’ “IWI‘ \ MM" ' I H 5 I l \ l w, w W H I i ( W l } II ' r» l 1 1 1 } 1 J ‘ l 3! HM f PROMOTING PRIMARY CARE: A CLIENT INFORMATION , BROCHURE ' ‘ ' Schalariy Praiect for the Degree aims, N.’ i I If MICHIGAN. STATE UNIVERSITY; ' ' JGSEPHINE LISTER HENDRIX . I. "1998 I ‘ THESIS LIBRARY Michigan State University PLACE IN RETURN BOX to remove this checkout from your record. TO AVOID FINES return on or before date due. MAY BE RECALLED with earlier due date if requested. DATE DUE DATE DUE DATE DUE 6/01 c;/ClFiC/DateDue.p65»p. 15 PROMOTING PRIMARY CARE: A CLIENT INFORMATION BROCHURE BY Josephine Lister Hendrix A Scholarly Project Submitted to Michigan State University in partial fulfillment of the requirements for the degree of MASTER OF SCIENCE IN NURSING College of Nursing 1998 ABSTRACT PROMOTING PRIMARY CARE: A CLIENT INFORMATION BROCHURE BY Josephine Lister Hendrix Patients often seek healthcare for non-emergent problems in emergency departments and urgent care walk-in centers instead of seeking care with a primary care provider. This practice may prevent patients from receiving optimum quality care and may predispose patients to episodic care and unnecessary work-ups and treatment. This form of care also increases healthcare costs. This practice, according to Kasper (1987), is especially problematic in the lower socioeconomic populations in the United States. This project outlines some of the barriers to primary care and discusses the attributes of primary care. The purpose of this scholarly project was to develop a tool to increase an awareness of primary care through patient education. A brochure is designed for the general public, but targets the lower socioeconomic population of the Grand Traverse region, and therefore is written in an easy to comprehend format. The brochure provides a definition of primary care, benefits of primary care, examples of care that can be appropriately treated by a PCP (primary care provider), and examples of a true health care emergency. There is a section with information on accessing ii the PCP during and after office hours and it is formatted for customizing that information. The information in the brochure is designed to encourage patients to seek primary care for non-emergent health concerns instead of choosing episodic care in emergency departments and walk-in clinics. The PCP will review the brochure with patients in an interactive educational process. The Innovation-Decision Process Model by Rogers (1995) was used as a conceptual framework for this scholarly project. This model represents the diffusion of a new concept or idea and the path to adoption of that idea, which in this case, is primary care. iii ACKNOWLEDGMENTS The completion of this scholarly project would not have been possible without the continued support and contributions of these special people: I would like to thank the members of my scholarly project committee for their patience, guidance and moral support: Katherine Dontje, RN, MSN, FNP and Catherine Lein, RN, MSN, FNP, co-chairs; George Allen, PhD, committee member; and Joan Predko, RN, PhD, committee member. My special thanks to Patricia Peek, RN, MS, CS, PNP for advice and cheerful moral support. My appreciation also extends to Kaye Arnett for preparing the final copy of this scholarly project. Sincere thanks to Mark Baranski, RN, BSN, Director of Emergency Services, Munson Healthcare System, for sharing demographic data from his study on non-emergent patient health care choices in the Traverse City area, and to Jim Munro, RN, Shift Coordinator, Munson Emergency Department, for sparking the idea for this project. Finally, my most sincere thanks and love to my husband, Dan Hendrix, for his technical assistance in producing the computer generated conceptual models and the Primary Care Brochure; to my children, Joseph, Warren, and Ariana Hendrix iv for their patience and caring support; to my parents, Margaret and Henry Hose for their belief in me; and to my friend and classmate, Linda Steltzner, RN, BSN, CCRN for advice and support. Their love, patience, and strength bolstered me in this challenge. TABLE OF CONTENTS LIST OF FIGURES . . . . . . . . . . CHAPTER I: ISSUES AND PROBLEM STATEMENT Introduction . . . . . . . . . . . . . . . . . . Background and History of the Problem . . . . . Problem Statement . . . . . . . . . . . . . . . Goals-and Objectives of this Brochure . . . . . CHAPTER II: CONCEPTUAL FRAMEWORK Rogers' Innovation-Decision Process Model . . . Rogers' Conceptual Definitions . . . . . . . . . Conceptual Definitions . . . . . . . . . . . CHAPTER III: LITERATURE REVIEW Attributes of Primary Care . . . . . . . . . . . Barriers to Primary Care . . . . . . . . . . . . Methods Used to Promote Education About Primary Care . . . . . . . . . . . . . . . . . . Limitations of the Review of the Literature . . CHAPTER IV: METHODS Overview . . . . . . . . CHAPTER V: IMPLICATIONS FOR ADVANCED PRACTICE NURSING Overview . . . . . . . . . . . Summary and Implications of This Study: Potential contributions 0 O O O O O O O O I O O O O I O 0 Recommendation for Nurse Practitioners . . . . . REFERENCES . . . . . . . APPENDIX A: Primary Care Brochure . . . . . . . . . . APPENDIX B: Evaluation of the Primary Care Brochure . vi Page vii \lO‘NH . 10 O 17 . 19 . 21 . 27 . 32 . 46 LIST OF FIGURES Page Figure 1: Roger's Innovative-Decision Process Model . . . 9 Figure 2: Modified Model . . . . . . . . . . . . . . . . 14 vii CHAPTER I ISSUES AND PROBLEM STATEMENT Introduction The Institute of Medicine (IOM) (1993) noted that historically, lower socioeconomic populations have a significantly higher morbidity and mortality from chronic and acute disease processes because of lack of primary care. The (IOM) was charged with developing a set of indicators to monitor access to healthcare by the U.S. public. The first matter the IOM Committee attended to was the establishment of the specific indicators to monitor access to personal healthcare, and they found that little progress had been made over the past decade. Low socioeconomic populations were still at risk for disease and death due to a real or perceived lack of access to proper healthcare. This risk existed whether there was an actual lack of healthcare providers, or the patients received inappropriate and inconsistent episodic healthcare in the emergency departments. Educating the public about the primary care benefits of longitudinal care, continuity of care, and access to care is a priority of healthcare providers. Without access to care, certain populations will suffer the effects of poor health outcomes related to episodic care. Education that focuses 1 2 on the definition and description of primary care can improve patient's understanding of the healthcare system and promote effective utilization of primary care providers. The primary care brochure that was developed for this project provides education material relevant to these issues. Background and History of the Problem Issues_and_Trends: Patients seeking care for non- emergent problems/health-concerns often look to the emergency departments of hospitals to provide that care. Greene (1996) reported on a recent effort by University of California-based medical center to curtail inappropriate use of emergency rooms by non-emergent patients. “Nationwide, emergency room visits have increased about 5% annually over the past 10 years? (p. 38). Greene (1995) stated that a 1993 study by the General Accounting Office found that 43% of all emergency room visits are nonemergency cases and could be treated by primary providers, thus saving insurance providers and patients about $7 billion per year in unnecessary costs. In the Medicaid population, as well as others, it has been a common practice to seek any and all care in the emergency department (ED), and some families have grown up with this care as the norm. According to Kasper (1987), this is especially true with lower socioeconomic level of women and the uninsured or those receiving Medicare. Kasper 3 stated that this patient population has sought care for themselves and their children in the ED for decades. With the new healthcare reform, Medicaid recipients are finding that a PSP (professional service provider) now appears on their monthly card. PSP is a primary care provider that the recipient chooses, or one is chosen for them from a list of providers. These providers are physicians and nurse practitioners who are approved by Medicaid, Medicare, and others to provide primary care. They are the gatekeepers who must authorized treatment in the ED or other specialty practice. Many healthcare institutions, Health Maintenance Organizations (HMOs) and other insurance plans are also involved in the same practice to help keep non-emergent care with the primary care providers. In reviewing the history of primary care, Davis (1991) noted that from the economic studies of the 19605 through the early 1980s, it became apparent that one of the successes in healthcare accessibility was centered around community health centers; this was especially true with the ones that served the very young, the very old, those with chronic illness and African Americans. Davis also stated that literature published on research in the 19805 showed that access to proper healthcare was necessary for overall positive health outcomes of the patient population. According to Baraski (1993) et al., a study done at Munson Medical Center (MMC) in Traverse City demonstrated 4 that in the 1993 fiscal year, visits to Munson Medical Ceter Emergency Department (ED) for minor emergencies (Levels I & II care) accounted for an estimated $899,000 in costs. Minor emergencies at Munson ED accounted for 64% of the ED's total visit volume in the 1993 fiscal year (p.1). Minor emergencies cited in a retrospective study on fast track triage by Baranski et al. (1993) were: headaches, conjunctivitis, simple bronchitis, sore throats, fevers gastroenteritis, skin rash, dermatitis, minor burns, insect bites, or minor lacerations (non-facial or extensive), suture removal, wound checks, and minor fractures (p.2). The number of patients who were seen for minor emergencies was 16,778, a 17.6% decline from the peak volumes in 1988. Competition of Urgent Care, a walk-in clinic, which opened in 1988 contributed to the decline of minor emergency volumes at MMC. According to Baranski et a1. (1993) most consumers (88%) have a family or personal physician but less than half choose this option for minor medical emergencies occurring during the daytime (p.1). A customer survey done by The T.C. Community Survey (1993) demonstrated that patients preferred Urgent Care for ease in parking, cost of visit ($40.00 at Urgent Care compared to $45.00 at Munson ED) and location. Charges for primary care providers were not included in this listing. Urgent Care is more visible for patients, especially tourists, because it is located on US 31, the main thoroughfare in Traverse City. Munson is more difficult to 5 locate as it is four blocks from the main street. Primary care offices frequently are not as accessible due to location. In summary of this survey, primary care offices should be more accessible to the public to be competitive to urgent care centers and the emergency department. The purpose of this project was to develop a brochure that has an educational focus on primary care, with definitions of primary care and attributes of having a primary care provider. The overall goal of this brochure is to increase awareness of primary care through patient education, and focus on the benefits of access to longitudinal care vs. episodic care. This brochure was developed for the general public to read, but targets the underserved populations of the Grand Traverse area. Munson Healthcare System, the area's regional referral center, provides healthcare service to this largely rural area that encompasses Benzie, Grand Traverse, Kalkaska, Leelanau, and Wexford counties primarily, but also includes surrounding counties. According to the Northwest Michigan Council of Governments (1994), the Grand Traverse Area population consists of Caucasians (98.05%), Native Americans (0.86%), Mexican Americans (0.78%), African Americans (0.40%), and Asians (0.49%). In 1970 that population consisted of 98.88% Caucasian, 0.56% Native America, 0.33% African American, 6 0.0% Asian, and Mexican Americans was listed as THU (p.88).* Leelanau County had a growth of Native Americans between 1970-1990 of 1.99% and the surrounding Counties showed similar figures in the 1990 Census Report. The example above is a trend toward a less homogenous society, ad with this change comes socioeconomic change and more difficulties accessing primary care. Although the minority population is small, they are growing in number. The Northwest Michigan Council of Governments noted that there also remains a number of socioeconomically disadvantaged Caucasians. In 1990 the mean personal income per capita in the five county area was $17,000 per year. The high school dropout rate in the 1990 census was 14.1% in Leelenau County, 30.4% in Kalkaska County, and 51.1% in Grand Traverse County. Problem Statement When patients choose emergency departments and urgent care centers for non-emergent healthcare, they do not access longitudinal, cost effective, and optimum quality healthcare. Although many individuals routinely seek non-emergent healthcare in emergency departments and urgent care centers, insurance companies are beginning to limit payments for this costly delivery of healthcare. Presently, there is a paucity of literature available to the general public *These are published percentages. 7 regarding primary care settings as preferred sites for non- emergent healthcare. This is particularly an issue for some socio-economically disadvantaged populations. Goals and Objectives of this Brochure The purpose of this scholarly project was to develop an informational brochure on primary care that will facilitate knowledge on access to primary care. The intended audience for the brochure is the general public, with special focus and format designed for the socioeconomically disadvantaged. The content of this brochure will include the following: 1. Definition of primary care. 2. Description of primary care providers. 3. Instructions regarding access to a PCP. 4. Description of attributes of accessible, longitudinal, cost-effective, coordinated healthcare. 5. Definitions of a true healthcare emergency. 6. Description of episodic healthcare issues can be treated by a primary care provider. CHAPTER II CONCEPTUAL FRAMEWORK Rogers' Innovation-Decision Process Model The Inn2xati2nznecision_2regess_n2del (Figure 1) is the conceptual model created by Rogers (1995) to demonstrate decision-making as a process rather than a random instantaneous act. The following concepts are the series of actions that occur during diffusion of an innovation. In the case of this project, these are the series of occurrences involved in diffusion of the innovation of primary care to the lower socioeconomic populations of the Grand Traverse and surrounding areas. Changing an individual's concepts, traditions, or beliefs regarding choices in acquisition of non-emergent healthcare is an educational process. The model of the Innovation-Decision Process is a depiction of the process that occurs over time, during a decision to accept and adopt a new idea/innovation. This process is begun by educating the individual or group about the innovation. This model has an anthropological basis and is especially applicable in the Traverse City and the Grand Traverse region where the heterogeneous population exists with a moderate number of lower income persons who may not have access to primary care 8 ROGERS' MODEL OF STAGES IN THE INNOVATION-DECISION PROCESS PRIOR CONDITIONS 1. Previous practice 2. Felt needslproblems 3. lnnovativeness 4. Norms of the social systems COMMUNICATION CHANNELS __ .— ._____. .— .— — .— _ _ — —_ — _.... .— — __ _-._ _ _ — — _— l | I l- KNOWLEDGE u. PERSUASION m. DECISION > V- 35%;? > l l i i ‘—-—> 1- AdOPfiOB——" Continued Adoption Characteristics of perceived ‘ —> Later Adoption the Decision- Characteristics -> Discontinuance Making Unit of the Innovation: . . . ' . _ 1. Socioeconomic 1. Relative advantage ——>2 Rejection———> Continued Rejection Characteristics 2. Compatibility 2. Personality 3. Complexity N. IMPLEMEN- TATION variables 4. Trialability 3. Communication 5. Observability behavior Eignre_1: Model of Stages in the Innovation-Decision . Process. Rogers (1995) Diffusion of Innovations (p.162) 10 because of traditional, cultural or economic reasons. Some are in need of education about primary care in order to modify their beliefs about episodic health care that is neither an optimum choice for healthcare, nor cost effective healthcare. Education about primary care, utilizing the primary care brochure as a tool, may enable the population to seek primary care for non-emergent healthcare problems. Rogers' Conceptual Definitions Inngyatign: As defined by Rogers (1995), the concept of innovation is “an idea, practice, or object that is perceived as new by an individual or another unit of adoption? (p.xvii). A unit of adoption, according to Rogers, is an individual, an organization, a family, or a social system. The structure of a social system can either facilitate or impede the diffusion of an idea, or change in a particular social system, depending upon the communication that occurs in the system. Patterns of communication predict, to a large degree, the behaviors of the individuals in the social system, including if and when they adopt an innovation. Rogers also stated that an innovation may take years to be accepted depending on the type of diffusion, rate of diffusion, or involvement of a change agent, in this case, the primary care provider. Wm: 1) W of the innovation is the degree to which an innovation is perceived as better than the idea it supersedes; 2) compatibility is the degree to which an innovation is 11 perceived as being consistent with the existing values, past experiences, and needs of potential adopters; 3) Complexity is the degree to which an innovation is perceived as difficult to understand and use; 4) Trialability is the degree to which an innovation may be experienced, tried, and sampled on a limited basis; 5) Qbsgryahility is the degree to which the results of an innovation are visible to the others in the group. Diffusion: The concept of diffusion, as defined by Rogers (1995) , is “the process by which an innovation is communicated through certain channels over time among the members of a social system” (p.5) . An innovation causes social change when the process of an intention or idea occurs and is diffused, then is accepted or rejected. In some instances, a change agent must be utilized in order to bring about change through education hence the primary care provider can be utilized as the change agent to communicate and educate patients about primary care. A primary care brochure can be the educational tool used by primary care providers (change agent) in an attempt to persuade the lower socioeconomic groups to adopt primary care over episodic care. There are many means of educating the public and each method appeals to different populations. Lifestyle, culture, and values play a very important role in how individuals obtain information about healthcare. Rogers (1995) stated that diffusion of information is necessary for 12 change to occur. The diffusion process is made up of four steps: 1) The Innovation is introduced to the person or social group; 2) Communication over time is necessary for diffusion to occur and is related to the dimension of diffusion from the time the innovation was introduced, through the acceptance and adoption of the innovation; 3) Communication of the innovation occurs through interpersonal communication channels; 4) Communication occurs among the members of a social system or culture who are a problem solving entity, congregated to accomplish a common goal. The NP, as educator and change agent, can understand and somewhat predict the success and time frame required for diffusion of the idea of primary care. The Innovation-Decision Process Model (Rogers, 1995) has a linear configuration, but the model demonstrates an overall continuum of communication that interacts along the phases of the diffusion of a concept or idea (innovation). The decision to accept or reject the innovation is also a characteristic of the model which allows the individual to change a decision about the innovation, i.e., to later accept or reject once an initial decision is made. The Innovation-Decision Process Model consists of five stages: 1) Knowledge that occurs when an individual or group involved in a decision making process is exposed to the existence of an idea or innovation; 2) Persuasion of an individual or decision-making group occurs after knowledge and thus a favorable or unfavorable attitude toward the 13 innovation is formed; 3) Decision is reached when the individual group is involved in activities that lead to a choice to accept or reject the innovation; 4) Implementation occurs after the decision is reached to put the innovation into use; 5) Confirmation of the decision to implement the innovation occurs when the individual or decision-making group, according to Rogers (1995) “seeks reinforcement of an innovation-decision- already made” (p.162). In examination of the Innovation-Decision Process Model, it is apparent that the activities from the time the decision was made, through the implementation, and to the confirmation stage, involves multidirectional movement possibilities. It is possible to reject an innovation initially and adopt it at a later date, or to adopt an innovation early on, then discontinue it later. Therefore, the model is not a closed or one-way system, but an open, multidirectional system. It is with this premise that the primary care provider can educate and increase the knowledge base of the individual patient or of a family to help them reach a decision to adopt primary care for their non- emergent health care needs. The adapted Innovation-Decision Process Model (Figure 2) depicts the premises of the original diffusion model (Figure 1). These premises were utilized to develop an educational tool, the primary care brochure. 14 ADAPTATION OF ROGERS’ MODEL OF STAGES IN THE INNOVATION-DECISION PROCESS PRIOR CONDITIONS 1. Previous practice of seeking health care 2. Felt needs/problems of episodic health care 3. lnnovativeness to change behavior 4. Norms of the social systems: visits to non-primary care providers (emergency departments. walk-in clinics) COMMUNICATION CHANNELS I ‘ ‘ l I l . I I. KNOWLEDGE II. PERSUASION III. DECISION >N‘ mgr?"- > V- 3:3: I PC‘ Brochure Change Agent —>1-Afdgpélgm\——> Continued Adoption ‘ O .~> Later Adoption | \ i \ \ Characteristics of Perceived / w Discontinuance the Decision- Characteristics —>2. R 'ectm/—_.- Continued R 'ection Making Unit: of the innovation (PC) ofe’PC* e] 1. Low lncorne 1. Relative advantage caucasian 2. Compatibility and minorities 3. Complexity 2. Personal, cultural. 4. Trialability and ethnic variables 5. Observability 3. Education, communication behavior *Primary Care Eignre_2f Adaptation of Model of Stages in the Innovation- Decision Process. Rogers (1995) DifquIOn of Innovations (p.162). 15 The section in the upper left corner is labeled Prior Conditions. Before education can begin, these prior conditions must be addressed: 1. Previous practice of seeking healthcare. 2. Felt needs/problems of episodic healthcare. 3. lnnovativeness to change behavior. 4. Norms of the social systems: visits to non-primary care providers (emergency departments, walk-in clinics). Steps of the Innovation-Decision Process are shown as a continuum linked by communication channels. The steps in the process are depicted by five arrow-shaped boxes. The first box is titled knowledge. This portion of the model is the foundation for a decision process, i.e., one must have knowledge of primary care in order to make a decision. Knowledge is conveyed by education. The area directly under the knowledge box has PC brochure blended with the arrow that is pointed toward knowledge. The primary care brochure describes primary care, benefits of primary care, etc. This is connected to the area entitled, Characteristics of Decision-Making Unit. These characteristics are 1) low income Caucasians and Minorities; 2) personal, cultural, and ethnic variables; and 3) education and communication behaviors of the individuals who would obtain knowledge of PC. The second box is titled Persuasion. An individual may require education in order to be persuaded to accept the innovation of primary care. Persuasion may occur through a 16 change agent, who can be the NP or a member of a social group. The NP can review the brochure with an individual and elaborate on the perceived characteristics of PC which are located in the area below the words Change Agent. An arrow connects the characteristics and points toward persuasion. The perceived characteristics are: a) relative advantage; b) compatibility with values; c) complexity; d) trialability of PC provider and system; and e) Observability of others who have PCP. The third box is titled Decision, and interfaces with an area depicted as Adoption of PC and Rejection of PC. These two variables interface with variables of continued adoption, later adoption, discontinuance, and continued rejection. This process is a representation of the dynamics and multidirectional characteristics of decision making. For example, a person may initially reject the innovation of primary care, but may later adopt the behavior of seeking primary care if a change agent persuades the person to adopt that behavior. The implementation box represents the action of putting the innovation to use. For example, a woman makes a decision to seek primary care and reserved an appointment with a primary care provider, thus implementing her decision to trial primary care. The confirmation box represents the individual seeking reinforcement for the decision he/she made to visit a PCP. If the visit was a positive experience that behavior will 17 continue and the innovation of primary care will not be rejected. If the experience does not meet the person's expectations, or if there are negative or conflicting messages about PC by family or social system, the person may reject primary care. Conceptual Definitions The concept of primary care is defined by the Michigan Primary Care Association (1989) as: A basic level of healthcare usually rendered by general practitioners, family practitioners, internists, obstetricians and gynecologists, and pediatricians, as well as non-physician health practitioners with specialized training and skills. Primary care includes those services people receive on first contact with the healthcare system, i.e., prevention, maintenance, diagnosis, limited treatment, management of chronic problems and referral. Primary care services are provided in ambulatory settings, i.e., outpatient clinics and physician's offices (p. 149). The definition of provider, according to Starfield (1992), is a healthcare professional with licensure to practice medicine as a physician (DO or MD), or licensure to practice as an advanced practice nurse, known as a nurse practitioner (NP). Calking (1984) defined advanced nursing practice as the “deliberative diagnosis and treatment of a 18 full range of human responses to actual or potential health problems” (p.27) . Other healthcare providers are physician assistants (PAs), who are board certified and function as providers under the supervision of a physician. Although PAs are not licensed providers, they can provide care and bill under the physician's personal identification number for Medicare and Medicaid, the insurance most often provided for the lower socioeconomic population. In summary, this adapted model of stages in the Innovation-Decision Process may assist providers to evaluate reasons why primary care is adopted or rejected by the lower socioeconomic populations in the Grand Traverse area or in other areas with similar demographics. The adapted model also assists the provider to understand his/her role as change agent in educating the patient about the benefits of primary care. The primary care brochure is a tool to promote this innovation. CHAPTER III A REVIEW OF THE LITERATURE The review of literature is organized to: overview the attributes of primary care, identify some cultural/socioeconomics drive barriers to accessing primary care, and provide an overview of methods to promote education about primary care. Attributes to Primary Care Starfield (1992) stated that the four key attributes of primary care are: first contact care, longitudinality, coordination, and comprehensiveness. First contact care implies accessibility to and the use of services for each new problem or episode of an old problem for which people seek healthcare. A facility does not provide first contact care unless the potential users believe this care will be accessible to them for further care. Longitudinality implies the existence of a regular source of care, and the patient uses this source of care over time. Thus longitudinality is possible when the patient remains with the primary care provider who will care for the patient in all forms of health and illness care. Starfield (1992) also stated that having longitudinal care 19 20 means that persons will identify with a provider as their provider, and that the provider or groups of providers do identify the existence of a relationship or contract as that person's regular source of care. While longitudinality implies continuity of care, there exists a difference in actual definitions. Starfield (1992) explained that longitudinality refers to successive events of care, is time-bound and across the full spectrum of potential problems or reasons for visits to the provider. Continuity is then defined as the succession of events between provider visits, without regard to “where or why they occur" (p.79) . Starfield also noted that people who have longitudinal care have fewer emergency hospitalizations and shorter hospitalizations, as demonstrated by a study by Wasson et al. (1984), in which men over the age of fifty-five were randomly assigned to two different groups for care, one longitudinal and the other not. Those persons who chose primary care over visits to an emergency department for treatment lessened any time spent in the hospital if they were later admitted for serious problems. Comprehensiveness refers to primary care that provides initial and follow up care by that primary care provider, or referral to specialists if the condition warrants, and follow up thereafter. The endpoint is a return to the primary care provider for assessment and continued care. Coordination of care is an integration of care that requires some form of continuity, either by practitioners, 21 medical records, or both, as well as problem recognition. Coordination of care is essential for good outcomes of healthcare. Barriers to Primary care Barriers to accessing primary care exist within the lower socioeconomic population, and are barriers to the diffusion of primary care. Melnyk (1990) defined barriers to care as intrinsic or extrinsic. That author stated that barriers perceived by the client/patient are intrinsic barriers. Examples of these are the inconvenience of seeking healthcare, previous adverse healthcare experiences, or social, cultural, or religious issues. These are the most difficult to modify since they are usually rooted in the patient's beliefs or values. Extrinsic barriers are negative relationships with healthcare providers, lack of providers, lack of transportation to health care facilities or other site related barriers, and financial concerns. Financial problems prevent access to primary care for a significant percentage of the population. Hastings (1995) reported that.fiA 1987 survey of the uninsured revealed the poor, or near poor, constituted approximately 37.3% of the population. Low income Americans made up 21.4%, middle income persons comprised 27.8%, and high income earner comprised 13.5%” (p. 53). Patients with lower socioeconomic status tend to visit emergency departments instead of choosing a primary care provider. Many of these patients have gone from one 22 provider to another because they owe money that they cannot pay from previous visits. Hulen (1995) states that many of those patients have tried to do the right thing and have exhausted all resources in seeking healthcare. Hulen also observed that these patients feel that they have no other option but to come to the emergency department for acute, nonurgent problems. Patients who seek care in emergency departments do not receive longitudinality and continuity of care. Kelly (1994) stated that “one of the most disturbing problems we observed as the “shotgun therapy" received by so many patients who returned to the emergency department over and over with varied complaints such as abdominal pain, headache, or back pain” (p.455) . The author also found that patients repeatedly received extensive workups because of their poor history and a lack of access to complete medical records. Kelly also noted that definitive care and follow- up in a primary care setting would have been better care and would not have exposed these patients to endless workups, poor compliance on the patients' part and ongoing medical problems. Kelly was instrumental in organizing Peach Tree Clinic in 1992. The clinic was built to care for persons seeking non-emergent care and was staffed with primary care physicians, physician assistants and nurse practitioners. Inner city clinics are more accessible for urban poor. According to Mezy and McGivern (1993) national surveys have demonstrated that 15% of the U.S. population does not 23 have a regular care provider. Nursing surveys found that 17% of Americans had inadequate access to physicians. Children from low income families are especially vulnerable to lack of adequate healthcare. Kleinman et al. (1981) found that children from low income families were twice as likely to have not seen a physician in the past five years and that children from low income families had 47% fewer physician visits overall. These authors also noted that such families need education on how they can access primary care and what financial arrangements can be individualized for them. Stevensen et al. (1994) stated that America's healthcare system is failing to meet the needs of children and the health status of children is declining. Medically indigent children are lacking adequate healthcare because there is a lack of providers and insurance. Stevenson noted that persons with public insurance (Medicaid) were more likely to use hospital emergency departments and government clinics for health care. While Medicaid assists low income parents to obtain healthcare for their children, it may not be cost-effective care. Medicaid insurance (public insurance) and medical care use were correlated by Butler et al. (1985) in a stratified, four stage, area probability sampling design. In a study of children ages 0-18 in the Northeast section of the United States (U.S.), a sample of 5,662 children was correlated with an estimate of 69.7 million children in the U.S. in 1980. Researchers found 24 that 13.6% (SE 1.3) did not have health care insurance and 37.5% (SE 2.9) had no regular provider. While the researchers found no causal relationship to regular care and reported insurance coverage, they did find that those children with a regular source of care have lower average charges per visit; $31.68 for those with a regular provider compared to $40.68 for those with episodic care (had no regular source of care) (p.502). The increased cost of those with non-primary care providers was in part due to disproportionate use of expensive ER visits and other hospital based services. Large differences in care were found according to race or ethnicity as well. During a one year period approximately one third of African Americans and Hispanic children did not see any type of provider, compared to 21% of Caucasian children who did see a provider. Virji (1990) found that patients from lower socioeconomic environments, particularly single mothers, had negative attitudes toward making appointments. The recommendation from the study was to have a mixed open access and appointment system to better serve that patient need. This would allow for spontaneity in visiting the clinic, a behavior that group continued to value. The clinic's innovation allowed for a change in type of health care obtained, but change in the behavior of seeking immediate care was not accomplished. Primary care clinics are more desirable than government clinics and emergency departments because in the government clinics and EDs, 25 patients usually face long waiting lines and discontinuity of care. According to Aday and Anderson (1984), these patients are less likely to seek preventative care and will seek episodic care for illness. Along with these barriers associated with emergency departments and government agencies, personal or cultural feelings and attitudes about healthcare may cause barriers that influence behaviors in seeking healthcare. Barriers to healthcare are often related to misunderstanding cultural beliefs of Native American patients. Kutenai (1996) believed that primary care NPs and physicians can make a difference in whether or not Native Americans take the antibiotic that they are prescribed, or refuse to take medicine due to the provider's poor understanding of the patient's cultural beliefs. Kutenai stated that Native Americans have traditional ways of healing using herbs, sweat lodges, and prayer. Primary care physicians and NPs can learn Native ways by communicating with patients over time, learning their beliefs and values regarding treatments that are prescribed. In contrast, a poorly conducted discharge by the ED or fast-track staff may lead toI“non-compliance”, a term used too frequently by persons who do not understand cultural needs. Care and consideration of outcomes is an important part of primary care. Jackson (1993) reported the case of a Vietnamese toddler who was treated with moxibustion, a form of Asian treatment for illness, which involves burning 26 mugwort leaves over skin acupuncture points. The burns were noted by ED staff when the child was admitted for pneumonia. The child's mother was educated on American treatment of pneumonia, primary care follow-up was established, and maintained by the child's parents. Western medicine was applied by providing knowledge of new treatments for pneumonia, while validating previous beliefs, and the persuasion to make the change was put forth by the nurses, physicians, and social services. The parents made the decision to change and adopted the new form of treatment. New treatment was implemented, and confirmation of the change for the good was established when the child recovered from the pneumonia. 1 The primary care provider can view cultures holistically in order to discover methods to interact in health and illness care. Leininger (1991) addressed cultural values such as kinship, social factors, socioeconomic status, educational background, religious and philosophical factors. These factors are important in explaining the role primary care has in providing optimum care over episodic care. Leininger also stated that “Culture care was conceptualized and transformed into a nursing perspective to develop a body of new or distinct knowledge in nursing" (p.24) . Many patients may not find in an urgent care walk-in clinic or fast track ED, a culturally sensitive environment. Abdullah (1995) found that too often the health needs of 27 patients with diverse cultural backgrounds are not always completely met due to partially recognized problems. For example, Mexican American migrants may prefer to come to the emergency department for acute care needs that are not an emergency. The IOM (1993) reported that a study of migrants' health care needs and found that knowing about the existence of the migrant health center as well as of the area in which it was located was a factor in increasing that population's ability to access care. Of those migrants who were recent immigrants, 45% had no knowledge of the migrant health center, compared to only 10.4% of the long-term migrants. Fifty-one percent of the recent-immigrants had not seen a physician in the past year (p.208). Those who were not aware of the migrant clinics tended to seek episodic care or no care at all. Methods Used to Promote Education About Primary Care There are various methods of educating the public about primary care and each method appeals to different populations. Some cultural norms do not value primary care, especially in some lower socioeconomic groups, or in others where there are barriers to accessing primary care. Rogers (1995) states, “Norms are the established behavior patterns for the members of a social system? (p.26). With norms and behavior patterns it is often difficult to persuade individuals to change beliefs and to reach them with education. 28 Television and radio are effective methods to educate the public. Television spots may attract the attention of viewers, but these are costly and usually require funding from a lucrative group. Persons who live in poverty may not have access to a television. According to Lorig (1992), many media approaches such as interactive TV or VCR programs are not reaching rural and semi-rural environments. These are difficult to engineer and are very costly. Thus, large segments of the population may be denied educational programs. Lorig stated that.“the simplest and most often used solution to this problem is the use of printed materials" (p.40). Radio is another medium that reaches many persons during their day in the car, work, home, or leisure time. Radio is also expensive and not a means to reach some of the population who are seeking healthcare. Socially disadvantaged individuals may find newspapers difficult to read. Therefore, public education on the advantages of primary care, descriptions of what primary care is, who provides it, and how to access those caregivers can be difficult to bring to certain cultures and individuals. With this in mind, the educational brochure, as a method to provide education, has an advantage over other forms of communication. Brochures and other printed teaching materials can be beneficial for review of educational sessions with the PCP and patients can enjoy reviewing the material at their 29 leisure. Redman (1993) stated that “Printed teaching materials can be described as a frozen language that is selective in its description of reality” (p.140). Redman added that printed material encourages limited feedback, but the material is always available and readers can control the speed at which they read and comprehend. Redman also noted that certain types of education seems to demand written expression, i.e., a complex sequence of thoughts, definitions, or qualifications. Redman offered comparisons of various readers' abilities to absorb written text, in particular, the novice reader. “Novices take advantage of the text's stability to slow the rate of information processing; as a result they are able to review the material? (p.141). Price and Everett (1996) described a process for developing a pamphlet specifically designed for low socioeconomic and less well educated persons. When developing materials for populations with limited education, the writer must frequently evaluate the pamphlet to reduce the number of barriers to comprehension and make the material more interesting to read. A person's reading ability is a combination of motivation and skill, and if the content is too difficult to read, the motivation to read the material will be lost. Price and Everett provide the following guidelines for less well educated readers (p.163): 1) Use one or two syllable words whenever possible; 2) Keep sentences concise; 3) Present one idea (innovation) at a 30 time; 4) Define and uSe phonetic pronunciation for difficult words; 5) Use simple fonts: avoid all capitals, but use bold print and italics; 6) Use illustrations and cartoons, photos, and diagrams for ease of reading and appeal. PCPs utilize pamphlets and brochures to educate on various healthcare topics. Shires et al. (1987) stated that educational brochures have two roles in primary care practice. First, books and pamphlets provide:“food for thought? and often motivate patients to seek more information. The authors also stated that there is some limited potential for health education during the “downtime” when the patient, family and/or escorts are waiting for service. Placing pamphlets or brochures in the waiting rooms provides reading material to meet this education potential. This may also indicate to the patients and significant others that the provider extends a primary care relationship to them. Television, home videos and other methods of education are available today but many educators overlook the brochure as an easy method to educate patients and families. Haggard (1989) noted that with today's technology and education of the media, some people tend to ignore the simple handout. But in education as an art, simpler is often the better way to reach out to patients. The author relates a study of one hospital that believed that a newer, sleeker video approach would be the best presentation of their material. They conducted a market survey to determine whether the written 31 patient education materials could be supplemented by the addition of a similar videotape. The survey indicated that 90% of the respondents preferred a brochure alone. Respondents also said it was helpful with home care to have the brochure to read and re-read at their convenience. Only 1% said they wanted the videotape either instead of, or in addition to, the brochure (p.84). Haggard (1989) also related the advantages health care providers may realize in writing their own educational material. Those advantages are that the provider will have the ability to: 1) Target questions frequently asked by patients; 2) Highlight special interests or attributes of primary care; ad 3) Clarify difficult concepts using approaches that have worked for that provider in the past. Studies conducted to evaluate patient knowledge on self care have demonstrated that educational booklets have an advantage over oral instructions alone. Maggs et al. (1996) conducted a single-blind randomized controlled trial on the effect on knowledge base of arthritis self-care utilizing an educational booklet for patients with chronic arthritis. The authors learned that a booklet was found to be more useful in gaining knowledge about arthritis when used alone, or in addition to individualized instruction, compared to group education only. All of the three groups involved in the study had a similar knowledge base about arthritis self- care prior to the study. The researchers learned that in the three groups of 50 person studied over a six week 32 period, knowledge base increased significantly (o<0.0001) in those given the booklet, and those with the booklet and oral instruction (omm I «Eoom OcmmcoEu m5 2 om _ on .855 mEmEoE 5:8; 2:950 wocwcosfimfi 513$ mcosmficcEE— mcocmcmexo 252cm 823.2: SEE mcoSDmE~ mEoEoE .352 mecca one 3:6 .235 2888ch 35525.1 magnum mEoo can .Lmsoo .DE «.3265 Sou .CoEtc >8 Dem . on cop-3 52 .mOmmmE: coEEoU amoE new: use omocmwe who: 6358.5 352 .mcfomou Limo; .858 can .ommocoxo .36 .mE: -cwE 355C demo @8533 can ciao; .mcosmEmeo 236.33 8.8,“st 3 MEEPS ESE? use cosmos? vmocwzow firs owes: a E smcossowoq owes: < 5.7: maocomumeoctm $.32 .cmmommmnd who com? #895 of cops: @5238 oar—om -93 can 32:: Bomb 8 MEEPS 30on was Scmsmmmmm cowofimcd < 26 $535. descend So a as: assist «20235 Sou tonic etc 05$ 23 37.8 $2 3125: E memo bus—Em owe 2o 8 moccCE Eob so» .8.“ 9:8 EB m3 momma 3.2:: was 5:8: .50» .3 to.“ 83 9.698 Seconds note m3 388C .25» can 30% .18 9.8 2:35 8 .36 m meson vm mic—EB one m>> cabochon 05 23 .CoEtc a. .33 Basso. a .msmzfloodm 3 Easufiom I Demo 333:5sz com .972628 $33295 l mczomcsoo can mcoSmEmeo .mfiwtfim I once mmoczma use 5183 I “om—w mm memo Deccan SE: .58 @508 $5 8639a 828.53 2o use 3m: some e8 .8263 28 Exam: 59m 525 83:8 Swan 2: E 28 mascot moccu basic n_ .655 APPENDIX B Evaluation of the Primary Care Brochure 53 Primary Care Brochure Jo Hendrix 5942 Marilyn Ct. Traverse City. MI. 49684 April 30. 1998 Dear Healthcare Provider. Thank you for agreeing to participate in the evaluation of a pilot brochure that will be used as an educational tool to teach our lower socioecenomic population of patients about primary care. The brochure is designed to facillitate conversation between you and your patient regarding the benefits of seeking their primary care provider for health and illness concerns. This educational process is intended to persuade patients to change the behavior of seeking episodic care at the emergency department and urgent care centers. On May 8. I will be providing you with a copy of the primary care brochure pilot tool along with an attached cvalualion form. I will collect the evaluation forms 3 weeks after that date I May 29). Il'you have any questions I can be reached at 616-943-3005. Sincerely. Jo Hendrix. RX. .\IS.\' F” 54 Primary Care Brochure E\-"ALUATION OF THE PRD IARY C ARE BROCHURE: A pilot educational tool Please answer the following questions by assigning each one number from 1 to 5. The value for the numbers are as follows: 1=strongly disagree: 2tdisagree: 3=no opinion: 4=agree; and 52strongly agree 1. The brochure has sufficient content to describe primary care. 1 2 3 4 5 Comments: 2. The definition of primary care provider: DO..\ID: .\P and PA 1 2 3 4 5 is clear C omments: 3. The definition of primary care is clear and concise. 1 2 3 4 5 Comments: 4. The definition of conditions requiring emergent care is clear 1 2 3 4 5 and concise. Comments: 5. Examples of illness and injury that can be treated by a primary 1 2 3 4 5 care provider are clear. Comments: 6. The brochure is written ior ease of comprehension by lower 1 2 3 4 5 socioeconomic or persons with limited education. Comments: 7. The brochure is colorlu1. attractive and neat. 1 2 3 4 5 Comments: 8. 1 would use the brochure in my practice. 1 2 3 4 5 Comments: Name (optional) Thank you for participating in this evaluation and agreeing to trial this educational tool. I will collect them on May 16. 1998. Ifyou have questions. phone 943-3005. .10 Hendrix. RN I\ISI\' UNI IVERSITY LIBRARIES III III II 'IIIIIIII IIIIIII II II IIII IIIIII 129302 2693