disruptive, demented residents which utilized exercise, music, and relaxation therapies to assist residents in releasing their fears and anxieties. Positive resident outcomes from the program included a decrease in the use of chemical and physical restraints and in disruptive behaviors, and an increase in social interactions initiated by the demented residents. As a primary care provider, the GCN S maintains a continuous relationship with the demented resident manifesting combative behaviors, providing unconditional positive regard and social interaction for the resident. The GCNS interacts regularly with the resident, utilizing verbal and nonverbal behaviors conveying interest in and concern for the resident. Maintaining regular contact with the demented resident is important, in order to detect any' health-related changes, and to remain familiar to the resident (who is more likely to communicate and cooperate with a familiar caregiver). Because primary care services are comprehensive, the GCNS assures that the appropriate services are provided, including referrals, to thoroughly assess for factors aggravating the demented resident’s combative behavior, and to develop a comprehensive management plan for the resident. The GCNS organizes interdisciplinary team meetings if needed, and monitors the services provided to the resident by members of the health care team. 142 Primary care services are family-oriented. Therefore, the GCNS encourages the involvement of family in developing a plan of care for the combative, demented resident. The GCNS invites the family to interdisciplinary team meetings to gain their input related to the management of the resident’s combativeness. Family are also encouraged to actively participate in the management plan, for example, by accompanying the resident to small group programs which increase the resident’s exposure to social interaction and positive reinforcement (e.g., reminiscence or remotivation therapy). The GCN S counsels family by providing them with an opportunity to voice their feelings about the resident’s behavior, and by reassuring them that combative behaviors in the demented are generally not intentional. The GCNS also educates family on the appropriate procedures to use should their demented relative become combative. The GCNS as a primary care provider also considers the health care needs of the combative, demented elderly within the surrounding community. In a study on the prevalence of aggressive behavior in community-based, demented elderly, Hamel (1990) reported that caregivers reported some form of aggressive behavior in 57.2% of the demented elderly. Physically aggressive behavior was reported in 34.1% of the demented elderly. Ryden (1986) also studied the prevalence of aggressive behavior in community-based, demented elderly. In this study, primary caregivers reported that 26.5% of the demented elderly manifested physical aggression. 143 As was discussed in Chapter I, the primary caregivers of the combative, demented elderly within the community can experience physical injury, as well as deteriorations in their mental and physical health and in their relationships with the demented elderly. The community-based demented elderly manifesting combative behaviors can also suffer physical injury and a deterioration of their relationship with the primary caregiver, as well as social isolation, overmedication with sedative and tranquilizing drugs with an increased potential for adverse side effects, and increased functional impairments (Carroll, 1989; Mace, 1990; Mace & Rabins, 1981; Richter et al., 1989). For the primary caregiver unable to manage the combative, demented elder at home, institutionalization may be the only alternative. Adult foster care homes will not accept demented adults manifesting physical aggression. According to Hamel (1990), significant (p < .01) predictors of plans for institutionalization of the demented elderly by their primary caregivers included caring for the more aggressive elderly and for those who manifested more behavioral and memory problems. Primary caregivers faced with institutionalizin g their demented loved one face various problems. For example, within some states health care agencies have restricted the addition of nursing home beds to reduce Medicaid costs, resulting in an unmet demand for long-term care beds for the demented elderly living in the community (Office of Technology Assessment, 1987). Furthermore, both the demented, elderly individual and the primary caregiver experience negative feelings such as loss, loneliness, guilt, and anger, when the demented adult is institutionalized. 144 Also, the demented, elderly individual may experience increased agitation and confusion when he or she is moved to an unfamiliar place with unfamiliar caregivers. Thus, it is apparent that primary caregivers of the combative, demented elderly within the community are in need of assistance to prevent or minimize the negative outcomes associated with combativeness. The protocol for the management of combative behavior presented in Chapter III, which was developed for the long-term care setting, could be modified for the home care setting. The three objectives of the protocol, that is, to prevent physical injury, to diminish agitation, and to promote comfort and rest, are applicable toward the management of the combative, demented individual in any setting. In order to utilize the original protocol for the management of combative behaviors within the home care setting, some wording would need to be altered. For example, family member and/or friend would replace coworker and supervisor. Furthermore, the outcomes utilized to measure the effectiveness of the protocol within the home care setting would vary somewhat from those utilized in the long-term care setting. Measurable outcomes of the protocol’s effectiveness applicable to either the long- terrn care or home care setting include the degree to which primary caregivers feel in control of the combative situation, the frequency and severity of physical injuries, the frequency and duration of highly agitated behaviors and behaviors indicative of psychological and/or physical discomfort manifested by the demented individual, the frequency of physical and chemical restraint use, and the demented individual’s functional levels. Other outcomes to measure the effectiveness of the protocol in the 145 home care setting include the following: the mental and physical health of the caregiver and carereceiver, the type and quantity of health care services utilized (e.g., visits to physician, psychiatrist, or counselor, medication consumption, or visits from home health care agencies), the quality of the caregiver/carereceiver relationship, and the frequency of relocation (including institutionalization) of the demented, elderly individual. lnforrnation related to the successful implementation of the protocol in community settings (e.g., residential homes, adult foster care homes, adult day care centers) could be disseminated to primary caregivers of the demented elderly in various ways. For example, information related to the protocol could be mailed to primary care clinics and to support groups for the caregivers of the demented. Furthermore, the GCNS could provide educational programs on combative behavior management to the primary caregivers of the demented elderly in the community. The GCNS could also serve as a consultant to these caregivers, assisting in the creation of management plans for combativeness which maintained the demented elderlys’ maximum possible functional levels, and prevented their relocation to more restrictive living environments due to unmanageable combative behavior. Conclusion Within this chapter, a proposed plan for the implementation and evaluation of the protocol (presented in Chapter IID within a long-term care facility was presented. The relationship between the conceptual framework of this scholarly project and the 146 protocol developed was discussed. The implications of this scholarly project for the nursing profession, advanced nursing practice, and primary care were also discussed. It is the author’s hope that, indeed, the protocol will be implemented and evaluated within a long-term care facility. Nurses in advanced practice, along with other health care professionals, need to develop innovative ways to manage the behavioral problems of demented, elderly residents. By developing and testing low-risk interventions for the management of demented residents’ behavioral problems, health care professionals can increase the availability of interventions which maintain the residents’ maximum levels of mental, physical, social, and emotional functioning. 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We .a 80.33.... 8.... -8228... 3828......“ .w .252: tag-.8... m. -3985... 3:05.83 <- ..5...a~.. 5.. 822.55.... -58. .55.... 5 9.8 9:38 + 39.3 .ooam\vo.m -380 $583.5 .m 5:86” .02: «.852 5:86; -qu 558.2% -mZUO 558.3% -8825 8.28..— ..58.... .55.... .o 5.85 ”Gan-=5 33.qu :3 8mm... :52. 2... e852: 83.8550 .v 4...: .33... .2... so as. wig... use-.95}.- .m .mcamqfig... 6.528... 38.3.... 5% .N .93.. mm. 8.83 So. -ch2 2..... .2... .— m 5.33%.... >3— APPENDIX C 158 Appendix C JanuaryZO. 1992 Patrice Jones Journal Permission Department v.8. Saunders Company Orlando. Florida 32887 Dear Ms. Jones: I am a graduate nursing student at Michigan State University in East Lansing. M1ch1gan. I am writing to request permission to utilize three figures (figures I. 2. and 3) from the December. 3987 Archives of psychlafiF‘CWNUFthg,ul(6). pp. 399-406. The article is entitled “progressively Lowered Stress Threshold: at Conceptual Model for Care of Adults with Alzheimer's Disease”. I have utilized these three figures within my scholarly project text to present Geri Richard's Hall‘s Progressively Lowered Stress Threshold model. My completed and bound scholarly project will partially fulfill the requirements for the degree of Masters of Science in Nursing at Michigan State UniversStY. I would appreciate a reply to this reouest at your earliest possible convenience. Sincerelv. W. .1. 9mm. 143W Judith L. Jandernoa. R.N.. B.S.N. PERMISSION GRANTED, provided that complete credit is given to the source. including the W.B. Saunders copyright line. If commercial publication should result. please contact W.B. Saunders again. xiv/j; a. was 71%“ 7 / Permissions 4;/' W.B. Saunder Company Orlando. Florida 32887 Please note that the Grune & Stratton title for which permission is requested has been assigned to the W.B. Saunders Company. LIST OF REFERENCES LIST OF REFERENCES Agras, W. S. (1984). The behavioral treatment of somatic disorders. In W. D. Gentry (Ed.). The handbook of behavioral medicine (pp. 479-530). New York: Guilford. American Psychiatric Association (1987). Diagnostic and statistical manual of mental disorders (3rd ed.). Washington, DC: Author. American Nurses’ Association, Committee on Skilled Nursing Care (1975). Nursing and long-term care: Toward Quality for the aging. Kansas City, MO: American Nurses’ Association. Aronson, M. K. (Ed.). (1988). Understanding Alzheimer’s disease. New York: Charles Scribner’s Sons. Athlin, B., & Norberg, A. (1987). Caregivers’ attitudes to and interpretations of the behaviors of severely demented patients during feeding in a patient assignment care system. International Journal of Nursing Studies, 21(2), 145—153. Avorn, J., Soumerai, S. B., Everitt, D. E., Sherman, D. S., Beers, M. H., & Salem, S. R. (1988). Reduction of psychoactive drug use in nursing homes through "academic detailing". Clinical Research $8), 311A. Baltes, M. M., & Lascomb, S. L. (1975). Creating a healthy institutional environment for the elderly via behavior management: The nurse as a change agent. International Journal of Nursing Studies, 12(1). 5-12. Barnes, R., & Raskind, M. (1980). Strategies for diagnosing and treating agitation in the aging. Geriatrics £6), 111-115, 119. Barnes, R., Veith, R., Okimoto, J., Raskind, M., & Gumbrecht, B. (1982). Efficacy of antipsychotic medication in behaviorally disturbed dementia patients. American Journal of Psychiag, &(9), 1170-1174. Bartol, M. A. (1979). Nonverbal communication in patients with Alzheimer’s disease. Journal of Gerontological Nursing, §(4), 21-31. Beardsley, R. S., Larson, D. B., Burns, B. J.. Thompson, J. W., & Kamerow, P. B. (1989). Prescribing of psychotropics in elderly nursing home patients. Journal of the American Geriatric Society, 31(4), 327-330. 159 160 Beck, C., Baldwin, B., Modlin, T., & Lewis. S. (1990). Caregivers’ perception of aggressive behavior in cognitively impaired nursing home residents. Journal of Neuroscience Nursing, QB), 169-172. Beers, M., Avorn, J., Soumerai, S. B., Everitt, D. B., Sherman, D. 8., & Salem, S. (1988). Psychoactive medication use in intermediate-care facility residents. Journal of the American Medical Association _2_6__0(20), 3016-3020. Benson, D. M., Cameron, D., Humbach, B., Servino, L., & Gambert, S. R. (1987). Establishment and impact of a dementia unit within the nursing home. Journal of the American Geriatric Sociey, 3§(4), 319-323. Birchmore, T., & Clague, S. (1983). A behavioral approach to reduce shouting. Nursing Times, 72(16), 37-39. Brannon, D., & Bodnar, J. (1988). The primary caregivers: Aides and LPNs. In M. A. Smyer, M. C. Cohn, & D. Brannon, Mental health consultation in nursing homes (pp. 192-221). New York: New York University Press. Brooten, D. A. (1984). Managerial leadership in nursing. Philadelphia: J. B. Lippincott. Buckwalter, K c., & Hall, G. '11. (1987). Families of the institutionalized older adult: A neglected resource. In Brubaker (Ed.). Aging, health, & family (pp. ms 196). Newbury Park: Sage. Burnside, I. M. (1980). Symptomatic behavior in the elderly. In J. B. Birren & R. B. Sloane (Eds), Handbook of mental health and aging (pp. 719-744). Englewood Cliffs, NJ: Prentice-Hall. Calking, J. D. (1984). A model for advanced nursing practice. The Journal of Nursing Administration, Ma). 27. Carroll, D. L. (1989). When your loved one has Alzheimer’s. New YorK: Harper & Row. Chafetz, P. K. (1988). Behavioral management of secondary symptoms of dementia. In R. L. Dippel & J. T. Hutton (Eds), Caring for the Alzheimer Patient (pp. 112- 117). Buffalo, NY: Prometheus Books. Chandler, J. D., & Chandler, J. E. (1988). The prevalence of neuropsychiatric disorders in a nursing home population. Journal of Geriatric Psychiatry and Neurology, _1_(2), 71-76. Cleary, T. A., Clamon, C., Price, M., & Shullaw, G. (1988). A reduced stimulation unit: 161 Effects on patients with Alzheimer’s disease and related disorders. _Ih__e Gerontologist, 28(4), 51 1-514. Cohen-Mansfield, J. (1986). Agitated behaviors in the elderly. 11. Preliminary results in the cognitive deteriorated. Journal of the American Geriatric Society, 24(10), 722-727. Cohen-Mansfield, J., & Billig, N. (1986). Agitated behaviors in the elderly. 1. A conceptual review. Journal of the American Geriatric Society, 21(10), 711-721. Cohen-Mansfield, J., & Marx, M. S. (1988). Relationships between depression and agitation in nursing home residents. Comprehensive Gerontology, 2(3), 141-146. Cohen-Mansfield, J., Marx, M. S., & Rosenthal, A. S. (1989). A description of agitation in a nursing home. Journal of Gerontology: Medical Sciences, 244(3), M77-84. Cohn, M. D., & Jay, G. M. (1988). Families in long-term care settings. In M. A. Smyer, M. D. Cohn, & D. Brannon, Mental health consultation in nursing homes (pp. 142-168). New York: New York University Press. Como, N. D. (Ed.). (1990). Mosby’s medical, nursing, & allied health dictionm (3rd ed.). St. Louis, MO: CV. Mosby. Couper, D. P. (1989). Aging and our families. New York: Human Science Press. Covert. A. B., Rodrigues, T., & Solomon, K. (1977). The use of mechanical and chemical restraints in nursing homes. Journal of the American Geriatric Society, _2_5_(2). 85-89. Coyne, J., & Lazarus, R. (1981). Cognitive style, stress perception and coping. In J. Kutash & L. Schlesinger (Eds), Handbook on stress and anxiety (pp. 144-159). San Francisco: Jossey Bass. DeWever, M. K. (1977). Nursing home patients’ perception of nurses’ affective touching. Journal of Psychology, _9gSecond Half), 163-171. Donat, D. C. (1986). Altercations among institutionalized psychogeriatric patients. m Gerontologist, 29(3), 227-228. Ebersole, P. (1989). Caring for the psychogeriatric client. New York: Springer. Eirner, M. (1989). Management of the behavioral symptoms associated with dementia. Primggy Care, 29(2), 431-450. 162 Ereshefsky, L., Rospond, R., & Jann, M. (1989). Organic brain syndrome, Alzheimer’s type. In J. T. DiPiro, R. L. Talbert, P. E. Hayes, G. C. Yee, & L. M. Posey (Eds), Pharmacotherapy: A pathophysiologic approach (pp. 678-696). New York: Elsevier Science. Erwin, W. G., & Skidmore, E. A. (1989). Geriatrics. In J. T. DiPiro, R. L. Talbert, P. B. Hayes, G. C. Yee, & L. M. Posey (Eds), Pharmacotherapy: A pathophysiologic approach (pp. 42-47). New York: Elsevier Science. Garrard, J., Makris, L., Dunham, T., Heston, L., Cooper, S., Ratner, E., Zelterman, D., & Kane, R. (1991). Evaluation of neuroleptic drug use by nursing home elderly under proposed medicare and medicaid regulations. Journal of the American Medical Association, @(4), 463-467. Gove, P. B. (Ed.). (1986). Webster’s third new international dictionm. Springfield, MA: Merriam-Webster. Greendyke, R. M., & Kanter, D. R. (1986). Therapeutic effects of pindolol on behavioral disturbances associated with organic brain disease: A double-blind study. Journal of Clinical Psychiag, fl (8), 423-426. Gugel, R. N. (1988). Managing the problematic behaviors of the Alzheimer’s victim. The American Journal of Alzheimer’s Care and Related Disorders and Research, 3 12-15. -’ Hall, G. R. (1988a). Alterations in thought process. Journal of Gerontologigal NursingI 14(3). 30-37. Hall, G. R. (1988b). Care of the patient with Alzheimer’s disease living at home. Nursing Clinics of North America, 2(4), 31-46. Hall, G. R., & Buckwalter, K. C. (1987). Progressively lowered stress threshold: A conceptual model for the care of adults with Alzheimer’s disease. Archives of Psychiatric Nursing, 2(6), 399-406. . Hall, G. R., Kirschling, M. V., & Todd, S. (1986). Sheltered freedom: An Alzheimer’s unit in an ICF. Geriatric Nursing, 1(3), 132-137. Hamel, M., Gold, D. P., Andres, D., Reis, M., Dastoor, D., Grauer, H., & Bergman, H. (1990). Predictors and consequences of aggressive behavior by community-based dementia patients. Gerontologip' t, 20(2), 206-211. Harkulich, J. T., & Calamita, B. A. (1989). A manual for caregivers of Alzheimer’s disease clients in long-term are. Cleveland Heights, OH: Embassy Printing. 163 Helms, P. M. (1985). Efficacy of antipsychotics in the treatment of the behavioral complications of dementia: A review of the literature. Journal of the American Geriatric Socieg, £6), 206-209. Hensyl, W. R. (Ed.). (1990). Stedman’s medical dictionary (25th ed.). Baltimore: Williams & Wilkins. Hoffman, S. B., & Platt, C. A. (1990). Confronting the confused: Strategies for managing dementia. Owing Mills, MD: National Health Publishing. Hoffman, S. B., Platt, C. A., Barry, K. B., & Hamill, L. A. (1985). When language fails: Nonverbal communication abilities of the demented. In Proceedings of the Fifth Tarbox Smposium, the Norman Rockwell Conference on Alzheimer’s Disease (pp. 49-64). Lubbock, Texas, New York: Alan R. Liss. Horowitz, M. J., Duff, D. F., & Stratton, L. O. (1964). Body-buffer zone: Exploration of personal space. Archives of General Psychiatg, 22(6), 651-656. Horsley, J ., Crane, J., Crabtree, M. K., & Wood, D. J. (1983). Using research to improve nursing practice: A guide. New York: Grune & Stratton. Howell, T. R., & Watts, D. T. (1990). Behavioral complications of dementia: A clinical approach for the general internist. Journal of General Internal Medicine, 2(5), 431-437. Hussian, R. A., & Davis, R. L. (1985). Resmnsive Care. Champaign, IL: Research Press. Hutton, J. T. (1988). Medical aspects of dementia. In R. L. Dippel & J. T. Hutton (Eds), Caring for the Alzheimer patient (pp. 28-37). Buffalo, NY: Prometheus Books. Jackson, M. E., Drugovich, M. L., Stemberg, J ., Fretwell, M., & Spector, W. (1987). The role of resident characteristics and social support in the presentation of disruptive behaviors in the nursing home. The Gerontologist, 21(Special Issue), 33A. Janosik, E. K., & Davies, J. L. (1989). Psychiatric mental health nursing (2nd ed.). Boston: Jones and Bartlett Publishers. Jarvik, L. F., & Trader, D. W. (1988). Treatment of behavioral and mood changes. In M. K. Aronson (Ed.). Understanding Alzheimer’s disease (pp. 128-145). New York: Charles Scribner’s Sons. Jencks, S. F., & Clauser, S. B. (1991). Managing behavioral problems in nursing homes. 164 Journal of the American Medical Association 295_(4), 502-503. Katzman, R. (1986). Alzheimer’s disease. The New England Journal of Medicine, M05), 964-972. Keyfrtz, N., & Flieger, W. (1990). World mpulation growth and aging: Demogr_aphic trends in the late twentieth centugy. Chicago: University of Chicago Press. Kinzel, A. F. (1970). Body-buffer zone in violent prisoners. American Journal of Psychiagy, _1_2_7_(1), 59-64. Kotik-Harper, D., & Harper, R. G. (1988). Techniques for enhancing memory, orientation, and communication in the Alzheimer patient. In R. L. Dippel & J. T. Hutton (Eds), Caring for the Alzheimer patient (pp. 94-110). Buffalo, NY: Prometheus Books. Lancaster, J. (1982). Change theory: An essential aspect of nursing practice. In J. Lancaster & W. Lancaster, Concepts for advanced nursing practice: The nurse as a change agent (pp. 5-23). St. Louis, MO: C. V. Mosby. Langland, R. M., & Panicucci, C. L. (1982). Effects of touch on communication with elderly confused clients. Journal of Gerontological Nursing, _8_(3), 152-155. Lazarus, R. (1966). Psychological stress and the coping process. New York: McGraw- Hill. Lanza, M. L. (1985). How nurses react to patient assault. Journal of Psychosocial Nursing, §(6), 6, 8-11. Letemendia, M. (1985). An age-old problem: Aggression in the elderly. Nursing Times, 8_l (17), 30-32. Lippitt, R., Watson, J., & Westley, B. (1958). The dmamics of planned change. New York: Harcourt, Brace, & World. Litwalk, E. (1985). Helping the elderly. New York: Guilford. Maas, M. (1988). Management of patients with Alzheimer’s disease in long-term care facilities. Nursing Clinics of North America, 22(1), 57-64. Mace, N. L. (Ed.). (1990). Dementia care: Patient, family, and community. Baltimore: John Hopkins University Press. 165 Mace, N. L., & Rabins, P. V. (1981). The 36-hour day. Baltimore: John Hopkins University Press. Malena, G. J. (1988). Management of behavior problems in elderly patients with Alzheimer’s disease and other dementias. Clinics in Geriatric Medicine 9(4), 719-747. Martin, J. L., & Kirkpatrick, H. (1987). Nursing assessment of the aggressive elderly. Persppctives, l_1_(3), 8-10. Marx, M. 8., Werner, P., & Cohen-Mansfield, J. (1989). Agitation and touch in the nursing home. Eychological Repprts, 6_4_(3, Part 2), 1019-1026. McCorkle, R. (1974). Effects of touch on seriously ill patients. Nursing Research, 22(2), 125-132. Meddaugh, D. I. (1987a). Aggressive and non-aggressive nursing home patients. 1119 Gerontologist, 2Z(Special Issue), 127A. Meddaugh, D. I. (1987b). Staff abuse by the nursing home patient. glinical Gerontolog'st, 9(2), 45-57. Meddaugh, D. I. (1990). Reactance: Understanding aggressive behavior in long-term care. Journal of Psychosocial Nursing, 29(4), 29-33. Mentes, J. C., & Ferrario, J. (1989). Calming aggressive reactions: A preventive program. Journal of Gerontological Nursing, 29(2), 22-27. Michigan State University, College of Nursing (1985a). (fiduate student handbook, p. A-l. Michigan State University, College of Nursing (1985b). Nursing 564 syllabus, Appendix B. Minde, R., Haynes, E., & Rodenburg, M. (1990). The ward milieu and its effects on the behaviors of psychogeriatric patients. Canadian Journal of Psychiagy, fie), 133- 138. Mish, F. C. (Ed.). (1985). Webster’s ninth new collegr_a' te dictiongy. Springfield, MA: Merriam-Webster. Morriss, R. K., Rovner, B. W., Folstein, M. F., & German, P. S. (1990). Delusions in newly admitted residents of nursing homes. American Journal of Psychiagy, £10). 299-302. 166 National Center for Health Statistics (1989). The national nursing home survey: 1985 summg for the United States (DHHS Publication No. PHS 89-1758). Washington, DC: U.S. Government Printing Office. O’Connor, M. (1987). Disturbed behavior in dementia-psychiatric or medical problem? The Medical Journal of Australia, 24100), 481, 483-485. Office of Technology Assessment (1990). Confused minds, burdened families: Finding help for pgople with Alzheimer’s disease and other dementias (OTA-BA-403). Washington, DC: U.S. Government Printing Office. Office of Technology Assessment (1987). Losing a million minds: Confronting the tragedy of Alzheimer’s disease and other dementias (OTA-BA-323). Washington, DC: U.S. Government Printing Office. Olson, E. M. (1979). Strategies and techniques for the nurse change agent. Nursi g Clinics of North America, 24(2), 323-336. Patterson, C. R., & LeClair, J. K. (1989). Acute decompensation in dementia: Recognition and management. Geriatrics, fl(8), 20-26, 31-32. Patterson, M. B., & Whitehouse, P. J. (1990). The diagnostic assessment of patients with dementia. In N. L. Mace (Ed.). Dementia care: Patieni, family, and communiiy (pp. 3-21). Baltimore: John Hopkins University Press. Perry, M. A., & Furukawa, M. J. (1986). Modeling methods. In F. H. Kanfer & A. P. Goldstein (Eds), Helping ppople change (pp. 66-110). New York: Pergamon. Polit, D., & Hungler, B. (1983). Nursing research: Principles and methg (2nd ed.). Philadelphia: J. B. Lippincott. Porter, J. E., Rasmussen, T. J., & Burnside, I. M. (1981). Developing a working relationship with a confused client. In I. M. Burnside (Ed.). Nursing of the aged (pp. 210-220). New York: McGraw-Hill. Pynoos, J., & Stacey, C. A. (1986). Specialized facilities for senile dementia patients. In M. L. Gilhooly, S. H. Zarit, & J. Birren (Eds), The dementias: Polig and management (pp. 111-130). Englewood Cliffs, NJ: Prentice-Hall. Ray, W. A., Taylor, J. A., Lichtenstein, M. J., Meador, K. G., Stoudemire, A., Liptzin, B., & Blazer, D. (1990). Managing behavioral problems in nursing home residents. Unpublished manuscript. 167 Richter, R. W., Blass, J. P., & Valentine, J. L. (1989). Principles in caring for Alzheimer’s patients. In G. D. Miner, L. A. Winters-Miner, J. P. Blass, R. W. Richter, & J. L. Valentine (Eds), Caring for Alzheimer’s patients: A gg'de for family and healthcare providers (pp. 79-102). New York: Plenum. Risse, S. C., Lampe, T. H., Cubberley, L. (1987). Very low-dose neuroleptic treatment in two patients with agitation associated with Alzheimer’s disease. Journal of Clinical Psychiap'y, 4_8_(5), 207-208. Robinson, A., Spencer, B., & White, L. (Eds). (1989). Understanding difficult behavior; Some practical suggestions for coping with Alzheimer’s disease and related illnesses. Ypsilanti, MI: Eastern Michigan University. Ronch, J. L. (1989). Alzheimer’s disease: A practical wide for those who help others. New York: The Continuum. Rosberger, Z., & MacLean, J. (1983). Behavioral assessment and ueatment of "organic" behaviors in an institutionalized geriatric patient. International Journal of Behavioral Geriauics, 2(4), 33-46. Rovner, B. W., Kafonek, 8., Filipp, L., Lucas, M. J., & Folstein, M. F. (1986). Prevalence of mental illness in a community nursing home. American legal of Psychiat2'y, 24_3(11), 1446-1449. Ryden, M. B. (1986). Aggressive behavior in persons with dementia. The Gerontologisi, 29(Special Issue), 228A. Schainen, J. C. (1991). Environments for nursing care of the older client. In W. C. Chenitz, J. T. Stone, & R. A. Salisbury (Eds), Clinical gerontological nursing: A gpide to advanced practice (pp. 523-534). Philadelphia: W. B. Saunders. Schwab, M., Rader, J., & Doan, J. (1985). Relieving the anxiety and fear in dementia. Joumal of Gerontological Nursing, Q6), 8-11, 14-15. Selye, H. (1980). The stress concept today. In I. Kutash & L. Schlesinger (Eds), Handbook on stress and anxieiy (pp.124-144). San Francisco: Jossey Bass. Silliman, R. A., Stemberg, J., & Fretwell, M. D. (1988). Disruptive behavior in demented patients living with disturbed families. Journal of the American Geriatric Socieg, $0), 617-618. Silver, H. K. ( 1977). The essentials of primary health care. Journal of Family Mtice, 51(1). 151. 168 Skews, G. (1988). Try TLC for aggression. The Lamp, 4_5(7), 13-14. Sloane, P. D., Mathew, L. J., Scarborough, M., Desai, J. R., Koch, G. G., & Tangen, C. (1991). Physical and pharmacological restraint of nursing home patients with dementia: Impact of specialized units. Journal of the American Medical Association 29900), 1278-1282. Struble, L. M., & Siversten, L. (1987). Agitation behaviors in confused elderly patients. Journal of Gerontological Nursing, 23(11), 40-44. Strumpf, N. E., Evans, L. K., & Schwartz, D. (1991). Physical restraint of the elderly. In W. C. Chenitz, J. T. Stone, & S. A. Salisbury (Eds), Clinical gerontological nursing: A guide to advanced practice (pp. 329-344). Philadelphia: W. B. Saunders. Taylor, E. J. (1988). Dorland’s illustrated medical dictionag (27th ed.). Philadelphia: W. B. Saunders. Teri, L., Borson, S. Kiyak, A., & Yamagishi, M. (1989). Behavioral disturbance, cognitive dysfunction, and functional skill: Prevalence and relationships in Alzheimer’s disease. Journal of the American Geriatric Society, 3_7_(2), 109-116. Thomas, D. R. (1988). Assessment and management of agitation in the elderly. Geriatrics 4_3(6), 45-50, 53. Tinetti, M. E., Lui, W., Marottoli, R. A., & Ginter, S. F. (1991). Mechanical restraint use among residents of skilled nursing facilities. Journal of the American Medical Association 2_65_(4), 468-471. U.S. Senate Special Committee on Aging. (1985). Aging America: Trends and projections. Washington, DC: Author. Vladeck, B. C. (1980). Unloving care: The nursing home tragedy. New York: Basic Books. Weiler, P. G., & Goodman, T. A. (1987). The use of propranolol in Alzheimer’s disease patients with disruptive behavior. Current Theragutic Research, 4_2(2), 364-374. Welch, L. B. (1979). Planned change in nursing: The theory. Nursing Clinics of North America, fla), 307-321. Werner, P., Cohen-Mansfield, J ., Braun, J., & Marx, M. S. (1989). Physical restraints and agitation in nursing home residents. Journal of the American Geriatric Socieg, 31(12). 1122-1126. 169 Winger, J., Schirm, V., & Stewart, D. (1987). Aggressive behavior in long-term care. Journal of Psychosocial Nursing, 2_5_(4), 28-33. Wisner, B., & Green, M. (1986). Treatment of a demented patient’s anger with cognitive behavioral strategies. Psychological Repor_t, _5_9_(2), 447-450. Wragg, R. B., & Jeste, D. V. (1988). Neuroleptics and alternative treatments: Management of behavioral symptoms and psychosis in Alzheimer’s disease and related conditions. Psychiatric Clinics of North America 22(1), 195-213. Yerian, R. D., & Pettengill, J. (1990). New federal law limits physical and chemical restraint usage in nursing homes. Michigan Medicine, g6), 41. Zarit, S. H., Orr, N. K., & Zarit, J. M. (1985). The hidden victims of Alzheimer’s disease: Families under stress. New York: New York University Press. Zimmer, J., Watson, N., & Treat, A. (1984). Behavioral problems among patients in skilled nursing facilities. American Journal of Public Health 19(10), 1118-1121. l I I'll l . . '1 1| ll ill It 1:“ l‘ | Ilia! 'II‘ | l